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Ética y equidad en la investigación Educ 603: Investigación Educativa Cristina Torres Velázquez, Ed. D.
Definición ,[object Object],[object Object]
Principios guía ,[object Object],[object Object],[object Object],[object Object]
I. Respeto por las personas ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
I. Respeto por las personas ,[object Object],[object Object],[object Object],[object Object],[object Object]
II. Beneficencia ,[object Object],[object Object],[object Object],[object Object],[object Object]
III. Justicia ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Ejemplos de investigación dañina ,[object Object],[object Object],[object Object],[object Object]
Línea de tiempo: 1930-1960
El Estudio Tuskegee ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
 
Investigaciones médicas nazis ,[object Object],[object Object],[object Object],[object Object]
“ OUR STARTING POINT IS NOT THE INDIVIDUAL, AND WE DO NOT SUBSCRIBE TO THE VIEW THAT ONE SHOULD FEED THE HUNGRY, GIVE DRINK TO THE THIRSTY, OR CLOTHE THE NAKED . . . . OUR OBJECTIVES ARE ENTIRELY DIFFERENT: WE MUST HAVE A HEALTHY PEOPLE IN ORDER TO PREVAIL IN THE WORLD.” JOSEPH GOEBBELS,  MINISTER OF PROPAGANDA, 1938
 
Edith F. was a victim of the children’s euthanasia program.  Wiener Stadt- und Landesarchiv/United States Holocaust Memorial Museum #UN876   Carl Clauberg (far left), a research gynecologist, once studied treatments to help infertile women conceive. In 1943 and 1944, he conducted cruel experiments at Auschwitz on mostly Jewish prisoners in his mission to develop an efficient, inexpensive method of mass sterilization.  Instytut Pamieci Narodowej—Komisja Scigania Zbrodni przeciwko Narodowi Polskiemu, Warsaw/United States Holocaust Memorial Museum #UN433  Most of these Hungarian Jews deported to Auschwitz- Birkenau in May 1944 were killed soon after their arrival in gas chambers disguised as showers.  Yad Vashem, Jerusalem/United States Holocaust Memorial Museum #UN1704  Some children survived at Auschwitz because they were twins useful in genetic research conducted by  Dr. Josef Mengele  at the camp.  Belorusskiy gosudarstvennyy arkhiv kinofotofonodokumentov, Dzerzhinsk/United States Holocaust Memorial Museum #UN1702
 
Victim of Nazi medical experiment immersed in freezing water at Dachau concentration camp. SS doctor Sigmund Rascher oversees the experiment. Germany, 1942. DIZ Muenchen GMBH, Sueddeutscher Verlag Bilderdienst A victim of a Nazi medical experiment is immersed in icy water at the Dachau concentration camp. SS doctor Sigmund Rascher oversees the experiment. Germany, 1942. Bildarchiv Preussischer Kulturbesitz Children castrated as part of Nazi medical experiments, probably in the Auschwitz camp. Place uncertain, 1942.  Centre de Documentation Juive Contemporaine A Romani (Gypsy) victim of Nazi medical experiments to make seawater potable. Dachau concentration camp, Germany, 1944.   National Archives and Records Administration, College Park, Md.  A victim of a Nazi medical experiment is immersed in icy water at the Dachau concentration camp. Germany, 1942.   Bildarchiv Preussischer Kulturbesitz
 
Result of a medical experiment on a prisoner. Buchenwald concentration camp, Germany, date uncertain. Medical personnel experiment on a prisoner at the Buchenwald concentration camp. Buchenwald, Germany, date uncertain. La Documentation Francaise A prisoner in a compression chamber loses consciousness (and later dies) during an experiment to determine altitudes at which aircraft crews could survive without oxygen. Dachau, Germany, 1942. National Archives and Records Administration, College Park, Md.  A Jewish child show the scar left after SS physicians removed his lymph nodes. This child was one of 20 Jewish children injected with tuberculosis germs as part of a medical experiment. Neuengamme concentration camp, Germany, between December 1944 and February 1945. Guenther Schwarberg Photo of the disfigured leg of a survivor from Ravensbrueck, Polish political prisoner Helena Hegier, who was subjected to medical experiments in 1942. The disfiguring scars resulted from incisions made by medical personnel that were purposely infected with bacteria, dirt, and slivers of glass. DIZ Muenchen GMBH, Sueddeutscher Verlag Bilderdienst
 
