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UNDERSTANDING LIFE WITH
        BRAIN INJURY:
The Crossroads of Traumatic Brain Injury and
            Domestic Violence




                    Judith I. Avner, Esq.
         Brain Injury Association of New York State
                      February 9, 2010                1
• Every 23 seconds a
  person in the United
  States sustains a
  traumatic brain injury
  (TBI)



                           2
Comparative Incidence




          Brain Injury Association of America, 2005
Leading Causes of Traumatic Brain Injury




                                     CDC 2007
LIFE WITH BRAIN INJURY

• Brain injury is the silent epidemic



• 3.2 million people in the US are living with a
  long term disability due to brain injury




                                                   5
Epidemiology of TBI in the Civilian
                   Population


•   An estimated 10 million Americans are affected by stroke and TBI, making
    brain injury the second most prevalent injury and disability in the United
    States
•   Every 23 seconds, one person in the United States sustains a traumatic
    brain injury.
•   1.4 million Americans survive traumatic brain injuries each year.
•   More than 55,000 people die every year as a result of traumatic brain
    injury.
•    56% of adults with brain injuries tested positive for blood alcohol.
•   Each year, 2-4 million women are physically abused by an intimate
    partner. The head, face and neck are the most frequent sites of injury.
Domestic Violence and TBI


Greater than 90% of all injuries secondary to
 domestic violence occur to the head, neck or
                 face region.



                               (Monahan & O’Leary 1999)


                                                          7
Women Reporting to ERs for
    Injuries Associated with DV:


• 30% of battered women reported a loss of
  consciousness at least once.
• 67% reported residual problems that were
  potentially head-injury related.

                                   (Corrigan 2003)




                                                     8
The Signature Wound…The Tip of the
                        Iceberg
• As many as 20% of US combat troops leaving Iraq and
  Afghanistan are affected by traumatic brain injury.1

• “…it is unknown how many soldiers have suffered a TBI during
  OEF/OIF.” The incidence of moderate to severe TBI’s are well
  captured, but the “overall incidence of mild TBI or concussion
  in the military” is unknown.1

• The effects of concussion from blast injury are not always
  immediately apparent.

1Army   Task Force Report, May 2008
Blasts
• Are the leading cause of TBI for active duty
  military personnel1

• Account for 69% of TBI cases in the current
  conflicts2


1The Defense and    Veterans Brain Injury Center, http:// dvbic.org/blastinjury.html
2 CRS   Report for Congress, US Military Casualty Statistics, OIF and OEF, August 17, 2007
THE BRAIN
Controls everything we do
…breathing
…walking
…talking
…thinking
…behaving
…feeling



                              11
DEFINITION – ACQUIRED BRAIN INJURY

Injury to the brain which is not hereditary,
congenital or degenerative, and may include
brain damage resulting from events such as
stroke, aneurysms, anoxia from near
drowning, toxic substances or traumatic brain
injury (TBI)



                                            12
ACQUIRED BRAIN INJURY INCLUDES:
Aneurysm
Stroke
Encephalitis
Anoxia
Traumatic brain injury
   - Gunshot wound
   - Concussion blast injuries
   - Head hitting windshield
   - Severe whiplash
   - Shaken Baby Syndrome
   - Domestic Violence
Toxic exposure (CO, lead paint, neurotoxins, inhaled vapors)
ACQUIRED BRAIN INJURY EXCLUDES:
• Congenital Disorders
  – Intellectual Disabilities
  – Cerebral Palsy
  – Birth Injuries

• Progressive Disorders
  – Alzheimer’s Disease

• Psychiatric Disorders
  – In which there is no known or obvious central nervous
    system damage

                                                        14
DEFINITION – TRAUMATIC BRAIN INJURY
• Traumatic brain injury is a specific type of damage to the brain that
  results when the head:
   – hits a stationary object (e.g., windshield in a car crash)
   – is hit (e.g., mugging; assault)
   – is penetrated (e.g., gunshot wound)
   – is violently shaken by external force(e.g., Shaken Baby Syndrome,
     severe whiplash)
   – Concussion blast injury

• Often included, especially in terms of service provision groups, are
  individuals with other types of post-natal acquired injuries, such as
  strokes or aneurysms.
                                                                    15
HOW BRAIN DAMAGE OCCURS

The brain is a complicated
organ, with millions of cells
and connections.

