2. Welcome
A devastating 2010
What is
What happens
Leprosy starts by damaging the condition statistics
small nerves in the skin’s surface. Leprosy can also damage nerves in
The first outward sign is usually the face. The eyes will not blink South East
patches with no feeling. If treated at automatically because leprosy Asia
leprosy?
this early stage there is unlikely to be damages the eye nerves so that the 156,254
further damage or disability. If left eyelid muscles stop working. The down
untreated, leprosy goes on to eyes then become easily damaged 9,861
Having joined The Leprosy supporters through promoting advocacy amongst
damage the large nerves in the as they are not protected by the
elbow, wrist, knee and ankle. The blinking mechanism which Africa Mission England & Wales university students and exploring how to effectively
resulting damage can lead to loss of eventually leads to blindness. 25,345 early in 2011, this was my reach young people with the message of
sensation in the hands and feet and Leprosy can also damage the bones down
first year as National The Leprosy Mission. The vital role advocacy plays
muscle paralysis, which causes of the nose. In time this causes the 3,590 CONTENTS
clawed fingers and drop foot. Loss of nose to collapse and flatten. Peter Walker Director and I have been in changing the lives of people affected by leprosy
sensation in the hands and feet Americas 3 Welcome visits Anandaban
Hospital, Nepal. greatly encouraged by the means it has become an area of growth for the
means that everyday activities are 37,740 Introduction from The Leprosy Mission's
new National Director Peter Walker successes and changes organisation. As well as our continuing concern for
fraught with danger – burns go down
unrecognised and stones in shoes
Treatment
2,734 4 Change I have witnessed in that time. As part of its early detection and care for individuals with
unnoticed so ulcers develop, which
Leprosy is a disease of our time - a are difficult to heal and may result in Medical and lifestyle interventions W. Pacific
Where we work and how commitment to influencing long-term change, The leprosy-associated needs such as reconstructive
The Leprosy Mission is evolving
disease of poverty caused by a bacillus shortened digits. are essential to prevent disability 5,055 Leprosy Mission has spent the year forging new surgery and ulcer care, we recognise the invaluable
called Mycobacterium Leprae (a distant and blindness. Leprosy is curable down 6 Connections partnerships and working on new initiatives that role that advocacy plays in changing the lives of
with multidrug therapy but millions 188 The media, providing education
relative of the TB bacillus). Most people of people have visible impairments and working with governments promote an holistic way of targeting the sometimes people affected by leprosy.
are naturally immune but the majority and many people affected by leprosy horrendous consequences of leprosy.
New cases have irreversible disabilities. In
8 Communities
Tackling stigma and increasing social Looking to the year ahead, I am excited by what it
of people affected by leprosy live in In 2010 there were 228,474 new 2010 there were 13,000 new cases integration
cases of leprosy diagnosed – around Whether that means working with mainstream may have in store for us. Late in 2011 it was decided
developing countries where resources of leprosy diagnosed where East
one every two minutes. 59 per cent irreversible disabilities were Mediterranean 10 Where we work disabled people’s organisations to break down the that our work would focus on 12 key partner
are scarce and poverty is widespread, of these were found in India. detected. The 12 countries in which The Leprosy
4,080 stigma surrounding leprosy-affected people, countries. This will enable us to have strong
which leads to reduced life expectancy. up 51
Mission England & Wales works
empowering communities to speak out against relationships with those partners and makes it
12 Champion discriminatory laws or working with governments easier to monitor progress and overall impact. As
Advocacy and challenging
discrimination on new solutions, I am confident that progress has we continue to work in these countries in 2012, I
Increases in countries 14 Contribute been made and that lives have been changed. look forward to the positive change this will have
The supporters making The Leprosy
reporting more than Mission's work possible
for both individuals and communities.
Ethiopia Sri Lanka Sudan
1,000 new cases Mozambique Philippines
16 Challenges
2011 was not without challenges and like many
during 2010 4,430 1,207 2,041 2,027 2,394 Obstacles and looking ahead
other organisations The Leprosy Mission has been
(2009: 4,417) (2009: 1,191) (2009: 1,795) (2009: 1,875) (2009: 2,100) impacted by the difficult economic climate at home
18 2011 Finances and abroad. But at the same time we began to
Income, expenditure, financial Peter Walker
statement and balance sheet reach out to a new generation of potential National Director
2 leprosy mission.org.uk The above statistics are based on records for 2010 released by the World Health Organisation on 2 September 2011. leprosy mission.org.uk 3
3. Change
The Leprosy Mission works in 26 leprosy-endemic Saving sight of disabled people’s organisations.
