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Supporting Persons Who Are Deaf-Blind and Their Families
1. It is my honor to introduce
myself to you as the new
NFADB President. As a little
background history, my
husband Jake and I have an
empty nest now since our three
beautiful children are all grown
up and living on their own in
New York City. Our middle son
Kenny is deaf-blind due to
prematurity. After many
rollercoaster years during his
educational and academic life,
he has now transitioned into a
very productive adult and lives
semi independently in his own
apartment.
Since Kenny was very young I
was determined to learn as
much as I could about deaf-
blindness, so I volunteered in a
school that had students with
visual and hearing impairments
and worked with families who
spoke Spanish. That opportunity
led to a fulltime job as the family
specialist for the New York Deaf
Blind Project. This is a
position which I currently hold
and have been in for more
than two decades.
In 1990 I was invited to join
the Dream Team at the Helen
Keller National Center (HKNC)
where the idea of forming a
national association for
parents of children who are
deaf blind was born. In 1992,
t h e N a t i o n a l F a m i l y
Association for Deaf-Blind was
created with the support of the
HKNC and Perkins School for
the Blind. Since its creation, I
have been an active
participant as a board
member, regional director,
and special advisor as their
International Liaison. Over the
last two decades there have
been times when family
events and other challenges
took priority in my life and did
not allow me to be as involved
as I would have liked to be,
but my heart and actions have
always supported the valuable
mission of our dear
association.
We have been fortunate to
have had great leaders in our
Association and I thank our
last President, Elisa
Sanchez-Wilkinson –
who stepped down to
take care of personal
and family issues – for
her enthusiasm and
energy during her term
as president. We wish
her all the best and hope
s h e r e t u r n s t o
collaborate with our
initiatives when she can.
NFADB is involved with
major initiatives for 2013:
Continued on page 2
From our President
Spring/Summer 2013
Annual PPDB Helen
Keller Award
DBMAT
3
3
The Eyes Have It
Michigan Assoc for DB
4-5
5-7
One Father’s
Thoughts…
8-10
A Video Available
iCanConnect
10
11
Here’s some news
about NYPN
Definition of Transition
12
13
11 Int’l CHARGE
Syndrome Conference
14
Membership 15
Inside this Issue
National Family Association For Deaf-Blind
NFADB exists to empower the voices of families of individuals who are
deaf-blind and to advocate for their unique needs.
National Family Association for Deaf-Blind | 141 Middle Neck Road | Sands Point, NY 11050
Tel 800.255.0411 | Fax 516.883.9060 | NFADB@aol.com
2. Page 2
THE NATIONAL FAMILY ASSOCIATION FOR
DEAF-BLIND (NFADB)
SUPPORTING PERSONS WHO ARE DEAF-BLIND AND
THEIR FAMILIES. A non-profit national family
organization established in 1994. The philosophy
of the Association is that "Individuals who are
deaf-blind are valued members of society and
are entitled to the same opportunities and
choices as other members of the community."
NFADB EXECUTIVE COMMITTEE
Clara Berg
President
nfadb.clara@gmail.com
Patti McGowan
Secretary
psa60@comcast.net
Cynthia Jackson-Glenn,
OH
Susan Green, PA
Sheri Stanger, NY
Pearl Veesart, CA
(Member at Large)
Lori Bookstaver, NY
Administrative Assist.
Edgenie Bellah
Vice-President
edgenieb@gmail.com
Paddi Davies
Treasurer
paddid@gmail.com
Blanche Stetler
Affiliate Coordinator
JTMommy@aol.com
Cynthia.jackson-
glenn@rsc.oh.us
mshrg2@aol.com
SheriMEd@aol.com
pearlve@sbcglobal.net
nfadb@aol.com
Board of Directors
Special Advisors – Betsy McGinnity, Kathy
McNulty, Nancy O’Donnell
Newsletter Editor—Cynthia Jackson-Glenn
Editorial/IT Support—Allison Burrows
From Our President (continued)….
1) Building awareness of deaf-blindness and
the need for Individualized support services
(interveners, interpreters and SSPs) for
individuals; 2) Our board members
participating at different levels with the
NCDB’s team on the development of the
Initiatives to develop the Intervener on line
training modules and educational webinars
series; 3) Building leadership skills among
families so they can advocate for
individualized support services and 4)
Supporting individuals and families with
resources, training and compassion as they
journey through life with deaf-blindness.
