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Aphasia and Technology:
  The GReAT Project
     Abi Roper and Jane Marshall
       On behalf of the GReAT Project Team
 Division of Language and Communication Science
Department of Human Computer Interaction Design
               City University London
Presentation Outline
•The Project
•Designing and Refining a Computer Gesture
Therapy - Gest
•Gest Demonstration
•Delivering a Computer Therapy
•Gest Pilot Study
•Preliminary Outcomes
Project Aims
• To develop an affordable, computer-based
  technology that can be used in therapy at home to
  help people with severe aphasia to gesture.

• To establish how to design effective/engaging
  interactions for people with aphasia.

• To evaluate the efficacy of the technology within a
  pilot therapy study
Project Structure
• Phase 1: Designing a prototype gesture
  therapy using participatory design
  methods.

• Phase 2: Testing and piloting the
  prototype
Project Team
Human Computer Interaction Design & Language and Communication Science




       Stephanie Wilson Sam Muscroft   Julia Galliers   Jane Marshall




                Naomi Cocks      Tim Pring         Abi Roper
Phase 1


• Designing a prototype gesture
  therapy using participatory
  design methods.
Consultants



Justine Everson     Gerald Hartup    Carol Watson




        Philip Pepper        Emma Buswell
Consultants
•Role: to test and feedback about relevant technology.

•Person Specifications:
   –Expressive aphasia language difficulties.
   –Able to attend university once or twice a month for
   participatory design sessions.

•Recruited through in house clinic and through links with
the Stroke Association Communication Support
Co-ordinators.

•Employed by City University London as Casual Staff
members.
Methods: Participatory Design
               Sessions
•Participatory design – engaging end users in design
process
•Sessions explored offline gesture therapy, computer
gesture recognition, interaction within 3D worlds and
computer interfaces.

•Consultants took part in 9 sessions each
•Project team involved in each session
   - 1 HCID Researcher
   - 1 HCID Developer
   - 1 Speech and Language Therapist Researcher
   - 2 or 3 Consultants
Session Structure
1. Introduction to scheduled
   activities
2. Round table gesture activity
3. Demonstration of Technology
4. Trial use of technology by one
   consultant - followed by
   interview at computer
5. Tea break
6. Trial use of technology by
   remaining consultant(s)
Participatory Design


• Watch a video excerpt of the
  design process in action on the
  next slide
What did we learn from the
         Sessions?
1. Consistency
2. Simplicity
3. Pace
4. Reliability
5. Rewards
6. Individual Differences
7. Potential of ‘gaming’.
The Prototype



                OK
                ←    →
Demonstration

•Watch a video Demo of the
Gest prototype in action on
the next slide
Using the Therapy at home
•How does this work at home?
Key differences between lab and
home –
User practising
independently, User intending to
practise daily. User practising in
non-lab conditions.
Things to consider when setting
               up
•Lighting conditions

•Safety and permanence
(negotiate!)

•User comfort and access
Things to consider when training
•Develop the user’s confidence in the system.
(Be confident yourself)
Demonstrate:
1. Allow user to observe entirely
2. Allow user to observe and operate
   interaction buttons
3. Allow user to operate alone but with
   support as needed (confidence)
Things to consider when training
•Reinforce how to switch the computer
on and off several times.
•Make an appointment to come back in
one week to review.
•At review appointment, observe and re-
train difficult procedures.
Phase 2



• The Pilot Study
Questions
• Will practice with Gest improve participants’ production of
  gestures &/or spoken words?
• Will improvements be specific to items that feature in the
  programme?
• Will gains occur when Gest is used without ongoing
  therapist support?
• Will gains be maintained after Gest is withdrawn?
• What are participants’ views about Gest?
• What are carers’ views about Gest?
  (where relevant)
• Is Gest easy and enjoyable to use?
Participants
• 10 people with severe aphasia
  – Consent to take part
  – Fluent pre-stroke users of English
  – Naming score <20%
  – Able to recognise pictures
  – No known dementia or other cognitive impairment
Consent


          Screening

                                                    Phase 1 with weekly
                      Tests (1)
                                                    visits from therapist
                                  3 Weeks
                                  Practice
                                                                           Phase 2 with no weekly
                                             Tests (2)
                                                                           visits from therapist
                                                         3 Weeks
                                                         Practice

                                                                    Tests (3)

                                                                                3 weeks
                                                                                no tool

 Total time commitment: about 14 weeks                                                    Tests (4)
Practice Phases
•   Each last 3 weeks
•   Each practise 15 gestures with the tool
•   Phase 1: Weekly visits from therapist
•   Phase 2: Initial but no weekly visits
Tests
• 60 items
   – Gesture from picture
   – Name from picture                  What is the
                                        name of this?

