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CASP Core Course 2 Section 2.7


       Integrating Gerontological
     Principles with Management

                        2.7.1.	 The	Management-Resident	
                                  Relationship




                                                                                                          2.7




                              Creating, Certifying, and Connecting Innovative Leaders in Aging Services
Module 2.7.1
                                                              The Management-Resident Relationship


  Table of Contents
  The History of Long-Term Care’s Administrative Approach to “Resident Care”:
     The Basis for Culture Change ....................................................................................................... 4
  The Culture Change Movement.......................................................................................................... 6
     • The Eden Alternative .............................................................................................................. 8
     • The Green House Project ........................................................................................................ 16
     • The Wellspring Model............................................................................................................. 19
     • Other Culture Change Models or Paradigms ........................................................................... 21




CASP Core Course 2, Section 7
                                                                                          Creating, Certifying, and Connecting Innovative Leaders in Aging Services
CASP Core Course 2, Section 7                           Module 2.7.1 – The Management-Resident Relationship




Editor’s Note
                                    Successful management is essential to achieving and maintaining
                                quality in any business; and, in the field of aging services, The
                                Management-Resident Relationship is at the heart of successful
                                management. In Module 2.7.1, Kendall Brune presents a comprehensive
                                and inspiring analysis of how that relationship promotes quality in
                                residential facilities for the elderly. After summarizing the historical
                                transition from a medical model to a social model of care in nursing
                                homes and other long-term care facilities, Dr. Brune focuses his
                                discussion on resident-/person-centered care and the exciting concept of
                                culture change: “the national movement for the transformation of older
                                adult services, based on person-directed values and practices, where
                                the voices of elders and those working with them are considered and
                                respected.” Culture change, however, is much more than just an idea
                                couched in impressive-sounding words. In this module, you will be
                                introduced to a variety of models in which the theory has been applied to
                                the daily operations of aging services organizations, including:
                                • The Eden Alternative (the earliest and perhaps the best-known
                                    culture change paradigm),
                                • The Green House Project,
                                • The Wellspring Model,
                                • Eldershire,
                                • Elder cohousing,
                                • The Pioneer Network,
                                • Evercare, and
                                • The Coming Home Program.
                                    Dr. Brune describes the approaches these programs use to deliver
                                quality care and services, presenting numerous modalities for your
                                consideration. His listing of the central elements of the culture change
                                movement (as summarized by Calkins in 2002) and his contrast of
                                the characteristics of institution- vs. person-directed care, embody
                                precepts that you can apply to all of your organization’s residents/clients,
                                personnel, and operations.
                                    Dr. Brune’s list of references gives you dozens of documents available
                                online for further reading, with still more offered in his selection of
                                Learning Resources. The Learning Resources also include an extensive
                                glossary of terms commonly used in the field of long-term care and

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Module 2.7.1 – The Management-Resident Relationship                                    CASP Core Course 2, Section 7



                                       aging services, as well as Dr. Brune’s own diagram of a dynamic
                                       management-resident relationship for building sustainable senior-engaged
                                       communities.


About the Author
                                            Dr. Kendall Brune, President of Future Focus Community, LLC,
                                       provides senior leadership and oversight for development, owned,
                                       and leased properties. He is a senior housing expert and an executive
                                       instructor to leaders in the field, and he assists healthcare developers and
                                       providers in identifying market growth opportunities.
                                            Dr. Brune has more than 25 years of experience in the healthcare
                                       field and has been on the leading edge of culture change in the healthcare
                                       delivery system for the elderly in the United States. His academic
                                       credentials include his designation as a Fellow with the American College
                                       of Healthcare Administrators, his doctorate in healthcare administration,
                                       and his authorship of two practical healthcare books for the senior care
                                       field. He currently serves as an adjunct professor of senior healthcare
                                       administration for two universities, A.T. Still University and the
                                       University of North Texas. Dr. Brune also serves ATSU as a member of
                                       the medical school faculty board and a curriculum committee member
                                       for Geriatric Health Management.
                                            During his graduate work with Project Life and the Center for the
                                       Study of Aging at the University of Missouri-Columbia, he participated
                                       in the national culture change phenomenon of the Eden Alternative as a
                                       researcher, administrator, and disciple, from its infancy through putting
                                       it into practice in one of Missouri’s first affiliated facilities. To further
                                       develop the Eden vision, his practical experience as a licensed long-
                                       term care administrator has allowed him to deliver improvements and
                                       culture change through all continuum of care levels, from independent
                                       senior housing, through assisted care and skilled nursing facilities, to a
                                       major hospital sub-acute care facility. He continues to serve as a mentor
                                       and educator for the Eden Alternative program. He has applied these
                                       philosophies of care in the development and operation of 19 long-term
                                       care facilities; representing $150 million of construction management. All
                                       of these facilities are still operating successfully today.
                                            Dr. Brune obtained his undergraduate degree in healthcare
                                       administration from the University of Missouri-Columbia, an

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CASP Core Course 2, Section 7                          Module 2.7.1 – The Management-Resident Relationship



                                M.B.A from William Woods University, and a Ph.D. in healthcare
                                administration from Kennedy Western University. He is currently
                                completing a Ph.D. in applied gerontology from the University of North
                                Texas in Denton.


Learning Objectives
                                •   You will understand the driving forces changing the Resident/
                                    Management Relationship.
                                •   You will learn about “Culture Change.”
                                •   You will learn about “Resident- or Person-Centered Care.”
                                •   You will learn how to communicate “Quality Care” to your
                                    customers:
                                    o CMS directives for culture change;
                                    o Medicare reporting mechanism.
                                •   You will learn what wellness is all about.
                                •   You will learn about creative programming to engage seniors.
                                •   You will learn about community engagement.




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Module 2.7.1 – The Management-Resident Relationship                                   CASP Core Course 2, Section 7




Overview
                                           To discuss the relationship between residents and the management
                                       team, we must first review the transition from a medical model to a
                                       social model of care. Long-term care (LTC) management models were
                                       developed for a very autocratic and hierarchical style of management
                                       based in the 1960s. Those facilities were built on the model of hospitals
                                       (after the Hill-Burton Act of 1946), where the major focus was on
                                       healing, or palliation of, physical ailments and, in the case of residents
                                       with dementia, mental impairment. Residents were—and, for the
                                       most part still are—isolated from family, friends, and community,
                                       often without any view of the outside world. Baby Boomers today will
                                       not tolerate such an environment for their parents, or themselves. A
                                       cultural revolution called “Resident-Centered Care” started to occur and
                                       change the Resident/Management Relationship. “Culture change” is the
                                       common name given to the national movement for the transformation
                                       of older adult services, based on person-directed values and practices
                                       where the voices of elders and those working with them are considered
                                       and respected. In the management process, decision-making is pushed
                                       down to the lowest level of front line staff. Administrators have become
                                       “facilitators of process improvement” and community advocates for
                                       senior consumerism. We are now exploring new ways to enhance revenue
                                       streams that entail home care, private-duty nursing, outpatient therapy
                                       services, spa and wellness clinics, fitness and pool centers for seniors,
                                       and any other creative outreach program that engages seniors to return
                                       continuously to a facility. This module will explore the history of culture
                                       change and the process of creating a new “well-being and connectivity”
                                       model for senior retirement communities.


The Resident-Management Relationship

The History of Long-Term Care’s Administrative Approach to “Resident Care”: The
Basis for Culture Change
                                           The development of skilled and intermediate care nursing facilities
                                       in the United States during the 1950s and 1960s served an honorable
                                       purpose. Facilities of the pre-1990 era and, indeed, the vast majority
                                       even today, serve the “medical” needs of those unfortunate individuals
                                       who require skilled nursing care, i.e., medical care. The organizational

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CASP Core Course 2, Section 7                                   Module 2.7.1 – The Management-Resident Relationship



                                        structure of most facilities continues to be patterned after the hospital’s
                                        hierarchical, departmentalized, top-down management scheme, similar
Abuse/Elder Abuse: Any knowing,
intentional or negligent act by a       to most American corporations. In short, hospitals, nursing homes, and
caregiver or any other person           retirement communities, have been designed to be efficient, standardized,
that causes harm or a serious risk
                                        cost-driven, and regulation-compliant corporate institutions.
of harm to a vulnerable older
adult. Types of elder abuse may              Although not all nursing homes prior to the mid-1990s were
include physical abuse–inflicting, or   sterile cinder-block structures, they did almost invariably provide the
threatening to inflict, physical pain
or injury on a vulnerable elder, or
                                        same internal atmosphere, where front-line staff and residents alike
depriving him or her of a basic         followed very structured routines with little opportunity for personal or
need; emotional abuse–inflicting        professional growth or self-expression. Residents were and, for the most
mental pain, anguish, or distress on
an elder person through verbal or       part still are, isolated from family, friends, and community, often without
nonverbal acts; sexual abuse–non-       any view of the outside world. Over half of nursing home residents
consensual sexual contact of any
                                        spent much of their day in restraints, a practice which was condoned by
kind; exploitation–illegal taking,
misuse, or concealment of funds,        regulators until the passage of the Nursing Home Reform Act as part of
property or assets of a vulnerable      OBRA in 1987 (Calkins, 2002). Traditionally, there has been little regard
elder; neglect–refusal or failure
by those responsible to provide         for residents’ privacy, and a high level of neglect for their emotional,
food, shelter, health care, or          social, and spiritual needs. Many residents just shut down, which, for
protection for a vulnerable elder;
                                        some, hastens their physical decline.
and abandonment–the desertion of
a vulnerable elder by anyone who             For most of us studying applied gerontology, this is not news. It is
has assumed the responsibility for      safe to say that the “great dread” of becoming a dependent senior was to
care or custody of that person. The
specificity of laws varies from state
                                        be put in a nursing home, a sentiment shared by both residents and their
to state (see National Center on        loved ones. In a PSB Online “NewsHour” report, Dentzer (2002) cited a
Elder Abuse at www.ncea.aoa.gov;        poll taken by NewsHour, the Kaiser Foundation, and the Harvard School
retrieved on October 2, 2009).
                                        of Public Health, which revealed that 1) almost half of all Americans
Resident: A person who lives in
a long-term care setting, such as       thought people were worse off after going into nursing homes than before
a nursing home or assisted living       they went in, 2) almost four in ten nursing home residents reported being
community.
                                        dissatisfied with their care and, 3) one in four Americans reported that a
Nursing Home or Skilled Nursing
Facility (SNF): A residential care      nursing home resident they knew had been badly treated or abused by the
setting that provides 24-hour-care      staff. Furthermore, a Congressional report released just prior to Dentzer’s
(all day and night) to individuals
who are chronically ill or disabled.
                                        article stated that state inspectors had cited nearly one in ten nursing
Individuals must be unable to care      homes for instances of serious abuse (“Nursing Home Abuse News,”
for themselves in other settings or     2001).
need extensive medical and/or
skilled nursing care.                        As background information, in a 1999 National Nursing Home
                                        Survey, the National Center for Health Statistics reported that there were
                                        1.6 million nursing home residents (usually referred to as “patients”),
                                        living in 18,000 nursing homes nationwide, with an 87% occupancy rate,
                                        and an average current resident length of stay of 892 days (nearly 2½


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Module 2.7.1 – The Management-Resident Relationship                                      CASP Core Course 2, Section 7



                                        years!) (“Nursing Home Care,” 2008). A 1997 National Nursing Home
                                        Survey reported that approximately 4.3 % of the US population age 65
                                        or older were nursing home residents, about half of whom were age 85 or
                                        older; and about 75% of these 65-and-over residents required assistance
                                        in three of more activities of daily living (ADLs). Forty-two percent of all
                                        nursing home residents were diagnosed with dementia (Gabrel, 2000).
                                             According to Dr. Bill Thomas, founder of the Eden Alternative, “Any
                                        adult in America who reaches the age of 65 has a 50% chance of spending
Activities of Daily Living (ADLs):      time, significant time, in a nursing home. That’s a vast proportion of our
Daily functions such as getting
                                        society. . . . The only other segment of our society that is more likely to
dressed, eating, taking a shower
or bath, going to the bathroom,         be institutionalized are convicted criminals. . . . So here we have a society
getting into a bed or chair, or         that used an institutional pattern for convicted violent felons and our
walking from place to place. The
amount of help a person needs with      frail mothers and fathers. And that is a losing proposition in the 21st
ADLs is often used as a measure to      century” (“Thou Shalt Honor . . . The Eden Alternative,” 2002, [n.p.]).
determine whether he or she meets
                                        And it is certainly not an option for many of the emerging Baby Boomer
the requirements for long-term care
services in a nursing home as well as   population, who will demand more and much better options for their
government-subsidized home- and         LTC needs. Thomas predicts that the Boomer generation will completely
community-based services (also
see Instrumental Activities of Daily
                                        wipe out the traditional, institution-type nursing home, or at least that is
Living).                                his goal!
                                             With this historical and statistical background, it seems that a major
                                        organizational reformation was brewing a perfect storm for change. Now
                                        let’s begin to talk about how the resident and management relationship
                                        process has changed in the continuum of senior care and housing.

