1. ISP SSS - LSE
Lonfon, May 11th, 2010
Studying Eating Disorders
in the Social Web
New methods, new questions
Antonio A. Casilli, CEM, EHESS
P Tubaro & AA Casilli Promesses et limites des SMA
2. • Edgar Morin Centre, School for
Advanced Studies in Social
Sciences (EHESS, Paris)
http://en.wikipedia.org/wiki/Edgar
_Morin_Centre
• Interdisciplinary Institute for
Contemporary Anthropology
(IIAC, Paris)
• Research topics: CMC and
health - especially eating
behaviors
• Social network approach to
eating disorders (ANAMIA
project)
P Tubaro & AA Casilli Promesses et limites des SMA
3. TOC
• Pro-ED online communities
• Our approach
• Methods
• Empirical data
• Agent-based simulations
• Conclusions
P Tubaro & AA Casilli Promesses et limites des SMA
4. • Pro-ED online communities
P Tubaro & AA Casilli Promesses et limites des SMA
5. • “Pro-ana”, “pro-mia”:
controversial subcultures
6
advocating anorexia and 5
bulimia nervosa on the
Search Volume Index
4
Ana_mia
web 3 Pro_ana
Pro_mia
• A “movement”? A “skill”? 2
• How to study this social 1
0
phenomenon?
Ja
M 22
Ju 27 5
Se 19 005
D 11 05
M 26 05
Ju 22 07
D 7 2 07
M 30 7
Ju 23 007
Se 15 08
N 7 2 08
Fe 4 2 005
Au 21 006
N 13 006
Ja 5 2 006
Ap 28 06
O 5 2 07
Fe 30 08
ec 2
ec 0
ov 0
ar 00
ay 2
ar 2
ov 2
ct 0
n
n 2
l 1 20
n 20
p 20
p 20
n 0
b 0
b 20
g 2
r 20
22 0
• How to devise suitable
20 8
0
09
public health tools and Evolution over four years of the search volume index for common
ana-mia queries
communication policies? (Source: Google Trends, March 12th 2009)
P Tubaro & AA Casilli Promesses et limites des SMA
6. • Rough typology of
online pro-ED
websites:
1. Personal websites
2. Online social
media/forums
3. ‘Cloaked’ websites
4. ‘Universities’
• ‘Thinspiration’, self-
help, advice
P Tubaro & AA Casilli Promesses et limites des SMA
7. • Our approach
P Tubaro & AA Casilli Promesses et limites des SMA
8. •The pro-ED population is:
•relatively small;
•vulnerable (health risk; underage);
•partly hidden;
•frequent migrations.
•Large quantitative surveys & webcrawling possible only to
an extent
•Rely on smaller-scale, purposive samples for qualitative
enquiry
P Tubaro & AA Casilli Promesses et limites des SMA
9. • Ongoing project
(ANAMIA) : a social
networks approach to
pro-ED sociability
• Social factors
influencing health
behaviours
• Computer use
influencing social
factors
• Focus on online/offine
personal networks
P Tubaro & AA Casilli Promesses et limites des SMA
10. • Methods
P Tubaro & AA Casilli Promesses et limites des SMA
11. •A wide array of methods
•Online ethnographies
•Online experiments
•Social network analysis
•Web-based in-depth interviews
•Multi-agent simulations
•General framework: Ethnographically-
informed social simulation (P Tubaro &
AA Casilli BMS, 2010)
P Tubaro & AA Casilli Promesses et limites des SMA
12. • Combining qualitative data and agent-based computer
simulation:
• enriches model with insight into actors behavior and motivations;
• performs “thought experiments” to test consistency of theories;
• replicates and generalizes findings from fieldwork;
• supports cross-disciplinary validation of results.
P Tubaro & AA Casilli Promesses et limites des SMA
13. • Starting point: an actual
social process;
• Qualitative sub-loop:
formulate hypotheses,
collect data,
• adjust categories, until a
theory is produced;
• Design, build, code and
de-bug an agent-based
model;
• Generate simulated data
and revise theory;
• This may direct back to
the field (resample and
re-start sub-loop).
P Tubaro & AA Casilli Promesses et limites des SMA
14. • Empirical data
P Tubaro & AA Casilli Promesses et limites des SMA
15. • Fieldwork with ana-mia subjects is currently at an early
stage.
• Data collected so far are exploratory, and include:
– At micro level: a qualitative study of network tie
formation on Facebook;
– At macro level: a web cartography of the pro ED-sphere
in France and UK
• Use of preliminary data to inform and validate a first
simulation.
P Tubaro & AA Casilli Promesses et limites des SMA
16. • Facebook experiment
• Creation of social structures
(‘friendship’, ‘social capital’)
through self-disclosure and
adoption of cultural traits
• 50 days (Apr. 27th, - Jun.
