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An iPad-Based Risk Assessment Tool for
 PrEP Administration: Opinions of MSM


                    Jeb Jones
                 Patrick Sullivan
                 Rob Stephenson
                 Jennifer Taussig

 Rollins School of Public Health, Emory University

                 August 17, 2011
Background

• Pre-exposure prophylaxis (PrEP)

  •   Providing HIV drugs to HIV-negative individuals to
      prevent HIV acquisition if exposed

  •   Clinical trial results
      • 44% effective in MSM with very high risk behavior

  •   How do we identify guys who might be candidates for
      PrEP?
Outline

• HIV Risk Screener

  • Purpose of the screener
    •   Preparation for PrEP

  • Benefits of an iPad-based screener
Outline

•Screenshots

•Focus group results

  • Opinions of MSM – feasibility, usability,
    and acceptability of iPad-based screener
HIV Risk Screener

•Brief questionnaire


•Identify patient’s HIV-risk level
   •e.g., high vs. low
HIV Risk Screener

• Provide HIV prevention recommendations to
  physician/health care provider

• Allow for identification of high-risk patients
  who may be candidates of PrEP
  •   Based on reported risk behaviors and geography

  •   Epidemiologic importance of geography
HIV Risk Screener

•Based on a CDC draft screener

  •Generated from a statistical model of risk
  factors for HIV among MSM

  •Still in development – not a final version
HIV Risk Screener

• Benefits of an iPad-based screener

  •Provider can administer questions or can
  be self-administered by patient
    •   Can be difficult for health care providers to discuss
        sexual behavior – particularly with MSM

    •   Allows for patient discretion regarding sensitive
        issues


  • Automated recommendations
HIV Risk Screener

• Benefits of an iPad-based screener

  • Easily transfer data to local computers
    •   No human transcription required


  • Potential for inclusion of geographic data
    •   Incorporate local incidence and prevalence in risk
        algorithm
HIV Risk Screener

• FileMaker Pro (Mac OS 10.6)
  •   Powerful, user-friendly database software

• FMTouch
  •   Transfer and run FileMaker databases on iPods and
      iPads
HIV Risk Screener

• Summary

 • Relatively short – 12 total questions

 • Healthcare provider does not have to ask
   questions directly
HIV Risk Screener

• Summary

 • Quickly provides clear, concise
   recommendations to healthcare provider

 • Prompts healthcare provider to recommend
   prevention services regardless of risk level
   •   Intensive HIV prevention services, such as PrEP

   •   Less intensive HIV prevention services
HIV Risk Screener

•Summary

 • iPad-based HIV Risk Screener
   •   Potentially more honest responses from patients if they
       self-administer

   •   Easily adjusted – add/delete questions, incorporate
       geographic information
Focus Group Discussions

• Three focus group discussions with MSM
  • HIV-negative

  • Primary care visit within past 12 months

  • Each participant was able to complete the iPad screener
    before we discussed their opinions

  • Atlanta, GA
     • Group 1: 5 white MSM
     • Group 2: 9 black MSM

  • Minneapolis, MN
    • Group 3: 10 white MSM
Focus Group Discussions

• Overall impressions

  • Generally very positive reviews of iPad

  • Receptive to using iPad-based risk screener
Themes from Focus Group Discussions

• All participants reported that they would be
  comfortable completing a sexual risk
  questionnaire on an iPad
  • Particularly with a new provider or in a walk-in clinic

• Of those with a regular physician, most reported
  no questions about sexual health or behavior
  when they see their provider

  • Participants in MN reported more frequent discussions of
    sexual behavior with their providers
Themes from Focus Group Discussions

•Might result in more honest responses
  • Particularly for those uncomfortable discussing sexual
    issues with doctor

  • “Other people would be more honest”

•More private than paper and pencil
  • Some participants currently not open about their sexuality
    with their healthcare providers
Themes from Focus Group Discussions

• Might speed up the visit
  • Prefer to complete the questionnaire in waiting room – don’t
    detract from time with physician


•Could “jog your memory” about things you want
to discuss with physician
Themes from Focus Group Discussions

• Suggested more questions
  • More drug/alcohol questions

  • Types of partner – steady vs. casual, age of partner(s)

  • Condom use

• Intentions of screener should not be clear
  • Avoid people changing their answers to try to get PrEP
Themes from Focus Group Discussions

• Don’t want the screener to detract from
  interaction with physician

•Black MSM much more concerned about being
singled-out by their healthcare providers based
on sexual preference
  • “You get it and then it’s like, ‘What, does my doctor think I’m
    gay?’”

  • OK as long as everyone is asked to complete the screener
Themes from Focus Group Discussions
•Geographic questions
  • Zip codes are insufficient metric – people only know their
    own zip code

  • Need other methods for obtaining geographic data
     • Maps? Intersections?

•Provide immediate feedback based on
responses
  • Have option to email custom HIV-prevention information to
    patient

  • Provide talking points to discuss with healthcare provider
Themes from Focus Group Discussions

• Summary

 • Well received

 • Focus group participants regarded iPad-
   based questionnaire as easy to use and a
   welcome technology
Future Directions

• Geographic data
  • What metric will be most accurate?

  • Is zip code level data attainable/necessary?

• Focus groups with primary care providers

• Other populations
  • Intravenous drug users, high-risk heterosexuals
Acknowledgments

   •     Focus group participants
   •     Patrick Sullivan1
   •     Rob Stephenson1
   •     Dawn Smith2
   •     Jennifer Taussig1
   •     Eli Rosenberg1
   •     Minnesota Department of Health
         •   Peter Carr
         •   Allison LaPointe
         •   Theodore (Ted) Bonau
   • Emory Center for AIDS Research (CFAR)
         •   P30 AI050409

1Emory   University, 2CDC Division of HIV/AIDS Prevention
Thank you!