The Culture Change Movement
                                            A paradigm shift in resident care occurred in the form of the culture-
                                        change movement in the LTC field (Brune, 1992; Brune, 1995). We
                                        can see that the Baby Boomers are coming, and we’re all aware that the
                                        sheer number of retirees will strain our limited staff, plant, financial, and
                                        emotional resources in the near future. Boomers will bring with them
                                        new technologies and more diverse expectations. We must meet these
                                        expectations and use technology to understand future demands by means
                                        of dynamic assessment of service desires.
                                            In actuality, the distinction of being the earliest recent culture change
                                        movement could be given to the Gray Panthers, organized in 1970 by
                                        Maggie Kuhn. This liberal activist organization is still alive and well
                                        today, advocating for a range of social and political causes, many relating


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CASP Core Course 2, Section 7                                    Module 2.7.1 – The Management-Resident Relationship



                                         to healthcare, and including ageism and the rights and interests of seniors
                                         (“Gray Panthers: Issue Resolutions Summary,” 2009; “Gray Panthers,”
                                         [n.d.]).
                                              In the context of our discussion here, “culture change’” is the
                                         term commonly used to describe the national movement for the
Culture Change: The common name
                                         transformation of older adult services, based on person-directed values
given to the national movement for
the transformation of older adult        and practices where the voices of elders and those working with them
services, based on person-directed       are considered and respected. Core person-directed values are “choice,
values and practices, where the
voices of elders and those working
                                         dignity, respect, self-determination, and purposeful living” (“What Is
with them are considered and             Culture Change?,” 2008, [n.p.]). It is “an effort to radically transform
respected. Core person-directed          the nation’s nursing homes by delivering resident-directed care and
values are choice, dignity, respect,
self-determination, and purposeful       empowering staff ” (Rahman & Schnelle, 2008, p. 142). Although
living. Culture change transformation    the first real impetus for nursing home reform came in 1991 with Bill
supports the creation of both long-
                                         Thomas’ Eden Alternative model, the culture change movement is
and short-term living environments
as well as community-based               generally thought to have begun in 1997, following the first meeting
settings where both older adults         of the nursing home Pioneers (now known as the Pioneer Network),
and their caregivers are able to
express choice and practice self-        during which the term “culture change” was coined. The University of
determination in meaningful ways         Missouri-Columbia’s “Project Life” was responsible for the publication
at every level of daily life. Culture
                                         of Thomas’s first book, The Eden Alternative, and I was fortunate enough
change transformation may require
changes in organization practices,       to be working for Dr. Stan Ingman at UM-C’s Center for the Study of
physical environments, relationships     Aging at the time of this project (1988-1992). The Eden Alternative
at all levels, and workforce models,
leading to better outcomes for
                                         resident philosophy challenged administration to identify who residents
consumers and direct-care workers        “had been” and how they could still add value to the greater community
without being costly for providers.      in which they were engaged. Co-habitational communities like Heritage
Person-Directed Care/Person-
                                         of Green Hills, located in Reading, Pennsylvania, focus on the holistic
Centered Care: An approach to
care that honors and respects the        philosophy that each person has a personal path to wellness through
voices of individuals and those          social, spiritual, physical, intellectual, emotional, and vocational activity
working closest with them. It involves
a continuing process of listening,       (“Building Premiere Retirement Communities for Today’s Active
trying new approaches, seeing how        Seniors,” 2007).
they work, and changing routines
                                              With various health care providers developing their own branded
and organizational approaches in
an effort to individualize and de-       versions of resident-centered care models, “culture change” has become
institutionalize the care environment    a generic term, encompassing a host of LTC concepts and models,
(e.g., nursing home or assisted living
facility).
                                         including the following:
                                           1. Resident-centered care;
                                           2. Resident-directed care;
                                           3. Eden Alternative;
                                           4. Green House Project;


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Module 2.7.1 – The Management-Resident Relationship                                       CASP Core Course 2, Section 7



                                         5. The Wellspring Model;
                                         6. The Pioneer Movement;
                                         7. Person-centered care;
                                         8. Quality-Improvement Organizations;
                                         9. Advancing Excellence campaign;
                                        10. Culture of safety;
                                        11. Best friends approach;
                                        12. Validation therapy;
Geriatrician: A medical doctor with     13. Activity-focused care;
special training in the diagnosis,      14. Positive Interactions Program; and
treatment, and prevention of illness
and disabilities in older adults        15. Beyond the Green House Project Care Model (Nissenboim, 2004).
(see American Medical Directors             Calkins (2002) sums up the culture change movement as
Association at www.amda.com;
                                            1. Respecting the individual needs and desires of each person (even
retrieved on October 2, 2009).
The GREEN HOUSE® Model: A
                                                people with dementia, including the right to control decisions
small, intentional (“purpose-built”)            that are made about their lives;
community for a group of elders             2. Honoring the life patterns and accomplishments of every person
and staff. A Green House residence
is designed to be a home for six to             within the setting, residents and staff alike (staff means, especially,
ten elders needing skilled nursing or           nurse’s aides, traditionally the lowest in the organizational
assisted living care. The purpose of
                                                hierarchy);
the Green House is to be a place
where elders can receive assistance         3. Supporting opportunities for continued growth;
and support with activities of daily        4. Enabling continued productive contributions to their community
living and clinical care, without the
assistance and care becoming the                (including experiential sharing, i.e., legacy);
focus of their existence.                   5. Encouraging meaningful connections with family and the
Provider: Typically a professional              community (to combat feelings of loneliness and helplessness);
healthcare worker, agency, or
organization that delivers health
                                            6. Fostering fun (to combat resident boredom and empowering
care or social services. Providers              staff ); and
may be individuals (physicians,             7. Restructuring of staffing roles and relationships (team approach,
nurses, social workers, and others),
organizations (hospitals, nursing               consistent assignment of staff, empowerment of front-line staff ).
homes, assisted living facilities,          The ultimate goal is to achieve maximal quality of life, for both
or continuing care retirement
                                        residents and staff.
communities), agencies (e.g., home
care and hospice), or businesses that       To begin understanding current philosophies of resident/
sell healthcare services or assistive   management relationships, we must review some present-day models of
equipment (e.g., colostomy care
supplies, wheelchairs, walkers, etc).   resident care.

                                        The Eden Alternative
                                           The Eden Alternative (EA), proposed by geriatrician and nursing
                                        home physician William Thomas in 1991, was the earliest of the culture


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CASP Core Course 2, Section 7                           Module 2.7.1 – The Management-Resident Relationship



                                change models. It also has been the most influential, successful, and
                                widely publicized; indeed it has become the model of models, and its
                                basic tenets are interwoven into almost all other proposed models of care.
                                It has led Dr. Thomas to conceive several offshoot or successor models,
                                including the Green House Project, the Eden at Home and the Eden at
                                Home Embracing Elderhood concepts, and Eldershire communities.
                                     Dr. Thomas formulated the Eden Alternative concept while he was
                                the house physician for a nursing home in upstate New York, the name
                                Eden inspired by the Biblical garden that was created to help ease Adam’s
                                loneliness. Thomas noted that the majority of residents in his nursing
                                home suffered from what he called “the three plagues”—loneliness,
                                helplessness, and boredom—as described in the first of the ten Eden
                                Alternative Principles:
                                  1. The three plagues of loneliness, helplessness, and boredom account
                                     for the bulk of suffering among our Elders.
                                  2. An Elder-centered community commits to creating a Human Habitat
                                     where life revolves around close and continuing contact with plants,
                                     animals, and children. It is these relationships that provide the young
                                     and old alike with a pathway to a life worth living.
                                  3. Loving companionship is the antidote to loneliness. Elders deserve
                                     easy access to human and animal companionship.
                                  4. An Elder-centered community creates opportunity to give as well as
                                     receive care. This is the antidote to helplessness.
                                  5. An Elder-centered community imbues daily life with variety and
                                     spontaneity by creating an environment in which unexpected and
                                     unpredictable interactions and happenings can take place. This is the
                                     antidote to boredom.
                                  6. Meaningless activity corrodes the human spirit. The opportunity to
                                     do things that we find meaningful is essential to human health.
                                  7. Medical treatment should be the servant of genuine human caring,
                                     never its master.
                                  8. An Elder-centered community honors its Elders by de-emphasizing
                                     top-down bureaucratic authority, seeking instead to place the
                                     maximum possible decision-making authority into the hands of the
                                     Elders or into the hands of those closest to them.
                                  9. Creating an Elder-centered community is a never-ending process.
                                     Human growth must never be separated from human life.


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                                           10. Wise leadership is the lifeblood of any struggle against the three
                                                plagues. For it, there can be no substitute (Thomas, 2006; “Our 10
                                                Principles,” 2009).
                                                Any nursing facility can choose to adopt some or all of these
                                           Principles; but, to be a bona fide (registered) EA facility, the nursing
                                           home must agree to abide by all ten Principles, register with the EA
                                           Registry, and participate in the ongoing Eden development process of
                                           continual commitment and striving not only toward complete fulfillment
                                           of the EA Principles but toward ever-improving resident quality of life
                                           and transforming the institution into a warm Human Habitat. The
                                           Eden Registry is maintained by the Eden Alternative, and both are
                                           non-profit entities. The Registry is not an accreditation, monitoring,
                                           regulatory, and punitive or organizationally controlling body. Rather,
                                           it provides education and resources to help nursing facilities adopt the
                                           Eden Principles and Practices (“Becoming Part of the Eden Registry,”
                                           2009). EA-registered homes receive an Eden Tree plaque and Symbols
                                           of Recognition (“The Eden Alternative: We Are Different,” 2009). Eden
                                           also provides a multitude of training workshops and trainer certifications
                                           (Brune, 1995). To date, Eden has trained over 15,000 Certified Eden
Certified Nursing Assistant (CNA):         Associates, and the organization now claims over 300 registered homes,
A person trained and certified to          in the United States, Canada, Europe, Japan, Australia, and New
assist individuals with non-clinical
tasks such as eating, walking,             Zealand (“Certified Eden Associates,” 2009). EA is a small and simple
and personal care (see ADLs and            organization, consisting of Dr. Bill Thomas; his wife Jude; the Eden
Personal Care). This person may
                                           home office staff; 50 Eden Educators; 60 mentors and, of course, the
be called a “direct-care worker”
(DCW). In a hospital or nursing home       15,000 Eden associates (“The Eden Alternative: Improving the Lives of
the person may be called a nursing         the Elders and Their Care Partners,” 2009).
assistant, a personal care assistant, or
an aide.
Direct-Care Staff/Direct-Care              Combating the three plagues
Worker (DCW): An individual                    The major impetus of the EA movement was, and still is, the
working in a nursing home or
                                           elimination of loneliness, helplessness, and boredom. In an Eden facility,
assisted living community who
provides “hands-on” help to                the cure for loneliness is companionship: with other residents, with
residents with activities of daily         front-line staff (empowered Certified Nurse Assistants, housekeepers,
living (see Certified Nursing
Assistant).
                                           maintenance personnel, etc.), and with an abundance of plants and
                                           animals. CNAs are not only cross-trained to work in small teams, and
                                           empowered with front-line decision-making; they are required to attend
                                           to residents’ emotional needs, they treat all residents with dignity and
                                           importance, and they come to know residents on a highly interpersonal,
                                           intimate level.
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CASP Core Course 2, Section 7                           Module 2.7.1 – The Management-Resident Relationship



                                     Eden facilities are universally teeming with birds, especially parakeets,
                                finches, and canaries; dogs and cats; rabbits; sometimes fish and guinea
                                pigs; and an abundance of plants, inside and out. This is why some have
                                called EA the “Fur and Feathers” program. Residents are encouraged
                                to tend to, and even adopt, plants and animals. Pets, especially dogs,
                                sometimes even adopt residents. In fact, some canines have actually
                                learned to operate the elevators to visit their “favorite people” (Bruck,
                                1997).
                                     Thomas’ plan to uplift residents’ spirits and combat loneliness
                                through contact with animals was implemented from the very start,
                                when he introduced EA in his own Chase Memorial Nursing Home in
                                upstate New York in 1991 and said, “We’ll bring in 100 birds, two dogs,
                                four cats, three rabbits and a flock of laying hens . . . Then we’ll plow
                                the lawn and start a large organic vegetable garden outside our residents’
                                windows.” And he did. One day, the birds arrived—all 100 of them! (“An
                                Eden Alternative: A Life Worth Living, 2003).
                                     The benefits of animal-assisted therapy (AAT)—although Thomas
                                prefers to regard animal-resident interaction as a natural bonding process
                                rather than a therapy (Bruck, 1997)—are well-documented. Companion
                                animals have been shown to be effective in reducing loneliness in both pet
                                owners and in nursing home residents, as measured objectively, especially
                                for those residents who had a life history of emotional attachment to pets,
                                usually in early childhood. A significant effect on loneliness was noted
                                with as little as 30 minutes of pet contact per week (Banks & Banks,
                                2002; Banks et al., 2008; Barker, 1999). A reduction in incidence and
                                severity of depression is also likely to be associated with pet and plant
                                contact, as well as promotion of “social capital” in the form of social
                                contact and interaction (Wood et al., 2005). Some have cautioned that
                                the use of companion pets could result in zoonosis (atypical infections),
                                but only one report of such an incident surfaced during my literature
                                review, a case of atypical scabies in a nursing home with an active EA
                                program (Morley & Flaherty, 2002). Based on my personal knowledge of
                                the facility in question, I believe that other infection sources and practices
                                are a more probable cause. Animals in EA homes are generally observed
                                and tested by veterinarians, and the spread of disease is apparently not
                                a significant problem. Furthermore, state regulations do not prohibit
                                animal residence in nursing homes. Thirty-two states do not address the


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                                          issue; those that do usually have restrictions on numbers and/or kinds of
                                          animals allowed (“Quality of Life: Pets and Animal Therapy,” 2008). Pets
                                          and companion animals are generally not allowed in kitchen and dining
                                          areas during meal service times.
                                               Children, from pre-schoolers to high-schoolers, are often a key feature
                                          in Eden facilities, allowing residents to interact and share life experiences
                                          and knowledge, including playing games, sharing stories, helping with
                                          homework, and working together in the garden. I first started Eden and
                                          childcare in an LTC facility in 1989 at the Continuous Care Retirement
                                          Community in Columbia, Missouri. Resident feelings of helplessness
                                          tended to be alleviated by helping children, caring for pets and plants,
                                          and making decisions about their environment and their daily activities.
                                               “A home that opens its doors to pets, children, and the community
                                          has little room for boredom . . . . Life in an Eden home is spontaneous”
                                          (“An Eden Alternative: Life Worth Living,” 2003, [n.p.]). Meals are
                                          varied, often chosen by the residents; activities are varied; the range
                                          of visitors is varied. Each resident’s room is decorated to his or her
                                          individual tastes, and personal living spaces are thus varied. Front-line
                                          staff tend to interact frequently with residents, combating both loneliness
                                          and boredom. At the Levindale Hebrew Geriatric Center in Baltimore,
                                          Maryland, which became a registered EA facility in 2000, a family
                                          atmosphere was created by the formation of small groups of residents
                                          and staff called “kibbutzim” (plural of “kibbutz”). Kibbutzim groups
Turnover: The average percentage          met regularly to become better acquainted and discuss issues, including
of staff who stop working at a
                                          what kinds of pets to bring into the family (“Eden Alternative and
care setting each year. Virtually all
healthcare organizations (hospitals,      Neighborhood Model,” 2006).
nursing homes, assisted living
facilities, etc.) track and measure the
                                          Measurable benefits of the Eden Alternative
number of staff who stop working
(turnover) and the length of stay              Results of studies assessing the benefits of “Edenizing” or “going
of staff (retention) in the same or       Eden” vary in amount of attributed benefit, but those measuring benefits
similar jobs. A high turnover rate
in a nursing home or assisted living      objectively and over a suitable time frame consistently show positive
community means that the facility         results. In 2003, Bill Thomas’ study of his own Chase Memorial Nursing
in question is constantly hiring and
                                          Home showed a reduction in overall number of drug prescriptions,
training new caregivers.
                                          infection rates, staff turnover, and the mortality rate. Studies of the Texas
                                          EA Project involving several nursing homes charted significant decreases
                                          in in-house pressure sores, anxiolytic and antidepressant medications, and
                                          staff absenteeism. Perhaps the best indicator of success is that Eden homes


