Circulatory Shock, types and stages, compensatory mechanisms
Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities
1. Royal College of NHS
General Practitioners
NHS Improvement
Lung
CANCER
DIAGNOSTICS
HEART
LUNG
STROKE
NHS Improvement - Lung
Managing multi-morbidity in practice…
what lessons can be learnt from the care of
people with COPD and co-morbidities?
2. Endorsed by:
Royal College of
General Practitioners
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3. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?
Contents
Managing multi-morbidity in practice… what
lessons can be learnt from the care of people with
COPD and co-morbidities?
Introduction 4
Findings from sites 6
• Survey method 6
• Case study 1: Vauxhall Practice, Liverpool 7
• Case study 2: Yellow Practice, Govan Health Centre, Glasgow 8
• Case study 3: Leckhampton Surgery, Cheltenham 9
• Case study 4: Woodbrook Medical Centre, Loughborough 10
• Case study 5: Birtley Medical Group, Gateshead 11
• Case study 6: Phoenix Medical Practice, Bradford 12
Key themes 13
Challenges 16
The way forward 17
Conclusion 18
Points to consider – developing structured reviews in practice 19
References 20
Acknowledgements 21
3
4. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?
Introduction
The case for managing
multi-morbidity Table 1: Co-morbidity of 10 common primary care conditions in
314 Scottish general practices1
With an increasingly ageing
population comes the challenge of
how to deal with people with
multi-morbidity (i.e the presence of
two or more long term conditions in
one person). Although the
prevalence of multimorbid conditions
rises with age, a study of 314 Scottish
general practices showed absolute
numbers to be higher in the under 65
age group.1 Furthermore, a Canadian
study suggested that multimorbidity
is the norm rather than the exception
with 69% patients aged 18-44
having multimorbidity and 93%
patients aged 45-64.2
People with multimorbidity are more
likely to die at an earlier age, more
likely to be admitted to hospital, have
a poorer quality of life and are more There is therefore an increasing need COPD and co-morbidity
likely to be prescribed multiple drugs to organise care around the patient as an exemplar
with consequent poor adherence.3 and not the disease, taking into Chronic obstructive pulmonary
This suggests that there is scope to account his or her multiple physical disease (COPD) is a long-term
improve management and outcomes and psychosocial conditions. 4 condition with a high prevalence (an
for these patients. Traditionally, estimated three million people in
disease management guidelines and A systematic review of interventions England)5 and with a high number of
patient pathways have been devised for people in primary care and co-morbidities. Table 1 shows the
around single disease entities. This community settings which targeted prevalence of co-morbidities of
has been encouraged by the demise multi-morbidity indicated that there significant long-term conditions in
of the generalist in secondary care was limited research evidence the Scottish general practice
and the development of super- available.3 However, the review multi-morbidity study, and shows that
specialties. However, this disease- indicated that interventions targeted people with COPD over the age of 65
centred approach tends to either at specific combinations of had a mean of 4.5 co-morbid
underestimate the effect of common conditions, or specific conditions shown in the table.1 As
psychosocial factors influencing the problems for patients with multiple such, the organisation of care for
patient’s health and encourages the conditions, may be more effective. people with COPD and its
development of multiple treatment co-morbidities has the potential to be
regimes with increased potential for an exemplar for the organisation of
adverse drug interaction and poor care for people with multi-morbidities
adherence. in general.
4
5. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?
The Wagner chronic care model of
structured care6 has identified four Figure 1: Patient centred management of stable COPD in primary care8
key elements which are likely to have
ALL PATIENTS
a major impact on the quality and SMOKING CESSATION ADVICE EXERCISE PROMOTION
effectiveness of care. These PATIENT EDUCATION/SELF MANAGEMENT PNEUMOCOCCAL VACCINATION
ASSESS AND TREAT COMORBIDITY ANNUAL INFLUENZA VACCINATION
elements are: ASSESS BMI: DIETRY ADVICE >25 SPECIALIST DIETRY REFERRAL IF BMI <20
• the promotion of self-management, SYMPTOMS? FUNCTIONAL EXACERBATIONS? HYPOXIA? HOLISTIC CARE
LIMITATION?
• a comprehensive system to support
Breathlessness MRC score > 3 Oral steroids/
clinical management, antibiotics/hospital
Short acting Optimise
• evidence-based support for bronchodilators (beta pharmacotherapy
admissions
agonist/anticholinergic) (see algorithm)
decision making, and for relief of symptoms.
