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Web 2.0 & Online Communities, Summer School 2011




       Social Media and the Community
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WARNING!!
Some of the content in today’s class is graphic and 
 may disturb you. If you wish me to stop showing 
     some of the media please let me know




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A VOICE FOR THE OPRESSED




                           11
Iran
2009 – Iran went through an election year
– An Election with a difference as the people were 
  more vocal about what they wanted
– Government cracked down heavily on any form of 
  protest including “ordering foreign journalists to 
  stop live reporting of the protests”
In stepped Twitter
– "low‐level State Department official" contacted 
  Twitter and asked it to delay a long‐scheduled 
  maintenance shutdown.
                                                        12
Iran (cont.)
         Woman says ppl knocking on her 
         door 2 AM saying they were 
         intelligence agents, took her daughter
         Ashora platoons now moving from 
         valiasr toward National Tv staion. 
         mousavi's supporters are already 
         there. my father is out there!
         we hear 1dead in shiraz, livefire used 
         in other cities RT

         YouTube
          – Example




                                                   13
Tunisia
Just a few weeks ago...
– Protests against, the then President,  Zine el 
  Abedine Ben Lai
– Revolution 2.0 or Human Revolution??
– AlJazeera




                                                    14
Egypt
Currently on going
– Media presence heavy, but once again its the 
  people on the ground
Government realises this and blocks out the 
internet
Both Twitter and Facebook are still being 
blocked, many users are bypassing the blocks 
through proxy servers and third‐party apps. 
Google have introduced Say Now and 
@speak2tweet
                                                  15
How is SM being used in Egypt
YouTube
– Riots and voices

Twitter
– #Egypt

Flickr
– Photos’ that document what is going on

Virtual Worlds
– SecondLife: Egyptians from around the world, waving flags of their 
  nation and sharing information and resources in support of the 
  uprising in Egypt


                                                                        16
Yasi..
         Last night Cyclone Yasi
         reached land
         Immediately an 
         increase of volume 
         about Yasi on most SM 
         sites




                                   18
So when did Social Media become more than just
           sharing of information.....
      This is what Clay Shirky thinks...




                                                 19
Musical Interval




                   20
Social Media and Not For Profit
“A survey of 1,173 nonprofit about their organization’s use of 
online social networks. Found that they increased their use of 
commercial social networks over 2009 and early 2010 with 
Facebook and Twitter proving to be the preferred networks. 
LinkedIn and YouTube held steady, but MySpace lost 
significant ground” – April 2010




                                                                  21
BUT.......
“A survey of 200 charity and foundation professionals 
    revealed that nonprofits are finding it difficult to 
   determine how valuable social media tools are for 
  their organizations. Seventy‐nine percent said they 
    hadn’t found ways to do so.” –, November 2009




                                                            22
So what do those 1,173 organisations use SM for...




                                                     23
More Graphs....




                  24
What else is going on out there...
The 10 Tactics project
1. mobilise people
2. witness and record
3. visualise your message
4. amplify personal stories
5. just add humour
6. manage your contacts
7. use complex data
8. use collective intelligence
9. let people ask the questions
10. investigate and expose
                                          25
Social Media and Health
Large search space on Internet
More people consult the Internet then their 
doctors for information
Also doctors use
Take an aspirin and visit this URL
Sharing information between each other



                                               26
Sources of health information
Wikipedia, Medpedia, WebMD, Health 
Central, HealthTuber, EyeTube, YouMedic, 
MEDgle, ICYou, CheckMD, Health Right, 
Organized Wisdom, Amniota, Health 
Communities, Search Medica, Flu Google 
Trends, HealthMap, ForumClinic, Salupedia, 
MyDynamicHealth, Health QNA, Healthline, 
Healthwise, HealthMash, Who Is Sick?, 
OnMedica, MedWorn, WebHealth, ganfyd, 
dLife, Your other medical, iHealthTube
                                              27
Health 2.0 - Communities of patients for patients
PatientsLikeMe, ACOR, SugarStats, DiabetesMine, 
  Estudiabetes.com, Daily Strength, Cure Together, 
  Inspire, Disaboom, Healia, Face2Face Health, 
  MDJunction, PeoplesMD, Hope Cube, Wego
  Health, My Health Experience, MyCancerPlace, 
  CarePages, Pregnancy Wiser, Facebook groups: 
  Influenza A ‐ First calmly, Meetup Groups: Autism
Healthengage


                                                      28
Power of the Patient
Here’s what Susannah Fox says...




            #hcsm




                                   29
Conversations -opinions
more powerful than facts?
 Health sharing, problem 
solving.
 Impact on health care 
providers?
 Online support groups –
little research in this area

                          30
31
Jay Parkinson
No office‐ uses the internet, communicates like 
you
See their fees see their ratings, get what you 
need, when you need it – like ping a facebook
friend




                                              32
Changing the face of Healthcare
        Patients Like Me beats Lancet 
             Neurology by a mile

                                         33
Final thoughts.... What about the developing world?
“Social media technologies can fundamentally restructure the 
       way that development is practiced. Social media, by 
    facilitating communication between donor, recipient, and 
    expert, creates the environment that allows development 
  workers to design and implement projects that engage their 
  targets, while having the ability to adapt quickly to changing 
   circumstances. The investment requirements are small and 
       require little training. The effects, however, could be 
    precipitous. These technologies could open the previously 
    limited flows of information between developing nations, 
     allowing local workers with similar experiences to share 
                successful practices and knowledge.”

