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CHANGING THE DISABILITY-POVERTY PARADIGM CHALLENGING THE DEPENDENCY PARADOX IN POLICY, MONEY & HUMAN SERVICES
VALUE STATEMENTS ,[object Object],[object Object],[object Object],[object Object]
THUS FAR, WE HAVE MADE THE SHIFT FROM THIS…… To……..
WORK PLAY FAMILY & FRIENDS
POVERTY  BY THE NUMBERS U.S. Census Bureau (13 September 2011) 46.2 million Americans were living in poverty in 2010. Persons with Disabilities experienced the highest rates of poverty of any other subcategory of Americans for the tenth year in a row. SUBPOPULATION 2009 Poverty Rate 2010 Poverty Rate Children 20.7% 22.0% African-American 25.8% 27.4% Hispanic 25.3% 26.6% Disability 25.0% 27.9% Total U.S. Population 14.3% 15.1%
POVERTY AND DISABILITY:  MONEY IS THE NOT ALWAYS THE PROBLEM; SOMETIMES IT’S AN ISSUE OF PRIORITY Figure 1.  Percentage of Estimated Federal and State Expenditures for Working-Age People with Disabilities by Major Expenditure Category, Fiscal Year 2008 [1] [1]  Adapted from Livermore, Stapleton and O’Toole (2011, Health Affairs) $357 Billion in FY2008
WHAT DOES $357 BILLION BUY US IN TERMS OF OUTCOMES?
WE HAVE PROOF THAT PEOPLE CAN WORK WHEN SERVICES FOCUS ON EMPLOYMENT 2009 – UMASS Boston ICI ID/DD Agency Survey Success in employment varies widely 2009 Washington State (88 %) Oklahoma (60%) Connecticut (54%) Louisiana (47%) New Hampshire (46%)
MEDICAID IS THE FOUNDATION OF STABILITY FOR PWD ,[object Object],[object Object],[object Object]
TODAY’S FISCAL CRISES IS NOT JUST A MATTER OF NUMBERS,  IT IS A MATTER OF PEOPLE. THE DIALOGUE WE MUST ENGAGE IN IS ONE OF EQUITY, ETHICS, AND ENGAGEMENT.
EQUITY ,[object Object]
This Model results in Chronic Impoverishment, Cyclical Dependency, and Loss of Human Dignity throughout Lifespan. The Cyclical Dependency Model
This Model represents Optimal Self-Sufficiency, Independent Living, Economic Empowerment and Full Community Participation The Self-Sufficiency Investment Model
COMMUNITY SUPPORTS ENABLE INDIVIDUALS TO…. ,[object Object],[object Object],[object Object],[object Object],[object Object]
SELF-SUFFICIENCY IS NOT ONLY BETTER FOR PWD, IT ALSO MAKES ECONOMICAL SENSE SERVICE AREA CYCLICAL DEPENDENCY SELF-SUFFICIENCY MODEL Education Segregated:  $25-45K/student/year Full Inclusion:  $12-26K/student/year Employment Average annual costs of SW/individual:  $19,388 SW is less cost-efficient to  taxpayers : 0.83 SW is less cost-efficient to  workers :  0.24 Ave annual costs of SE/individual:  $6,619 SE is more cost-efficient to  taxpayers :  1.21 SE is more cost-efficient to  workers :  4.20
COMMUNITY SERVICES MAKE  FINANCIAL SENSE  Data Source: Lakin, K.C.  MSIS and NCI data from 4 states (1,240 Individuals), 2009    Type of Service Cost per Person People Served with $5 M ICF/MR $128,275  39 HCBS Residential $70,133 71 Host/Foster Family $44,122 113 Own Family $25,072 200
ETHICS ,[object Object]
CHANGED THINKING LEADS TO CHANGED PUBLIC POLICY ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
THEORETICAL FRAMEWORK :  DIMENSIONS OF THE SOCIAL GUARANTEE APPROACH ,[object Object]
ENGAGEMENT ,[object Object]
TRANSFORMATIONAL LEADERSHIP: REFORM IS IMMINENT ,[object Object]
TRANSFORMATIONAL LEADERSHIP: WHAT ROAD WILL YOU TAKE? ,[object Object]
HOW TO LEAD TOWARD CHANGE IN TIMES OF UNCERTAINTY ,[object Object],[object Object],[object Object]
THANK YOU!!! Serena Lowe President,  AnereS Strategies, LLC Executive Director,  Collaboration to Promote Self-Determination Federal Government Affairs Consultant,  National Disability Institute 202-548-2502 (Office)  202-907-8369 (Cell) [email_address]