                          How would
                          you gesture
 Items:                   this?
 30 practised with Gest
 15 familiarised only
 15 controls
Scoring Gestures
• Gesture tests are filmed
• 4 Scoring videos created
• Each video contains 60 gestures in random
  order:
  – 15 from test 1
  – 15 from test 2
  – 15 from test 3
  – 15 from test 4
Scoring Gestures
• Scores
  – Recognition Score
  – Rating Score


• Scorers are ‘blind’ to the time of assessment
Usability Evaluations
• Observe participants using the tool
• Interview participants
• Interview carers (if relevant)

  – When technology is installed
  – After each practice phase
Usage Logs
• Record
  – Number of sessions
  – Length of sessions
  – Levels of programme accessed
  – Number of gestures recognised
Results so far

    Usage
Mean Usage: 7 Participants

  60
  50
  40
  30
  20
  10
  0
         Days        No of    Time used   Time per
       available   sessions      (hrs)    session
                                           (mins)
Individual Usage: 3 participants

80
70
60
50
40
30
20
10
0
     Days available    No of     Time used     Time per
                      sessions      (hrs)    session (mins)
Usage x Recognition


80                                          300
70                                          250
60
50                                          200
40                                          150
30
20                                          100
10
 0                                          50
       Days      No of Time used Time per    0
     available sessions   (hrs)  session          Recognition score
                                  (mins)
Mean Usage over Phases

28                       400
27                       350

26                       300
                         250
25                                                 Supported
                         200
24                                                 Independent
                         150
23                       100
22                       50
21                        0
     No of sessions            Time spent (mins)
Usage: Levels
• Three participants use level 1 more than 2 & 3
• Two participants use all 3 levels and rate them
  equally highly
• Two participants rate levels 2 & 3 more highly than 1


• Possibly contingent on navigation abilities
Usage Observations: Challenges
• Set up
  – Lighting
  – Positioning (e.g. wheelchairs)
  – Security

• Glove
  – Putting glove on the wrong hand
  – Using the peg board (although often not
    necessary)
Usage Observations: Challenges
• Starting and stopping
  – Pressing key board buttons before menu has
    appeared
  – Not always pressing ‘off’ at end of session
Usage Observations: Challenges
• Navigation
  – Variable use of OK, forward, back & menu buttons
  – Variable navigation between levels
  – Some unprincipled button pushing

    Speed and competence may relate to prior
    computer usage
Usage Observations: Challenges
• Gesture production
  – Knowing when to gesture; waiting for 321 ping
  – Knowing when the gesture has been recognised
  – Variable use of cues; e.g. some adjust handshape
    in response to glove image others do not
Usage Observations: Enjoyment
• All signal high enjoyment levels
  – Thumbs up sign
  – Drawn smiley face


• Positive reactions to level 2
  – Game format
  – Narrative context
  – Environments
Usage Observations: Enjoyment
• Positive reactions to level 3
  – Humour (spider, dentures)
  – Stroke survivors as actors
  – Presence of children
Other Observations
• Some target spoken words produced during
  Gest use
• Spontaneous uses of practised gestures
  (‘umbrella’ gestured when participant noticed
  that it was raining outside; ‘child’ gesture
  when talking about grandchild)
Results so far

‘Carer’ Comments
Independence of Use
• ‘She uses it all on her own, I don’t know how to
  operate it’

• The first session I stayed with L, after that I’ve
  helped only if she’s found something
  particularly frustrating’

• All comment that the participant initiated use
  of Gest
Enjoyment
• All say that the participant enjoyed Gest

• ‘he likes it when they clapped’

• ‘some of the gestures are particularly fitting
  and she enjoyed rainbow’
Views about Technology

• ‘I was a technophobe and when they said
  ‘computer’ I thought it was going to cause
  problems. I thought I wouldn’t understand
  and he wouldn’t understand it. But it’s so
  ‘easy’
Reservations
• Carry over to real life (1 carer):

• ‘while she works on it here (points to
  computer) it doesn’t necessarily translate’

• She wanted a hankie last night and didn’t
  make a gesture’
Conclusions
• Gest was created through participative design
  involving people with aphasia
   – It offers 6 packages of hierarchical practice on 30 gestures
   – It is accessible even to people with severe strokes
   – It can be used successfully in diverse home settings
   – It allows for flexible, self directed practice and is typically
     intensively used
   – It is enjoyable to use, with no reports of increased ‘carer
     burden’
Conclusions
• But we do not know if
  – Gest improves gesture production
  – Gest improves spoken naming
  – Effects generalise to unpractised targets
  – Effects are maintained


