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Although tumors of the central nervous system (CNS) represent 2% of all malignancies in general, they have disproportionately large morbidity and mortality and represent the second most common form of cancer in children and the major solid tumor in childhood in the US, occurring around 21.3% of all children with malignant diseases.  The project aimed to build a registry of the epidemiological profile of patients undergoing treatment for CNS tumors in our center, creating a hospital registry of pediatric patients with CNS tumors. Thus, a data collection tool was created using the Google Apps platform (Google Inc., 2014).
The study design was single-center, open, non-randomized, uncontrolled and retrospective. A longitudinal descriptive experimental design was used because of the need for regular updating of data after the initial record of each patient. The research was developed at the Pediatric Cancer Center of Albert Sabin Children's Hospital. The sample consisted of patients diagnosed by spontaneous demand. Health records of patients between 0 and 18 years, with brain tumors, who started chemotherapy between January 2000 and December 2013 were analyzed. The project was approved in 2014 by the board of our institution (CAAE 30792114.0.0000.5042). The researcher responsible for the extraction of data was trained and the recruitment of the sample was started with identification of patients admitted. We evaluated the type and histological subtype, topography and spread, and the size of the lesions; the clinical picture and laboratory tests input of patients; the treatment instituted, including surgery, radiation therapy, chemotherapy; the outcome of patients during treatment, including complications, side effects of treatment and co-morbidities; medicines and blood products used by patients during treatment; the outcome of treatment and survival. The data collection instrument is an interactive questionnaire built with Google Forms application (Google Inc., 2014). Forms can be filled in several different devices (PC, Linux, Apple and Android), allowing great mobility and flexibility to researchers. It was built based on instruments already standard, such as socio-demographic assessment of WHO, modified Lanky scale and ECOG scale. 
To date, 143 responses were registered (35% of 409 total patients). Of the responses, 34% (49) patients had no histology. The most frequent histology was medulloblastoma with 9% (13) of patients. Secondly, diffuse astrocytoma and ependymoma, each with 8% (11) patients. Most of the patients (22%) had diffuse brainstem tumors, while 14% (20) were in the cerebellar vermis, 9% (13) were in the IV ventricle. (truncated)
(presented as a poster in portuguese at the XIX Brazilian Congress of Clinical Oncology, Foz do Iguaçu, 2015)