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Changing the Disability-Poverty Paradigm

  • 1. CHANGING THE DISABILITY-POVERTY PARADIGM CHALLENGING THE DEPENDENCY PARADOX IN POLICY, MONEY & HUMAN SERVICES
  • 2.
  • 3. THUS FAR, WE HAVE MADE THE SHIFT FROM THIS…… To……..
  • 4. WORK PLAY FAMILY & FRIENDS
  • 5. POVERTY BY THE NUMBERS U.S. Census Bureau (13 September 2011) 46.2 million Americans were living in poverty in 2010. Persons with Disabilities experienced the highest rates of poverty of any other subcategory of Americans for the tenth year in a row. SUBPOPULATION 2009 Poverty Rate 2010 Poverty Rate Children 20.7% 22.0% African-American 25.8% 27.4% Hispanic 25.3% 26.6% Disability 25.0% 27.9% Total U.S. Population 14.3% 15.1%
  • 6. POVERTY AND DISABILITY: MONEY IS THE NOT ALWAYS THE PROBLEM; SOMETIMES IT’S AN ISSUE OF PRIORITY Figure 1. Percentage of Estimated Federal and State Expenditures for Working-Age People with Disabilities by Major Expenditure Category, Fiscal Year 2008 [1] [1] Adapted from Livermore, Stapleton and O’Toole (2011, Health Affairs) $357 Billion in FY2008
  • 7. WHAT DOES $357 BILLION BUY US IN TERMS OF OUTCOMES?
  • 8. WE HAVE PROOF THAT PEOPLE CAN WORK WHEN SERVICES FOCUS ON EMPLOYMENT 2009 – UMASS Boston ICI ID/DD Agency Survey Success in employment varies widely 2009 Washington State (88 %) Oklahoma (60%) Connecticut (54%) Louisiana (47%) New Hampshire (46%)
  • 9.
  • 10. TODAY’S FISCAL CRISES IS NOT JUST A MATTER OF NUMBERS, IT IS A MATTER OF PEOPLE. THE DIALOGUE WE MUST ENGAGE IN IS ONE OF EQUITY, ETHICS, AND ENGAGEMENT.
  • 11.
  • 12. This Model results in Chronic Impoverishment, Cyclical Dependency, and Loss of Human Dignity throughout Lifespan. The Cyclical Dependency Model
  • 13. This Model represents Optimal Self-Sufficiency, Independent Living, Economic Empowerment and Full Community Participation The Self-Sufficiency Investment Model
  • 14.
  • 15. SELF-SUFFICIENCY IS NOT ONLY BETTER FOR PWD, IT ALSO MAKES ECONOMICAL SENSE SERVICE AREA CYCLICAL DEPENDENCY SELF-SUFFICIENCY MODEL Education Segregated: $25-45K/student/year Full Inclusion: $12-26K/student/year Employment Average annual costs of SW/individual: $19,388 SW is less cost-efficient to taxpayers : 0.83 SW is less cost-efficient to workers : 0.24 Ave annual costs of SE/individual: $6,619 SE is more cost-efficient to taxpayers : 1.21 SE is more cost-efficient to workers : 4.20
  • 16. COMMUNITY SERVICES MAKE FINANCIAL SENSE Data Source: Lakin, K.C. MSIS and NCI data from 4 states (1,240 Individuals), 2009   Type of Service Cost per Person People Served with $5 M ICF/MR $128,275 39 HCBS Residential $70,133 71 Host/Foster Family $44,122 113 Own Family $25,072 200
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  • 24. THANK YOU!!! Serena Lowe President, AnereS Strategies, LLC Executive Director, Collaboration to Promote Self-Determination Federal Government Affairs Consultant, National Disability Institute 202-548-2502 (Office) 202-907-8369 (Cell) [email_address]

Editor's Notes

  1. But… We know its possible. Individual providers and states do much better A substantial number of providers only support community employment now, including several who will speak