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Because...
 There's No Health Without Mental Health!

                                  Winter 2011




                         What's Inside...
                         World Mental Health Day

                           Service User Stories

                                 KICKS

                        Annual Public Meeting 2011

                         Upcoming Events for 2012
Contents
    3 Welcome from Mary & Dan
    4 Our Governors
    5 Why I am a Governor
    6 Real Life Story - 40 years of Schizophenia
    7 KICKS - Kids in the community kick stigma!
                                                                            7
    8 Real Life Story - Hate Crime
    9 What we’ve been up to
                                                                                 9
    11 Dates for your diary




             Dear Member,
             Hello everyone.
                                                     e is jam-
             There’s been plenty going on! This issu
                                                     nts, stories
             packed with news and pictures of eve
             and lots more.
                                                    events.
             We hope to see you at our upcoming
                                                    keep an
             They’ve not all been finalised yet but
                                                      for more
             eye on our website or facebook page
                                                    on 01245
             information. Alternatively, contact me
                                                       k if you
             546481 or helene.samuel@nepft.nhs.u
                                                   cific event has
             want me to let you know when a spe
              been finalised.
                                                        s in the
              Something new is our KICKS page - kid very
                                                     are
              community kicking stigma. Youngsters
                                                       amazing
              aware of mental health issues and it’s
                                                     , based
              how many have first hand experience
                                                     doing
              on our visits to schools. And they are
                                                        to raise
              suc h wonderful things in the community
              awareness and help those with menta
               feel they are not alone.
                                                      l health issues
                                                                            9
                Helene Samuel

    Editor
    Helene Samuel, Communications Team
    Helene.Samuel@nepft.nhs.uk

    Layout and design
    Tracey Mann, Communications Team
    Tracey.Mann@nepft.nhs.uk


2                                      Got something to say? Get involved
                                       Email: Helene.Samuel@nepft.nhs.uk        10
Welcome
We would like to wish all our members a very Merry
Chirstmas and a Happy New Year!

There is unprecedented change in the NHS right now and we
                                                                   Mary St.Aubyn            Dan Kessler
want you to be involved now, whilst this is all happening.
                                                                     Chairman              Lead Governor
First, the facts
Last year we provided:
 * 512,000 pieces of care, up about 40,000 on the year before
 * 123,000 patient bed days
 * 442 patient bed days for the mother and baby unit
 * 85,000 appointments for the community
 * 23,000 crisis care packages
 * 70,000 phone calls to patients about their care

But stigma and discrimination still exist (see Christine's story on page 8) Mental illness can be a life
threatening condition and it's time we offered understanding and compassion.

So we need you for two reasons. One to help us improve our services with new ideas, new methods and
secondly to help us campaign for better understanding of mental health and the people who need help.

What you can do
* Tell us what you think
* Contact your Governors with ideas
* Become a campaigner
* Invite us to speak in your community or organisations
* Help us with interview panels, focus groups and staff training

So join in!



 Harry Young 1955 - 2011
 We’re very sad to report that Harry Young, one of the public Governors for Colchester, died in October.

 Dan Kessler, our lead Governor, paid tribute to Harry at a meeting of the Governors in November. “Harry
 was very well known in the Trust and amongst services users and carers as a tireless campaigner
 against the scourge of mental illness, something he experienced himself. I last saw him at our Annual
 Meeting in September when, true to form, he asked questions about service user involvement and
 wanting more of it, immediately! One of his big priorities was getting better help for young people
 experiencing mental illness. His commitment was the very definition of public service and what
 contributing for others really means. He would pop up all over Essex to speak up and speak out about
 services going well and when they weren’t going so well! It was a privilege to know and work with him.
 I’ll certainly miss him; I’m sure we all will.”

 At Harry’s funeral in November a number of Trust Governors, Directors and staff attended. The family
 asked for donations to the WWF (World Wide Fund for Nature). Music was a big part of Harry’s life and
 the ceremony started with ‘Let it be’ and concluded with “Go your own way” - all very Harry! The Trust
 has dedicated a film about the stigma campaign to Harry.




                                                               Got something to say? Get involved          3
                                                               Email: Helene.Samuel@nepft.nhs.uk
Our Governorsgold...
           worth their weight in
    Dave Monk                 , a radio presentor from BBC
    Essex and Trust Governor for Media, was presented with an
    award at the June Council of Governors meeting.

    Mary St Aubyn, Chairman, said: “You will always find Dave
    at the front and this is not because he’s a show off, but
    Dave is always out in front. Unusually for a journalist, he has
    championed mental health and all the issues around it by
    featuring the stories and people it affects.

    “Dave has been a terrific campaigner and raised his voice for           Dave Monk accepts his award from Mary
    our cause for a very long time. Some of his fans tell me that                           St.Aubyn
    he has been in this business for 25 years this year and we
    can’t let that pass - we’re presenting him with this star from all of his friends here at the Trust as a small
    recognition of his outstanding work for mental health - a star for a star - well done!”


                                Pat Hamilton                     , Public Governor for Uttlesford, recently spoke on
                                BBC Essex about mental health in rural areas.
                                He said, “I live in a rural area of north Essex. In the past I have been chair of
                                our local MIND and a carer for someone experiencing an episode of mental
                                ill-health. I am particularly interested in mental health in rural communities
                                as Uttlesford Mind sponsored a research project on this subject with Essex
                                University, under Dr Peter Martin (2003). This led
                                to The Uttlesford Rural Network (TURN). You don’t
         Pat Hamilton           have to go to Northumberland or Mid-Wales to find
                                rural communities.”

    Earlier this year,  David Bamber,              Public Governor for
    Harlow, organised a members meeting for the Harlow members. It
    was well attended and the presentation on the Derwent Centre update
    prompted much discussion. There was also a presentation by Andrew
    Geldard, Chief Executive.
                                                                                                David Bamber

                              Angela Barnes                      , Public Governor for Tendring: I’m back from
                              the Weeley Car Boot Sale where I had a stand to recruit new members. I talked
                              to several people, but it was not as busy as usual because of the Tendring Show.
                              Even so, I recruited two new members and so perhaps it's something that other
                              governors may consider doing in their areas. There was no cost to the Trust either
                              apart from a small amount of mileage, as I was allowed the pitch for nothing.

                              Also, on 1 December, at the launch of the Friends of the Landermere Centre,
                              I, as the Chair of the group was awarded with a cheque for £4,488.38 from the
                              Landermere Daisy Chain Appeal. The Landermere Daisy Chain Appeal was
       Angela Barnes          established as a Charity in 1996 and raised funds to buy a minibus for patients at
                              the Landermere Centre. The minibus was sold recently and the proceeds have
                              been donated to the group to buy new memory aid equipment for patients.

4                                                                             Got something to say? Get involved
                                                                              Email: Helene.Samuel@nepft.nhs.uk
Why I am a Governor
Clive White, Goveror for Voluntary
Organisations (Colchester Mind)
I have been a Governor for the Trust since the very beginning.

My recent Trust activities have been something of a mixture. I
chair the Youth Matters Group and present ideas to the Council of
Governors. Our main role has been to hear the plans for children’s
services and feed in views of our constituents. We have worked on
a number of areas that will allow greater input to the Board. It is still
my view that we need to develop this input even more. To that end
we have been working to get some young people invited into the
Trust to provide their view on what we are doing. Whilst completely
understanding the age limits on governors, it does mean we have
to find innovative ways of getting views direct from young people.
Inviting the youngsters seems to fit that innovation.


Mary Power, Public Governor for Chelmsford
My reason for becoming a Governor was to help improve local health services. I feel passionate about
this and feel that local users deserve to have a quality service available to them. I am a carer to a family
member who is a service user. I am aware of the stigma of mental
illness and feel able to be empathetic towards service users.

Some of the skills that I have developed during my working
career are the ability to communicate with staff from statutory and
voluntary services and members of the public, as I have spent
my working career with the NHS covering positions in Nursing,
Midwifery and Health Visiting. I also completed a degree in Social
Sciences and received inservice training from the Trust.

One of the roles of a Governor is to act as an advisor. This is
achieved by attending meetings with the Board of Directors and
being a key community link to feed back views, information and
news between the Trust and the community. Governors also work
with the Board to set priorities for improvements and change. Our
role is to carry this out in a positive, supportive manner.

My best skill is in signing up new members for the Trust and I carry
this out, some would say ‘fanatically!’ Everywhere I go I look for an
opportunity to sign people up as members. It is important that everyone is represented when signing up
members.

