ALISS update & overview (Access to Local Information to Support Self-management) Elevator Pitch v4
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Overview & update (Nov '09) of Scottish project to enable access to information about local resources (help, classes, social networks, aids, etc., etc.) for people with 'Long-Term Conditions' (health) who want to manage these themselves
![A ccess to l ocal i nformation to s upport s elf Management [‘Living Well with a Long-Term Condition: Finding Local Supports’] An Elevator Pitch… Nov ‘09](https://image.slidesharecdn.com/alisselevatorpitchv3-090826094830-phpapp01/85/ALISS-update-overview-Access-to-Local-Information-to-Support-Self-management-Elevator-Pitch-v4-1-320.jpg)
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ALISS update & overview (Access to Local Information to Support Self-management) Elevator Pitch v4
- 1. A ccess to l ocal i nformation to s upport s elf Management [‘Living Well with a Long-Term Condition: Finding Local Supports’] An Elevator Pitch… Nov ‘09
- 2. Why bother? The changing profile of Scotland’s population
- 6. Or these? Useful as far as they go, but they do rather tend to stick with static info like service HQ, or buildings.
- 7. Or this?
Notas del editor
- Note the ‘bulge’ moving through the age profile of the overall population starting in 1951, resulting in the ‘supertanker’ appearance projected forward to 2031. This relative preponderance of older people vis-à-vis those of working age will not necessarily last for ever, but will have significant societal effects for 20-30 years or more. The challenges that this changing age profile will be likely to represent, amongst other demographic aspects of the prevelance of long-term conditions and associated problems, is discussed briefly in the Long Term Conditions Action Plan (see http://www.sehd.scot.nhs.uk/mels/CEL2009_23.pdf ) which text is replicated also in the ALISS Project blog at http://ltcsignposts.wordpress.com/about-this-project/the-demographic-backcloth/ This slide and the next are borrowed from a presentation given to hi-heid-yins in the NHS and Local Authorities in May 2009. And the material has been shared in a variety of planning and policy contexts since.
- We set up a mock-clinical encounter between our Project Manager (a Practice Nurse in real life) and our researcher, who was then sent off out into his local community to see what he could kind, to help him live well with his circumstances. Besides being ‘recently diagnosed’ with rheumatoid arthritis, the researcher was also told that he needed to loose some weight, and be aware that he would be likely to ‘feel rather low about all this’ (we did not want to go any further towards identifiable mental health problems). In practice the response from community information-intermediaries was markedly different when approached about ‘feeling low’. Almost everyone immediately signposted our researcher direct to health resources. Whereas for rheumatoid arthritis, the range of potentially relevant resources seemed much easier for them to discuss, and to advise upon. Our researcher blogged about his search on ‘Being patient’ (see links). It should be noted that this ‘ethnography’ in no way attempted to appreciate the broader physical, mental and emotional implications of undertaking such a search while actually having a combination of LTCs – what we were after at this earlier stage was some understanding of the information considerations. Interestingly though, when our researcher did himself fall ill over the summer, he did indeed experience some of the broader implications of trying to find out about his condition while distinctly ‘under par’ and exhausted.
- It seemed plain that our institutions were doing as best they could, on the basis of the tried and tested institutional model, where a database is set up somewhere centrally and is thereafter maintained by reminding those with entries in it that their information has fallen due for renewal. But there doesn’t seem much of a link between that administrative process, and the actual various aspects of the business of service provision. As a result, the searcher is left with a lot of legwork to do, which needs a good deal of persistence. Which you may not have, if you are feeling unwell and ‘low’ about your circumstances generally.
- What it says on the tin (title) especially the ‘subject to continual improvement aspect.