Offer pulmonary
Optimise pharmacologic
therapy
Oxygen saturation
< 92% at rest in air)
Check social support (e.g.
carers and benefits)
• the use of clinical guidelines. PERSISTENT SYMPTOMS
See pharmacotherapy
rehabilitation
Discuss action plans FEV-1 < 30% (Treat co-morbidities).
Algorithm Screen for including use of standby Predicted
anxiety/depression oral steroids and Consider palliative therapy
antibiotics Refer for oxygen or secondary care referral
The 2010 NICE COPD Guidelines5 PRODUCTIVE COUGH
Consider mucolytics assessments for resistant symptoms
and international GOLD COPD Refer to specialist
Guidelines7 have increasingly palliative care teams for
end-of-life
care.
recognised the need to assess co-
morbidities when carrying out routine
Source: Primary Care Respiratory Society UK, 2010
assessment of the patient with COPD.
The Primary Care Respiratory Society-
UK (PCRS-UK) have adapted the NICE
COPD Guidelines for primary care
and advocate a patient-centred This includes learning about planning
approach to COPD assessment and ahead, organisational issues,
management8 including the identifying the right patients and
assessment of co-morbidities. Figure evaluating the impact of change.
1 shows an algorithm summarising As such, it will be of help to all those
this patient-centered assessment. interested in improving the way care
However the guidelines fall short of is organised in their own area for
how to organise care for these patients with multi-morbidity.
patients.
This document summarises the Kevin Gruffydd-Jones
learning from a project to find out GP Box Wiltshire , Respiratory Lead
how general practices in the United RCGP
Kingdom have risen to the challenge
of organizing chronic care of patients Shoba Poduval
with multimorbidity in practice, using GP Islington, London and Clinical
the exemplar of COPD and its Support Fellow RCGP
co-morbidities. It provides practical
examples of approaches that have Correspondence to
been tried, key learning points about Dr. Kevin Gruffydd-Jones
what works and why, and Email: Kevin.Gruffydd-Jones@gp-
suggestions for the way forward. J83013.nhs.uk
5
6. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?
Findings from sites
Survey method
A simple seven item questionnaire
was developed by the
multidisciplinary project committee
which included questions about
practice demographics, how and why
systems for managing COPD patients
with co-morbidities were developed,
the impact and any lessons learnt.
The questionnaire was uploaded to
Survey Monkey and publicised
amongst the networks of the Royal
College of General Practitioners,
NHS Improvement, the Primary Care
Respiratory Society UK and
Education for Health. The survey was
open from the 29 November 2012
to 8 February 2013.
Over thirty sites responded to the
call for examples of effective
management of multi-morbidity
in COPD patients. Many of the
respondents described systems for
managing COPD without
co-morbidities and other practices
did not wish to be contacted further.
Six case studies were chosen by the
authors which were thought to
represent the various approaches that
practices used to tackle the problem
of chronic disease management of
people with COPD and its
co-morbidities.
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7. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?
Case study 1:
Vauxhall Primary Health Care, Liverpool
Vauxhall Primary Health Care (VPHC)
is an urban practice in Liverpool with
a list size of 6,000 patients and a
team including GPs, practice nurses
and a health care assistant.
A quality improvement project has been
‘‘
The consultation was an expert generalist needs
assessment, based on the principle of a person-centred
assessment of what was wrong and what intervention
was needed. In practice, much of the decision
making related to demedicalisation... reducing the
running here for three to four years since
’’
the practice obtained funding from burden of care.
neighbourhood cluster efficiency savings
for 1.5 days/week of GP time to address
the question: What are the challenges? Key learning points
With the next stages of this work being • Identify your key ‘at-risk’ group that is
planned, the following challenges have most likely to benefit.
“How can we improve the been identified: • Bear in mind the importance of holistic
care of housebound • Who are the next most important target care - 63% of patients were found
groups? Care home residents? New to have needs not met by existing
patients with complex patients with multimorbidity? Patients chronic disease management or
needs registered at with acute complex needs? medication review processes and
• Limits to funding due to competing identifying these needs was difficult
VPHC?” priorities. from routine collected data alone.
• With limited time available, the team Assessment by an experienced GP, with
What do they do? will need to be clear about how best to an ‘off-protocol’ patient-centered
First of all the practice established a use community matrons and GPs, for approach was found to be more useful.
register identifying patients at need, example focusing GP effort on the less • Make use of your community teams.
targeting first those who were straightforward cases such as those • Work through how much clinical time
housebound with more than one Quality where diagnostic issues are dominant. is required and how you will find or
& Outcomes Framework (QoF)-registered fund it.
disease, multiple medications and
unplanned admissions in the last year.
