@theEdgeNHS | #EdgeTalks
THE MAKER MOVEMENT: A
MODEL FOR HEALTHCARE
TRANSFORMATION?
Joyce Lee
Friday 1st July 2016 at 9.30...
Joining in today and beyond
• Please use the chat box to contribute continuously
during the web seminar
• Please tweet usi...
The team today
Chat room monitor
Carol Read
@CarolLRead
Twitter monitor
Olly Benson
@ollybenson
Session chair
Dom Cushnan
...
Our presenters
Joyce Lee
@Joyclee
Our Next Edge Talks
August 5th
Sue Haines
Talent management
September 2nd
Maxine Craig
Culture and Change
The Maker Movement:
A Model for Healthcare
Transformation?
Joyce Lee, MD, MPH
http://www.doctorasdesigner.com/Twitter
: @j...
Agenda
The Maker Movement and Participatory Design
The Nightscout Project
Research (Ethnography, Survey, Secondary
analysi...
Agenda
The Maker Movement and Participatory Design
The Nightscout Project
Research (Ethnography, Survey, Secondary
analysi...
JAMA Pediatrics
Verily
Samuelson Associates
Unitio
Disclosures
Associate Professor, Pediatric Endocrinologist
Health Outcomes/Clinical Researcher
Learning Health Systems
Mobile Technolo...
“Folk in black turtlenecks and
designer glasses working on
small things like the Apple
Watch”
-Tim Brown
No Formal Trainin...
A Personal
Design Experiment
“B”
#design #fail
#lazytigermother
http://ihavefoodallergies.tumblr.com
700+ students
& 40 teachers
“Two videos recently impressed
me with their use of illustration
and narration to educate an
audience about health…What
in...
B’s Trilogy Part 2:
Ingredients and Food Handling
B’s Trilogy Part 3: Asthma
Patient as
expert
maker
collaborator
#futureofhealthcare
Healthdesignby.us
To integrate design thinking into
the medical enterprise and to
promote the participation of
makers in the healthcare
land...
Empathy PrototypeDefine Ideate Test
Human-Centered Design
”An approach that puts human needs, capabilities,
and behavior f...
Participatory Design
”an approach to design
attempting to actively involve all
stakeholders in the design process
to help ...
Who’s the real expert?
Interdisciplinary Design Workshops
“Committee Work”
Curricular Collaborations:
Swift iOS programming
Digital Game Design
Empathy
Understand a problem
before solving it
Define
Patient-defined problem
Ideate
Collaborative, creative
brainstorming
Prototype
Sketch, draw, glue, code
Test
Iterative Feedback from User
www.diabetesemoticons.com
http://umsickapp.info/
http://bit.ly/umpump
Design=
Distraction from Health
A critical tool for the creation of health
Maker Movement
Do It Yourself (DIY)
Learning by Doing
Peer-to-Peer
“Being a maker is not taking
the world as it is”
-Dale
Dougherty
“The essential democratization of the
technology has happ...
Maker
Movement
Participatory
Design
=
DIY = Expert
Learning by doing = Maker
Peer-to-Peer = Collaborator
@SusannahFox @jfgm @annakyoung
Design/Maker Workshops
Diabetes Education
Design/Maker Workshops
Apps Design by Teens
Participatory Game Design
in Diabete...
Design Insights
We are all designers (patients/caregivers/HCPs)
Design WITH and not FOR patients/caregivers by
inviting th...
Agenda
The Maker Movement and Participatory Design
The Nightscout Project
Research (Ethnography, Survey, Secondary
analysi...
Wrote Original code
for CGM
Twitter
Twitter
Wrote Original code
for CGM
Twitter
Blog
Twitter
Wrote Original code
for CGM
Twitter
Blog
Contractor
In India
Elance.comTwitter
Wrote Original code
for CGM
Twitter
Blog
Contractor
In India
Elance.com
"Hi the job was too simple I
have already deployed...
Blog
Wrote Original code
for CGM
Contractor
In India
Elance.com
Facebook
post
Twitter
Twitter
“So, I saw her, she saw too ...