At this time I encourage all of you to get in
touch with one of our board members to find
out how you can contribute your skills and
knowledge to NFADB in the hopes of
continuing to provide support, connections
and resources to the families who have a
member who is deaf-blind.
I truly appreciate the Executive Committee’s
invitation to take over the Presidency of
NFADB and I thank all of the board members
for the vote of confidence they have invested
in me. I will do my best to live up to
everyone’s expectations.
For more information, please contact NFADB
at www.NFADB.org or feel free to send me a
message NFADB.clara@gmail.com ♥
Steve Perrault-NFADB International Liaison
Steve.perrault@perkins.org
3. National Family Association for Deaf -Blind Page 3
Annual PPDB Helen Keller Award
Presented To Kathy McNulty
The Pennsylvania Partnership for the Deafblind (PPDB), an organized
network of parents, family members, and individuals with deafblindness, has awarded the 2012 Annual
PPDB Helen Keller Award to Kathy McNulty, Associate Project Director, National Consortium on
Deafblindness. This award is given in recognition of contributions made to the deafblind community.
Kathy McNulty has worked for over 25 years on the national deaf-blind technical assistance project
funded by the U.S. Office of Special Education. Based out of the Helen Keller National Center in
Sands Point, NY, she is currently an Associate Project Director for the National Consortium on Deaf-
Blindness (NCDB). During her career in deaf-blindness, Kathy has coordinated and provided a wide
variety of technical assistance activities that focused on transition, person centered planning, systems
intervention and interagency collaboration but, an on-going, major component of her job responsibilities
has always been to design and deliver technical assistance that promotes family involvement and
parent leadership. She has traveled to nearly every state in the country to either work with a small
group of emerging parent advocates, present at a family weekend or conduct a strategic planning
session with a state parent organization. She currently oversees all of NCDB's Family Engagement
activities and, as a board advisor, works closely with the National Family Association for Deaf-Blind
and the CHARGE Syndrome Foundation. We are truly grateful to Kathy for all her work on behalf of
deafblind individuals!
Pennsylvania Partnership for the Deafblind is a private, non-profit organization, which exists to provide
support for individuals with deafblindness and their families through a family-driven network. If you
would like more information regarding PPDB, or are interested in joining us, please contact Susan
Shaffer, PPDB President, shaffers@dickinson.edu. ♥
Deaf-blind Multihandicapped Association of Texas (DBMAT)
has been busy watching the Texas Legislature. Specifically, there are 2 Bills in process
that could change services that our loved ones who are deaf-blind receive. One is with
regard to our waiver services possibly having the management and delivery method of
services being changed to a “Managed Care” system. This could affect the level of ser-
vices our loved ones get as a result of the change in service identification, but we have
been given some reassurances. It is just hard to tell until everything is settled. Therefore
we are trying to keep our presence known, so not to be forgotten.
Another is with regard to Orientation and Mobility (“O&M”) services. We are currently
having a calling tree set in place to call legislators in support of the needs for qualified
O&M services. We have had a good response so far!
So, we are staying attentive and being watchful to ensure our loved ones have the ser-
vices they need!
Best,
Vivecca Hartman
DBMAT Treasurer ♥
4. Page 4
The Eyes Have It
by Cynthia Jackson-Glenn, MS
I am sure that many of us have been confronted with visual language that we just don’t
quite understand. I would like to clarify some of these terms:
Clinical Low Vision Evaluation - A clinical evaluation to determine whether a person
with low vision can benefit from optical devices, non-optical devices, or adaptive tech-
niques to enhance visual function.
Functional Vision Assessment - An assessment of an individual’s use of vision in a va-
riety of tasks and settings, including measures of near and distance vision; visual fields;
eye movements; and responses to specific environmental characteristics, such as light
and color.
Habilitation - The education and development of children and youths with congenital or
early-onset visual impairments, including the teaching of compensatory and visual effi-
ciency skills as well as daily living skills.
