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A
Hidden
Epidemic


      1
My name is Dawn,
and this is my story.




                        2
3
I dated a boy who was in a rock band.




                                        4
We took a road trip to Minnesota to an outdoor festival –
lots of music, friends and camping.                   5
I came home sick
with flu-like symptoms
that would not go




                         6
Over a 3 month period,
I saw many doctors,
but received NO diagnosis.
They said I would
eventually feel better.
I did (or so I thought).
                                                                                            7
                             “My Everyday Tools” February 10, 2011 via Flickr, Creative Commons Attribution
My boyfriend proposed,
and we got married.
It was a beautiful day.




                     8
Upon college graduation,
I was hired as the director
for a new preschool.
It was my dream job.          9
Then I got very very sick.
     We saw over 20 doctors
     all over the country
     including a visit
     to one of the top hospitals
     in the United States –
     still NO answers.



                                                                                       10
Michael Hicks, “img_0496" February 10, 2011 via Flickr, Creative Commons Attribution
11
As life moved on without us,
I spent years researching
my debilitating symptoms.




                        12
During my research,
      I came across…




                                                                                                       13
Scott Bauer, “Adult Deer Tick" February 10, 2011 via Wikimedia Commons, Creative Commons Attribution
I read about the initial symptoms,
and realized I had most of them
after my trip to Minnesota.




                                     14
I read about the long-term symptoms,
and realized I had ALL of them.




                                       15
I discovered that this disease
is often misdiagnosed as….

Multiple Sclerosis
Fibromyalgia
Chronic Fatigue Syndrome
Peripheral Neuropathy
Anxiety Disorders
Rheumatoid Arthritis
Parkinson’s Disease

                                 16
I sought out a doctor who specializes
in tick-borne & chronic diseases. 17
After seven long years,
I finally had a diagnosis…


Lyme Disease

                             18
Now, it was time to educate myself.




                                 19
Lyme Disease is caused
                                   by a spiral-shaped bacteria
                                   that is often found in a tick.




                                   Name: Borrelia burgdorferi
                                                                                                            20
Center for Disease Control, “Borrelia burgdorferi-cropped” PHIL ID#6631, February 10, 2011, Public Domain
The two main ticks that carry the bacteria
                are deer ticks & western black legged ticks.


                                                                                21
Center for Disease Control, “TickMaster4_12” February 11, 2011, Public Domain
Ticks also carry
                                                                                        many types of bacterium
                                                                                        that cause co-infections.




                                                                                                              22
Nemodus, “SOS Tick-I ain’t Afraid of No Tick" February 10, 2011 via Flickr, Creative Commons Attribution
Transmission is through the bite of a tick;
             however, some physicians & researchers think
             it can be passed sexually & congenitally.
                                                                                                    23
Trevor Bair, “Sarah-28 Weeks Pregnant" February 10, 2011 via Flickr, Creative Commons Attribution
“She started showing signs
her first day of life
…and as her mom,
I knew something was wrong.
As I begged God to take it away
and give it to me instead,
I could have never imagined
the nightmare that was about to unfold…”
-Brandi, Lyme Disease Survivor




                                   24
Along with flu-like symptoms,
                                                                       in the initial stages,
                                                                       a red bull’s eye rash
                                                                       might appear.




                                                                                                                        25
Hannah Garrison, “Bulls Eye Lyme Disease Rash”, February 10, 2011 via Wikimedia Commons, Creative Commons Attribution
However, less than 50% remember
 a tick bite or a bull’s eye rash.
 I fall into that category.




                        Deer ticks can be the size of a poppy seed.
                        No wonder people miss them!                                          26
David Van Der Mark, “Teek-Tick" February 10, 2011 via Flickr, Creative Commons Attribution
The common diagnostic
lab tests are….

ELISA - only 65% accurate
Western Blot - only 70 to
80% accurate




                            27
Did you know a diagnostic test
has to be 95% accurate
to be considered successful?



                                 28
Only labs that specialize
in tick-borne diseases
obtain the best results:
Igenex
Stony Brook
Since the tests are NOT reliable,
it is important to seek out a doctor
that specializes in diagnosing
tick-borne diseases.


They are often referred to as…


Lyme Literate Medical Doctors
           (LLMD)

                                       30
What is the
treatment for
Lyme Disease?




                Well, that is
                controversial.

                                 31
Standard IDSA and CDC treatment protocol:
 a 14 day course of oral antibiotics
 for patients bitten less than 30 days ago.




