My presentation about Nightscout at the American Diabetes Association meeting 2015! Thanks @Danam @ScottLeibrand

1. Joyce Lee, MD, MPH
Nightscout Community
@NightscoutProj @joyclee
#wearenotwaiting
Nightscout:
A Community Designing
the Future of Healthcare

2. Social Media Editor,
JAMA Pediatrics
Healthdesignby.us

3. @joyclee

4. 75%
of children fail to achieve
recommended blood sugar
goals in Type 1 Diabetes

6. Healthcare: “Fax us your numbers!”
Kid: “Mom, what’s a fax? Is it
compatible with Snapchat?”

9. Some people wonder why almost
no one uploads their pump data…
I think I know why: because
getting it to work can be like
CRAWLING. THROUGH.
BROKEN. GLASS.
@HowardLook

11. 75%
of providers/healthcare
systems fail to help
children achieve
recommended blood sugar
goals in Type 1 Diabetes

12. Patient problems
are really
design problems
Joyce Lee, MD
Medical Designer

13. Fix the design,
and it’s no longer the
patient’s problem
Joyce Lee, MD
Medical Designer

14. Let patients and caregivers
design, and they will
fix the problem!
The Nightscout
Project

15. Patient as
expert
maker
collaborator
#thefutureofdiabetestechnology

16. Patient as
expert

17. http://bit.ly/10IUyph

20. Patient as
maker

26. Patient as
collaborator

27. “We continued to work on our apps
and tools, more folks on twitter began
to notice – and it became very clear
that people really wanted this tool. It
was life changing for us, and other
parent’s immediately saw the value,
the hope for a less complex, safer,
healthier life it can bring.”
“Freedom!”

29. “We continued to work on our apps
and tools, more folks on twitter began
to notice – and it became very clear
that people really wanted this tool. It
was life changing for us, and other
parent’s immediately saw the value,
the hope for a less complex, safer,
healthier life it can bring.”
“Freedom!”
-John Costik

37. 12,500+ members

45. #diyps
OpenAPS.org

47. Upcoming Nightscout Studies
• Descriptive Survey
• Ethnography (Health communities/
Makers)
• Facebook Mining
• Patient-driven Research Network?

48. Take the survey!
www.nightscoutsurvey.info

49. # of completed surveys
1 day after release!

50. MD to Patient
Passive
Solitary
Closed

51. Patient to Patient
Active
Collaborative
Open

52. THANK YOU
The CGM in the Cloud community
Emily Hirschfeld, Preciosa Choi,
Weston Nordgren, Ben West,
Dana Lewis, Scott Leibrand, Jason Adams,
John Costik, James Wedding,
Nightscout Foundation
Twitter: @NightscoutProj
FB: CGM in the Cloud
#wearenotwaiting