Concentration camp survivor Jadwiga Dzido shows her scarred leg to the Nuremberg court, while an expert medical witness explains the nature of the procedures inflicted on her in the Ravensbrück concentration camp on November 22, 1942. The experiments, including injections of highly potent bacteria, were performed by defendants Herta Oberheuser and Fritz Ernst Fischer. December 20, 1946. National Archives and Records Administration, College Park, Md.  Herta Oberhauser, who was a physician at the Ravenbrueck concentration camp, is sentenced at the Doctors Trial in Nuremberg. Oberhauser was found guilty of performing medical experiments on camp inmates and was sentenced to 20 years in prison. Nuremberg, Germany, August 20, 1947. National Archives and Records Administration, College Park, Md.  Friedrich Hoffman, holding a stack of death records, testifies about the murder of 324 Catholic priests who were exposed to malaria during Nazi medical experiments at Dachau concentration camp. Dachau, Germany, November 22, 1945. National Archives and Records Administration, College Park, Md.
Sólo guárdate y guarda tu alma cuidadosamente. Nunca olvides lo que tus ojos han visto, ni permitas que ello departa de tu corazón durante todos los días de tu vida. Hazlo saber a tus hijos, y a los hijos de tus hijos…
El Código Nuremberg ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Línea de tiempo: 1960-1980
El estudio del Hospital Judío de Enfermedades Crónicas ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
El Estudio Willowbrook ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
La Declaración de Helsinki ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
El Reporte Belmont ,[object Object],[object Object],[object Object]
Línea de tiempo: 1980-2000
La base legal ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
“ Common Rule ” ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
I. Lo básico ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Quién es el participante ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Selección de los participantes ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Responsabilidades del investigador ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Poblaciones vulnerables ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Privacidad y confidencialidad ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
II. Consentimiento informado ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Significado ,[object Object],[object Object]
Elementos del consentimiento ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Estudios exentos del IRB 2 ,[object Object],[object Object],[object Object],[object Object],[object Object]
Estudios exentos del IRB 1 ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
[object Object],[object Object],[object Object],[object Object]

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Etica y equidad en la investigación