'Please donate £35 to restore
someone's eyesight through
our Gifts for Life scheme at
www.leprosymission.org.uk/
countries globally. In 2011 it was decided The Leprosy Mission is committed to With a broader disability-focused donate/gfl
that The Leprosy Mission England & Wales would using its expertise to help general approach, The Leprosy Mission in
focus its efforts on 12 countries chosen because of our patients experiencing poverty as well Myanmar is breaking down exclusion
existing partnerships there, high levels of poverty and as those affected by leprosy. Our while providing a far more accessible
the number of new cases of leprosy being diagnosed hospitals frequently hold eye camps, and available service for people
every year. This tighter focus enables clearer where large numbers of people from affected by leprosy.
monitoring of projects, and a better overall impact. rural communities come to receive One new focus of our work in
surgery for conditions like cataracts Myanmar is training other
and glaucoma. In rural areas where Non-Government Organisations
HIGHLIGHTS This year, we have worked to there are few public services and (NGOs) on the issue of disability.
1,449 people with become more effective influencers farming and manual labour are the This is helping to raise
disabilities and affected of holistic change rather than simply main livelihoods, loss of vision is awareness of leprosy
by leprosy were served
by Disability Resource delivering services. Through particularly devastating. Without The and promotes social
Centres in Myanmar advocating for the inclusion of Leprosy Mission’s work, marginalised inclusion.
4,543 patients people affected by leprosy and people would have no access to the
affected by leprosy and disability in government treatment they need and many
8,031 general patients
were admitted to programmes and mainstream would be left, at best, with limited
The Leprosy Mission development, we can have a greater sight or could lose their sight forever.
supported hospitals in
India for treatment
impact on their lives, reach more
2,875 patients in
people and help them to be A disability-focused approach
India received eye empowered to change their own Mainstreaming leprosy as a disability
surgery communities. issue helps to break down stigma. In
the past some countries have not
allowed people with leprosy-related
disabilities to become members
4 leprosy mission.org.uk
4. Connections
As part of its commitment to ensure its work is Equipping the
Through school
sponsorship
programmes The Leprosy
raising awareness about
Mission is enabling
driven by the needs of people affected by leprosy, next generation leprosy through Twitter,
The Leprosy Mission has increased its support for Through school 779 children to go Facebook and the
the Association for Leprosy Affected People in sponsorship to school leprosyvoice blog. In
Mozambique (ALEMO). Moving from being programmes, The March 2011 the award-
‘implementers’ to becoming ‘influencers’, we are Leprosy Mission is enabling winning Channel 4 current
also working to support governments to develop children to go to school, affairs series ‘Unreported World’
their leprosy control programmes and partnering paying for essentials such as focused on leprosy, featuring Naini
with like-minded organisations such as the uniforms, books and stationery. In hospital in India. This was an
Salvation Army in Bangladesh. countries where poverty forces
HIGHLIGHTS excellent opportunity for the public
708 students
families to stop sending their children received vocational to learn more about leprosy and why
to school, this has a long-term training at five centres our work matters.
Choice, dignity the needs of people affected by impact. The Leprosy Mission also in India
and integration leprosy in these communities. supports vocational training centres 234 children from a
leprosy colony in
Our Choice, Dignity and Integration The Leprosy Mission is supporting which are connected to local Nigeria are now
project covering 378 villages is members of the project’s 428 self- businesses for work placements. As a accommodated in
new classrooms
part-funded by the European help groups into independence result of finishing their education, the
521 children in
Commission and works with through literacy training and young people are better placed to India received school Learn how your donation of
5,780 of the most marginalised connecting them to banks to support find work, earn money and achieve sponsorship through
people in Indian society. The income generation. Part of the their dreams. In addition, education The Leprosy Mission £40 will fund a month’s
Leprosy Mission is working with project also involves working to was improved for 234 children in a 2,854 self help worth of vocational training
several women’s rights groups foster acceptance and tolerance, leprosy colony in Nigeria when The
group members in the helping someone to find a
Choice Dignity and
to help those who wish to come out which one day will lead to full Leprosy Mission built new Integration project
job. Visit www.
