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TRANSMURAL
 FAMILY GUIDANCE
what is the difference with
   OPEN DIALOGUE?
2nd International Conference on
      Dialogical Practices
        Margreet de Pater
      Truus van den Brink
        Leuven, 8-3-2013
The changing mental health
        system in the Netherlands
                 in 1993!!
     There has been many contradictory changes since then!!

• The government wanted multifunctional units, where
  continuity of care during hospitalization was possible
• The managers wanted large facilities
• The government subsidized new forms of care and discouraged
  old ones
• Family movement was strong
• Some workers in the mental health system also wanted change
Conclusions conferences
     continuity of care [1993]
• Rehabilitation has to start early in treatment
• More possibilities than hospitalization or outpatient
  clinic alone, there must be a range of facilities
• Help must start early
• Must be an answer to what a patient and family and
  friends ask
• Must also be practical
• The process of dialogue was the most important
Writing a program of care
• 1996 Somewhere in the organization we in Zeist were
  told to write a program
• We involved patients, colleagues, families, referring
  colleagues through conferences
• We finished it in 1997
• Then we had to do it again together with a whole
  bunch of people from al kind of parties
• The finishing touch was gender friendly
• The board of directors approved in 2001
The essentials of the program
• There must be a stable team of
  –   The patient
  –   The family
  –   A case manager
  –   A psychiatrist




Throughout the mental health system
• The case manager is a fellow traveler
• All parties are helping each other
  and have a dialogue
   – Systemic crisis intervention
   – Family work
   – Crisis plan
• When this is not enough patient is not referred but
  help from other facilities is added
• When there is enough safety patient can
   – Take part in a group where information is given and
     experience shared
   – Learn to cope in a Lieberman group
   – Learn to cope with his experiences in cognitive behavior
     therapy
   – Rehabilitate himself
So this multi functional unit offering
     Transmural Family Guidance
     resembles the Finnish model

•Need-adapted treatment given by the same team
•Working with families from the very first start in open
dialogue, every voice is heard
•An outreaching team
•The possibility to add intensive home treatment by
the IHT-team, visits twice a day were possible
•Care conferences (not within 24 hours)
What were the differences with the
      Finnish circumstances?
• We had to work in the shadow of a large
  university facility
• Which was biologically oriented
• Had a high status
• Nearly all patients with a first psychosis started
  there
• Longer admissions
The nature of the family work
  The Transmural Family Guidance
• Theory: there is a circular relationship between psychosis,
  development of the person and family reactions
• Labeled as possibly adolescent development crisis
• Organization: starts from the very first crisis
• Content: starts as family psycho-education.
• Setting limits to overwhelming psychotic behavior
• Then problem solving and promoting autonomy of the psychotic
  person
• No intensive family story taking
• Family talks about their problems during this process
Sources
• Jay Haley, leaving home
• Family crisis intervention from Frank Pittmann III
  [RCT in the sixties!!! Controls: hospital
  admissions]: helping family and patient to do the
  right thing [flooding].
  Please don’t act crazy, it does confuse me, you may only act
                  crazy in your own bedroom
• Family psycho-education of Julian Leff: teaching
  and doing, instead of interviewing
Differences with open dialogue
Open dialogue                    Trans mural family guidance
