1. What
do
patients
need
patients 2.0 Patient Needs WG

5. GOAL is same

6. How do we achieve this goal?
Healthy people Sick people
• access your health data • research in
• add to your health data o biomarkers
• diet  genetic
• exercise  proteomic
o education on which exercise  other
platforms are good for them o systemic understandin
o gym/exercise plans o diagnostics
o money for gym/plans o prognostics
o time for gym/plans o treatments
o community based on  side effects
exercise goals  efficacy
• education
• community/support
• resources

7. e(mpowered)-Patient
• Education
o content (i.e., genetics education, diet/nutrition education,
treatment education, diagnostic education, disease/
ailment education)
o delivery
• Legislative and political empowerment (e.g., the Abigail
Alliance, American Cancer Society)
o access to experimental therapies
o access your entire medical staffs' contact information
• Financial, entrepreneurial, and stakeholder
empowerment
o Communities (e.g., Crohnology.com, ACOR.org,
Caringbridge.org, PatientsLikeMe.com)
o Research (e.g., PXE International, Addi and Cassi Fund)
o Culture shifts
 Collaborative care / shared-decision making
 Access and ownership of health data