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Increasing access
      to psychological
      therapies for
      people with a
      learning disability


                      Fleur-Michelle Coiffait
                  University of Edinburgh & NHS Lothian
Monday, 14 May 2012
Overview of presentation




Monday, 14 May 2012
LD and mental health
                            • MH problems and ψ distress
                              more common in this group
                              (Dosen & Day, 2001; Haddock & Jones, 2006; Brown & Marshall, 2006)


                            • Estimated prevalence
                              30-50%              (Smiley, 2005)


                            • MH needs continue to be
                              unrecognised and unmet
                            • LD services need to follow
                              mainstream mental health
                              services (Hatton & Taylor, 2005)


Monday, 14 May 2012
Key Scottish policy documents
Monday, 14 May 2012
Key Scottish policy documents
Monday, 14 May 2012
Key Scottish policy documents
Monday, 14 May 2012
Key Scottish policy documents
Monday, 14 May 2012
Key Scottish policy documents
Monday, 14 May 2012
Key Scottish policy documents
Monday, 14 May 2012
Key Scottish policy documents
Monday, 14 May 2012
Key Scottish policy documents
Monday, 14 May 2012
IAPT south of the border
     • £173 million invested
       2007 - 2011
     • IAPT primary care
       services
     • Low / high intensity
       therapists
     • Work at defined steps




Monday, 14 May 2012
IAPT and learning disabilities




Monday, 14 May 2012
IAPT and learning disabilities
                      • Inclusion, improving
                        access for minorities




Monday, 14 May 2012
IAPT and learning disabilities
                      • Inclusion, improving
                        access for minorities
                      • Service
                        commissioning for
                        whole community




Monday, 14 May 2012
IAPT and learning disabilities
                      • Inclusion, improving
                        access for minorities
                      • Service
                        commissioning for
                        whole community
                      • Overcoming health
                        inequality in NHS
                        services




Monday, 14 May 2012
IAPT and learning disabilities
                      • Inclusion, improving
                        access for minorities
                      • Service
                        commissioning for
                        whole community
                      • Overcoming health
                        inequality in NHS
                        services
                      
 …the reality?


Monday, 14 May 2012
Scottish policy context
      Delivering for Mental Health (2006)
      ‘The Matrix’ (2008)
      • Adults
      • Children, young people, families
      • Long-term conditions
      • Physical health




Monday, 14 May 2012
Scottish policy context
      Delivering for Mental Health (2006)
      ‘The Matrix’ (2008)
      • Adults
      • Children, young people, families
      • Long-term conditions
      • Physical health

                                …where is LD?



Monday, 14 May 2012
Psychological therapies for
                  people with LD
     • The ‘unoffered
       chair’         (Bender, 1993)


     • Growing evidence
       base for CBT                        (Beail, 2003)


     • Multidisciplinary
       biopsychosocial
       formulation                     (Ingham et al., 2008)


     • Behavioural family
       therapy


Monday, 14 May 2012
Psychological therapies for
                  people with LD
     • The ‘unoffered
       chair’         (Bender, 1993)


     • Growing evidence
       base for CBT                        (Beail, 2003)


     • Multidisciplinary
       biopsychosocial
       formulation                     (Ingham et al., 2008)


     • Behavioural family
       therapy
                                                               …why not?
Monday, 14 May 2012
Stepped care in LD services
                      • Already used?
                      • Feasible?
                      • How would it work?
                      • How would it look?
                      • Skills gaps?
                      • Training / supervision
                        needs?
                      • Alternatives?



Monday, 14 May 2012
Methodology
     • 2 x 45 min focus
       groups
     • P’s – CLDT:
       psychiatrist, 4 x
       nurses, SLT, OT,
       physio, team secretary
     • Audio recorded and
       transcribed verbatim
     • Process notes
     • Stimulus material and
       topic guide
Monday, 14 May 2012
Topic guide
     • Recognition/
       assessment
     
 of MH / ψ needs
     • How these needs are
       met
     • Understanding / use of
       ψ approaches
     • Supervision, training
     • Stepped care


Monday, 14 May 2012
Data and analysis
                              • 90 mins discussion,
                                >16,000 words
                              • Transcribed in full
                              • NVivo 8 used for
                                coding and
                                organising thoughts
                              • Thematic analysis




Monday, 14 May 2012
Thematic map
               Lack of         Barriers to     Varying levels
              standard        recognising      of knowledge
                Lack of
            assessment       mental health      and training
             standardised
           protocol / tool       needs
              procedure /
               Lack of
                  tool
             structured,      Barriers to          Time
              evidence-        meeting          constraints
                based        mental health
             approaches         needs

              Supervision     Not enough
                                                Firefighting
                issues       people to do it




Monday, 14 May 2012
Conclusions
     • Differing levels of MH /
       ψ knowledge, training,
       experience and
       confidence
     • Lack of standardised
       assessment tools/
       protocols
     • Limited evidence base →
       limited training/
       guidelines/ policy
       available
Monday, 14 May 2012
Acknowledgements