We are starting to make greater use of community
Patients were contacted by letter. All visits matrons and also community pharmacy. Reserving GPs
were carried out by GPs who completed
an assessment, involving a review of the
for the less straightforward cases...what we are still
notes - including tidying up problem lists; struggling with is how to predict who those are. But often
medication review; care assessment it is where the DIAGNOSTIC issues are dominant.
(where possible involving carers
themselves); assessment of level of need Dr Joanne Reeve, Vauxhall Primary Health Care
(low, medium or high) and a documented
plan of care.
Table 2: Feedback Summary
What did they achieve?
Recorded data was audited and Patients/carers For some, surprise/suspicion/concern that doctor has visited
experiences of staff, patients and carers for review, unsolicited by patient.
reviewed. Results from initial data
From family/carers, support for opportunity for time for full
available indicated a lack of impact on
assessment/discussion especially re medication.
admissions but a reduction in prescribing.
Data showed that inappropriate
Staff at care Positive impact of proactive review of patients, including
medication was stopped in 54 patients
homes tidying up/rationalising medication.
out of 101 patients, due to a long-term
view being taken about safety.
Staff at VPHC Useful impact of reviewing the patient’s list of problems,
Informal feedback was generally positive,
medication reviews etc; protected time for visits for complex
especially from staff and carers (see
patients valuable.
table 2
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8. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?
Case study 2:
Yellow Practice, Govan Health Centre, Glasgow
Yellow Practice is an inner city What has been achieved?
practice based in a health centre with Patients have provided positive feedback
three other Practices in Glasgow. It and comments on how much better the
has a list size of 4,000 patients, four service is now. Fewer appointments are
GPs and two practice nurses. taken up as most of the conditions
covered involve similar measurements and
What do they do? lifestyle issues. Receptionists also find it
For three years the practice nurse has easier to book one appointment for the
organised an ‘Annual Health Review annual review.
Clinic’ for patients with multiple chronic
diseases. Patients get a half hour The team has also found this system is
appointment with the practice nurse, better in relation to the practice’s QOF
during which conditions including targets and Locally Enhanced Service (LES)
diabetes, heart disease, kidney disease, requirements, as everything is tackled at
hypertension, heart failure, asthma, once and it is easier to monitor targets
chronic obstructive pulmonary disease and results.
(COPD) and stroke can be reviewed. If
more time is needed a further What were the challenges?
appointment is booked, and if necessary • The lack of recall coding on the EMIS
a six monthly review can be arranged. electronic records system.
• Evaluating cost benefits.
Patients are invited by letter (or text
message if they have a mobile phone) What were the key learning points?
and administrative staff are aware they • Create a code in EMIS for chronic
need to make thirty minute appointments disease management review - it is time
for these reviews. consuming to code everyone with that
code but once done it is very useful.
A second practice nurse is employed to • When to time the recall - the team at
carry out annual health checks for the Yellow Practice tried making the
housebound, and residents of care patient’s annual review in the month of
homes. These patients are seen annually, their birthday but for those who didn't
six monthly or more often if required. respond straight away and were late it
No other community teams are involved didn't work. So reviews are now
apart from the podiatry services that visit booked according to when the patient
the housebound diabetic patients at was last seen. This took time and effort
home and review diabetic patients who to organise but now works very well.
have been identified as having high or
moderate diabetic foot disease.
Why did they do it?
The practice nurse instigated this way of
managing patients with multiple chronic
disease because patients reported that
they were tired of being invited for
different reviews at different clinics
several times a year.
8
9. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?
Case study 3:
Leckhampton Surgery, Cheltenham
Leckampton Surgery is an urban What did they achieve?
Practice of 12,000 patients, nine Attendance is very good, and patient
doctors, five Practice Nurses and satisfaction has increased due to only
three HCA’s. having to attend surgery once a year for
review. In addition, more appointments
What do they do? are available for the nursing team.
The Leckhampton Surgery runs a ‘one-
‘‘
stop’ clinic for review of patients with
multiple chronic diseases. Each condition
is given 20 minutes plus extra time if
needed. Patients are seen by a registered
nurse who has skills and qualifications in My advice is plan the clinic carefully. Work hard on the
chronic disease management, COPD, wording of the invite letter, keep it simple. Phone
Asthma, Heart disease and diabetes. She
is assisted by a health care assistant who patients to remind them of the appointment - it's a big
’’
completes all the clinical measurements chunk of time if they do not attend.
beforehand such as spirometry, bloods
and diabetic foot checks, having Sharon Lamden, Lead Practice Nurse,
completed National Vocational Leckhampton Surgery
Qualification (NVQ) training. The nurse is
a prescriber but GPs are involved where
necessary. Staff training has been funded
by the practice and the pharmaceutical
industry.
