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PCOS Awareness Week




PCOS Awareness Week
– how did it go?

  20–27 November 2010 marked the very first PCOS Awareness Week
  There was lots going on throughout the week all over the UK. Here are the highlights:
 SPEAKERS’ CORNER                                NEW MEMBERSHIP PACKS                   CALENDARS                                  CUPCAKES

Verity Trustees Alison, Caroline and             We had been working on putting         The very talented Laura at Broken          To support Verity and PCOS Awareness
Rachel braved the freezing cold and              together new membership packs for      Logic Photography wanted to use            Week, Chloe from The Sugar Sanctuary
an anti-war protest to kick-off the              quite some time, which involved        her skills to help support Verity and      launched Verity cupcakes. They are
very first PCOS Awareness Week                   having all of the booklets updated     women with PCOS, and thus the              delicious vanilla and lemon cupcakes
by going along to the infamous                   and re-designed. As part of the new    idea of a PCOS Calendar was born!          with a purple buttercream icing and,
Speakers Corner in Hyde Park,                    packs, we have also launched Thank     Laura recruited a bunch of women           although clearly not PCOS-friendly,
London. They put up a big banner,                You gifts for renewing your            from the discussion board and              they make a decadent treat or even
waved posters and handed out                     membership for three and five years.   arranged a photoshoot in Nottingham         a way of raising money for Verity at
leaflets whilst chatting to passers              All our members were sent a new        where everyone got together, had           a coffee morning. The cupcakes
 by. When the Police vans turned up              membership pack at the start of        their hair and make-up done, and           come in a set of six and a percentage
en-force, they had to make an early              PCOS Awareness Week and we hope        said ‘cheese’! Laura did an amazing        of the sale is donated to Verity. You
exit to avoid getting caught up in the           you enjoyed receiving them as much     job and captured the beauty and            can have a look at the pictures at
growing protest!                                 as we enjoyed sending them to you.     bravery of all the lovely Verity models.   www.verity-pcos.org.uk/cupcakes,
                                                                                        You can look at the pictures at www.       where there’s also a link to The Sugar
                                                                                        verity-pcos.org.uk/calendar. Use the       Sanctuary website where you can buy
                                                                                        link there to buy a Calendar, with 25%     them.
                                                                                        of the proceeds donated to Verity.




Above:
Rachel and Alison at Speakers Corner
Top right:
The growing stack of new membership packs
Right:
Left to right: Alison, Nic, Premila and Jackie
busy putting together the packs ready to
post out to you




    DATE FOR YOUR DIARY
    PCOS Awareness Week 2011: 05 – 12 November 2011
    We are putting together a schedule of activities that will take place
    during the second PCOS Awareness Week in November. We’d love
    to hear your ideas on everything from raising money, to raising
    awareness, so email them to media@verity-pcos.org.uk with
    ‘PCOS Awareness week’ in the subject line.


10 In Touch Spring/Summer 2011
PCOS Awareness Week




                                                                                                                                                                                                                                                                                                                                                                                                                                                      There was a real buzz at the
                                                                                                                                                                                                                                                                                                                                                                                                                                                      conferenceas members and
                                                                                                                                                                                                                                                                                                                                                                                                                                                      exhibitors all chatted to one
                                                                                                                                                                                                                                                                                                                                                                                                                                                      another


                                 PCOS RESOURCE PACK                                                                                                                                                                                                                                             IPHONE SOCKS                                                                                                                PCOS AWARENESS TWIBBON                      PCOS UK CONFERENCE

