1. The National
Lipid Association
and the Polish Lipid
Association
A Model for Global
Cooperation
Christopher R. Seymour,
MBA
Executive Director
Warsaw, Poland
September 9, 2011

2. Chris Seymour
 Born in Chicago (Polish Section)
 Graduated Temple Univ. (Philadelphia)
 Chemistry
 Naval Officer (Commander USN)
 Master of Business Administration (Jacksonville
U)
 Executive Director
 American Assoc. of Clinical Endocrinologists (1993-
1996)
 National Lipid Association (1997- present)

3. Family Name: SLYSZ
Town:Pielnia
Province: PODK
Former Province: Krosno

4. Persia
Kenya
Siberia
• England
• Canada
• United States

5. The National
Lipid Association
and the Polish Lipid
Association
A Model for Global
Cooperation
Christopher R. Seymour,
MBA
Executive Director
Warsaw, Poland
September 9, 2011

6. Mission
The mission of the National Lipid Association
(NLA) is to enhance the practice of lipid
management in clinical medicine.

7. FOUNDING VALUES
Professionalism:
The NLA will enhance medical knowledge, clinical skills, and
related business activities that provide for more effective patient
outcomes. Promoting and sustaining the highest ethical
standards will be an essential component of these activities.
Public Service:
The NLA will enhance efforts to reduce death
and disability related to disorders of lipid metabolism in patients.
Multidisciplinary Approach:
The NLA will strive to provide professional activities for
the disciplines which comprise the membership.

8. FOUNDING VALUES
Cooperation:
The NLA will be supportive of other organizations with common
purposes and values and will seek active interactions with such
organizations.
Business Ethics:
The NLA will promote its activities with the utmost respect to
acceptable business practices, ensuring all interactions will
be undertaken in a responsible and ethical fashion.
Continuous Growth and Development:
The NLA will promote responsible outreach to all regions
of the country to make available the membership benefits
of the NLA in every community.

9. Definition of Clinical Lipidology
Adopted May 2006
Clinical Lipidology is a multidisciplinary
branch of medicine focusing on lipid and
lipoprotein metabolism and their
associated disorders.

11. Clinical Perspective

12. Members

13. Respondents by Specialty
 About half of physician respondents are self-report as IMs or FPs
 Nearly a third of the respondents are cardiologists (CARDS)
100%
80%
% of Physicians
60%
50%
40%
32%
20%
11%
7%
0%
IM/FP CARD ENDO Other
(n=218) (n=138) (n=50) (n=30)
Base: Physicians (n=436)
Q3b Please describe your board certification: Cardiology, Endocrinology, Internal Medicine, Family Medicine, Other [specify]. Other includes Pediatrics, Lipidology/Clinical
Lipidology, Medical Biochem, and Nephrology.
13

14. Distribution by Practice Profile*
Lipid Clinic Lipid Specialist General Member
* n=628 (29 respondents excluded because of undetermined addresses or international respondents)

15. Frequency of Practice Services
100%
80%
69%
% of Respondents
60% 59%
60%
41%
40%
24%
20%
10%
6% 6% 5% 1%
0%
Diabetes management
Nutrition/ Exercise Weight Managementtrial participation RehabLDLOther HTN/ Lipids Other Misc./ General Health**Teaching, Educational
programs Clinical Cardiac Apheresis Diagnosis & Mgt.*
Other Cardio Services***
Other
*Includes: Lipid management, Hypertension/Anticoagulation Management, CIMT, HTN management, Advanced lipid/lipoprotein testing
**Other miscellaneous mentions, Internal medicine, Lab, Sports medicine
***Non-Invasive Cardiology Diagnostics, General (e.g. Stress testing/(nuclear/echo), Cardiology services (general cardiology/non specific), Preventive
Cardiology Services & Risk Assessment ((non-specific)), Interventional Cardiology
****Smoking cessation, Diabetes education, Teaching/education (non-specific), Med management/education (non-specific)
Base: Physician/NP/PA/Pharm (n=594). Total is greater than 100% due to multiple responses.
Q15 Please indicate which of the following services your practice provides: [check boxes], Clinical trial participation, Cardiac rehab, Diabetes management, Nutrition/exercise
programs, Weight management, LDL apheresis, Other – please specify [fill in blank]
15