Patients are invited by letter and phoned
or text messaged the week before to
remind them of their appointment.
Housebound patients are visited by a
practice nurse at request from a GP, or by
the GPs themselves. Community staff are
asked to contribute to the review of
housebound patients but it is found that
they have very little time to spend on
these reviews and are not trained in
chronic disease management of multiple
conditions.
9
10. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?
Case study 4:
Woodbrook Medical Centre, Loughborough
Woodbrook Medical Centre is an
urban 9,000 patient practice in
Loughborough. There are six doctors,
three nurses, a health care assistant
and phlebotomist.
What do they do?
‘‘
The multiplicity of long term conditions borne by many
of our patients demonstrates the difficulties involved in
obtaining optimal outcomes for these conditions both
individually and collectively; focusing on what the
patient wishes to achieve will be more useful in
Woodbrook planned to set up a one stop
long term conditions clinic. They applying therapies rather than relying on single
identified patients from the electronic condition guidelines many of which will have
records system with long term conditions
such as chronic obstructive pulmonary
conflicting objectives and recommendations. The
disease, hypertension and diabetes and future lies in navigating these guidelines guided by
recorded the number of co-morbidities
the patient had. Figure 2 compares the
the patient’s wishes and moving away from strictly
’’
number of selected co-morbidities seen targeted control.
with each condition.
Dr Dermot Ryan, Woodbrook Surgery
Disease severity was also stratified
according to markers such as Forced
Expiratory Volume and Medical Research Figure 2 : Number of Co-morbidities with reference condition
Council (MRC) Score for breathlessness. (on y axis) in Woodbrook Surgery, Loughborough.
Patients with two or more co-morbidities CKD
would be taken through the process Epilepsy
summarized in the flowchart shown in Heart Failure
Figure 3. Stroke
COPD
Hypothyroidism
What were the challenges? CHD
The practice organized a three hour team Diabetes
meeting with all lead clinicians where a Asthma
Hypertension
detailed notes review of six patients was
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100
undertaken. Although some savings were
Hyper Asthma Diabetes CHD Hyperth COPD Stroke Heart Epilepsy CKD
projected in terms of prescribing tension yroidism Failure
With main condition and 5 others 2 0 2 1 1 1 2 2 0 1
rationalization and reduction in With main condition and 4 others 23 7 14 11 9 12 10 7 2 20
appointments requested, they were With main condition and 3 others 62 28 43 45 19 23 17 21 1 57
With main condition and 2 others 176 60 115 76 32 37 37 28 4 95
unable to progress further due to a lack With main condition and 1 other 369 111 194 91 66 67 59 18 16 87
521 504 147 73 109 58 32 4 35 2
of funding for the extra clinical time that No. of patients - just 1 condition
was needed.
What were the key learning points? Figure 3 : Flow chart of organisation of care for patients
• Resources need to be identified to fund with two or more co-morbidities in Woodbrook Surgery
extra clinical time to get the project
under way. Patient 2+ Identify blood Go to patient Send out invitation Perform bloods Notes for review
tests as required summary to letter for blood and collect questionnaires by clinical pharmacist
• A project manager is needed to create a co-morbidities
for disease ensure all tests and
monitoring or co-morbidities questionnaire Perform questionnaires Collection of bloods
timetable and to keep the process QOF have tests with appointment if not completed and questionnaires
required
moving forward. Inform will be invited
for review in three weeks
Annual review Patient phoned 24 Review appointment GP nurse specialist
Follow up as needed
with actions hours prior made note review
Reauthorise
Forward diary for next review
prescriptions
10
11. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?
Case study 5:
Birtley Medical Group, Gateshead
Birtley Medical Centre is an 80% What did they achieve?
urban and 20% semi-rural practice Patients report greater satisfaction with
with a list size of approximately the new approach.
14,500 in Gateshead, County Durham.
‘‘
For 8-10 years the nursing team have
been running a Better Health Clinic
for review of patients with chronic
diseases and co morbidities. People have expressed their appreciation of the
What do they do? 'one stop shop' approach, particularly because there
’’
Patients are seen in a Better Health Clinic is a significant amount of interconnectedness.
appointment of thirty minutes with a
senior practice nurse or nurse practitioner Liz Bryant, Nurse Practitioner, Birtley Medical Group
(depending on their co-morbidities). All
the nurses who are involved have at least
diploma training in the illnesses reviewed.
