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We had the experience but missed the meaning:
can we balance patient choice, evidence based practice and
                 quality improvement?


                Professor Jonathan Richards
              General Practitioner, Morlais Medical Practice
                 Locality Clinical Director, Cwm Taf HB
      Visiting Professor of Primary Care, University of Glamorgan
Our values:
       ‘the universality of the best’
A critique of Utilitarian rational choice ways
of thinking:
• Commensurability:
how do we measure things?
• Aggregation: pooling choices
• Maximising:
will every person want more?
• Exogenous:
preferences taken for granted
Life on the boundaries

The boundary is the best place for acquiring
knowledge. At almost every point I have had
to stand between alternative possibilities of
existence, to be completely at home in
neither. This position is fruitful for thought; but
it is difficult and dangerous in life, which
again and again demands decisions and thus
the exclusion of alternatives.
                              Paul Tillich, On the Boundary 1967
VREONABA

            Evidence-
          based practice




Citizen               Performance
choice                Management
Nussbaum
Context                          Evidence-based
                                     practice
Values
Candidacy
Genomics
Surrogate markers


                    Citizen choice
                                                     ent
                                                  Managem
                                                      ce
                                                  Performan
Gaps between the evidence and
                             the real world
          Evidence-          Lag times between the evidence
            based
           practice          and the performance review
                             Whose priorities?
                             Surrogate markers



Citizen
                      Performance
                      Management
choice
Do we tell the citizen why we are doing
something?
Who does the data belong to?
What really matters andEvi whom?
                          to
                         den
Gaming and informed choice.
                         ce
                         -

Surrogate markers        pra
Insights from Ariely, Kahneman and Haidt
                         ctic
                          e


            Citizen          Performance
            choice           Management
Data from the real world
35%

30%


25%


20%


15%


10%


5%

0%
  <100   >100   >110     >120      >130        >140    >150      >160    >170   >180   >190

                       well     bp only 2007      BP only 2008     BP 2010
Blood Pressure distribution
35%

30%

25%

20%

15%

10%

5%

0%
 BP <100   last BP 100- last BP 110- last BP 120- last BP 130- last BP 140- last BP 150 last BP>160
                109          119          129          139          149        -159
                      low risk    intermediate risk   high risk   very high risk
Work to be done if the citizens agree
      70%                                                                              4500

                                                                                       4000
      60%
                                                                                       3500
      50%
                                                                                       3000
      40%                                                                              2500

      30%                                                                              2000

                                                                                       1500
      20%
                                                                                       1000
      10%
                                                                                       500

       0%                                                                              0
              no BP reading   no smoking history no measure of BMI   no record of FH

numbers           20%               16%                44%                65%
proportions       1300              1017               2847               4224
Missing data
80%


70%


60%


50%


40%


30%


20%


10%


0%
      blood pressure       smoking history                        BMI               Family History recorded

                       low risk   intermediate risk   high risk    very high risk
A worked example
Resources

TS Eliot Dry Salvages part II from The Four Quartets Faber 1944
MC Nussbaum Poetic Justice Beacon Press 1995
P Tillich Life on the Boundaries 1967
http://www.ted.com/talks/dan_ariely_on_our_buggy_moral_code.html
http://www.nytimes.com/2011/10/21/opinion/brooks-who-you-are.html
http://blog.ted.com/2009/09/27/the_healthcare/
CM Micheel (Ed), JR. Ball (Ed) Evaluation of Biomarkers and Surrogate
Endpoints in Chronic Disease 2010

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Jonathan Richards presentation WSPCR 2011

  • 1. We had the experience but missed the meaning: can we balance patient choice, evidence based practice and quality improvement? Professor Jonathan Richards General Practitioner, Morlais Medical Practice Locality Clinical Director, Cwm Taf HB Visiting Professor of Primary Care, University of Glamorgan
  • 2. Our values: ‘the universality of the best’ A critique of Utilitarian rational choice ways of thinking: • Commensurability: how do we measure things? • Aggregation: pooling choices • Maximising: will every person want more? • Exogenous: preferences taken for granted
  • 3. Life on the boundaries The boundary is the best place for acquiring knowledge. At almost every point I have had to stand between alternative possibilities of existence, to be completely at home in neither. This position is fruitful for thought; but it is difficult and dangerous in life, which again and again demands decisions and thus the exclusion of alternatives. Paul Tillich, On the Boundary 1967
  • 4. VREONABA Evidence- based practice Citizen Performance choice Management
  • 5. Nussbaum Context Evidence-based practice Values Candidacy Genomics Surrogate markers Citizen choice ent Managem ce Performan
  • 6. Gaps between the evidence and the real world Evidence- Lag times between the evidence based practice and the performance review Whose priorities? Surrogate markers Citizen Performance Management choice
  • 7. Do we tell the citizen why we are doing something? Who does the data belong to? What really matters andEvi whom? to den Gaming and informed choice. ce - Surrogate markers pra Insights from Ariely, Kahneman and Haidt ctic e Citizen Performance choice Management
  • 8. Data from the real world 35% 30% 25% 20% 15% 10% 5% 0% <100 >100 >110 >120 >130 >140 >150 >160 >170 >180 >190 well bp only 2007 BP only 2008 BP 2010
  • 9. Blood Pressure distribution 35% 30% 25% 20% 15% 10% 5% 0% BP <100 last BP 100- last BP 110- last BP 120- last BP 130- last BP 140- last BP 150 last BP>160 109 119 129 139 149 -159 low risk intermediate risk high risk very high risk
  • 10. Work to be done if the citizens agree 70% 4500 4000 60% 3500 50% 3000 40% 2500 30% 2000 1500 20% 1000 10% 500 0% 0 no BP reading no smoking history no measure of BMI no record of FH numbers 20% 16% 44% 65% proportions 1300 1017 2847 4224
  • 11. Missing data 80% 70% 60% 50% 40% 30% 20% 10% 0% blood pressure smoking history BMI Family History recorded low risk intermediate risk high risk very high risk
  • 13. Resources TS Eliot Dry Salvages part II from The Four Quartets Faber 1944 MC Nussbaum Poetic Justice Beacon Press 1995 P Tillich Life on the Boundaries 1967 http://www.ted.com/talks/dan_ariely_on_our_buggy_moral_code.html http://www.nytimes.com/2011/10/21/opinion/brooks-who-you-are.html http://blog.ted.com/2009/09/27/the_healthcare/ CM Micheel (Ed), JR. Ball (Ed) Evaluation of Biomarkers and Surrogate Endpoints in Chronic Disease 2010