Some of the highlights of my short time in office include; taking part in the World Mental Health Day Walk
in Chelmsford, acting as a “Living Book” in Chelmsford Library to engage with the public and becoming a
member of Youth Matters as I have a special interest in young people. I am also chair of the Friends of the
Rainbow Mother and Baby Unit, where at a recent fundraising event, we managed to raise over £640 to
put towards toys for the unit. This was much more than the £500 we were aiming for, so thanks to all who
came.
                                                                    Got something to say? Get involved         5
                                                                    Email: Helene.Samuel@nepft.nhs.uk
40 years of Schizophenia
    David Bamber tells his story
    10 September 1973, aged 18,          I re-trained in computer             was convinced there was a plot
    was a big day when I started         programming with the help of the     to kill me. I was so convinced I
    an Honours Degree course             hospital Occupational Therapy        repeatedly set off the fire alarm
    at the University of Salford.        team to become a computer            to fetch the fire brigade to rescue
    Whatever the reason, this move       programmer.                          me from what I saw was the
    triggered what I know now as                                              danger of the staff. One night I
    the first ‘lucid’ symptoms of        Another short spell in hospital      was so deranged and frightened
    schizophrenia. In the months         after redundancy in 1995 and         I poured a bucket full of water
    following I heard voices in my                                            down the back of one of those old
    head, had delusional thoughts,
    and many other frightening
                                             “Then a miracle                  type TV sets, while people were
                                                                              watching it, although I ought to
    experiences. But I didn’t know           happened: they                   have known of the danger.
    what the pursuing hell was,
    where to get treatment and,
                                             started me on a                  Then a miracle happened:
    frankly, I was too ashamed               new drug called                  they started me on a new drug
    to openly admit there was                                                 called Amisulpiride, an atypical
    anything wrong.                           Amisulpiride”                   antipsychotic, which I am still
                                                                              on to this day. Within days I had
    In October 1982 I was admitted       then some retraining for future      vastly improved. Within weeks I
    to the then Hopkins Ward at The      work, whilst becoming financial      was into a recovery ward, and ‘off
    Princess Alexandra Hospital          director of the service user         section’. Well, out again into the
    Psychiatric Department. The          organisation, NEST for nearly        open world in late 2005, and how
    nightmare began. I would be in       three years.                         have I been doing since then?
    and out of this inpatient ward for                                        Some up’s and downs again, but
    the next three years, including      In May 2005 I was sectioned. The     not too bad, and I’ve managed
    one whole year as an inpatient.      next six months was an extremely     to stay out of hospital, and be
    The worst day of my life was         dark and very black period of        reasonably stable mentally.
    when my consultant told me           my life when I was
    I had a mental illness called        grossly unwell. I was
    schizophrenia. If cancer is to the   convinced the medical
    body then being told this is the     staff, under direction
    equivalent to the mind.              of the ‘Authorities’,
                                         were trying to kill me,
    But at last I had a diagnosis. I     and specifically poison
    didn’t need to hide it any more,     me. Every medication,
    or go round in agony not knowing     every food, every cup
    what I was suffering from. I was     of coffee, even fumes
    schizophrenic. It was a shock to     coming up the sink, I
    my family too, but we knew
    what it was now.

    In August 1983 I met my
    future wife and present
    partner in Hopkins Ward
    who, like me, suffers from
    schizophrenia. We married in
    May 1994.


6                                                                           Got something to say? Get involved
                                                                            Email: Helene.Samuel@nepft.nhs.uk
Reader’sy
                                                                                4 page Supplement
                                                                               Reader’sy
                                                                                      tor          S




       tor                                                                   S
                                  We met Celeste when she came along to one of our Poetry
                                  events in the summer, and she told us her story. Celeste
                                  agreed to share it with the Trust and all our members - you -
                                  so here it is. If you’d like to send your story in to us, please
                                  email foundationtrust@nepft.nhs.uk

I was born here in Colchester     March 1980; a salutary les-           cardiac care and the Intensive
in Sept 1966 and grew up be-      son at the age of 14 in human         Care Unit.
side the seaside in Clacton-on-   mortality and the fragile nature      Unfortunately I was very ill as
Sea with two younger sisters      of life - my first but certainly      a child and only found out this
and a much younger brother.       not my last. Luckily I had a          was due to a long-term chronic
                                  close relationship with various       kidney problem at the age of
My mum was young when she         family members (especially my         18. Although I completed my
had me and was a full-time        nana) who also lived in Clac-         nurse training I gradually slid
stay at home mother, always       ton, and I have many happy            into complete renal failure
there after school with comfort   and positive memories of my           which subsequently led to me
and home-cooked meals.            childhood. And yet, I also felt       being medically retired from
                                  like an outsider, I just didn’t fit   the NHS in 1993 at the grand
My dad was a self-employed        in anywhere because I felt so


                                                                        “I have many
electrician working locally and   different from those all around
home every evening until I was    me. I was troubled and angst-
8 years old when he fell into
a job as an electrical subcon-
                                  ridden even before I entered
                                  my teens and there are some
                                                                        happy and positive
tractor working offshore in       very real and painful memories        memories of my
the rapidly expanding North       of running away from home             childhood. And yet,
Sea gas and oil industry. He      at 11, getting into trouble with
                                                                        I also felt like an

                                                                                                       ”
worked two weeks on and two       the police for shoplifting, being
weeks off for the remainder of    bullied at school, underage           outsider
my time at home which was         drinking and even self-harming
tough on my mum and tough         from quite a young age. I
on us kids despite the obvi-      stayed silent and retreated           old age of 27. Dialysis soon
ous benefits of a significant     into a world of make-believe          followed for a couple of years
increase in our family income,    and books in order to sur-            but I was then lucky enough to
such as moving from a council     vive. However, somehow I got          receive a kidney from my mum
estate to a private house and     through it all and at the end         at the Royal London Hospital
holidays abroad instead of in     of 1985 at the age of 19, I left      in the summer of 1995. Since
the UK. My dad also came          home and went to Chelmsford           then I have been extremely
terrifyingly close to being on    to do my three year SRN train-        well although I have to take
the Alexander Kielland, a         ing. Once qualified I worked as       loads of anti-rejection tablets
Norwegian drilling rig which      a staff nurse in various places       daily and have regular blood
capsized in the North Sea in      including general medicine,           tests and check-ups. My mum
Reader’sy
       tor       S




is doing very well on her re-     one of my patients! He came       have been far too much of a
maining kidney and we usually     into Broomfield on New Year’s     cliché! He also has suffered
celebrate our ‘transplant day’    Eve 1988 for an emergency         some mental health issues in
every anniversary, the 15th of    appendicectomy and 3 days         the past decade, having been
August.                           later left with me! We married    diagnosed with severe clini-
                                  in Sept 1991 and have cele-       cal depression and enduring
I returned to nursing post-       brated our 20th wedding anni-     several cyclic episodes, usu-
transplant in 1999 and worked     versary recently. He’s my rock,   ally triggered by an increase
on both intensive care and the    my right-hand man and my          in his work load, and therefore
regional burns unit which was     soul mate; I’m so lucky to have   stress, in the yearly 3-month
very rewarding but extremely      met him and at least I didn’t     run up to Christmas when
stressful. I nursed a survivor    marry a doctor. That would        he’s at his busiest at work. I
of both the Paddington rail                                         should just mention here that


                                   “both incapacity
crash and the Admiral Duncan                                        he is a self-employed wall and
pub bombing in Soho. Difficult                                      floor tiler working from home
times.                                I am in receipt               as the sole trader of his own
                                   of                               business. His illness has been
I made the decision to leave                                        compounded by other issues
my career in 2002 as it was        benefit and DLA                  that I will mention later. When
starting to affect my physical
and mental health and have
                                   and, as a result,                you hear about the difficulties
                                                                    we have had to face in our
subsequently let my nursing        worry greatly                    married life then you probably
qualification lapse. I am in                                        will be no more surprised than
receipt of both incapacity ben-    about the pos-                   I was that he was heading for
efit and DLA and, as a result,     sible impact that                some sort of mental collapse at
worry greatly about the pos-                                        some point. It was like waiting
sible impact that the present      the present gov-                 for the proverbial accident to
government’s welfare reforms       ernment’s welfare                happen in that I saw it coming
will have on me.                                                    but because of my own issues
                                   reforms will have                found myself completely un-


                                                       ”
The same week that I passed                                         able to intervene and do any-
my nursing exams I also met
                                   on me.                           thing about it.
my husband, Jamie, who was                                          The crisis eventually happened
and we had to react to it the        husband’s job as a bricklayer
                                                                               Reader’sy
                                                                                      tor           S
best we could with the help of       in the recession of the early