12
CASP Core Course 2, Section 7                           Module 2.7.1 – The Management-Resident Relationship



                                across the nation report waiting lists for their beds (“An Eden Alternative:
                                Life Worth Living,” 2003).
                                    In addition to quality-of-care and quality-of-life resident concerns,
                                a constant challenge for many nursing homes is staff dissatisfaction,
                                in particular among CNAs, and, more specifically, high rates of staff
                                turnover and absenteeism. In the test Eden facilities in Texas, a 25%
                                reduction in staff turnover was documented, along with a one-third
                                drop in absenteeism (Kleinman, 2009). In Bethel Lutheran Nursing
                                Home, overall drug costs were down 50%, the mortality rate was
                                reduced by 15%, and the infection rate was cut in half; benefits for staff,
                                family members and visitors were equally dramatic (“Eden Alternative
                                Philosophy: Life Worth Living,” [n.d.]). Data from Southwest Texas
                                State University showed a 50% reduction in the incidence of decubitus
                                ulcers, a 60% decrease in difficult behavioral incidents among residents,
                                a 48% decline in staff absenteeism, and an 11% drop in employee
                                accidents (Willging, 2000). A study of residents’ emotional needs showed
                                positive results on the Minimum Data Set items relating to helplessness,
                                loneliness, and boredom; the UCLA Loneliness Scale; the Geriatric
                                Depression Scale; and the Lubben Social Network Scale (Parsons &
                                Bergman-Evans, 2004). Another study showed significant improvement
                                in family satisfaction, as measured by the Family Questionnaire, after
                                implementation of EA. The improved satisfaction scores reflected greater
                                communication and interaction among families, staff, and residents
                                (Rosher & Robinson, 2009).
                                    Research by Coleman et al. (2002) showed no significant benefit of
                                EA in terms of cognition, functional status, survival, infection rate, or
                                cost of care, one year after its implementation. This was an earlier study,
                                however, and the one-year study period may have been insufficient to
                                demonstrate benefits. Rahman and Schnelle (2008) believe that the
                                culture-change movement is spreading in advance of a solid research base
                                to support its quality-of-life improvement claims. They propose specific
                                and more focused research questions that will bring to light the costs and
                                benefits of EA and other innovative models of care.
                                    Rather critical findings come from a study prepared for the Canadian
                                Union of Public Employees (CUPE) Health Care Council by CUPE
                                Research (2000) as summarized below.



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Module 2.7.1 – The Management-Resident Relationship                                      CASP Core Course 2, Section 7



                                         1. The Eden Alternative has been severely criticized by some elder
                                            advocacy groups in the United States.
                                         2. Measured benefits claimed by EA homes are based on a number of
                                            small preliminary studies that lack rigor. There is no definitive study
                                            that proves the benefits of EA (at least as of 2000, when the CUPE
                                            study was released).
                                         3. In the U.S., for-profit NHs may be promoting EA in an attempt to
                                            counter widespread accounts of resident abuse and neglect. Critics
                                            argue that no genuine improvements, such as increased staffing levels,
                                            are being made to address the serious deficiencies in elder care.
                                         4. While being promoted as inexpensive to implement and cost-effective
                                            to maintain, elder advocacy groups counter that EA cannot be
                                            implemented properly without additional money and staff. Limited
                                            resources may be redirected towards the care of animals and plants.
                                         5. In EA facilities, jobs in nursing, laundry, recreation, and food services
                                            may be reduced or eliminated as aides’ jobs are expanded to include
                                            some or all of these duties.
                                         6. Most of workers’ complaints about EA center on the issue of
Centers for Medicare and Medicaid
Services (CMS): The entities
                                            understaffing. Staffing numbers may not be increased in proportion
responsible for regulating and              to the new workload, which includes caring for plants and animals
paying nursing homes, home health           and coordinating residents’ activities with children.
agencies, and hospices for the
care of Medicare and Medicaid            7. The introduction of animals into the long term facility exacerbates
(in conjunction with the states)            existing workload problems and has implications for health and
beneficiaries. With a budget of
                                            safety. Plants and animals could be neglected as a result of insufficient
approximately $650 billion and
serving approximately 90 million            staff.
beneficiaries, CMSs plays a key          8. Workers have expressed concerns about inadequate training.
role in the overall direction of the
healthcare system.                       9. Workers can suffer from burnout if they are permanently assigned to
Consistent Assignment: Residents            a group of severely challenged residents.
seeing and receiving care from the          In spite of these concerns, issued from a public employee union’s
same caregivers (registered nurse,
licensed practical nurse, direct-care
                                        perspective, EA and other culture-change models and proposals are
worker/certified nursing assistant)     moving forward at an ever-increasing pace. One of the goals of the
during a typical work week.             Advancing Excellence campaign was to encourage nursing homes to
Consistent Assignment may also be
called Primary Assignment.              adopt consistent assignment—the practice of assigning nurse aides to
                                        the same residents on a daily or nearly daily basis. With the endorsement
                                        of the Centers for Medicare and Medicaid Services (CMS), one of the
                                        founders of the campaign coalition, one-third of the nation’s nursing
                                        homes (5,246 facilities) had registered as “official participating providers,”


14
CASP Core Course 2, Section 7                            Module 2.7.1 – The Management-Resident Relationship



                                as of June 1, 2007. Of these, 31% had committed to implementing
                                consistent assignment (Rahman & Schnelle, 2008).
                                     National directives from CMS establish “person-centered” care as
                                one of the six aims of the Institute of Medicine. It can also be seen as a
                                defining aspect of the vision in the Quality Improvement Roadmap: the
                                right care for every person every time calls for care that reliably meets the
                                patient’s needs. To achieve this vision, care must be organized around the
                                person’s, not the provider’s, needs. Person-centered care can also result
                                in better self-care. This is particularly important in chronic conditions,
                                which constitute a substantial part of the burden of illness, and cost, in
                                the Medicare population. Thus, person-centered care is an important
                                element in the improvement of quality and efficiency for all senior care
                                providers (Leavitt, 2006).
                                     A study published a year later by the Commonwealth Fund (Doty,
                                Koren, & Sturla, 2008) revealed similar nursing home adoption of
                                culture change principles and resident-centered care. The authors sent
                                questionnaires to a representative sample of 1,435 nursing homes
                                and, based on the responses, divided these facilities into three separate
                                categories: culture change adopters (31%), culture change strivers
                                (25%), and traditional nursing homes that had adopted culture change
                                principles very little or not at all (43%). Although the nursing homes in
                                general had been relatively successful at increasing resident involvement
                                in decision-making and, to a lesser extent, accommodating collaborative
                                and decentralized decision-making to empower direct-care workers, very
                                little organizational redesign or change in the physical environment had
                                occurred. Interestingly, the authors also found that “the more a nursing
                                home has adopted culture change principles, the greater the benefits that
                                accrue to it, in terms of staff retention, higher occupancy rates, better
                                competitive position, and improved operational costs” (Doty, Koren, &
                                Sturla, 2008, [n.p.]).

                                On the need for continual self-assessment and quality
                                improvement
                                   As part of her master’s degree study while at Kansas State University,
                                Kiyota ([n.d.]) lived in an EA nursing home for one month, posing as a
                                wheelchair-bound resident, to determine how the physical environment
                                was transformed to create a human habitat, and who were the agents


                                                                                                           15
Module 2.7.1 – The Management-Resident Relationship                                        CASP Core Course 2, Section 7



                                       of these changes. Eventually, the focus of her study narrowed to the
                                       question of where residents and staff found meaningful experiences
                                       in the nursing home. Residents and staff members were asked to take
                                       photographs of their favorite places in the facility. Interestingly, there
                                       were categorical differences between residents and staff in what was
                                       perceived as meaningful. Staff tended to value areas which had Eden
                                       value and were especially appreciated by family and other visitors, such
                                       as the home-like ambience of the facility’s front entrance, a bright and
                                       airy and plant-bedecked reception desk with a small water-fountain, the
                                       courtyard where children went outside to play, and the aviary in the living
                                       room. Residents, on the other hand, chose the areas they used the most
                                       and to which they were emotionally attached, such as their self-decorated
                                       rooms or a specific area in the room (e.g., a family picture display, a dog’s
                                       bed, a parakeet cage, plants, a television, and an angel that was a gift from
                                       a middle school student), the physical therapy room where the staff were
                                       particularly friendly, the quiet and serene chapel, or the candy shop where
                                       visitors came to chat. Kiyota concluded—and I completely agree—that
                                       the physical environment should be comfortable and restful, appealing
                                       and inviting, homey and well-used, and should have emotional value for
                                       staff, visitors, and residents alike. But, if the facility is to be truly resident-
                                       centered, emphasis must be placed on those areas in the facility which
                                       the residents identify as meaningful to them. LTC facilities must be
                                       continually and fervently self-assessing and searching for ways to improve
                                       residents’ quality of care and quality of life.

                                       The Green House Project
                                       The concept
                                           In spite of the recent success of the culture change movement and EA
                                       in particular, Thomas still regarded nursing homes as too institutional.
                                       Despite the growing prevalence of resident-centered care practices,
                                       nursing homes were still too impersonal and medically-focused, and their
                                       physical layouts too large and spread-out, too cold and sterile, and too
                                       resident-unfriendly, with their long corridors and semi-private rooms.
                                       Thomas believed that significant, permanent LTC reform required a
                                       radical redesign of nursing homes architecture and organization.
                                           Thomas’ conception of the ultimate, yet doable, nursing home was a
                                       typical outwardly-appearing house, in a typical residential neighborhood,


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CASP Core Course 2, Section 7                                      Module 2.7.1 – The Management-Resident Relationship



                                          each house to be occupied by six to ten residents who would otherwise
                                          be occupants of a typical traditional nursing home. Thomas coined the
                                          name “Green Houses” (GHs) for these concept homes, signifying life and
                                          continued growth. A traditional nursing home with perhaps a hundred or
                                          more residents would now consist of a group of Green Houses, in varying
                                          proximity to one another but always noncontiguous, linked together
                                          by organizational management, technology, and communication. The
                                          internal layout would be that of a warm, welcoming residential dwelling
                                          that would foster both intimacy and privacy, care and autonomy, respect
                                          and self-respect.

                                          Physical and organizational design of GHs
                                               Because GHs would be built (or perhaps sometimes remodeled)
                                          from scratch, a similar architectural design would be employed for each.
                                          Resident rooms are situated around the periphery of the house, with
                                          each room opening directly into a central activity area or common space,
                                          consisting of a large dining and activity area, kitchen, and central hearth.
                                          Thus, the distance from a resident’s room to any other area in the house,
                                          especially the central hearth area, the focal point of the home’s interior, is
                                          short and readily negotiable by walking, walker, or wheelchair. This is in
                                          marked contrast to the long corridors of the traditional NH.
                                               There is one long dining room table, large enough for all residents,
                                          two caregivers, and visitors all to sit together for dining or activities. Soft
                                          music is piped in, and flowers are on the table. Each meal is intended to
                                          be a pleasant, enjoyable, engaging social event called a convivium (“The
Caregiver: A spouse, family
member, partner, friend, or neighbor      Green House Concept,” 2008). Each resident has his or her own private
who helps care for an elder or            room with private bath, and residents are encouraged to furnish their
person with a disability who needs
assistance. Caregivers can also           rooms as they please, including their own furniture from home. There
be people employed by the older           is a sense of personal belonging. Outside entrance keys are given only to
adult, a family member, agencies, or
                                          residents and caregivers; visitors and other organizational staff, including
care settings to provide assistance
with activities of daily living (ADLs;    managers and nurses, must ring the doorbell to gain entrance.
see above) and instrumental
activities of daily living (IADLs) (see
                                          Shahbazim
below).
                                              Similar to EA facilities (GHs are an offshoot or refinement of EA
                                          homes), in GHs Certified Nursing Assistants (CNAs), or nurse aides,
                                          assume responsibility for nearly all the residents’ needs. However, in a
                                          GH, the CNA’s responsibilities are broadened to include housekeeping


                                                                                                                       17
Module 2.7.1 – The Management-Resident Relationship                                    CASP Core Course 2, Section 7



                                       chores, meal preparation, and managing logistics. In fact, these do-it-
                                       all caregivers are the only staff present in a GH except for emergencies,
                                       and nurse, physician, or therapist visits (“Green House Project,” 2004).
                                       Once lowest on the organizational ladder and now, in many respects,
                                       the highest, these omnipresent workers are referred to by Thomas as
                                       Shahbazim (plural of Shahbaz), a Persian term meaning “royal falcon.”
                                       With an underlying belief that human life is sustained by affection,
                                       Shahbazim are trained and required to befriend and sustain the elders
                                       with whom they work, through the practice of convivium (pleasant
                                       dining), homemaking, and befriending (Shapiro, 2005).
                                            Shahbazim who are not CNAs upon hire must undergo training and
                                       become state-certified. All GH Shahbazim receive 120 hours of training.
                                       The first 40 hours are administered by GH staff and focus on GH
                                       philosophy, policies and procedures, team-building and empowerment,
                                       and dementia care. The remaining 80 hours consist of classes on CPR,
                                       culinary skills, food safety, and home repair (“Green House Project,”
                                       2004).

                                       An elder country club
                                           Plants, animals, and children are part of GH design. All GHs have a
                                       screened-in porch and outdoor garden area. A nursing station is required
                                       by some state statutes, but these are neatly tucked away out of sight,
                                       usually in a utility or staff break room. Residents choose their activities,
                                       mealtimes, and degree of participation in household tasks, with no strict
                                       schedules (Rabig et al., 2006). A GH in Lincoln, Nebraska, even offers
                                       happy hour two afternoons a week, where residents can purchase an
                                       alcoholic beverage, country-club-style (“Green House” Communities
                                       Reinvent Elder Care,” 2008).

