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Changing the Course of Chronic Disease,
                                                                         One Community at a Time


Mobilizing Women in the
                Fight Against NCDs
   Nalini Saligram, Ph.D.
   20 April 2012


                             PS31 A gender lens to chronic conditions
                                  Geneva Health Forum




     Arogya World is a U.S. based non-profit 501 © 3 organization. The name of the organization is simply an articulation of
     our mission: Arogya in Sanskrit means good health. More literally it means to live a life without disease.
Non-Communicable Diseases (NCDs):
       An Urgent Issue
            UN High Level Meeting on NCDs* Sep 19/20 2011
              •   NCDs: one of the leading health and development challenges of the century
              •   Political Declaration: “whole of government” and “whole of society” approach



            Nearly 2 out of every 3 deaths in the world due to NCDs
              •   80% of NCD deaths occur in low- and middle-income countries
              •   But, only 3% of overall global development assistance for NCDs.


            Cost of Inaction > cost of action
              •   Economic Burden of NCDs: World Economic Forum/ Harvard** : NCDs (+ mental health) have
                  cumulative loss of economic output = $ 47 trillion.
              •   Action: WHO Best Buys*** cost $11 billion per year in LMICs , roughly 1$ per person per year



            Prevalence of NCDs alarmingly high
              •   >20% of population in India**** has at least one chronic disease; >10% more than one

* NCDs = Cardiovascular diseases, diabetes, cancers + chronic respiratory disease
**WEF/Harvard Global Economic Burden of NCDs Sep 2011;
 ***WEF / WHO Report – From Burden to Best Buys 2011
****The Lancet series January 12, 2011                                              © 2010 Arogya World. All Rights Reserved.   2
NCDs Leading Cause of Death Globally
  NCDs cause >2X the number of deaths from HIV/AIDS, malaria, TB + all
  maternal and childhood conditions + nutritional deficiencies COMBINED



                                                    Decrease by 10% over
                                                    next 10 years
                                      9%
                                             30%
                                                    Infectious Diseases, + maternal &
       Increase by 71% over                         newborn conditions + nutritional
                                                    deficiencies
       next 10 years
                                    61%
                                                    Non-Communicable Diseases NCDs




                  58 million people die each year   Injuries

                  35 million of them due to NCDs




                                                    © 2010 Arogya World. All Rights Reserved.   3
Prevention: The Holy Grail for Tackling NCDs

   WHO: a healthy diet, exercise and avoiding tobacco can prevent:
    •   80% of premature heart disease
    •   80% type II diabetes
    •   40% of cancers

   Compelling Clinical Proof Exists that Diabetes Can Be Prevented
   Landmark Trial - Diabetes Prevention Program (DPP)
    •   3,234 adults at risk for diabetes. Multiple centers in the US. 30 min of physical
        activity a day + low-fat diet reduced the chance of getting diabetes by 58%, while
        metformin reduced the chance by 31%. NEJM Feb 7, 2002.
    •   Follow-up of DPP in The Lancet (2009) …diabetes prevention through lifestyle
        changes sustained for 10 years.
   Finnish Diabetes Prevention Study
       NEJM May 3, 2001.
   Indian Diabetes Prevention Programme
       Diabetologia. 2006 Feb;49(2):289-97.




                                                           © 2010 Arogya World. All Rights Reserved.   4
The Arogya World Approach to the NCD Crisis

                               Two-fold mission

Galvanize global action to address              Implement Diabetes Prevention
  non-communicable diseases                    through Lifestyle Changes in India
   ►   Leverage UN NCD Summit Sep 2011
   ►   Op-ed, blog and social media campaign    ►   Multipronged Approach in schools,
   ►   Case studies                                 workplaces and the community
   ►   Women and NCDs                           ►   Leverage technology and partnerships for
   ►   Women for a Healthy Future Petition          scalable, cost-effective programs
   ►   10,000 Women “Perspectives on NCDs”      ►   Science-based work
       Global Survey                            ►   Measure effectiveness and impact




                                                           © 2010 Arogya World. All Rights Reserved.   5
Why We Believe NCDs are a Women’s Issue


   Direct Impact - NCDs are the #1 killer of women
   Impact on women as caregivers
   Women disadvantaged in terms of prevention
   Integral part of Maternal and Child Health – low birth weight leads to
    heart disease and diabetes later in life in the child
   Cooking over open fires – COPD
   NCDs impact next generation
   Sir George Alleyne video




                                               © 2010 Arogya World. All Rights Reserved.   6
Women: A Powerful Solution to the NCD Crisis
                       WHO: 80% diabetes & heart disease,
                   40% cancers preventable with lifestyle changes.

