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Royal College of                  NHS
                         General Practitioners
                                                 NHS Improvement
                                                             Lung




CANCER




DIAGNOSTICS




HEART




LUNG




STROKE




NHS Improvement - Lung
Managing multi-morbidity in practice…
what lessons can be learnt from the care of
people with COPD and co-morbidities?
Endorsed by:


         Royal College of
         General Practitioners



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Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?




Contents
Managing multi-morbidity in practice… what
lessons can be learnt from the care of people with
COPD and co-morbidities?

Introduction                                                                                       4

Findings from sites                                                                               6
• Survey method                                                                                   6
• Case study 1: Vauxhall Practice, Liverpool                                                      7
• Case study 2: Yellow Practice, Govan Health Centre, Glasgow                                     8
• Case study 3: Leckhampton Surgery, Cheltenham                                                   9
• Case study 4: Woodbrook Medical Centre, Loughborough                                           10
• Case study 5: Birtley Medical Group, Gateshead                                                 11
• Case study 6: Phoenix Medical Practice, Bradford                                               12

Key themes                                                                                       13

Challenges                                                                                       16

The way forward                                                                                  17

Conclusion                                                                                       18

Points to consider – developing structured reviews in practice                                   19

References                                                                                       20

Acknowledgements                                                                                 21




                                                                                                                          3
Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?




Introduction


The case for managing
multi-morbidity                              Table 1: Co-morbidity of 10 common primary care conditions in
                                             314 Scottish general practices1
With an increasingly ageing
population comes the challenge of
how to deal with people with
multi-morbidity (i.e the presence of
two or more long term conditions in
one person). Although the
prevalence of multimorbid conditions
rises with age, a study of 314 Scottish
general practices showed absolute
numbers to be higher in the under 65
age group.1 Furthermore, a Canadian
study suggested that multimorbidity
is the norm rather than the exception
with 69% patients aged 18-44
having multimorbidity and 93%
patients aged 45-64.2

People with multimorbidity are more
likely to die at an earlier age, more
likely to be admitted to hospital, have
a poorer quality of life and are more     There is therefore an increasing need      COPD and co-morbidity
likely to be prescribed multiple drugs    to organise care around the patient        as an exemplar
with consequent poor adherence.3          and not the disease, taking into           Chronic obstructive pulmonary
This suggests that there is scope to      account his or her multiple physical       disease (COPD) is a long-term
improve management and outcomes           and psychosocial conditions. 4             condition with a high prevalence (an
for these patients. Traditionally,                                                   estimated three million people in
disease management guidelines and         A systematic review of interventions       England)5 and with a high number of
patient pathways have been devised        for people in primary care and             co-morbidities. Table 1 shows the
around single disease entities. This      community settings which targeted          prevalence of co-morbidities of
has been encouraged by the demise         multi-morbidity indicated that there       significant long-term conditions in
of the generalist in secondary care       was limited research evidence              the Scottish general practice
and the development of super-             available.3 However, the review            multi-morbidity study, and shows that
specialties. However, this disease-       indicated that interventions targeted      people with COPD over the age of 65
centred approach tends to                 either at specific combinations of         had a mean of 4.5 co-morbid
underestimate the effect of               common conditions, or specific             conditions shown in the table.1 As
psychosocial factors influencing the      problems for patients with multiple        such, the organisation of care for
patient’s health and encourages the       conditions, may be more effective.         people with COPD and its
development of multiple treatment                                                    co-morbidities has the potential to be
regimes with increased potential for                                                 an exemplar for the organisation of
adverse drug interaction and poor                                                    care for people with multi-morbidities
adherence.                                                                           in general.




4
Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?




The Wagner chronic care model of
structured care6 has identified four        Figure 1: Patient centred management of stable COPD in primary care8
key elements which are likely to have
                                               ALL PATIENTS
a major impact on the quality and             SMOKING CESSATION ADVICE                                   EXERCISE PROMOTION
effectiveness of care. These                  PATIENT EDUCATION/SELF MANAGEMENT                          PNEUMOCOCCAL VACCINATION
                                              ASSESS AND TREAT COMORBIDITY                               ANNUAL INFLUENZA VACCINATION
elements are:                                 ASSESS BMI: DIETRY ADVICE >25                              SPECIALIST DIETRY REFERRAL IF BMI <20


• the promotion of self-management,               SYMPTOMS?                         FUNCTIONAL       EXACERBATIONS?                   HYPOXIA?            HOLISTIC CARE
                                                                                    LIMITATION?
• a comprehensive system to support
                                                   Breathlessness                    MRC score > 3      Oral steroids/
  clinical management,                                                                                antibiotics/hospital
                                              Short acting                     Optimise
• evidence-based support for                  bronchodilators (beta            pharmacotherapy
                                                                                                          admissions
                                              agonist/anticholinergic)         (see algorithm)
  decision making, and                        for relief of symptoms.
                                                                               Offer pulmonary
                                                                                                     Optimise pharmacologic
                                                                                                     therapy
                                                                                                                                Oxygen saturation
                                                                                                                                < 92% at rest in air)
                                                                                                                                                        Check social support (e.g.
                                                                                                                                                        carers and benefits)

• the use of clinical guidelines.             PERSISTENT SYMPTOMS
                                              See pharmacotherapy
                                                                               rehabilitation
                                                                                                     Discuss action plans       FEV-1 < 30%             (Treat co-morbidities).
                                              Algorithm                        Screen for            including use of standby   Predicted
                                                                               anxiety/depression    oral steroids and                                  Consider palliative therapy
                                                                                                     antibiotics                Refer for oxygen        or secondary care referral
The 2010 NICE COPD Guidelines5                PRODUCTIVE COUGH
                                              Consider mucolytics                                                               assessments             for resistant symptoms

and international GOLD COPD                                                                                                                             Refer to specialist
Guidelines7 have increasingly                                                                                                                           palliative care teams for
                                                                                                                                                        end-of-life
                                                                                                                                                        care.
recognised the need to assess co-
morbidities when carrying out routine
                                            Source: Primary Care Respiratory Society UK, 2010
assessment of the patient with COPD.
The Primary Care Respiratory Society-
UK (PCRS-UK) have adapted the NICE
COPD Guidelines for primary care
and advocate a patient-centred           This includes learning about planning
approach to COPD assessment and          ahead, organisational issues,
management8 including the                identifying the right patients and
assessment of co-morbidities. Figure     evaluating the impact of change.
1 shows an algorithm summarising         As such, it will be of help to all those
this patient-centered assessment.        interested in improving the way care
However the guidelines fall short of     is organised in their own area for
how to organise care for these           patients with multi-morbidity.
patients.

This document summarises the             Kevin Gruffydd-Jones
learning from a project to find out      GP Box Wiltshire , Respiratory Lead
how general practices in the United      RCGP
Kingdom have risen to the challenge
of organizing chronic care of patients   Shoba Poduval
with multimorbidity in practice, using   GP Islington, London and Clinical
the exemplar of COPD and its             Support Fellow RCGP
co-morbidities. It provides practical
examples of approaches that have         Correspondence to
been tried, key learning points about    Dr. Kevin Gruffydd-Jones
what works and why, and                  Email: Kevin.Gruffydd-Jones@gp-
suggestions for the way forward.         J83013.nhs.uk




                                                                                                                                                                                      5
Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?




Findings from sites


Survey method
A simple seven item questionnaire
was developed by the
multidisciplinary project committee
which included questions about
practice demographics, how and why
systems for managing COPD patients
with co-morbidities were developed,
the impact and any lessons learnt.

The questionnaire was uploaded to
Survey Monkey and publicised
amongst the networks of the Royal
College of General Practitioners,
NHS Improvement, the Primary Care
Respiratory Society UK and
Education for Health. The survey was
open from the 29 November 2012
to 8 February 2013.

Over thirty sites responded to the
call for examples of effective
management of multi-morbidity
in COPD patients. Many of the
respondents described systems for
managing COPD without
co-morbidities and other practices
did not wish to be contacted further.

Six case studies were chosen by the
authors which were thought to
represent the various approaches that
practices used to tackle the problem
of chronic disease management of
people with COPD and its
co-morbidities.




6
Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?




 Case study 1:
 Vauxhall Primary Health Care, Liverpool


 Vauxhall Primary Health Care (VPHC)
 is an urban practice in Liverpool with
 a list size of 6,000 patients and a
 team including GPs, practice nurses
 and a health care assistant.