                             Verity launched a PCOS Resource                                                                                                                                                                                                                                   Nic, Verity’s book-keeper                                                                                                    We launched a Twibbon, which is a           PCOS UK is Verity’s medical education
                             Pack where you, our members, can                                                                                                                                                                                                                                  extraordinaire put her crafty skills                                                                                         little display of support that lives on     arm, where we run conferences and
                             order a pack which contains posters                                                                                                                                                                                                                               to use during Awareness Week and                                                                                             your profile picture on either Facebook     workshops around the country to
                             and leaflets to take to your local GP,                                                                                                                                                                                                                            knitted up a storm. Nic’s Verity-inspired                                                                                    or Twitter. The purple Twibbon, which       educate GPs, specialists and other
                             hospital or other clinic to help raise                                                                                                                                                                                                                            hand-knitted iPhone socks, went                                                                                              featured the classic PCOS ‘string of        healthcare professionals on PCOS.
                             awareness of PCOS. During the first                                                                                                                                                                                                                               down a treat at the Verity Conference                                                                                        pearls’ and PCOS Awareness was added        We held a PCOS UK conference to
                             few days of the Resource Packs being                                                                                                                                                                                                                              in London and sold out during the                                                                                            to more than 372 profiles on Facebook       coincide with Awareness Week, and
                             launched, 75 were ordered! We are                                                                                                                                                                                                                                 lunch break. You can check out the                                                                                           and Twitter, which reached thousands        had a great turn out of over 60 GPs
                             making a note of the postcodes of                                                                                                                                                                                                                                 iPhone Socks at www.verity-pcos.                                                                                             of people! Our Twibbon also became          from around London attending.
                             the addresses where the packs are                                                                                                                                                                                                                                 org.uk/iphone_socks                                                                                                          the most successful Twibbon for PCOS
                             being delivered, so you can see                                                                                                                                                                                                                                                                                                                                                                Causes.
                             exactly the difference you’re making                                                                                                                                                                                                                              Pssst Nic, if you’re reading this,
                                                                                                                                                                                                                                                                                                                                                                                                                                                                                              Left:
                             by marking each one on a map with                                                                                                                                                                                                                                 maybe you can get an early start                                                                                                                                                               A snapshot of all the
                             a pin. You can order a Resource                                                                                                                                                                                                                                   for this year?                                                                                                                                                                                 wonderful people who
                                                                                                                                                                                                                                                                                                                                                                                                                                                                                              put a PCOS Awareness
                             Pack and even see just how far we’ve                                                                                                                                                                                                                                                                                                                                                                                                                             Twibbon on their profile
                             reached so far at www.verity-pcos.
                             org.uk/resource_pack


                                                                                                                                                                                                                                                                                            1 in 10 women in the
                                                                                                                                                                                                                                                                                              UK live with PCOS


                                                                                                                                                                                                                                                                                                                                                                                                                            VERITY CONFERENCE

                                                                                                                                                                                                                                                                                                                                                                                                                            PCOS Awareness Week was wrapped up by the Verity conference, our largest
                                                                                                                                                                                                                                                                                                                                                                                                                            ever! 200 of you came along to hear from some amazing speakers at the
                                                Supporting women with PCOS
                                         Verity publishes…
                                 • In Touch, our PCOS newsletter
                                                                                                                                    Verity runs…
                                                                                                    • conferences with expert speakers
                                                                                                                                                                                                                                           Verity also…
                                                                                                                                                                                                                    • educates the medical profession
                                                                                                                                                                                                                                                                                                                                                                                                                            Connaught Rooms in London on Saturday 27th November.
                                 • a range of information booklets                                            • an active discussion board                                                                                • recruits research participants



                                                                                                                                                                                                                                                                                                                                                                                                                            Alison Wilcox, Verity Trustee, kicked the morning off with an overview of PCOS
                                     • an informative website                                                  • locally run support groups                                                                                    • raises public awarenesss