Legal Blindness - Visual impairment in which distance visual acuity is 20/200 or less in
the better eye, after best correction with glasses. Or visual field restriction (peripheral) is
20 degrees or less. Often used as a criterion for determining eligibility for benefits or ser-
vices.
Low Vision - A visual impairment, after correction, but with the potential for use of avail-
able vision, with or without optical or non-optical devices and modifications, to perform
daily tasks.
Non-Optical Devices - Devices or modifications that do not involve optics, used to make
visual information more accessible, such as book stands, trays, lighting, and large print.
Interdisciplinary Team - Professionals from various disciplines who conduct and share
the results of assessments and jointly plan instructional programs, such as IEP’s/IPE’s.
Optometrist - A health care provider who specializes in refractive errors, examines and
prescribes eyeglasses and contact lenses.
Continued on page 5
5. Page 5National Family Association for Deaf -Blind
The Eyes Have It (continued from page 4)
Ophthalmologist - A physician who specializes in the medical and surgical care of the eyes
and is qualified to prescribe ocular medications and to perform surgery on the eyes.
Rehabilitation - The learning of skills with an impairment, including the relearning of voca-
tional and daily living skills using adaptive equipment and techniques.
Orientation and Mobility (O&M) Instructor A professional who specializes in teaching travel
skills to visually impaired persons, including the use of a cane, dog guide, or sophisticated elec-
tronic travel aids, as well as human guide techniques for safety.
Rehabilitation Teacher - A professional trained to teach the compensatory and adaptive skills
that enable a visually impaired person to live and function independently.
Snellen Chart - The traditional eye chart whose top line consists of the letter E and which is
used in routine eye examinations.
Light projection - The ability to discern the source or direction of light, but not enough vision
to identify objects, people, shapes, or movements. ♥
Michigan Association for DeafBlind (MADB)
By Kelli Sabin, MADB Vice-President
In February 15th
and 16th
2013 we had the chance to go to Challenge Mountain with DB Central to
attend the annual family ski event. For those of you who have attended this event in the past I am
sure it was another absolutely awesome event. For those of you who have never attended be-
fore, I hope that it was a life changing event that left you wanting to go back again and again. We
have gone many, many times in the past and I never get tired of standing out on the mountain and
watching the smiles on the faces of our kids as they get to experience racing down that mountain.
The smiles of the volunteers who work with the kids are almost as bright and I have been told by
many of them that there is no payment that matches seeing the life changing events that happen
on that mountain. This time we got to experience our own life changing event and it still brings
tears of joy to my eyes every time I think about it or get to view the awesome video taken by the
Challenge Mountain staff and posted on their facebook page. We got to see Mariah, our 13 year
old, who is deafblind with Mitochondrial disorder and multiple other issues; stand-up and ski down
the mountain. Granted it required adapted equipment. However, it was still a sight that I never in
my wildest imagination dreamed that I would get to see in this lifetime! We can hardly wait to go
back and do it again. The folks at Challenge Mountain really and truly made a life changing event
happen that day!
This brings me to my next point, given the very unstable financial future of programs such
Continued on page 6
6. Page 6
Michigan Association for DeafBlind (MADB)
(Continued from page 5)
as DB Central. We need to really focus on im-
proving the strength and activism of Michigan
Association For DeafBlind
(MADB) and the National
Family Association for Deaf-
Blind (NFADB). On Friday
February 15, 2013, we held
an MADB membership meet-
ing.
We reviewed by-laws and ac-
cepted nominations for the
offices of President, Secre-
tary and Communications Of-
ficer. As I was preparing this
information to be e-mailed out
so that we could reach more
of our families for nomina-
tions; I discovered that we
actually only have less than
23 --- YEP! You read that
right, less than 23 actual reg-
istered members. Folks we
need to register our families, friends and profes-
sionals as members. One of the most important
lessons I learned when I sat on the board of the
National Family Association for Deaf-Blind
(NFADB) is that there is power in numbers.
When we lobby or support groups that lobby the
government for changes that help our family
members we need to have numbers. When we
write grants to fund different activities and
events the numbers help. When we hold elec-
tions or vote on various things the numbers
help; they give us a bigger pot to draw from and
they give us a fairer representation of what our
families want or need for us to do. Larger num-
bers mean more skills and brain power on our
boards so that we never become stale, old or
so set in our ways that we don’t change to
meet the changing needs of the times. Variety
comes with larger numbers and it is truly the
spice of life.