• While specific areas of the brain may be related to
  specific functions, in reality each function (walking,
  lifting an arm, speaking, etc.) involves many areas of the
  brain communicating and interacting with each other.
HOW BRAIN DAMAGE OCCURS

Damage to the brain may vary in extent, area
and type of damage depending upon:
– nature of the injury
– severity of the injury
– how the injury occurred
– quickness of medical response
HOW BRAIN DAMAGE OCCURS                               IN A
              TBI
• Focal Damage
   – Skull Fracture
   – Contusion or bruises under the location of a particular
     area of impact
• Fronto-Temporal Contusions/Lacerations
   – Bruising of brain or tearing of blood vessels in the frontal
     and temporal lobes of the brain caused by brain hitting or
     rotating across ridges inside skull
• Diffuse Axonal Injury
   – Shifting and rotation of brain inside skull will result in
     tearing and shearing injuries to the brain’s long connecting
     nerve fibers or axons

                                                                18
HOW BRAIN DAMAGE OCCURS           IN A
                TBI
Some time after the injury the
following may affect the brain:
•   Hematoma (Blood Vessel Damage)
•   Brain Swelling
•   Increased Intracranial Pressure
•   Intracranial Infection
•   Seizures

                                             19
CUMULATIVE EFFECTS OF REPEATED
          CONCUSSIONS
• History of 3 previous concussions increases
  risk of repeated concussions 3-fold.
• Athletes with history of 3+ concussions report
  significantly more symptoms and have lower
  memory scores at baseline
• Symptoms following repeat concussions may
  be more serious and resolve at a slower rate
• Worse case = “second-impact syndrome”
                                                 20
REPEATED BRAIN INJURY
• Typical of ongoing domestic violence.

• Leads to increased cognitive, physical, and
  emotional dysfunction over time.




                                 (Hibbard 2002)



                                                  21
EVERY PERSON WITH BRAIN INJURY IS DIFFERENT

There are vast differences from person to person because:

• Every individual is different prior to an injury

• Every brain injury is different




                                                      22
COMMON PROBLEMS AFTER BRAIN INJURY
Broad Functional Categories:

•   PHYSICAL
•   COGNITIVE
•   EXECUTIVE FUNCTIONING
•   AFFECTIVE/BEHAVIORAL
•   PSYCHOSOCIAL


                                     23
FOR AN ABUSED WOMAN, TBI MAY MAKE
       IT MORE DIFFICULT TO…


•   assess danger and defend herself against assaults
•   make and remember safety plans
•   go to school or hold a job
•   leave an abusive partner
•   live independently
•   access services
•   adapt to living in a shelter
•   care for her children

                                                  (NYS OPDV)
COMMON PROBLEMS AFTER BRAIN INJURY
           PHYSICAL
Loss of Smell and Taste
Hearing Loss
Visual Difficulties
Balance Difficulties
Dysarthria
Motor Control and Coordination
Fatigue
Seizures
Decreased Tolerance for Drugs and Alcohol
Headaches
Sleep Disturbances

                                            25
COMMON PROBLEMS AFTER BRAIN INJURY
          COGNITIVE
Short Term/Working Memory
Attention
Concentration
Distractibility
Decreased Verbal Fluency/Comprehension
Information processing
Arousal
Problem Solving
Charged Intellectual Functioning
Abstraction and Conceptualization
Slowed Reaction Time
                                         26
COMMON PROBLEMS AFTER BRAIN INJURY
      EXECUTIVE FUNCTIONING
Goal Setting
Self-Monitoring
Planning
Initiating
Modifying
Bringing to Completion




                                  27
COMMON PROBLEMS AFTER BRAIN INJURY
       AFFECTIVE/BEHAVIORAL
Impulsivity
Emotional Lability
Irritability
Decreased Frustration Tolerance
Impaired Judgment
Tension/Anxiety
Depression
Aggressive Behaviors
Disinhibition
Changed Sexual Drive
Changed Personality
                                  28
COMMON PROBLEMS AFTER BRAIN INJURY
          PSYCHOSOCIAL
• Educational/Vocational Problems
• Interpersonal Difficulties
  - Intimacy/Sexuality
  - Dependency Issues
  - Alcohol/Drugs
• Intra-Personal Difficulties
  - Loss of Self Esteem
  - Depression/Frustration/PTSD*
  - Shaken Sense of Self
  - Profound Sense of Loss
• Family Issues

                                    29
RESULTS OF BRAIN INJURY
    These are just lists of resulting problems
that may occur. Not all individuals with a
brain injury will have all these problems and
each person may have a different combination
of problems or “deficits”.