                                                                   www.verity-pcos.org.uk
                                                                                                                                                                                                                                                                        Do you have any of the following?
                                                               blog.verity-pcos.org.uk            twitter.com/veritypcos                facebook.com/veritypcos                  youtube.com/veritypcos                  verity-pcos.org.uk/forum
                                                                                                                                                                                                                                                             infrequent periods | weight problems | excess hair                                                                                                             and why it’s so important not to feel isolated, but to get the help you need. Colette
                                                                          	 	   	                                          						PCOS	UK	is	the	medical	education	arm	of	Verity:	www.pcos-uk.org.uk
                                                                                    Verity	is	the	UK’s	charity	(No.1097599)	for	women	with	polycystic	ovary	syndrome	(PCOS)	and	is	a	company	limited	by	guarantee	(No.	04404798)
                                                                                                                                                                                                                                                                 acne and oily skin | hair loss | mood swings                                                                                                               Harris, the author of several books about PCOS, and Verity patron, gave a truly
                                                                                                                                                                                                                                                                     If you do, then you could have Polycystic Ovary Syndrome (PCOS).                                                                                       inspirational talk about PCOS and your emotions, exploring how the hormonal
                                                                                                                                                                                                                                                                      If you, or someone you know, think you might have PCOS, make
                                                                                                                                                                                                                                                                                      an appointment to talk to your GP.
                                                                                                                                                                                                                                                                                                                                                                                                                            fluctuations and having to cope with them can affect how you feel.
                                                                                                                                                                                                                                                             Verity is the UK charity for women with PCOS, for more information and support
                                                                                                                                                                                                                                                                                                                                                                                                                            After the AGM we had Dr Lisa Webber giving a really clear insight into
                                                                                                                                                                                                                                                                                               www.verity-pcos.org.uk
                                                                                                                                                                                                                                                                                                                                                                                                                            periods, ovulation and how PCOS affects cycles; and Charlotte Footman
                                                                                                                                                                                                                                                                                                                                                                                                                            talking about hair removal.
                                                                                                                                                                                                                                                                  blog.verity-pcos.org.uk    twitter.com/veritypcos           facebook.com/veritypcos                   youtube.com/veritypcos   verity-pcos.org.uk/forum


      www.verity-pcos.org.uk          Veirty: The PCOS Self Help Group                                                                                                                                                                                                                  www.verity-pcos.org.uk                                                                                                                  Then after lunch came Professor Stephen Franks speaking on how lean


                                                                                                                                                                                                                                                                                                                                                                                   200
                                                                                                                                                                                                                                                                                                                                                                                                                                women with PCOS can boost their health; and Dr David Haslam giving the
                                                                                                                                                                                                                                                                                                              PCOS UK is the medical education arm of Verity: www.pcos-uk.org.uk
                                                                                                                                                                                                                                                                                                              Verity is the UK’s charity (No.1097599) for women with polycystic ovary
                                                                                                                                                                                                                                                                                                            syndrome (PCOS) and is a company limited by guarantee (No. 04404798)



c Ovary                               Who is Verity?                                                                                                                                                                                                 1 in 10 women in the UK
 ?                                                                                                                                                                                                                                                   live with PCOS                                                                                                                                                             latest advice on losing weight, and how it can help control your PCOS
                                                                                                                                                                                                                                                                                                                                                                                                                                symptoms and boost fertility. The day ended with an extended session
                                                                                                                                                                                                                                                                                                                                                                                   THIS YEAR’S VERITY
  n called the ‘thief of              Veirty: The PCOS Self Help Group


                                                                                                                                                                                                                                                                                                                                                                                                                                on Fertility with Professor Stephen Franks. We are eternally grateful for
ffect the symptoms can                Verity is the UK’s only charity for women with polycystic ovary syndrome
 teem. PCOS is one of the             (PCOS), and provides information and support for women with PCOS


                                                                                                                                                                                                                                                                                                                                                                                   CONFERENCE WAS OUR
men.                                  and their loved ones. It was founded in 1997 and is run entirely by a team
                                      of volunteers.

