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Patient-generated data

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Alexandra Carmichael
Alexandra Carmichael

Presentation to IFTF Health Horizons Conference on patient-generated data and future trends, June 10, 2009, in San Jose, CA

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Patient-generated data Alexandra Carmichael IFTF Health Horizons Conference July 2009
I track myself every day • Chronic pain symptoms, supplements, mood, sex life • Genetics research and bioinformatics background • WebMD and DailyStrength, no patient data sites!
Culture of participation • Started with 3 conditions, now 300 Data growth 25% per month • 100+ measures tracked: calories to chronic pain • Medium-term: genomics, streaming biometrics
What this means for the future of health • Self-organized clinical trials - lithium trial • Social Data Network - private individual, open aggregate • Personalized medicine - which treatment will work for my symptoms?
Find me online • alexandra@curetogether.com • curetogether.com/blog • @accarmichael on Twitter

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Patient-generated data

  • 1. Patient-generated data Alexandra Carmichael IFTF Health Horizons Conference July 2009
  • 2. I track myself every day • Chronic pain symptoms, supplements, mood, sex life • Genetics research and bioinformatics background • WebMD and DailyStrength, no patient data sites!
  • 3.
  • 4.
  • 5.
  • 6.
  • 7. Culture of participation • Started with 3 conditions, now 300 Data growth 25% per month • 100+ measures tracked: calories to chronic pain • Medium-term: genomics, streaming biometrics
  • 8. What this means for the future of health • Self-organized clinical trials - lithium trial • Social Data Network - private individual, open aggregate • Personalized medicine - which treatment will work for my symptoms?
  • 9. Find me online • alexandra@curetogether.com • curetogether.com/blog • @accarmichael on Twitter