• The results of the pilot study will give us
  answers to these questions
Acknowledgements
The Research Councils UK Digital
     Economy Programme
    The Stroke Association
 Consultants and their families
 Participants and their families

       Thank You
     GReAT@city.ac.uk
   www.soi.city.ac.uk/great

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GReAT Aphasia Technology Event January 2012

  • 1. Aphasia and Technology: The GReAT Project Abi Roper and Jane Marshall On behalf of the GReAT Project Team Division of Language and Communication Science Department of Human Computer Interaction Design City University London
  • 2. Presentation Outline •The Project •Designing and Refining a Computer Gesture Therapy - Gest •Gest Demonstration •Delivering a Computer Therapy •Gest Pilot Study •Preliminary Outcomes
  • 3. Project Aims • To develop an affordable, computer-based technology that can be used in therapy at home to help people with severe aphasia to gesture. • To establish how to design effective/engaging interactions for people with aphasia. • To evaluate the efficacy of the technology within a pilot therapy study
  • 4. Project Structure • Phase 1: Designing a prototype gesture therapy using participatory design methods. • Phase 2: Testing and piloting the prototype
  • 5. Project Team Human Computer Interaction Design & Language and Communication Science Stephanie Wilson Sam Muscroft Julia Galliers Jane Marshall Naomi Cocks Tim Pring Abi Roper
  • 6. Phase 1 • Designing a prototype gesture therapy using participatory design methods.
  • 7. Consultants Justine Everson Gerald Hartup Carol Watson Philip Pepper Emma Buswell
  • 8. Consultants •Role: to test and feedback about relevant technology. •Person Specifications: –Expressive aphasia language difficulties. –Able to attend university once or twice a month for participatory design sessions. •Recruited through in house clinic and through links with the Stroke Association Communication Support Co-ordinators. •Employed by City University London as Casual Staff members.
  • 9. Methods: Participatory Design Sessions •Participatory design – engaging end users in design process •Sessions explored offline gesture therapy, computer gesture recognition, interaction within 3D worlds and computer interfaces. •Consultants took part in 9 sessions each •Project team involved in each session - 1 HCID Researcher - 1 HCID Developer - 1 Speech and Language Therapist Researcher - 2 or 3 Consultants
  • 10. Session Structure 1. Introduction to scheduled activities 2. Round table gesture activity 3. Demonstration of Technology 4. Trial use of technology by one consultant - followed by interview at computer 5. Tea break 6. Trial use of technology by remaining consultant(s)
  • 11. Participatory Design • Watch a video excerpt of the design process in action on the next slide
  • 12. What did we learn from the Sessions? 1. Consistency 2. Simplicity 3. Pace 4. Reliability 5. Rewards 6. Individual Differences 7. Potential of ‘gaming’.
  • 13. The Prototype OK ← →
  • 14. Demonstration •Watch a video Demo of the Gest prototype in action on the next slide
  • 15. Using the Therapy at home •How does this work at home? Key differences between lab and home – User practising independently, User intending to practise daily. User practising in non-lab conditions.
  • 16. Things to consider when setting up •Lighting conditions •Safety and permanence (negotiate!) •User comfort and access
  • 17. Things to consider when training •Develop the user’s confidence in the system. (Be confident yourself) Demonstrate: 1. Allow user to observe entirely 2. Allow user to observe and operate interaction buttons 3. Allow user to operate alone but with support as needed (confidence)
  • 18. Things to consider when training •Reinforce how to switch the computer on and off several times. •Make an appointment to come back in one week to review. •At review appointment, observe and re- train difficult procedures.
  • 19. Phase 2 • The Pilot Study
  • 20. Questions • Will practice with Gest improve participants’ production of gestures &/or spoken words? • Will improvements be specific to items that feature in the programme? • Will gains occur when Gest is used without ongoing therapist support? • Will gains be maintained after Gest is withdrawn? • What are participants’ views about Gest? • What are carers’ views about Gest? (where relevant) • Is Gest easy and enjoyable to use?
  • 21. Participants • 10 people with severe aphasia – Consent to take part – Fluent pre-stroke users of English – Naming score <20% – Able to recognise pictures – No known dementia or other cognitive impairment
  • 22. Consent Screening Phase 1 with weekly Tests (1) visits from therapist 3 Weeks Practice Phase 2 with no weekly Tests (2) visits from therapist 3 Weeks Practice Tests (3) 3 weeks no tool Total time commitment: about 14 weeks Tests (4)
