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Online Risk Assessment for the General Public
Liz Heathcote, Dr Larry Goldenberg, Dr Kendall Ho, Marcel
Labbe and Bradut Dima


                                  UBC
                                  Department of
Project funder:       Partners:   Urologic
                                  Sciences




                                                  eHealth   Strategy   Office
The drivers in figures…

76   Life expectancy of Canadian men (years)

4.4 Less years than Canadian women

65   “health expectancy” of Canadian men (years)




                                     eHealth   Strategy   Office
Project Goal

The ultimate project goal is to reduce the burden of
preventable disease
in (wo)men in BC
through educating them about
their individual health risks and
empowering them with evidence
-based recommendations for
how they can add 10 years to
the middle of their lives.



                                          eHealth   Strategy   Office
Project Aims


• Take a gendered lens to health risk assessment and
  participant reporting;
• Gather data from men and women about their health;
• Inform them about their risks; and
• Educate and motivate them to take positive action to
  improve their health and reduce their health risks
  through tailored education on the behavior changes
  needed and supports available to them.



                                         eHealth   Strategy   Office
Overview of work so far

Literature    Requirements     Expert Input     Design &         Test
                                                                         Programming
 Review         Gathering       & Review      Functionality     Cases



  …and to come

      Focus
                    Testing         Release       Evaluation            Phase 2?
     Groups

                   Survey
                  validation
                  Population
                   Datasets
                                                              eHealth   Strategy   Office
Challenges
• Evidence base for risks of developing disease

   • Expansive for some diseases/ populations, non-existent for
     others

   • Relevant population studies may not exist

   • Often contradictory findings

   • Multiple dependent variables

   • Understandable reticence to assign a risk score

   • Will change as further research is conducted



                                                  eHealth   Strategy   Office
The end in mind!
At the same time, we should
be able to identify those
factors that increase risk of
preventable diseases more
than others


and


this should assist in identifying
an individual’s top 3-4
recommendations.


                                    eHealth   Strategy   Office
Risk Continuum – by disease
  Inputs: evidence, expert opinion, test cases




  Low                                                       High

Score = Negative or 0                                 Score = 100%




                                            eHealth   Strategy   Office
Risk Continuum – by question

  Impact of that particular factor (e.g. BMI, exercise, smoking) on
  the overall disease risk.


  Within each factor, relative impact of each variable along the
  continuum (e.g. non-smoker, social, more than 15 a day)



  Low                                                              High

Score = Negative or 0                                               (Varies)
(zero if no risk to that disease)              Should reflect overall risk
                                               compared to other variables

                                                  eHealth   Strategy   Office
Design: Relative Importance of Risk Factors

            Family                         Health        Exercise
  BMI                     Diet   Smoking
            history                        history       Etc. etc

Disease A


                                               Health       Exercise
 BMI    Family history   Diet    Smoking
                                               history      Etc. etc

Disease B




                                            eHealth   Strategy      Office
0.00%
                                                                                                    1.00%
                                                                                                            2.00%
                                                                                                                    3.00%
                                                                                                                            4.00%
                                                                                                                                    5.00%
                                                                                                                                            6.00%
                                                                                                                                                    7.00%
                                                                                                                                                            8.00%




                                                                      -2.00%
                                                                                  -1.00%
                                                                                Gender
                                                                                     Age
                                                                           Ethnicity
                                                                                    BMI
                                                                      Cholesterol
                                                                                       BP
                                                                 Family: Diabetes
              Cardio Vascular disease (in first degree…
                                 Coronary heart disease in 1st degree…
                                    #Prostate Cancer (brother, father)
                                                                    Osteoporosis
                                                        osteo fractures (was q 40)
                                                        Mental health/Depression
                                                             Own History: Stroke
                                                                           Atrial Fib
                                                                      Head/ brain
                                                                       depression
                                                                               arthritis
                                                                               diabetes
                                                                    renal disease
                                                                   Chemotherapy
                                                               Hemochromatosis
                                  Minimum Risk Effect
           Maximum Risk Effect
                                                                                     HIV
                                                                                                                                                                                                                                             Low Testosterone




                                                                     Sleep Apnea
                                                                               Fracture
                                                                     Malnutrition
                                                                  Genital trauma
                                                                               Mumps
                                                               Radiation to Pelvis
                                                                Undesc. Testicles
                                                                Low Testosterone
                                                                Heart Medication
eHealth




