A forgotten generation long term survivors experiences of hiv and aids pdf

1. A forgotten generation: Long-term survivors' experiences of
HIV and AIDS
Judith Mary Sagar

2. Publisher : CreateSpace Independent Publishing Platform
Release Date :

3. ISBN : 149421833X
Author : Judith Mary Sagar
Download Here
http://eap-books.club/readonline/?item=149421833X&lan=en

4. How are we to appreciate and comprehend what it has been like to live with HIV and AIDS-related
illness over the past three decades or more? When the AIDS pandemic began in the early 1980s,
scientific knowledge and medical treatment had a limiting effect on quality of life and life expectancy
for people living with HIV and AIDS-related illness. During this era the very idea of AIDS signified
fear, panic, stigma, prejudice, acute chronic illness and the real threat of imminent death both within
and outside of a UK context. As the global expansion of HIV scientific knowledge continues to
develop, we observe a dramatic change in how the medical community defines HIV as a disease.
The term AIDS has been largely discarded in the West and we resist the ‘death sentence’ scenario;
instead we approach HIV as a chronic illness condition. With effective HIV combination therapies now
available to those who can afford and access them, the successful management of HIV is perceived
as within our reach. This story-of-stories brings together twenty eight long-term survivors all of whom
were diagnosed between 1981 and 1994 prior to the advancement of HIV medicine; in some cases
even before medical health checks for HIV, such as the CD4 count and viral load test were available.
It is a passionate story-of-stories allowing the reader to become intimate with each story-teller who
shared their personal experiences of living long-term with HIV and AIDS within a UK context: this is
their gift! We unearth how our story-tellers negotiated and managed everyday life living with this
unpredictable illness condition based on in-depth interviews conducted during 2002. These poignant
personal stories historically reflect upon long-term experiences of women and men living alongside
HIV and AIDS-related illness; they show us how real people made sense of their lives and continued
to ‘live out’ everyday life in the UK. It is a thorough and passionate portrayal of personal experiences
revealed by the spirited women and men who took time out of their own lives to offer a valuable
contribution to further public understanding of this stigmatised disease. By offering insights into
different personal experiences of those who have lived long-term with an HIV-positive diagnosis,
readers can appreciate and recognise the many ways of being HIV-positive. Chapter one explores
how concepts such as health, illness and identity can be defined and how shared meanings differ
between people who use these concepts on a daily basis. It also furnishes the reader with a brief
history of HIV and AIDS to set the backdrop for how we should understand the potential dilemmas of
living with a HIV-positive diagnosis during earlier more ignorant times. Chapter two reveals how story-
tellers learned of their HIV-positive diagnosis. Chapter three examines the early years of living with
HIV and explains how our story-tellers managed uncertainty. Chapter four discloses how sickness
and health was negotiated and experienced before HIV medicine became more effective. In chapter
five our story-tellers speak of how intimate and sexual relationships are experienced in the context of
HIV. Chapters six and seven critically expose how long-term survivors experienced and negotiated
complex and highly toxic combination therapies for the treatment of HIV in conjunction with
relationships with the medical profession in earlier times. Chapter eight uncovers how networks of
social support were negotiated and experienced over time. Following this, we reveal in chapter nine
the positive and negative elements of living long-term with HIV or AIDS diagnoses. The final chapter
delves into my own experiences as the researcher for the initial HIV study. The book offers an
extensive glossary of medical terms at the back to assist readers in medical terms and words
associated with HIV and AIDS.
Download Here
http://eap-books.club/readonline/?item=149421833X&lan=en

5. Download Here
http://eap-
books.club/readonline/?item=149421833X&lan=en
Powered by TCPDF (www.tcpdf.org)