                                                                                                                                                                                                                                                                                                                                                                                                                                 the support of the inspirational experts who share their time and
 ies that contain many small
 varies) and are usually no           Iin addition to publishing a range of information booklets covering all

                                                                                                                                                                                                                                                                                                                                                                                   LARGEST EVER WITH 200
 ontaining follicles that have        aspects of the condition Verity runs twice yearly conferences where
 s as you may im agine them           delegates get the chance to hear from some of the UK’s foremost PCOS
mful to you (so no surgical
ovarian cancer.
                                      experts. Verity publishes In Touch, a bi-annual member newsletter full
                                      of the latest information and research on PCOS.
                                      Verity also provides advocacy, awareness and education to the healthcare                                                                                                                                                                                                                                                                     DELEGATES ATTENDING                           knowledge with us.
d worldwide                           profession through PCOS UK, Verity’s medical education arm that was
                                      established in January 2005.
roblems                               Further information about Verity and PCOS can be found on our website
                                      www.verity-pcos.org.uk or through our blogs and forums, listed below.                                                                                                                                                                                                                                                                                                                    Over lunch, and during breaks, there was a real buzz as members
                                       blog.verity-pcos.          twitter.com/                           facebook.com/                                     youtube.com/                                    verity-pcos.org.
                                                                                                                                                                                                                                                     Do you have any of the following?
                                                                                                                                                                                                                                                     infrequent periods | weight problems
                                                                                                                                                                                                                                                                                                                                                                                                                               chatted to each other, and to the exhibitors – including SK!N, Renew
                                                                                                                                                                                                                                                                                                                                                                                                                            Medica and CTC/Duofertility.
                                            org.uk                 veritypcos                               veritypcos                                       veritypcos                                       uk/forum

                                                                                                                                                                                                                                                     excess hair | acne and oily skin
                                       Verity
                                       The PCOS Self Help Group
                                                                                                                                                                                                                                                     hair loss | mood swings
                                       New Bond House
                                                                                                                                                                                                                                                     If you do, then you could have
                                       124 New Bond Street
                                       London W1S 1DX

                                       www.verity-pcos.org.uk
                                                                                                                                                                                                                                                     Polycystic Ovary Syndrome (PCOS)                                                                                                                                       The conference ran very smoothly and all the trustees of Verity truly
                                                                                                                                                                                                                                                                                                                                                                                                                            enjoyed the day, even though it was hard work! We look forward to seeing
                                       Verity is a Registered Charity No. 1097599 and
                                                                                                                                                                                                                                                                                                                                                                                                                            even more of you at the next event at the Cardiff Hilton on 12th November
                                                                                                                                                                                                                                                                                                                                                                                                                            2011 – find out more on page 7.
                                       a company limited by guarantee No. 4404798




                                                                                                                                                                                                                                                                                                                                                                                                                                                                                    In Touch Spring/Summer 2011 11

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Verity: PCOS Awareness Week 2010

