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The Danish National
e-Health Portal
Health 2.0




CEO: Morten Elbæk Petersen
The Danish Health Care System
•   Public health care (85 % of costs are financed through taxes)
•   Free access to most health services for all Danish citizens
•   A homogenous health care system

3 levels:
NATIONAL: Parliament, Government / Ministry of Health; makes the laws for
   the two acting levels
REGIONAL: 5 Regions; Hospitals (about 80), Psychiatry, Primary health care,
   e.g.
LOCAL: 98 Municipalities, Child nursing, Home nursing, Preventive treatment
   and health promotion eg.
Time line: Development in Danish health it

1992:     Health Data Network established
1994:     MedCom established to standardize messages
2001:     The regions involve the national government in
          the establishment of a National eHealth Portal
2003:     the eHealth Portal (sundhed.dk) is launched
2004:     the eHealth Portal supports log-on, and displays
          personal information
2008:     Patient-to-patient dialogue introduced on sundhed.dk
2009:     the eHealth Portal updates platform
2010:     All regions make EHR’s available using the same
          standard
Objectives for sundhed.dk

Sundhed.dk:
• information related to the use of the healthcare service
• communication between patients and the health care service
• support the patient in attending to his or her individual health
  situation.
• inter-patient communication on how to cope with chronic
  diseases; ”online patient networks”


Sundhed.dk is a national framework and a national integration
platform which integrates data from 85 (existing) sources
Features: Citizens/Patients
Directory of names and addresses
•    Contact information
•    E-services (booking, prescription renewal, consultation) (log on)
•    E-commerce (pharmacies) (log on)
•    Comparison of prices, quality and accessibilty
Information about prevention and treatment
•    Medical information (eg. information about treatments)
•    Waiting list information from hospitals
•    Patient satisfaction mesaures on every hospital dep.
•    Smileys for every hospital
•    Preventive medicine
•    Health laws and regulations
•    Patient to patient dialogue – connecting patients coping with similar issues
Access to own health data (log on)
•    Cross-sectorial personal electronic medicine profile
•    Patients’ medical history (since 1977)
•    Electronic Health Record (from hospital records)
•    Online Donor Registration and access to own data
Features: Health professionals
Information for GP (log on)
•    Web access to laboratory data
•    ICPC search of diagnoses from GP’s electronic healthcare program (Linkportal)
•    Online access to Medical Handbook (open for all users, but aimed at GP’s)
All Health care professionals (log on)
•    eMedicine records
•    Electronic patient records etc (almost total coverage of the 5 regions)
•    Waiting list information from hospitals
•    Cochrane library
Regional and national information
•    Contact information (authorities, departments, health personnel)
•    Information on referral principles to hospitals/regions
•    Preventive medicine
•    Health laws and regulations
•    Laboratories and consultants
Evaluation and challenges




CEO: Morten Elbæk Petersen
How to measure the success?

Signs of impact:

•   Acceptance from the public
•   Acceptance from clinical staff
•   International and peer recognition
•   The owners’ willingness to invest further
Public acceptance: Total unique visitors
2003 -2010
                                                                Unique visitors, month by month

       350000

       300000

       250000

       200000
                                                                                                                                                                                           Serie1
       150000

       100000

       50000

           0
                dec-03
                         apr-04
                                  aug-04
                                           dec-04
                                                    apr-05
                                                             aug-05
                                                                      dec-05
                                                                               apr-06
                                                                                        aug-06
                                                                                                 dec-06
                                                                                                          apr-07
                                                                                                                   aug-07
                                                                                                                            dec-07
                                                                                                                                     apr-08
                                                                                                                                              aug-08
                                                                                                                                                       dec-08
                                                                                                                                                                apr-09
                                                                                                                                                                         aug-09
                                                                                                                                                                                  dec-09
Specific results from patient-to-patient dialogue