                                                                       “I have so
a psychiatrist and the continu-      90s and subsequent repos-
ing and invaluable support of        session of our house. The
our very competent and un-           resulting mental breakdown
derstanding GP. Having finally
accepted his diagnosis Jamie
                                     I suffered in March 1995 led
                                     me to spend 3 months in the
                                                                       much to thank
is now more able to deal with        newly-opened Linden Centre        my present
his depression proactively. An       as a voluntary patient. From
increasing level of self-aware-      that I was (wrongly in my opin-   psychiatrist,
ness leading to a better, less       ion) diagnosed with depression
frantic work/life balance and        resulting in years of therapy     Dr Bisdee,
                                                                       for.
                                                                                     ”
getting the right drug therapy       and long-term SSRIs. After a
at the right dose and right time     few attempts to come off the
has worked small wonders and         antidepressants it took another
he is currently enjoying a long      13 years for me to reach crisis
period of remission.                 point. A psychotic episode just   stable frame of mind than I can
                                     before Christmas 2008 finally     ever remember.
Life has dealt us a few blows        led, five months later, to my     I have so much to thank my
over the years, the worst being      diagnosis of bipolar affective    present psychiatrist, Dr Bis-
the death of our only child in       disorder. Unable to go onto       dee, for. Initially I asked to see
March 1992 at the age of 10          Lithium because of my trans-      him because of my perceived
days. Daniel was born about          plant it has taken time and       incompatibility with the doctor
10 weeks prematurely and             some imagination on the part      I was initially referred to fol-
weighed in at only 2lb 6oz. He       of my GP and psychiatrist to      lowing my psychotic episode. I
fought so hard to live but sadly     get the drug regime right.        saw her twice and felt I wasn’t
we lost him and the effects of                                         being listened to or under-
that still deeply affect us today,   Thanks to all the help I’ve       stood. There was no trust there
as they were always bound to.        received from the CMHT, my        at all and I wasn’t happy with
                                     CPN, the MDF Bipolar Organi-      her inability to explain why she
The 90s were very difficult          sation and Rethink (a national    was prescribing some heavy-
years for us with the loss of my     mental health charity), I now     duty anti-psychotic medication
career, my physical health, my       find myself well and in a more    or give me any hint of a diag-
Reader’sy
       tor        S

nosis. Putting to one side the      happy to discuss new ideas           write to express myself, for the
fact that I was probably a little   and I feel that I can talk to him    sheer enjoyment and creativ-
paranoid and delusional at the      as an equal. His knowledge,          ity of it and because it’s good
time and had been experienc-        professionalism, expertise,          therapy.
ing some visual and auditory        humanity, support and humour
hallucinations something just       are invaluable to me and I am        Encouraged by having recently
didn’t feel right on the couple     under no illusion that without       become a media volunteer for
of occasions we met at the          his on-going support and input       Rethink and meeting up with
Linden Centre and so I exer-        I wouldn’t be as well or stable      Mike again at a recent event
cised my patient rights and         as I am at this present time.        I hope now that the time is
asked to see somebody else.         We work well together and it’s       right to take my writing forward
Luckily my concerns were            nice to know that should I feel      with a modicum of confidence
taken seriously and that is how     I was relapsing into mental          in my abilities. I am under no
I came to see Dr Bisdee for the     ‘unwellness’ at any point in the     illusion that I will become rich
first time in June 2009 when he     future that seeing him for an        and famous because of it but
gave me the totally expected        assessment and/or help is only       only hope to challenge peo-
(on my part) but still shocking     ever a phone call away.              ple’s ideas and preconcep-
diagnosis of Bipolar Affective                                           tions about mental illness. I
Disorder. At last the years of      Life is pretty stable at the         am passionate about helping
madness had a name. I had           moment and I am presently            to end the stigma, the fear, the
spent a dangerous five months       managing my bipolar disor-           prejudice and ignorance sur-
ultra-rapid cycling which is not    der well. I amuse myself by          rounding a subject that affects
a new Olympic event but the         reading, watching TV, being a        roughly one in four of the adult
psychiatric equivalent of be-       very hands-on aunty to vari-         population to some degree.
ing on a very fast and out of       ous nieces and nephews aged          Chances are that if you are
control rollercoaster. I had got    from 5-21 years, cooking,            sitting listening to this with 3 of
to the point where even I didn’t    keeping up with current affairs      your colleagues, or friends, or
have a clue about what I was        and generally trying to be the       family members…well, I guess
going to do next so it was an       best that I can be.                  you can do the maths! And so
immense relief to start treat-                                           if my writing and speaking to
ment.                               I started writing a journal in       groups such as yours in some
Since then I have seen him          1995 whilst in the Linden            way changes the way one
regularly every 3 months and        Centre (I have since shredded        person thinks or approaches
over time we have managed to        that in a moment of complete         mental ill-health then that is
build up a mutually respectful      madness a few years ago) and         enough reward for me. As the
and trusting working relation-      have carried on writing fairly       Rethink poster so succinctly
ship. In a similar fashion to       regularly since then when I          puts it – my ‘problem’ is bipolar
how I have dealt with my renal      have the time and inclination to     disorder. What’s yours? (Thank
problems over the years and         do so. I have been told many         you)
due in no small part to that        times over the years that I
particular experience I have        have a ‘talent’ for it but haven’t   Celeste E Thompson
managed to work in partner-         felt able to take it forward be-     Autumn 2011
ship with him. When I see him       cause of a lack of confidence
we always seem able to speak        in my abilities. I convince my-
openly and honestly about           self that people are only say-
anything; suggesting and            ing that to make me feel bet-
discussing treatment options,       ter etc....you know the sort of
drug regimes and therapeutic        thing....such is the unpredict-
options together. He is always      able nature of being bipolar. I
KICKS - Kids in the
community kick stigma!
       5QP                          W    e recently set up a group called 5QP made up of youngsters in
                                         work, school and who have used our services. Their job is to
                                     meet with teams throughout the Trust, ask them questions about the
                                     service and look around the unit. They then feed back to Andrew
                                      Geldard, chief executive, their views and ask pointed questions when
                                      necessary. The first trip was to Harkenwell, our child and adolescent
                                       centre in Maldon, where they were impressed with the staff and the
                                        unit but had questions around the number of staff available. Thank
                                         you to Ben, Ceri, Emma and Jess (and Clive White our Trust
                                          governor).




                  S    tudents from the Chantry High
                       School in Ipswich presented a
   Memory Blanket to the Trust on 13 July at the Defoe
Day Centre, Kings Wood Unit in Colchester. Helen
Comer, from Chantry High, led a delegation of students
and staff to King’s Wood where the blanket, made
specially to raise awareness of dementia, was presented
to Chairman, Mary StAubyn, Lead Governor, Dan Kessler,
Dr Mary Kennedy, Nurse Consultant for Dementia and
clinical manager, and Denise Cracknell, Ward Manager.



C   helmer Valley School and Cedar Hall School (Benfleet) also sent a number of cards from 30 students
    about dementia. Andrew Geldard, our Chief Executive, said, “Well done to these students. With
numbers rising, most families will know someone with dementia. There is no cure but we do believe in living
well with dementia. These students are fabulous because they show their caring sides, and we know it has
an impact on them too. This kind of action is a very practical way of showing they care”




                                S   oap Sence 2011 kicked off with a performance by Boswells School in
                                    Chelmsford. Inspired by the NHS, this play arose from one of the
                     awareness sessions the Trust recently made at the school.Interpretive dance takes
you through a family death and the subsequent demands, and depression of, a young man. The drama is
drawn out with the whole cast speaking statistics about mental illness, with the closing line being that only
1 in 4 who need help get it because of stigma and the taboos around it, as well as reasons such as the
side effects of some medications. Mike Waddington, Associate Director of Communications commented “A
great, moving performance”. Go to page 10 to find out more.