                                             30
HOPE              FEAR     ANXIETY
CONFUSION




the injury…

                GUILT                   BEWILDERED

                                SHOCK


   ISOLATION



                        ANGER

                                         PAIN
               DENIAL

                                                31
A SAMPLING OF TREATMENT PROVIDERS
            Psychiatrist               Neurologist
            Social Worker               Orthopedic
                                                          Domestic Violence
                                         Surgeon
                                                             Advocate

                Physiatrist
                                                          Speech     Waiver Providers
                                       job coach         Therapist    Community -
               Pharmacist                                            based Providers
                                       Pain Mgmt
                                       Specialist
             Neuropsychologist                                Massage Therapist

                                                                  Behavioral
                    Clergy                Psychologist          Ophthalmologist



                                                     Physical Therapist
                Chiropractor
                                                                               Urologist
Substance       Service Coordinator   Occupational          Nurses
Abuse                                  Therapist
Counselor
                                                                                        32
RESULTS OF BRAIN INJURY
   Remember, since you are talking about a
brain that started out intact and then was
damaged, people with brain injury will have
many intact abilities.

   This is you or me with some areas of
function changed.


                                              33
WORKING WITH PERSONS WITH
             BRAIN INJURY

It is critical to understand the individuals with
   whom you work so that you know what they
   are capable of doing for themselves and what
   they need help with (e.g., the type and level
   of support).

Don’t be mislead by what looks like a personality
 trait or a willful decision. You may be seeing
 brain injury related behavior.
                                                    34
SOME THINGS TO THINK ABOUT
• Minimize distractions
• Keep meetings short and direct
• Focus on one task at a time; stick to that topic
• Be concrete; break information into small
  pieces
• Double check to make sure she understands



                                                 35
MORE TO CONSIDER…
•   Write information down (as long as it is safe)
•   Develop and use checklists
•   Break tasks and goals into small, tangible steps
•   Allow extra time for completing tasks
•   Provide feedback respectfully and positively
•   LISTEN TO WHAT SHE IS EXPRESSING



                                                  36
HELPS Screening Tool
• H: were you HIT in the head?
• E: Did you seek EMERGENCY room treatment?
• L: Did you LOSE consciousness? (caution: not
  necessary to lose consciousness to sustain a TBI)
• P: Are you having problems with
  concentration and memory?
• S: Did you experience SICKNESS or other
  physical problems following the injury?

                                                      37
THE BRAIN INJURY ASSOCIATION
                 OF NEW YORK STATE

•   Traumatic Brain Injury Training and Military Veterans Service Project
•   Family Advocacy, Counseling & Training Services Program (FACTS)
•   Support groups
•   Caregiver Support
•   Statewide resources
•   Information and training about TBI
•   Certified Brain Injury Specialist Training
•   Annual conferences and symposia
•   Family Help Line (800) 228-8201
•   Project LEARN in the classroom (LEARNet)
FAMILY ADVOCACY, COUNSELING, AND
  TRAINING SERVICES PROGRAM (FACTS)

• A family support program operated by BIANYS and
  funded by NYS OMRDD.

• Users of the program must have sustained an injury
  prior to age 22 and be a NYS resident.

• There are 16 FACTS coordinators throughout NYS.