Blog
Wrote Original code
for CGM
Started
CGM in the
Cloud FB
Group
Contractor
In India
Elance.com
Facebook
post
Twitter
Tw...
#WeAreNotWaiting…
…while our endocrinologist tries to assemble the
disjointed pieces of the data puzzle
…for regulators to...
“…organically a support group came out of the
community [and] was basically working
24/7…Somebody would always be monitori...
Italy
UK
Sweden
Bulgaria
Spain
Canada
Australia
Finland
Czech+Slovakia
New Zealand
Croatia
Israel
South Africa
Hungary
Fra...
Open Source Code
“What one person knows, everybody knows…So it’s
travelling at the speed of light.”
Collaborative Innovation Network
A cyberteam of self-motivated people with a
collective vision, enabled by the Web to
coll...
Leadership Team
Features:
10 Apple Pie ->
152 Funnel Cake
Amy Cowen
Nightscout Product Roadmap
Core Development Team
Support Team
0
100
200
300
400
500
600
NewUsersbyPost
Month-Year of first post
NewThe End of Nightscout?
New Members to FB group via 1s...
Xdrip
10.1
8.8
8.1
7.6
8.9
7.8
7.1
6.8
0.0
2.0
4.0
6.0
8.0
10.0
12.0
0-5 y 6-12 y 13-17 y ≥ 18 y
Before NS
After NS
Self-reporte...
A Maker Movement for Diabetes
Patients/caregivers as lead innovators
A Model for Personalized Medicine (Devices,
wearables...
Agenda
The Maker Movement and Participatory Design
The Nightscout Project
Research (Ethnography, Survey, Secondary
analysi...
Professional
Design
Participatory
Design
Human-
Centered
Design
Maker
Movement
(Meta-Design)
Healthcare Delivery & Biomedi...
Meta-design (Gerhard Fischer)
“Design for designers”
Users become co-designers and co-developers
The meta-designers design...
Meta-design Objectives
Changes must seem possible
Changes must be technically feasible (open systems)
Benefits must be per...
MD to Patient
Passive
Solitary
Patient to Patient
Active
Collaborative
Health
Valerie Castle, Ram Menon, Nancy Benovich
Gilby, Emily Hirschfeld, Ashley Garrity, Matt
Kenyon, Preciosa Choi, Sarah Clark...
Our Next Edge Talks
August 5th
Sue Haines
Talent management
September 2nd
Maxine Craig
Culture and Change
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee
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July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee

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The Maker movement is a do it yourself technology-based movement that espouses creativity and tinkering in community settings, and is creating innovative health solutions across the globe, yet most healthcare stakeholders are unaware of “makers” and the maker movement. In this webinar, Joyce Lee, MD, MPH, will talk about the maker movement, its impact inside the health community, and principles that can support the application of this movement to the healthcare enterprise.
For information on future or past Edge Talks please visit the website http://theedge.nhsiq.nhs.uk/category/edge-talk/

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July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee

  1. 1. @theEdgeNHS | #EdgeTalks THE MAKER MOVEMENT: A MODEL FOR HEALTHCARE TRANSFORMATION? Joyce Lee Friday 1st July 2016 at 9.30am BST
  2. 2. Joining in today and beyond • Please use the chat box to contribute continuously during the web seminar • Please tweet using hashtag #EdgeTalks and the handle @School4Radicals @theEdgeNHS • Send a request to join our Facebook group School for Health and Care Radicals and The Edge NHS
  3. 3. The team today Chat room monitor Carol Read @CarolLRead Twitter monitor Olly Benson @ollybenson Session chair Dom Cushnan @DomCushnan
  4. 4. Our presenters Joyce Lee @Joyclee
  5. 5. Our Next Edge Talks August 5th Sue Haines Talent management September 2nd Maxine Craig Culture and Change
  6. 6. The Maker Movement: A Model for Healthcare Transformation? Joyce Lee, MD, MPH http://www.doctorasdesigner.com/Twitter : @joyclee
  7. 7. Agenda The Maker Movement and Participatory Design The Nightscout Project Research (Ethnography, Survey, Secondary analysis of Social Media) Design and Making as a Healthcare Platform