                                                                Got something to say? Get involved              7
                                                                Email: Helene.Samuel@nepft.nhs.uk
Hate Crime
    Christine’s story

    M
                   any people with        Comments where shouted in
                   mental health          the street, “you mental health          Christine is very keen to thank
                   problems say that      bitch” and “people like you are         all the staff at The Lakes for the
                   the biggest barrier    scum”, while children would throw       care she has received from them.
                   to getting back on     things at her front door. Equally       “They have helped a lot and have
    their feet is not the symptoms of     distressing was that neighbours         always been good to me”. She
    illness, but the attitudes of other   Christine had known for thirty          was also full of praise for the on-
    people.                               years would ignore her and cross        going support she has received
                                          the road. This all led to Christine     from the crisis team.
    The stigma and discrimination         not daring to leave the house.
    surrounding mental illness can                                                “I’ve hidden behind my mental
    make it difficult for people to       After some incidents the Police         health but I’ve got to speak out”
    maintain friendships, get a job or    became involved but felt that           she said. “I’m feeling well now
    get involved in their community.      their intervention could make           and I want to fight back”. Having
                                          the situation worse, a judgement        suffered the negative affects of
    Despite attitudes about sexuality,    Christine now accepts although          stigma, Christine feels this is
    ethnicity and other similar issues    she feels improved police liaison       often spurred on by negative
    improving, and despite some           in cases like this would be helpful.    stories in the media. “Having a
    improvements since the launch                                                 Mental Health problem doesn’t
    of Time to Change, discrimination     Although the family at the centre       mean you are evil, or nasty” she
    against people with mental health                                             says. “I wish there was better
    problems is still widespread.           “A Mental                             understanding of those suffering
                                                                                  with mental ill health and I wish
    Christine (not her real name)         Health problem                          the people who have been
    recently spoke to us about her                                                abusive could know what it feels
    own experiences.                       doesn’t mean                           like”.

    In 1998 Christine’s health            you are evil, or
    deteriorated to the point where
    she needed inpatient treatment            nasty”                                       On
    and spent fourteen weeks at The
    Lakes in Colchester. The police       of her torment were evicted in               Wednesday
    were present when she was taken       2008 (for unrelated reasons)                 29 February
    into care. She smiles now saying      Christine still occasionally sees
    “at the time I thought I was going    the women in town and “she                2012 we’re leaping
    to a fancy dress party!”.             looks daggers at me”. But she              against stigma in
    On her return home from hospital
                                          says, “I am no longer afraid; it
                                          took some courage but I said to
                                                                                      Colchester. Go
    she began to suffer a campaign        her, if you have a problem, talk            to page 11 for
    of verbal abuse by neighbours,
    particularly from one family.
                                          to me. She didn’t but I am not
                                          afraid.”
                                                                                        more info.


    Join our campaign; it is
    Time to Change and that time is now!
8                                                                               Got something to say? Get involved
                                                                                Email: Helene.Samuel@nepft.nhs.uk
What we’v e been up to
The Mary St.Aubyn Centre
Work on our new CAMHS (Child and Adolescent Mental Health
Service) unit is well underway and we can’t wait for the opening
next year.

The Centre - expected to be operational in June 2012 - has been named
after Mary St.Aubyn, the Chairman of the Trust, who stands down in one year’s time
after 10 years at the helm. Mary has been a firm champion of young people’s services and is
delighted with the honour.



      In June we kicked off World Mental Health Day with our
   Hopping Mad campaign. Trust governors, including Dave Monk
   from BBC Essex who led the charge, hopped around Central
                Park to highlight the stigma that still surrounds
                             mental ill health.



                                   Over 200 people took part in the Extra Mile walk on World Mental
                                 Health Day, 10 October 2011 in Central Park, Chelmsford. The event was
                                 organised by North Essex Partnership and supported by Virgin Active,
                                 Dorset Cereals, Britvic and Time to Change.

                                 The purple plaster, No Health without Mental Health, was worn by service
                                 users, staff and members of the public to raise awareness and stop mental
                                  health discrimination.



                           A groundbreaking partnership has been formed between the military, North Essex
                            Partnership and Combat Stress to look after the needs of veterans with mental
                             health problems.

                               The partnership, which works under the slogan “A United Approach”, held a
                                conference at the Weston Homes Community Stadium in Colchester on 18
                                 October, to explore the services already available for veterans locally and
                                  improve links between organisations.



               Stuart Ayris, Team     a man with schizophrenia/alcohol      health problems, fighting stigma
          Manager for Maldon          problems and his efforts to be        and showing that suffering from
   Adult Community Mental Health      reunited with the wife and son        a mental illness does not stop
 Team, has finished his second        he abandonned 24 years earlier.       someone being the hero of their
 book, a novel called Tollesbury      The book celebrates the spirit        own life.
 Time Forever. The novel is about     of people suffering with mental


                                                               Got something to say? Get involved              9
                                                               Email: Helene.Samuel@nepft.nhs.uk
Annual Public Meeting
     A
            round 300
            people
            attended
     the Trust’s Annual
     Public Meeting on 14
     September 2011 at
     the Central Baptist
     Church, Chelmsford.

     Bruce Calderwood,
     Director of Mental
     Health and Disability
     at the Department of
     Health was the guest
     speaker and he spoke
     about the Government’s mental         The winner was St Clere’s School       Dan Kessler, Lead Governor:
     health strategy, ‘No Health without   – the students were presented          “Congratulations - our best APM
     Mental Health’ and the future of      with a trophy by Mary St Aubyn,        to date.”
     mental health services.               Chairman. Boswells School
                                           was the runner up and Clacton
     Three local schools, (St Clere’s      Coastal Academy was highly
     School, Stanford-Le-Hope,             commended.
     Clacton Coastal Academy and
     Boswells School, Chelmsford)          Feedback
     performed their plays about           Linda Pearson, Staff Governor:
     mental health. The plays were         “The plays - well they spoke for
     written especially for a drama        themselves didn’t they - what
     competition which was organised       a wonderful idea that was. I do
     by the Trust to highlight mental      wish all our staff could have seen         Students performing from St
     health issues and end stigma.         them. It was an excellent APM.”                  Cleres School




     Coming Up
                             Schizophrenia
                            The National Inquiry into Schizophrenia is about to launch the questions it’s seeking
                           views on - We are planning three meetings around “Understanding Schizophrenia”
                          and will include service user and carer stories as well as medical and nursing
                                 opinions. Want to get involved? Then get in touch!



        2012 Drama & Speaking Competition
       The Trust’s Mental Health Drama competition for schools has been launched and this
      year also includes a public speaking competition on the theme, “OMG I cant believe
      what you just said about mental health” - want to get involved? If so let us know!



10                                                                              Got something to say? Get involved
                                                                                Email: Helene.Samuel@nepft.nhs.uk
Dates for your Diary
   22
                    Clacton Christmas Carers Event
                    Freeland Court Day Hospital in Clacton is holding it’s annual carers at Christmas event
                    on Thursday 22 December between 12noon and 3pm.
December
                    It will be an open door event for carers and the people that they care for to come and
                    find out about services available to them locally. It is also a time for carers to meet each
                    other and have a mince pie and a bit of Christmas cheer.


Governor Elections
We are looking for people to stand for election as Governors of the Trust (elections
take place between January and March 2012, by postal ballot).                                  18&25
We're looking for Governor candidates in ...                                                   January
Tendring, Colchester, Braintree, Epping and Uttlesford

We're also holding two events where you can chat with some Governors, to get a
better feel for what's needed and whether you want to give it a go! These will be held on Wednesday 18
January at 6.30pm - 8pm, and on Wednesday 25 January at 1pm - 3pm. Both gatherings will be held at
Trust HQ, Stapleford House, Stapleford Close, Chelmsford, CM2 0QX



                        World Mental Health Day Launch
        29              On Wednesday 29 February 2012 we’re leaping against stigma in Colchester. We
                        will be launching a conference about stigma that day to build up for a magnificent
     February           World Mental health Day on Wednesday 10 October 2012. If you want to be part
                        of the leaping (not bungee jumping!) but are prepared to go the extra few feet for
                        mental health - please us know.


                                                                                3 5 6                        1

     Brain Teaser                                                         3
                                                                            8
                                                                              5
                                                                              9
                                                                                  7
                                                                                    2
                                                                                                        6
                                                                                                             7

                                                                                                             4


Get Involved!                                                             7

                                                                          5
                                                                              7
                                                                                       2
                                                                                           4
                                                                                                    3
                                                                                                    1
                                                                                                             2

If you would like more information about our upcoming                                                   9
events or have you got something to say? Get involved!
Contact: Helene.Samuel@nepft.nhs.uk or call 0800 169 1625
                                                                          6            1 3 8


We want to know your recipes!
For our next issue we want to feature your favourite recipes, the ones that make you feel good. Send
us your best recipe, your reasons why it’s your favourite and pictures to: Tracey.Mann@nepft.nhs.uk.

