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Children with Rare Diseases
I Photograph Children with Rare Diseases To Encourage
People To Look Beyond Their Condition. I want to break
down barriers and allow people to really get to know the
person and not just their condition. The project I am
working on at the moment specifically looks at rare
diseases and is called the Rare Project. Rust Oil Spray
Matthew is totally in love with football, it’s his
passion
He has Crouzon syndrome and has a cochlear implant.

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ELISABETH LOVES TO DANCE AND
HAS RECENTLY STARTED BALLET
LESSONS
She was born as a twin at a gestation of 23 weeks and
4 days. She weights 1lb 4.5 ounces. After 3 months it
was discovered that she had developed hydrocephalus
(water on the brain) probably caused by a small brain
hemorrhage. Website Design Company
pitampura

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TOMOS DREAMS OF THE DAY HE
CAN PLAY FOOTBALL FOR
MANCHESTER UNITED
He has Spina Bifida.

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APRIL IS A BRAVE AND
DETERMINED LITTLE
CHARACTER, SO FRIENDLY AND
QUIRKY, SHE CHARMS EVERYONE
WHO MEETS HER Grease
She has Hurlers Syndrome.
SEO Services Delhi

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GRACE LOVES EVERYTHING TO
DO WITH DISNEY, ESPECIALLY
MICKEY
She has sacral agenesis, a heart murmur, pvl and a
misplaced spleen.
Engine Oil

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HEIDI ENJOYS GOING TO THE
CINEMA, EATING OUT, PUTTING
THE MAKE-UP ON, HAVING HER
NAILS PAINTED AND DRESSING
UP AS DISNEY PRINCESSES. SHE
ABSOLUTELY ADORES ANIMALS
AND GOING ON FAMILY DAYS OUT
She has Ehlers Danlos syndrome type 3. It is a collagen
disorder that makes her joints to partial sublux
(dislocate) and to fully dislocate. She also has low

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Website Design Company
Call: +91 – 9868330332
mail: info@synergywebdesigners.com
visit: www.synergywebdesigners.com
muscle tone which causes her to be very unsteady on
her feet, it also causes tiredness severe chronic pain
around the joints.EDM Oil
FAITH IS AN AFFECTIONATE, FUN,
CHATTY, LOVING, WARM 14-
YEAR-OLD WITH A GREAT SENSE
OF HUMOUR
Shopping Cart Developer

8. SEO Services, Domain Registration,
Website Design Company
Call: +91 – 9868330332
mail: info@synergywebdesigners.com
visit: www.synergywebdesigners.com
She was born with a small deletion on the short arm of
chromosome 11 known as WAGR syndrome. This
genetic problem caused her to have the condition
aniridia amongst other complications, glaucoma,
cataracts and nystagmus (wobbly eyes) all forming to
give a sight ratio of around 3/60 and recognized
medically as severely visually impaired/blind.
High Temperature Grease