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Jean Boucher RN, Oncology Nurse
        Clinical Inquiry Specialist
            DFCI Nursing Department
          The Phyllis F. Cantor Center
   Fatigue is #1 most frequent
    symptom reported by cancer
    patients.

   Impact:
     • Physical
     • Psychosocial
     • Quality of Life
   Very subjective

   Varies based on type of cancer and treatments
      • “Some days I feel great, other days I am exhausted…”


   A very different experience for each patient
      •   “I feel washed out…”
      •   “I’m so tired, I can’t concentrate…”
      •   “I have no desire to do anything…”
      •   “I can’t pinpoint when it will happen sometimes or why…”
   Cancer disease
   Treatments
      Chemotherapy
      Radiation
      Surgery
   Stress
        Can alter mood and create anxiety
        From everyday activities and coping with
         cancer
                Work stress
                Life crisis
                Financial commitments
                Household obligations



                                                    5
   Pain
    ◦ Fatigue can intensify pain
    ◦ Pain medication can increase fatigue




         Must carefully balance the two




                                             6
   Lack of sleep
    • Medication and treatment can disturb sleep or change
      sleep patterns
    • Sleep hygiene tips:
        1.   Avoid food two (2) hours before bed

        2.   Avoid caffeine later in the day

        3.   Avoid stimulation before bed
             (computers, TV, phones, devices)

        4.   Relax before bed (reading, puzzles, journaling, meditation)




                                                                           7
   Low red cells
    ◦ Treatments decrease red cells
    ◦ Red cells carry oxygen throughout body
    ◦ Low levels may require transfusion




                                               8
   Medications
     • Pain medications
     • Treatment (chemo, surgery, radiation)


   Speak with your physician or treatment team about
    balancing your medication with daily activity level




                                                          9
   Lack of energy causing physical limits
    and/or emotional distress
   Shortness of breath
   Chest discomfort
   Pain
   Insomnia
   Mood changes
     •   Depression
     •   Anxiety
     •   Irritability
     •   Uncontrolled Nervousness


   Inability to concentrate affecting lifestyle
         (personal, family, work, social)
 Daily low impact activity
  • walk, bike, swim, yoga

 Nutrition
    Eat healthy: protein foods help
    Fluids as 6-8 glasses a day (non caffeine)
    Talk to a nutritionist
   Lymphoma Patients Post Transplant

   Nurse-led education and monitoring with reinforcement

   Symptom & Fatigue Tool Use
     • Daily Activity & Pedometer

     • Symptom Self-Reporting Tool

     • 72 hour follow-up education

     • Every two week follow-up education
   Pace self
   Ask for help or delegate tasks
   Keep it simple
   Rest periods:
     • 20 minutes at a time
     • Avoid napping after mid afternoon
     • Adequate sleep
 Housework
  • Spread out tasks, avoid heavy work, take breaks


 Shopping
  • Make a list, use carts, avoid heavy objects, bring
    a friend, avoid busy times


 Meal preparation
  • Keep it simple, prepare ahead
    & freeze items, avoid heavy pans.


 Child care
  • Do activities with children that involve
    sitting, avoid lifting small children
   Ask for support from colleagues

   Avoid rush hour traffic

   Park near entrance (may need temporary handicap
    plate)

   Take breaks, rest, drink fluids & snacks

   Work from home

   Avoid heavy physical exertion tasks
   Set realistic goals with your health care provider(s)

   Positive activities that you enjoy and avoid those
    that create negativity or unwarranted guilt.

   Relaxation techniques
     • Meditation (deep breaths or visualization)
     • Music
     • Massage therapy (check with your doctor or
       MD or nurse)
     • Yoga (low impact, avoid “hot” yoga)

   Support groups or counseling
   Provide help & positive support

   Listen, provide feedback, ask
    questions with your loved-one

   Attend appointments and
    treatment visits

   Talk to a social worker about
    financial or care related issues.
 Keep a diary or journal to take
  notes & write questions to ask

 Talk with your doctor, nurse
  practitioner and nurse

 Self-reporting your symptoms

 Your provider may recommend
  blood work or treatment if
  appropriate to help
Does acupuncture
help fight fatigue?
What do you recommend for
weakness or tired muscles?


 Check out Dana-Farber’s cancer fitness tips
and exercise classes for patients and survivors.

   Contact Dana-Farber's exercise physiologist
       Nancy Campbell at 617-632-4523.


                                                   21
Why am still tired
after cancer treatment?




                          22
What supplements and/or
foods help fight fatigue?




                            23
Along with bone health, I’ve heard vitamin D
may help in cancer prevention and survivorship.


        How can I get more
       vitamin D in my diet?



                                                  24
Does fatigue contribute
 to a loss of appetite?




                          25
If I’m hungry at night,
but I don’t want to affect my
 sleep, what should I do?




                                26
Why is it important to keep
  a healthy weight during
and after cancer treatment?



                              27
What’s important to
remember during treatment?

   Who should I talk to?



                             28
   Read more about cancer-related fatigue.

   Learn more about the Phyllis F. Cantor Center for
    Research at Dana-Farber.