 A quality improvement project has been
                                                 ‘‘
                                                 The consultation was an expert generalist needs
                                                 assessment, based on the principle of a person-centred
                                                 assessment of what was wrong and what intervention
                                                 was needed. In practice, much of the decision
                                                 making related to demedicalisation... reducing the
 running here for three to four years since




                                                                        ’’
 the practice obtained funding from              burden of care.
 neighbourhood cluster efficiency savings
 for 1.5 days/week of GP time to address
 the question:                                   What are the challenges?                     Key learning points
                                                 With the next stages of this work being      • Identify your key ‘at-risk’ group that is
                                                 planned, the following challenges have         most likely to benefit.
“How can we improve the                          been identified:                             • Bear in mind the importance of holistic
 care of housebound                              • Who are the next most important target       care - 63% of patients were found
                                                   groups? Care home residents? New             to have needs not met by existing
 patients with complex                             patients with multimorbidity? Patients       chronic disease management or
 needs registered at                               with acute complex needs?                    medication review processes and
                                                 • Limits to funding due to competing           identifying these needs was difficult
 VPHC?”                                            priorities.                                  from routine collected data alone.
                                                 • With limited time available, the team        Assessment by an experienced GP, with
 What do they do?                                  will need to be clear about how best to      an ‘off-protocol’ patient-centered
 First of all the practice established a           use community matrons and GPs, for           approach was found to be more useful.
 register identifying patients at need,            example focusing GP effort on the less     • Make use of your community teams.
 targeting first those who were                    straightforward cases such as those        • Work through how much clinical time
 housebound with more than one Quality             where diagnostic issues are dominant.        is required and how you will find or
 & Outcomes Framework (QoF)-registered                                                          fund it.
 disease, multiple medications and
 unplanned admissions in the last year.
                                                 We are starting to make greater use of community
 Patients were contacted by letter. All visits   matrons and also community pharmacy. Reserving GPs
 were carried out by GPs who completed
 an assessment, involving a review of the
                                                 for the less straightforward cases...what we are still
 notes - including tidying up problem lists;     struggling with is how to predict who those are. But often
 medication review; care assessment              it is where the DIAGNOSTIC issues are dominant.
 (where possible involving carers
 themselves); assessment of level of need        Dr Joanne Reeve, Vauxhall Primary Health Care
 (low, medium or high) and a documented
 plan of care.
                                                   Table 2: Feedback Summary
 What did they achieve?
 Recorded data was audited and                     Patients/carers       For some, surprise/suspicion/concern that doctor has visited
 experiences of staff, patients and carers                               for review, unsolicited by patient.
 reviewed. Results from initial data
                                                                         From family/carers, support for opportunity for time for full
 available indicated a lack of impact on
                                                                         assessment/discussion especially re medication.
 admissions but a reduction in prescribing.
 Data showed that inappropriate
                                                   Staff at care         Positive impact of proactive review of patients, including
 medication was stopped in 54 patients
                                                   homes                 tidying up/rationalising medication.
 out of 101 patients, due to a long-term
 view being taken about safety.
                                                   Staff at VPHC         Useful impact of reviewing the patient’s list of problems,
 Informal feedback was generally positive,
                                                                         medication reviews etc; protected time for visits for complex
 especially from staff and carers (see
                                                                         patients valuable.
 table 2


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Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?




Case study 2:
Yellow Practice, Govan Health Centre, Glasgow


Yellow Practice is an inner city              What has been achieved?
practice based in a health centre with        Patients have provided positive feedback
three other Practices in Glasgow. It          and comments on how much better the
has a list size of 4,000 patients, four       service is now. Fewer appointments are
GPs and two practice nurses.                  taken up as most of the conditions
                                              covered involve similar measurements and
What do they do?                              lifestyle issues. Receptionists also find it
For three years the practice nurse has        easier to book one appointment for the
organised an ‘Annual Health Review            annual review.
Clinic’ for patients with multiple chronic
diseases. Patients get a half hour            The team has also found this system is
appointment with the practice nurse,          better in relation to the practice’s QOF
during which conditions including             targets and Locally Enhanced Service (LES)
diabetes, heart disease, kidney disease,      requirements, as everything is tackled at
hypertension, heart failure, asthma,          once and it is easier to monitor targets
chronic obstructive pulmonary disease         and results.
(COPD) and stroke can be reviewed. If
more time is needed a further                 What were the challenges?
appointment is booked, and if necessary       • The lack of recall coding on the EMIS
a six monthly review can be arranged.           electronic records system.
                                              • Evaluating cost benefits.
Patients are invited by letter (or text
message if they have a mobile phone)          What were the key learning points?
and administrative staff are aware they       • Create a code in EMIS for chronic
need to make thirty minute appointments         disease management review - it is time
for these reviews.                              consuming to code everyone with that
                                                code but once done it is very useful.
A second practice nurse is employed to        • When to time the recall - the team at
carry out annual health checks for the          Yellow Practice tried making the
housebound, and residents of care               patient’s annual review in the month of
homes. These patients are seen annually,        their birthday but for those who didn't
six monthly or more often if required.          respond straight away and were late it
No other community teams are involved           didn't work. So reviews are now
apart from the podiatry services that visit     booked according to when the patient
the housebound diabetic patients at             was last seen. This took time and effort
home and review diabetic patients who           to organise but now works very well.
have been identified as having high or
moderate diabetic foot disease.

Why did they do it?
The practice nurse instigated this way of
managing patients with multiple chronic
disease because patients reported that
they were tired of being invited for
different reviews at different clinics
several times a year.




8
Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?




Case study 3:
Leckhampton Surgery, Cheltenham


Leckampton Surgery is an urban               What did they achieve?
Practice of 12,000 patients, nine            Attendance is very good, and patient
doctors, five Practice Nurses and            satisfaction has increased due to only
three HCA’s.                                 having to attend surgery once a year for
                                             review. In addition, more appointments
What do they do?                             are available for the nursing team.
The Leckhampton Surgery runs a ‘one-




                                             ‘‘
stop’ clinic for review of patients with
multiple chronic diseases. Each condition
is given 20 minutes plus extra time if
needed. Patients are seen by a registered
nurse who has skills and qualifications in   My advice is plan the clinic carefully. Work hard on the
chronic disease management, COPD,            wording of the invite letter, keep it simple. Phone
Asthma, Heart disease and diabetes. She
is assisted by a health care assistant who   patients to remind them of the appointment - it's a big



                                                                                            ’’
completes all the clinical measurements      chunk of time if they do not attend.
beforehand such as spirometry, bloods
and diabetic foot checks, having             Sharon Lamden, Lead Practice Nurse,
completed National Vocational                Leckhampton Surgery
Qualification (NVQ) training. The nurse is
a prescriber but GPs are involved where
necessary. Staff training has been funded
by the practice and the pharmaceutical
industry.

Patients are invited by letter and phoned
or text messaged the week before to
remind them of their appointment.

Housebound patients are visited by a
practice nurse at request from a GP, or by
the GPs themselves. Community staff are
asked to contribute to the review of
housebound patients but it is found that
they have very little time to spend on
these reviews and are not trained in
chronic disease management of multiple
conditions.




                                                                                                                             9
Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?




Case study 4:
Woodbrook Medical Centre, Loughborough


Woodbrook Medical Centre is an
urban 9,000 patient practice in
Loughborough. There are six doctors,
three nurses, a health care assistant
and phlebotomist.

What do they do?
                                              ‘‘
                                              The multiplicity of long term conditions borne by many
                                              of our patients demonstrates the difficulties involved in
                                              obtaining optimal outcomes for these conditions both
                                              individually and collectively; focusing on what the
                                              patient wishes to achieve will be more useful in
Woodbrook planned to set up a one stop
long term conditions clinic. They             applying therapies rather than relying on single
identified patients from the electronic       condition guidelines many of which will have
records system with long term conditions
such as chronic obstructive pulmonary
                                              conflicting objectives and recommendations. The
disease, hypertension and diabetes and        future lies in navigating these guidelines guided by
recorded the number of co-morbidities
the patient had. Figure 2 compares the
                                              the patient’s wishes and moving away from strictly



                                                                                             ’’
number of selected co-morbidities seen        targeted control.
with each condition.
                                              Dr Dermot Ryan, Woodbrook Surgery
Disease severity was also stratified
according to markers such as Forced
Expiratory Volume and Medical Research          Figure 2 : Number of Co-morbidities with reference condition
Council (MRC) Score for breathlessness.         (on y axis) in Woodbrook Surgery, Loughborough.
Patients with two or more co-morbidities                                               CKD
would be taken through the process                                                Epilepsy
summarized in the flowchart shown in                                        Heart Failure

Figure 3.                                                                           Stroke
                                                                                     COPD
                                                                        Hypothyroidism
What were the challenges?                                                              CHD
The practice organized a three hour team                                         Diabetes
meeting with all lead clinicians where a                                          Asthma
                                                                           Hypertension
detailed notes review of six patients was
                                                                                             0%         10%          20%        30%           40%        50%             60%        70%          80%            90%         100
undertaken. Although some savings were
                                                                                                   Hyper     Asthma       Diabetes      CHD       Hyperth        COPD       Stroke         Heart       Epilepsy       CKD
projected in terms of prescribing                                                                 tension                                         yroidism                                Failure
                                                   With main condition and 5 others                 2            0           2           1             1            1          2            2              0           1
rationalization and reduction in                   With main condition and 4 others                 23           7           14          11            9            12         10           7              2           20
appointments requested, they were                  With main condition and 3 others                 62           28          43          45            19           23         17           21             1           57
                                                   With main condition and 2 others                 176          60          115         76            32           37         37           28             4           95
unable to progress further due to a lack           With main condition and 1 other                  369          111         194         91            66           67         59           18             16          87
                                                                                                    521          504         147         73            109          58         32           4              35          2
of funding for the extra clinical time that        No. of patients - just 1 condition

was needed.