    Improving the health of women has positive ripple effects on family +
     community.
        Policymakers should educate pregnant women to have healthy pregnancies and avoid
         low birth weight.
        Collect gender disaggregated morbidity and mortality data.
    Health systems not geared to deliver optimum healthcare for women, so
     focusing on women can improve outcomes for all.
    Invest in educating women about NCD prevention through healthy
     living, and they will teach their families.




                                                          © 2010 Arogya World. All Rights Reserved.   7
Women for a Healthy Future
        Mobilizing Women in Fight Against NCDs




   Women for a Healthy Future - started in 2011 by Arogya World +
Global Health Council, NCD Child, Women Deliver, NCD Action, Public Health Institute, The Max Foundation,
   Disruptive Women in Health Care, Hriday, NCD Alliance, World YWCA, Beyond Sport


   Online Petition
       mobilizing women to demand action against NCDs from world leaders – govt + biz.
       Raised 4,000 signatures.
       Press release to mark UN HLM, distributed to media + world leaders at UN + side events.
                                                                    © 2010 Arogya World. All Rights Reserved.   8
Ensuring Women’s Voices Are Heard

   2012 work
       Continue dialog with food & beverage industry –Talking to experts. Engaging with IFBA.
       Global women’s perspectives on NCDs and their impact survey.
        •   10,000 women; 1,000 women from each of 10 countries. US, UK, + 8 developing world countries
        •   Web and mobile technologies. SRBI Abt + Jana
        •   Currently seeking funding
        •   Advocacy Tool. Show what women care about, and identify NCD priorities



   Future work
       Adapt My Plate icon to other countries
       Develop and distribute educational materials for women
       Global communications campaign




                                                                   © 2010 Arogya World. All Rights Reserved.   9
Back-Up
Arogya World Network of Influencers

Board*
    Dr. Nalini Saligram – Arogya World; Dr. Pamela Yih, Treasurer – Pamela Y-F Yih Inc.; Kathryn Graves – Emory Univ
    Rollins School of Public Health; Dr. MeryleMelnicoff– formerly at WISTAR Institute
Indo-US Scientific Steering Committee*
   Based in India - Dr K. Srinath Reddy – President, Public Health Foundation of India, Dr V. Mohan – Madras Diabetes
    Research Foundation, Dr Ashok K. Das – Additional Director General Health Services, Dr Prabhakaran – Centre for
    Chronic Disease Control, and PHFI, Dr Nikhil Tandon – All India Institute of Medical Sciences, Dr. Prasanna Kumar –
    Bangalore Diabetes Hospital
   Based in the US - Dr K.M. VenkatNarayan – Emory University, Dr Sreekumar Nair – Mayo Clinic, Dr Francine
    Kaufman – Medtronic, Dr KarmeenKulkarni – Abbott Diabetes Care, Dr Sethu Reddy – Merck, Dr. Om Ganda -Joslin
Advisors*
Dr A Ramachandran - India Diabetes Research Foundation, Chennai; Dr SubhankarChowdhury-IPGME&R and SSKM
    Hospital, Kolkata; Monika AroraHriday-Shan; C.V. MadhukarPRS Legislative Research; Deanna M. HoelscherMichael
    and Susan Dell Center for Advancement of Healthy Living; Dr Sudeep Singh Gadok, International Health and
    Development Expert; Raj Dave ARE Consulting, Dr. ArunChockalingamWorld Hypertension League, Dr. David C
    U’PrichardDruid Consulting
Behavior Change Task Force*
   Based in the US - Dr. Fran Kaufman, Medtronic, Dr. LinelleBlais, Emory University, Andrea Falls, Edelman
   Based in the UK – Zoe Hellman, Weight Watchers
   Based in India – Dr. Ranjani Harish, Dr. Mohan’s Diabetes Specialities Centre, Dr. Monika Arora, Hriday-Shan,
    SukantiGhosh, APCO Worldwide, Dr. KanavKahol– PHFI
*all working pro-bono
+
Consultants
TheaJoselow (Washington DC – digital media expert), Dr. S Kumar (Bangalore - senior consultant India), Dr.
    SandhyaRamalingam (Bangalore – market research expert), Beau Young (Philadelphia- accountant)
Our Track Record




  • Feb 2009 – Workshop with 66 stakeholders in Delhi to gather input on priorities.
  • World Diabetes Day 2009; 40 community walks in Delhi; 6,000 children asked MrsGursharanKaur, wife of Prime Minister
  of India, for help in making policy changes
  •Formalized as US-based non-profit organization March 2010.
  •New Diabetes Friendly Recipe Created for Arogya World by celebrated Manhattan chef from Devi Nov 2010
  •Initiated Schools diabetes education program in India 2011; completed year 1 program, encouraging results
  •Clinton Global Initiative Commitment 2011 – 1 million consumers diabetes mHealth campaign in India; 30,000 consumers
  received messages through March 2012.
  • Healthy Workplace Stakeholder Input Session in India Bangalore, Feb 24, 2012
  •Women for a Healthy Future – 2011 petition;