                                       Warm, smart, and green
                                           The idea of creating GHs that are warm, smart and green is, again,
                                       that of Bill Thomas.
                                           Warm: Thomas envisioned the houses as radiating warmth, created
                                       by the floor plan, the décor, the furnishings, and the people within them.
                                       The goal is to create and maintain human warmth.




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CASP Core Course 2, Section 7                                   Module 2.7.1 – The Management-Resident Relationship



                                            Smart: The use of cost-effective and smart technology such as
                                        computers, wireless pagers, electronic lifts, and adaptive devices cultivates
                                        a sense of resident personal belonging, meaning, and purpose in life.
                                            Green: Sunlight, plants, and access to outdoor spaces create
                                        connections with the living world and its living gifts of life, laughter, and
                                        companionship (Thomas, 2006; “The Green House Concept,” 2008).

                                        Green House development and growth
                                             The first GH, which opened in 2003, was actually a complex of four
                                        GHs, on the campus of United Methodist Senior Services in Tupelo,
                                        Mississippi (Woodrick, 2003), soon followed by six more homes in
                                        Tupelo. With the much publicized success of the Tupelo project, and a
                                        $10 million grant from the Robert Wood Johnson Foundation, many
                                        more have been built and put into use around the country. On December
                                        5, 2008, on target with its Green House Replication Project, the fiftieth
                                        GH opened in the United States, one year earlier than anticipated (“The
                                        Green House Replication Initiative,” 2008; “Green Houses Growing in
                                        Numbers Across the States,” 2008). The homes are built by NCB Capital
                                        Impact Development Corporation, under the direction of Bill Thomas
                                        and the Green House Project Team (The Center for Growing and
Skilled Care/Nursing Care: A            Becoming). The 2006 published goal was to have, within five years, at
level of care that includes help        least one GH in every state (“Green Houses Growing in Numbers Across
with more complex nursing tasks,
such as monitoring medications,         the States,” 2008).
giving injections, caring for wounds,        “The Green House” is a trademarked model. Any nursing care facility
and providing nourishment by
                                        bearing that label must meet certain standards for construction, living
tube feeding (enteral feeding).
It also includes therapies, such as     arrangements, care, and other features” (DeBolt, 2008, [n.p.]). Because
occupational, speech, respiratory       GHs are licensed as nursing homes or skilled nursing facilities and meet
and physical therapy. This care
can be given in a patient’s home
                                        all federal regulations, they qualify for Medicaid reimbursement and can
or in a care setting. Most insurance    largely operate within Medicaid payments, with the exception of a few
plans require at least some level of    states where Medicaid reimbursement is much below average (Jenkens,
need for skilled care, requiring the
services of a licensed professional     [n.d.]).
(such as a physician, nurse, or
therapist), before they will cover      The Wellspring Model
other home-care services.
                                            In keeping with the overall theme of the culture change movement,
                                        and with many of the principles and practices of the Eden Alternative
                                        and the Green House project, the Wellspring Model’s major emphasis
                                        is on quality improvement through both improved clinical care and


                                                                                                                   19
Module 2.7.1 – The Management-Resident Relationship                                      CASP Core Course 2, Section 7



                                       organizational culture change. The Wellspring model is a product of
                                       Wellspring Innovative Solutions, Inc., arising out of an alliance of 11
                                       freestanding, nonprofit nursing homes in eastern Wisconsin (Stone et al.,
                                       2002). The organization was formed in 1994 and fully implemented in
                                       1998. Within its 11 otherwise independent nursing homes, it espoused
                                       six core elements: (Reinhard & Stone, 2001):
                                       • An alliance of nursing homes with top management committed to
                                            making quality of resident care a top priority;
                                       • Shared services of a geriatric nurse practitioner, who develops training
                                            materials and teaches staff at each nursing home how to apply
                                            nationally recognized clinical guidelines;
                                       • Interdisciplinary “care resource teams” that receive training in a
                                            specific area of care and are responsible for teaching other staff at their
                                            respective facilities;
                                       • Involvement of all departments within the facility and networking
                                            among staff across facilities to share what works and what does not
                                            work on a practical level;
                                       • Empowerment of all nursing home staff to make decisions
                                            that positively affect the quality of resident care and the work
                                            environment; and
                                       • Continuous reviews by CEOs and all staff of performance data on
                                            resident outcomes and environmental factors relative to other nursing
                                            homes in the Wellspring alliance.
Nurse Practitioner (NP): A                  The best known study of outcomes, assessing the 11 Wisconsin
Registered Nurse with advanced
education and training. NPs can        pilot facilities only, seems to be the report by Stone et al., with support
diagnose and manage most               provided by the Commonwealth Fund (Stone et al., 2002; “Improving
common, and many chronic, illnesses.
                                       the Quality of Nursing Home Care: The Wellspring Model,” 2004).
They do so alone or in collaboration
with the healthcare team. NPs can      Results were generally positive:
prescribe medications and provide      • Retention rate for Wellspring staff increased slightly.
some services that were formerly
permitted only to doctors. There
                                       • Wellspring facilities performed better on annual state inspections.
are a number of types of nurse              The number of nursing homes with severe deficiencies fell from 22%
practitioners (geriatric, adult,            to 0.
psychiatric-mental health) who work
with older adults.                     • Evidence suggests that Wellspring staff are more vigilant in assessing
                                            problems in quality and take a more proactive approach to resident
                                            care.
                                       • Wellspring residents appear to enjoy a better quality of life.



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CASP Core Course 2, Section 7                           Module 2.7.1 – The Management-Resident Relationship



                                •   Implementation was essentially cost neutral. Costs were generally
                                    neither more nor less.
                                    In the words of Roman emperor/philosopher Marcus Aurelius, “Dig
                                within. Within is the wellspring of Good; and it is always ready to bubble
                                up, if you just dig” (“Wellspring Definition,” 2009, [n.p.]).

                                Other Culture Change Models or Paradigms
                                    Multiple other culture change proposals and programs have also
                                surfaced. A few of them are briefly described below.

                                Eldershire
                                     The Eldershire Community is also a product of Dr. Bill and Jude
                                Thomas’ imagination and dedication to expanding and enhancing the
                                quality of life of elders and their families and caretakers. It is a planned
                                intergenerational community, designed to promote an active and ongoing
                                exchange among the generations. An Eldershire Community contributes
                                to bettering the quality of life by strengthening and improving the
                                means by which 1) the community protects, sustains, and nurtures its
                                elders, and 2) the elders contribute to the well-being and foresight of the
                                community (“Basic Tenets of the Eldershire Vision,” 2008). An Eldershire
                                is a community where residents work together to effect the realization of
                                well-being, the elements of which include identity, autonomy, security,
                                connectedness, meaning, joy, and space (“Basic Tenets of the Eldershire
                                Vision,” 2008). Eldershire residents are empowered to collaborate in the
                                design and ongoing development and management of their communities.
                                Private homes are “grouped together with common indoor and outdoor
                                spaces, including walking spaces, gardens, and a central house that
                                will offer shared meals, meeting spaces, recreational activities and basic
                                services.” Communities will have “shared values, including respect for the
                                contributions made by elders, accessible housing design, economic and
                                environmental sustainability, commitment to life-long learning, and self-
                                governance” (“Dr. Bill Thomas to Speak at Vital Aging Network Forum
                                on February 14,” 2006, [n.p.]).

                                Elder cohousing
                                   A multitude of cohousing units have sprung up across the country.
                                These are planned communities that are nearly identical to Eldershires,


                                                                                                          21
Module 2.7.1 – The Management-Resident Relationship                                       CASP Core Course 2, Section 7



                                         in that they offer six common characteristics: participatory process,
                                         design for community, shared common facilities, resident management,
                                         collaborative decision-making, and no shared community economy
                                         (i.e., not income-sharing) (Abraham & deLaGrange, 2006). Unlike
                                         Eldershire Communities, they tend to enlist elders only, although they
                                         may be situated adjacent to multi-generational communities; and they
                                         tend to focus more heavily on shared values, such as spiritual growth
                                         and sharing, a holistic view of aging, and meta-issues such as illness
                                         and dying. Unlike Eldershires, they tend perhaps to offer a little more
                                         planned uniformity and less diversity. But their practical assets are nearly
                                         identical to Eldershires, emphasizing resident empowerment, mutual
                                         respect, shared values, active lifestyle, social integration, some centralized
                                         or shared services, economic and environmental sustainability, and
                                         general social consciousness. Depending on the culture of the community
                                         and the choice of shared values, these Elder cohousing communities
                                         would seem immensely appealing to many of this country’s emerging
                                         boomers (“Building Premiere Retirement Communities for Today’s Active
                                         Seniors,” 2007).
                                              The first cohousing communities in this country were organized in
                                         the late 1980s, patterned after the Scandinavian model. They have also
Continuing Care Retirement               been a presence in Denmark since the late 1980s. As of about 2006,
Community (CCRC): A housing
                                         there were roughly 5,000 people living in 80 cohousing communities
option that offers a range of
services and levels of care.             across the United States. As elder cohousing communities are deliberately
Residents may first move into an         small in size, rarely exceeding 40 households per neighborhood, their
independent living unit, a private
apartment, or a house on the             residents have the opportunity to know one another well and develop
CCRC campus. The CCRC provides           closer relationships. In contrast, some retirement communities may
social and housing-related services
                                         contain as many as 500 to 10,000 households. Many other pre-planned
and may have an assisted living
residence and a nursing home, often      communities, such as continuing care retirement communities (CCRCs)
called the healthcare center, on the     do not allow residents the opportunity to participate in the community-
campus. If and when residents can
no longer live independently in their
                                         envisioning process, where they develop deeper connections with other
apartment or house, they move into       residents and the community as a whole (“Elder Co-Housing: Building a
assisted living (unless it is provided   Collaborative Elderhood,” 2006).
in their apartment or house) or the
nursing home.
                                         The Pioneer Network
                                             The Pioneer Network began in 1997, when a group of 33 LTC
                                         professionals met in Rochester, New York, to discuss novel approaches to
                                         LTC that, whether knowingly or not, would parallel the principles of the


22
CASP Core Course 2, Section 7                                     Module 2.7.1 – The Management-Resident Relationship



                                         culture change movement. Susan Misiorski (2003), the Network’s CEO,
Assisted Living/Personal Care
                                         envisions a culture of aging that is life-affirming, satisfying, humane,
Homes/Residential Care Facilities:       and meaningful in whatever setting Elders live—home, assisted living,
A state-regulated and -monitored
                                         or nursing home. The Pioneer Network is committed to working with
residential long-term care option
that may have different names,           state culture change coalitions that currently exist in 33 states, to help
depending on the state. Assisted         create home and community and advocate for change (Lieblich, 2008). It
living provides or coordinates
oversight and services to meet           seeks “a transformation of the entire culture of aging through education,
residents’ individualized, scheduled     advocacy, leadership development, and resource support” (Nissenboim,
needs, based on the residents’
assessment and service plans,            2004, [n.p.]). The Pioneer Network advocates for elders across the
and their unscheduled needs as           spectrum of living options (which are often dictated by differing levels
they arise. There are more than
                                         of medical care required); and is working towards a culture of aging
26 designations that states use to
refer to what is commonly known as       that supports the care of elders in settings where individual voices are
“assisted living.” There is no single    heard and individual choices are respected, whether in nursing homes,
uniform definition of assisted living,
and there are no federal regulations     transitional care settings, or wherever home and community may be.
for assisted living. In many states,     Cultivating and maintaining a community of relationships are important
most assisted living is private pay.
Be sure to check with your state         at every phase of life, but are especially critical for elders and the aging,
about any waiver programs that           many of whom may need a network of partners to live life to its fullest.
may be available through Medicaid
to pay for the care provided in
                                         The Pioneer Network provides a global perspective for LTC facilities
assisted living.                         to be the senior advocate beyond their four walls (“Pioneer Network:
Independent Living: A residential        Culture Change in medicaid,” 2009).
location (including rental-assisted or
market-rate apartments or cottages)
that may or may not provide              Continuing care retirement communities
hospitality or supportive services.          Also sometimes called life care communities, CCRCs tend to be
Residents can choose which services
they want. Additional fees may be        large complexes that provide resident housing over a range of care-
charged for some services.               dependency, from independent living units, to assisted living units,
Long-Term Care (LTC): A term
                                         to nursing home accommodations. Independent living units may be
used to describe the care needed
by someone who must depend on            small or large apartments, cottages, cluster homes, or single-family
others for help with daily needs.        dwellings. Assisted living quarters are usually small studio or one-
LTC is designed to help people with
chronic health problems or dementia      bedroom apartments. Nursing home accommodations historically have
to live as independently as possible.    been one-room units for two or more persons. As these facilities are all
Although many people think that
long-term care is provided only in a     on the same grounds, all residents are nearby and can be transferred up
nursing home, in fact most long-term     or down the range of required services as needed, much like aging in
care is given by family caregivers in
the elder’s home.
                                         place. For this reason, CCRCs have been popular with some, although
                                         they tend to be expensive, with entrance fees ranging up to as much as
                                         $400,000 and monthly payments ranging from $200 to $2,500. Some
                                         are affiliated with a specific ethnic, religious, or fraternal order, where
                                         membership may be a requirement for admission (“Other Options:


                                                                                                                       23
Module 2.7.1 – The Management-Resident Relationship                                      CASP Core Course 2, Section 7



                                         CCRCs,” 2004). Furthermore, these communities do not lend themselves
                                         easily to culture change transformation, with its emphasis on small size,
                                         resident empowerment and privacy, and organizational reform. The
                                         continued and rapid growth of the various culture change models will
                                         force these more traditional and outmoded multifaceted communities to
                                         either rebuild or remodel, or become extinct. As admission to a CCRC
                                         is usually a one-time event, all three levels of care must eventually adopt
                                         resident-centered care principles and practices, including perhaps elder
Medicaid: The federally- and state-
supported, state-operated public         cohousing communities and Green House construction and practice
assistance program that pays for         implementation.
healthcare services to low-income
people, including older adults or
disabled persons who qualify.            The Evercare care model
Medicaid pays for long-term nursing           Evercare is included here because it is a rather innovative approach
home care and some limited home
health services, and it may pay          to helping elderly persons or those with chronic or debilitating illnesses,
for some assisted living services,       and because it usually involves and is focused on the elderly. Organized
depending on the state. It is the
                                         by two Minnesota nurse practitioners over 20 years ago, Evercare is an
largest public payer of long-term
care services, especially nursing        agency that assigns a nurse practitioner to every Evercare member, to
home care. Each state can determine      assist that member in negotiating the healthcare system. Evercare nurses
the breadth and extent of what
services it will cover above a certain
                                         help coordinate care by collaborating with physicians, nursing homes,
federally required minimum.              and families. They are trained to deliver personalized and compassionate
Medicare: The federal program            care, both to persons in nursing homes and to individuals living
that provides medical insurance for
                                         independently at home. They serve hundreds of thousands of people in
people aged 65 and older, some
disabled persons, and persons with       38 states through Medicare and Medicaid health plans (“Evercare: About
end-stage renal disease. It provides     Us,” 2008).
physician, hospital, and medical
benefits for individuals over age 65,
or those meeting specific disability     Coming Home Program
standards. Benefits for nursing home          “The Coming Home Program is designed to bring the benefits of
and home health services are limited
to short-term rehabilitative care.       assisted living to low-income, frail seniors living in rural areas” (“Coming
Different parts of Medicare cover        Home Program,” 2008, [n.p.]). Assisted living facilities may be scarce or
specific services if you meet certain
                                         absent in sparsely populated areas of the country, and many charge $100
conditions. For detailed information,
visit the website (www.medicare.         or more per day, which is out of the price range of many rural seniors.
gov; retrieved on October 1,             As a result, many of these seniors must either relocate some distance to a
2009) or call 1-800-Medicare for
assistance.
                                         place where assisted living services are available, or be prematurely placed
                                         in nursing homes. The Coming Home Program seeks to rectify this
                                         situation by providing technical assistance and grants to both providers
                                         and states.