What were the key learning points?              Figure 3 : Flow chart of organisation of care for patients
• Resources need to be identified to fund       with two or more co-morbidities in Woodbrook Surgery
  extra clinical time to get the project
  under way.                                     Patient 2+              Identify blood             Go to patient           Send out invitation              Perform bloods                         Notes for review
                                                                         tests as required          summary to              letter for blood                 and collect questionnaires             by clinical pharmacist
• A project manager is needed to create a        co-morbidities
                                                                         for disease                ensure all              tests and
                                                                         monitoring or              co-morbidities          questionnaire                    Perform questionnaires                 Collection of bloods
  timetable and to keep the process                                      QOF                        have tests              with appointment                 if not completed                       and questionnaires
                                                                                                    required
  moving forward.                                                                                                                                            Inform will be invited
                                                                                                                                                             for review in three weeks




                                                                                                          Annual review            Patient phoned 24             Review appointment                 GP nurse specialist
                                                                          Follow up as needed
                                                                                                          with actions             hours prior                   made                               note review

                                                                                                          Reauthorise
                                                                  Forward diary for next review
                                                                                                          prescriptions




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Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?




Case study 5:
Birtley Medical Group, Gateshead


Birtley Medical Centre is an 80%              What did they achieve?
urban and 20% semi-rural practice             Patients report greater satisfaction with
with a list size of approximately             the new approach.
14,500 in Gateshead, County Durham.




                                              ‘‘
For 8-10 years the nursing team have
been running a Better Health Clinic
for review of patients with chronic
diseases and co morbidities.                  People have expressed their appreciation of the
What do they do?                              'one stop shop' approach, particularly because there



                                                                                                            ’’
Patients are seen in a Better Health Clinic   is a significant amount of interconnectedness.
appointment of thirty minutes with a
senior practice nurse or nurse practitioner   Liz Bryant, Nurse Practitioner, Birtley Medical Group
(depending on their co-morbidities). All
the nurses who are involved have at least
diploma training in the illnesses reviewed.
                                              What were the challenges?
Patients are informed of the need for         • Training staff to an adequate level to
their review by a note on their                 meet the requirements of the clinic.
prescriptions. They are then asked to         • Organising appointments so that
book in for appropriate tests (such as          enough time is allowed for review.
bloods and spirometry) with a health care
assistant and the Better Health Clinic        Key learning points
appointment is made with them for one         • Investment in nurse recruitment and
to two weeks later. Making the                  high quality training is essential, and it
appointment with the patient has been           is important to ensure that staff
helpful in improving attendance rates           complete enough regular consultations
which have been good.                           to keep up their skills.
                                              • Allow enough time for the review by
Housebound patients are seen by GPs,            making sure the blood tests and
practice nurses and community matrons           spirometry are planned and executed
as appropriate.                                 in advance.




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Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?




Case study 6:
Phoenix Medical Practice, Bradford


Phoenix Medical Practice in Bradford,      What have they achieved?
West Yorkshire, has a patient base of      A health economic evaluation of 19
3,600 patients and has been                patients using the care planning approach
championing the concept of care            was published in the Health Service
planning with patients with                Journal in 20109 This showed in a
multi-morbidity under the direction        reduction in health service contacts from
of Dr. Shahid Ali. This has centred on     529 to 246 in the 12 months pre and
diabetes, but includes COPD and            post care planning, a reduction in
other long-term conditions.                outpatient contacts and a reduction in
                                           overall health costs.
What do they do?
40% of the practice patients had a long-   What were the key learning points?
term condition, of which 25% had two or     The experience of being in control and
more. These patients were invited to       making independent decisions is highly
attend appointments for a care planning    motivating for patients. The care planning
consultation. Using an integrated long     approach has been further piloted by
term condition template the patients, in   other practices in West Yorkshire. Patient
their own words, record the issues that    empowerment is being further enhanced
are important to them and how these        by electronic sharing of data including
impact on self-caring and setting self-    goal setting via the internet or via smart
directed goals (e.g. giving up smoking).   phones.

Capturing this information ensures the
goals are relevant to the patient and
means the patient can relate back to
them regularly. A follow up appointment
is made to assess progress against these
goals.

What were the challenges?
There is a need for practice meetings to
change the culture of chronic disease
management towards patient –centred
and supported self-management.
There is also a need for training on the
multi-disease templates.




12
Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?




Key themes


Findings from the survey suggest that    1. MOTIVATION TO ORGANISE                  At one practice, a telehealth system
whilst practices have started to         MULTLI-MORBID REVIEWS                      using joint management plans issued
implement systems which co-ordinate      Some practices identified optimizing       by the local Community Partnership
the organisation of care of people       performance under the Quality and          Trust enabled patients to self-manage
with COPD and its co-morbidities         Outcomes Framework (QOF) as the            their symptoms over a trial period of
these systems are in their infancy and   main purpose for developing a              three months.
there has been little evidence of        system for managing patients with
formal evaluation. This conclusion       multiple problems, due to the              A key to successful organisation was
must be tempered by the fact that        opportunity to complete all reviews        prior planning by multidisciplinary
there was a relatively low response      and templates at one consultation.         members of the practice team
rate to the request to complete the
survey.                                  Some practices utilised Practice –         3. TELEHEALTH & TECHONOLOGY
                                         Based Commissioning (PBC) or other         Few practices provided information
There may be several reasons for this:   sources of funding to develop ideas        on using telehealth or technology to
• Practices have not organised           for new systems, and others were           support management of co-morbidity
  multi-morbid care around COPD.         motivated by the need to increase          in COPD or in multi-morbidity
  There is anecdotal evidence that       patient satisfaction with the way their    generally. Furlong Medical Practice in
  practice systems have been built up    conditions are managed.                    Stoke on Trent, described how
  with ischaemic heart disease or                                                   telehealth can enhance patient
  diabetes as the reference disease.     2. ORGANISATION                            engagement in managing their COPD
• General practices are under a lot of   Nine of the thirteen practices who         (see box on page 14 for details).
  workload pressure at present, as       provided additional information used       Nurses and patients have loved the
  evidenced by surveys from the          the concept of a nurse-led ‘one stop       system and it is being adopted more
  British Medical Association and so     clinic’ reviewing multiple conditions      widely and extended to other
  response rates to surveys may not      in one consultation. Consultations         conditions.
  be optimum, especially when sent       tended to be structured around
  in a period around Christmas.          COPD and ischaemic heart disease/          Successful implementation requires
                                         heart failure rather than other            engagement of the whole practice
In spite of these limitations several    co-morbidities. Most of the nurse-led      team in the initiative through
themes emerged from those who            clinics involved a thirty minute           communication, incentives and
responded to the survey:                 appointment with measurements              training, and ensuring that there is a
                                         such as spirometry and bloods              clear and consistent approach to
                                         organised in advance. One practice         identifying and recruiting appropriate
                                         used only fifteen minute                   patients to the service.
                                         appointments but found this
                                         challenging, especially as QoF data
                                         needed to be collected for all
                                         conditions using existing templates.




                                                                                                                        13
Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?




                                                                                     4. PATIENT IDENTIFICATION
     Telehealth in COPD management                                                   AND RECRUITMENT
     Furlong Medical Practice, Stoke on Trent, adopted a Clinical                    Most practices identified patients
     Commissioning Group (CCG) funded Florence mobile phone texting                  from their disease registers, with one
     service in January 2012 to enhance patient engagement in their COPD             using the patient’s birthday month
     management. They identified patients on the COPD register whose                 as the month of their review. All
     clinical management could be improved and who could be given more               practices used written letters to
     autonomy. Specific patient selection criteria were used, including              invite patients to their review, with
     evidenceof one or more of the following:                                        one phoning patients a week before
                                                                                     their appointment to remind them.
     • excessive use of inhalers                                                     Some practices also used text
     • breathlessness on exertion                                                    messaging for patients who had
     • productive sputum                                                             mobile phones.
     • one or more exacerbations of COPD in last 12 months
     • attended practice frequently in previous year for respiratory reasons,        The wording of the letter or message
      having been prescribed two or more courses of antibiotics                      was identified as an important
     • been admitted to hospital with exacerbation of COPD in previous year          factor, as it influenced patient
     • attended Accident & Emergency, walk in centre, out of hours service           anxiety and attendance rate. One
      with exacerbation of COPD/chest infection – in previous 12 months.             practice described inviting patients
                                                                                     who were not engaging up to three
     A joint management plan is agreed between patients and the practice             times by letter, but if they did not
     nurse which is supported by a written leaflet. Patients take home a             wish to receive help they were not
     pulse oximeter, thermometer, weighing scales and their rescue                   forced to take part but exempted for
     medication. They then receive daily texts asking about sputum colour            that year.
     and oxygen saturations. Depending on sputum colour, they are asked if
     they feel unwell, and if so, are asked to take their temperature. If their      5. STAFF
     temperature is >37.5C, they take rescue medication according to their           The majority of the practices ran
     agreed joint management plan.                                                   clinics led by practice nurses. Some
                                                                                     practices had nurse prescribers to
     Clinicians monitor patients’ readings twice a week. There is a monthly          modify medications but in other
     text enquiry about patient experience and the programme is run over             cases medications were reviewed
     three months. There is an evaluation form at the end of the programme           by GPs after discussion with the
     and good patient self-care literature is given to patients to supplement        practice nurses.
     their learning from the programme.
                                                                                     Two practices also used junior
     The practice believes telehealth enhances the care they deliver and             nurses and health care assistants
     offers patients an enormous advantage in understanding their                    for spirometry, blood tests and
     condition, thus making them more likely to comply with any agreed               diabetic foot checks.
     joint management plan.

     “Realise the potential of telehealth for enhancing
     quality of delivery of patient care and trial it in
     your team.”
     Professor Ruth Chambers, Furlong Medical Practice




14
Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?