                                                                                                                   11
Your Governors                                                      Your Governo
                                                                                   rs can’t can’t
                                                                   deal with pers
                                                                                    onal complain
                                                                   or concerns a                   ts
    Contact                                                                        bout the Tru
                                                                                                 st
                             u can                                 or your care
    There are two ways yo                                                        and treatmen
                                                                                                t.
                            :                                     For this, you
    contact your Governor                                                        should speak
                           Secretary,                             to your Care
    By letter. C/O Trust                                                         Co-ordinator
                           ce, NEPFT, 103                         call the Patie               or
    Trust Secretary’s offi                                                       nt Advice an
                               sford, CM2                        Liaison Servic               d
    Stapleford Close, Chelm                                                       e (PALS) on
                                                                 01245 546433 b
     0QX                                                                         etw
                            ntrust@nepft.                        and 4.30pm, M een 9am
     By email to foundatio                                                        onday - Frida
                                                                                                y.
     nhs.uk
                            s is below.
     A list of our governor
                              clude the
     Please remember to in
                              /s you wish
      name of the Governor
                            essage.
      to contact in your m


Public Governors:
Braintree:   Mikey Henderson, Matt Mills, Valerie Sach
Chelmsford: Mary Power, Steven Pruner, Cathy Trevaldwyn, Brian Winder
Colchester: Annette Bright, Peter Cheng, Lucy Taylor
East Herts: Michael Waller
Epping Forest: Sheila Jackman, Andrew Smith, Brian Spinks
Harlow:      David Bamber, Terrie Harris
Maldon:      David Pickles, David Williams
South Essex: David Fairweather
Suffolk:     Moshud Ali
Tendring:    Angela Barnes, Dan Kessler, Hugh Thompson

Stakeholder Governors:
Essex County Council:       Cllr Michael Skeels
HM Prison Chelmsford:       Robert Davis
Media:                      Dave Monk - BBC Essex
Primary Care Trusts:        Qadir Bakhsh - W Essex, David Barron - M Essex, Tim Young - NE Essex
TACMEP:                     Nick Ntiako Brown
Universities:               Allen Senivassen - Anglia Ruskin University
Voluntary Organisations:    Claire Lance - Alzheimer’s Society, Hazel Ruane - Essex Respite Assn,
                            Clive White - Colchester Mind



Contact us
If you would like to feature in one of our next stories or would like to get involved with any of our
events please get in touch. Contact: Helene.Samuel@nepft.nhs.uk or call 0800 169 1625
We’re now on facebook! Go to
http://www.facebook.com/pages/North-Essex-Partnership-NHS-Foundation-Trust/185462138139966
and have a look at our DVDs and photos.

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Because... There's no health without mental health (NEPFT member news)