15th, 09)
• Name generator and IOS to
select subjects
• An actual and a control
profile send 50 friend
requests
• Recognizable name and
picture
• 15 reply (14 for control)
P Tubaro & AA Casilli Promesses et limites des SMA
17. • “Friends” provide feedback
on how to adapt profile
– Comments
– Private messages
– Like
– Share
• “Friends” appreciate
disclosure
• Actual profile contains more
personal information,
images, interactive data
• Control data contains
sparse information
P Tubaro & AA Casilli Promesses et limites des SMA
18. •Pete Warden, Nicholas Christakis :
«harvesters» and «dataminers»
•«Mark Zuckerberg has built his
social networking empire on the
belief that "information wants to be
shared", a particular philosophy of
information that directly impacts the
values built into the design of
Facebook, ranging from its user
interface, privacy policies, terms of
service, and method of governance »
(Michael Zimmer)
•Social media is ethically puzzling
P Tubaro & AA Casilli Promesses et limites des SMA
19. Actual Profile Control Profile
Starting point 11 05 09
P Tubaro & AA Casilli Promesses et limites des SMA
20. Actual Profile Control Profile
Taste display 19 05 09
P Tubaro & AA Casilli Promesses et limites des SMA
21. Actual Profile Control Profile
Personal information 22 05 09
P Tubaro & AA Casilli Promesses et limites des SMA
22. Actual Profile Control Profile
Photo album online 13 06 09
P Tubaro & AA Casilli Promesses et limites des SMA
23. •Insight from preliminary
qualitative study is that
online network formation
may depend upon:
•Privacy settings, i.e.
visibility of contents to
others;
•Self-display, i.e. personal
and cultural traits exhibited
and that traits may change
with network composition.
•The model aims to
problematize these factors
in simulated larger
networks.
P Tubaro & AA Casilli Promesses et limites des SMA
25. •We focus on the impact of:
•tendency to conformism vs.
dissonance in cultural traits;
•preference for bonding vs.
bridging in tie formation;
•possibility to limit incoming
ties through privacy protection.
•We measure impact
through:
•number and size of
components;
•homogeneity of traits within
and between components;
•evolution of privacy settings
over time.
P Tubaro & AA Casilli Promesses et limites des SMA
26. P Tubaro & AA Casilli Promesses et limites des SMA
27. •At initialization, each actor is endowed with:
•a vector (several dimensions) of traits;
•a privacy setting (visible/invisible).
•Actors can be:
•isolates;
•connected;
•If connected:
•they share most traits with their contacts;
•but may dffier on one dimension;
•this depends on the ‘Dissonance’ parameter
•We test the following values of parameters:
Paramètres Valeurs
Dissonance 0,01 0,03 0,08
Seuil de bonding 0,20 0,50 0,70
Privacy On Off
P Tubaro & AA Casilli Promesses et limites des SMA
28. SETUP
Tick t+1 Update z(Ai) ≠ µz (friendsi)
Pick up
random A
N
Is anom(A) < AnomThrshld?
Y
Create Tie Break Tie
N N
Create Break
Is µz(A)-µz (grp) < BBThrshd? Is µz(A)-µz (grp) ≥ BBThrshd?
Bridging Tie Bridging Tie
Y
Y
Create Break
Bonding Tie Bonding Tie
P Tubaro & AA Casilli Promesses et limites des SMA
29. • Simulation results (20,000 ticks): three stable configurations
(1) Giant Component (2) Hegemony (3) Little Boxes
P Tubaro & AA Casilli Promesses et limites des SMA
30. Number and size of components, varying Dissonance and Bonding Propensity, privacy protection on
P Tubaro & AA Casilli Promesses et limites des SMA
31. Number and size of components, varying Dissonance and Bonding Propensity, privacy protection off
P Tubaro & AA Casilli Promesses et limites des SMA
32. • Explain the effects of parameters
– With lower propensity to bonding (=greater openness to
– bridging), only one or few components emerge;
– This effect is stronger with higher Dissonance;
– With higher propensity to bonding, many small communities emerge;
– In this case, differences in Dissonance have little impact;
– With no privacy protection, these effects are slightly amplified, because
more ties can be formed.
• Explain changes in privacy over time
– Agents restrict access only when a giant component appears;
– This is the only case in which average privacy increases;
– Otherwise, average privacy diminishes until there are no more isolates,
then is stable.
P Tubaro & AA Casilli Promesses et limites des SMA
33. Average Privacy over time, varying Dissonance and Bonding propensity
P Tubaro & AA Casilli Promesses et limites des SMA
34. Structural signatures of learning dynamics
1. Inprinting 2. No learning
3. Mixed situation (no learning & continuous learning)
P Tubaro & AA Casilli Promesses et limites des SMA
35. •Retrodictive validation
•Web cartography of the pro ED-
sphere in France and UK
•Close to configuration 2
‘Hegemony’
•Large component: personal pages
and blogs of teenagers and young
adults, strongly pro-ana;
•Smaller components: different age
groups and social positioning
(cultural variance)
•Homogeneity within components,
heterogeneity between them.
French pro-ED sphere (by Dr. Manuel Boutet)
P Tubaro & AA Casilli Promesses et limites des SMA
36. •Retrodictive validation
•Web cartography of the pro ED-
sphere in France and UK
•Close to configuration 2
‘Hegemony’
•Large component: personal pages
and blogs of teenagers and young
adults, strongly pro-ana;
•Smaller components: different age
groups and social positioning
(cultural variance)
•Homogeneity within components,
heterogeneity between them.
British pro-ED sphere (by Dr. Manuel Boutet)
P Tubaro & AA Casilli Promesses et limites des SMA
37. • Conclusions
P Tubaro & AA Casilli Promesses et limites des SMA
38. • Preliminary results support the claim that agent-based
models can complement analyses based on small
qualitative fieldworks
• Combine insight into social phenomenon and
generalization of results
• These methods are particularly useful with sensitive
and hidden populations.
• These methods are particularly open to cross-
disciplinary validation
P Tubaro & AA Casilli Promesses et limites des SMA
39. Thank you!
Contact me at:
antonio [dot] casilli [at] ehess [dot] fr
Find this presentation on my research blog:
http://www.bodyspacesociety.eu
Follow me on Twitter:
http://www.twitter.com/bodyspacesoc
P Tubaro & AA Casilli Promesses et limites des SMA