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Mobilizing Women in the Fight Against NCDs

  • 1. Changing the Course of Chronic Disease, One Community at a Time Mobilizing Women in the Fight Against NCDs Nalini Saligram, Ph.D. 20 April 2012 PS31 A gender lens to chronic conditions Geneva Health Forum Arogya World is a U.S. based non-profit 501 © 3 organization. The name of the organization is simply an articulation of our mission: Arogya in Sanskrit means good health. More literally it means to live a life without disease.
  • 2. Non-Communicable Diseases (NCDs): An Urgent Issue  UN High Level Meeting on NCDs* Sep 19/20 2011 • NCDs: one of the leading health and development challenges of the century • Political Declaration: “whole of government” and “whole of society” approach  Nearly 2 out of every 3 deaths in the world due to NCDs • 80% of NCD deaths occur in low- and middle-income countries • But, only 3% of overall global development assistance for NCDs.  Cost of Inaction > cost of action • Economic Burden of NCDs: World Economic Forum/ Harvard** : NCDs (+ mental health) have cumulative loss of economic output = $ 47 trillion. • Action: WHO Best Buys*** cost $11 billion per year in LMICs , roughly 1$ per person per year  Prevalence of NCDs alarmingly high • >20% of population in India**** has at least one chronic disease; >10% more than one * NCDs = Cardiovascular diseases, diabetes, cancers + chronic respiratory disease **WEF/Harvard Global Economic Burden of NCDs Sep 2011; ***WEF / WHO Report – From Burden to Best Buys 2011 ****The Lancet series January 12, 2011 © 2010 Arogya World. All Rights Reserved. 2
  • 3. NCDs Leading Cause of Death Globally NCDs cause >2X the number of deaths from HIV/AIDS, malaria, TB + all maternal and childhood conditions + nutritional deficiencies COMBINED Decrease by 10% over next 10 years 9% 30% Infectious Diseases, + maternal & Increase by 71% over newborn conditions + nutritional deficiencies next 10 years 61% Non-Communicable Diseases NCDs 58 million people die each year Injuries 35 million of them due to NCDs © 2010 Arogya World. All Rights Reserved. 3
  • 4. Prevention: The Holy Grail for Tackling NCDs  WHO: a healthy diet, exercise and avoiding tobacco can prevent: • 80% of premature heart disease • 80% type II diabetes • 40% of cancers  Compelling Clinical Proof Exists that Diabetes Can Be Prevented  Landmark Trial - Diabetes Prevention Program (DPP) • 3,234 adults at risk for diabetes. Multiple centers in the US. 30 min of physical activity a day + low-fat diet reduced the chance of getting diabetes by 58%, while metformin reduced the chance by 31%. NEJM Feb 7, 2002. • Follow-up of DPP in The Lancet (2009) …diabetes prevention through lifestyle changes sustained for 10 years.  Finnish Diabetes Prevention Study  NEJM May 3, 2001.  Indian Diabetes Prevention Programme  Diabetologia. 2006 Feb;49(2):289-97. © 2010 Arogya World. All Rights Reserved. 4
  • 5. The Arogya World Approach to the NCD Crisis Two-fold mission Galvanize global action to address Implement Diabetes Prevention non-communicable diseases through Lifestyle Changes in India ► Leverage UN NCD Summit Sep 2011 ► Op-ed, blog and social media campaign ► Multipronged Approach in schools, ► Case studies workplaces and the community ► Women and NCDs ► Leverage technology and partnerships for ► Women for a Healthy Future Petition scalable, cost-effective programs ► 10,000 Women “Perspectives on NCDs” ► Science-based work Global Survey ► Measure effectiveness and impact © 2010 Arogya World. All Rights Reserved. 5
  • 6. Why We Believe NCDs are a Women’s Issue  Direct Impact - NCDs are the #1 killer of women  Impact on women as caregivers  Women disadvantaged in terms of prevention  Integral part of Maternal and Child Health – low birth weight leads to heart disease and diabetes later in life in the child  Cooking over open fires – COPD  NCDs impact next generation  Sir George Alleyne video © 2010 Arogya World. All Rights Reserved. 6