Staff training was highlighted as an     6. HOUSEBOUND PATIENTS
important issue. Most practices had      There was a range of care models
nurses with qualifications in chronic    used to manage housebound
diseases. In some practices, nurses      patients or patients with complex
had to be trained in chronic disease     needs. At one end of the spectrum
management or new nurses                 there was integrated team approach
employed. The cost of this was           with initial review by a community
balanced against the savings in          matron or GP, and subsequent
nursing appointment time, due to         support at home by the community
multiple problems being addressed        team At the other end of the
in one appointment.                      spectrum, the GP carried out the
                                         reviews of housebound patients.
In terms of community and
secondary care involvement, one          7. EVALUATION
practice mentioned good links with       Although there was a paucity of
secondary care and others                formal evaluation, informal feedback
mentioned liaison with pharmacists       from practices found that resulting
for medication review and district       patient and staff satisfaction was
nurses and community matrons for         high, mainly due to time saved due
the care of housebound patients.         to multiple problems being
                                         addressed at one consultation. This
However, some found that                 also led to more nursing
community staff did not have             appointments becoming available.
enough time to see all the patients      Some practices also reported
identified or were not trained to        increased adherence to medication
manage multiple problems.                and reduced Accident and
                                         Emergency Attendances.
Generally patients were referred to
community staff if needed but one
practice held fortnightly meetings
with the community matrons to
discuss housebound patients, as part
of the requirement for the CCG
Locally Enhanced Service (LES).




                                                                                                                        15
Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?




Challenges


Several practices highlighted training
as one of the main challenges, saying
high quality training was vital for
success of the scheme to ensure staff
were skilled in assessing and
managing multi-morbidity.

Careful organisation and time
management were also essential,
with enough time needing to be
given to appointments and all
measurements such as bloods being
taken beforehand.

Practical resources were another
challenge. One practice needed to
modify their invite letter to optimise
patient attendance and found they
lacked an appropriate template for
entering all relevant data.

Funding was the other main
challenge that many practices cited.
This was generally funding for
training or extra clinical time, with
evidence of evaluation and successful
outcomes needed before further
funding could be provided.




16
Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?




The way forward


The move away from a disease-             The NHS has organised chronic care
centric model of care towards a           around a long term conditions
patient-centred multimorbid system        model4, shown diagrammatically in
raises several challenges for those       figure 4 below. In recent years
working to deliver structured care.       integrated care models have
                                          concentrated on patients at level 2
The current Quality and Outcomes          and level 3 who are high risk or with
Framework is a major driver in            ‘complex needs’. However, with the
structuring chronic care in general       increased realization that patients
practice, but tends to be                 with multi morbidity are the norm
disease-specific. As such, care needs     rather than the exception, there is
to be taken to ensure it does not         also an increased need for integrated
become a potential barrier to             working at a practice level with
delivering effective integrated care in   level 1 patients. Examples of this are
conjunction with community teams.         the involvement of Community
Financing of schemes may be more          Pharmacists to minimize
appropriately made by using levers        polypharmacy and attached practice
such as Commissioning for Quality         social workers to help deal with
and Innovation (CQUIN)13 payments         psychosocial problems.
across a locality to encourage a more
integrated approach to care.
                                             Figure 4: NHS Long-Term Conditions Model5
There is a major need to develop
multimorbid disease management
templates which are geared to the
individual patient and which take into                                           LEVEL 3:
account common psychosocial factors                                           High complexity
                                                                                 Case
such as depression and the needs of                                           management
carers. Looking to the future there is
also a need to look at new ways of
developing patient pathways and                                                  LEVEL 2:
                                                                                 High risk
guidelines away from the current                                       Disease/case management
disease specific models to more
generic approaches around patient
problems e.g ‘disability or
breathlessness’.                                                                 LEVEL 1:
                                                                          70-80% of LTC population
                                                                     Self care support/management




                                                                                                                        17
Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?




Conclusion


Proactive chronic care of patients
with COPD and its co-morbidities
provides an exemplar for chronic care
of patients with multimorbidity in
general practice. Examples of such
care are limited but the final section
of this document uses the key
learning points from this survey to
give advice to general practices
planning to offer structured chronic
care for people with multimorbidities.

Learning from those sites who
responded to the survey suggests
there is a need for multimorbid
disease management templates and
care pathways, and that integrated
working with community teams,
including pharmacists, can improve
outcomes, with the potential to
reduce overall consultation times,
increase patient satisfaction, reduce
polypharmacy and reduce hospital
admissions.




18
Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?




Points to consider when organising structured
reviews for patients with COPD and
co-morbidities in primary care

KEY POINTS              QUESTIONS TO CONSIDER
BE CLEAR WHY YOU        • What are the benefits to the practice and to the patients, carers or family? e.g less consultation
ARE REORGANISING          time, fewer visits for the patient, achieving the objectives of a locally enhanced scheme.
CARE                    • What are the likely financial consequences?
                        • Consider canvassing CCG or local health group to provide finance/support for groups of practices
                          under CQUIN/LES and to support work across boundaries.

PRIOR PLANNING          • Identify who is, could or should be involved in the organisation of care (e.g practice staff,
                          community staff, pharmacist , social services, patients and carers)
                        • Involve these stakeholders in the planning of care to increase understanding or what currently
                          happens, what could happen and to encourage motivation for the service to succeed.

IDENTIFICATION OF       • Which co-morbidities will be included? Which are most common?
PATIENTS                • Are higher risk patients to be identified and how will this be done (e.g COPD patients with two
                          or more exacerbations in the last year)?

ORGANISATION            • How will patients receive invitations and be reminded to attend appointments?
                        • How will checks be organised? e.g number of appointments per patient, duration of appointments
                          and which practice staff will be involved.
                        • How much time is currently available and how is it used? How could it be used differently? Do
                          you need any extra time?
                        • What will happen in each appointment?
                        • Do the staff have sufficient training in the co-morbid conditions to be reviewed?
                        • How will the data be recorded? Are the disease templates sufficient for purpose?
                        • Are practice management protocols sufficient for purpose?
                        • Consider use of telehealth for higher risk patients. How could this enhance care?

INTEGRATED CARE         • How will care of patients be integrated with other members of the community team (and
                          secondary care)? e.g pharmacist, social services, mental health services and specialist
                          community teams.
                        • How will the needs of patients deemed high risk and /or housebound be met by the
                          community/practice team?
                        • Will this satisfy the requirements of the QOF?

EVALUATION              How will you evaluate success?
                        • Baseline and improvement - Where are you starting from? What do you need to measure as a
                          baseline so that you can tell whether your changes are making a difference? What will you need
                          to demonstrate to others to ensure support for the change?
                        • Patient feedback – what do you want to know? How will you find out? What do patients think of
                          the current service? What do they suggest might work better? How will you measure a change in
                          their experience or satisfaction?
                        • Consultation time – how much time is needed? How much time overall is needed, before and
                          after? Who currently does what?
                        • Costs and benefits – can you demonstrate reduced hospital admissions, reduced exacerbations,
                          prescribing and adherence, QOF impact, use of urgent appointments or A&E, total cost of time
                          and resources required, reduced duplication of tests or appointments?
                        • Improved Quality of Life - using generic questionnaires such as Euroqol (EQ5-D)10 or disease
                          specific questionnaires e.g COPD Assessment Test (CAT)11
                        • Increased patient enablement - using Patient Enablement Instrument.12

Find resources such as First steps towards quality improvement: A simple guide to improving
services to help you plan, deliver and evaluate your project at www.improvement.nhs.uk




                                                                                                                               19
                                                                                                                                7
Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?




References


1. Barnett K, Mercer SV et al. Epidemiology of multimorbidity and implications for health care, research
   and medical education. The Lancet 360 9836: 38. 37-43.
2. Fortin M, Soubhi H, Hudon C, Bayliss EA and MvD Akker. Multimorbidity’s many challenges.
   British Medical Journal 2007; 334 (7602): 1016-1017.
3. Susan M Smith. Managing Patients with multimorbidity: systematic review of interventions in primary care and
   community settings. British Medical Journal 2012 292: 345 e5205
4. Kadam U. Redesigning the general practice consultation to improve care for patients with
   multimorbidity, British Medical Journal. 2012 Sep 17;345:e6202
5. National Clinical Guideline Centre. (2010) Chronic obstructive pulmonary disease: management of chronic
   obstructive pulmonary disease in adults in primary and secondary care. London: National Clinical Guideline Centre.
   http://guidance.nice.org.uk/CG101
6. Wagner EH, Chronic disease management: What will it take to improve care for chronic illness?
   Effective Clinical Practice. 1998;1(1) 2-4
7. Global Initiative for Chronic Obstructive Lung Disease (GOLD). Global Strategy for the Diagnosis,
   Management and Prevention of Chronic Pulmonary Disease(2011)
   www.goldcopd.org/guidelines-global-strategy-for-diagnosis-management.html
8. Diagnosis and Management of COPD in Primary Care. Primary Care Respiratory Society, UK
   www.pcrs-uk.org

9. Shahid Ali . When a care plan comes together .Health Service Journal 9.12.2010 p20

10. Euroqol(EQ-5D) questionnaire www.euroqol.org

11. COPD Assessment Test. www.catestonline.org

12. Howie, J. G., Heaney, D. J., Maxwell, M, & Walker, J. J. (1998). A comparison of a Patient Enablement Instrument
    (PEI) against two established satisfaction scales as an outcome measure of primary care consultations. Family
    Practice, 15(2), 165-171.