Please take a
moment of your time
and fill out the mem-
bership application
for MADB and
NFADB which you
will find in this news-
letter or on-line at
www.dbcentral.org
or www.nfadb.org.
There is no cost for
the MADB member-
ship and a very mini-
mal one for NFADB.
However, the pay
back for what these
organizations do for
our families is price-
less and we need
them to help make sure that our families re-
ceive the representation and services we all
utilize. We need to have our numbers provide
a better representation of people who care
about our families members with this low-
incidence disability. In addition to your imme-
diate family members please reach out to your
extended family members and the profession-
als who work with your family member. Every-
one of them has valuable input and skills that
will help to strengthen our support group and
everyone of them contributes to the numbers
that give us power.
Continued on page 7
Mariah Sabin and a Challenge Mountain, Boyne,
MI volunteer skiing Feb. 16, 2013
The faster, the bumpier, the better as far as
Mariah is concerned.
Wrapped in a sleeping bag, even the cold does-
n't keep her from skiing - - she loves it!
7. Page 7National Family Association for Deaf -Blind
Mariah Sabin and Mike H. founder
of Challenge Mountain,
Boyne, MI as she ski's standing for
the first time ever.
Kelli and Mariah Sabin enjoying the hot
tub in Petosky, MI the night before skiing
Challenge Mountain, Boyne, MI
Feb. 15, 2013
Mariah Sabin at Challenge Mountain,
Boyne, MI Feb. 16, 2013.
You can't buy smiles like this.
Have a Blessed Day,
Kelli Sabin, M.S.
Vice President Michigan Association for DeafBlind
kellisabin@hotmail.com
989-576-2202 cell
♥
8. Page 8
One Father's Thoughts on Making a Difference:
My Life as a Dad, Husband, Firefighter, Teacher and ACTIVITIST
A Contribution from Aiden's dad, Jamey McVicker
Jamey attended the 2012 NFADB Symposium on Family Leadership. By that time, he was already well on
his way to providing leadership to his state's Special Education Advisory Panel. Here is his story about why
and how he became involved.
It is very humbling and difficult for me to write an article in such a prestigious publication. I aim
to share our family’s path and experiences, as well as my role as a dad, husband, firefighter, teacher,
and activist. First, let me introduce myself and my family…My name is Jamey McVicker. My wife,
Amy, and I were high school sweethearts and have been married 14 years now. We have 3 children;
Aiden (11), Avery (8), and Addison (5). Aiden was born with bilateral anophthalmia (the absence of
eyes) and has profound hearing loss bilaterally and other health and development issues. We live in
Cameron, Missouri, a rural farming and bedroom community just north of Kansas City and east of St.
Joseph. I am employed with the St. Joseph, Missouri Fire Department as a Fire Captain.
Like every newly married couple, we had dreams of the perfect family, the perfect life. When
our son was born, we were headed down that perfect avenue. My, how our lives have changed…and
we wouldn’t have it any other way! Aiden has introduced us to a world we may not have seen,
passionate people we may not have met. He embodies the values and characteristics that we hope to
emulate. The time I have had with Aiden has helped me develop into a “Man” more than any other
experience in my life. I owe it to him, and a strong faith, for making me the better person I am today.
Living in a rural town, it is difficult to acquire the necessary resources to best serve Aiden and
9. Page 9National Family Association for Deaf -Blind
his educational and medical needs. This past year, we as a family decided it would be best to
educate Aiden at home. With the help of the Missouri Deafblind Project, we pursued a “future
planning” approach. Our lesson plans are primarily life-skill based and incorporate community
activities and social functions.
The staff with the Missouri Deafblind Project witnessed our passion for the deaf-blind
community and encouraged us to participate at the state level, advocating for this population.
Thoughts and prayers were given to the idea of serving on the Missouri Special Education Advisory
Panel, which advises and recommends policies, procedures, and practices for the Missouri
Department of Education, concerning special education. It is comprised of individuals with a
disability, parents of those individuals with a disability, educators, and administrators. I concluded to
the fact that it would behoove our family, and others, to fill this need. I applied for this position and
was appointed by the Commissioner of Education the next month.