• Mindful be with the family     • Assist family to set limits
• Listening carefully            • Educational
• The theme of the psychosis     • More on family structure
  refers to the nature of the    • Promoting clear
  family difficulty                communication
• The dialogue flows             • Open conflicts without good
• When family can speak of the     or bad
  theme of psychosis then        • When family hierarchy is
  there is a better prognosis      restored we expect better
                                   prognosis
Similarities
Open dialogue                   Transmural family guidance
• Staying with the family       • Staying with the family
• No family member is allowed   • Patient is not allowed to
  to terrorize others             terrorize
• Speaking about themes of      • Family is open about family
  family/psychosis                life during process
• In context of needadapted     • In context of continuity of
  treatment                       care of MFE
Qualitative research
• 46 patients and family members (37 TMG).
• What is the process was only one of the
  questions
Outcome
• There was a balance between wishes of the
  patient and the families
• Sometimes more distance but to our surprise
  often more closeness
• Patients took more responsibility [accepting
  their vulnerability] and parents accepted this
• Family contact only in crisis
• Sometimes patients could talk about the
  theme of psychosis
• However, cognitive deficits remained
Vignet 1
• Moroccan guy: thinks he is possessed by Jesus
  and Maria
• Family was strict Islamic, but school was
  Christian, father tried to convince schoolleader
  about praying but didn’t succeed
• After family intervention he can tell his father
  that he missed his influence very much in school
Vignet 2
•   Young guy was psychotic after caraccident
•   But before that the light in his eyes disappeared
•   Was very suicidal during psychosis
•   Tells his parents he was sexual abused by older
    women
It would be very
interesting to compare
this two ways of family
          work
However
the biggest problem in
 the Netherlands is the
complex system of care
        promoted by
  a thick layer of managers
“New” developments
• RIAGG Amersfoort & Omstreken, Regional
  Institute for Community Mental Health
• No (day)clinic, ambulatory care only, outpatient
  clinic or outreachend, crisis intervention team,
  treatment teams
• November 2012: Intensieve Home Treatment
• 2013: Care program psychotic and bipolar
  disorders to be written and implemented
Intensive Home Treatment
• Goal: prevent hospital admission or facilitate early
  discharge from an acute ward.
• IHT means (twice) daily home visits by a multi-
  disciplinary team of mental health professionals.
• Treatment consists of medication, counseling, practical
  help and support for relatives.
• Family involvement is an absolute condition: dialogue!
• The team is available 24 hours a day, during a limited
  period of 6 weeks.
• IHT continues until the crisis has resolved and the
  patient is transferred to further care.
Care Program Psychotic and Bipolar
            Disorders
• Though different syndromes, shared needs of
  care
• First episodes and long lasting treatment
• Open dialogues with patients and their families:
  we have the same goal, different knowledge and
  responsibilities
• Should we choose the Open Dialogue or
  Transmural Family Guidance?
  The Finnish or Zeister approach?
And there are more new
    opportunities!
  Everywhere in the country
  are mobile first psychosis
           teams
But they have not
discovered family work
          yet
          So
 there is work to do!
Suggestions ?
• Why is familywork, which is evidence
  based, not used everywhere?
• How to implement familywork with
  open/transmural dialogue
  in more teams?
• What should we do in Amersfoort?
Thank you for your attention