13. Commissioning for Quality and Innovation (CQUIN) payments.
    www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_091443

14. An Outcomes Strategy for COPD and asthma in England. 2011
    www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/documents/digitalasset/dh_128428.pdf




20
Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?




Acknowledgements


Thanks to:

The Project Committee of:

Catherine Blackaby            NHS Improvement
Phil Duncan                   NHS Improvement
Rigoberto Pizarro-Duhart      CIRC RCGP
Christine Loveridge           COPD/Spirometry Clinical Lead, Education for Health, Warwick
Dermot Ryan                   GP Principal Loughborough
Matt Kearney                  Department of Health Respiratory Team
Sara Askew                    Primary Care Respiratory Society UK.

The many practices who replied to the survey request, in particular Dr Joanne Reeve
(Vauxhall Primary Health Care), Sharon Lamden (Leckhampton Surgery), Sarah Everett
(Yellow Practice), Dr Dermot Ryan (Woodbrook Surgery), Liz Bryant and Deborah Dews
(Birtley Medical Group), Professor Ruth Chambers (Furlong Medical Practice) and Dr
Shahid Ali (Phoenix Medical Practice) for their contribution to the case studies.

Chris Gush and Fiona Fordham from CIRC for administrative support.

To Novartis Pharmaceuticals for providing financial support via an
unrestricted educational grant.




                                                                                                                        21
Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?




22
NHS
                                                                                               NHS Improvement




CANCER




DIAGNOSTICS




HEART         NHS Improvement
              NHS Improvement’s strength and expertise lies in practical service improvement. It has over a
              decade of experience in clinical patient pathway redesign in cancer, diagnostics, heart, lung
              and stroke and demonstrates some of the most leading edge improvement work in England
              which supports improved patient experience and outcomes.
LUNG

              Working closely with the Department of Health, trusts, clinical networks, other health sector
              partners, professional bodies and charities, over the past year it has tested, implemented,
              sustained and spread quantifiable improvements with over 250 sites across the country as
STROKE
              well as providing an improvement tool to over 2,400 GP practices.



              NHS Improvement
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              Telephone: 0116 222 5184 | Fax: 0116 222 5101

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              Delivering tomorrow’s
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                                                                                                                    Publication Ref: NHSIMP/Lung0006 - March 2013
                                                                                                                    ©NHS Improvement 2013 | All Rights Reserved

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Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities

  • 1. Royal College of NHS General Practitioners NHS Improvement Lung CANCER DIAGNOSTICS HEART LUNG STROKE NHS Improvement - Lung Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?
  • 2. Endorsed by: Royal College of General Practitioners The Royal College of General The Primary Care Respiratory Education for Health is the Practitioners is a network of Society UK (PCRS-UK) is the world's leading charity to more than 45,000 family UK-wide professional society focus on the education of doctors working to improve dedicated to meeting the health professionals as a key care for patients. We work to vision of ‘optimal respiratory factor in improving patient encourage and maintain the care for all’. Our mission is health and quality of life. highest standards of general to give every member of the Our mission is to take action, medical practice and act as primary care practice team educate people and the voice of GPs on the confidence to deliver transform lives worldwide. education, training, research quality respiratory care and We are a specialist provider and clinical standards. improve the quality of life of pioneering cardiovascular for patients with respiratory and respiratory education disease. and training courses, products and qualifications.
  • 3. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities? Contents Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities? Introduction 4 Findings from sites 6 • Survey method 6 • Case study 1: Vauxhall Practice, Liverpool 7 • Case study 2: Yellow Practice, Govan Health Centre, Glasgow 8 • Case study 3: Leckhampton Surgery, Cheltenham 9 • Case study 4: Woodbrook Medical Centre, Loughborough 10 • Case study 5: Birtley Medical Group, Gateshead 11 • Case study 6: Phoenix Medical Practice, Bradford 12 Key themes 13 Challenges 16 The way forward 17 Conclusion 18 Points to consider – developing structured reviews in practice 19 References 20 Acknowledgements 21 3
  • 4. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities? Introduction The case for managing multi-morbidity Table 1: Co-morbidity of 10 common primary care conditions in 314 Scottish general practices1 With an increasingly ageing population comes the challenge of how to deal with people with multi-morbidity (i.e the presence of two or more long term conditions in one person). Although the prevalence of multimorbid conditions rises with age, a study of 314 Scottish general practices showed absolute numbers to be higher in the under 65 age group.1 Furthermore, a Canadian study suggested that multimorbidity is the norm rather than the exception with 69% patients aged 18-44 having multimorbidity and 93% patients aged 45-64.2 People with multimorbidity are more likely to die at an earlier age, more likely to be admitted to hospital, have a poorer quality of life and are more There is therefore an increasing need COPD and co-morbidity likely to be prescribed multiple drugs to organise care around the patient as an exemplar with consequent poor adherence.3 and not the disease, taking into Chronic obstructive pulmonary This suggests that there is scope to account his or her multiple physical disease (COPD) is a long-term improve management and outcomes and psychosocial conditions. 4 condition with a high prevalence (an for these patients. Traditionally, estimated three million people in disease management guidelines and A systematic review of interventions England)5 and with a high number of patient pathways have been devised for people in primary care and co-morbidities. Table 1 shows the around single disease entities. This community settings which targeted prevalence of co-morbidities of has been encouraged by the demise multi-morbidity indicated that there significant long-term conditions in of the generalist in secondary care was limited research evidence the Scottish general practice and the development of super- available.3 However, the review multi-morbidity study, and shows that specialties. However, this disease- indicated that interventions targeted people with COPD over the age of 65 centred approach tends to either at specific combinations of had a mean of 4.5 co-morbid underestimate the effect of common conditions, or specific conditions shown in the table.1 As psychosocial factors influencing the problems for patients with multiple such, the organisation of care for patient’s health and encourages the conditions, may be more effective. people with COPD and its development of multiple treatment co-morbidities has the potential to be regimes with increased potential for an exemplar for the organisation of adverse drug interaction and poor care for people with multi-morbidities adherence. in general. 4
  • 5. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities? The Wagner chronic care model of structured care6 has identified four Figure 1: Patient centred management of stable COPD in primary care8 key elements which are likely to have ALL PATIENTS a major impact on the quality and SMOKING CESSATION ADVICE EXERCISE PROMOTION effectiveness of care. These PATIENT EDUCATION/SELF MANAGEMENT PNEUMOCOCCAL VACCINATION ASSESS AND TREAT COMORBIDITY ANNUAL INFLUENZA VACCINATION elements are: ASSESS BMI: DIETRY ADVICE >25 SPECIALIST DIETRY REFERRAL IF BMI <20 • the promotion of self-management, SYMPTOMS? FUNCTIONAL EXACERBATIONS? HYPOXIA? HOLISTIC CARE LIMITATION? • a comprehensive system to support Breathlessness MRC score > 3 Oral steroids/ clinical management, antibiotics/hospital Short acting Optimise • evidence-based support for bronchodilators (beta pharmacotherapy admissions agonist/anticholinergic) (see algorithm) decision making, and for relief of symptoms. Offer pulmonary Optimise pharmacologic therapy Oxygen saturation < 92% at rest in air) Check social support (e.g. carers and benefits) • the use of clinical guidelines. PERSISTENT SYMPTOMS See pharmacotherapy rehabilitation Discuss action plans FEV-1 < 30% (Treat co-morbidities). Algorithm Screen for including use of standby Predicted anxiety/depression oral steroids and Consider palliative therapy antibiotics Refer for oxygen or secondary care referral The 2010 NICE COPD Guidelines5 PRODUCTIVE COUGH Consider mucolytics assessments for resistant symptoms and international GOLD COPD Refer to specialist Guidelines7 have increasingly palliative care teams for end-of-life care. recognised the need to assess co- morbidities when carrying out routine Source: Primary Care Respiratory Society UK, 2010 assessment of the patient with COPD. The Primary Care Respiratory Society- UK (PCRS-UK) have adapted the NICE COPD Guidelines for primary care and advocate a patient-centred This includes learning about planning approach to COPD assessment and ahead, organisational issues, management8 including the identifying the right patients and assessment of co-morbidities. Figure evaluating the impact of change. 1 shows an algorithm summarising As such, it will be of help to all those this patient-centered assessment. interested in improving the way care However the guidelines fall short of is organised in their own area for how to organise care for these patients with multi-morbidity. patients. This document summarises the Kevin Gruffydd-Jones learning from a project to find out GP Box Wiltshire , Respiratory Lead how general practices in the United RCGP Kingdom have risen to the challenge of organizing chronic care of patients Shoba Poduval with multimorbidity in practice, using GP Islington, London and Clinical the exemplar of COPD and its Support Fellow RCGP co-morbidities. It provides practical examples of approaches that have Correspondence to been tried, key learning points about Dr. Kevin Gruffydd-Jones what works and why, and Email: Kevin.Gruffydd-Jones@gp- suggestions for the way forward. J83013.nhs.uk 5
  • 6. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities? Findings from sites Survey method A simple seven item questionnaire was developed by the multidisciplinary project committee which included questions about practice demographics, how and why systems for managing COPD patients with co-morbidities were developed, the impact and any lessons learnt. The questionnaire was uploaded to Survey Monkey and publicised amongst the networks of the Royal College of General Practitioners, NHS Improvement, the Primary Care Respiratory Society UK and Education for Health. The survey was open from the 29 November 2012 to 8 February 2013. Over thirty sites responded to the call for examples of effective management of multi-morbidity in COPD patients. Many of the respondents described systems for managing COPD without co-morbidities and other practices did not wish to be contacted further. Six case studies were chosen by the authors which were thought to represent the various approaches that practices used to tackle the problem of chronic disease management of people with COPD and its co-morbidities. 6
  • 7. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities? Case study 1: Vauxhall Primary Health Care, Liverpool Vauxhall Primary Health Care (VPHC) is an urban practice in Liverpool with a list size of 6,000 patients and a team including GPs, practice nurses and a health care assistant. A quality improvement project has been ‘‘ The consultation was an expert generalist needs assessment, based on the principle of a person-centred assessment of what was wrong and what intervention was needed. In practice, much of the decision making related to demedicalisation... reducing the running here for three to four years since ’’ the practice obtained funding from burden of care. neighbourhood cluster efficiency savings for 1.5 days/week of GP time to address the question: What are the challenges? Key learning points With the next stages of this work being • Identify your key ‘at-risk’ group that is planned, the following challenges have most likely to benefit. “How can we improve the been identified: • Bear in mind the importance of holistic care of housebound • Who are the next most important target care - 63% of patients were found groups? Care home residents? New to have needs not met by existing patients with complex patients with multimorbidity? Patients chronic disease management or needs registered at with acute complex needs? medication review processes and • Limits to funding due to competing identifying these needs was difficult VPHC?” priorities. from routine collected data alone. • With limited time available, the team Assessment by an experienced GP, with What do they do? will need to be clear about how best to an ‘off-protocol’ patient-centered First of all the practice established a use community matrons and GPs, for approach was found to be more useful. register identifying patients at need, example focusing GP effort on the less • Make use of your community teams. targeting first those who were straightforward cases such as those • Work through how much clinical time housebound with more than one Quality where diagnostic issues are dominant. is required and how you will find or & Outcomes Framework (QoF)-registered fund it. disease, multiple medications and unplanned admissions in the last year. We are starting to make greater use of community Patients were contacted by letter. All visits matrons and also community pharmacy. Reserving GPs were carried out by GPs who completed an assessment, involving a review of the for the less straightforward cases...what we are still notes - including tidying up problem lists; struggling with is how to predict who those are. But often medication review; care assessment it is where the DIAGNOSTIC issues are dominant. (where possible involving carers themselves); assessment of level of need Dr Joanne Reeve, Vauxhall Primary Health Care (low, medium or high) and a documented plan of care. Table 2: Feedback Summary What did they achieve? Recorded data was audited and Patients/carers For some, surprise/suspicion/concern that doctor has visited experiences of staff, patients and carers for review, unsolicited by patient. reviewed. Results from initial data From family/carers, support for opportunity for time for full available indicated a lack of impact on assessment/discussion especially re medication. admissions but a reduction in prescribing. Data showed that inappropriate Staff at care Positive impact of proactive review of patients, including medication was stopped in 54 patients homes tidying up/rationalising medication. out of 101 patients, due to a long-term view being taken about safety. Staff at VPHC Useful impact of reviewing the patient’s list of problems, Informal feedback was generally positive, medication reviews etc; protected time for visits for complex especially from staff and carers (see patients valuable. table 2 7
  • 8. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities? Case study 2: Yellow Practice, Govan Health Centre, Glasgow Yellow Practice is an inner city What has been achieved? practice based in a health centre with Patients have provided positive feedback three other Practices in Glasgow. It and comments on how much better the has a list size of 4,000 patients, four service is now. Fewer appointments are GPs and two practice nurses. taken up as most of the conditions covered involve similar measurements and What do they do? lifestyle issues. Receptionists also find it For three years the practice nurse has easier to book one appointment for the organised an ‘Annual Health Review annual review. Clinic’ for patients with multiple chronic diseases. Patients get a half hour The team has also found this system is appointment with the practice nurse, better in relation to the practice’s QOF during which conditions including targets and Locally Enhanced Service (LES) diabetes, heart disease, kidney disease, requirements, as everything is tackled at hypertension, heart failure, asthma, once and it is easier to monitor targets chronic obstructive pulmonary disease and results. (COPD) and stroke can be reviewed. If more time is needed a further What were the challenges? appointment is booked, and if necessary • The lack of recall coding on the EMIS a six monthly review can be arranged. electronic records system. • Evaluating cost benefits. Patients are invited by letter (or text message if they have a mobile phone) What were the key learning points? and administrative staff are aware they • Create a code in EMIS for chronic need to make thirty minute appointments disease management review - it is time for these reviews. consuming to code everyone with that code but once done it is very useful. A second practice nurse is employed to • When to time the recall - the team at carry out annual health checks for the Yellow Practice tried making the housebound, and residents of care patient’s annual review in the month of homes. These patients are seen annually, their birthday but for those who didn't six monthly or more often if required. respond straight away and were late it No other community teams are involved didn't work. So reviews are now apart from the podiatry services that visit booked according to when the patient the housebound diabetic patients at was last seen. This took time and effort home and review diabetic patients who to organise but now works very well. have been identified as having high or moderate diabetic foot disease. Why did they do it? The practice nurse instigated this way of managing patients with multiple chronic disease because patients reported that they were tired of being invited for different reviews at different clinics several times a year. 8