What were the challenges?
Patients are informed of the need for • Training staff to an adequate level to
their review by a note on their meet the requirements of the clinic.
prescriptions. They are then asked to • Organising appointments so that
book in for appropriate tests (such as enough time is allowed for review.
bloods and spirometry) with a health care
assistant and the Better Health Clinic Key learning points
appointment is made with them for one • Investment in nurse recruitment and
to two weeks later. Making the high quality training is essential, and it
appointment with the patient has been is important to ensure that staff
helpful in improving attendance rates complete enough regular consultations
which have been good. to keep up their skills.
• Allow enough time for the review by
Housebound patients are seen by GPs, making sure the blood tests and
practice nurses and community matrons spirometry are planned and executed
as appropriate. in advance.
11
12. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?
Case study 6:
Phoenix Medical Practice, Bradford
Phoenix Medical Practice in Bradford, What have they achieved?
West Yorkshire, has a patient base of A health economic evaluation of 19
3,600 patients and has been patients using the care planning approach
championing the concept of care was published in the Health Service
planning with patients with Journal in 20109 This showed in a
multi-morbidity under the direction reduction in health service contacts from
of Dr. Shahid Ali. This has centred on 529 to 246 in the 12 months pre and
diabetes, but includes COPD and post care planning, a reduction in
other long-term conditions. outpatient contacts and a reduction in
overall health costs.
What do they do?
40% of the practice patients had a long- What were the key learning points?
term condition, of which 25% had two or The experience of being in control and
more. These patients were invited to making independent decisions is highly
attend appointments for a care planning motivating for patients. The care planning
consultation. Using an integrated long approach has been further piloted by
term condition template the patients, in other practices in West Yorkshire. Patient
their own words, record the issues that empowerment is being further enhanced
are important to them and how these by electronic sharing of data including
impact on self-caring and setting self- goal setting via the internet or via smart
directed goals (e.g. giving up smoking). phones.
Capturing this information ensures the
goals are relevant to the patient and
means the patient can relate back to
them regularly. A follow up appointment
is made to assess progress against these
goals.
What were the challenges?
There is a need for practice meetings to
change the culture of chronic disease
management towards patient –centred
and supported self-management.
There is also a need for training on the
multi-disease templates.
12
13. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?
Key themes
Findings from the survey suggest that 1. MOTIVATION TO ORGANISE At one practice, a telehealth system
whilst practices have started to MULTLI-MORBID REVIEWS using joint management plans issued
implement systems which co-ordinate Some practices identified optimizing by the local Community Partnership
the organisation of care of people performance under the Quality and Trust enabled patients to self-manage
with COPD and its co-morbidities Outcomes Framework (QOF) as the their symptoms over a trial period of
these systems are in their infancy and main purpose for developing a three months.
there has been little evidence of system for managing patients with
formal evaluation. This conclusion multiple problems, due to the A key to successful organisation was
must be tempered by the fact that opportunity to complete all reviews prior planning by multidisciplinary
there was a relatively low response and templates at one consultation. members of the practice team
rate to the request to complete the
survey. Some practices utilised Practice – 3. TELEHEALTH & TECHONOLOGY
Based Commissioning (PBC) or other Few practices provided information
There may be several reasons for this: sources of funding to develop ideas on using telehealth or technology to
• Practices have not organised for new systems, and others were support management of co-morbidity
multi-morbid care around COPD. motivated by the need to increase in COPD or in multi-morbidity
There is anecdotal evidence that patient satisfaction with the way their generally. Furlong Medical Practice in
practice systems have been built up conditions are managed. Stoke on Trent, described how
with ischaemic heart disease or telehealth can enhance patient
diabetes as the reference disease. 2. ORGANISATION engagement in managing their COPD
• General practices are under a lot of Nine of the thirteen practices who (see box on page 14 for details).
workload pressure at present, as provided additional information used Nurses and patients have loved the
evidenced by surveys from the the concept of a nurse-led ‘one stop system and it is being adopted more
British Medical Association and so clinic’ reviewing multiple conditions widely and extended to other
response rates to surveys may not in one consultation. Consultations conditions.
be optimum, especially when sent tended to be structured around
in a period around Christmas. COPD and ischaemic heart disease/ Successful implementation requires
heart failure rather than other engagement of the whole practice
In spite of these limitations several co-morbidities. Most of the nurse-led team in the initiative through
themes emerged from those who clinics involved a thirty minute communication, incentives and
responded to the survey: appointment with measurements training, and ensuring that there is a
such as spirometry and bloods clear and consistent approach to
organised in advance. One practice identifying and recruiting appropriate
used only fifteen minute patients to the service.
appointments but found this
challenging, especially as QoF data
needed to be collected for all
conditions using existing templates.