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An iPad-Based Risk Assessment Tool for PrEP Administration: Opinions of MSM

  • 1. An iPad-Based Risk Assessment Tool for PrEP Administration: Opinions of MSM Jeb Jones Patrick Sullivan Rob Stephenson Jennifer Taussig Rollins School of Public Health, Emory University August 17, 2011
  • 2. Background • Pre-exposure prophylaxis (PrEP) • Providing HIV drugs to HIV-negative individuals to prevent HIV acquisition if exposed • Clinical trial results • 44% effective in MSM with very high risk behavior • How do we identify guys who might be candidates for PrEP?
  • 3. Outline • HIV Risk Screener • Purpose of the screener • Preparation for PrEP • Benefits of an iPad-based screener
  • 4. Outline •Screenshots •Focus group results • Opinions of MSM – feasibility, usability, and acceptability of iPad-based screener
  • 5. HIV Risk Screener •Brief questionnaire •Identify patient’s HIV-risk level •e.g., high vs. low
  • 6. HIV Risk Screener • Provide HIV prevention recommendations to physician/health care provider • Allow for identification of high-risk patients who may be candidates of PrEP • Based on reported risk behaviors and geography • Epidemiologic importance of geography
  • 7. HIV Risk Screener •Based on a CDC draft screener •Generated from a statistical model of risk factors for HIV among MSM •Still in development – not a final version
  • 8. HIV Risk Screener • Benefits of an iPad-based screener •Provider can administer questions or can be self-administered by patient • Can be difficult for health care providers to discuss sexual behavior – particularly with MSM • Allows for patient discretion regarding sensitive issues • Automated recommendations
  • 9. HIV Risk Screener • Benefits of an iPad-based screener • Easily transfer data to local computers • No human transcription required • Potential for inclusion of geographic data • Incorporate local incidence and prevalence in risk algorithm
  • 10. HIV Risk Screener • FileMaker Pro (Mac OS 10.6) • Powerful, user-friendly database software • FMTouch • Transfer and run FileMaker databases on iPods and iPads
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  • 19. HIV Risk Screener • Summary • Relatively short – 12 total questions • Healthcare provider does not have to ask questions directly
  • 20. HIV Risk Screener • Summary • Quickly provides clear, concise recommendations to healthcare provider • Prompts healthcare provider to recommend prevention services regardless of risk level • Intensive HIV prevention services, such as PrEP • Less intensive HIV prevention services
  • 21. HIV Risk Screener •Summary • iPad-based HIV Risk Screener • Potentially more honest responses from patients if they self-administer • Easily adjusted – add/delete questions, incorporate geographic information
  • 22. Focus Group Discussions • Three focus group discussions with MSM • HIV-negative • Primary care visit within past 12 months • Each participant was able to complete the iPad screener before we discussed their opinions • Atlanta, GA • Group 1: 5 white MSM • Group 2: 9 black MSM • Minneapolis, MN • Group 3: 10 white MSM
  • 23. Focus Group Discussions • Overall impressions • Generally very positive reviews of iPad • Receptive to using iPad-based risk screener
  • 24. Themes from Focus Group Discussions • All participants reported that they would be comfortable completing a sexual risk questionnaire on an iPad • Particularly with a new provider or in a walk-in clinic • Of those with a regular physician, most reported no questions about sexual health or behavior when they see their provider • Participants in MN reported more frequent discussions of sexual behavior with their providers
  • 25. Themes from Focus Group Discussions •Might result in more honest responses • Particularly for those uncomfortable discussing sexual issues with doctor • “Other people would be more honest” •More private than paper and pencil • Some participants currently not open about their sexuality with their healthcare providers
  • 26. Themes from Focus Group Discussions • Might speed up the visit • Prefer to complete the questionnaire in waiting room – don’t detract from time with physician •Could “jog your memory” about things you want to discuss with physician
  • 27. Themes from Focus Group Discussions • Suggested more questions • More drug/alcohol questions • Types of partner – steady vs. casual, age of partner(s) • Condom use • Intentions of screener should not be clear • Avoid people changing their answers to try to get PrEP
  • 28. Themes from Focus Group Discussions • Don’t want the screener to detract from interaction with physician •Black MSM much more concerned about being singled-out by their healthcare providers based on sexual preference • “You get it and then it’s like, ‘What, does my doctor think I’m gay?’” • OK as long as everyone is asked to complete the screener
  • 29. Themes from Focus Group Discussions •Geographic questions • Zip codes are insufficient metric – people only know their own zip code • Need other methods for obtaining geographic data • Maps? Intersections? •Provide immediate feedback based on responses • Have option to email custom HIV-prevention information to patient • Provide talking points to discuss with healthcare provider
  • 30. Themes from Focus Group Discussions • Summary • Well received • Focus group participants regarded iPad- based questionnaire as easy to use and a welcome technology
  • 31. Future Directions • Geographic data • What metric will be most accurate? • Is zip code level data attainable/necessary? • Focus groups with primary care providers • Other populations • Intravenous drug users, high-risk heterosexuals
  • 32. Acknowledgments • Focus group participants • Patrick Sullivan1 • Rob Stephenson1 • Dawn Smith2 • Jennifer Taussig1 • Eli Rosenberg1 • Minnesota Department of Health • Peter Carr • Allison LaPointe • Theodore (Ted) Bonau • Emory Center for AIDS Research (CFAR) • P30 AI050409 1Emory University, 2CDC Division of HIV/AIDS Prevention