                            North East
                         Edinburgh CLDT

                          Keith Marshall,
                        CBT Therapist in LD




Monday, 14 May 2012
Thanks for
                                                       listening




                  © Luc Coiffait Photography
             kindly provided by www.luccoiffait.com
Monday, 14 May 2012

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Increasing access to psychological therapies for people with a learning disability

  • 1. Increasing access to psychological therapies for people with a learning disability Fleur-Michelle Coiffait University of Edinburgh & NHS Lothian Monday, 14 May 2012
  • 3. LD and mental health • MH problems and ψ distress more common in this group (Dosen & Day, 2001; Haddock & Jones, 2006; Brown & Marshall, 2006) • Estimated prevalence 30-50% (Smiley, 2005) • MH needs continue to be unrecognised and unmet • LD services need to follow mainstream mental health services (Hatton & Taylor, 2005) Monday, 14 May 2012
  • 4. Key Scottish policy documents Monday, 14 May 2012
  • 5. Key Scottish policy documents Monday, 14 May 2012
  • 6. Key Scottish policy documents Monday, 14 May 2012
  • 7. Key Scottish policy documents Monday, 14 May 2012
  • 8. Key Scottish policy documents Monday, 14 May 2012
  • 9. Key Scottish policy documents Monday, 14 May 2012
  • 10. Key Scottish policy documents Monday, 14 May 2012
  • 11. Key Scottish policy documents Monday, 14 May 2012
  • 12. IAPT south of the border • £173 million invested 2007 - 2011 • IAPT primary care services • Low / high intensity therapists • Work at defined steps Monday, 14 May 2012
  • 13. IAPT and learning disabilities Monday, 14 May 2012
  • 14. IAPT and learning disabilities • Inclusion, improving access for minorities Monday, 14 May 2012
  • 15. IAPT and learning disabilities • Inclusion, improving access for minorities • Service commissioning for whole community Monday, 14 May 2012
  • 16. IAPT and learning disabilities • Inclusion, improving access for minorities • Service commissioning for whole community • Overcoming health inequality in NHS services Monday, 14 May 2012
  • 17. IAPT and learning disabilities • Inclusion, improving access for minorities • Service commissioning for whole community • Overcoming health inequality in NHS services …the reality? Monday, 14 May 2012
  • 18. Scottish policy context Delivering for Mental Health (2006) ‘The Matrix’ (2008) • Adults • Children, young people, families • Long-term conditions • Physical health Monday, 14 May 2012
  • 19. Scottish policy context Delivering for Mental Health (2006) ‘The Matrix’ (2008) • Adults • Children, young people, families • Long-term conditions • Physical health …where is LD? Monday, 14 May 2012
  • 20. Psychological therapies for people with LD • The ‘unoffered chair’ (Bender, 1993) • Growing evidence base for CBT (Beail, 2003) • Multidisciplinary biopsychosocial formulation (Ingham et al., 2008) • Behavioural family therapy Monday, 14 May 2012
  • 21. Psychological therapies for people with LD • The ‘unoffered chair’ (Bender, 1993) • Growing evidence base for CBT (Beail, 2003) • Multidisciplinary biopsychosocial formulation (Ingham et al., 2008) • Behavioural family therapy …why not? Monday, 14 May 2012
  • 22. Stepped care in LD services • Already used? • Feasible? • How would it work? • How would it look? • Skills gaps? • Training / supervision needs? • Alternatives? Monday, 14 May 2012
  • 23. Methodology • 2 x 45 min focus groups • P’s – CLDT: psychiatrist, 4 x nurses, SLT, OT, physio, team secretary • Audio recorded and transcribed verbatim • Process notes • Stimulus material and topic guide Monday, 14 May 2012
  • 24. Topic guide • Recognition/ assessment of MH / ψ needs • How these needs are met • Understanding / use of ψ approaches • Supervision, training • Stepped care Monday, 14 May 2012
  • 25. Data and analysis • 90 mins discussion, >16,000 words • Transcribed in full • NVivo 8 used for coding and organising thoughts • Thematic analysis Monday, 14 May 2012
  • 26. Thematic map Lack of Barriers to Varying levels standard recognising of knowledge Lack of assessment mental health and training standardised protocol / tool needs procedure / Lack of tool structured, Barriers to Time evidence- meeting constraints based mental health approaches needs Supervision Not enough Firefighting issues people to do it Monday, 14 May 2012
  • 27. Conclusions • Differing levels of MH / ψ knowledge, training, experience and confidence • Lack of standardised assessment tools/ protocols • Limited evidence base → limited training/ guidelines/ policy available Monday, 14 May 2012
  • 28. Acknowledgements North East Edinburgh CLDT Keith Marshall, CBT Therapist in LD Monday, 14 May 2012
  • 29. Thanks for listening © Luc Coiffait Photography kindly provided by www.luccoiffait.com Monday, 14 May 2012