13
14. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?
4. PATIENT IDENTIFICATION
Telehealth in COPD management AND RECRUITMENT
Furlong Medical Practice, Stoke on Trent, adopted a Clinical Most practices identified patients
Commissioning Group (CCG) funded Florence mobile phone texting from their disease registers, with one
service in January 2012 to enhance patient engagement in their COPD using the patient’s birthday month
management. They identified patients on the COPD register whose as the month of their review. All
clinical management could be improved and who could be given more practices used written letters to
autonomy. Specific patient selection criteria were used, including invite patients to their review, with
evidenceof one or more of the following: one phoning patients a week before
their appointment to remind them.
• excessive use of inhalers Some practices also used text
• breathlessness on exertion messaging for patients who had
• productive sputum mobile phones.
• one or more exacerbations of COPD in last 12 months
• attended practice frequently in previous year for respiratory reasons, The wording of the letter or message
having been prescribed two or more courses of antibiotics was identified as an important
• been admitted to hospital with exacerbation of COPD in previous year factor, as it influenced patient
• attended Accident & Emergency, walk in centre, out of hours service anxiety and attendance rate. One
with exacerbation of COPD/chest infection – in previous 12 months. practice described inviting patients
who were not engaging up to three
A joint management plan is agreed between patients and the practice times by letter, but if they did not
nurse which is supported by a written leaflet. Patients take home a wish to receive help they were not
pulse oximeter, thermometer, weighing scales and their rescue forced to take part but exempted for
medication. They then receive daily texts asking about sputum colour that year.
and oxygen saturations. Depending on sputum colour, they are asked if
they feel unwell, and if so, are asked to take their temperature. If their 5. STAFF
temperature is >37.5C, they take rescue medication according to their The majority of the practices ran
agreed joint management plan. clinics led by practice nurses. Some
practices had nurse prescribers to
Clinicians monitor patients’ readings twice a week. There is a monthly modify medications but in other
text enquiry about patient experience and the programme is run over cases medications were reviewed
three months. There is an evaluation form at the end of the programme by GPs after discussion with the
and good patient self-care literature is given to patients to supplement practice nurses.
their learning from the programme.
Two practices also used junior
The practice believes telehealth enhances the care they deliver and nurses and health care assistants
offers patients an enormous advantage in understanding their for spirometry, blood tests and
condition, thus making them more likely to comply with any agreed diabetic foot checks.
joint management plan.
“Realise the potential of telehealth for enhancing
quality of delivery of patient care and trial it in
your team.”
Professor Ruth Chambers, Furlong Medical Practice
14
15. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?
Staff training was highlighted as an 6. HOUSEBOUND PATIENTS
important issue. Most practices had There was a range of care models
nurses with qualifications in chronic used to manage housebound
diseases. In some practices, nurses patients or patients with complex
had to be trained in chronic disease needs. At one end of the spectrum
management or new nurses there was integrated team approach
employed. The cost of this was with initial review by a community
balanced against the savings in matron or GP, and subsequent
nursing appointment time, due to support at home by the community
multiple problems being addressed team At the other end of the
in one appointment. spectrum, the GP carried out the
reviews of housebound patients.
In terms of community and
secondary care involvement, one 7. EVALUATION
practice mentioned good links with Although there was a paucity of
secondary care and others formal evaluation, informal feedback
mentioned liaison with pharmacists from practices found that resulting
for medication review and district patient and staff satisfaction was
nurses and community matrons for high, mainly due to time saved due
the care of housebound patients. to multiple problems being
addressed at one consultation. This
However, some found that also led to more nursing
community staff did not have appointments becoming available.
enough time to see all the patients Some practices also reported
identified or were not trained to increased adherence to medication
manage multiple problems. and reduced Accident and
Emergency Attendances.
Generally patients were referred to
community staff if needed but one
practice held fortnightly meetings
with the community matrons to
discuss housebound patients, as part
of the requirement for the CCG
Locally Enhanced Service (LES).
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16. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?
Challenges
Several practices highlighted training
as one of the main challenges, saying
high quality training was vital for
success of the scheme to ensure staff
were skilled in assessing and
managing multi-morbidity.