17. Overview Slide

19. Greatest Need for
Education/Awareness
Lipid Clinici Lipid Specj Not Lipid Speck
(n=155) (n=200) (n=282)
Statin intolerance: evaluation and management 57% JK 39% 36%
Strategies for improving patient compliance with therapy
52% Jk 37% 43% j
(medication and/or diet/lifestyle)
Metabolic syndrome 45% jk 37% 35%
Genetic testing for FH 21% j 13% 18% j
Lipoprotein particle # 34% 41% ik 33%
Non-HDL 30% 26% 26%
Apo B 30% 36% ik 30%
Genetic markers, e.g., KIF6 27% 30% 25%
Lp-PLA2 24% 33% I 31% I
Familial hypercholesterolemeia screening and diagnosis 23% 18% 22%
Lipoprotein particle size 19% 16% 23% J
Lipid clinic practice management 17% 15% 24% iJ
Lp(a) 15% 21% I 21% I
HDL-C 14% 19% I 17%
CRP 12% 16% 14%
Triglycerides 11% 18% ik 12%
Other apolipoproteins 8% 8% 9%
APO E 6% 10% I 13% I
LDL-C 3% 6% 10% Ij
None of the above 1% 1% 1%
Base: All Respondents (n=657)
Q22-3. Of those listed, the 5 topics where you believe there is greatest need for increased awareness and/or education? (select 5)
20

20. Activity Formats Delivered
2007-2010
Types of Activities Offered (Total = 200)
6%
Live Meetings & Courses
25%
Internet
69% Print/SAPs

21. Communicating the Message

22. Communicating the Message
@Lipid e-
Newsbrief

23. Communicating the Message
The Lipid Spin
Newsletter
•Practice focused
•Developed by Chapters
•Editors:
•Jamie Underberg, MD
•Robert Wild, MD

24. Communicating the Message
Broadcast MediaReach MD / Lipid Luminations
 Satellite Radio
 Podcasts are archived
 Host – Dr. Alan Brown
 Reaches 700,000 monthly listeners

26. Foundation of the NLA
 Established December 2008
 Goal to establish “outreach” for
lipidology
 Public Education about Lipidology
 Extended Opportunities for Professional
Education
 Local effort to reach community based
members and patients.

27.  Foundation Grant Program
 Research grants, medical
education grants and
community outreach grants.
 Public Education
 100 Q & A About Cholesterol
 Educational booklet for general public and
patients
 National Campaign: Familial
Hypercholesterolemia
 Fundraising Activities

29. Sources Used to Learn About Lipid
ManagementNEJM and JACC as most often used sources for LM information
• Respondents cite JCL,
• ~60% describe reading journals online; 45% use other (non-journal) online source
Journal of Clinical
Lipidology/Journal
of Lipidology 45%
NEJM 23%
Lipid Spin 20%
JACC 20% NLA 63%
Circulation 16% AHA 21%
JAMA 10% ACC 19%
NLA 23%
NEJM 13%
100% Heart.org 12%
88% 88% Medscape 12% Heart.org 17%
Medscape 13%
% of Respondents
NLA 12%
80% UpToDate 11%
NLA 27%
62% ReachMD 12%
60% Heart.org 10%
45%
NLA 42%
40% Heart.org 9%
27%
20%
5% 1%
0%
Reading journals Attending Reading journal Reading other on- Listening to or Reading or None of the above
(printed versions) conferences websites or email line sources (not watching Pod-casts participating in on-
updates journals) or other audio/video line chat rooms with
lectures on-line peer clinicians
Base: All respondents (n=657). Total is greater than 100% due to multiple responses. Top mentions noted in text boxes.
Q23. Which sources do you use to learn about lipid management? Which ones?
30

30. International Relationships
Bring together a core group of organizations
with like international interests to share,
cooperate and discuss;
 Clinical application of science and research in clinical
lipidology and cardiometabolic science.
 Establishment of a framework of collaborative
organizations dedicated to the field of clinical
lipidology.
 Improve the practice of Clinical Lipidology

31. Cooperation Objectives
Other Objectives
 Develop a cooperation/affilaition program that can
be adopted by an organization within a country
that would allow exchange of education programs.
 To reach a diversity of healthcare professionals
interested in improving their knowledge and skills
in managing patients with lipid disorders.
 Foster the examination of competency based on
standardized curriculum.

