Health IT Summit in Seattle 2014 - Presentation “Integration and Collaboration: A Vision for a Pediatric Health Information Network (PHIN)” Wes Wright, SVP, CIO, Seattle Children’s Presentation “Integration and Collaboration: A Vision for a Pediatric Health Information Network (PHIN)” Seattle Children’s Hospital (SCH) has a mission to prevent, treat and eliminate pediatric disease throughout the Pacific Northwest. That mission includes connecting patients, parents and providers with the information and support they need to manage care from birth to early adulthood. Pediatric healthcare poses a number of unique challenges. Unfortunately, these needs are not well served by typical state or regional health information exchanges (HIEs), which are designed primarily to support an adult patient population and its caregivers. For this reason, SCH and its provider partners are establishing a pediatric health information network (PHIN) spanning Washington, Alaska, Montana, and Idaho. SCH’s IT strategy is simple: To provide critical clinical and research data to those who need it at the right time, in the right place, and on the right device. The PHIN strategy takes this a step further by creating connected pediatric care communities. SCH has over 357,000 patient visits a year and nearly 15,000 admissions. It has received nationwide recognition for pioneering SIDS research, craniofacial surgeries, and innovative leukemia therapies. Through partnerships, it operates across a multistate region with complex rules for sharing pediatric data. In combination with its clinically integrated network partners (CIN), led by Pediatric Associates, the initial PHIN will link nearly 90% of all pediatric providers in the region and span more than 40 electronic health record (EHR) systems. What if this innovative vision for a pediatric HIE were expanded to a national scale? This session will describe the strategic, technological, and human factors that must come together for an initiative of this magnitude, and the leadership and passion that is making it possible.

1. Seattle Children’s: Integration and Collaboration, A Vision for a Pediatric Health Information Network
IHT2
Aug 20, 2014

2. A Little About Me…
•Joined Seattle Children’s in March 2008
•VP and Chief Technology Officer –responsible for day-to-day operations
•Moved to CIO position in August, 2012
•Health Information Services and Air Force Background
•Health Services Administration USAF 1991 –2006
•Clinics to Hospitals
•Scripps Health, San Diego 2006 –2008
•Executive Director, IS and Deputy CIO
•Associate member of CHIME and HIMSS since 1997
•Graduate of
•University of Maryland, Asian Division (BS)
•University of New Mexico (MBA)

3. Seattle Children’s Mission
We believe all children have unique needs and should grow up without illness or injury. With the support of the community and through our spirit of inquiry, we will prevent, treat and eliminate pediatric disease.

4. Our Vision
We will be the best children’s hospital.

6. KOMO TV: First Wash. leukemia patient to try new therapy is cancer free
7/10/2013 -Seattle Children's Hospital made a landmark announcement Wednesday –the first leukemia patient in the state to try a new cancer therapy is disease free. Los Angeles Times:With new plastic surgery technique, boy's face is removed, realigned
8/01/2013 -Dr. Richard Hopper, head of the craniofacial surgery center at Seattle Children’s Hospital, has developed a ground-breaking surgical technique to help kids with Apert syndrome lead more normal lives. Puget Sound Business Journal: Seattle Children’s researcher finds a clue to the mystery of SIDS
09/26/2013 -Dr. Daniel Rubens, a physician and researcher at Seattle Children’s Hospital, made another breakthrough in his research into Sudden Infant Death Syndrome (SIDS), a mysterious disease that leaves grieving parents looking for answers that science has yet to provide.

7. •Inpatient beds323 (278)
•Patient visits357,206
•Outpatient visits 293,072
•Admissions14,494
•Only 20% from Seattle
•Employees 5,569
•Medical Staff1,309
•Residents/Fellows 225
•Volunteers969
Seattle Children’s Today

8. The focus on value is driving new business models and partnership strategies
Value
Cost
Quality
=
Delivery
Safety
Confidential and proprietary information
8

9. Seattle Children’s Response to A Changing Health Care Environment
Health Information Exchange:
“It is not the strongest of the species that survive, nor the most intelligent, but the one most responsive to change.”
Charles Darwin
“The ones who have the data provide the best value.”
Wes Wright

10. Why an HIE ?

11. Healthcare –it’s kind of complicated

12. Healthcare –it’s kind of complicated

13. Healthcare –it’s kind of complicated
Patient Demographics
Patient Demographics
Clinical Summary (CCD)
Clinical Summary (CCD)
Community Health Exchange
(PHIN)
Data Repository
Master Patient Index
HTTP/XDS
Query
HTTP/XDS
Query

14. It’s complicated legally too…
•Age of consent
•Different state-by-state
•13 in WA
•Sensitive Data
•Different state-by-state
•Reproductive
•Psycho/social
•Nuclear Option
•13-18 no data put in HIE
•13-18 no access to portals

15. But we’re going to do it!
•Pediatric Health Information Network (PHIN—get it?)
PHIN

16. The Role of IT and Data Aggregation
8/26/2014 16
CIN
Immunizations
Referrals
Demographics
Vitals
Active Meds
CCD
SCH Ref Lab
Patients and
Families
Seattle Children’s
Document
Reconciliation Mpage,
Clinical Viewer
ORM/ORU/VXU/
Custom
Messages
PPIC
B-ACO
External HIE or
System
PIX/XDS.b/XCA/
FAX/Direct
Message
Delivery
IMAGING
CENTERS
PAC
3M, Transition
of Care
Epic/CIS ADT
ORU/MDM/DICO
M/Custom
Image Exchange
PHIN

17. Our first steps in data gathering…
•SCH Data Elements outbound to HealthShare:
•Documents–H&P, Transfer Summaries, DC Summaries, Clinic Summaries, ED Summaries
•Labs Results
•Radiology Reports –Future plans to integrate into Image Repository
•Diagnostic Studies –Endoscopy-GI, Speech ,Nutrition, NeuroDX, CV PACs,Holter, OT/PT, Audiology
•Immunizations –Future plans to interopwith State Registry
•Vitals –Height, Weight, Head Circumference, BMI in Metric
•Demographics –Including Deceased Flag and consent flag
•Referrals
•Active Meds –Service level change and clinic visit
•Allergies
•PedsData Elements outbound to HealthShare:
•Immunizations
•Vitals –Height, Weight, Head Circumference, BMI in Metric
•Demographics –Including Deceased Flag and consent flag is possible
•Referrals
•Active Meds –Service level change and clinic visit

18. Workflow Integration

19. Workflow Integration

20. No more blind spots!
•Clinicians with patients
•Patients with Clinicians

21. Back to the Value Equation
•Quality
•All your providers know what’s gone on with you/your child
•Delivery
•Potential for instantaneous “virtual” consultations
•Module for electronic referrals
•Safety
•All known allergies, immunizations, drug-drug interactions
•Cost
•No repeat tests –MRI, Lab, etc
•Population Health
•Are you doing all you can to stay healthy?

22. Our Vision
We will be the best children’s hospital.

23. Questions and Comments
Thank you!