•   Since 2008 hospital wards and patient organizations have cooperated to create
    on-line dialogue where patients with similar chronic diseases can share
    experiences.
•   Evaluation >>> patient networks:
    – many readers (anonymous users) that return frequently
    – fewer ”bloggers”/contributors (10 %).
    – Real interaction and exchange of advice and contact
    – Many patients respond that they find new information and knowledge of
        how other patients experience their condition.
    – Most find that the information puts them at ease while a minority become
        more anxious.
    – not 100 % clear if patients find that their lives have improved due to the
        patient networks online.
Acceptance from clinical staff

• 1/3 of the users on a daily basis are health
  professionals
• the digital exchange of patient data saves time
  for the patients and for professionals.
International and peer recognition

•   EU-award 2004: e-health, along with MedCom
•   Top of the web 2005 by The Danish Ministry of Science, Technology and Innovation
    and The National IT and Tele Agency
•   E-commerce award 2006 by The Danish eBusiness Association and The Danish IT
    Industry Association
•   The digitalization award 2006: by among others The Digital Taskforce, The
    Ministry of Science, Technology and Innovation and The Danish IT Industry
    Association
•   The Computerworld Honours Program 2007 – the committee was searching for
    organizations and institutions that are creating the global best practice in leading the
    worlds ongoing IT revolution.

* Top spot for Denmark in Health Consumer Powerhouse rating 2008
attributed to sundhed.dk

* The eHealth portal singled out as leading worldwide by ITIF - The Information
Technology and Innovation Foundation (ITIF) based in Washington, DC.
The owners’ willingness to invest further

• The partners have raised the budget 20% from 2010.
Existing 2.0 features and use

• Patients in AC therapy or with diabetes can contribute with
  data and receive advice
• Upon identification, the most recent data from different
  sources are highligted for the citizens (called Mit
  Sundhedsoverblik, My Health at a glance)
• Patient to patient dialogue – connecting patients coping
  with similar issues – 2nd version platform launched soon
Plans for further 2.0 development

The strategy for 2010-2012 includes:

• More patient-to-patient dialogue
• Extended opportunities for the citizens to comment
  and add data to their own records etc.
• Providing sundhed.dk-services as content for other
  platforms.
• Telemedicine
• Enabling access from mobile phones.
Lessons for other parts of Europe

Succes can be replicated but most likely in countries with
  – homogenous health care system
  – one source of financing for health care
  – free choice of health care provider within a cooperating
     sector
  – equal focused on transparency for the citizen, quality
     improvement and cost reduction
  – agreed standards of data exchange between operators
     and authorities
  – a high level of trust regarding the public sector and the
     access to personal information

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Health 2.0 Europe - Keynote - The Danish National e-Health Portal