  • 7. Women: A Powerful Solution to the NCD Crisis WHO: 80% diabetes & heart disease, 40% cancers preventable with lifestyle changes.  Improving the health of women has positive ripple effects on family + community.  Policymakers should educate pregnant women to have healthy pregnancies and avoid low birth weight.  Collect gender disaggregated morbidity and mortality data.  Health systems not geared to deliver optimum healthcare for women, so focusing on women can improve outcomes for all.  Invest in educating women about NCD prevention through healthy living, and they will teach their families. © 2010 Arogya World. All Rights Reserved. 7
  • 8. Women for a Healthy Future Mobilizing Women in Fight Against NCDs  Women for a Healthy Future - started in 2011 by Arogya World + Global Health Council, NCD Child, Women Deliver, NCD Action, Public Health Institute, The Max Foundation, Disruptive Women in Health Care, Hriday, NCD Alliance, World YWCA, Beyond Sport  Online Petition  mobilizing women to demand action against NCDs from world leaders – govt + biz.  Raised 4,000 signatures.  Press release to mark UN HLM, distributed to media + world leaders at UN + side events. © 2010 Arogya World. All Rights Reserved. 8
  • 9. Ensuring Women’s Voices Are Heard  2012 work  Continue dialog with food & beverage industry –Talking to experts. Engaging with IFBA.  Global women’s perspectives on NCDs and their impact survey. • 10,000 women; 1,000 women from each of 10 countries. US, UK, + 8 developing world countries • Web and mobile technologies. SRBI Abt + Jana • Currently seeking funding • Advocacy Tool. Show what women care about, and identify NCD priorities  Future work  Adapt My Plate icon to other countries  Develop and distribute educational materials for women  Global communications campaign © 2010 Arogya World. All Rights Reserved. 9
  • 11. Arogya World Network of Influencers Board* Dr. Nalini Saligram – Arogya World; Dr. Pamela Yih, Treasurer – Pamela Y-F Yih Inc.; Kathryn Graves – Emory Univ Rollins School of Public Health; Dr. MeryleMelnicoff– formerly at WISTAR Institute Indo-US Scientific Steering Committee*  Based in India - Dr K. Srinath Reddy – President, Public Health Foundation of India, Dr V. Mohan – Madras Diabetes Research Foundation, Dr Ashok K. Das – Additional Director General Health Services, Dr Prabhakaran – Centre for Chronic Disease Control, and PHFI, Dr Nikhil Tandon – All India Institute of Medical Sciences, Dr. Prasanna Kumar – Bangalore Diabetes Hospital  Based in the US - Dr K.M. VenkatNarayan – Emory University, Dr Sreekumar Nair – Mayo Clinic, Dr Francine Kaufman – Medtronic, Dr KarmeenKulkarni – Abbott Diabetes Care, Dr Sethu Reddy – Merck, Dr. Om Ganda -Joslin Advisors* Dr A Ramachandran - India Diabetes Research Foundation, Chennai; Dr SubhankarChowdhury-IPGME&R and SSKM Hospital, Kolkata; Monika AroraHriday-Shan; C.V. MadhukarPRS Legislative Research; Deanna M. HoelscherMichael and Susan Dell Center for Advancement of Healthy Living; Dr Sudeep Singh Gadok, International Health and Development Expert; Raj Dave ARE Consulting, Dr. ArunChockalingamWorld Hypertension League, Dr. David C U’PrichardDruid Consulting Behavior Change Task Force*  Based in the US - Dr. Fran Kaufman, Medtronic, Dr. LinelleBlais, Emory University, Andrea Falls, Edelman  Based in the UK – Zoe Hellman, Weight Watchers  Based in India – Dr. Ranjani Harish, Dr. Mohan’s Diabetes Specialities Centre, Dr. Monika Arora, Hriday-Shan, SukantiGhosh, APCO Worldwide, Dr. KanavKahol– PHFI *all working pro-bono + Consultants TheaJoselow (Washington DC – digital media expert), Dr. S Kumar (Bangalore - senior consultant India), Dr. SandhyaRamalingam (Bangalore – market research expert), Beau Young (Philadelphia- accountant)
  • 12. Our Track Record • Feb 2009 – Workshop with 66 stakeholders in Delhi to gather input on priorities. • World Diabetes Day 2009; 40 community walks in Delhi; 6,000 children asked MrsGursharanKaur, wife of Prime Minister of India, for help in making policy changes •Formalized as US-based non-profit organization March 2010. •New Diabetes Friendly Recipe Created for Arogya World by celebrated Manhattan chef from Devi Nov 2010 •Initiated Schools diabetes education program in India 2011; completed year 1 program, encouraging results •Clinton Global Initiative Commitment 2011 – 1 million consumers diabetes mHealth campaign in India; 30,000 consumers received messages through March 2012. • Healthy Workplace Stakeholder Input Session in India Bangalore, Feb 24, 2012 •Women for a Healthy Future – 2011 petition;