  • 1. Because... There's No Health Without Mental Health! Winter 2011 What's Inside... World Mental Health Day Service User Stories KICKS Annual Public Meeting 2011 Upcoming Events for 2012
  • 2. Contents 3 Welcome from Mary & Dan 4 Our Governors 5 Why I am a Governor 6 Real Life Story - 40 years of Schizophenia 7 KICKS - Kids in the community kick stigma! 7 8 Real Life Story - Hate Crime 9 What we’ve been up to 9 11 Dates for your diary Dear Member, Hello everyone. e is jam- There’s been plenty going on! This issu nts, stories packed with news and pictures of eve and lots more. events. We hope to see you at our upcoming keep an They’ve not all been finalised yet but for more eye on our website or facebook page on 01245 information. Alternatively, contact me k if you 546481 or helene.samuel@nepft.nhs.u cific event has want me to let you know when a spe been finalised. s in the Something new is our KICKS page - kid very are community kicking stigma. Youngsters amazing aware of mental health issues and it’s , based how many have first hand experience doing on our visits to schools. And they are to raise suc h wonderful things in the community awareness and help those with menta feel they are not alone. l health issues 9 Helene Samuel Editor Helene Samuel, Communications Team Helene.Samuel@nepft.nhs.uk Layout and design Tracey Mann, Communications Team Tracey.Mann@nepft.nhs.uk 2 Got something to say? Get involved Email: Helene.Samuel@nepft.nhs.uk 10
  • 3. Welcome We would like to wish all our members a very Merry Chirstmas and a Happy New Year! There is unprecedented change in the NHS right now and we Mary St.Aubyn Dan Kessler want you to be involved now, whilst this is all happening. Chairman Lead Governor First, the facts Last year we provided: * 512,000 pieces of care, up about 40,000 on the year before * 123,000 patient bed days * 442 patient bed days for the mother and baby unit * 85,000 appointments for the community * 23,000 crisis care packages * 70,000 phone calls to patients about their care But stigma and discrimination still exist (see Christine's story on page 8) Mental illness can be a life threatening condition and it's time we offered understanding and compassion. So we need you for two reasons. One to help us improve our services with new ideas, new methods and secondly to help us campaign for better understanding of mental health and the people who need help. What you can do * Tell us what you think * Contact your Governors with ideas * Become a campaigner * Invite us to speak in your community or organisations * Help us with interview panels, focus groups and staff training So join in! Harry Young 1955 - 2011 We’re very sad to report that Harry Young, one of the public Governors for Colchester, died in October. Dan Kessler, our lead Governor, paid tribute to Harry at a meeting of the Governors in November. “Harry was very well known in the Trust and amongst services users and carers as a tireless campaigner against the scourge of mental illness, something he experienced himself. I last saw him at our Annual Meeting in September when, true to form, he asked questions about service user involvement and wanting more of it, immediately! One of his big priorities was getting better help for young people experiencing mental illness. His commitment was the very definition of public service and what contributing for others really means. He would pop up all over Essex to speak up and speak out about services going well and when they weren’t going so well! It was a privilege to know and work with him. I’ll certainly miss him; I’m sure we all will.” At Harry’s funeral in November a number of Trust Governors, Directors and staff attended. The family asked for donations to the WWF (World Wide Fund for Nature). Music was a big part of Harry’s life and the ceremony started with ‘Let it be’ and concluded with “Go your own way” - all very Harry! The Trust has dedicated a film about the stigma campaign to Harry. Got something to say? Get involved 3 Email: Helene.Samuel@nepft.nhs.uk
  • 4. Our Governorsgold... worth their weight in Dave Monk , a radio presentor from BBC Essex and Trust Governor for Media, was presented with an award at the June Council of Governors meeting. Mary St Aubyn, Chairman, said: “You will always find Dave at the front and this is not because he’s a show off, but Dave is always out in front. Unusually for a journalist, he has championed mental health and all the issues around it by featuring the stories and people it affects. “Dave has been a terrific campaigner and raised his voice for Dave Monk accepts his award from Mary our cause for a very long time. Some of his fans tell me that St.Aubyn he has been in this business for 25 years this year and we can’t let that pass - we’re presenting him with this star from all of his friends here at the Trust as a small recognition of his outstanding work for mental health - a star for a star - well done!” Pat Hamilton , Public Governor for Uttlesford, recently spoke on BBC Essex about mental health in rural areas. He said, “I live in a rural area of north Essex. In the past I have been chair of our local MIND and a carer for someone experiencing an episode of mental ill-health. I am particularly interested in mental health in rural communities as Uttlesford Mind sponsored a research project on this subject with Essex University, under Dr Peter Martin (2003). This led to The Uttlesford Rural Network (TURN). You don’t Pat Hamilton have to go to Northumberland or Mid-Wales to find rural communities.” Earlier this year, David Bamber, Public Governor for Harlow, organised a members meeting for the Harlow members. It was well attended and the presentation on the Derwent Centre update prompted much discussion. There was also a presentation by Andrew Geldard, Chief Executive. David Bamber Angela Barnes , Public Governor for Tendring: I’m back from the Weeley Car Boot Sale where I had a stand to recruit new members. I talked to several people, but it was not as busy as usual because of the Tendring Show. Even so, I recruited two new members and so perhaps it's something that other governors may consider doing in their areas. There was no cost to the Trust either apart from a small amount of mileage, as I was allowed the pitch for nothing. Also, on 1 December, at the launch of the Friends of the Landermere Centre, I, as the Chair of the group was awarded with a cheque for £4,488.38 from the Landermere Daisy Chain Appeal. The Landermere Daisy Chain Appeal was Angela Barnes established as a Charity in 1996 and raised funds to buy a minibus for patients at the Landermere Centre. The minibus was sold recently and the proceeds have been donated to the group to buy new memory aid equipment for patients. 4 Got something to say? Get involved Email: Helene.Samuel@nepft.nhs.uk
  • 5. Why I am a Governor Clive White, Goveror for Voluntary Organisations (Colchester Mind) I have been a Governor for the Trust since the very beginning. My recent Trust activities have been something of a mixture. I chair the Youth Matters Group and present ideas to the Council of Governors. Our main role has been to hear the plans for children’s services and feed in views of our constituents. We have worked on a number of areas that will allow greater input to the Board. It is still my view that we need to develop this input even more. To that end we have been working to get some young people invited into the Trust to provide their view on what we are doing. Whilst completely understanding the age limits on governors, it does mean we have to find innovative ways of getting views direct from young people. Inviting the youngsters seems to fit that innovation. Mary Power, Public Governor for Chelmsford My reason for becoming a Governor was to help improve local health services. I feel passionate about this and feel that local users deserve to have a quality service available to them. I am a carer to a family member who is a service user. I am aware of the stigma of mental illness and feel able to be empathetic towards service users. Some of the skills that I have developed during my working career are the ability to communicate with staff from statutory and voluntary services and members of the public, as I have spent my working career with the NHS covering positions in Nursing, Midwifery and Health Visiting. I also completed a degree in Social Sciences and received inservice training from the Trust. One of the roles of a Governor is to act as an advisor. This is achieved by attending meetings with the Board of Directors and being a key community link to feed back views, information and news between the Trust and the community. Governors also work with the Board to set priorities for improvements and change. Our role is to carry this out in a positive, supportive manner. My best skill is in signing up new members for the Trust and I carry this out, some would say ‘fanatically!’ Everywhere I go I look for an opportunity to sign people up as members. It is important that everyone is represented when signing up members. Some of the highlights of my short time in office include; taking part in the World Mental Health Day Walk in Chelmsford, acting as a “Living Book” in Chelmsford Library to engage with the public and becoming a member of Youth Matters as I have a special interest in young people. I am also chair of the Friends of the Rainbow Mother and Baby Unit, where at a recent fundraising event, we managed to raise over £640 to put towards toys for the unit. This was much more than the £500 we were aiming for, so thanks to all who came. Got something to say? Get involved 5 Email: Helene.Samuel@nepft.nhs.uk
  • 6. 40 years of Schizophenia David Bamber tells his story 10 September 1973, aged 18, I re-trained in computer was convinced there was a plot was a big day when I started programming with the help of the to kill me. I was so convinced I an Honours Degree course hospital Occupational Therapy repeatedly set off the fire alarm at the University of Salford. team to become a computer to fetch the fire brigade to rescue Whatever the reason, this move programmer. me from what I saw was the triggered what I know now as danger of the staff. One night I the first ‘lucid’ symptoms of Another short spell in hospital was so deranged and frightened schizophrenia. In the months after redundancy in 1995 and I poured a bucket full of water following I heard voices in my down the back of one of those old head, had delusional thoughts, and many other frightening “Then a miracle type TV sets, while people were watching it, although I ought to experiences. But I didn’t know happened: they have known of the danger. what the pursuing hell was, where to get treatment and, started me on a Then a miracle happened: frankly, I was too ashamed new drug called they started me on a new drug to openly admit there was called Amisulpiride, an atypical anything wrong. Amisulpiride” antipsychotic, which I am still on to this day. Within days I had In October 1982 I was admitted then some retraining for future vastly improved. Within weeks I to the then Hopkins Ward at The work, whilst becoming financial was into a recovery ward, and ‘off Princess Alexandra Hospital director of the service user section’. Well, out again into the Psychiatric Department. The organisation, NEST for nearly open world in late 2005, and how nightmare began. I would be in three years. have I been doing since then? and out of this inpatient ward for Some up’s and downs again, but the next three years, including In May 2005 I was sectioned. The not too bad, and I’ve managed one whole year as an inpatient. next six months was an extremely to stay out of hospital, and be The worst day of my life was dark and very black period of reasonably stable mentally. when my consultant told me my life when I was I had a mental illness called grossly unwell. I was schizophrenia. If cancer is to the convinced the medical body then being told this is the staff, under direction equivalent to the mind. of the ‘Authorities’, were trying to kill me, But at last I had a diagnosis. I and specifically poison didn’t need to hide it any more, me. Every medication, or go round in agony not knowing every food, every cup what I was suffering from. I was of coffee, even fumes schizophrenic. It was a shock to coming up the sink, I my family too, but we knew what it was now. In August 1983 I met my future wife and present partner in Hopkins Ward who, like me, suffers from schizophrenia. We married in May 1994. 6 Got something to say? Get involved Email: Helene.Samuel@nepft.nhs.uk