                                                              Prostate Treatment
                                                                         Cortisone
                                                                               Smoking
                                                                               Alcohol
                                                                                                                                                            Chart showing minimum and maximum percentage weighting of the answer variables




                                                                  Unhealthy Diet
Strategy




                                                                                  Meat
                                                                                    milk
                                                                                 coffee
                                                                       soft drinks
Office




                                                                               Exercise
Cases - Online Risk Assessment
                                   100
                                             Case 1: A65 year old male, with no familybad cholesterol and is on medications for
                                                    13: 59-year-old man smoker, high history of prostate cancer presents with urinary
                                             this, diabetes x 5 one year. He is Caucasian and least one drink a he weekend heavy
                                             symptoms lasting years, drink alcohol regularly (athas mild diabetes,day,used to smoke but quit 5
                                             use of more than 6 drinks a sitting), occasional carbohydrate/ low strong family history
                                             years ago and drinks socially. He enjoys a high cocaine use, has afiber diet, does eat a of
                                   80        heart problems, comes in because of & he pain after exercise.
                                             lot of animal fat and processed meat chestis fairly inactive,exercising less than 3 times per week.
Risk Percentage Assessed by Tool




                                   60
                                                                                                                                       ED
                                                                                                                                       Card.
                                                                                                                                       Low T
                                   40                                                                                                  Diab.
                                                                                                                                       Prost.
                                                                                                                                       Bone
                                                                                                                                       Mental
                                   20




                                     0
                                         0      1   2    3    4    5   6    7    8   9    10   11   12   13   14   15   16   17   18



                                   -20
                                                                                Case Number
                                                                                                                   eHealth        Strategy         Office
Online Prototype
Design

           Family                                Health      Exercise
  BMI                      Diet        Smoking
           history                               history     Etc. etc


Lifestyle/ modifiable factors
1. Determine risk of the 7 diseases;
2. Where risk is medium or high, calculate which lifestyle or
   modifiable factor would have the most impact on reducing the
   risk;
3. Recalculate risks using the 3-4 lifestyle suggestions which will
   have most positive impact.


                                                  eHealth   Strategy    Office
Lessons so far
• Flexibility in design!
• Dealing with unknowns
• Expert tools
• Keep the ultimate goal uppermost
• Gender aspects
• Iterative design & development




                                     eHealth   Strategy   Office
Thanks to the team!
Medical Sponsors/Leads
Dr Larry Goldenberg, Dr Kendall Ho
Men’s Health Initiative of BC
Marcel Labbe, Wayne Hartrick, Joe Rachert, Dr
Larry Mroz
eHealth Strategy Office Programming team
Bradut Dima, Peter Chow and Rick Shun
Online Risk Assessment for the General Public
Online Risk Assessment for the General Public

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Online Risk Assessment for the General Public