This position was outside of my comfort zone, but I was willing to step out for my child. I have
never been one to put myself in the public spotlight. I do not have a master’s degree in education but I
do have a passion for my child. The time requirements were minimal. The panel meets quarterly and
the meetings run approximately 5 hours. Transportation and meals are also provided. Going into the
first meeting, my stomach was in my throat because of anxiety and nerves. What can a firefighter
bring to the table? Firefighters, and dads, fix things. It’s just what we do (with a manly grunt). We
use our practicality, experience, innovation and our hands. Our family had been thrust into something
I couldn’t fix. But, I felt I could play a role. I could “fix” the way people think about disabilities and
help policymakers better meet the needs of children with disabilities. Much to my surprise, I found my
niche quickly and took a leadership role on the panel. I do have a lot to offer and it is experience-
based. No one knows what families need better than families do.
My experience serving on Missouri’s Special Education Advisory Panel has been highly
enlightening. I’ve learned about educational techniques, state and nationwide trends, and new,
innovative adaptive equipment and technology. I’m now learning about new legislation coming down
the pike. It is very rewarding to receive this knowledge and be able to provide a credible influence for
children in our state - all because I was able to step out of my comfort zone. I would encourage
anyone that has an interest to pursue a position on their state’s panel, and to do so whole-heartedly.
Deaf-blind awareness-raising and legislation to benefit children who are deaf-blind need all the
advocates they can get because of the low incidence of dual sensory loss. It is a very exciting time
for deaf-blind education, particularly involving the development and recognition of interveners –
individuals with special training in deaf-blindness who work with children who are deaf-blind and
provide access to the environment, communication, and other people. We owe this progress to those
activists who travelled this road before us. Now it is our turn to take the torch and run.
If I had one wish for Aiden’s education, it would be to have had intervener services at an
early age and continuing into adulthood. My hope for all individuals who are deaf-blind is to
mimic Minnesota’s intervener programming inside the schools and within the community. The
intervener role is on the verge of breaking out nationwide, and I hope we all share the same values as
the Minnesota deaf-blind community leaders. Should you have questions, concerns or anxiety about
(Continued on page 10)
10. Page 10
One Father’s Thoughts……(continued from page 9)
playing a role for your State Special Education Advisory Panel, please do not hesitate to contact me.
Wouldn’t it be amazing to have at least one representative for the deaf-blind community on every State
Special Education Advisory Panel? Together, we can collaborate; share our experiences, successes
and failures; and make great strides forward for future generations.
Thank you for taking the time to read about my family and our experiences. I know we all have
many trials and tribulations, but I wish to share our successes and smiles as well. Too many tears
have been shed through the years. Many of them could have been prevented if only we had
opportunities to collaborate on effective strategies, as well as learn from each others’ failures. I would
also like to thank the NCDB and NFADB for allowing me this opportunity to share and hopefully
motivate others. I have failed many times and in many different capacities in my life. I hope that I have
learned from these times and they have made me grow to know what it takes to be a better dad,
husband, firefighter, teacher, activist, student and son. I would like to share with you a thought of mine
that I feel is very true to all life experiences, whether they be academics, athletics, or any other
endeavor:
“Only failure can leave the motivation to fuel the hard work that produces success. To have had
success means to have known and understood failure.”
Respectfully Yours,
Jamey McVicker
127 East Evergreen Street
Cameron, MO 64429
jameymcvicker@ymail.com
(816).632.6386
A Video Available
At the end of February Monica Quesada (PR) and myself (NY) attended the Texas
Symposium on Deaf-blindness in Austin TX.
Not only did we enjoy a fantastic well-organized conference with great content and knowledgeable pre-
senters, but we had the responsibility of conducting live interviews that were recorded to create a video.
The purpose of these interviews with families who have a member who is deaf-blind is to produce a DVD
that will help us create awareness about our population, advertise NFADB and build consciousness
about the needs, challenges and success stories of a low incidence population. This video will be avail-
able to anyone who intends to celebrate the Helen Keller month in June.