  • 1. Ética y equidad en la investigación Educ 603: Investigación Educativa Cristina Torres Velázquez, Ed. D.
  • 2.
  • 3.
  • 4.
  • 5.
  • 6.
  • 7.
  • 8.
  • 9. Línea de tiempo: 1930-1960
  • 10.
  • 11.  
  • 12.
  • 13. “ OUR STARTING POINT IS NOT THE INDIVIDUAL, AND WE DO NOT SUBSCRIBE TO THE VIEW THAT ONE SHOULD FEED THE HUNGRY, GIVE DRINK TO THE THIRSTY, OR CLOTHE THE NAKED . . . . OUR OBJECTIVES ARE ENTIRELY DIFFERENT: WE MUST HAVE A HEALTHY PEOPLE IN ORDER TO PREVAIL IN THE WORLD.” JOSEPH GOEBBELS, MINISTER OF PROPAGANDA, 1938
  • 14.  
  • 15. Edith F. was a victim of the children’s euthanasia program. Wiener Stadt- und Landesarchiv/United States Holocaust Memorial Museum #UN876   Carl Clauberg (far left), a research gynecologist, once studied treatments to help infertile women conceive. In 1943 and 1944, he conducted cruel experiments at Auschwitz on mostly Jewish prisoners in his mission to develop an efficient, inexpensive method of mass sterilization. Instytut Pamieci Narodowej—Komisja Scigania Zbrodni przeciwko Narodowi Polskiemu, Warsaw/United States Holocaust Memorial Museum #UN433 Most of these Hungarian Jews deported to Auschwitz- Birkenau in May 1944 were killed soon after their arrival in gas chambers disguised as showers. Yad Vashem, Jerusalem/United States Holocaust Memorial Museum #UN1704 Some children survived at Auschwitz because they were twins useful in genetic research conducted by Dr. Josef Mengele at the camp. Belorusskiy gosudarstvennyy arkhiv kinofotofonodokumentov, Dzerzhinsk/United States Holocaust Memorial Museum #UN1702
  • 16.  
  • 17. Victim of Nazi medical experiment immersed in freezing water at Dachau concentration camp. SS doctor Sigmund Rascher oversees the experiment. Germany, 1942. DIZ Muenchen GMBH, Sueddeutscher Verlag Bilderdienst A victim of a Nazi medical experiment is immersed in icy water at the Dachau concentration camp. SS doctor Sigmund Rascher oversees the experiment. Germany, 1942. Bildarchiv Preussischer Kulturbesitz Children castrated as part of Nazi medical experiments, probably in the Auschwitz camp. Place uncertain, 1942. Centre de Documentation Juive Contemporaine A Romani (Gypsy) victim of Nazi medical experiments to make seawater potable. Dachau concentration camp, Germany, 1944. National Archives and Records Administration, College Park, Md. A victim of a Nazi medical experiment is immersed in icy water at the Dachau concentration camp. Germany, 1942. Bildarchiv Preussischer Kulturbesitz
  • 18.  
  • 19. Result of a medical experiment on a prisoner. Buchenwald concentration camp, Germany, date uncertain. Medical personnel experiment on a prisoner at the Buchenwald concentration camp. Buchenwald, Germany, date uncertain. La Documentation Francaise A prisoner in a compression chamber loses consciousness (and later dies) during an experiment to determine altitudes at which aircraft crews could survive without oxygen. Dachau, Germany, 1942. National Archives and Records Administration, College Park, Md. A Jewish child show the scar left after SS physicians removed his lymph nodes. This child was one of 20 Jewish children injected with tuberculosis germs as part of a medical experiment. Neuengamme concentration camp, Germany, between December 1944 and February 1945. Guenther Schwarberg Photo of the disfigured leg of a survivor from Ravensbrueck, Polish political prisoner Helena Hegier, who was subjected to medical experiments in 1942. The disfiguring scars resulted from incisions made by medical personnel that were purposely infected with bacteria, dirt, and slivers of glass. DIZ Muenchen GMBH, Sueddeutscher Verlag Bilderdienst
  • 20.  
  • 21. Concentration camp survivor Jadwiga Dzido shows her scarred leg to the Nuremberg court, while an expert medical witness explains the nature of the procedures inflicted on her in the Ravensbrück concentration camp on November 22, 1942. The experiments, including injections of highly potent bacteria, were performed by defendants Herta Oberheuser and Fritz Ernst Fischer. December 20, 1946. National Archives and Records Administration, College Park, Md. Herta Oberhauser, who was a physician at the Ravenbrueck concentration camp, is sentenced at the Doctors Trial in Nuremberg. Oberhauser was found guilty of performing medical experiments on camp inmates and was sentenced to 20 years in prison. Nuremberg, Germany, August 20, 1947. National Archives and Records Administration, College Park, Md. Friedrich Hoffman, holding a stack of death records, testifies about the murder of 324 Catholic priests who were exposed to malaria during Nazi medical experiments at Dachau concentration camp. Dachau, Germany, November 22, 1945. National Archives and Records Administration, College Park, Md.
  • 22. Sólo guárdate y guarda tu alma cuidadosamente. Nunca olvides lo que tus ojos han visto, ni permitas que ello departa de tu corazón durante todos los días de tu vida. Hazlo saber a tus hijos, y a los hijos de tus hijos…
  • 23.
  • 24. Línea de tiempo: 1960-1980
  • 25.
  • 26.
  • 27.
  • 28.
  • 29. Línea de tiempo: 1980-2000
  • 30.
  • 31.
  • 32.
  • 33.
  • 34.
  • 35.
  • 36.
  • 37.
  • 38.
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  • 40.
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  • 42.
  • 43.