   Explore more support services at Dana-Farber.org.




      Additional resources
      ◦ National Cancer Institute
      ◦ National Comprehensive Cancer Network



                                                        29

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How to Manage Cancer Fatigue

  • 1. Jean Boucher RN, Oncology Nurse Clinical Inquiry Specialist DFCI Nursing Department The Phyllis F. Cantor Center
  • 2. Fatigue is #1 most frequent symptom reported by cancer patients.  Impact: • Physical • Psychosocial • Quality of Life
  • 3. Very subjective  Varies based on type of cancer and treatments • “Some days I feel great, other days I am exhausted…”  A very different experience for each patient • “I feel washed out…” • “I’m so tired, I can’t concentrate…” • “I have no desire to do anything…” • “I can’t pinpoint when it will happen sometimes or why…”
  • 4. Cancer disease  Treatments  Chemotherapy  Radiation  Surgery
  • 5. Stress  Can alter mood and create anxiety  From everyday activities and coping with cancer  Work stress  Life crisis  Financial commitments  Household obligations 5
  • 6. Pain ◦ Fatigue can intensify pain ◦ Pain medication can increase fatigue Must carefully balance the two 6
  • 7. Lack of sleep • Medication and treatment can disturb sleep or change sleep patterns • Sleep hygiene tips: 1. Avoid food two (2) hours before bed 2. Avoid caffeine later in the day 3. Avoid stimulation before bed (computers, TV, phones, devices) 4. Relax before bed (reading, puzzles, journaling, meditation) 7
  • 8. Low red cells ◦ Treatments decrease red cells ◦ Red cells carry oxygen throughout body ◦ Low levels may require transfusion 8
  • 9. Medications • Pain medications • Treatment (chemo, surgery, radiation)  Speak with your physician or treatment team about balancing your medication with daily activity level 9
  • 10. Lack of energy causing physical limits and/or emotional distress  Shortness of breath  Chest discomfort  Pain  Insomnia
  • 11. Mood changes • Depression • Anxiety • Irritability • Uncontrolled Nervousness  Inability to concentrate affecting lifestyle (personal, family, work, social)
  • 12.  Daily low impact activity • walk, bike, swim, yoga  Nutrition  Eat healthy: protein foods help  Fluids as 6-8 glasses a day (non caffeine)  Talk to a nutritionist
  • 13. Lymphoma Patients Post Transplant  Nurse-led education and monitoring with reinforcement  Symptom & Fatigue Tool Use • Daily Activity & Pedometer • Symptom Self-Reporting Tool • 72 hour follow-up education • Every two week follow-up education
  • 14. Pace self  Ask for help or delegate tasks  Keep it simple  Rest periods: • 20 minutes at a time • Avoid napping after mid afternoon • Adequate sleep
  • 15.  Housework • Spread out tasks, avoid heavy work, take breaks  Shopping • Make a list, use carts, avoid heavy objects, bring a friend, avoid busy times  Meal preparation • Keep it simple, prepare ahead & freeze items, avoid heavy pans.  Child care • Do activities with children that involve sitting, avoid lifting small children
  • 16. Ask for support from colleagues  Avoid rush hour traffic  Park near entrance (may need temporary handicap plate)  Take breaks, rest, drink fluids & snacks  Work from home  Avoid heavy physical exertion tasks
  • 17. Set realistic goals with your health care provider(s)  Positive activities that you enjoy and avoid those that create negativity or unwarranted guilt.  Relaxation techniques • Meditation (deep breaths or visualization) • Music • Massage therapy (check with your doctor or MD or nurse) • Yoga (low impact, avoid “hot” yoga)  Support groups or counseling
  • 18. Provide help & positive support  Listen, provide feedback, ask questions with your loved-one  Attend appointments and treatment visits  Talk to a social worker about financial or care related issues.
  • 19.  Keep a diary or journal to take notes & write questions to ask  Talk with your doctor, nurse practitioner and nurse  Self-reporting your symptoms  Your provider may recommend blood work or treatment if appropriate to help
  • 21. What do you recommend for weakness or tired muscles? Check out Dana-Farber’s cancer fitness tips and exercise classes for patients and survivors. Contact Dana-Farber's exercise physiologist Nancy Campbell at 617-632-4523. 21
  • 22. Why am still tired after cancer treatment? 22
  • 23. What supplements and/or foods help fight fatigue? 23
  • 24. Along with bone health, I’ve heard vitamin D may help in cancer prevention and survivorship. How can I get more vitamin D in my diet? 24
  • 25. Does fatigue contribute to a loss of appetite? 25
  • 26. If I’m hungry at night, but I don’t want to affect my sleep, what should I do? 26
  • 27. Why is it important to keep a healthy weight during and after cancer treatment? 27
  • 28. What’s important to remember during treatment? Who should I talk to? 28
  • 29. Read more about cancer-related fatigue.  Learn more about the Phyllis F. Cantor Center for Research at Dana-Farber.  Explore more support services at Dana-Farber.org. Additional resources ◦ National Cancer Institute ◦ National Comprehensive Cancer Network 29