  • 1. PCOS Awareness Week PCOS Awareness Week – how did it go? 20–27 November 2010 marked the very first PCOS Awareness Week There was lots going on throughout the week all over the UK. Here are the highlights: SPEAKERS’ CORNER NEW MEMBERSHIP PACKS CALENDARS CUPCAKES Verity Trustees Alison, Caroline and We had been working on putting The very talented Laura at Broken To support Verity and PCOS Awareness Rachel braved the freezing cold and together new membership packs for Logic Photography wanted to use Week, Chloe from The Sugar Sanctuary an anti-war protest to kick-off the quite some time, which involved her skills to help support Verity and launched Verity cupcakes. They are very first PCOS Awareness Week having all of the booklets updated women with PCOS, and thus the delicious vanilla and lemon cupcakes by going along to the infamous and re-designed. As part of the new idea of a PCOS Calendar was born! with a purple buttercream icing and, Speakers Corner in Hyde Park, packs, we have also launched Thank Laura recruited a bunch of women although clearly not PCOS-friendly, London. They put up a big banner, You gifts for renewing your from the discussion board and they make a decadent treat or even waved posters and handed out membership for three and five years. arranged a photoshoot in Nottingham a way of raising money for Verity at leaflets whilst chatting to passers All our members were sent a new where everyone got together, had a coffee morning. The cupcakes by. When the Police vans turned up membership pack at the start of their hair and make-up done, and come in a set of six and a percentage en-force, they had to make an early PCOS Awareness Week and we hope said ‘cheese’! Laura did an amazing of the sale is donated to Verity. You exit to avoid getting caught up in the you enjoyed receiving them as much job and captured the beauty and can have a look at the pictures at growing protest! as we enjoyed sending them to you. bravery of all the lovely Verity models. www.verity-pcos.org.uk/cupcakes, You can look at the pictures at www. where there’s also a link to The Sugar verity-pcos.org.uk/calendar. Use the Sanctuary website where you can buy link there to buy a Calendar, with 25% them. of the proceeds donated to Verity. Above: Rachel and Alison at Speakers Corner Top right: The growing stack of new membership packs Right: Left to right: Alison, Nic, Premila and Jackie busy putting together the packs ready to post out to you DATE FOR YOUR DIARY PCOS Awareness Week 2011: 05 – 12 November 2011 We are putting together a schedule of activities that will take place during the second PCOS Awareness Week in November. We’d love to hear your ideas on everything from raising money, to raising awareness, so email them to media@verity-pcos.org.uk with ‘PCOS Awareness week’ in the subject line. 10 In Touch Spring/Summer 2011
  • 2. PCOS Awareness Week There was a real buzz at the conferenceas members and exhibitors all chatted to one another PCOS RESOURCE PACK IPHONE SOCKS PCOS AWARENESS TWIBBON PCOS UK CONFERENCE Verity launched a PCOS Resource Nic, Verity’s book-keeper We launched a Twibbon, which is a PCOS UK is Verity’s medical education Pack where you, our members, can extraordinaire put her crafty skills little display of support that lives on arm, where we run conferences and order a pack which contains posters to use during Awareness Week and your profile picture on either Facebook workshops around the country to and leaflets to take to your local GP, knitted up a storm. Nic’s Verity-inspired or Twitter. The purple Twibbon, which educate GPs, specialists and other hospital or other clinic to help raise hand-knitted iPhone socks, went featured the classic PCOS ‘string of healthcare professionals on PCOS. awareness of PCOS. During the first down a treat at the Verity Conference pearls’ and PCOS Awareness was added We held a PCOS UK conference to few days of the Resource Packs being in London and sold out during the to more than 372 profiles on Facebook coincide with Awareness Week, and launched, 75 were ordered! We are lunch break. You can check out the and Twitter, which reached thousands had a great turn out of over 60 GPs making a note of the postcodes of iPhone Socks at www.verity-pcos. of people! Our Twibbon also became from around London attending. the addresses where the packs are org.uk/iphone_socks the most successful Twibbon for PCOS being delivered, so you can see Causes. exactly the difference you’re making Pssst Nic, if you’re reading this, Left: by marking each one on a map with maybe you can get an early start A snapshot of all the a pin. You can order a Resource for this year? wonderful people who put a PCOS Awareness Pack and even see just how far we’ve Twibbon on their profile reached so far at www.verity-pcos. org.uk/resource_pack 1 in 10 women in the UK live with PCOS VERITY CONFERENCE PCOS Awareness Week