24
CASP Core Course 2, Section 7                           Module 2.7.1 – The Management-Resident Relationship




Summary
                                    The culture change movement is growing, perhaps slowly, since
                                traditional LTC is a “mom and pop” family business. But the movement
                                will grow faster now that CMS has trained federal and state surveyors in
                                “Resident-Centered Care” evaluation, eliminating opposition and more
                                than a few barriers. The greatest remaining barrier appears to be fear
                                of change and of potential costs involved. But implementation can be
                                phased in, even as a preface to the seemingly drastic structural rebuilding
                                in the form of Green Houses, Pioneer Network Affiliated Partners, and
                                co-habitational communities.
                                    It is fortunate for our generation of LTC professionals that culture
                                change movements are challenging, tearing apart, and rebuilding the
                                traditional nursing homes built in the 1950s and 1960s. With CMS
                                behind our movement, the time seems right for these facilities to
                                undergo a culture change reformation. From what has been discussed
                                here, it would seem imprudent to rebuild one outdated facility in the
                                place of another. It would seem much wiser to build several smaller,
                                more resident-accessible homes, with private rooms and a residential
                                appearance and atmosphere. However, facilities located at Anywhere,
                                USA may not have the funding to rebuild new, “culturally dynamic”
                                physical plants. The Pioneer Network has an excellent approach to
                                changing a facility’s resident and staff relationships through a process of
                                systematic change. The Network’s high-level review outlined below can be
                                used to create a baseline plan for change.

                                Institution-Directed Culture
                                •   Staff provide standardized “treatments” based upon medical diagnosis.
                                •   Schedules and routines are designed by the institution and staff, and
                                    elders must comply.
                                •   Work is task-oriented and staff rotate assignments.
                                •   As long as staff know how to perform a task, they can perform it on
                                    “any patient” in the home.
                                •   Decision making is centralized.
                                •   There is a hospital environment.
                                •   Structured activities are available when the activity director is on duty.
                                •   There is a sense of isolation and loneliness.



