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THE NEW FRONTIER RESEARCH ENGAGEMENT SYSTEM

                                        Man Hung, Tao He



The purpose of the project

The goal of this project is to develop a research engagement system (a web-based application

product) that connects potential patients, caregivers and other stakeholders into patient-centered

outcomes research. This project will effectively bring the voice of patients and interested

stakeholders to the research process and maximize patient-centeredness across diverse

populations. It will also give patients, caregivers and others the opportunities to easily

collaborate with researchers.


The stakeholders

There are many stakeholders who may participate in a research study. Figure 1 depicts a map

showing the potential stakeholders or users of this research engagement system.

                                    Figure 1: Stakeholders map.
Constraints

The product shall initially be developed on Macintosh and Windows-based machines. Future

development will include expansion to other operating systems and mobile application.


The scope of the work

The scope of the project includes developing a web-based application that can serve to connect

interested collaborators, including patients and various stakeholders, to formulate research

questions, develop research materials, determine research protocols and help to review and

disseminate research results.


The business data model

The product will consist of at least the following web pages.
(1)     Main page:
a.      Center page; top row is web title;
b.      Two columns; left is pictures; right is <I am researcher> and <I am participant> and login
area (user name/password/forget password)
c.      Bottom row is company and language chooses


(2)     Register page:
a.      Center page; top row is web title;
b.      Register area
(a)     Researcher: name/email/password/organization/title(/state/city/phone/biosketch/)interests
(b)
interests or project titles
c.      Bottom row is company and language chooses


(3)     Forgot password page:
a.      Center page; top row is web title;
b.      Password area
(a)    Please input your registered email account. Password change link will be set by this link.
(b)    Set new password and confirm your password again. Go to login page
c.     Bottom row is company and language chooses


(4)    Login page:
a.     Center page; top row is web title;
b.     Login area
(a)    Choose login type: researcher / participant
(b)    User name/password
(c)
c.     Bottom row is company and language chooses


(5)    User page:
a.     Center page; top row has web title, login user’s menu buttons (small icon, Name,
message center) log off button
b.     User menu column; (User Icon; profile)
(a)    Researcher: left menu (message center; projects; collaborators; participants)
(b)    Researcher: right menu (followers; followings)
(c)    Participant: left menu (message center; projects; researchers;)
(d)    Participant: right menu (followers; followings)
(e)


(6)    Project page:
a.     Center page; top row has web title, login user’s menu buttons (small icon, Name,
message center) log off button
b.     Survey List; (survey title; status; authors; setting; responses; statistics; document;
preview) click on title will go to Survey edit page.


(7)
Figure 2 depicts the database enterprise relational model for the product.


                                 Figure 2: Database EER model
Usability and humanity requirements

The following list the ease of use and learning requirements for all users of the product.

   1. The product shall be easy for 10-year-old to 100-year-old to use.

   2. The product shall help user to avoid making mistakes.

   3. The product shall make the users want to use it.

   4. The product shall be used by people with no training, and possibly no understanding of

       English.

   5. The product shall be accessible by elderly and people with disabilities and physical

       challenges.

   6. The product shall conform to the Americans with Disabilities Act.

   7. The product shall retain the user’s research and other preferences.

   8. The product shall allow the user to select a chosen language.

   9. The product shall be easy for researchers, patients and all stakeholders to learn.

   10. The product shall be able to be used by members of the public who will receive no

       training before using it.

   11. The product shall hide the details of the construct from the user.

   12. The product shall use symbols and words that are naturally understandable by the general

       public.


Security and privacy requirements

The following list the security requirements for the product.

   1. The product shall prevent incorrect data from being introduced.

   2. The product shall make its users aware of its information practices before collecting data

       from them.
3. The product shall notify users of changes to its information policy.

4. The product shall protect private information in accordance with the relevant privacy

   laws.

5. The product shall not be offensive to religious or ethnic groups.

6. Personal information shall be implemented so as to comply with the Data Protection Act.

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Overall plan new frontier

  • 1. THE NEW FRONTIER RESEARCH ENGAGEMENT SYSTEM Man Hung, Tao He The purpose of the project The goal of this project is to develop a research engagement system (a web-based application product) that connects potential patients, caregivers and other stakeholders into patient-centered outcomes research. This project will effectively bring the voice of patients and interested stakeholders to the research process and maximize patient-centeredness across diverse populations. It will also give patients, caregivers and others the opportunities to easily collaborate with researchers. The stakeholders There are many stakeholders who may participate in a research study. Figure 1 depicts a map showing the potential stakeholders or users of this research engagement system. Figure 1: Stakeholders map.
  • 2. Constraints The product shall initially be developed on Macintosh and Windows-based machines. Future development will include expansion to other operating systems and mobile application. The scope of the work The scope of the project includes developing a web-based application that can serve to connect interested collaborators, including patients and various stakeholders, to formulate research questions, develop research materials, determine research protocols and help to review and disseminate research results. The business data model The product will consist of at least the following web pages. (1) Main page: a. Center page; top row is web title; b. Two columns; left is pictures; right is <I am researcher> and <I am participant> and login area (user name/password/forget password) c. Bottom row is company and language chooses (2) Register page: a. Center page; top row is web title; b. Register area (a) Researcher: name/email/password/organization/title(/state/city/phone/biosketch/)interests (b) interests or project titles c. Bottom row is company and language chooses (3) Forgot password page: a. Center page; top row is web title; b. Password area
  • 3. (a) Please input your registered email account. Password change link will be set by this link. (b) Set new password and confirm your password again. Go to login page c. Bottom row is company and language chooses (4) Login page: a. Center page; top row is web title; b. Login area (a) Choose login type: researcher / participant (b) User name/password (c) c. Bottom row is company and language chooses (5) User page: a. Center page; top row has web title, login user’s menu buttons (small icon, Name, message center) log off button b. User menu column; (User Icon; profile) (a) Researcher: left menu (message center; projects; collaborators; participants) (b) Researcher: right menu (followers; followings) (c) Participant: left menu (message center; projects; researchers;) (d) Participant: right menu (followers; followings) (e) (6) Project page: a. Center page; top row has web title, login user’s menu buttons (small icon, Name, message center) log off button b. Survey List; (survey title; status; authors; setting; responses; statistics; document; preview) click on title will go to Survey edit page. (7)
  • 4. Figure 2 depicts the database enterprise relational model for the product. Figure 2: Database EER model
  • 5. Usability and humanity requirements The following list the ease of use and learning requirements for all users of the product. 1. The product shall be easy for 10-year-old to 100-year-old to use. 2. The product shall help user to avoid making mistakes. 3. The product shall make the users want to use it. 4. The product shall be used by people with no training, and possibly no understanding of English. 5. The product shall be accessible by elderly and people with disabilities and physical challenges. 6. The product shall conform to the Americans with Disabilities Act. 7. The product shall retain the user’s research and other preferences. 8. The product shall allow the user to select a chosen language. 9. The product shall be easy for researchers, patients and all stakeholders to learn. 10. The product shall be able to be used by members of the public who will receive no training before using it. 11. The product shall hide the details of the construct from the user. 12. The product shall use symbols and words that are naturally understandable by the general public. Security and privacy requirements The following list the security requirements for the product. 1. The product shall prevent incorrect data from being introduced. 2. The product shall make its users aware of its information practices before collecting data from them.
  • 6. 3. The product shall notify users of changes to its information policy. 4. The product shall protect private information in accordance with the relevant privacy laws. 5. The product shall not be offensive to religious or ethnic groups. 6. Personal information shall be implemented so as to comply with the Data Protection Act.