was wrapped up by the Verity conference, our largest ever! 200 of you came along to hear from some amazing speakers at the Supporting women with PCOS Verity publishes… • In Touch, our PCOS newsletter Verity runs… • conferences with expert speakers Verity also… • educates the medical profession Connaught Rooms in London on Saturday 27th November. • a range of information booklets • an active discussion board • recruits research participants Alison Wilcox, Verity Trustee, kicked the morning off with an overview of PCOS • an informative website • locally run support groups • raises public awarenesss www.verity-pcos.org.uk Do you have any of the following? blog.verity-pcos.org.uk twitter.com/veritypcos facebook.com/veritypcos youtube.com/veritypcos verity-pcos.org.uk/forum infrequent periods | weight problems | excess hair and why it’s so important not to feel isolated, but to get the help you need. Colette PCOS UK is the medical education arm of Verity: www.pcos-uk.org.uk Verity is the UK’s charity (No.1097599) for women with polycystic ovary syndrome (PCOS) and is a company limited by guarantee (No. 04404798) acne and oily skin | hair loss | mood swings Harris, the author of several books about PCOS, and Verity patron, gave a truly If you do, then you could have Polycystic Ovary Syndrome (PCOS). inspirational talk about PCOS and your emotions, exploring how the hormonal If you, or someone you know, think you might have PCOS, make an appointment to talk to your GP. fluctuations and having to cope with them can affect how you feel. Verity is the UK charity for women with PCOS, for more information and support After the AGM we had Dr Lisa Webber giving a really clear insight into www.verity-pcos.org.uk periods, ovulation and how PCOS affects cycles; and Charlotte Footman talking about hair removal. blog.verity-pcos.org.uk twitter.com/veritypcos facebook.com/veritypcos youtube.com/veritypcos verity-pcos.org.uk/forum www.verity-pcos.org.uk Veirty: The PCOS Self Help Group www.verity-pcos.org.uk Then after lunch came Professor Stephen Franks speaking on how lean 200 women with PCOS can boost their health; and Dr David Haslam giving the PCOS UK is the medical education arm of Verity: www.pcos-uk.org.uk Verity is the UK’s charity (No.1097599) for women with polycystic ovary syndrome (PCOS) and is a company limited by guarantee (No. 04404798) c Ovary Who is Verity? 1 in 10 women in the UK ? live with PCOS latest advice on losing weight, and how it can help control your PCOS symptoms and boost fertility. The day ended with an extended session THIS YEAR’S VERITY n called the ‘thief of Veirty: The PCOS Self Help Group on Fertility with Professor Stephen Franks. We are eternally grateful for ffect the symptoms can Verity is the UK’s only charity for women with polycystic ovary syndrome teem. PCOS is one of the (PCOS), and provides information and support for women with PCOS CONFERENCE WAS OUR men. and their loved ones. It was founded in 1997 and is run entirely by a team of volunteers. the support of the inspirational experts who share their time and ies that contain many small varies) and are usually no Iin addition to publishing a range of information booklets covering all LARGEST EVER WITH 200 ontaining follicles that have aspects of the condition Verity runs twice yearly conferences where s as you may im agine them delegates get the chance to hear from some of the UK’s foremost PCOS mful to you (so no surgical ovarian cancer. experts. Verity publishes In Touch, a bi-annual member newsletter full of the latest information and research on PCOS. Verity also provides advocacy, awareness and education to the healthcare DELEGATES ATTENDING knowledge with us. d worldwide profession through PCOS UK, Verity’s medical education arm that was established in January 2005. roblems Further information about Verity and PCOS can be found on our website www.verity-pcos.org.uk or through our blogs and forums, listed below. Over lunch, and during breaks, there was a real buzz as members blog.verity-pcos. twitter.com/ facebook.com/ youtube.com/ verity-pcos.org. Do you have any of the following? infrequent periods | weight problems chatted to each other, and to the exhibitors – including SK!N, Renew Medica and CTC/Duofertility. org.uk veritypcos veritypcos veritypcos uk/forum excess hair | acne and oily skin Verity The PCOS Self Help Group hair loss | mood swings New Bond House If you do, then you could have 124 New Bond Street London W1S 1DX www.verity-pcos.org.uk Polycystic Ovary Syndrome (PCOS) The conference ran very smoothly and all the trustees of Verity truly enjoyed the day, even though it was hard work! We look forward to seeing Verity is a Registered Charity No. 1097599 and even more of you at the next event at the Cardiff Hilton on 12th November 2011 – find out more on page 7. a company limited by guarantee No. 4404798 In Touch Spring/Summer 2011 11