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Margreet de pater

  • 1. TRANSMURAL FAMILY GUIDANCE what is the difference with OPEN DIALOGUE? 2nd International Conference on Dialogical Practices Margreet de Pater Truus van den Brink Leuven, 8-3-2013
  • 2. The changing mental health system in the Netherlands in 1993!! There has been many contradictory changes since then!! • The government wanted multifunctional units, where continuity of care during hospitalization was possible • The managers wanted large facilities • The government subsidized new forms of care and discouraged old ones • Family movement was strong • Some workers in the mental health system also wanted change
  • 3. Conclusions conferences continuity of care [1993] • Rehabilitation has to start early in treatment • More possibilities than hospitalization or outpatient clinic alone, there must be a range of facilities • Help must start early • Must be an answer to what a patient and family and friends ask • Must also be practical • The process of dialogue was the most important
  • 4.
  • 5. Writing a program of care • 1996 Somewhere in the organization we in Zeist were told to write a program • We involved patients, colleagues, families, referring colleagues through conferences • We finished it in 1997 • Then we had to do it again together with a whole bunch of people from al kind of parties • The finishing touch was gender friendly • The board of directors approved in 2001
  • 6. The essentials of the program • There must be a stable team of – The patient – The family – A case manager – A psychiatrist Throughout the mental health system
  • 7. • The case manager is a fellow traveler • All parties are helping each other and have a dialogue – Systemic crisis intervention – Family work – Crisis plan • When this is not enough patient is not referred but help from other facilities is added • When there is enough safety patient can – Take part in a group where information is given and experience shared – Learn to cope in a Lieberman group – Learn to cope with his experiences in cognitive behavior therapy – Rehabilitate himself
  • 8. So this multi functional unit offering Transmural Family Guidance resembles the Finnish model •Need-adapted treatment given by the same team •Working with families from the very first start in open dialogue, every voice is heard •An outreaching team •The possibility to add intensive home treatment by the IHT-team, visits twice a day were possible •Care conferences (not within 24 hours)
  • 9. What were the differences with the Finnish circumstances? • We had to work in the shadow of a large university facility • Which was biologically oriented • Had a high status • Nearly all patients with a first psychosis started there • Longer admissions
  • 10. The nature of the family work The Transmural Family Guidance • Theory: there is a circular relationship between psychosis, development of the person and family reactions • Labeled as possibly adolescent development crisis • Organization: starts from the very first crisis • Content: starts as family psycho-education. • Setting limits to overwhelming psychotic behavior • Then problem solving and promoting autonomy of the psychotic person • No intensive family story taking • Family talks about their problems during this process
  • 11. Sources • Jay Haley, leaving home • Family crisis intervention from Frank Pittmann III [RCT in the sixties!!! Controls: hospital admissions]: helping family and patient to do the right thing [flooding]. Please don’t act crazy, it does confuse me, you may only act crazy in your own bedroom • Family psycho-education of Julian Leff: teaching and doing, instead of interviewing
  • 12. Differences with open dialogue Open dialogue Trans mural family guidance • Mindful be with the family • Assist family to set limits • Listening carefully • Educational • The theme of the psychosis • More on family structure refers to the nature of the • Promoting clear family difficulty communication • The dialogue flows • Open conflicts without good • When family can speak of the or bad theme of psychosis then • When family hierarchy is there is a better prognosis restored we expect better prognosis
  • 13. Similarities Open dialogue Transmural family guidance • Staying with the family • Staying with the family • No family member is allowed • Patient is not allowed to to terrorize others terrorize • Speaking about themes of • Family is open about family family/psychosis life during process • In context of needadapted • In context of continuity of treatment care of MFE
  • 14.
  • 15.
  • 16. Qualitative research • 46 patients and family members (37 TMG). • What is the process was only one of the questions
  • 17. Outcome • There was a balance between wishes of the patient and the families • Sometimes more distance but to our surprise often more closeness • Patients took more responsibility [accepting their vulnerability] and parents accepted this • Family contact only in crisis • Sometimes patients could talk about the theme of psychosis • However, cognitive deficits remained
  • 18. Vignet 1 • Moroccan guy: thinks he is possessed by Jesus and Maria • Family was strict Islamic, but school was Christian, father tried to convince schoolleader about praying but didn’t succeed • After family intervention he can tell his father that he missed his influence very much in school
  • 19. Vignet 2 • Young guy was psychotic after caraccident • But before that the light in his eyes disappeared • Was very suicidal during psychosis • Tells his parents he was sexual abused by older women
  • 20. It would be very interesting to compare this two ways of family work
  • 21. However the biggest problem in the Netherlands is the complex system of care promoted by a thick layer of managers
  • 22. “New” developments • RIAGG Amersfoort & Omstreken, Regional Institute for Community Mental Health • No (day)clinic, ambulatory care only, outpatient clinic or outreachend, crisis intervention team, treatment teams • November 2012: Intensieve Home Treatment • 2013: Care program psychotic and bipolar disorders to be written and implemented
  • 23. Intensive Home Treatment • Goal: prevent hospital admission or facilitate early discharge from an acute ward. • IHT means (twice) daily home visits by a multi- disciplinary team of mental health professionals. • Treatment consists of medication, counseling, practical help and support for relatives. • Family involvement is an absolute condition: dialogue! • The team is available 24 hours a day, during a limited period of 6 weeks. • IHT continues until the crisis has resolved and the patient is transferred to further care.
  • 24. Care Program Psychotic and Bipolar Disorders • Though different syndromes, shared needs of care • First episodes and long lasting treatment • Open dialogues with patients and their families: we have the same goal, different knowledge and responsibilities • Should we choose the Open Dialogue or Transmural Family Guidance? The Finnish or Zeister approach?
  • 25. And there are more new opportunities! Everywhere in the country are mobile first psychosis teams
  • 26. But they have not discovered family work yet So there is work to do!
  • 27. Suggestions ? • Why is familywork, which is evidence based, not used everywhere? • How to implement familywork with open/transmural dialogue in more teams? • What should we do in Amersfoort?
  • 28. Thank you for your attention