  • 7. Reader’sy 4 page Supplement Reader’sy tor S tor S We met Celeste when she came along to one of our Poetry events in the summer, and she told us her story. Celeste agreed to share it with the Trust and all our members - you - so here it is. If you’d like to send your story in to us, please email foundationtrust@nepft.nhs.uk I was born here in Colchester March 1980; a salutary les- cardiac care and the Intensive in Sept 1966 and grew up be- son at the age of 14 in human Care Unit. side the seaside in Clacton-on- mortality and the fragile nature Unfortunately I was very ill as Sea with two younger sisters of life - my first but certainly a child and only found out this and a much younger brother. not my last. Luckily I had a was due to a long-term chronic close relationship with various kidney problem at the age of My mum was young when she family members (especially my 18. Although I completed my had me and was a full-time nana) who also lived in Clac- nurse training I gradually slid stay at home mother, always ton, and I have many happy into complete renal failure there after school with comfort and positive memories of my which subsequently led to me and home-cooked meals. childhood. And yet, I also felt being medically retired from like an outsider, I just didn’t fit the NHS in 1993 at the grand My dad was a self-employed in anywhere because I felt so “I have many electrician working locally and different from those all around home every evening until I was me. I was troubled and angst- 8 years old when he fell into a job as an electrical subcon- ridden even before I entered my teens and there are some happy and positive tractor working offshore in very real and painful memories memories of my the rapidly expanding North of running away from home childhood. And yet, Sea gas and oil industry. He at 11, getting into trouble with I also felt like an ” worked two weeks on and two the police for shoplifting, being weeks off for the remainder of bullied at school, underage outsider my time at home which was drinking and even self-harming tough on my mum and tough from quite a young age. I on us kids despite the obvi- stayed silent and retreated old age of 27. Dialysis soon ous benefits of a significant into a world of make-believe followed for a couple of years increase in our family income, and books in order to sur- but I was then lucky enough to such as moving from a council vive. However, somehow I got receive a kidney from my mum estate to a private house and through it all and at the end at the Royal London Hospital holidays abroad instead of in of 1985 at the age of 19, I left in the summer of 1995. Since the UK. My dad also came home and went to Chelmsford then I have been extremely terrifyingly close to being on to do my three year SRN train- well although I have to take the Alexander Kielland, a ing. Once qualified I worked as loads of anti-rejection tablets Norwegian drilling rig which a staff nurse in various places daily and have regular blood capsized in the North Sea in including general medicine, tests and check-ups. My mum
  • 8. Reader’sy tor S is doing very well on her re- one of my patients! He came have been far too much of a maining kidney and we usually into Broomfield on New Year’s cliché! He also has suffered celebrate our ‘transplant day’ Eve 1988 for an emergency some mental health issues in every anniversary, the 15th of appendicectomy and 3 days the past decade, having been August. later left with me! We married diagnosed with severe clini- in Sept 1991 and have cele- cal depression and enduring I returned to nursing post- brated our 20th wedding anni- several cyclic episodes, usu- transplant in 1999 and worked versary recently. He’s my rock, ally triggered by an increase on both intensive care and the my right-hand man and my in his work load, and therefore regional burns unit which was soul mate; I’m so lucky to have stress, in the yearly 3-month very rewarding but extremely met him and at least I didn’t run up to Christmas when stressful. I nursed a survivor marry a doctor. That would he’s at his busiest at work. I of both the Paddington rail should just mention here that “both incapacity crash and the Admiral Duncan he is a self-employed wall and pub bombing in Soho. Difficult floor tiler working from home times. I am in receipt as the sole trader of his own of business. His illness has been I made the decision to leave compounded by other issues my career in 2002 as it was benefit and DLA that I will mention later. When starting to affect my physical and mental health and have and, as a result, you hear about the difficulties we have had to face in our subsequently let my nursing worry greatly married life then you probably qualification lapse. I am in will be no more surprised than receipt of both incapacity ben- about the pos- I was that he was heading for efit and DLA and, as a result, sible impact that some sort of mental collapse at worry greatly about the pos- some point. It was like waiting sible impact that the present the present gov- for the proverbial accident to government’s welfare reforms ernment’s welfare happen in that I saw it coming will have on me. but because of my own issues reforms will have found myself completely un- ” The same week that I passed able to intervene and do any- my nursing exams I also met on me. thing about it. my husband, Jamie, who was The crisis eventually happened
  • 9. and we had to react to it the husband’s job as a bricklayer Reader’sy tor S best we could with the help of in the recession of the early “I have so a psychiatrist and the continu- 90s and subsequent repos- ing and invaluable support of session of our house. The our very competent and un- resulting mental breakdown derstanding GP. Having finally accepted his diagnosis Jamie I suffered in March 1995 led me to spend 3 months in the much to thank is now more able to deal with newly-opened Linden Centre my present his depression proactively. An as a voluntary patient. From increasing level of self-aware- that I was (wrongly in my opin- psychiatrist, ness leading to a better, less ion) diagnosed with depression frantic work/life balance and resulting in years of therapy Dr Bisdee, for. ” getting the right drug therapy and long-term SSRIs. After a at the right dose and right time few attempts to come off the has worked small wonders and antidepressants it took another he is currently enjoying a long 13 years for me to reach crisis period of remission. point. A psychotic episode just stable frame of mind than I can before Christmas 2008 finally ever remember. Life has dealt us a few blows led, five months later, to my I have so much to thank my over the years, the worst being diagnosis of bipolar affective present psychiatrist, Dr Bis- the death of our only child in disorder. Unable to go onto dee, for. Initially I asked to see March 1992 at the age of 10 Lithium because of my trans- him because of my perceived days. Daniel was born about plant it has taken time and incompatibility with the doctor 10 weeks prematurely and some imagination on the part I was initially referred to fol- weighed in at only 2lb 6oz. He of my GP and psychiatrist to lowing my psychotic episode. I fought so hard to live but sadly get the drug regime right. saw her twice and felt I wasn’t we lost him and the effects of being listened to or under- that still deeply affect us today, Thanks to all the help I’ve stood. There was no trust there as they were always bound to. received from the CMHT, my at all and I wasn’t happy with CPN, the MDF Bipolar Organi- her inability to explain why she The 90s were very difficult sation and Rethink (a national was prescribing some heavy- years for us with the loss of my mental health charity), I now duty anti-psychotic medication career, my physical health, my find myself well and in a more or give me any hint of a diag-
  • 10. Reader’sy tor S nosis. Putting to one side the happy to discuss new ideas write to express myself, for the fact that I was probably a little and I feel that I can talk to him sheer enjoyment and creativ- paranoid and delusional at the as an equal. His knowledge, ity of it and because it’s good time and had been experienc- professionalism, expertise, therapy. ing some visual and auditory humanity, support and humour hallucinations something just are invaluable to me and I am Encouraged by having recently didn’t feel right on the couple under no illusion that without become a media volunteer for of occasions we met at the his on-going support and input Rethink and meeting up with Linden Centre and so I exer- I wouldn’t be as well or stable Mike again at a recent event cised my patient rights and as I am at this present time. I hope now that the time is asked to see somebody else. We work well together and it’s right to take my writing forward Luckily my concerns were nice to know that should I feel with a modicum of confidence taken seriously and that is how I was relapsing into mental in my abilities. I am under no I came to see Dr Bisdee for the ‘unwellness’ at any point in the illusion that I will become rich first time in June 2009 when he future that seeing him for an and famous because of it but gave me the totally expected assessment and/or help is only only hope to challenge peo- (on my part) but still shocking ever a phone call away. ple’s ideas and preconcep- diagnosis of Bipolar Affective tions about mental illness. I Disorder. At last the years of Life is pretty stable at the am passionate about helping madness had a name. I had moment and I am presently to end the stigma, the fear, the spent a dangerous five months managing my bipolar disor- prejudice and ignorance sur- ultra-rapid cycling which is not der well. I amuse myself by rounding a subject that affects a new Olympic event but the reading, watching TV, being a roughly one in four of the adult psychiatric equivalent of be- very hands-on aunty to vari- population to some degree. ing on a very fast and out of ous nieces and nephews aged Chances are that if you are control rollercoaster. I had got from 5-21 years, cooking, sitting listening to this with 3 of to the point where even I didn’t keeping up with current affairs your colleagues, or friends, or have a clue about what I was and generally trying to be the family members…well, I guess going to do next so it was an best that I can be. you can do the maths! And so immense relief to start treat- if my writing and speaking to ment. I started writing a journal in groups such as yours in some Since then I have seen him 1995 whilst in the Linden way changes the way one regularly every 3 months and Centre (I have since shredded person thinks or approaches over time we have managed to that in a moment of complete mental ill-health then that is build up a mutually respectful madness a few years ago) and enough reward for me. As the and trusting working relation- have carried on writing fairly Rethink poster so succinctly ship. In a similar fashion to regularly since then when I puts it – my ‘problem’ is bipolar how I have dealt with my renal have the time and inclination to disorder. What’s yours? (Thank problems over the years and do so. I have been told many you) due in no small part to that times over the years that I particular experience I have have a ‘talent’ for it but haven’t Celeste E Thompson managed to work in partner- felt able to take it forward be- Autumn 2011 ship with him. When I see him cause of a lack of confidence we always seem able to speak in my abilities. I convince my- openly and honestly about self that people are only say- anything; suggesting and ing that to make me feel bet- discussing treatment options, ter etc....you know the sort of drug regimes and therapeutic thing....such is the unpredict- options together. He is always able nature of being bipolar. I