Careful organisation and time
management were also essential,
with enough time needing to be
given to appointments and all
measurements such as bloods being
taken beforehand.
Practical resources were another
challenge. One practice needed to
modify their invite letter to optimise
patient attendance and found they
lacked an appropriate template for
entering all relevant data.
Funding was the other main
challenge that many practices cited.
This was generally funding for
training or extra clinical time, with
evidence of evaluation and successful
outcomes needed before further
funding could be provided.
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17. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?
The way forward
The move away from a disease- The NHS has organised chronic care
centric model of care towards a around a long term conditions
patient-centred multimorbid system model4, shown diagrammatically in
raises several challenges for those figure 4 below. In recent years
working to deliver structured care. integrated care models have
concentrated on patients at level 2
The current Quality and Outcomes and level 3 who are high risk or with
Framework is a major driver in ‘complex needs’. However, with the
structuring chronic care in general increased realization that patients
practice, but tends to be with multi morbidity are the norm
disease-specific. As such, care needs rather than the exception, there is
to be taken to ensure it does not also an increased need for integrated
become a potential barrier to working at a practice level with
delivering effective integrated care in level 1 patients. Examples of this are
conjunction with community teams. the involvement of Community
Financing of schemes may be more Pharmacists to minimize
appropriately made by using levers polypharmacy and attached practice
such as Commissioning for Quality social workers to help deal with
and Innovation (CQUIN)13 payments psychosocial problems.
across a locality to encourage a more
integrated approach to care.
Figure 4: NHS Long-Term Conditions Model5
There is a major need to develop
multimorbid disease management
templates which are geared to the
individual patient and which take into LEVEL 3:
account common psychosocial factors High complexity
Case
such as depression and the needs of management
carers. Looking to the future there is
also a need to look at new ways of
developing patient pathways and LEVEL 2:
High risk
guidelines away from the current Disease/case management
disease specific models to more
generic approaches around patient
problems e.g ‘disability or
breathlessness’. LEVEL 1:
70-80% of LTC population
Self care support/management
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18. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?
Conclusion
Proactive chronic care of patients
with COPD and its co-morbidities
provides an exemplar for chronic care
of patients with multimorbidity in
general practice. Examples of such
care are limited but the final section
of this document uses the key
learning points from this survey to
give advice to general practices
planning to offer structured chronic
care for people with multimorbidities.
Learning from those sites who
responded to the survey suggests
there is a need for multimorbid
disease management templates and
care pathways, and that integrated
working with community teams,
including pharmacists, can improve
outcomes, with the potential to
reduce overall consultation times,
increase patient satisfaction, reduce
polypharmacy and reduce hospital
admissions.
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19. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?
Points to consider when organising structured
reviews for patients with COPD and
co-morbidities in primary care
KEY POINTS QUESTIONS TO CONSIDER
BE CLEAR WHY YOU • What are the benefits to the practice and to the patients, carers or family? e.g less consultation
ARE REORGANISING time, fewer visits for the patient, achieving the objectives of a locally enhanced scheme.
CARE • What are the likely financial consequences?
• Consider canvassing CCG or local health group to provide finance/support for groups of practices
under CQUIN/LES and to support work across boundaries.
PRIOR PLANNING • Identify who is, could or should be involved in the organisation of care (e.g practice staff,
community staff, pharmacist , social services, patients and carers)
• Involve these stakeholders in the planning of care to increase understanding or what currently
happens, what could happen and to encourage motivation for the service to succeed.
IDENTIFICATION OF • Which co-morbidities will be included? Which are most common?
PATIENTS • Are higher risk patients to be identified and how will this be done (e.g COPD patients with two
or more exacerbations in the last year)?
ORGANISATION • How will patients receive invitations and be reminded to attend appointments?
• How will checks be organised? e.g number of appointments per patient, duration of appointments
and which practice staff will be involved.
• How much time is currently available and how is it used? How could it be used differently? Do
you need any extra time?
• What will happen in each appointment?
• Do the staff have sufficient training in the co-morbid conditions to be reviewed?
• How will the data be recorded? Are the disease templates sufficient for purpose?
• Are practice management protocols sufficient for purpose?
• Consider use of telehealth for higher risk patients. How could this enhance care?
INTEGRATED CARE • How will care of patients be integrated with other members of the community team (and
secondary care)? e.g pharmacist, social services, mental health services and specialist
community teams.
• How will the needs of patients deemed high risk and /or housebound be met by the
community/practice team?
