From professional standards to information standards

From professional standards to information standards Anne Casey RN MSc FRCN Editor, Paediatric Nursing, RCN Adviser on Information Standards Clinical Domain Lead, NHS (England) Information Standards Board for Health and Social Care Member, Content Committee, International Health Terminology Standards Development Organisation (IHTSDO) Member, CEN TC251 WG2 and ISO TC215 WG3

Acknowledgement ,[object Object],[object Object],[object Object],[object Object]

Themes ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]

Professional standards & information standards Professional record standards and audit data standards which are REQUIREMENT on Professional practice standards and guidelines are REQUIREMENT for Information standards & applications

[object Object],[object Object],[object Object],Professional record standards ….

Information Standards ,[object Object],[object Object],[object Object]

NHS Information Standards ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]

[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]

‘ machine ready’ artefacts ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]

Development and maintenance Professional record standard Requirement Precise definition PROFESSION PROFESSION & CFH / IC CONNECTING FOR HEALTH & INFORMATION CENTRE Information standard Maintenance & version control Maintenance & version control Implementation and migration Close collaboration & good management * REPOSITORY

Information Standards Board Role and Scope ,[object Object],[object Object],[object Object],[object Object]

Appraisal of Information Standards ,[object Object],[object Object],[object Object],[object Object]

Leadership and Authority ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]

Evidence and Lifecycle approach for applications as well as standards ,[object Object],[object Object],[object Object],[object Object],[object Object]

Some examples & Some issues ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]

Evidence for choice of identifiers ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]

Information Standard ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]

Evidence for approval of the information standard ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]

Standard Descriptions for Clinical Imaging Procedures ,[object Object],[object Object],[object Object],[object Object]

Governance ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]

National Renal Dataset ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]

Repository issues ,[object Object],[object Object],[object Object],[object Object]

CONSENT ,[object Object],[object Object],[object Object],[object Object]

Unfortunately….. not much about recording consent and refusal ,[object Object],[object Object]

HL7 data sharing consent elements ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],NOTE: The Act classCode "consent" within HL7 may include informed consents and all similar medico-legal transactions between the patient (or the patient's delegate) and the provider for surgical procedures, informed consent for clinical trials, advanced beneficiary notice, against medical advice decline from service, release of information agreement, etc

DH treatment consent forms - data categories ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]

Consent & Refusal LAW PROFESSIONAL GUIDANCE RECORD informed capacity free will ongoing process consent information model record information model change; withdrawal time; expiry signatures In e-records In context of Consent Concept Model proxy implied; explicit for something to be done or not done preferences; advance directives

Safety risk management and health software ,[object Object],[object Object],[object Object]

Provisions ,[object Object],[object Object],[object Object]

Globalisation Activities are not discrete steps From ISO standards’ lifecycle Identify Need Business Definition Adopt / Adapt / Develop Test/Pilot Formal Approval Training/Education Implement Conformance Maintain/Support

Conclusions ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]

And finally .... ,[object Object],[object Object],[object Object]

From professional standards to information standards

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