                                                                   IDSA = Infectious Disease Society of America
                                                                   CDC = Center for Disease Control        32
Keith Ramsey, “Pills" February 10, 2011 via Flickr, Creative Commons Attribution
If bitten more than a month ago,
then a 30 day course
of oral or IV antibiotics
is recommended as treatment.
                                   33
“Up to 30% of Lyme Disease cases do not get
resolved after following these CDC guidelines.”
Author Bryan Rosner
                      Sales




                                                  34
I did that protocol, but
I am still very sick…




                           35
…and so are they
Great job today! Thank you for being so willing
to learn! People who are hungry to learn are
the ones that are the most successful in life!
Here's "Today's Tip of the Day":

In reported speech go one step back into the
past and change the time signifier as well as
the pronoun.

Example Sentences:
"I'm going to the supermarket. => "He said he
was going to the supermarket."
"She's seeing him tomorrow." => "She said she
was seeing him the next day."

See you in class tomorrow!! :)



                                                  36
…and so is she.




                  37
Lyme Disease physicians have realized that long-term
therapy (3 months to 3 years) is necessary for individuals
who have had the disease longer than 30 days.




                                                      38
This conflicts with the IDSA’s recommendations,
          so insurance companies often refuse to pay,
          causing patients to spend $25K to 150K per year.
                                                                                                  39
Daniel Borman, “Money, Money, Money" February 10, 2011 via Flickr, Creative Commons Attribution
How can you protect yourself
and your loved ones?




                               40
Avoid tick infested areas
 including tall grasses, forests,
 logs and piles of leaves.                                                                       41
Melanie Holtsman, “24 - Jumping In" February 11, 2011 via Flickr, Creative Commons Attribution
If you will be in a tick infested area,
dress in light-colored clothing.




                                          42
Wear long sleeves and long pants.
                                    43
Tuck pants into socks.




                         44
Use DEET on skin and pre-treat
clothing with spray containing…




                                  45
There is…




Knowledge and prevention is key.
                               46
You can make a difference!
                             47
References

International Lyme and Associated Diseases: www.ilads.org

California Lyme Disease Association: www.lymedisease.org

Rosner, Bryan (2007). The Top Ten Lyme Disease Treatments: Defeat Lyme
Disease with the Best of Conventional and Alternative Medicine. South
Lake Tahoe, CA: Biomed Publishing Group.