  8. 8. Agenda The Maker Movement and Participatory Design The Nightscout Project Research (Ethnography, Survey, Secondary analysis of Social Media) Design and Making as a Healthcare Platform
  9. 9. JAMA Pediatrics Verily Samuelson Associates Unitio Disclosures
  10. 10. Associate Professor, Pediatric Endocrinologist Health Outcomes/Clinical Researcher Learning Health Systems Mobile Technology/Data Visualization Participatory Design/Social Media Quality Improvement Director for Pediatric Diabetes Background
  11. 11. “Folk in black turtlenecks and designer glasses working on small things like the Apple Watch” -Tim Brown No Formal Training in Design
  12. 12. A Personal Design Experiment
  13. 13. “B”
  14. 14. #design #fail
  15. 15. #lazytigermother
  16. 16. http://ihavefoodallergies.tumblr.com
  17. 17. 700+ students & 40 teachers
  18. 18. “Two videos recently impressed me with their use of illustration and narration to educate an audience about health…What interests me is how approachable and informative they are, regardless of the production value.” -Susannah Fox
  19. 19. B’s Trilogy Part 2: Ingredients and Food Handling
  20. 20. B’s Trilogy Part 3: Asthma
  21. 21. Patient as expert maker collaborator #futureofhealthcare
  22. 22. Healthdesignby.us
  23. 23. To integrate design thinking into the medical enterprise and to promote the participation of makers in the healthcare landscape To partner with patients and caregivers to create opportunities for participatory design, citizen science, and open science research To provide tools and technology- based systems for transforming the patient experience Education Research Clinical
  24. 24. Empathy PrototypeDefine Ideate Test Human-Centered Design ”An approach that puts human needs, capabilities, and behavior first, then designs to accommodate those needs, capabilities, and ways of behaving”
  25. 25. Participatory Design ”an approach to design attempting to actively involve all stakeholders in the design process to help ensure the result meets their needs and is usable”
  26. 26. Who’s the real expert?
  27. 27. Interdisciplinary Design Workshops “Committee Work”
  28. 28. Curricular Collaborations: Swift iOS programming Digital Game Design
  29. 29. Empathy Understand a problem before solving it
  30. 30. Define Patient-defined problem
  31. 31. Ideate Collaborative, creative brainstorming
  32. 32. Prototype Sketch, draw, glue, code
  33. 33. Test Iterative Feedback from User
  34. 34. www.diabetesemoticons.com
  35. 35. http://umsickapp.info/ http://bit.ly/umpump
  36. 36. Design= Distraction from Health A critical tool for the creation of health
  37. 37. Maker Movement Do It Yourself (DIY) Learning by Doing Peer-to-Peer
  38. 38. “Being a maker is not taking the world as it is” -Dale Dougherty “The essential democratization of the technology has happened; once you put the tools in the hands of everybody, it liberates the ideas and creativity of so many people” -Chris Anderson
  39. 39. Maker Movement Participatory Design =
  40. 40. DIY = Expert Learning by doing = Maker Peer-to-Peer = Collaborator
  41. 41. @SusannahFox @jfgm @annakyoung
  42. 42. Design/Maker Workshops Diabetes Education Design/Maker Workshops Apps Design by Teens Participatory Game Design in Diabetes Clinic
  43. 43. Design Insights We are all designers (patients/caregivers/HCPs) Design WITH and not FOR patients/caregivers by inviting them to the table Make design a part of the workflow Design with members of a different tribe Embrace the maker movement
  44. 44. Agenda The Maker Movement and Participatory Design The Nightscout Project Research (Ethnography, Survey, Secondary analysis of Social Media - University of Michigan IRB) Design and Making as a Healthcare Platform
  45. 45. Wrote Original code for CGM Twitter Twitter
  46. 46. Wrote Original code for CGM Twitter Blog Twitter
  47. 47. Wrote Original code for CGM Twitter Blog Contractor In India Elance.comTwitter
