National Fabry Disease Foundation
Personal Information
Organización/Lugar de trabajo
Washington, DC United States
Sitio web
www.TheNFDF.org
Acerca de
The National Fabry Disease Foundation (NFDF) is a 501(c)(3) charitable organization dedicated to supporting people with Fabry disease. Fabry disease is a rare progressive, destructive and life-threatening genetic disorder that affects the entire body. Fabry disease has an FDA approved treatment that is not getting to those who need it because it is very underdiagnosed. Physician and family education is critical to increse early diagnosis. To learn more visit www.TheNFDF.org.
Etiquetas
cdk lvh fabry fevers stroke proteinuria albuminuria angiokeratoma tia lysosomal cardiomyopathy
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Personal Information
Organización/Lugar de trabajo
Washington, DC United States
Sitio web
www.TheNFDF.org
Acerca de
The National Fabry Disease Foundation (NFDF) is a 501(c)(3) charitable organization dedicated to supporting people with Fabry disease. Fabry disease is a rare progressive, destructive and life-threatening genetic disorder that affects the entire body. Fabry disease has an FDA approved treatment that is not getting to those who need it because it is very underdiagnosed. Physician and family education is critical to increse early diagnosis. To learn more visit www.TheNFDF.org.
Etiquetas
cdk lvh fabry fevers stroke proteinuria albuminuria angiokeratoma tia lysosomal cardiomyopathy
Ver más