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Exercise therapy for those moderately affected with Multiple Sclerosis
                                          What do participants think?
                                                                    Learmonth, Y. C., Paul, L., Marshall-McKenna, R.; School of Medicine, University of Glasgow, UK,
                                                                              Mattison, P., Miller L.; Douglas Grant Rehabilitation Unit, Ayrshire Central Hospital, UK.



Introduction                                                                                  Findings                                                                                                            The main barriers to exercise were participants MS symptoms
                                                                                                                                                                                                                  including mobility problems and fatigue levels. With the social
Multiple Sclerosis (MS) is a long-term condition often with                                   Similar themes emerged from both groups, and therefore data                                                         stigma surrounding MS ,both public and health professions
onset in early adulthood1. There is much quantitative evidence                                was merged. Three main themes came from the data. These                                                             attitudes, also presenting a barrier.
to suggest exercise helps manage some of the physical                                         were: benefits of the class, the exercise class and barriers to                                                                                                       “if you were in with
disabilities associated with MS. However less is known on                                     exercise. Themes were interdependent (Figure 1) and the                                                                                                              another class you would
                                                                                                                                                                                                                                                                   feel out of the ordinary”
the views and opinions of those with MS who participate in                                    exercise class emerged as a bridge between the perceived
exercise2-4. This knowledge could help healthcare or leisure                                  barriers to exercise allowing participants to benefit from the                                                      Discussion
professionals to tailor exercise options to suit the needs of                                 class and exercise.                                                                                                 People with MS identified barriers to exercise during the focus
people with MS.                                                                                                                                               Knowledgeable Motivating
                                                                                                                                                                                                                  groups, however further discussion established that providing
                                                                                                Symptom improvements                        Education
                                                                                                                                                                                                                  an MS specific, community exercise class tailored at an
                                                                                                                                                               Non stigmatic instruction       Social stigma



Purpose                                                                                                                                                                                                           appropriate level provides a number of benefits and inspired
                                                                                                                     Benefits of the class                                                  Barriers to exercise
                                                                                                                                                                                                                  participants to continue exercising.
                                                                                                                                                                  Accessible venue

This study sought to establish the views and opinions on
exercise, and on an MS specific exercise class in a group of
people moderately affected with MS who had completed 12
                                                                                                    Social Support                     Inspired to continue          Appropriate
                                                                                                                                                                 length/level/type of
                                                                                                                                                                       exercise
                                                                                                                                                                                              MS Symptoms
                                                                                                                                                                                                                  Recommendations
weeks of community based exercise.                                                                                                                                                                                People with MS value the opportunity to exercise in the
                                                                                                                                                                   Exercise class                                 community especially with others with a similar health
Participants                                                                                                                                                                                                      condition.
Fourteen people with moderate MS (EDSS 5-6.5) taking part in                                  Figure 1. Main themes, and subthemes emerging from the focus group
                                                                                                                                                                                                                  When establishing new services similar to those in this study it
two community exercise classes, as part of a larger study5, were                              Many benefits from the class were discussed by participants                                                         is important to consider the views of participants.
interviewed in two focus groups (Table 1).                                                    including improvements in their symptoms, learning about
                                                        Disease
                                                                                              exercise management and MS, the social benefits of the group                                                        References
 Focus        Participants
                                Age (years) Sex (M:F)                              EDSS       and being inspired to continue exercising.                                                                          1. Confavreux C., Vukusic S. Age at disability milestones in multiple sclerosis.
 Group            (n=)                                onset (years)
                                                                                                                                                                                                                     Brain. 2006;129(3):595-605. 
                                                                                                                                                                           “That just emphasises the
                                                                                               “I’ve found it really                                                                                              2. Dodd K.J., Taylor N.F. Denisenko S, Prasad D. A qualitative analysis of
     A               5              54.2             1:4             14.8           6.1                                                                                    beauty of this class. We all
                                                                                               enjoyable, and I’ve been                                                    come in, we all know,                     a progressive resistance exercise programme for people with multiple
                                                                                               shocked that an improvement                                                 we’ve all been through…                   sclerosis. Disability & Rehabilitation. 2006;28(18):1127-34. 
                                                                                               could be made by exercising
     B               9               51              3:6             14.8           6.1        at a much gentler level.”                                                                                          3. Smith C., Hale L., Olson K. Schneiders AG. How does exercise influence
                                                                                                                                                                                                                     fatigue in people with multiple sclerosis? Disability & Rehabilitation.
Table 1. Mean demographic details of participants (EDSS - Extended Disability Status Scale)                                                                                                                          2009;31(9):685-92.
                                                                                              Participants were mainly positive about the exercise class;                                                         4. Plow M.A., Resnik L., Allen S. M. Exploring physical activity behaviour
Methods                                                                                       the length of the class, the type of exercises and the level and                                                       of persons with multiple sclerosis: a qualitative pilot study. Disability &
                                                                                              time of each exercise. They felt the style of instruction was                                                          Rehabilitation. 2009;31(20):1652-65.
Focus groups were undertaken at the end of 12 weeks of
twice-weekly hour-long group exercise classes which involved                                  appropriate, and most felt an accessible venue made it easier                                                       5. Learmonth, Y. C., Paul, L.; Mattison, P., Miller L.; McFadyen, A. K. The
                                                                                              to attend.                                                                                                             effects of a twelve week leisure centre based, group exercise intervention
aerobic, resistance and balance exercises at varying levels of                                                                                                                                                       for people moderately affected with Multiple Sclerosis: a randomised
difficulty. Interviews were transcribed and thematic content                                                                            “(the instructor) let you                                                    controlled pilot study. 2011 (under review).
analysis applied. Emergent themes and subthemes were                                                                                    work at a comparative
                                                                                                                                        level for yourself”
verified by a second researcher.                                                                                                                                                                                  Funding Sources:
                                                                                                                                                                                                                  Bevan scholarship
                                                                                                                                                                                                                  NHS Ayrshire & Arran