  • 23. Practice Phases • Each last 3 weeks • Each practise 15 gestures with the tool • Phase 1: Weekly visits from therapist • Phase 2: Initial but no weekly visits
  • 24. Tests • 60 items – Gesture from picture – Name from picture What is the name of this? How would you gesture Items: this? 30 practised with Gest 15 familiarised only 15 controls
  • 25. Scoring Gestures • Gesture tests are filmed • 4 Scoring videos created • Each video contains 60 gestures in random order: – 15 from test 1 – 15 from test 2 – 15 from test 3 – 15 from test 4
  • 26. Scoring Gestures • Scores – Recognition Score – Rating Score • Scorers are ‘blind’ to the time of assessment
  • 27. Usability Evaluations • Observe participants using the tool • Interview participants • Interview carers (if relevant) – When technology is installed – After each practice phase
  • 28. Usage Logs • Record – Number of sessions – Length of sessions – Levels of programme accessed – Number of gestures recognised
  • 29. Results so far Usage
  • 30. Mean Usage: 7 Participants 60 50 40 30 20 10 0 Days No of Time used Time per available sessions (hrs) session (mins)
  • 31. Individual Usage: 3 participants 80 70 60 50 40 30 20 10 0 Days available No of Time used Time per sessions (hrs) session (mins)
  • 32. Usage x Recognition 80 300 70 250 60 50 200 40 150 30 20 100 10 0 50 Days No of Time used Time per 0 available sessions (hrs) session Recognition score (mins)
  • 33. Mean Usage over Phases 28 400 27 350 26 300 250 25 Supported 200 24 Independent 150 23 100 22 50 21 0 No of sessions Time spent (mins)
  • 34. Usage: Levels • Three participants use level 1 more than 2 & 3 • Two participants use all 3 levels and rate them equally highly • Two participants rate levels 2 & 3 more highly than 1 • Possibly contingent on navigation abilities
  • 35. Usage Observations: Challenges • Set up – Lighting – Positioning (e.g. wheelchairs) – Security • Glove – Putting glove on the wrong hand – Using the peg board (although often not necessary)
  • 36. Usage Observations: Challenges • Starting and stopping – Pressing key board buttons before menu has appeared – Not always pressing ‘off’ at end of session
  • 37. Usage Observations: Challenges • Navigation – Variable use of OK, forward, back & menu buttons – Variable navigation between levels – Some unprincipled button pushing Speed and competence may relate to prior computer usage
  • 38. Usage Observations: Challenges • Gesture production – Knowing when to gesture; waiting for 321 ping – Knowing when the gesture has been recognised – Variable use of cues; e.g. some adjust handshape in response to glove image others do not
  • 39. Usage Observations: Enjoyment • All signal high enjoyment levels – Thumbs up sign – Drawn smiley face • Positive reactions to level 2 – Game format – Narrative context – Environments
  • 40. Usage Observations: Enjoyment • Positive reactions to level 3 – Humour (spider, dentures) – Stroke survivors as actors – Presence of children
  • 41. Other Observations • Some target spoken words produced during Gest use • Spontaneous uses of practised gestures (‘umbrella’ gestured when participant noticed that it was raining outside; ‘child’ gesture when talking about grandchild)
  • 43. Independence of Use • ‘She uses it all on her own, I don’t know how to operate it’ • The first session I stayed with L, after that I’ve helped only if she’s found something particularly frustrating’ • All comment that the participant initiated use of Gest
  • 44. Enjoyment • All say that the participant enjoyed Gest • ‘he likes it when they clapped’ • ‘some of the gestures are particularly fitting and she enjoyed rainbow’
  • 45. Views about Technology • ‘I was a technophobe and when they said ‘computer’ I thought it was going to cause problems. I thought I wouldn’t understand and he wouldn’t understand it. But it’s so ‘easy’
  • 46. Reservations • Carry over to real life (1 carer): • ‘while she works on it here (points to computer) it doesn’t necessarily translate’ • She wanted a hankie last night and didn’t make a gesture’
  • 47. Conclusions • Gest was created through participative design involving people with aphasia – It offers 6 packages of hierarchical practice on 30 gestures – It is accessible even to people with severe strokes – It can be used successfully in diverse home settings – It allows for flexible, self directed practice and is typically intensively used – It is enjoyable to use, with no reports of increased ‘carer burden’
  • 48. Conclusions • But we do not know if – Gest improves gesture production – Gest improves spoken naming – Effects generalise to unpractised targets – Effects are maintained • The results of the pilot study will give us answers to these questions
  • 49. Acknowledgements The Research Councils UK Digital Economy Programme The Stroke Association Consultants and their families Participants and their families Thank You GReAT@city.ac.uk www.soi.city.ac.uk/great