                                                       39
SOME OTHERRESOURCES TO KNOW
NYS Waiver Programs
• Department of Health
• Office of Mental Retardation and Developmental Disabilities (OMRDD)
Community Based Rehabilitation Services
        • Contact County Mental Health Departments
        • Local Rehabilitation Programs- located in private hospitals,
          university medical centers, private practice
          physicians/therapists/counselors
Return to Work Vocational Planning
        • Day Programs
        • Volunteer Opportunities in Community
        • VESID
        • Cornell Cooperative Extension
ADDITIONAL RESOURCES TO KNOW

Housing
    • Independent Living Centers
Transportation
    • Local Transportation Authority
Medicare
    • Social Security Disability Income
    • Supplemental Security Income
42
BRAIN INJURY ASSOCIATION OF
      NEW YORK STATE

       10 Colvin Avenue
       Albany, NY 12206
         (518) 459-7911
Family Helpline: 1-800-228-8201
        info@bianys.org
        www.bianys.org

                                  43

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Brain Injury Ppt

  • 1. UNDERSTANDING LIFE WITH BRAIN INJURY: The Crossroads of Traumatic Brain Injury and Domestic Violence Judith I. Avner, Esq. Brain Injury Association of New York State February 9, 2010 1
  • 2. • Every 23 seconds a person in the United States sustains a traumatic brain injury (TBI) 2
  • 3. Comparative Incidence Brain Injury Association of America, 2005
  • 4. Leading Causes of Traumatic Brain Injury CDC 2007
  • 5. LIFE WITH BRAIN INJURY • Brain injury is the silent epidemic • 3.2 million people in the US are living with a long term disability due to brain injury 5
  • 6. Epidemiology of TBI in the Civilian Population • An estimated 10 million Americans are affected by stroke and TBI, making brain injury the second most prevalent injury and disability in the United States • Every 23 seconds, one person in the United States sustains a traumatic brain injury. • 1.4 million Americans survive traumatic brain injuries each year. • More than 55,000 people die every year as a result of traumatic brain injury. • 56% of adults with brain injuries tested positive for blood alcohol. • Each year, 2-4 million women are physically abused by an intimate partner. The head, face and neck are the most frequent sites of injury.
  • 7. Domestic Violence and TBI Greater than 90% of all injuries secondary to domestic violence occur to the head, neck or face region. (Monahan & O’Leary 1999) 7
  • 8. Women Reporting to ERs for Injuries Associated with DV: • 30% of battered women reported a loss of consciousness at least once. • 67% reported residual problems that were potentially head-injury related. (Corrigan 2003) 8
  • 9. The Signature Wound…The Tip of the Iceberg • As many as 20% of US combat troops leaving Iraq and Afghanistan are affected by traumatic brain injury.1 • “…it is unknown how many soldiers have suffered a TBI during OEF/OIF.” The incidence of moderate to severe TBI’s are well captured, but the “overall incidence of mild TBI or concussion in the military” is unknown.1 • The effects of concussion from blast injury are not always immediately apparent. 1Army Task Force Report, May 2008
  • 10. Blasts • Are the leading cause of TBI for active duty military personnel1 • Account for 69% of TBI cases in the current conflicts2 1The Defense and Veterans Brain Injury Center, http:// dvbic.org/blastinjury.html 2 CRS Report for Congress, US Military Casualty Statistics, OIF and OEF, August 17, 2007
  • 11. THE BRAIN Controls everything we do …breathing …walking …talking …thinking …behaving …feeling 11
  • 12. DEFINITION – ACQUIRED BRAIN INJURY Injury to the brain which is not hereditary, congenital or degenerative, and may include brain damage resulting from events such as stroke, aneurysms, anoxia from near drowning, toxic substances or traumatic brain injury (TBI) 12
  • 13. ACQUIRED BRAIN INJURY INCLUDES: Aneurysm Stroke Encephalitis Anoxia Traumatic brain injury - Gunshot wound - Concussion blast injuries - Head hitting windshield - Severe whiplash - Shaken Baby Syndrome - Domestic Violence Toxic exposure (CO, lead paint, neurotoxins, inhaled vapors)