  48. 48. Wrote Original code for CGM Twitter Blog Contractor In India Elance.com "Hi the job was too simple I have already deployed it for you. You can pay whatever little amount that you may like to play. Elance is not allowing to bid less than $20" Twitter
  49. 49. Blog Wrote Original code for CGM Contractor In India Elance.com Facebook post Twitter Twitter “So, I saw her, she saw too right what this could do to change her life…so I actually went home that night and messaged xxx and said, can we set up another one”
  50. 50. Blog Wrote Original code for CGM Started CGM in the Cloud FB Group Contractor In India Elance.com Facebook post Twitter Twitter
  51. 51. #WeAreNotWaiting… …while our endocrinologist tries to assemble the disjointed pieces of the data puzzle …for regulators to regulate …for device manufacturers to innovate …for peace of mind that our children with type 1 diabetes are safe
  52. 52. “…organically a support group came out of the community [and] was basically working 24/7…Somebody would always be monitoring the Facebook page…” Technical Troubleshooting for Nightscout General Diabetes Technology Skin Rashes Blood Sugar Patterns and Management Issues with the School Nurse Endocrinologist Insurance
  53. 53. Italy UK Sweden Bulgaria Spain Canada Australia Finland Czech+Slovakia New Zealand Croatia Israel South Africa Hungary France Switzerland Belarus Japan Korea 18,000 + 7,710 = 25,710 US Int’l Poland Romania Denmark Portugal Turkey Russia Norway Brasil Germany
  54. 54. Open Source Code “What one person knows, everybody knows…So it’s travelling at the speed of light.”
  55. 55. Collaborative Innovation Network A cyberteam of self-motivated people with a collective vision, enabled by the Web to collaborate in achieving a common goal by sharing ideas, information, and work
  56. 56. Leadership Team
  57. 57. Features: 10 Apple Pie -> 152 Funnel Cake Amy Cowen Nightscout Product Roadmap Core Development Team
  58. 58. Support Team
  59. 59. 0 100 200 300 400 500 600 NewUsersbyPost Month-Year of first post NewThe End of Nightscout? New Members to FB group via 1st Post
  60. 60. Xdrip
  61. 61. 10.1 8.8 8.1 7.6 8.9 7.8 7.1 6.8 0.0 2.0 4.0 6.0 8.0 10.0 12.0 0-5 y 6-12 y 13-17 y ≥ 18 y Before NS After NS Self-reported HbA1c averageSelf-reported HbA1c average Excludes CGM users <6 months
  62. 62. A Maker Movement for Diabetes Patients/caregivers as lead innovators A Model for Personalized Medicine (Devices, wearables, mobile apps) Sharing of open source code through Github and sharing of knowledge through social media How do we translate this knowledge to research and care delivery?
  63. 63. Agenda The Maker Movement and Participatory Design The Nightscout Project Research (Ethnography, Survey, Secondary analysis of Social Media) Design and Making as a Healthcare Platform
  64. 64. Professional Design Participatory Design Human- Centered Design Maker Movement (Meta-Design) Healthcare Delivery & Biomedical Research
  65. 65. Meta-design (Gerhard Fischer) “Design for designers” Users become co-designers and co-developers The meta-designers design systems explicitly for evolution http://l3d.cs.colorado.edu/~gerhard/papers/2013/EUD.pdf
  66. 66. Meta-design Objectives Changes must seem possible Changes must be technically feasible (open systems) Benefits must be perceived Environments must support people’s actual tasks Barriers to sharing changes must be low
  67. 67. MD to Patient Passive Solitary Patient to Patient Active Collaborative Health
  68. 68. Valerie Castle, Ram Menon, Nancy Benovich Gilby, Emily Hirschfeld, Ashley Garrity, Matt Kenyon, Preciosa Choi, Sarah Clark, Peter Honeyman, Liz Kaziunas, Ben West, Dana Lewis, John Costik, James Wedding, Weston Nordgren, Ken Stack, CGM in the Cloud Community Twitter: @joyclee http://www.doctorasdesigner.com http://www.healthdesignby.us/ #makehealth It Takes a Virtual Village
  69. 69. Our Next Edge Talks August 5th Sue Haines Talent management September 2nd Maxine Craig Culture and Change

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