                                                                   48

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A Hidden Epidemic

  • 2. My name is Dawn, and this is my story. 2
  • 3. 3
  • 4. I dated a boy who was in a rock band. 4
  • 5. We took a road trip to Minnesota to an outdoor festival – lots of music, friends and camping. 5
  • 6. I came home sick with flu-like symptoms that would not go 6
  • 7. Over a 3 month period, I saw many doctors, but received NO diagnosis. They said I would eventually feel better. I did (or so I thought). 7 “My Everyday Tools” February 10, 2011 via Flickr, Creative Commons Attribution
  • 8. My boyfriend proposed, and we got married. It was a beautiful day. 8
  • 9. Upon college graduation, I was hired as the director for a new preschool. It was my dream job. 9
  • 10. Then I got very very sick. We saw over 20 doctors all over the country including a visit to one of the top hospitals in the United States – still NO answers. 10 Michael Hicks, “img_0496" February 10, 2011 via Flickr, Creative Commons Attribution
  • 11. 11
  • 12. As life moved on without us, I spent years researching my debilitating symptoms. 12
  • 13. During my research, I came across… 13 Scott Bauer, “Adult Deer Tick" February 10, 2011 via Wikimedia Commons, Creative Commons Attribution
  • 14. I read about the initial symptoms, and realized I had most of them after my trip to Minnesota. 14
  • 15. I read about the long-term symptoms, and realized I had ALL of them. 15
  • 16. I discovered that this disease is often misdiagnosed as…. Multiple Sclerosis Fibromyalgia Chronic Fatigue Syndrome Peripheral Neuropathy Anxiety Disorders Rheumatoid Arthritis Parkinson’s Disease 16
  • 17. I sought out a doctor who specializes in tick-borne & chronic diseases. 17
  • 18. After seven long years, I finally had a diagnosis… Lyme Disease 18
  • 19. Now, it was time to educate myself. 19
  • 20. Lyme Disease is caused by a spiral-shaped bacteria that is often found in a tick. Name: Borrelia burgdorferi 20 Center for Disease Control, “Borrelia burgdorferi-cropped” PHIL ID#6631, February 10, 2011, Public Domain
  • 21. The two main ticks that carry the bacteria are deer ticks & western black legged ticks. 21 Center for Disease Control, “TickMaster4_12” February 11, 2011, Public Domain
  • 22. Ticks also carry many types of bacterium that cause co-infections. 22 Nemodus, “SOS Tick-I ain’t Afraid of No Tick" February 10, 2011 via Flickr, Creative Commons Attribution
  • 23. Transmission is through the bite of a tick; however, some physicians & researchers think it can be passed sexually & congenitally. 23 Trevor Bair, “Sarah-28 Weeks Pregnant" February 10, 2011 via Flickr, Creative Commons Attribution
  • 24. “She started showing signs her first day of life …and as her mom, I knew something was wrong. As I begged God to take it away and give it to me instead, I could have never imagined the nightmare that was about to unfold…” -Brandi, Lyme Disease Survivor 24
  • 25. Along with flu-like symptoms, in the initial stages, a red bull’s eye rash might appear. 25 Hannah Garrison, “Bulls Eye Lyme Disease Rash”, February 10, 2011 via Wikimedia Commons, Creative Commons Attribution
  • 26. However, less than 50% remember a tick bite or a bull’s eye rash. I fall into that category. Deer ticks can be the size of a poppy seed. No wonder people miss them! 26 David Van Der Mark, “Teek-Tick" February 10, 2011 via Flickr, Creative Commons Attribution
  • 27. The common diagnostic lab tests are…. ELISA - only 65% accurate Western Blot - only 70 to 80% accurate 27
  • 28. Did you know a diagnostic test has to be 95% accurate to be considered successful? 28
  • 29. Only labs that specialize in tick-borne diseases obtain the best results: Igenex Stony Brook
  • 30. Since the tests are NOT reliable, it is important to seek out a doctor that specializes in diagnosing tick-borne diseases. They are often referred to as… Lyme Literate Medical Doctors (LLMD) 30
  • 31. What is the treatment for Lyme Disease? Well, that is controversial. 31
  • 32. Standard IDSA and CDC treatment protocol: a 14 day course of oral antibiotics for patients bitten less than 30 days ago. IDSA = Infectious Disease Society of America CDC = Center for Disease Control 32 Keith Ramsey, “Pills" February 10, 2011 via Flickr, Creative Commons Attribution
  • 33. If bitten more than a month ago, then a 30 day course of oral or IV antibiotics is recommended as treatment. 33
  • 34. “Up to 30% of Lyme Disease cases do not get resolved after following these CDC guidelines.” Author Bryan Rosner Sales 34
  • 35. I did that protocol, but I am still very sick… 35
  • 36. …and so are they Great job today! Thank you for being so willing to learn! People who are hungry to learn are the ones that are the most successful in life! Here's "Today's Tip of the Day": In reported speech go one step back into the past and change the time signifier as well as the pronoun. Example Sentences: "I'm going to the supermarket. => "He said he was going to the supermarket." "She's seeing him tomorrow." => "She said she was seeing him the next day." See you in class tomorrow!! :) 36
  • 37. …and so is she. 37
  • 38. Lyme Disease physicians have realized that long-term therapy (3 months to 3 years) is necessary for individuals who have had the disease longer than 30 days. 38
  • 39. This conflicts with the IDSA’s recommendations, so insurance companies often refuse to pay, causing patients to spend $25K to 150K per year. 39 Daniel Borman, “Money, Money, Money" February 10, 2011 via Flickr, Creative Commons Attribution
  • 40. How can you protect yourself and your loved ones? 40
  • 41. Avoid tick infested areas including tall grasses, forests, logs and piles of leaves. 41 Melanie Holtsman, “24 - Jumping In" February 11, 2011 via Flickr, Creative Commons Attribution
  • 42. If you will be in a tick infested area, dress in light-colored clothing. 42
  • 43. Wear long sleeves and long pants. 43
  • 44. Tuck pants into socks. 44
  • 45. Use DEET on skin and pre-treat clothing with spray containing… 45
  • 46. There is… Knowledge and prevention is key. 46
  • 47. You can make a difference! 47
  • 48. References International Lyme and Associated Diseases: www.ilads.org California Lyme Disease Association: www.lymedisease.org Rosner, Bryan (2007). The Top Ten Lyme Disease Treatments: Defeat Lyme Disease with the Best of Conventional and Alternative Medicine. South Lake Tahoe, CA: Biomed Publishing Group. 48