                                                                                                           25
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  • 1. CASP Core Course 2 Section 2.7 Integrating Gerontological Principles with Management 2.7.1. The Management-Resident Relationship 2.7 Creating, Certifying, and Connecting Innovative Leaders in Aging Services
  • 2. Module 2.7.1 The Management-Resident Relationship Table of Contents The History of Long-Term Care’s Administrative Approach to “Resident Care”: The Basis for Culture Change ....................................................................................................... 4 The Culture Change Movement.......................................................................................................... 6 • The Eden Alternative .............................................................................................................. 8 • The Green House Project ........................................................................................................ 16 • The Wellspring Model............................................................................................................. 19 • Other Culture Change Models or Paradigms ........................................................................... 21 CASP Core Course 2, Section 7 Creating, Certifying, and Connecting Innovative Leaders in Aging Services
  • 3. CASP Core Course 2, Section 7 Module 2.7.1 – The Management-Resident Relationship Editor’s Note Successful management is essential to achieving and maintaining quality in any business; and, in the field of aging services, The Management-Resident Relationship is at the heart of successful management. In Module 2.7.1, Kendall Brune presents a comprehensive and inspiring analysis of how that relationship promotes quality in residential facilities for the elderly. After summarizing the historical transition from a medical model to a social model of care in nursing homes and other long-term care facilities, Dr. Brune focuses his discussion on resident-/person-centered care and the exciting concept of culture change: “the national movement for the transformation of older adult services, based on person-directed values and practices, where the voices of elders and those working with them are considered and respected.” Culture change, however, is much more than just an idea couched in impressive-sounding words. In this module, you will be introduced to a variety of models in which the theory has been applied to the daily operations of aging services organizations, including: • The Eden Alternative (the earliest and perhaps the best-known culture change paradigm), • The Green House Project, • The Wellspring Model, • Eldershire, • Elder cohousing, • The Pioneer Network, • Evercare, and • The Coming Home Program. Dr. Brune describes the approaches these programs use to deliver quality care and services, presenting numerous modalities for your consideration. His listing of the central elements of the culture change movement (as summarized by Calkins in 2002) and his contrast of the characteristics of institution- vs. person-directed care, embody precepts that you can apply to all of your organization’s residents/clients, personnel, and operations. Dr. Brune’s list of references gives you dozens of documents available online for further reading, with still more offered in his selection of Learning Resources. The Learning Resources also include an extensive glossary of terms commonly used in the field of long-term care and 1
  • 4. Module 2.7.1 – The Management-Resident Relationship CASP Core Course 2, Section 7 aging services, as well as Dr. Brune’s own diagram of a dynamic management-resident relationship for building sustainable senior-engaged communities. About the Author Dr. Kendall Brune, President of Future Focus Community, LLC, provides senior leadership and oversight for development, owned, and leased properties. He is a senior housing expert and an executive instructor to leaders in the field, and he assists healthcare developers and providers in identifying market growth opportunities. Dr. Brune has more than 25 years of experience in the healthcare field and has been on the leading edge of culture change in the healthcare delivery system for the elderly in the United States. His academic credentials include his designation as a Fellow with the American College of Healthcare Administrators, his doctorate in healthcare administration, and his authorship of two practical healthcare books for the senior care field. He currently serves as an adjunct professor of senior healthcare administration for two universities, A.T. Still University and the University of North Texas. Dr. Brune also serves ATSU as a member of the medical school faculty board and a curriculum committee member for Geriatric Health Management. During his graduate work with Project Life and the Center for the Study of Aging at the University of Missouri-Columbia, he participated in the national culture change phenomenon of the Eden Alternative as a researcher, administrator, and disciple, from its infancy through putting it into practice in one of Missouri’s first affiliated facilities. To further develop the Eden vision, his practical experience as a licensed long- term care administrator has allowed him to deliver improvements and culture change through all continuum of care levels, from independent senior housing, through assisted care and skilled nursing facilities, to a major hospital sub-acute care facility. He continues to serve as a mentor and educator for the Eden Alternative program. He has applied these philosophies of care in the development and operation of 19 long-term care facilities; representing $150 million of construction management. All of these facilities are still operating successfully today. Dr. Brune obtained his undergraduate degree in healthcare administration from the University of Missouri-Columbia, an 2
  • 5. CASP Core Course 2, Section 7 Module 2.7.1 – The Management-Resident Relationship M.B.A from William Woods University, and a Ph.D. in healthcare administration from Kennedy Western University. He is currently completing a Ph.D. in applied gerontology from the University of North Texas in Denton. Learning Objectives • You will understand the driving forces changing the Resident/ Management Relationship. • You will learn about “Culture Change.” • You will learn about “Resident- or Person-Centered Care.” • You will learn how to communicate “Quality Care” to your customers: o CMS directives for culture change; o Medicare reporting mechanism. • You will learn what wellness is all about. • You will learn about creative programming to engage seniors. • You will learn about community engagement. 3
  • 6. Module 2.7.1 – The Management-Resident Relationship CASP Core Course 2, Section 7 Overview To discuss the relationship between residents and the management team, we must first review the transition from a medical model to a social model of care. Long-term care (LTC) management models were developed for a very autocratic and hierarchical style of management based in the 1960s. Those facilities were built on the model of hospitals (after the Hill-Burton Act of 1946), where the major focus was on healing, or palliation of, physical ailments and, in the case of residents with dementia, mental impairment. Residents were—and, for the most part still are—isolated from family, friends, and community, often without any view of the outside world. Baby Boomers today will not tolerate such an environment for their parents, or themselves. A cultural revolution called “Resident-Centered Care” started to occur and change the Resident/Management Relationship. “Culture change” is the common name given to the national movement for the transformation of older adult services, based on person-directed values and practices where the voices of elders and those working with them are considered and respected. In the management process, decision-making is pushed down to the lowest level of front line staff. Administrators have become “facilitators of process improvement” and community advocates for senior consumerism. We are now exploring new ways to enhance revenue streams that entail home care, private-duty nursing, outpatient therapy services, spa and wellness clinics, fitness and pool centers for seniors, and any other creative outreach program that engages seniors to return continuously to a facility. This module will explore the history of culture change and the process of creating a new “well-being and connectivity” model for senior retirement communities. The Resident-Management Relationship The History of Long-Term Care’s Administrative Approach to “Resident Care”: The Basis for Culture Change The development of skilled and intermediate care nursing facilities in the United States during the 1950s and 1960s served an honorable purpose. Facilities of the pre-1990 era and, indeed, the vast majority even today, serve the “medical” needs of those unfortunate individuals who require skilled nursing care, i.e., medical care. The organizational 4
  • 7. CASP Core Course 2, Section 7 Module 2.7.1 – The Management-Resident Relationship structure of most facilities continues to be patterned after the hospital’s hierarchical, departmentalized, top-down management scheme, similar Abuse/Elder Abuse: Any knowing, intentional or negligent act by a to most American corporations. In short, hospitals, nursing homes, and caregiver or any other person retirement communities, have been designed to be efficient, standardized, that causes harm or a serious risk cost-driven, and regulation-compliant corporate institutions. of harm to a vulnerable older adult. Types of elder abuse may Although not all nursing homes prior to the mid-1990s were include physical abuse–inflicting, or sterile cinder-block structures, they did almost invariably provide the threatening to inflict, physical pain or injury on a vulnerable elder, or same internal atmosphere, where front-line staff and residents alike depriving him or her of a basic followed very structured routines with little opportunity for personal or need; emotional abuse–inflicting professional growth or self-expression. Residents were and, for the most mental pain, anguish, or distress on an elder person through verbal or part still are, isolated from family, friends, and community, often without nonverbal acts; sexual abuse–non- any view of the outside world. Over half of nursing home residents consensual sexual contact of any spent much of their day in restraints, a practice which was condoned by kind; exploitation–illegal taking, misuse, or concealment of funds, regulators until the passage of the Nursing Home Reform Act as part of property or assets of a vulnerable OBRA in 1987 (Calkins, 2002). Traditionally, there has been little regard elder; neglect–refusal or failure by those responsible to provide for residents’ privacy, and a high level of neglect for their emotional, food, shelter, health care, or social, and spiritual needs. Many residents just shut down, which, for protection for a vulnerable elder; some, hastens their physical decline. and abandonment–the desertion of a vulnerable elder by anyone who For most of us studying applied gerontology, this is not news. It is has assumed the responsibility for safe to say that the “great dread” of becoming a dependent senior was to care or custody of that person. The specificity of laws varies from state be put in a nursing home, a sentiment shared by both residents and their to state (see National Center on loved ones. In a PSB Online “NewsHour” report, Dentzer (2002) cited a Elder Abuse at www.ncea.aoa.gov; poll taken by NewsHour, the Kaiser Foundation, and the Harvard School retrieved on October 2, 2009). of Public Health, which revealed that 1) almost half of all Americans Resident: A person who lives in a long-term care setting, such as thought people were worse off after going into nursing homes than before a nursing home or assisted living they went in, 2) almost four in ten nursing home residents reported being community. dissatisfied with their care and, 3) one in four Americans reported that a Nursing Home or Skilled Nursing Facility (SNF): A residential care nursing home resident they knew had been badly treated or abused by the setting that provides 24-hour-care staff. Furthermore, a Congressional report released just prior to Dentzer’s (all day and night) to individuals who are chronically ill or disabled. article stated that state inspectors had cited nearly one in ten nursing Individuals must be unable to care homes for instances of serious abuse (“Nursing Home Abuse News,” for themselves in other settings or 2001). need extensive medical and/or skilled nursing care. As background information, in a 1999 National Nursing Home Survey, the National Center for Health Statistics reported that there were 1.6 million nursing home residents (usually referred to as “patients”), living in 18,000 nursing homes nationwide, with an 87% occupancy rate, and an average current resident length of stay of 892 days (nearly 2½ 5
  • 8. Module 2.7.1 – The Management-Resident Relationship CASP Core Course 2, Section 7 years!) (“Nursing Home Care,” 2008). A 1997 National Nursing Home Survey reported that approximately 4.3 % of the US population age 65 or older were nursing home residents, about half of whom were age 85 or older; and about 75% of these 65-and-over residents required assistance in three of more activities of daily living (ADLs). Forty-two percent of all nursing home residents were diagnosed with dementia (Gabrel, 2000). According to Dr. Bill Thomas, founder of the Eden Alternative, “Any adult in America who reaches the age of 65 has a 50% chance of spending Activities of Daily Living (ADLs): time, significant time, in a nursing home. That’s a vast proportion of our Daily functions such as getting society. . . . The only other segment of our society that is more likely to dressed, eating, taking a shower or bath, going to the bathroom, be institutionalized are convicted criminals. . . . So here we have a society getting into a bed or chair, or that used an institutional pattern for convicted violent felons and our walking from place to place. The amount of help a person needs with frail mothers and fathers. And that is a losing proposition in the 21st ADLs is often used as a measure to century” (“Thou Shalt Honor . . . The Eden Alternative,” 2002, [n.p.]). determine whether he or she meets And it is certainly not an option for many of the emerging Baby Boomer the requirements for long-term care services in a nursing home as well as population, who will demand more and much better options for their government-subsidized home- and LTC needs. Thomas predicts that the Boomer generation will completely community-based services (also see Instrumental Activities of Daily wipe out the traditional, institution-type nursing home, or at least that is Living). his goal! With this historical and statistical background, it seems that a major organizational reformation was brewing a perfect storm for change. Now let’s begin to talk about how the resident and management relationship process has changed in the continuum of senior care and housing. The Culture Change Movement A paradigm shift in resident care occurred in the form of the culture- change movement in the LTC field (Brune, 1992; Brune, 1995). We can see that the Baby Boomers are coming, and we’re all aware that the sheer number of retirees will strain our limited staff, plant, financial, and emotional resources in the near future. Boomers will bring with them new technologies and more diverse expectations. We must meet these expectations and use technology to understand future demands by means of dynamic assessment of service desires. In actuality, the distinction of being the earliest recent culture change movement could be given to the Gray Panthers, organized in 1970 by Maggie Kuhn. This liberal activist organization is still alive and well today, advocating for a range of social and political causes, many relating 6
  • 9. CASP Core Course 2, Section 7 Module 2.7.1 – The Management-Resident Relationship to healthcare, and including ageism and the rights and interests of seniors (“Gray Panthers: Issue Resolutions Summary,” 2009; “Gray Panthers,” [n.d.]). In the context of our discussion here, “culture change’” is the term commonly used to describe the national movement for the Culture Change: The common name transformation of older adult services, based on person-directed values given to the national movement for the transformation of older adult and practices where the voices of elders and those working with them services, based on person-directed are considered and respected. Core person-directed values are “choice, values and practices, where the voices of elders and those working dignity, respect, self-determination, and purposeful living” (“What Is with them are considered and Culture Change?,” 2008, [n.p.]). It is “an effort to radically transform respected. Core person-directed the nation’s nursing homes by delivering resident-directed care and values are choice, dignity, respect, self-determination, and purposeful empowering staff ” (Rahman & Schnelle, 2008, p. 142). Although living. Culture change transformation the first real impetus for nursing home reform came in 1991 with Bill supports the creation of both long- Thomas’ Eden Alternative model, the culture change movement is and short-term living environments as well as community-based generally thought to have begun in 1997, following the first meeting settings where both older adults of the nursing home Pioneers (now known as the Pioneer Network), and their caregivers are able to express choice and practice self- during which the term “culture change” was coined. The University of determination in meaningful ways Missouri-Columbia’s “Project Life” was responsible for the publication at every level of daily life. Culture of Thomas’s first book, The Eden Alternative, and I was fortunate enough change transformation may require changes in organization practices, to be working for Dr. Stan Ingman at UM-C’s Center for the Study of physical environments, relationships Aging at the time of this project (1988-1992). The Eden Alternative at all levels, and workforce models, leading to better outcomes for resident philosophy challenged administration to identify who residents consumers and direct-care workers “had been” and how they could still add value to the greater community without being costly for providers. in which they were engaged. Co-habitational communities like Heritage Person-Directed Care/Person- of Green Hills, located in Reading, Pennsylvania, focus on the holistic Centered Care: An approach to care that honors and respects the philosophy that each person has a personal path to wellness through voices of individuals and those social, spiritual, physical, intellectual, emotional, and vocational activity working closest with them. It involves a continuing process of listening, (“Building Premiere Retirement Communities for Today’s Active trying new approaches, seeing how Seniors,” 2007). they work, and changing routines With various health care providers developing their own branded and organizational approaches in an effort to individualize and de- versions of resident-centered care models, “culture change” has become institutionalize the care environment a generic term, encompassing a host of LTC concepts and models, (e.g., nursing home or assisted living facility). including the following: 1. Resident-centered care; 2. Resident-directed care; 3. Eden Alternative; 4. Green House Project; 7
  • 10. Module 2.7.1 – The Management-Resident Relationship CASP Core Course 2, Section 7 5. The Wellspring Model; 6. The Pioneer Movement; 7. Person-centered care; 8. Quality-Improvement Organizations; 9. Advancing Excellence campaign; 10. Culture of safety; 11. Best friends approach; 12. Validation therapy; Geriatrician: A medical doctor with 13. Activity-focused care; special training in the diagnosis, 14. Positive Interactions Program; and treatment, and prevention of illness and disabilities in older adults 15. Beyond the Green House Project Care Model (Nissenboim, 2004). (see American Medical Directors Calkins (2002) sums up the culture change movement as Association at www.amda.com; 1. Respecting the individual needs and desires of each person (even retrieved on October 2, 2009). The GREEN HOUSE® Model: A people with dementia, including the right to control decisions small, intentional (“purpose-built”) that are made about their lives; community for a group of elders 2. Honoring the life patterns and accomplishments of every person and staff. A Green House residence is designed to be a home for six to within the setting, residents and staff alike (staff means, especially, ten elders needing skilled nursing or nurse’s aides, traditionally the lowest in the organizational assisted living care. The purpose of hierarchy); the Green House is to be a place where elders can receive assistance 3. Supporting opportunities for continued growth; and support with activities of daily 4. Enabling continued productive contributions to their community living and clinical care, without the assistance and care becoming the (including experiential sharing, i.e., legacy); focus of their existence. 5. Encouraging meaningful connections with family and the Provider: Typically a professional community (to combat feelings of loneliness and helplessness); healthcare worker, agency, or organization that delivers health 6. Fostering fun (to combat resident boredom and empowering care or social services. Providers staff ); and may be individuals (physicians, 7. Restructuring of staffing roles and relationships (team approach, nurses, social workers, and others), organizations (hospitals, nursing consistent assignment of staff, empowerment of front-line staff ). homes, assisted living facilities, The ultimate goal is to achieve maximal quality of life, for both or continuing care retirement residents and staff. communities), agencies (e.g., home care and hospice), or businesses that To begin understanding current philosophies of resident/ sell healthcare services or assistive management relationships, we must review some present-day models of equipment (e.g., colostomy care supplies, wheelchairs, walkers, etc). resident care. The Eden Alternative The Eden Alternative (EA), proposed by geriatrician and nursing home physician William Thomas in 1991, was the earliest of the culture 8
