Khaled Al-shair talks to the Aspergillus Patients Support meeting on his work analysing the Quality of Life data collected by the National Aspergillosis Centre, Manchester, UK
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Khaled Al-Shair talks about Quality of Life assessment for aspergillosis
1. LED BY GRAHAM ATHERTON SUPPORTED BY GEORGINA POWELL, MARIE KIRWAN & DEBBIE KENNEDY NAC CENTRE MANAGER CHRIS HARRIS QUALITY OF LIFE STUDY BY KHALED AL-SHAIR NATIONAL ASPERGILLOSIS CENTRE UHSM MANCHESTER Support Meeting for Aspergillosis Patients Fungal Research Trust
12. Is there a standardized measure to assess these most frequent symptoms of the disease, its burden on physical, social and psychological aspects of life?
18. Symptom domain Activity domain Impact domain SGRQ Total core SGRQ score range 71.4 100 2.7 100 6 85.4 00 99.4 96.2 55.6 66.6 2.6 Alshair K et al, 2011
19. A: Patients with Band 1 of chronic pulmonary aspergillosis B: Patients with Band 2 and 3 of chronic pulmonary aspergillosis P=0.007 P=0.002 P=0.004 P=0.015 Can the SGRQ differentiate between different grades of CPA?
20. Why I should fill the questionnaire every three months?