  • 14. ACQUIRED BRAIN INJURY EXCLUDES: • Congenital Disorders – Intellectual Disabilities – Cerebral Palsy – Birth Injuries • Progressive Disorders – Alzheimer’s Disease • Psychiatric Disorders – In which there is no known or obvious central nervous system damage 14
  • 15. DEFINITION – TRAUMATIC BRAIN INJURY • Traumatic brain injury is a specific type of damage to the brain that results when the head: – hits a stationary object (e.g., windshield in a car crash) – is hit (e.g., mugging; assault) – is penetrated (e.g., gunshot wound) – is violently shaken by external force(e.g., Shaken Baby Syndrome, severe whiplash) – Concussion blast injury • Often included, especially in terms of service provision groups, are individuals with other types of post-natal acquired injuries, such as strokes or aneurysms. 15
  • 16. HOW BRAIN DAMAGE OCCURS The brain is a complicated organ, with millions of cells and connections. • While specific areas of the brain may be related to specific functions, in reality each function (walking, lifting an arm, speaking, etc.) involves many areas of the brain communicating and interacting with each other.
  • 17. HOW BRAIN DAMAGE OCCURS Damage to the brain may vary in extent, area and type of damage depending upon: – nature of the injury – severity of the injury – how the injury occurred – quickness of medical response
  • 18. HOW BRAIN DAMAGE OCCURS IN A TBI • Focal Damage – Skull Fracture – Contusion or bruises under the location of a particular area of impact • Fronto-Temporal Contusions/Lacerations – Bruising of brain or tearing of blood vessels in the frontal and temporal lobes of the brain caused by brain hitting or rotating across ridges inside skull • Diffuse Axonal Injury – Shifting and rotation of brain inside skull will result in tearing and shearing injuries to the brain’s long connecting nerve fibers or axons 18
  • 19. HOW BRAIN DAMAGE OCCURS IN A TBI Some time after the injury the following may affect the brain: • Hematoma (Blood Vessel Damage) • Brain Swelling • Increased Intracranial Pressure • Intracranial Infection • Seizures 19
  • 20. CUMULATIVE EFFECTS OF REPEATED CONCUSSIONS • History of 3 previous concussions increases risk of repeated concussions 3-fold. • Athletes with history of 3+ concussions report significantly more symptoms and have lower memory scores at baseline • Symptoms following repeat concussions may be more serious and resolve at a slower rate • Worse case = “second-impact syndrome” 20
  • 21. REPEATED BRAIN INJURY • Typical of ongoing domestic violence. • Leads to increased cognitive, physical, and emotional dysfunction over time. (Hibbard 2002) 21
  • 22. EVERY PERSON WITH BRAIN INJURY IS DIFFERENT There are vast differences from person to person because: • Every individual is different prior to an injury • Every brain injury is different 22
  • 23. COMMON PROBLEMS AFTER BRAIN INJURY Broad Functional Categories: • PHYSICAL • COGNITIVE • EXECUTIVE FUNCTIONING • AFFECTIVE/BEHAVIORAL • PSYCHOSOCIAL 23
  • 24. FOR AN ABUSED WOMAN, TBI MAY MAKE IT MORE DIFFICULT TO… • assess danger and defend herself against assaults • make and remember safety plans • go to school or hold a job • leave an abusive partner • live independently • access services • adapt to living in a shelter • care for her children (NYS OPDV)
  • 25. COMMON PROBLEMS AFTER BRAIN INJURY PHYSICAL Loss of Smell and Taste Hearing Loss Visual Difficulties Balance Difficulties Dysarthria Motor Control and Coordination Fatigue Seizures Decreased Tolerance for Drugs and Alcohol Headaches Sleep Disturbances 25
  • 26. COMMON PROBLEMS AFTER BRAIN INJURY COGNITIVE Short Term/Working Memory Attention Concentration Distractibility Decreased Verbal Fluency/Comprehension Information processing Arousal Problem Solving Charged Intellectual Functioning Abstraction and Conceptualization Slowed Reaction Time 26
  • 27. COMMON PROBLEMS AFTER BRAIN INJURY EXECUTIVE FUNCTIONING Goal Setting Self-Monitoring Planning Initiating Modifying Bringing to Completion 27
  • 28. COMMON PROBLEMS AFTER BRAIN INJURY AFFECTIVE/BEHAVIORAL Impulsivity Emotional Lability Irritability Decreased Frustration Tolerance Impaired Judgment Tension/Anxiety Depression Aggressive Behaviors Disinhibition Changed Sexual Drive Changed Personality 28