  • 9. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities? Case study 3: Leckhampton Surgery, Cheltenham Leckampton Surgery is an urban What did they achieve? Practice of 12,000 patients, nine Attendance is very good, and patient doctors, five Practice Nurses and satisfaction has increased due to only three HCA’s. having to attend surgery once a year for review. In addition, more appointments What do they do? are available for the nursing team. The Leckhampton Surgery runs a ‘one- ‘‘ stop’ clinic for review of patients with multiple chronic diseases. Each condition is given 20 minutes plus extra time if needed. Patients are seen by a registered nurse who has skills and qualifications in My advice is plan the clinic carefully. Work hard on the chronic disease management, COPD, wording of the invite letter, keep it simple. Phone Asthma, Heart disease and diabetes. She is assisted by a health care assistant who patients to remind them of the appointment - it's a big ’’ completes all the clinical measurements chunk of time if they do not attend. beforehand such as spirometry, bloods and diabetic foot checks, having Sharon Lamden, Lead Practice Nurse, completed National Vocational Leckhampton Surgery Qualification (NVQ) training. The nurse is a prescriber but GPs are involved where necessary. Staff training has been funded by the practice and the pharmaceutical industry. Patients are invited by letter and phoned or text messaged the week before to remind them of their appointment. Housebound patients are visited by a practice nurse at request from a GP, or by the GPs themselves. Community staff are asked to contribute to the review of housebound patients but it is found that they have very little time to spend on these reviews and are not trained in chronic disease management of multiple conditions. 9
  • 10. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities? Case study 4: Woodbrook Medical Centre, Loughborough Woodbrook Medical Centre is an urban 9,000 patient practice in Loughborough. There are six doctors, three nurses, a health care assistant and phlebotomist. What do they do? ‘‘ The multiplicity of long term conditions borne by many of our patients demonstrates the difficulties involved in obtaining optimal outcomes for these conditions both individually and collectively; focusing on what the patient wishes to achieve will be more useful in Woodbrook planned to set up a one stop long term conditions clinic. They applying therapies rather than relying on single identified patients from the electronic condition guidelines many of which will have records system with long term conditions such as chronic obstructive pulmonary conflicting objectives and recommendations. The disease, hypertension and diabetes and future lies in navigating these guidelines guided by recorded the number of co-morbidities the patient had. Figure 2 compares the the patient’s wishes and moving away from strictly ’’ number of selected co-morbidities seen targeted control. with each condition. Dr Dermot Ryan, Woodbrook Surgery Disease severity was also stratified according to markers such as Forced Expiratory Volume and Medical Research Figure 2 : Number of Co-morbidities with reference condition Council (MRC) Score for breathlessness. (on y axis) in Woodbrook Surgery, Loughborough. Patients with two or more co-morbidities CKD would be taken through the process Epilepsy summarized in the flowchart shown in Heart Failure Figure 3. Stroke COPD Hypothyroidism What were the challenges? CHD The practice organized a three hour team Diabetes meeting with all lead clinicians where a Asthma Hypertension detailed notes review of six patients was 0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100 undertaken. Although some savings were Hyper Asthma Diabetes CHD Hyperth COPD Stroke Heart Epilepsy CKD projected in terms of prescribing tension yroidism Failure With main condition and 5 others 2 0 2 1 1 1 2 2 0 1 rationalization and reduction in With main condition and 4 others 23 7 14 11 9 12 10 7 2 20 appointments requested, they were With main condition and 3 others 62 28 43 45 19 23 17 21 1 57 With main condition and 2 others 176 60 115 76 32 37 37 28 4 95 unable to progress further due to a lack With main condition and 1 other 369 111 194 91 66 67 59 18 16 87 521 504 147 73 109 58 32 4 35 2 of funding for the extra clinical time that No. of patients - just 1 condition was needed. What were the key learning points? Figure 3 : Flow chart of organisation of care for patients • Resources need to be identified to fund with two or more co-morbidities in Woodbrook Surgery extra clinical time to get the project under way. Patient 2+ Identify blood Go to patient Send out invitation Perform bloods Notes for review tests as required summary to letter for blood and collect questionnaires by clinical pharmacist • A project manager is needed to create a co-morbidities for disease ensure all tests and monitoring or co-morbidities questionnaire Perform questionnaires Collection of bloods timetable and to keep the process QOF have tests with appointment if not completed and questionnaires required moving forward. Inform will be invited for review in three weeks Annual review Patient phoned 24 Review appointment GP nurse specialist Follow up as needed with actions hours prior made note review Reauthorise Forward diary for next review prescriptions 10
  • 11. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities? Case study 5: Birtley Medical Group, Gateshead Birtley Medical Centre is an 80% What did they achieve? urban and 20% semi-rural practice Patients report greater satisfaction with with a list size of approximately the new approach. 14,500 in Gateshead, County Durham. ‘‘ For 8-10 years the nursing team have been running a Better Health Clinic for review of patients with chronic diseases and co morbidities. People have expressed their appreciation of the What do they do? 'one stop shop' approach, particularly because there ’’ Patients are seen in a Better Health Clinic is a significant amount of interconnectedness. appointment of thirty minutes with a senior practice nurse or nurse practitioner Liz Bryant, Nurse Practitioner, Birtley Medical Group (depending on their co-morbidities). All the nurses who are involved have at least diploma training in the illnesses reviewed. What were the challenges? Patients are informed of the need for • Training staff to an adequate level to their review by a note on their meet the requirements of the clinic. prescriptions. They are then asked to • Organising appointments so that book in for appropriate tests (such as enough time is allowed for review. bloods and spirometry) with a health care assistant and the Better Health Clinic Key learning points appointment is made with them for one • Investment in nurse recruitment and to two weeks later. Making the high quality training is essential, and it appointment with the patient has been is important to ensure that staff helpful in improving attendance rates complete enough regular consultations which have been good. to keep up their skills. • Allow enough time for the review by Housebound patients are seen by GPs, making sure the blood tests and practice nurses and community matrons spirometry are planned and executed as appropriate. in advance. 11
  • 12. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities? Case study 6: Phoenix Medical Practice, Bradford Phoenix Medical Practice in Bradford, What have they achieved? West Yorkshire, has a patient base of A health economic evaluation of 19 3,600 patients and has been patients using the care planning approach championing the concept of care was published in the Health Service planning with patients with Journal in 20109 This showed in a multi-morbidity under the direction reduction in health service contacts from of Dr. Shahid Ali. This has centred on 529 to 246 in the 12 months pre and diabetes, but includes COPD and post care planning, a reduction in other long-term conditions. outpatient contacts and a reduction in overall health costs. What do they do? 40% of the practice patients had a long- What were the key learning points? term condition, of which 25% had two or The experience of being in control and more. These patients were invited to making independent decisions is highly attend appointments for a care planning motivating for patients. The care planning consultation. Using an integrated long approach has been further piloted by term condition template the patients, in other practices in West Yorkshire. Patient their own words, record the issues that empowerment is being further enhanced are important to them and how these by electronic sharing of data including impact on self-caring and setting self- goal setting via the internet or via smart directed goals (e.g. giving up smoking). phones. Capturing this information ensures the goals are relevant to the patient and means the patient can relate back to them regularly. A follow up appointment is made to assess progress against these goals. What were the challenges? There is a need for practice meetings to change the culture of chronic disease management towards patient –centred and supported self-management. There is also a need for training on the multi-disease templates. 12
  • 13. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities? Key themes Findings from the survey suggest that 1. MOTIVATION TO ORGANISE At one practice, a telehealth system whilst practices have started to MULTLI-MORBID REVIEWS using joint management plans issued implement systems which co-ordinate Some practices identified optimizing by the local Community Partnership the organisation of care of people performance under the Quality and Trust enabled patients to self-manage with COPD and its co-morbidities Outcomes Framework (QOF) as the their symptoms over a trial period of these systems are in their infancy and main purpose for developing a three months. there has been little evidence of system for managing patients with formal evaluation. This conclusion multiple problems, due to the A key to successful organisation was must be tempered by the fact that opportunity to complete all reviews prior planning by multidisciplinary there was a relatively low response and templates at one consultation. members of the practice team rate to the request to complete the survey. Some practices utilised Practice – 3. TELEHEALTH & TECHONOLOGY Based Commissioning (PBC) or other Few practices provided information There may be several reasons for this: sources of funding to develop ideas on using telehealth or technology to • Practices have not organised for new systems, and others were support management of co-morbidity multi-morbid care around COPD. motivated by the need to increase in COPD or in multi-morbidity There is anecdotal evidence that patient satisfaction with the way their generally. Furlong Medical Practice in practice systems have been built up conditions are managed. Stoke on Trent, described how with ischaemic heart disease or telehealth can enhance patient diabetes as the reference disease. 2. ORGANISATION engagement in managing their COPD • General practices are under a lot of Nine of the thirteen practices who (see box on page 14 for details). workload pressure at present, as provided additional information used Nurses and patients have loved the evidenced by surveys from the the concept of a nurse-led ‘one stop system and it is being adopted more British Medical Association and so clinic’ reviewing multiple conditions widely and extended to other response rates to surveys may not in one consultation. Consultations conditions. be optimum, especially when sent tended to be structured around in a period around Christmas. COPD and ischaemic heart disease/ Successful implementation requires heart failure rather than other engagement of the whole practice In spite of these limitations several co-morbidities. Most of the nurse-led team in the initiative through themes emerged from those who clinics involved a thirty minute communication, incentives and responded to the survey: appointment with measurements training, and ensuring that there is a such as spirometry and bloods clear and consistent approach to organised in advance. One practice identifying and recruiting appropriate used only fifteen minute patients to the service. appointments but found this challenging, especially as QoF data needed to be collected for all conditions using existing templates. 13
  • 14. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities? 4. PATIENT IDENTIFICATION Telehealth in COPD management AND RECRUITMENT Furlong Medical Practice, Stoke on Trent, adopted a Clinical Most practices identified patients Commissioning Group (CCG) funded Florence mobile phone texting from their disease registers, with one service in January 2012 to enhance patient engagement in their COPD using the patient’s birthday month management. They identified patients on the COPD register whose as the month of their review. All clinical management could be improved and who could be given more practices used written letters to autonomy. Specific patient selection criteria were used, including invite patients to their review, with evidenceof one or more of the following: one phoning patients a week before their appointment to remind them. • excessive use of inhalers Some practices also used text • breathlessness on exertion messaging for patients who had • productive sputum mobile phones. • one or more exacerbations of COPD in last 12 months • attended practice frequently in previous year for respiratory reasons, The wording of the letter or message having been prescribed two or more courses of antibiotics was identified as an important • been admitted to hospital with exacerbation of COPD in previous year factor, as it influenced patient • attended Accident & Emergency, walk in centre, out of hours service anxiety and attendance rate. One with exacerbation of COPD/chest infection – in previous 12 months. practice described inviting patients who were not engaging up to three A joint management plan is agreed between patients and the practice times by letter, but if they did not nurse which is supported by a written leaflet. Patients take home a wish to receive help they were not pulse oximeter, thermometer, weighing scales and their rescue forced to take part but exempted for medication. They then receive daily texts asking about sputum colour that year. and oxygen saturations. Depending on sputum colour, they are asked if they feel unwell, and if so, are asked to take their temperature. If their 5. STAFF temperature is >37.5C, they take rescue medication according to their The majority of the practices ran agreed joint management plan. clinics led by practice nurses. Some practices had nurse prescribers to Clinicians monitor patients’ readings twice a week. There is a monthly modify medications but in other text enquiry about patient experience and the programme is run over cases medications were reviewed three months. There is an evaluation form at the end of the programme by GPs after discussion with the and good patient self-care literature is given to patients to supplement practice nurses. their learning from the programme. Two practices also used junior The practice believes telehealth enhances the care they deliver and nurses and health care assistants offers patients an enormous advantage in understanding their for spirometry, blood tests and condition, thus making them more likely to comply with any agreed diabetic foot checks. joint management plan. “Realise the potential of telehealth for enhancing quality of delivery of patient care and trial it in your team.” Professor Ruth Chambers, Furlong Medical Practice 14