  • 1. Online Risk Assessment for the General Public Liz Heathcote, Dr Larry Goldenberg, Dr Kendall Ho, Marcel Labbe and Bradut Dima UBC Department of Project funder: Partners: Urologic Sciences eHealth Strategy Office
  • 2. The drivers in figures… 76 Life expectancy of Canadian men (years) 4.4 Less years than Canadian women 65 “health expectancy” of Canadian men (years) eHealth Strategy Office
  • 3. Project Goal The ultimate project goal is to reduce the burden of preventable disease in (wo)men in BC through educating them about their individual health risks and empowering them with evidence -based recommendations for how they can add 10 years to the middle of their lives. eHealth Strategy Office
  • 4. Project Aims • Take a gendered lens to health risk assessment and participant reporting; • Gather data from men and women about their health; • Inform them about their risks; and • Educate and motivate them to take positive action to improve their health and reduce their health risks through tailored education on the behavior changes needed and supports available to them. eHealth Strategy Office
  • 5. Overview of work so far Literature Requirements Expert Input Design & Test Programming Review Gathering & Review Functionality Cases …and to come Focus Testing Release Evaluation Phase 2? Groups Survey validation Population Datasets eHealth Strategy Office
  • 6. Challenges • Evidence base for risks of developing disease • Expansive for some diseases/ populations, non-existent for others • Relevant population studies may not exist • Often contradictory findings • Multiple dependent variables • Understandable reticence to assign a risk score • Will change as further research is conducted eHealth Strategy Office
  • 7. The end in mind! At the same time, we should be able to identify those factors that increase risk of preventable diseases more than others and this should assist in identifying an individual’s top 3-4 recommendations. eHealth Strategy Office
  • 8. Risk Continuum – by disease Inputs: evidence, expert opinion, test cases Low High Score = Negative or 0 Score = 100% eHealth Strategy Office
  • 9. Risk Continuum – by question Impact of that particular factor (e.g. BMI, exercise, smoking) on the overall disease risk. Within each factor, relative impact of each variable along the continuum (e.g. non-smoker, social, more than 15 a day) Low High Score = Negative or 0 (Varies) (zero if no risk to that disease) Should reflect overall risk compared to other variables eHealth Strategy Office
  • 10. Design: Relative Importance of Risk Factors Family Health Exercise BMI Diet Smoking history history Etc. etc Disease A Health Exercise BMI Family history Diet Smoking history Etc. etc Disease B eHealth Strategy Office
  • 11. 0.00% 1.00% 2.00% 3.00% 4.00% 5.00% 6.00% 7.00% 8.00% -2.00% -1.00% Gender Age Ethnicity BMI Cholesterol BP Family: Diabetes Cardio Vascular disease (in first degree… Coronary heart disease in 1st degree… #Prostate Cancer (brother, father) Osteoporosis osteo fractures (was q 40) Mental health/Depression Own History: Stroke Atrial Fib Head/ brain depression arthritis diabetes renal disease Chemotherapy Hemochromatosis Minimum Risk Effect Maximum Risk Effect HIV Low Testosterone Sleep Apnea Fracture Malnutrition Genital trauma Mumps Radiation to Pelvis Undesc. Testicles Low Testosterone Heart Medication eHealth Prostate Treatment Cortisone Smoking Alcohol Chart showing minimum and maximum percentage weighting of the answer variables Unhealthy Diet Strategy Meat milk coffee soft drinks Office Exercise
  • 12. Cases - Online Risk Assessment 100 Case 1: A65 year old male, with no familybad cholesterol and is on medications for 13: 59-year-old man smoker, high history of prostate cancer presents with urinary this, diabetes x 5 one year. He is Caucasian and least one drink a he weekend heavy symptoms lasting years, drink alcohol regularly (athas mild diabetes,day,used to smoke but quit 5 use of more than 6 drinks a sitting), occasional carbohydrate/ low strong family history years ago and drinks socially. He enjoys a high cocaine use, has afiber diet, does eat a of 80 heart problems, comes in because of & he pain after exercise. lot of animal fat and processed meat chestis fairly inactive,exercising less than 3 times per week. Risk Percentage Assessed by Tool 60 ED Card. Low T 40 Diab. Prost. Bone Mental 20 0 0 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 -20 Case Number eHealth Strategy Office
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  • 18. Design Family Health Exercise BMI Diet Smoking history history Etc. etc Lifestyle/ modifiable factors 1. Determine risk of the 7 diseases; 2. Where risk is medium or high, calculate which lifestyle or modifiable factor would have the most impact on reducing the risk; 3. Recalculate risks using the 3-4 lifestyle suggestions which will have most positive impact. eHealth Strategy Office
  • 19. Lessons so far • Flexibility in design! • Dealing with unknowns • Expert tools • Keep the ultimate goal uppermost • Gender aspects • Iterative design & development eHealth Strategy Office
  • 20. Thanks to the team! Medical Sponsors/Leads Dr Larry Goldenberg, Dr Kendall Ho Men’s Health Initiative of BC Marcel Labbe, Wayne Hartrick, Joe Rachert, Dr Larry Mroz eHealth Strategy Office Programming team Bradut Dima, Peter Chow and Rick Shun

Notas del editor

  1. Men’s Health Initiative of BC (MHIBC)Canadian men have a life expectancy of 76 and in BC live on average 4.4 years less than women. But beyond length of life, more revealing statistics relate to the age at which a person loses their good health (“Health Expectancy”) and the numbers of years of life lost because of dying at an early age (“Potential Years of Life Lost”). With an average health expectancy of 65 years, Canadian men may experience 11 or more years of poor health and disability before they die. And Canadian men have a 20% higher number of potential years of life lost, as they are more likely to die at a younger age when struck by a stroke or heart disease, or as a result of risk taking behaviour, suicide, or workplace mortality.
  2. Lit Review – existing risk assessments, health behavior change & health risks by diseaseReq’s – 7 diseases (CVD, Diabetes, Mental Health, Bone Disease, ED, Low Testosterone, Prostate)
  3. Login issues especially for men – focus group