• Will this satisfy the requirements of the QOF?
EVALUATION How will you evaluate success?
• Baseline and improvement - Where are you starting from? What do you need to measure as a
baseline so that you can tell whether your changes are making a difference? What will you need
to demonstrate to others to ensure support for the change?
• Patient feedback – what do you want to know? How will you find out? What do patients think of
the current service? What do they suggest might work better? How will you measure a change in
their experience or satisfaction?
• Consultation time – how much time is needed? How much time overall is needed, before and
after? Who currently does what?
• Costs and benefits – can you demonstrate reduced hospital admissions, reduced exacerbations,
prescribing and adherence, QOF impact, use of urgent appointments or A&E, total cost of time
and resources required, reduced duplication of tests or appointments?
• Improved Quality of Life - using generic questionnaires such as Euroqol (EQ5-D)10 or disease
specific questionnaires e.g COPD Assessment Test (CAT)11
• Increased patient enablement - using Patient Enablement Instrument.12
Find resources such as First steps towards quality improvement: A simple guide to improving
services to help you plan, deliver and evaluate your project at www.improvement.nhs.uk
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20. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?
References
1. Barnett K, Mercer SV et al. Epidemiology of multimorbidity and implications for health care, research
and medical education. The Lancet 360 9836: 38. 37-43.
2. Fortin M, Soubhi H, Hudon C, Bayliss EA and MvD Akker. Multimorbidity’s many challenges.
British Medical Journal 2007; 334 (7602): 1016-1017.
3. Susan M Smith. Managing Patients with multimorbidity: systematic review of interventions in primary care and
community settings. British Medical Journal 2012 292: 345 e5205
4. Kadam U. Redesigning the general practice consultation to improve care for patients with
multimorbidity, British Medical Journal. 2012 Sep 17;345:e6202
5. National Clinical Guideline Centre. (2010) Chronic obstructive pulmonary disease: management of chronic
obstructive pulmonary disease in adults in primary and secondary care. London: National Clinical Guideline Centre.
http://guidance.nice.org.uk/CG101
6. Wagner EH, Chronic disease management: What will it take to improve care for chronic illness?
Effective Clinical Practice. 1998;1(1) 2-4
7. Global Initiative for Chronic Obstructive Lung Disease (GOLD). Global Strategy for the Diagnosis,
Management and Prevention of Chronic Pulmonary Disease(2011)
www.goldcopd.org/guidelines-global-strategy-for-diagnosis-management.html
8. Diagnosis and Management of COPD in Primary Care. Primary Care Respiratory Society, UK
www.pcrs-uk.org
9. Shahid Ali . When a care plan comes together .Health Service Journal 9.12.2010 p20
10. Euroqol(EQ-5D) questionnaire www.euroqol.org
11. COPD Assessment Test. www.catestonline.org
12. Howie, J. G., Heaney, D. J., Maxwell, M, & Walker, J. J. (1998). A comparison of a Patient Enablement Instrument
(PEI) against two established satisfaction scales as an outcome measure of primary care consultations. Family
Practice, 15(2), 165-171.
13. Commissioning for Quality and Innovation (CQUIN) payments.
www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_091443
14. An Outcomes Strategy for COPD and asthma in England. 2011
www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/documents/digitalasset/dh_128428.pdf
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21. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?
Acknowledgements
Thanks to:
The Project Committee of:
Catherine Blackaby NHS Improvement
Phil Duncan NHS Improvement
Rigoberto Pizarro-Duhart CIRC RCGP
Christine Loveridge COPD/Spirometry Clinical Lead, Education for Health, Warwick
Dermot Ryan GP Principal Loughborough
Matt Kearney Department of Health Respiratory Team
Sara Askew Primary Care Respiratory Society UK.
The many practices who replied to the survey request, in particular Dr Joanne Reeve
(Vauxhall Primary Health Care), Sharon Lamden (Leckhampton Surgery), Sarah Everett
(Yellow Practice), Dr Dermot Ryan (Woodbrook Surgery), Liz Bryant and Deborah Dews
(Birtley Medical Group), Professor Ruth Chambers (Furlong Medical Practice) and Dr
Shahid Ali (Phoenix Medical Practice) for their contribution to the case studies.
Chris Gush and Fiona Fordham from CIRC for administrative support.
To Novartis Pharmaceuticals for providing financial support via an
unrestricted educational grant.
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22. Managing multi-morbidity in practice… what lessons can be learnt from the care of people with COPD and co-morbidities?
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