  • 11. CASP Core Course 2, Section 7 Module 2.7.1 – The Management-Resident Relationship change models. It also has been the most influential, successful, and widely publicized; indeed it has become the model of models, and its basic tenets are interwoven into almost all other proposed models of care. It has led Dr. Thomas to conceive several offshoot or successor models, including the Green House Project, the Eden at Home and the Eden at Home Embracing Elderhood concepts, and Eldershire communities. Dr. Thomas formulated the Eden Alternative concept while he was the house physician for a nursing home in upstate New York, the name Eden inspired by the Biblical garden that was created to help ease Adam’s loneliness. Thomas noted that the majority of residents in his nursing home suffered from what he called “the three plagues”—loneliness, helplessness, and boredom—as described in the first of the ten Eden Alternative Principles: 1. The three plagues of loneliness, helplessness, and boredom account for the bulk of suffering among our Elders. 2. An Elder-centered community commits to creating a Human Habitat where life revolves around close and continuing contact with plants, animals, and children. It is these relationships that provide the young and old alike with a pathway to a life worth living. 3. Loving companionship is the antidote to loneliness. Elders deserve easy access to human and animal companionship. 4. An Elder-centered community creates opportunity to give as well as receive care. This is the antidote to helplessness. 5. An Elder-centered community imbues daily life with variety and spontaneity by creating an environment in which unexpected and unpredictable interactions and happenings can take place. This is the antidote to boredom. 6. Meaningless activity corrodes the human spirit. The opportunity to do things that we find meaningful is essential to human health. 7. Medical treatment should be the servant of genuine human caring, never its master. 8. An Elder-centered community honors its Elders by de-emphasizing top-down bureaucratic authority, seeking instead to place the maximum possible decision-making authority into the hands of the Elders or into the hands of those closest to them. 9. Creating an Elder-centered community is a never-ending process. Human growth must never be separated from human life. 9
  • 12. Module 2.7.1 – The Management-Resident Relationship CASP Core Course 2, Section 7 10. Wise leadership is the lifeblood of any struggle against the three plagues. For it, there can be no substitute (Thomas, 2006; “Our 10 Principles,” 2009). Any nursing facility can choose to adopt some or all of these Principles; but, to be a bona fide (registered) EA facility, the nursing home must agree to abide by all ten Principles, register with the EA Registry, and participate in the ongoing Eden development process of continual commitment and striving not only toward complete fulfillment of the EA Principles but toward ever-improving resident quality of life and transforming the institution into a warm Human Habitat. The Eden Registry is maintained by the Eden Alternative, and both are non-profit entities. The Registry is not an accreditation, monitoring, regulatory, and punitive or organizationally controlling body. Rather, it provides education and resources to help nursing facilities adopt the Eden Principles and Practices (“Becoming Part of the Eden Registry,” 2009). EA-registered homes receive an Eden Tree plaque and Symbols of Recognition (“The Eden Alternative: We Are Different,” 2009). Eden also provides a multitude of training workshops and trainer certifications (Brune, 1995). To date, Eden has trained over 15,000 Certified Eden Certified Nursing Assistant (CNA): Associates, and the organization now claims over 300 registered homes, A person trained and certified to in the United States, Canada, Europe, Japan, Australia, and New assist individuals with non-clinical tasks such as eating, walking, Zealand (“Certified Eden Associates,” 2009). EA is a small and simple and personal care (see ADLs and organization, consisting of Dr. Bill Thomas; his wife Jude; the Eden Personal Care). This person may home office staff; 50 Eden Educators; 60 mentors and, of course, the be called a “direct-care worker” (DCW). In a hospital or nursing home 15,000 Eden associates (“The Eden Alternative: Improving the Lives of the person may be called a nursing the Elders and Their Care Partners,” 2009). assistant, a personal care assistant, or an aide. Direct-Care Staff/Direct-Care Combating the three plagues Worker (DCW): An individual The major impetus of the EA movement was, and still is, the working in a nursing home or elimination of loneliness, helplessness, and boredom. In an Eden facility, assisted living community who provides “hands-on” help to the cure for loneliness is companionship: with other residents, with residents with activities of daily front-line staff (empowered Certified Nurse Assistants, housekeepers, living (see Certified Nursing Assistant). maintenance personnel, etc.), and with an abundance of plants and animals. CNAs are not only cross-trained to work in small teams, and empowered with front-line decision-making; they are required to attend to residents’ emotional needs, they treat all residents with dignity and importance, and they come to know residents on a highly interpersonal, intimate level. 10
  • 13. CASP Core Course 2, Section 7 Module 2.7.1 – The Management-Resident Relationship Eden facilities are universally teeming with birds, especially parakeets, finches, and canaries; dogs and cats; rabbits; sometimes fish and guinea pigs; and an abundance of plants, inside and out. This is why some have called EA the “Fur and Feathers” program. Residents are encouraged to tend to, and even adopt, plants and animals. Pets, especially dogs, sometimes even adopt residents. In fact, some canines have actually learned to operate the elevators to visit their “favorite people” (Bruck, 1997). Thomas’ plan to uplift residents’ spirits and combat loneliness through contact with animals was implemented from the very start, when he introduced EA in his own Chase Memorial Nursing Home in upstate New York in 1991 and said, “We’ll bring in 100 birds, two dogs, four cats, three rabbits and a flock of laying hens . . . Then we’ll plow the lawn and start a large organic vegetable garden outside our residents’ windows.” And he did. One day, the birds arrived—all 100 of them! (“An Eden Alternative: A Life Worth Living, 2003). The benefits of animal-assisted therapy (AAT)—although Thomas prefers to regard animal-resident interaction as a natural bonding process rather than a therapy (Bruck, 1997)—are well-documented. Companion animals have been shown to be effective in reducing loneliness in both pet owners and in nursing home residents, as measured objectively, especially for those residents who had a life history of emotional attachment to pets, usually in early childhood. A significant effect on loneliness was noted with as little as 30 minutes of pet contact per week (Banks & Banks, 2002; Banks et al., 2008; Barker, 1999). A reduction in incidence and severity of depression is also likely to be associated with pet and plant contact, as well as promotion of “social capital” in the form of social contact and interaction (Wood et al., 2005). Some have cautioned that the use of companion pets could result in zoonosis (atypical infections), but only one report of such an incident surfaced during my literature review, a case of atypical scabies in a nursing home with an active EA program (Morley & Flaherty, 2002). Based on my personal knowledge of the facility in question, I believe that other infection sources and practices are a more probable cause. Animals in EA homes are generally observed and tested by veterinarians, and the spread of disease is apparently not a significant problem. Furthermore, state regulations do not prohibit animal residence in nursing homes. Thirty-two states do not address the 11
  • 14. Module 2.7.1 – The Management-Resident Relationship CASP Core Course 2, Section 7 issue; those that do usually have restrictions on numbers and/or kinds of animals allowed (“Quality of Life: Pets and Animal Therapy,” 2008). Pets and companion animals are generally not allowed in kitchen and dining areas during meal service times. Children, from pre-schoolers to high-schoolers, are often a key feature in Eden facilities, allowing residents to interact and share life experiences and knowledge, including playing games, sharing stories, helping with homework, and working together in the garden. I first started Eden and childcare in an LTC facility in 1989 at the Continuous Care Retirement Community in Columbia, Missouri. Resident feelings of helplessness tended to be alleviated by helping children, caring for pets and plants, and making decisions about their environment and their daily activities. “A home that opens its doors to pets, children, and the community has little room for boredom . . . . Life in an Eden home is spontaneous” (“An Eden Alternative: Life Worth Living,” 2003, [n.p.]). Meals are varied, often chosen by the residents; activities are varied; the range of visitors is varied. Each resident’s room is decorated to his or her individual tastes, and personal living spaces are thus varied. Front-line staff tend to interact frequently with residents, combating both loneliness and boredom. At the Levindale Hebrew Geriatric Center in Baltimore, Maryland, which became a registered EA facility in 2000, a family atmosphere was created by the formation of small groups of residents and staff called “kibbutzim” (plural of “kibbutz”). Kibbutzim groups Turnover: The average percentage met regularly to become better acquainted and discuss issues, including of staff who stop working at a what kinds of pets to bring into the family (“Eden Alternative and care setting each year. Virtually all healthcare organizations (hospitals, Neighborhood Model,” 2006). nursing homes, assisted living facilities, etc.) track and measure the Measurable benefits of the Eden Alternative number of staff who stop working (turnover) and the length of stay Results of studies assessing the benefits of “Edenizing” or “going of staff (retention) in the same or Eden” vary in amount of attributed benefit, but those measuring benefits similar jobs. A high turnover rate in a nursing home or assisted living objectively and over a suitable time frame consistently show positive community means that the facility results. In 2003, Bill Thomas’ study of his own Chase Memorial Nursing in question is constantly hiring and Home showed a reduction in overall number of drug prescriptions, training new caregivers. infection rates, staff turnover, and the mortality rate. Studies of the Texas EA Project involving several nursing homes charted significant decreases in in-house pressure sores, anxiolytic and antidepressant medications, and staff absenteeism. Perhaps the best indicator of success is that Eden homes 12
  • 15. CASP Core Course 2, Section 7 Module 2.7.1 – The Management-Resident Relationship across the nation report waiting lists for their beds (“An Eden Alternative: Life Worth Living,” 2003). In addition to quality-of-care and quality-of-life resident concerns, a constant challenge for many nursing homes is staff dissatisfaction, in particular among CNAs, and, more specifically, high rates of staff turnover and absenteeism. In the test Eden facilities in Texas, a 25% reduction in staff turnover was documented, along with a one-third drop in absenteeism (Kleinman, 2009). In Bethel Lutheran Nursing Home, overall drug costs were down 50%, the mortality rate was reduced by 15%, and the infection rate was cut in half; benefits for staff, family members and visitors were equally dramatic (“Eden Alternative Philosophy: Life Worth Living,” [n.d.]). Data from Southwest Texas State University showed a 50% reduction in the incidence of decubitus ulcers, a 60% decrease in difficult behavioral incidents among residents, a 48% decline in staff absenteeism, and an 11% drop in employee accidents (Willging, 2000). A study of residents’ emotional needs showed positive results on the Minimum Data Set items relating to helplessness, loneliness, and boredom; the UCLA Loneliness Scale; the Geriatric Depression Scale; and the Lubben Social Network Scale (Parsons & Bergman-Evans, 2004). Another study showed significant improvement in family satisfaction, as measured by the Family Questionnaire, after implementation of EA. The improved satisfaction scores reflected greater communication and interaction among families, staff, and residents (Rosher & Robinson, 2009). Research by Coleman et al. (2002) showed no significant benefit of EA in terms of cognition, functional status, survival, infection rate, or cost of care, one year after its implementation. This was an earlier study, however, and the one-year study period may have been insufficient to demonstrate benefits. Rahman and Schnelle (2008) believe that the culture-change movement is spreading in advance of a solid research base to support its quality-of-life improvement claims. They propose specific and more focused research questions that will bring to light the costs and benefits of EA and other innovative models of care. Rather critical findings come from a study prepared for the Canadian Union of Public Employees (CUPE) Health Care Council by CUPE Research (2000) as summarized below. 13
  • 16. Module 2.7.1 – The Management-Resident Relationship CASP Core Course 2, Section 7 1. The Eden Alternative has been severely criticized by some elder advocacy groups in the United States. 2. Measured benefits claimed by EA homes are based on a number of small preliminary studies that lack rigor. There is no definitive study that proves the benefits of EA (at least as of 2000, when the CUPE study was released). 3. In the U.S., for-profit NHs may be promoting EA in an attempt to counter widespread accounts of resident abuse and neglect. Critics argue that no genuine improvements, such as increased staffing levels, are being made to address the serious deficiencies in elder care. 4. While being promoted as inexpensive to implement and cost-effective to maintain, elder advocacy groups counter that EA cannot be implemented properly without additional money and staff. Limited resources may be redirected towards the care of animals and plants. 5. In EA facilities, jobs in nursing, laundry, recreation, and food services may be reduced or eliminated as aides’ jobs are expanded to include some or all of these duties. 6. Most of workers’ complaints about EA center on the issue of Centers for Medicare and Medicaid Services (CMS): The entities understaffing. Staffing numbers may not be increased in proportion responsible for regulating and to the new workload, which includes caring for plants and animals paying nursing homes, home health and coordinating residents’ activities with children. agencies, and hospices for the care of Medicare and Medicaid 7. The introduction of animals into the long term facility exacerbates (in conjunction with the states) existing workload problems and has implications for health and beneficiaries. With a budget of safety. Plants and animals could be neglected as a result of insufficient approximately $650 billion and serving approximately 90 million staff. beneficiaries, CMSs plays a key 8. Workers have expressed concerns about inadequate training. role in the overall direction of the healthcare system. 9. Workers can suffer from burnout if they are permanently assigned to Consistent Assignment: Residents a group of severely challenged residents. seeing and receiving care from the In spite of these concerns, issued from a public employee union’s same caregivers (registered nurse, licensed practical nurse, direct-care perspective, EA and other culture-change models and proposals are worker/certified nursing assistant) moving forward at an ever-increasing pace. One of the goals of the during a typical work week. Advancing Excellence campaign was to encourage nursing homes to Consistent Assignment may also be called Primary Assignment. adopt consistent assignment—the practice of assigning nurse aides to the same residents on a daily or nearly daily basis. With the endorsement of the Centers for Medicare and Medicaid Services (CMS), one of the founders of the campaign coalition, one-third of the nation’s nursing homes (5,246 facilities) had registered as “official participating providers,” 14
  • 17. CASP Core Course 2, Section 7 Module 2.7.1 – The Management-Resident Relationship as of June 1, 2007. Of these, 31% had committed to implementing consistent assignment (Rahman & Schnelle, 2008). National directives from CMS establish “person-centered” care as one of the six aims of the Institute of Medicine. It can also be seen as a defining aspect of the vision in the Quality Improvement Roadmap: the right care for every person every time calls for care that reliably meets the patient’s needs. To achieve this vision, care must be organized around the person’s, not the provider’s, needs. Person-centered care can also result in better self-care. This is particularly important in chronic conditions, which constitute a substantial part of the burden of illness, and cost, in the Medicare population. Thus, person-centered care is an important element in the improvement of quality and efficiency for all senior care providers (Leavitt, 2006). A study published a year later by the Commonwealth Fund (Doty, Koren, & Sturla, 2008) revealed similar nursing home adoption of culture change principles and resident-centered care. The authors sent questionnaires to a representative sample of 1,435 nursing homes and, based on the responses, divided these facilities into three separate categories: culture change adopters (31%), culture change strivers (25%), and traditional nursing homes that had adopted culture change principles very little or not at all (43%). Although the nursing homes in general had been relatively successful at increasing resident involvement in decision-making and, to a lesser extent, accommodating collaborative and decentralized decision-making to empower direct-care workers, very little organizational redesign or change in the physical environment had occurred. Interestingly, the authors also found that “the more a nursing home has adopted culture change principles, the greater the benefits that accrue to it, in terms of staff retention, higher occupancy rates, better competitive position, and improved operational costs” (Doty, Koren, & Sturla, 2008, [n.p.]). On the need for continual self-assessment and quality improvement As part of her master’s degree study while at Kansas State University, Kiyota ([n.d.]) lived in an EA nursing home for one month, posing as a wheelchair-bound resident, to determine how the physical environment was transformed to create a human habitat, and who were the agents 15
  • 18. Module 2.7.1 – The Management-Resident Relationship CASP Core Course 2, Section 7 of these changes. Eventually, the focus of her study narrowed to the question of where residents and staff found meaningful experiences in the nursing home. Residents and staff members were asked to take photographs of their favorite places in the facility. Interestingly, there were categorical differences between residents and staff in what was perceived as meaningful. Staff tended to value areas which had Eden value and were especially appreciated by family and other visitors, such as the home-like ambience of the facility’s front entrance, a bright and airy and plant-bedecked reception desk with a small water-fountain, the courtyard where children went outside to play, and the aviary in the living room. Residents, on the other hand, chose the areas they used the most and to which they were emotionally attached, such as their self-decorated rooms or a specific area in the room (e.g., a family picture display, a dog’s bed, a parakeet cage, plants, a television, and an angel that was a gift from a middle school student), the physical therapy room where the staff were particularly friendly, the quiet and serene chapel, or the candy shop where visitors came to chat. Kiyota concluded—and I completely agree—that the physical environment should be comfortable and restful, appealing and inviting, homey and well-used, and should have emotional value for staff, visitors, and residents alike. But, if the facility is to be truly resident- centered, emphasis must be placed on those areas in the facility which the residents identify as meaningful to them. LTC facilities must be continually and fervently self-assessing and searching for ways to improve residents’ quality of care and quality of life. The Green House Project The concept In spite of the recent success of the culture change movement and EA in particular, Thomas still regarded nursing homes as too institutional. Despite the growing prevalence of resident-centered care practices, nursing homes were still too impersonal and medically-focused, and their physical layouts too large and spread-out, too cold and sterile, and too resident-unfriendly, with their long corridors and semi-private rooms. Thomas believed that significant, permanent LTC reform required a radical redesign of nursing homes architecture and organization. Thomas’ conception of the ultimate, yet doable, nursing home was a typical outwardly-appearing house, in a typical residential neighborhood, 16
  • 19. CASP Core Course 2, Section 7 Module 2.7.1 – The Management-Resident Relationship each house to be occupied by six to ten residents who would otherwise be occupants of a typical traditional nursing home. Thomas coined the name “Green Houses” (GHs) for these concept homes, signifying life and continued growth. A traditional nursing home with perhaps a hundred or more residents would now consist of a group of Green Houses, in varying proximity to one another but always noncontiguous, linked together by organizational management, technology, and communication. The internal layout would be that of a warm, welcoming residential dwelling that would foster both intimacy and privacy, care and autonomy, respect and self-respect. Physical and organizational design of GHs Because GHs would be built (or perhaps sometimes remodeled) from scratch, a similar architectural design would be employed for each. Resident rooms are situated around the periphery of the house, with each room opening directly into a central activity area or common space, consisting of a large dining and activity area, kitchen, and central hearth. Thus, the distance from a resident’s room to any other area in the house, especially the central hearth area, the focal point of the home’s interior, is short and readily negotiable by walking, walker, or wheelchair. This is in marked contrast to the long corridors of the traditional NH. There is one long dining room table, large enough for all residents, two caregivers, and visitors all to sit together for dining or activities. Soft music is piped in, and flowers are on the table. Each meal is intended to be a pleasant, enjoyable, engaging social event called a convivium (“The Caregiver: A spouse, family member, partner, friend, or neighbor Green House Concept,” 2008). Each resident has his or her own private who helps care for an elder or room with private bath, and residents are encouraged to furnish their person with a disability who needs assistance. Caregivers can also rooms as they please, including their own furniture from home. There be people employed by the older is a sense of personal belonging. Outside entrance keys are given only to adult, a family member, agencies, or residents and caregivers; visitors and other organizational staff, including care settings to provide assistance with activities of daily living (ADLs; managers and nurses, must ring the doorbell to gain entrance. see above) and instrumental activities of daily living (IADLs) (see Shahbazim below). Similar to EA facilities (GHs are an offshoot or refinement of EA homes), in GHs Certified Nursing Assistants (CNAs), or nurse aides, assume responsibility for nearly all the residents’ needs. However, in a GH, the CNA’s responsibilities are broadened to include housekeeping 17
