Health Datapalooza IV: June 3rd-4th, 2013 Datalab Moderator: Todd Park, Chief Technology Officer, United States Damon Davis, Health Data Initiative Program Director, Department of Health and Human Services Speakers: Susan Queen, Director, Division of Data Policy, Office of the Assistant Secretary for Planning and Evaluation Steve Cohen, Director, Center for Financing, Access and Cost Trends, Agency for Healthcare Research & Quality Rick Moser, National Institutes of Health Victor Lazzaro, Performance & Data Analytics Manager, Office of the National Coordinator for Health IT Niall Brennan, Director of the Office of Information Products and Data Analytics, Center for Medicare and Medicaid Services Miya Cain, Office of the Assistant Secretary, Administration for Children and Families, US Department of Health and Human Services Edward Salsberg, Director, National Center for Health Workforce Analysis, Health Resources and Services Administration Robert Post, Environmental Protection Agency (EPA) Eugene Hayes, the Substance Abuse and Mental Health Services Administration (SAMHSA) Jim Craver, Center for Disease Control and Prevention (CDC) David Forrest, Senior Advisor, Health and Human Services Office of the Chief Technology Officer Tania Allard, Director of Intergovernmental Affairs & Special Projects, New York State Department of Health Steven Edwards, Environmental Protection Agency Steve Emrick, National Library of Medicine Carol A. Gotway Crawford, Director of Behavioral Surveillance, Centers for Disease Control This perennial favorite breakout session is back! This is the best opportunity to meet some of the federal government data experts who champion action in improving public access to information to catalyze innovation. Come learn how to use assets from the Department of Health & Human Services (HHS), the Department of Agriculture (USDA), the Environmental Protection Agency (EPA) and more. Each agency in the federal government is staffed by experts who are well versed in the information resources available from their division on data.gov (administrative data, survey data, research data, medical/scientific content, etc.) The Datalab will also feature opportunities for one-on-one meet-ups with data experts for “deep dives” into agency’s resources. Participants can join live demonstrations and check out new data resources and tools. The goal of the session is to give innovators and entrepreneurs an overview of new, updated, and emerging datasets that can be used to support new applications and services.

1. Forum IV: Administration for
Children and Families (ACF) Health
Data Initiative
Miya Cain,
Health Policy Analyst and Special Assistant to
the Chief Medical Officer
June 3, 2013

2. ACF Mission
Responsible
for federal programs
that promote the
economic, social and
health well-being of
families, children,
individuals, and
communities.

3. Who ACF Serves

4. Office of the Chief Medical Officer
Role: Serves as the main advisor to the
Assistant Secretary regarding health-
related initiatives.
ACF and OCMO are concerned with “the
social determinants of health.”
Priorities:
 Coordinating agency and inter-agency
efforts to best connect people with
healthcare under the ACA
 Improving health efforts for the
populations served by ACF programs

5. ACF Health Data Strategy
1. Gathered senior staff to introduce
healthdata.gov
2. Presented to program office heads
3. Designated “data liaisons” in each
office
4. Compiled data into spreadsheet to
evaluate value
5. Continued to meet to build enthusiasm
6. Prioritized data sets
7. Approved and uploaded!

6. ACF Outcomes
 3 pilot data sets on healthdata.gov
29 data sets now available
in usable format
 Increased ACF awareness about data and its uses
 Created maps of services using health data
 Partnered with private/nonprofit organizations to
find best uses for data

7. O F F I C E O F H E A D S T A R T
O F F I C E O F F A M I L Y A S S I S T A N C E
O F F I C E O F C O M M U N I T Y S E R V I C E S
ACF Programs and Data

8. Office of Head Start Data Set
 Online Head Start Locator
 Allows users to search for Head Start and Early Head Start
Centers using multiple criteria and displaying results in maps
and lists
 Format
 .csv (Excel)
 API in development
 Potential Uses
 Services Locator/ Map for use by general public, service
recipients, health care and service providers

9. Office of Family Assistance
 Temporary Assistance for Needy Families Caseload Data
 Number of TANF Recipients by State and by County
 Updated Quarterly
 Format
 Raw data (Text File)
 Potential Uses
 Researchers, policy makers, and State social services workers can
map trends among TANF recipients
 Overlay TANF recipients with the American Community Survey to
see where there are gaps in TANF eligible recipients

10. Office of Family Assistance
 Temporary Assistance for Needy Families Caseload Data
 Number of TANF Recipients by State and by County
 Updated Quarterly
 Format
 Raw data (Text File)
 Potential Uses
 Researchers, policy makers, and State social services workers can
map trends among TANF recipients
 Overlay TANF recipients with the American Community Survey to
see where there are gaps in TANF eligible recipients

11. ACF Uploaded Data…Now What?
 Offer clear, easy to find eligibility guidelines
 Create easily accessible network of community
resources
 Allow researchers/service providers to easily find
and use ACF data
 Promote the case for impact of social factors on
health outcomes

12. Who is the Target Audience for HDI?
 General Public
 Recipients of Services
 Grantees
 State and Local Agencies
 Health Care Professionals
 Social Workers
 Researchers
 Policy Makers

13. Community Commons
 What is Community Commons?
“An interactive mapping, networking, and learning utility for the
healthy, sustainable, and livable communities’ movement”
 ACF Data Partnership
 Created a map of Head Start centers and other grantee
locations from the data on Healthcare.gov
 Brainstormed more uses for ACF data
 Communitycommons.org

14. Example from Community Commons

15. Health Leads
 Organization’s Goal
 To connect patients at hospitals/clinics with human
services to address social/economic determinants of
health
 Needs that can be Filled by Use of Data
 Eligibility determination application
 Better Resource Catalogue
 Cataloguing takes up excessive time and energy because of
high resource turnover
 40% of information about resources changes every year,
and about 20% are brand new

16. Civic Hacking
 “Citizens, software developers, and entrepreneurs
collaboratively create and build new solutions using
publicly-released data to solve challenges relevant to
neighborhoods, cities, states and country.”
 Example of some of the challenges:
 1) build a common directory of community resources
 2) visualize/explore hospital charges data
 3) create downloadable a healthdata.gov catalogue
 4) facilitate home visits

17. Thank you!