of the devadasi (temple prostitution) community integration. classrooms. received training in leprosymission.org.uk/
rights and
system and change their lives. In 2011 also saw The Leprosy Mission entitlements, book
donate/gfl
the process, it also addresses partner with the media in new ways, keeping and literacy
leprosy mission.org.uk 7
5. Communities
Social integration is a key issue for The Leprosy Mission. One of the main challenges
Why not give a
community gift that lasts
a lifetime? £800 will buy
a new house. Visit www.
faced by people affected by leprosy is stigma. Often manifested in rejection by family
or the local community, it has a huge impact on people’s lives. This is why we take a
leprosymission.org.uk/
community-based approach to tackling stigma - promoting friendship, donate/gfl
support and integration through self-care and self-help groups.
HIGHLIGHTS Leprosy-affected communities also together to improve lives makes
466 people affected tend to struggle with extreme these groups invaluable. They are
by leprosy or disability poverty and related problems such also actively educating their
in the Gaibanda district
of Bangladesh started as poor housing and sanitation, as community on leprosy, to promote
their own businesses well as other health issues such early diagnosis and treatment.
248 people as HIV/AIDS. Many of our projects
accessed savings and work to address these issues, New livelihoods
credit in Nigeria
ensuring an impact that really In Bangladesh, the Food Security for
715 people received
self-care training in changes lives. the Ultra Poor project is helping
Mozambique people to earn a living and feed their
Transformation families. Through funding to start
through self-care their own businesses, 466 people
Ranking a very low 184 out of 187 on now have a regular source of
the United Nations’ International income. The Leprosy Mission’s
Human Development Index, Members of self-care groups are in intervention in a leprosy colony in
Mozambique is a challenging place no doubt about the value of learning Nigeria has meant a savings co-
to live, particularly for more how to take care of wounds and operative has been established.
vulnerable members of society such prevent further injury. The friendship, Members can now save money and
as women, disabled or older people. support and chance to work take out loans to start income
generation activities.
8 leprosy mission.org.uk
6. 1 NIGER
Communities in Danja are
receiving vocational training,
literacy classes and education in
farming techniques to improve their
7 MOZAMBIQUE
Ahiena was diagnosed with
leprosy five years ago. After
undergoing treatment she is now a
member of a group that teaches
livelihoods. self-care and owns a plot of land for
farming vegetables.
2 NIGERIA
Ishola is part of a
savings co-operative and has
purchased a motorcycle which he
uses to provide a passenger taxi
8 INDIA
These women have been
supported in setting up a milk
collection enterprise where they sell
milk produced by their buffaloes to
service. He can now support his a local dairy. They have been
family and send his daughter to delighted with the increase in income.
school.
3 NORTH SUDAN
Our work in Khartoum State
sees communities benefiting
9 NEPAL
Seikh has had successful
reconstructive surgery on his
hand. It was clawed and paralysed
but now he can use it again and
from better medical care and
increased awareness of disability return to school.
issues.
.
4 SOUTH SUDAN
We are hoping to develop new
projects in South Sudan during
10 BANGLADESH
Parvin attended a tailoring
course and was provided
with a sewing machine. The clothes
she now makes are in high demand
the course of the next 12 months. and Parvin earns enough to provide
Where
for her family.
5 ETHIOPIA
Communities are benefiting
from improved access to
sanitation and safe drinking water, as
well as receiving help in developing
11 MYANMAR
Mytin is taking medication to
cure his leprosy and is also
having physiotherapy. In the future
we work
sustainable livelihoods. he will be supported in finding
employment or starting his own
business.
6 DR CONGO
Children in West Kasai province
receive support enabling them
to go to school. 12 SRI LANKA
Families affected by
leprosy, disability and
poverty are benefiting from
Our 12 countries of focus healthcare, education and training.
Awareness-raising helps to reduce
discrimination against them.
10 leprosy mission.org.uk leprosy mission.org.uk 11
7. "The Leprosy
Mission is the
Champion
facilitator but it is HIGHLIGHTS
people affected by leprosy The Challenging Anti-Leprosy
Legislation project in India has made
who have to stand in 1,532 people aware of their rights and
front and raise
entitlements. 565 of these are now
accessing benefits such as pensions
the flag." and ration cards
In 2011 we launched the Leprosy Out Loud! campaign, Increased engagement from UK MPs
on leprosy issues through the All Party
piloted amongst university students. It highlights the Parliamentary Group for Malaria and
human rights abuses faced by people affected by leprosy Neglected Tropical Disease
both in the UK and overseas. Leprosy Out Loud! calls Discriminatory legislation (1898
Lepers Act) repealed in Bangladesh
people to engage with these issues and speak out.