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WCPT 2011 Exercise Therapy in MS Focus Group

  • 1. Exercise therapy for those moderately affected with Multiple Sclerosis What do participants think? Learmonth, Y. C., Paul, L., Marshall-McKenna, R.; School of Medicine, University of Glasgow, UK, Mattison, P., Miller L.; Douglas Grant Rehabilitation Unit, Ayrshire Central Hospital, UK. Introduction Findings The main barriers to exercise were participants MS symptoms including mobility problems and fatigue levels. With the social Multiple Sclerosis (MS) is a long-term condition often with Similar themes emerged from both groups, and therefore data stigma surrounding MS ,both public and health professions onset in early adulthood1. There is much quantitative evidence was merged. Three main themes came from the data. These attitudes, also presenting a barrier. to suggest exercise helps manage some of the physical were: benefits of the class, the exercise class and barriers to “if you were in with disabilities associated with MS. However less is known on exercise. Themes were interdependent (Figure 1) and the another class you would feel out of the ordinary” the views and opinions of those with MS who participate in exercise class emerged as a bridge between the perceived exercise2-4. This knowledge could help healthcare or leisure barriers to exercise allowing participants to benefit from the Discussion professionals to tailor exercise options to suit the needs of class and exercise. People with MS identified barriers to exercise during the focus people with MS. Knowledgeable Motivating groups, however further discussion established that providing Symptom improvements Education an MS specific, community exercise class tailored at an Non stigmatic instruction Social stigma Purpose appropriate level provides a number of benefits and inspired Benefits of the class Barriers to exercise participants to continue exercising. Accessible venue This study sought to establish the views and opinions on exercise, and on an MS specific exercise class in a group of people moderately affected with MS who had completed 12 Social Support Inspired to continue Appropriate length/level/type of exercise MS Symptoms Recommendations weeks of community based exercise. People with MS value the opportunity to exercise in the Exercise class community especially with others with a similar health Participants condition. Fourteen people with moderate MS (EDSS 5-6.5) taking part in Figure 1. Main themes, and subthemes emerging from the focus group When establishing new services similar to those in this study it two community exercise classes, as part of a larger study5, were Many benefits from the class were discussed by participants is important to consider the views of participants. interviewed in two focus groups (Table 1). including improvements in their symptoms, learning about Disease exercise management and MS, the social benefits of the group References Focus Participants Age (years) Sex (M:F) EDSS and being inspired to continue exercising. 1. Confavreux C., Vukusic S. Age at disability milestones in multiple sclerosis. Group (n=) onset (years) Brain. 2006;129(3):595-605.  “That just emphasises the “I’ve found it really 2. Dodd K.J., Taylor N.F. Denisenko S, Prasad D. A qualitative analysis of  A 5 54.2 1:4 14.8 6.1 beauty of this class. We all enjoyable, and I’ve been come in, we all know, a progressive resistance exercise programme for people with multiple shocked that an improvement we’ve all been through… sclerosis. Disability & Rehabilitation. 2006;28(18):1127-34.  could be made by exercising B 9 51 3:6 14.8 6.1 at a much gentler level.” 3. Smith C., Hale L., Olson K. Schneiders AG. How does exercise influence fatigue in people with multiple sclerosis? Disability & Rehabilitation. Table 1. Mean demographic details of participants (EDSS - Extended Disability Status Scale) 2009;31(9):685-92. Participants were mainly positive about the exercise class; 4. Plow M.A., Resnik L., Allen S. M. Exploring physical activity behaviour Methods the length of the class, the type of exercises and the level and of persons with multiple sclerosis: a qualitative pilot study. Disability & time of each exercise. They felt the style of instruction was Rehabilitation. 2009;31(20):1652-65. Focus groups were undertaken at the end of 12 weeks of twice-weekly hour-long group exercise classes which involved appropriate, and most felt an accessible venue made it easier 5. Learmonth, Y. C., Paul, L.; Mattison, P., Miller L.; McFadyen, A. K. The to attend. effects of a twelve week leisure centre based, group exercise intervention aerobic, resistance and balance exercises at varying levels of for people moderately affected with Multiple Sclerosis: a randomised difficulty. Interviews were transcribed and thematic content “(the instructor) let you controlled pilot study. 2011 (under review). analysis applied. Emergent themes and subthemes were work at a comparative level for yourself” verified by a second researcher. Funding Sources: Bevan scholarship NHS Ayrshire & Arran