  • 11. KICKS - Kids in the community kick stigma! 5QP W e recently set up a group called 5QP made up of youngsters in work, school and who have used our services. Their job is to meet with teams throughout the Trust, ask them questions about the service and look around the unit. They then feed back to Andrew Geldard, chief executive, their views and ask pointed questions when necessary. The first trip was to Harkenwell, our child and adolescent centre in Maldon, where they were impressed with the staff and the unit but had questions around the number of staff available. Thank you to Ben, Ceri, Emma and Jess (and Clive White our Trust governor). S tudents from the Chantry High School in Ipswich presented a Memory Blanket to the Trust on 13 July at the Defoe Day Centre, Kings Wood Unit in Colchester. Helen Comer, from Chantry High, led a delegation of students and staff to King’s Wood where the blanket, made specially to raise awareness of dementia, was presented to Chairman, Mary StAubyn, Lead Governor, Dan Kessler, Dr Mary Kennedy, Nurse Consultant for Dementia and clinical manager, and Denise Cracknell, Ward Manager. C helmer Valley School and Cedar Hall School (Benfleet) also sent a number of cards from 30 students about dementia. Andrew Geldard, our Chief Executive, said, “Well done to these students. With numbers rising, most families will know someone with dementia. There is no cure but we do believe in living well with dementia. These students are fabulous because they show their caring sides, and we know it has an impact on them too. This kind of action is a very practical way of showing they care” S oap Sence 2011 kicked off with a performance by Boswells School in Chelmsford. Inspired by the NHS, this play arose from one of the awareness sessions the Trust recently made at the school.Interpretive dance takes you through a family death and the subsequent demands, and depression of, a young man. The drama is drawn out with the whole cast speaking statistics about mental illness, with the closing line being that only 1 in 4 who need help get it because of stigma and the taboos around it, as well as reasons such as the side effects of some medications. Mike Waddington, Associate Director of Communications commented “A great, moving performance”. Go to page 10 to find out more. Got something to say? Get involved 7 Email: Helene.Samuel@nepft.nhs.uk
  • 12. Hate Crime Christine’s story M any people with Comments where shouted in mental health the street, “you mental health Christine is very keen to thank problems say that bitch” and “people like you are all the staff at The Lakes for the the biggest barrier scum”, while children would throw care she has received from them. to getting back on things at her front door. Equally “They have helped a lot and have their feet is not the symptoms of distressing was that neighbours always been good to me”. She illness, but the attitudes of other Christine had known for thirty was also full of praise for the on- people. years would ignore her and cross going support she has received the road. This all led to Christine from the crisis team. The stigma and discrimination not daring to leave the house. surrounding mental illness can “I’ve hidden behind my mental make it difficult for people to After some incidents the Police health but I’ve got to speak out” maintain friendships, get a job or became involved but felt that she said. “I’m feeling well now get involved in their community. their intervention could make and I want to fight back”. Having the situation worse, a judgement suffered the negative affects of Despite attitudes about sexuality, Christine now accepts although stigma, Christine feels this is ethnicity and other similar issues she feels improved police liaison often spurred on by negative improving, and despite some in cases like this would be helpful. stories in the media. “Having a improvements since the launch Mental Health problem doesn’t of Time to Change, discrimination Although the family at the centre mean you are evil, or nasty” she against people with mental health says. “I wish there was better problems is still widespread. “A Mental understanding of those suffering with mental ill health and I wish Christine (not her real name) Health problem the people who have been recently spoke to us about her abusive could know what it feels own experiences. doesn’t mean like”. In 1998 Christine’s health you are evil, or deteriorated to the point where she needed inpatient treatment nasty” On and spent fourteen weeks at The Lakes in Colchester. The police of her torment were evicted in Wednesday were present when she was taken 2008 (for unrelated reasons) 29 February into care. She smiles now saying Christine still occasionally sees “at the time I thought I was going the women in town and “she 2012 we’re leaping to a fancy dress party!”. looks daggers at me”. But she against stigma in On her return home from hospital says, “I am no longer afraid; it took some courage but I said to Colchester. Go she began to suffer a campaign her, if you have a problem, talk to page 11 for of verbal abuse by neighbours, particularly from one family. to me. She didn’t but I am not afraid.” more info. Join our campaign; it is Time to Change and that time is now! 8 Got something to say? Get involved Email: Helene.Samuel@nepft.nhs.uk
  • 13. What we’v e been up to The Mary St.Aubyn Centre Work on our new CAMHS (Child and Adolescent Mental Health Service) unit is well underway and we can’t wait for the opening next year. The Centre - expected to be operational in June 2012 - has been named after Mary St.Aubyn, the Chairman of the Trust, who stands down in one year’s time after 10 years at the helm. Mary has been a firm champion of young people’s services and is delighted with the honour. In June we kicked off World Mental Health Day with our Hopping Mad campaign. Trust governors, including Dave Monk from BBC Essex who led the charge, hopped around Central Park to highlight the stigma that still surrounds mental ill health. Over 200 people took part in the Extra Mile walk on World Mental Health Day, 10 October 2011 in Central Park, Chelmsford. The event was organised by North Essex Partnership and supported by Virgin Active, Dorset Cereals, Britvic and Time to Change. The purple plaster, No Health without Mental Health, was worn by service users, staff and members of the public to raise awareness and stop mental health discrimination. A groundbreaking partnership has been formed between the military, North Essex Partnership and Combat Stress to look after the needs of veterans with mental health problems. The partnership, which works under the slogan “A United Approach”, held a conference at the Weston Homes Community Stadium in Colchester on 18 October, to explore the services already available for veterans locally and improve links between organisations. Stuart Ayris, Team a man with schizophrenia/alcohol health problems, fighting stigma Manager for Maldon problems and his efforts to be and showing that suffering from Adult Community Mental Health reunited with the wife and son a mental illness does not stop Team, has finished his second he abandonned 24 years earlier. someone being the hero of their book, a novel called Tollesbury The book celebrates the spirit own life. Time Forever. The novel is about of people suffering with mental Got something to say? Get involved 9 Email: Helene.Samuel@nepft.nhs.uk
  • 14. Annual Public Meeting A round 300 people attended the Trust’s Annual Public Meeting on 14 September 2011 at the Central Baptist Church, Chelmsford. Bruce Calderwood, Director of Mental Health and Disability at the Department of Health was the guest speaker and he spoke about the Government’s mental The winner was St Clere’s School Dan Kessler, Lead Governor: health strategy, ‘No Health without – the students were presented “Congratulations - our best APM Mental Health’ and the future of with a trophy by Mary St Aubyn, to date.” mental health services. Chairman. Boswells School was the runner up and Clacton Three local schools, (St Clere’s Coastal Academy was highly School, Stanford-Le-Hope, commended. Clacton Coastal Academy and Boswells School, Chelmsford) Feedback performed their plays about Linda Pearson, Staff Governor: mental health. The plays were “The plays - well they spoke for written especially for a drama themselves didn’t they - what competition which was organised a wonderful idea that was. I do by the Trust to highlight mental wish all our staff could have seen Students performing from St health issues and end stigma. them. It was an excellent APM.” Cleres School Coming Up Schizophrenia The National Inquiry into Schizophrenia is about to launch the questions it’s seeking views on - We are planning three meetings around “Understanding Schizophrenia” and will include service user and carer stories as well as medical and nursing opinions. Want to get involved? Then get in touch! 2012 Drama & Speaking Competition The Trust’s Mental Health Drama competition for schools has been launched and this year also includes a public speaking competition on the theme, “OMG I cant believe what you just said about mental health” - want to get involved? If so let us know! 10 Got something to say? Get involved Email: Helene.Samuel@nepft.nhs.uk
  • 15. Dates for your Diary 22 Clacton Christmas Carers Event Freeland Court Day Hospital in Clacton is holding it’s annual carers at Christmas event on Thursday 22 December between 12noon and 3pm. December It will be an open door event for carers and the people that they care for to come and find out about services available to them locally. It is also a time for carers to meet each other and have a mince pie and a bit of Christmas cheer. Governor Elections We are looking for people to stand for election as Governors of the Trust (elections take place between January and March 2012, by postal ballot). 18&25 We're looking for Governor candidates in ... January Tendring, Colchester, Braintree, Epping and Uttlesford We're also holding two events where you can chat with some Governors, to get a better feel for what's needed and whether you want to give it a go! These will be held on Wednesday 18 January at 6.30pm - 8pm, and on Wednesday 25 January at 1pm - 3pm. Both gatherings will be held at Trust HQ, Stapleford House, Stapleford Close, Chelmsford, CM2 0QX World Mental Health Day Launch 29 On Wednesday 29 February 2012 we’re leaping against stigma in Colchester. We will be launching a conference about stigma that day to build up for a magnificent February World Mental health Day on Wednesday 10 October 2012. If you want to be part of the leaping (not bungee jumping!) but are prepared to go the extra few feet for mental health - please us know. 3 5 6 1 Brain Teaser 3 8 5 9 7 2 6 7 4 Get Involved! 7 5 7 2 4 3 1 2 If you would like more information about our upcoming 9 events or have you got something to say? Get involved! Contact: Helene.Samuel@nepft.nhs.uk or call 0800 169 1625 6 1 3 8 We want to know your recipes! For our next issue we want to feature your favourite recipes, the ones that make you feel good. Send us your best recipe, your reasons why it’s your favourite and pictures to: Tracey.Mann@nepft.nhs.uk. 11
  • 16. Your Governors Your Governo rs can’t can’t deal with pers onal complain or concerns a ts Contact bout the Tru st u can or your care There are two ways yo and treatmen t. : For this, you contact your Governor should speak Secretary, to your Care By letter. C/O Trust Co-ordinator ce, NEPFT, 103 call the Patie or Trust Secretary’s offi nt Advice an sford, CM2 Liaison Servic d Stapleford Close, Chelm e (PALS) on 01245 546433 b 0QX etw ntrust@nepft. and 4.30pm, M een 9am By email to foundatio onday - Frida y. nhs.uk s is below. A list of our governor clude the Please remember to in /s you wish name of the Governor essage. to contact in your m Public Governors: Braintree: Mikey Henderson, Matt Mills, Valerie Sach Chelmsford: Mary Power, Steven Pruner, Cathy Trevaldwyn, Brian Winder Colchester: Annette Bright, Peter Cheng, Lucy Taylor East Herts: Michael Waller Epping Forest: Sheila Jackman, Andrew Smith, Brian Spinks Harlow: David Bamber, Terrie Harris Maldon: David Pickles, David Williams South Essex: David Fairweather Suffolk: Moshud Ali Tendring: Angela Barnes, Dan Kessler, Hugh Thompson Stakeholder Governors: Essex County Council: Cllr Michael Skeels HM Prison Chelmsford: Robert Davis Media: Dave Monk - BBC Essex Primary Care Trusts: Qadir Bakhsh - W Essex, David Barron - M Essex, Tim Young - NE Essex TACMEP: Nick Ntiako Brown Universities: Allen Senivassen - Anglia Ruskin University Voluntary Organisations: Claire Lance - Alzheimer’s Society, Hazel Ruane - Essex Respite Assn, Clive White - Colchester Mind Contact us If you would like to feature in one of our next stories or would like to get involved with any of our events please get in touch. Contact: Helene.Samuel@nepft.nhs.uk or call 0800 169 1625 We’re now on facebook! Go to http://www.facebook.com/pages/North-Essex-Partnership-NHS-Foundation-Trust/185462138139966 and have a look at our DVDs and photos.