The document discusses ALISS, a collaboration between the Scottish Government, NHS Scotland, and other organizations to improve access to information for self-management of long-term conditions. ALISS uses a technology engine and social processes to collect and curate health information from various sources and make it available via intermediaries. The agenda focuses on ALISS's approach of distributed information curation and publishing through intermediaries to act as an innovative platform while using technology to support a community of information providers.
Generative AI in Health Care a scoping review and a persoanl experience.
The ALISS engine in practice
1. The ALISS Engine in Practice A ccess to L ocal I nformation to S upport S elf-Management Working towards better access to information to support self management of long term conditions. A collaboration of the Scottish Government, NHS Scotland, and the Long Term Conditions Alliance Scotland…and ever so many other organisations…and people…
Hereʼs an example: • many sites not well indexed by search engines • can't tell Google how to index your stuff - or at least the people that are creating many of the web sites weʼre interested in arenʼt doing that much to help... • Example - Angus Cardiac - Google vs Capturing in the Engine A good example is a group weʼve been working with - the Angus Cardiac Group. They provide support and self management classes for people with cardiac disease in the Angus region. Their web site is developed and maintained by an enthusiastic volunteer whose aim is to give the group a web presence - not be an SEO expert.
This is a screen shot from a prototype that was built in the early stages of the project to demonstrate that by indexing the AGC URL and giving it some simple metadata which included a text summary describing the content, and latitude, longitude and used Yahooʼs Where On Earth Identifiers which allowed us to describe services that are area rather than point based.
Traditionally, public sector and voluntary organisations have collected information about groups and activities to create printed or online directories. Scotland has a good number of excellent aggregation services. All of these services are great but they are often not linked, silos of info that constantly re-invent the wheel and duplicate effort. These services have a number of common challenges: Keeping data current • It's a full time job to maintain accurate records • Services need to regularly contact organisations, log their activities, update the record and then supply the information in a meaningful way to people • This is a lot of work Reflecting smaller, less visible services • useful self management support may be provided on a small scale, for instance just one person who organises a walking group, a carer support network at a church hall. • This is difficult to discover and unlikely to have an extensive web presence, if at all. • These are less likely to be reflected in directory services and poorly indexed by the general search engines. • Learning from those living with the conditions • People living with conditions often have the best inside knowledge, know the best places to go, people to see and networks to tap into. • Information about self management support is richer and more useful when it allows contribution from, and curation by, service users. • Individuals need the means to contribute. Reusability of data • Directory services traditionally create silos of information that require us to visit them in order to access the data. this useful locked up information is hidden from the major search engines.
the location of the ACG classes in Carnoustie and Montrose were noted and returned in a search of the engine. Through the development of the Engine, we can provide advice and tools to improve what is available to search engines. Paradoxically, the ALISS project could improve the Google rankings of the sites weʼre aiming to index • This doesnʼt matter because our aim is to make self management resources more findable • In the example of the Angus Cardiac Group - they have one place to submit the information and those seeking that information have one place to find it. Info providers that currently have a directory of local services can make their data available to the Engine, making the info more widely available than if theyʼd just published it on their own web site.