  • 20. Module 2.7.1 – The Management-Resident Relationship CASP Core Course 2, Section 7 chores, meal preparation, and managing logistics. In fact, these do-it- all caregivers are the only staff present in a GH except for emergencies, and nurse, physician, or therapist visits (“Green House Project,” 2004). Once lowest on the organizational ladder and now, in many respects, the highest, these omnipresent workers are referred to by Thomas as Shahbazim (plural of Shahbaz), a Persian term meaning “royal falcon.” With an underlying belief that human life is sustained by affection, Shahbazim are trained and required to befriend and sustain the elders with whom they work, through the practice of convivium (pleasant dining), homemaking, and befriending (Shapiro, 2005). Shahbazim who are not CNAs upon hire must undergo training and become state-certified. All GH Shahbazim receive 120 hours of training. The first 40 hours are administered by GH staff and focus on GH philosophy, policies and procedures, team-building and empowerment, and dementia care. The remaining 80 hours consist of classes on CPR, culinary skills, food safety, and home repair (“Green House Project,” 2004). An elder country club Plants, animals, and children are part of GH design. All GHs have a screened-in porch and outdoor garden area. A nursing station is required by some state statutes, but these are neatly tucked away out of sight, usually in a utility or staff break room. Residents choose their activities, mealtimes, and degree of participation in household tasks, with no strict schedules (Rabig et al., 2006). A GH in Lincoln, Nebraska, even offers happy hour two afternoons a week, where residents can purchase an alcoholic beverage, country-club-style (“Green House” Communities Reinvent Elder Care,” 2008). Warm, smart, and green The idea of creating GHs that are warm, smart and green is, again, that of Bill Thomas. Warm: Thomas envisioned the houses as radiating warmth, created by the floor plan, the décor, the furnishings, and the people within them. The goal is to create and maintain human warmth. 18
  • 21. CASP Core Course 2, Section 7 Module 2.7.1 – The Management-Resident Relationship Smart: The use of cost-effective and smart technology such as computers, wireless pagers, electronic lifts, and adaptive devices cultivates a sense of resident personal belonging, meaning, and purpose in life. Green: Sunlight, plants, and access to outdoor spaces create connections with the living world and its living gifts of life, laughter, and companionship (Thomas, 2006; “The Green House Concept,” 2008). Green House development and growth The first GH, which opened in 2003, was actually a complex of four GHs, on the campus of United Methodist Senior Services in Tupelo, Mississippi (Woodrick, 2003), soon followed by six more homes in Tupelo. With the much publicized success of the Tupelo project, and a $10 million grant from the Robert Wood Johnson Foundation, many more have been built and put into use around the country. On December 5, 2008, on target with its Green House Replication Project, the fiftieth GH opened in the United States, one year earlier than anticipated (“The Green House Replication Initiative,” 2008; “Green Houses Growing in Numbers Across the States,” 2008). The homes are built by NCB Capital Impact Development Corporation, under the direction of Bill Thomas and the Green House Project Team (The Center for Growing and Skilled Care/Nursing Care: A Becoming). The 2006 published goal was to have, within five years, at level of care that includes help least one GH in every state (“Green Houses Growing in Numbers Across with more complex nursing tasks, such as monitoring medications, the States,” 2008). giving injections, caring for wounds, “The Green House” is a trademarked model. Any nursing care facility and providing nourishment by bearing that label must meet certain standards for construction, living tube feeding (enteral feeding). It also includes therapies, such as arrangements, care, and other features” (DeBolt, 2008, [n.p.]). Because occupational, speech, respiratory GHs are licensed as nursing homes or skilled nursing facilities and meet and physical therapy. This care can be given in a patient’s home all federal regulations, they qualify for Medicaid reimbursement and can or in a care setting. Most insurance largely operate within Medicaid payments, with the exception of a few plans require at least some level of states where Medicaid reimbursement is much below average (Jenkens, need for skilled care, requiring the services of a licensed professional [n.d.]). (such as a physician, nurse, or therapist), before they will cover The Wellspring Model other home-care services. In keeping with the overall theme of the culture change movement, and with many of the principles and practices of the Eden Alternative and the Green House project, the Wellspring Model’s major emphasis is on quality improvement through both improved clinical care and 19
  • 22. Module 2.7.1 – The Management-Resident Relationship CASP Core Course 2, Section 7 organizational culture change. The Wellspring model is a product of Wellspring Innovative Solutions, Inc., arising out of an alliance of 11 freestanding, nonprofit nursing homes in eastern Wisconsin (Stone et al., 2002). The organization was formed in 1994 and fully implemented in 1998. Within its 11 otherwise independent nursing homes, it espoused six core elements: (Reinhard & Stone, 2001): • An alliance of nursing homes with top management committed to making quality of resident care a top priority; • Shared services of a geriatric nurse practitioner, who develops training materials and teaches staff at each nursing home how to apply nationally recognized clinical guidelines; • Interdisciplinary “care resource teams” that receive training in a specific area of care and are responsible for teaching other staff at their respective facilities; • Involvement of all departments within the facility and networking among staff across facilities to share what works and what does not work on a practical level; • Empowerment of all nursing home staff to make decisions that positively affect the quality of resident care and the work environment; and • Continuous reviews by CEOs and all staff of performance data on resident outcomes and environmental factors relative to other nursing homes in the Wellspring alliance. Nurse Practitioner (NP): A The best known study of outcomes, assessing the 11 Wisconsin Registered Nurse with advanced education and training. NPs can pilot facilities only, seems to be the report by Stone et al., with support diagnose and manage most provided by the Commonwealth Fund (Stone et al., 2002; “Improving common, and many chronic, illnesses. the Quality of Nursing Home Care: The Wellspring Model,” 2004). They do so alone or in collaboration with the healthcare team. NPs can Results were generally positive: prescribe medications and provide • Retention rate for Wellspring staff increased slightly. some services that were formerly permitted only to doctors. There • Wellspring facilities performed better on annual state inspections. are a number of types of nurse The number of nursing homes with severe deficiencies fell from 22% practitioners (geriatric, adult, to 0. psychiatric-mental health) who work with older adults. • Evidence suggests that Wellspring staff are more vigilant in assessing problems in quality and take a more proactive approach to resident care. • Wellspring residents appear to enjoy a better quality of life. 20
  • 23. CASP Core Course 2, Section 7 Module 2.7.1 – The Management-Resident Relationship • Implementation was essentially cost neutral. Costs were generally neither more nor less. In the words of Roman emperor/philosopher Marcus Aurelius, “Dig within. Within is the wellspring of Good; and it is always ready to bubble up, if you just dig” (“Wellspring Definition,” 2009, [n.p.]). Other Culture Change Models or Paradigms Multiple other culture change proposals and programs have also surfaced. A few of them are briefly described below. Eldershire The Eldershire Community is also a product of Dr. Bill and Jude Thomas’ imagination and dedication to expanding and enhancing the quality of life of elders and their families and caretakers. It is a planned intergenerational community, designed to promote an active and ongoing exchange among the generations. An Eldershire Community contributes to bettering the quality of life by strengthening and improving the means by which 1) the community protects, sustains, and nurtures its elders, and 2) the elders contribute to the well-being and foresight of the community (“Basic Tenets of the Eldershire Vision,” 2008). An Eldershire is a community where residents work together to effect the realization of well-being, the elements of which include identity, autonomy, security, connectedness, meaning, joy, and space (“Basic Tenets of the Eldershire Vision,” 2008). Eldershire residents are empowered to collaborate in the design and ongoing development and management of their communities. Private homes are “grouped together with common indoor and outdoor spaces, including walking spaces, gardens, and a central house that will offer shared meals, meeting spaces, recreational activities and basic services.” Communities will have “shared values, including respect for the contributions made by elders, accessible housing design, economic and environmental sustainability, commitment to life-long learning, and self- governance” (“Dr. Bill Thomas to Speak at Vital Aging Network Forum on February 14,” 2006, [n.p.]). Elder cohousing A multitude of cohousing units have sprung up across the country. These are planned communities that are nearly identical to Eldershires, 21
  • 24. Module 2.7.1 – The Management-Resident Relationship CASP Core Course 2, Section 7 in that they offer six common characteristics: participatory process, design for community, shared common facilities, resident management, collaborative decision-making, and no shared community economy (i.e., not income-sharing) (Abraham & deLaGrange, 2006). Unlike Eldershire Communities, they tend to enlist elders only, although they may be situated adjacent to multi-generational communities; and they tend to focus more heavily on shared values, such as spiritual growth and sharing, a holistic view of aging, and meta-issues such as illness and dying. Unlike Eldershires, they tend perhaps to offer a little more planned uniformity and less diversity. But their practical assets are nearly identical to Eldershires, emphasizing resident empowerment, mutual respect, shared values, active lifestyle, social integration, some centralized or shared services, economic and environmental sustainability, and general social consciousness. Depending on the culture of the community and the choice of shared values, these Elder cohousing communities would seem immensely appealing to many of this country’s emerging boomers (“Building Premiere Retirement Communities for Today’s Active Seniors,” 2007). The first cohousing communities in this country were organized in the late 1980s, patterned after the Scandinavian model. They have also Continuing Care Retirement been a presence in Denmark since the late 1980s. As of about 2006, Community (CCRC): A housing there were roughly 5,000 people living in 80 cohousing communities option that offers a range of services and levels of care. across the United States. As elder cohousing communities are deliberately Residents may first move into an small in size, rarely exceeding 40 households per neighborhood, their independent living unit, a private apartment, or a house on the residents have the opportunity to know one another well and develop CCRC campus. The CCRC provides closer relationships. In contrast, some retirement communities may social and housing-related services contain as many as 500 to 10,000 households. Many other pre-planned and may have an assisted living residence and a nursing home, often communities, such as continuing care retirement communities (CCRCs) called the healthcare center, on the do not allow residents the opportunity to participate in the community- campus. If and when residents can no longer live independently in their envisioning process, where they develop deeper connections with other apartment or house, they move into residents and the community as a whole (“Elder Co-Housing: Building a assisted living (unless it is provided Collaborative Elderhood,” 2006). in their apartment or house) or the nursing home. The Pioneer Network The Pioneer Network began in 1997, when a group of 33 LTC professionals met in Rochester, New York, to discuss novel approaches to LTC that, whether knowingly or not, would parallel the principles of the 22
  • 25. CASP Core Course 2, Section 7 Module 2.7.1 – The Management-Resident Relationship culture change movement. Susan Misiorski (2003), the Network’s CEO, Assisted Living/Personal Care envisions a culture of aging that is life-affirming, satisfying, humane, Homes/Residential Care Facilities: and meaningful in whatever setting Elders live—home, assisted living, A state-regulated and -monitored or nursing home. The Pioneer Network is committed to working with residential long-term care option that may have different names, state culture change coalitions that currently exist in 33 states, to help depending on the state. Assisted create home and community and advocate for change (Lieblich, 2008). It living provides or coordinates oversight and services to meet seeks “a transformation of the entire culture of aging through education, residents’ individualized, scheduled advocacy, leadership development, and resource support” (Nissenboim, needs, based on the residents’ assessment and service plans, 2004, [n.p.]). The Pioneer Network advocates for elders across the and their unscheduled needs as spectrum of living options (which are often dictated by differing levels they arise. There are more than of medical care required); and is working towards a culture of aging 26 designations that states use to refer to what is commonly known as that supports the care of elders in settings where individual voices are “assisted living.” There is no single heard and individual choices are respected, whether in nursing homes, uniform definition of assisted living, and there are no federal regulations transitional care settings, or wherever home and community may be. for assisted living. In many states, Cultivating and maintaining a community of relationships are important most assisted living is private pay. Be sure to check with your state at every phase of life, but are especially critical for elders and the aging, about any waiver programs that many of whom may need a network of partners to live life to its fullest. may be available through Medicaid to pay for the care provided in The Pioneer Network provides a global perspective for LTC facilities assisted living. to be the senior advocate beyond their four walls (“Pioneer Network: Independent Living: A residential Culture Change in medicaid,” 2009). location (including rental-assisted or market-rate apartments or cottages) that may or may not provide Continuing care retirement communities hospitality or supportive services. Also sometimes called life care communities, CCRCs tend to be Residents can choose which services they want. Additional fees may be large complexes that provide resident housing over a range of care- charged for some services. dependency, from independent living units, to assisted living units, Long-Term Care (LTC): A term to nursing home accommodations. Independent living units may be used to describe the care needed by someone who must depend on small or large apartments, cottages, cluster homes, or single-family others for help with daily needs. dwellings. Assisted living quarters are usually small studio or one- LTC is designed to help people with chronic health problems or dementia bedroom apartments. Nursing home accommodations historically have to live as independently as possible. been one-room units for two or more persons. As these facilities are all Although many people think that long-term care is provided only in a on the same grounds, all residents are nearby and can be transferred up nursing home, in fact most long-term or down the range of required services as needed, much like aging in care is given by family caregivers in the elder’s home. place. For this reason, CCRCs have been popular with some, although they tend to be expensive, with entrance fees ranging up to as much as $400,000 and monthly payments ranging from $200 to $2,500. Some are affiliated with a specific ethnic, religious, or fraternal order, where membership may be a requirement for admission (“Other Options: 23
  • 26. Module 2.7.1 – The Management-Resident Relationship CASP Core Course 2, Section 7 CCRCs,” 2004). Furthermore, these communities do not lend themselves easily to culture change transformation, with its emphasis on small size, resident empowerment and privacy, and organizational reform. The continued and rapid growth of the various culture change models will force these more traditional and outmoded multifaceted communities to either rebuild or remodel, or become extinct. As admission to a CCRC is usually a one-time event, all three levels of care must eventually adopt resident-centered care principles and practices, including perhaps elder Medicaid: The federally- and state- supported, state-operated public cohousing communities and Green House construction and practice assistance program that pays for implementation. healthcare services to low-income people, including older adults or disabled persons who qualify. The Evercare care model Medicaid pays for long-term nursing Evercare is included here because it is a rather innovative approach home care and some limited home health services, and it may pay to helping elderly persons or those with chronic or debilitating illnesses, for some assisted living services, and because it usually involves and is focused on the elderly. Organized depending on the state. It is the by two Minnesota nurse practitioners over 20 years ago, Evercare is an largest public payer of long-term care services, especially nursing agency that assigns a nurse practitioner to every Evercare member, to home care. Each state can determine assist that member in negotiating the healthcare system. Evercare nurses the breadth and extent of what services it will cover above a certain help coordinate care by collaborating with physicians, nursing homes, federally required minimum. and families. They are trained to deliver personalized and compassionate Medicare: The federal program care, both to persons in nursing homes and to individuals living that provides medical insurance for independently at home. They serve hundreds of thousands of people in people aged 65 and older, some disabled persons, and persons with 38 states through Medicare and Medicaid health plans (“Evercare: About end-stage renal disease. It provides Us,” 2008). physician, hospital, and medical benefits for individuals over age 65, or those meeting specific disability Coming Home Program standards. Benefits for nursing home “The Coming Home Program is designed to bring the benefits of and home health services are limited to short-term rehabilitative care. assisted living to low-income, frail seniors living in rural areas” (“Coming Different parts of Medicare cover Home Program,” 2008, [n.p.]). Assisted living facilities may be scarce or specific services if you meet certain absent in sparsely populated areas of the country, and many charge $100 conditions. For detailed information, visit the website (www.medicare. or more per day, which is out of the price range of many rural seniors. gov; retrieved on October 1, As a result, many of these seniors must either relocate some distance to a 2009) or call 1-800-Medicare for assistance. place where assisted living services are available, or be prematurely placed in nursing homes. The Coming Home Program seeks to rectify this situation by providing technical assistance and grants to both providers and states. 24
  • 27. CASP Core Course 2, Section 7 Module 2.7.1 – The Management-Resident Relationship Summary The culture change movement is growing, perhaps slowly, since traditional LTC is a “mom and pop” family business. But the movement will grow faster now that CMS has trained federal and state surveyors in “Resident-Centered Care” evaluation, eliminating opposition and more than a few barriers. The greatest remaining barrier appears to be fear of change and of potential costs involved. But implementation can be phased in, even as a preface to the seemingly drastic structural rebuilding in the form of Green Houses, Pioneer Network Affiliated Partners, and co-habitational communities. It is fortunate for our generation of LTC professionals that culture change movements are challenging, tearing apart, and rebuilding the traditional nursing homes built in the 1950s and 1960s. With CMS behind our movement, the time seems right for these facilities to undergo a culture change reformation. From what has been discussed here, it would seem imprudent to rebuild one outdated facility in the place of another. It would seem much wiser to build several smaller, more resident-accessible homes, with private rooms and a residential appearance and atmosphere. However, facilities located at Anywhere, USA may not have the funding to rebuild new, “culturally dynamic” physical plants. The Pioneer Network has an excellent approach to changing a facility’s resident and staff relationships through a process of systematic change. The Network’s high-level review outlined below can be used to create a baseline plan for change. Institution-Directed Culture • Staff provide standardized “treatments” based upon medical diagnosis. • Schedules and routines are designed by the institution and staff, and elders must comply. • Work is task-oriented and staff rotate assignments. • As long as staff know how to perform a task, they can perform it on “any patient” in the home. • Decision making is centralized. • There is a hospital environment. • Structured activities are available when the activity director is on duty. • There is a sense of isolation and loneliness. 25