  • 1. The Danish National e-Health Portal Health 2.0 CEO: Morten Elbæk Petersen
  • 2. The Danish Health Care System • Public health care (85 % of costs are financed through taxes) • Free access to most health services for all Danish citizens • A homogenous health care system 3 levels: NATIONAL: Parliament, Government / Ministry of Health; makes the laws for the two acting levels REGIONAL: 5 Regions; Hospitals (about 80), Psychiatry, Primary health care, e.g. LOCAL: 98 Municipalities, Child nursing, Home nursing, Preventive treatment and health promotion eg.
  • 3. Time line: Development in Danish health it 1992: Health Data Network established 1994: MedCom established to standardize messages 2001: The regions involve the national government in the establishment of a National eHealth Portal 2003: the eHealth Portal (sundhed.dk) is launched 2004: the eHealth Portal supports log-on, and displays personal information 2008: Patient-to-patient dialogue introduced on sundhed.dk 2009: the eHealth Portal updates platform 2010: All regions make EHR’s available using the same standard
  • 4.
  • 5. Objectives for sundhed.dk Sundhed.dk: • information related to the use of the healthcare service • communication between patients and the health care service • support the patient in attending to his or her individual health situation. • inter-patient communication on how to cope with chronic diseases; ”online patient networks” Sundhed.dk is a national framework and a national integration platform which integrates data from 85 (existing) sources
  • 6. Features: Citizens/Patients Directory of names and addresses • Contact information • E-services (booking, prescription renewal, consultation) (log on) • E-commerce (pharmacies) (log on) • Comparison of prices, quality and accessibilty Information about prevention and treatment • Medical information (eg. information about treatments) • Waiting list information from hospitals • Patient satisfaction mesaures on every hospital dep. • Smileys for every hospital • Preventive medicine • Health laws and regulations • Patient to patient dialogue – connecting patients coping with similar issues Access to own health data (log on) • Cross-sectorial personal electronic medicine profile • Patients’ medical history (since 1977) • Electronic Health Record (from hospital records) • Online Donor Registration and access to own data
  • 7. Features: Health professionals Information for GP (log on) • Web access to laboratory data • ICPC search of diagnoses from GP’s electronic healthcare program (Linkportal) • Online access to Medical Handbook (open for all users, but aimed at GP’s) All Health care professionals (log on) • eMedicine records • Electronic patient records etc (almost total coverage of the 5 regions) • Waiting list information from hospitals • Cochrane library Regional and national information • Contact information (authorities, departments, health personnel) • Information on referral principles to hospitals/regions • Preventive medicine • Health laws and regulations • Laboratories and consultants
  • 8. Evaluation and challenges CEO: Morten Elbæk Petersen
  • 9. How to measure the success? Signs of impact: • Acceptance from the public • Acceptance from clinical staff • International and peer recognition • The owners’ willingness to invest further
  • 10. Public acceptance: Total unique visitors 2003 -2010 Unique visitors, month by month 350000 300000 250000 200000 Serie1 150000 100000 50000 0 dec-03 apr-04 aug-04 dec-04 apr-05 aug-05 dec-05 apr-06 aug-06 dec-06 apr-07 aug-07 dec-07 apr-08 aug-08 dec-08 apr-09 aug-09 dec-09
  • 11. Specific results from patient-to-patient dialogue • Since 2008 hospital wards and patient organizations have cooperated to create on-line dialogue where patients with similar chronic diseases can share experiences. • Evaluation >>> patient networks: – many readers (anonymous users) that return frequently – fewer ”bloggers”/contributors (10 %). – Real interaction and exchange of advice and contact – Many patients respond that they find new information and knowledge of how other patients experience their condition. – Most find that the information puts them at ease while a minority become more anxious. – not 100 % clear if patients find that their lives have improved due to the patient networks online.
  • 12. Acceptance from clinical staff • 1/3 of the users on a daily basis are health professionals • the digital exchange of patient data saves time for the patients and for professionals.
  • 13. International and peer recognition • EU-award 2004: e-health, along with MedCom • Top of the web 2005 by The Danish Ministry of Science, Technology and Innovation and The National IT and Tele Agency • E-commerce award 2006 by The Danish eBusiness Association and The Danish IT Industry Association • The digitalization award 2006: by among others The Digital Taskforce, The Ministry of Science, Technology and Innovation and The Danish IT Industry Association • The Computerworld Honours Program 2007 – the committee was searching for organizations and institutions that are creating the global best practice in leading the worlds ongoing IT revolution. * Top spot for Denmark in Health Consumer Powerhouse rating 2008 attributed to sundhed.dk * The eHealth portal singled out as leading worldwide by ITIF - The Information Technology and Innovation Foundation (ITIF) based in Washington, DC.
  • 14. The owners’ willingness to invest further • The partners have raised the budget 20% from 2010.
  • 15. Existing 2.0 features and use • Patients in AC therapy or with diabetes can contribute with data and receive advice • Upon identification, the most recent data from different sources are highligted for the citizens (called Mit Sundhedsoverblik, My Health at a glance) • Patient to patient dialogue – connecting patients coping with similar issues – 2nd version platform launched soon
  • 16. Plans for further 2.0 development The strategy for 2010-2012 includes: • More patient-to-patient dialogue • Extended opportunities for the citizens to comment and add data to their own records etc. • Providing sundhed.dk-services as content for other platforms. • Telemedicine • Enabling access from mobile phones.
  • 17. Lessons for other parts of Europe Succes can be replicated but most likely in countries with – homogenous health care system – one source of financing for health care – free choice of health care provider within a cooperating sector – equal focused on transparency for the citizen, quality improvement and cost reduction – agreed standards of data exchange between operators and authorities – a high level of trust regarding the public sector and the access to personal information