32. Policy (Professional and Public)
 Policy Development
 Toseek international consensus on clinical
guidelines and recommendations.
 Toestablish unified messages for public ,
patients, and other audiences.

33. Currently Offered
 Participate in NLA Programs at member rate.
 Journal (Electronic)
 Lipid Spin (Electronic)
 Meeting rates
 Participate in Online Education/Community
 Enhance and develop PoLA page at Lipid.org
 Send reports and recommendations to the
NLA Board through a recognized liaison.

34. Short Term Goals
 Participate with NLA in establishment of
recognized curriculum.
 Work on international consensus statements,
guidelines and recommendations.
 Fellowship in the NLA (Award)

35. Long Term Goals
 Establish routes to recognized certification as
necessary.
 Form a global organization of Lipid Related
Organizations
 Demonstrate enhanced patient outcomes and
improvement on a global basis.

36. NLA International Activity
 2005 – Recognized as Component Society of IAS
 2006 – Summit Program in Rome
 2007 – Summit Program in Prague
 2008- Venice IAS- Clinician Council Workgroup
 2010 – Australia AAPSAVD-AAS Congress
 2010 – Australia - Masters Course
 2010 – India - Best of NLA 2010
 2010 – Formal tie with International Cholesterol
Federation
 2011 –Conference with Polish Lipid Association (PoLA
)
 2011 – India-Best of NLA 2011
 2012 – Australia-Collaboration at the ISA 2012
Meeting

37. Option to Join
 $35.00 per year

38. Certification
American Board of Clinical
Lipidology
The American Board of Clinical Lipidology was
established to encourage professional
growth in the practice of Lipidology, and to
enhance physician practice behavior to
improve the quality of patient care.

39. Certification
 The ABCL is an independent certifying
organization offering the only certification
program for physicians specializing in Clinical
Lipidology.
 Since offering its first exam in 2005, 700
physicians have earned the distinction of
“Diplomate of the ABCL.”

40. Training Requirements

41. Certification
 Established in 2006, the Accreditation Council in Clinical
Lipidology is an independent certifying organization that
has developed standards and an exam for allied health
practice providers in lipidology. Two exams are offered.
 Advanced Exam: The ACCL award certification as a "Clinical
Lipid Specialist” to successful candidates (125 CLS)
 Basic Exam The BCCL is a basic exam and certification
available to professionals and industry (199 plus 90
pending)

42. Exam Content ABCL vs. ACCL*
ABCL (physician exam) ACCL (*CLS Allied health exam)
 24% Molecular lipidology  22% Pharmacological Therapy
 18% Pharmacologic therapy  18% Nutrition and Non-
 14% Nutrition and non- pharmacological Therapy
pharmacologic therapy  10% Clinical Trials
 14% Risk assessment and NCEP  10% Metabolic Syndrome
Guidelines  10% Risk Assessment and NCEP
 10% Lipoprotein metabolism Guidelines
 10% Epidemiology and clinical trials  10% Lipoprotein Metabolism
 10% Metabolic syndrome  5% Genetic Disorders
 5% Vascular Biology
 5% Special Populations
(ethnicity,
pediatrics, geriatrics, HIV,
etc.)
 5% Behavior and Compliance

43. Issues the NLA Is Facing
 Maintaining quality/relevance of our CME
 Meeting our diverse members’ needs
 Compliance with new laws and regulation
 Demonstrating outcomes
 Invigorating volunteer leadership
 Creating positive collaborations
 Promoting multidisciplinary care
 Funding / Independence from Industry

44. cseymour@lipid.org
www.lipid.org
Phone: 904.998.0854
Dziekuje