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The world is now at your fingertips.....




                                           35

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Web 2.0 & Online Communities Summer School 2011

  • 1. Web 2.0 & Online Communities, Summer School 2011 Social Media and the Community
  • 2. 2
  • 3. 3
  • 4. 4
  • 6. 6
  • 7. 7
  • 8. 8
  • 9. 9
  • 10. 10
  • 11. A VOICE FOR THE OPRESSED 11
  • 12. Iran 2009 – Iran went through an election year – An Election with a difference as the people were  more vocal about what they wanted – Government cracked down heavily on any form of  protest including “ordering foreign journalists to  stop live reporting of the protests” In stepped Twitter – "low‐level State Department official" contacted  Twitter and asked it to delay a long‐scheduled  maintenance shutdown. 12
  • 13. Iran (cont.) Woman says ppl knocking on her  door 2 AM saying they were  intelligence agents, took her daughter Ashora platoons now moving from  valiasr toward National Tv staion.  mousavi's supporters are already  there. my father is out there! we hear 1dead in shiraz, livefire used  in other cities RT YouTube – Example 13
  • 14. Tunisia Just a few weeks ago... – Protests against, the then President,  Zine el  Abedine Ben Lai – Revolution 2.0 or Human Revolution?? – AlJazeera 14
  • 15. Egypt Currently on going – Media presence heavy, but once again its the  people on the ground Government realises this and blocks out the  internet Both Twitter and Facebook are still being  blocked, many users are bypassing the blocks  through proxy servers and third‐party apps.  Google have introduced Say Now and  @speak2tweet 15
  • 16. How is SM being used in Egypt YouTube – Riots and voices Twitter – #Egypt Flickr – Photos’ that document what is going on Virtual Worlds – SecondLife: Egyptians from around the world, waving flags of their  nation and sharing information and resources in support of the  uprising in Egypt 16
  • 17. Yasi.. Last night Cyclone Yasi reached land Immediately an  increase of volume  about Yasi on most SM  sites 18
  • 18. So when did Social Media become more than just sharing of information..... This is what Clay Shirky thinks... 19
  • 20. Social Media and Not For Profit “A survey of 1,173 nonprofit about their organization’s use of  online social networks. Found that they increased their use of  commercial social networks over 2009 and early 2010 with  Facebook and Twitter proving to be the preferred networks.  LinkedIn and YouTube held steady, but MySpace lost  significant ground” – April 2010 21
  • 21. BUT....... “A survey of 200 charity and foundation professionals  revealed that nonprofits are finding it difficult to  determine how valuable social media tools are for  their organizations. Seventy‐nine percent said they  hadn’t found ways to do so.” –, November 2009 22
  • 22. So what do those 1,173 organisations use SM for... 23
  • 24. What else is going on out there... The 10 Tactics project 1. mobilise people 2. witness and record 3. visualise your message 4. amplify personal stories 5. just add humour 6. manage your contacts 7. use complex data 8. use collective intelligence 9. let people ask the questions 10. investigate and expose 25
  • 25. Social Media and Health Large search space on Internet More people consult the Internet then their  doctors for information Also doctors use Take an aspirin and visit this URL Sharing information between each other 26
  • 26. Sources of health information Wikipedia, Medpedia, WebMD, Health  Central, HealthTuber, EyeTube, YouMedic,  MEDgle, ICYou, CheckMD, Health Right,  Organized Wisdom, Amniota, Health  Communities, Search Medica, Flu Google  Trends, HealthMap, ForumClinic, Salupedia,  MyDynamicHealth, Health QNA, Healthline,  Healthwise, HealthMash, Who Is Sick?,  OnMedica, MedWorn, WebHealth, ganfyd,  dLife, Your other medical, iHealthTube 27
  • 27. Health 2.0 - Communities of patients for patients PatientsLikeMe, ACOR, SugarStats, DiabetesMine,  Estudiabetes.com, Daily Strength, Cure Together,  Inspire, Disaboom, Healia, Face2Face Health,  MDJunction, PeoplesMD, Hope Cube, Wego Health, My Health Experience, MyCancerPlace,  CarePages, Pregnancy Wiser, Facebook groups:  Influenza A ‐ First calmly, Meetup Groups: Autism Healthengage 28
  • 28. Power of the Patient Here’s what Susannah Fox says... #hcsm 29
  • 29. Conversations -opinions more powerful than facts? Health sharing, problem  solving. Impact on health care  providers? Online support groups – little research in this area 30
  • 30. 31
  • 32. Changing the face of Healthcare Patients Like Me beats Lancet  Neurology by a mile 33
  • 33. Final thoughts.... What about the developing world? “Social media technologies can fundamentally restructure the  way that development is practiced. Social media, by  facilitating communication between donor, recipient, and  expert, creates the environment that allows development  workers to design and implement projects that engage their  targets, while having the ability to adapt quickly to changing  circumstances. The investment requirements are small and  require little training. The effects, however, could be  precipitous. These technologies could open the previously  limited flows of information between developing nations,  allowing local workers with similar experiences to share  successful practices and knowledge.” 34
  • 34. The world is now at your fingertips..... 35