One piece of legislation in the UK with connotations of being Mr Inglay, one community leader
which discriminates against people untouchable and dirty. When its who is working with us to mobilise
affected by leprosy is included in UK use has been noted in the media, communities to challenge
immigration guidelines. The we have contacted the parties discrimination, says, “If you want your
guidelines recommend that people responsible to explain our position, rights you have to speak out. The
affected by leprosy are refused entry asking them to refrain from using Leprosy Mission is the facilitator but it
to the country. The Leprosy Mission it in future. is people affected by leprosy who have
has met with MPs to discuss this and to stand in front and raise the flag.”
is also part of the All-Party Challenging discrimination
Group on Malaria and The Challenging Anti-Leprosy Victory in Bangladesh
Neglected Tropical Diseases. Legislation project in India is One example of advocacy having
working to advocate against a positive impact in 2011 was the
Don’t Call Me A Leper discriminatory laws and empower repeal of the 1898 Lepers Act in Sign up online to the charter and support
Our ‘Don’t Call Me a Leper’ leprosy-affected people to speak out Bangladesh. This law had confined our cause at www.leprosyoutloud.org.uk.
campaign is encouraging against them. In India, leprosy is people affected by leprosy to
You can also ‘like’ us on Facebook by
people to be careful with grounds for divorce and having state-run institutions. Now, they
searching for Leprosy Out Loud!,
their language. The word leprosy can mean people are denied will be able to integrate better
‘leper’ is offensive to a driving licence or prevented from into society and access their rights
or follow us on Twitter @H_R_Defender
people affected by leprosy, travelling on trains. and entitlements.
12 leprosy mission.org.uk
8. Order your copy of
Contribute
Blisters and Blessings
today from TLM Trading
Natalie
Limited priced at £6. Call
0845 166 2253 or visit challenged herself
www.tlmtrading.com for to change the
further details. In 2011 we were grateful for the support of the Natalie’s walk of hope world for 1,000
Department for International Development (DFID) for On 30 June 2011, The Leprosy people affected by
the Challenging Anti-Leprosy Legislation project in Mission's Area Co-ordinator for the leprosy
India and like-minded organisations such as South West, Natalie Husk and her
Tearfund who funded projects in Myanmar. Likewise dog Toby completed an epic two-
our ongoing thanks go to Guernsey and Jersey month sponsored walk covering 630
Overseas Aid Commissions which have supported miles along the length of the South
our leprosy work for 25 years. In 2011, they funded West Coast Path. HIGHLIGHTS
projects in Bangladesh, Nepal, Niger, and Nigeria. Natalie challenged herself to Over £20,000
change the world for 1,000 people generated through
the South West Coast
Trust and foundation affected by leprosy by raising money Path Walk
partnerships continue to for specially adapted shoes and £92,479 donation
make an important prostheses. She was inspired to do from Guernsey
contribution to The this after meeting people affected Overseas Aid
Commission for
Leprosy Mission's work and by leprosy at The Leprosy Mission’s three projects, the
in 2011 our projects have hospitals in India in 2009. largest ever donation
we have received
benefited from the Her target was £10,000 – to date
from them
generosity of, among she has raised more than £20,000.
Tearfund funded
others, the Vitol Charitable She has also raised awareness about emergency relief
Foundation, R Care leprosy as her story was covered in to leprosy-affected
communities
(Midlands) Limited, and The numerous articles and broadcasts following the Eastern
Military & Hospitaller Order including a mention on Radio 2. Shan Earthquake
of Saint Lazarus of Natalie kept a diary of her in Myanmar
Jerusalem. We look experiences on the walk, and her
forward to continuing these writings have been published as
partnerships in 2012. a book, Blisters and Blessings.