  • 29. COMMON PROBLEMS AFTER BRAIN INJURY PSYCHOSOCIAL • Educational/Vocational Problems • Interpersonal Difficulties - Intimacy/Sexuality - Dependency Issues - Alcohol/Drugs • Intra-Personal Difficulties - Loss of Self Esteem - Depression/Frustration/PTSD* - Shaken Sense of Self - Profound Sense of Loss • Family Issues 29
  • 30. RESULTS OF BRAIN INJURY These are just lists of resulting problems that may occur. Not all individuals with a brain injury will have all these problems and each person may have a different combination of problems or “deficits”. 30
  • 31. HOPE FEAR ANXIETY CONFUSION the injury… GUILT BEWILDERED SHOCK ISOLATION ANGER PAIN DENIAL 31
  • 32. A SAMPLING OF TREATMENT PROVIDERS Psychiatrist Neurologist Social Worker Orthopedic Domestic Violence Surgeon Advocate Physiatrist Speech Waiver Providers job coach Therapist Community - Pharmacist based Providers Pain Mgmt Specialist Neuropsychologist Massage Therapist Behavioral Clergy Psychologist Ophthalmologist Physical Therapist Chiropractor Urologist Substance Service Coordinator Occupational Nurses Abuse Therapist Counselor 32
  • 33. RESULTS OF BRAIN INJURY Remember, since you are talking about a brain that started out intact and then was damaged, people with brain injury will have many intact abilities. This is you or me with some areas of function changed. 33
  • 34. WORKING WITH PERSONS WITH BRAIN INJURY It is critical to understand the individuals with whom you work so that you know what they are capable of doing for themselves and what they need help with (e.g., the type and level of support). Don’t be mislead by what looks like a personality trait or a willful decision. You may be seeing brain injury related behavior. 34
  • 35. SOME THINGS TO THINK ABOUT • Minimize distractions • Keep meetings short and direct • Focus on one task at a time; stick to that topic • Be concrete; break information into small pieces • Double check to make sure she understands 35
  • 36. MORE TO CONSIDER… • Write information down (as long as it is safe) • Develop and use checklists • Break tasks and goals into small, tangible steps • Allow extra time for completing tasks • Provide feedback respectfully and positively • LISTEN TO WHAT SHE IS EXPRESSING 36
  • 37. HELPS Screening Tool • H: were you HIT in the head? • E: Did you seek EMERGENCY room treatment? • L: Did you LOSE consciousness? (caution: not necessary to lose consciousness to sustain a TBI) • P: Are you having problems with concentration and memory? • S: Did you experience SICKNESS or other physical problems following the injury? 37
  • 38. THE BRAIN INJURY ASSOCIATION OF NEW YORK STATE • Traumatic Brain Injury Training and Military Veterans Service Project • Family Advocacy, Counseling & Training Services Program (FACTS) • Support groups • Caregiver Support • Statewide resources • Information and training about TBI • Certified Brain Injury Specialist Training • Annual conferences and symposia • Family Help Line (800) 228-8201 • Project LEARN in the classroom (LEARNet)
  • 39. FAMILY ADVOCACY, COUNSELING, AND TRAINING SERVICES PROGRAM (FACTS) • A family support program operated by BIANYS and funded by NYS OMRDD. • Users of the program must have sustained an injury prior to age 22 and be a NYS resident. • There are 16 FACTS coordinators throughout NYS. 39
  • 40. SOME OTHERRESOURCES TO KNOW NYS Waiver Programs • Department of Health • Office of Mental Retardation and Developmental Disabilities (OMRDD) Community Based Rehabilitation Services • Contact County Mental Health Departments • Local Rehabilitation Programs- located in private hospitals, university medical centers, private practice physicians/therapists/counselors Return to Work Vocational Planning • Day Programs • Volunteer Opportunities in Community • VESID • Cornell Cooperative Extension
  • 41. ADDITIONAL RESOURCES TO KNOW Housing • Independent Living Centers Transportation • Local Transportation Authority Medicare • Social Security Disability Income • Supplemental Security Income
  • 42. 42
  • 43. BRAIN INJURY ASSOCIATION OF NEW YORK STATE 10 Colvin Avenue Albany, NY 12206 (518) 459-7911 Family Helpline: 1-800-228-8201 info@bianys.org www.bianys.org 43