We thank all the participants for their eloquence and openness to tell their stories, and we will do our
best to capture a message that will represent our children performing at their best. We are excited to
share this great DVD on Deaf-Blind awareness with all of you!
~ Submitted by Clara Berg ♥
12. Here's some news
about NYPN.
NYPN is changing its name. Our Membership voted on changing our name and bylaws to improve
our recognition. Our new name will be New York Parent Association for Deaf-Blind, NYPADB.
Our website, www.nypn.net will continue to operate and announce the news as we go through the
process of registering with New York State and the IRS to maintain our 501(3)(c) status.
The Fall/Winter edition of NYPN Newsletter arrived just in time for Spring! The featured article
includes highlights of the iPad Deaf-Blind Workshop. The Newsletter can also be viewed online
for families interested in this topic.
NYPN's Board of Directors has been busy planning for our Family Picnic, a fundraising event at
multiple Applebee's throughout New York State, and our Fall Conference.
NYPN FAMILY PICNIC
Sunday, June 2, 2013 (11:00 am– 3:00 pm)
Queens County Farm Museum
73-50 Little Neck Parkway
Floral Park, NY 11004
www.queensfarm.org/
NYPN will advertise on NCDB and Family Connect as we get closer to the conference date. We will have a
few rooms available in the HKNC Dormitory to accommodate overnight guests over the age of 16.
Barbara Loughran,
NYPN, President
♥
Page 12
NYPN Fall Conference
Community Services for Deaf-Blind
Saturday, November 2, 2013 (9:30 am - 4:00 pm)
Helen Keller National Center
141 Middle Neck Road
Sands Point, NY 11050
Featured Speaker: Debbie Fiderer
Coordinator, Community Services Program at HKNC
13. Let me begin by saying, transition is a constant in our lives. It has become a buzzword in
most of our children’s world. It is wrote into the Individualized Education Program, IEP. The Indi-
viduals with Disabilities Education Act (IDEA 04) requires that in the first IEP that will be in effect
when the student turns 16 years of age, the annual IEP must include a discussion about transition
service needs (some states may mandate that the process start even earlier). Hannah Green’s
transition started at age 14, on the IEP. In actuality, she has had many transitions throughout her
education. She will be graduating in June. The next road she will venture down is college. Once
again, I will be the nervous mom that I am but this time I will be sitting on the sidelines. This is MY
biggest transition yet…She has become a young woman, an adult. Since she turned 18 in March,
conversations with agencies, physicians and educators are directly with Hannah. She must give
them permission to talk to me. This is just one more step towards the goal of independence. She
is a self advocate. For her senior project she completed a simulation presentation to the 7th
-8th
grade classes. This was to bring awareness to them of indi-
viduals with vision and hearing loss. The teachers were
amazed with her final presentation. I am so proud of her and
that she took the opportunity to educate other students and
staff about deafblindness. So, as she walks across the stage
to accept her diploma I will have many visions of the last 18
years. What a journey it has been so far! I, along with many
others, will be watching to see what is in store for Hannah
Green and her bright future!
CONGRATULATIONS TO OUR
2013 GRADUATES!
submitted by Susan Green
♥
Definition of
TRANSITION:
A passage from one state,
stage, subject,
or place to another
Page 13National Family Association for Deaf -Blind
14. Page 14
We are less than 80 days away from conference! Both hotel and conference registrations are now open, and we
encourage everyone to register as early as possible. The deadline for registration is June 15, 2013. Don’t forget to
register siblings for sibshops, or if you have any performers in your home, for Conference Idol! All of the informa-
tion regarding the program, camp, sibshops, Conference Idol, and more are available at the conference registration
headquarters:
http://www.chargesyndrome.org/conferencehq-2013.asp
SILENT AUCTION: Items are still needed for the silent auction. We have prepared a
donation letter and form to help you with gathering and submitting items. For more info,
contact neal@chargesyndrome.org.