leprosy mission.org.uk 15
9. Challenges
HIGHLIGHTS
Increase in the number
of online donations
we must E-newsletter coverage
to 5,900 people
find new ways to
Government of India has
reach out to younger carried out improvements
In keeping with the rest of the world and the Another challenge is the fact that to the drainage systems
generations to ensure in a leprosy colony in
situation for other charities in 2011, The Leprosy despite our faithful and dedicated
Mission England & Wales has had to deal with a drop donor base, we must find new ways the future of the The Chhattisgarh after
advocacy efforts
in income due to the economic downturn. In order to reach out to younger generations Leprosy Mission
to prioritise funds some field programmes have had to ensure the continuation of our
to close, although we are confident that our new work in transforming lives. Work has
focus on 12 countries will enable us to have a better already been done in 2011 – for
impact through our current projects. example through the Leprosy Out
Loud! Campaign – and new ways of
giving online and by text. We are world and, combined with other
harnessing social media tools and problems such as malnutrition and
will, in the year ahead, engage discrimination, means there is still
further with new audiences to seek much work to be done.
donations, prayer support, advocacy Our work in India is increasingly
partners and new initiatives. focusing on advocacy and
empowerment. This includes
Overseas aid supporting people in accessing
At present, the issue of providing aid entitlements and benefits from the
We invite you to to India is a controversial one and Government, helping them navigate
transform a life there is concern that India has the through bureaucracy, enabling local
today – donate by resources to tackle many of its issues authorities to improve communities,
texting JUMA11 itself. The Leprosy Mission recognises and advocating for greater
and £amount to that withdrawing aid to India would investment in leprosy services from
70070. mean the poorest people would the government. This is a different
suffer. There is more leprosy in India approach to our work in the past and
than in any other country in the is proving to be effective.
16 leprosy mission.org.uk
10. Finances 2011
Statement of financial activities Balance sheet at 31 December 2011
Incoming resources 2011 2010 2011 2010
Incoming resources Voluntary income £5,023,704 £5,762,260 Fixed assets: Tangible assets £791,155 £810,377
from generated funds
Government grants £381,090 £281,762 Investment assets - -
Investment income £11,915 £9,501 £791,155 £810,377
Other incoming Gains on revaluation/ Current assets: Tangible assets –
resources disposal of fixed assets properties for sale £280,000 £280,000
for charity’s own use - £15,965
Debtors £379,630 £547,561
Other income £4,000 £4,000
Investments held £2,823 £2,675
Total incoming resources £5,420,709 £6,073,488
Cash at bank and in hand £385,181 £550,186
Resources expended Costs of generating
£1,047,634 £1,380,422
voluntary income £1,057,920 £1,092,923
Liabilities: Creditors: amounts falling
Investment management
due within one year (£89,504) (£598,108)
costs £1,413 £1,127
Net current assets £958,130 £782,314
Charitable activities £4,137,248 £5,178,675
Total assets less current
Governance costs £67,682 £82,340
liabilities £1,749,285 £1,592,691
Total resources expended £5,264,263 £6,355,065
The funds of the charity:
Net incoming/ (outgoing) Restricted income funds, Unrestricted income funds
resources before other
recognised gains and losses £156,446 (£281,577) Designated Reserve (inc.
Gains/losses on reserve in respect of the
investment assets £148 (£34,922) value of the tangible
This summary financial information is statements have been audited and given allow for a full understanding of the assets) £1,071,155 £1,090,377
Net movements in funds £156,594 (£316,499)
not the statutory accounts but has been an unqualified report. Copies of the full financial affairs of the charity. The full General funds £678,130 £502,314
derived from the audited financial statements have been submitted to the accounts, including the audit report, may Reconciliation of funds Total funds brought
forward at 1 January 2011 £1,592,691 £1,909,190 £1,749,285 £1,592,691
statements which were approved by the Charity Commission and the Registrar of be obtained from The Leprosy Mission
Trustees on Thursday 17 May 2012 and Companies. This summary may not England, Wales, the Channel Islands Thank you for helping us provide essential services and
Total funds carried forward at 31 December 2011 £1,749,285 £1,592,691
other financial information. The full contain sufficient information to and the Isle of Man. support in 2011 for people affected by leprosy.
18 leprosy mission.org.uk leprosy mission.org.uk 19
11. leprosymission.org.uk
The Leprosy Mission England & Wales, Goldhay Way, Orton Goldhay, Peterborough, PE2 5GZ
Tel: 01733 370505 Fax: 01733 404880 Email: post@TLMEW.org.uk
The Leprosy Mission England & Wales @leprosytalk leprosyvoice
Reg. charity no: 1050327 A company limited
by guarantee reg. in England and Wales no. 3140347