  • 15. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities? Staff training was highlighted as an 6. HOUSEBOUND PATIENTS important issue. Most practices had There was a range of care models nurses with qualifications in chronic used to manage housebound diseases. In some practices, nurses patients or patients with complex had to be trained in chronic disease needs. At one end of the spectrum management or new nurses there was integrated team approach employed. The cost of this was with initial review by a community balanced against the savings in matron or GP, and subsequent nursing appointment time, due to support at home by the community multiple problems being addressed team At the other end of the in one appointment. spectrum, the GP carried out the reviews of housebound patients. In terms of community and secondary care involvement, one 7. EVALUATION practice mentioned good links with Although there was a paucity of secondary care and others formal evaluation, informal feedback mentioned liaison with pharmacists from practices found that resulting for medication review and district patient and staff satisfaction was nurses and community matrons for high, mainly due to time saved due the care of housebound patients. to multiple problems being addressed at one consultation. This However, some found that also led to more nursing community staff did not have appointments becoming available. enough time to see all the patients Some practices also reported identified or were not trained to increased adherence to medication manage multiple problems. and reduced Accident and Emergency Attendances. Generally patients were referred to community staff if needed but one practice held fortnightly meetings with the community matrons to discuss housebound patients, as part of the requirement for the CCG Locally Enhanced Service (LES). 15
  • 16. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities? Challenges Several practices highlighted training as one of the main challenges, saying high quality training was vital for success of the scheme to ensure staff were skilled in assessing and managing multi-morbidity. Careful organisation and time management were also essential, with enough time needing to be given to appointments and all measurements such as bloods being taken beforehand. Practical resources were another challenge. One practice needed to modify their invite letter to optimise patient attendance and found they lacked an appropriate template for entering all relevant data. Funding was the other main challenge that many practices cited. This was generally funding for training or extra clinical time, with evidence of evaluation and successful outcomes needed before further funding could be provided. 16
  • 17. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities? The way forward The move away from a disease- The NHS has organised chronic care centric model of care towards a around a long term conditions patient-centred multimorbid system model4, shown diagrammatically in raises several challenges for those figure 4 below. In recent years working to deliver structured care. integrated care models have concentrated on patients at level 2 The current Quality and Outcomes and level 3 who are high risk or with Framework is a major driver in ‘complex needs’. However, with the structuring chronic care in general increased realization that patients practice, but tends to be with multi morbidity are the norm disease-specific. As such, care needs rather than the exception, there is to be taken to ensure it does not also an increased need for integrated become a potential barrier to working at a practice level with delivering effective integrated care in level 1 patients. Examples of this are conjunction with community teams. the involvement of Community Financing of schemes may be more Pharmacists to minimize appropriately made by using levers polypharmacy and attached practice such as Commissioning for Quality social workers to help deal with and Innovation (CQUIN)13 payments psychosocial problems. across a locality to encourage a more integrated approach to care. Figure 4: NHS Long-Term Conditions Model5 There is a major need to develop multimorbid disease management templates which are geared to the individual patient and which take into LEVEL 3: account common psychosocial factors High complexity Case such as depression and the needs of management carers. Looking to the future there is also a need to look at new ways of developing patient pathways and LEVEL 2: High risk guidelines away from the current Disease/case management disease specific models to more generic approaches around patient problems e.g ‘disability or breathlessness’. LEVEL 1: 70-80% of LTC population Self care support/management 17
  • 18. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities? Conclusion Proactive chronic care of patients with COPD and its co-morbidities provides an exemplar for chronic care of patients with multimorbidity in general practice. Examples of such care are limited but the final section of this document uses the key learning points from this survey to give advice to general practices planning to offer structured chronic care for people with multimorbidities. Learning from those sites who responded to the survey suggests there is a need for multimorbid disease management templates and care pathways, and that integrated working with community teams, including pharmacists, can improve outcomes, with the potential to reduce overall consultation times, increase patient satisfaction, reduce polypharmacy and reduce hospital admissions. 18
  • 19. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities? Points to consider when organising structured reviews for patients with COPD and co-morbidities in primary care KEY POINTS QUESTIONS TO CONSIDER BE CLEAR WHY YOU • What are the benefits to the practice and to the patients, carers or family? e.g less consultation ARE REORGANISING time, fewer visits for the patient, achieving the objectives of a locally enhanced scheme. CARE • What are the likely financial consequences? • Consider canvassing CCG or local health group to provide finance/support for groups of practices under CQUIN/LES and to support work across boundaries. PRIOR PLANNING • Identify who is, could or should be involved in the organisation of care (e.g practice staff, community staff, pharmacist , social services, patients and carers) • Involve these stakeholders in the planning of care to increase understanding or what currently happens, what could happen and to encourage motivation for the service to succeed. IDENTIFICATION OF • Which co-morbidities will be included? Which are most common? PATIENTS • Are higher risk patients to be identified and how will this be done (e.g COPD patients with two or more exacerbations in the last year)? ORGANISATION • How will patients receive invitations and be reminded to attend appointments? • How will checks be organised? e.g number of appointments per patient, duration of appointments and which practice staff will be involved. • How much time is currently available and how is it used? How could it be used differently? Do you need any extra time? • What will happen in each appointment? • Do the staff have sufficient training in the co-morbid conditions to be reviewed? • How will the data be recorded? Are the disease templates sufficient for purpose? • Are practice management protocols sufficient for purpose? • Consider use of telehealth for higher risk patients. How could this enhance care? INTEGRATED CARE • How will care of patients be integrated with other members of the community team (and secondary care)? e.g pharmacist, social services, mental health services and specialist community teams. • How will the needs of patients deemed high risk and /or housebound be met by the community/practice team? • Will this satisfy the requirements of the QOF? EVALUATION How will you evaluate success? • Baseline and improvement - Where are you starting from? What do you need to measure as a baseline so that you can tell whether your changes are making a difference? What will you need to demonstrate to others to ensure support for the change? • Patient feedback – what do you want to know? How will you find out? What do patients think of the current service? What do they suggest might work better? How will you measure a change in their experience or satisfaction? • Consultation time – how much time is needed? How much time overall is needed, before and after? Who currently does what? • Costs and benefits – can you demonstrate reduced hospital admissions, reduced exacerbations, prescribing and adherence, QOF impact, use of urgent appointments or A&E, total cost of time and resources required, reduced duplication of tests or appointments? • Improved Quality of Life - using generic questionnaires such as Euroqol (EQ5-D)10 or disease specific questionnaires e.g COPD Assessment Test (CAT)11 • Increased patient enablement - using Patient Enablement Instrument.12 Find resources such as First steps towards quality improvement: A simple guide to improving services to help you plan, deliver and evaluate your project at www.improvement.nhs.uk 19 7
  • 20. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities? References 1. Barnett K, Mercer SV et al. Epidemiology of multimorbidity and implications for health care, research and medical education. The Lancet 360 9836: 38. 37-43. 2. Fortin M, Soubhi H, Hudon C, Bayliss EA and MvD Akker. Multimorbidity’s many challenges. British Medical Journal 2007; 334 (7602): 1016-1017. 3. Susan M Smith. Managing Patients with multimorbidity: systematic review of interventions in primary care and community settings. British Medical Journal 2012 292: 345 e5205 4. Kadam U. Redesigning the general practice consultation to improve care for patients with multimorbidity, British Medical Journal. 2012 Sep 17;345:e6202 5. National Clinical Guideline Centre. (2010) Chronic obstructive pulmonary disease: management of chronic obstructive pulmonary disease in adults in primary and secondary care. London: National Clinical Guideline Centre. http://guidance.nice.org.uk/CG101 6. Wagner EH, Chronic disease management: What will it take to improve care for chronic illness? Effective Clinical Practice. 1998;1(1) 2-4 7. Global Initiative for Chronic Obstructive Lung Disease (GOLD). Global Strategy for the Diagnosis, Management and Prevention of Chronic Pulmonary Disease(2011) www.goldcopd.org/guidelines-global-strategy-for-diagnosis-management.html 8. Diagnosis and Management of COPD in Primary Care. Primary Care Respiratory Society, UK www.pcrs-uk.org 9. Shahid Ali . When a care plan comes together .Health Service Journal 9.12.2010 p20 10. Euroqol(EQ-5D) questionnaire www.euroqol.org 11. COPD Assessment Test. www.catestonline.org 12. Howie, J. G., Heaney, D. J., Maxwell, M, & Walker, J. J. (1998). A comparison of a Patient Enablement Instrument (PEI) against two established satisfaction scales as an outcome measure of primary care consultations. Family Practice, 15(2), 165-171. 13. Commissioning for Quality and Innovation (CQUIN) payments. www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_091443 14. An Outcomes Strategy for COPD and asthma in England. 2011 www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/documents/digitalasset/dh_128428.pdf 20
  • 21. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities? Acknowledgements Thanks to: The Project Committee of: Catherine Blackaby NHS Improvement Phil Duncan NHS Improvement Rigoberto Pizarro-Duhart CIRC RCGP Christine Loveridge COPD/Spirometry Clinical Lead, Education for Health, Warwick Dermot Ryan GP Principal Loughborough Matt Kearney Department of Health Respiratory Team Sara Askew Primary Care Respiratory Society UK. The many practices who replied to the survey request, in particular Dr Joanne Reeve (Vauxhall Primary Health Care), Sharon Lamden (Leckhampton Surgery), Sarah Everett (Yellow Practice), Dr Dermot Ryan (Woodbrook Surgery), Liz Bryant and Deborah Dews (Birtley Medical Group), Professor Ruth Chambers (Furlong Medical Practice) and Dr Shahid Ali (Phoenix Medical Practice) for their contribution to the case studies. Chris Gush and Fiona Fordham from CIRC for administrative support. To Novartis Pharmaceuticals for providing financial support via an unrestricted educational grant. 21
  • 22. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities? 22
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  • 24. NHS NHS Improvement CANCER DIAGNOSTICS HEART NHS Improvement NHS Improvement’s strength and expertise lies in practical service improvement. It has over a decade of experience in clinical patient pathway redesign in cancer, diagnostics, heart, lung and stroke and demonstrates some of the most leading edge improvement work in England which supports improved patient experience and outcomes. LUNG Working closely with the Department of Health, trusts, clinical networks, other health sector partners, professional bodies and charities, over the past year it has tested, implemented, sustained and spread quantifiable improvements with over 250 sites across the country as STROKE well as providing an improvement tool to over 2,400 GP practices. NHS Improvement 3rd Floor | St John’s House | East Street | Leicester | LE1 6NB Telephone: 0116 222 5184 | Fax: 0116 222 5101 www.improvement.nhs.uk Delivering tomorrow’s improvement agenda for the NHS Publication Ref: NHSIMP/Lung0006 - March 2013 ©NHS Improvement 2013 | All Rights Reserved