Silent Auction
Donation Letter
Silent Auction Donor
Form
For more information about anything conference-related, please contact
lisa@chargesyndrome.org
See you in Arizona!
http://www.chargesyndrome.org/conferencehq-2013.asp
CONFERENCE SCHEDULE
PROFESSIONAL DAY
Thursday, July 25
Sessions 8:00—5:30
_________________________
CONFERENCE
Thursday—Sunday
July 25-28
Thursday Evening
Reception 7:00—9:00 for
Families & professionals
Friday
Sessions 9:00—5:00
Camp Program (full day)
Exhibitor Fair
Poster Presentations
Interact at Info Central
Idol Extravaganza
Saturday
Sessions 9:00—5:00
Camp Program (full day)
Silent Auction: New Format
CHARGE-A-Palooza
Sunday
Presentations 9:00—12:00
Camp Program (half day)
Closing
Breakfast and lunch included on
Professional Day. Breakfast,
lunch, dinner, and snacks in-
cluded on Friday and Saturday.
Breakfast included on Sunday.
15. “Character cannot be developed in ease and quiet. Only through experience of
trial and suffering can the soul be strengthened, ambition inspired, and
success achieved.” —-Helen Keller
NFADB would like to thank all the families that have joined this association and continue to
support, contribute, and inspire those around them. Below you will find information regarding the
2013 membership drive. To continue to receive up to date information regarding legislative issues,
medical information, notices of upcoming events, families sharing information, and more, your
membership needs to be current. NFADB is an outstanding association. Being a member brings
each of us a sense of pride and satisfaction to know that we are working together to help our family
members with deaf-blindness achieve success in their lives. THANK YOU!
Page 15National Family Association for Deaf-Blind
SUPPORT THE NFADB!
MEMBERSHIP CATEGORIES
(*U.S. FUNDS ONLY)
REGULAR: any person who is deaf-blind, their
parent, guardian, family member or
professionals.
___ One Year: $15
___ Three Years: $35
___ Lifetime (Individual/family) $100
Regular members are eligible to serve on the
NFADB Board of Directors. All members
automatically receive our NFADB newsletter
which is also available by request in BRAILLE,
LARGE PRINT or electronically. Indicate
preference on application.
CONTRIBUTING SPONSORS: those involved
by reason of monetary or other gifts of value to
the Association.
Contributing Sponsor - $______
Name: ________________________________
Organization:___________________________
Address:______________________________
City:_____________State: ______ Zip:______
Phone:(___)________FAX: ( )____________
E-mail: _______________________________
Information about person who is deaf-blind
Name: _______________________________
Birthdate: _____________________________
Relationship to you: _____________________
Cause of deaf-blindness:_________________
_____________________________________
I give permission to share my name with other fami-
lies whose children have similar etiologies or dis-
abilities.
__Yes __No
I give permission to use my email address to sign
me up for the NFADB listserv.
__Yes __No
Please return with check or money order
payable to: "NFADB" at:
NFADB/Membership
141 Middle Neck Road
Sands Point, New York 11050-1299
or visit our website (www.nfadb.org) and
use PayPal or a major credit card
16. Address
141 Middle Neck Road
Sands Point, NY 11050
National Family
Association for Deaf-Blind
Phone: 800-255-0411
Fax: 516-883-9060
E-mail: NFADB@aol.com
Supporting Persons Who are
Deaf-Blind And Their Families
Non-profit Organization
U.S. Postage
Port Washington, NY
Paid
Permit 494
This newsletter supports “person first” language. All submitted
articles will be edited accordingly. This publication is supported in
part by the Helen Keller National Center, Sands Point, NY, and
the Hilton/Perkins Program of Perkins School for the Blind,
Watertown, MA. The Hilton/Perkins Program is funded by a grant
from the Conrad N. Hilton Foundation of Reno, Nevada. Opinions
expressed in the newsletter do not necessarily reflect the
opinions of NFADB, HKNC or Hilton/Perkins. Newsletter is avail-
able in braille, large print or electronically upon request. NFADB
exists to empower the voices of families of individuals who are
deaf-blind and advocate for their unique needs. ♥
Please address all correspondence to:
NFADB Newsletter Editor
Cynthia Jackson-Glenn
141 Middle Neck Road,
Sands Point, NY 11050-1299.
Voice/TTY: (8:00 a.m.-3:45 p.m., EST) 800-255-0411;
Fax: 516-883-9060;
E-mail: NFADB@aol.com
