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Social mediaforfamilysupprtworkers

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Social mediaforfamilysupprtworkers

  1. 1. Social Media forfamily support workers Aaron Johannes aaron@spectrumsociety.org @imagineacircle
  2. 2. Flow of our Fun Day• Parking Lot Questions• What do we know?• What do we wonder?• Why is this important?• Some social media starters…• Defining how we are present as people with disabilities, families, supporters, organizations and a movement• Start With Hi / Support Networks for Self Advocates Workbook• Parking Lot Questions
  3. 3. Social Media:where will we get the time?
  4. 4. Think of it as not as “more”but as doing things differently
  5. 5. Here Comes Everyone!
  6. 6. Lee-Anne Ragan: let’s assume we’resmart enough and we can do this…
  7. 7. The hardest part to get used to: endless newness…
  8. 8. Facebook is easiest, then instagram
  9. 9. Social Presence: why it matters Aaron Johannes Jules Andre-Brown
  10. 10. Social Presence • Profile pictures • Disclosure – even where you are on a map… • Open-ended questions that invite participation • Icons to signal “it’s a joke” or “I’m okay” • #Foodporn! (instagram)
  11. 11. Lee-Anne: focus on one thing at a time, find a mentor
  12. 12. Research: A tiny percentage of a tiny percentage of a tiny percentage…
  13. 13. Research: A tiny percentage of a tiny percentage of a tiny percentage…
  14. 14. Research: A tiny percentage of a tiny percentage of a tiny percentage…
  15. 15. www.101friends.cablog / newsletter / links
  16. 16. www.101friends.ca blog / newsletter / linksPublicationsand mission - Books for sale: social enterprise - We control this conversation
  17. 17. www.101friends.ca blog / newsletter / linksPublicationsand mission - Books forOur messages: sale: social- People with disabilities enterprise are great citizens- There is hope- Research and - We control information is available this conversation- Reflection is good- People can make friends, get jobs, have fun
  18. 18. www.101friends.ca blog / newsletter / linksPublicationsand mission - Books forOur messages: sale: social- They can and do write enterprise books- They can and do lead- Staff need support too - We control- There are great this conversation agencies out there- Agencies can change- We hope for partnership
  19. 19. Those messages went out to 37,027 people
  20. 20. Since Feb 25 2012…we reached more than 100 countries
  21. 21. During a week in May 2012 1,800 people on blog 1,200 on facebook
  22. 22. Total Hopeful Messages• Blog• Enewsletter (Mail Chimp)• Facebook• Twitter• Slideshare• www.spectrumsociety.org• www.spectrumpress.ca (store)• www.101friends.ca (projects)• www.imagineacircle.com (me)
  23. 23. Good Planning Is Possible
  24. 24. LinkedIn Influence Map
  25. 25. Feb 2013
  26. 26. What are they talking about?
  27. 27. What do people with disabilities want to talk about?• jobs• Supports• Equality• Relationships• community
  28. 28. “disability employment”
  29. 29. “people first self advocacy”
  30. 30. The “R” word
  31. 31. Here Comes Everyone!Only true if we are present.
  32. 32. 33,332 “likes”
  33. 33. The “Wall of Awesome”
  34. 34. Rick Smith is my hero 
  35. 35. Staying Safe
  36. 36. • Aaron Johannes-Rosenberg• hey all - for family support workers (who support families with children with disabilities) - how do you think they might use social media to connect? whats your good idea for me to copy your answers into my presentation :)• Top of Form• NS freenode irc #wrongplanet autisim chat it is awesome CONNECT• AK A story a bout my struggles and addiction but now I look healthy SHARE STORIES• CG advertising - workshops, online webinars, groups, resources, sharing experiences, knowledge, ideas and beliefs (eg. inclusive communities,human rights), etc. SHARE INFORMATION• Barb Fowke arron are you watching the super bowl who is playing do you know?????????????????????????????????????????????????????• Aaron Johannes-Rosenberg Nope but its about football• EH I find that social media is good for sharing information but when they need to connection for emotional support, nothing beats face to face and a cup of tea! the barrier to meeting with others is always time and child care. but I do have some families that are starting to use social media (FB) to ask questions. SHARE INFORMATION / ASK QUESTIONS• SN · Friends with EH• A friend of mine commented on this so forgive me while I chime in. I am in Kenora and we have a closed site for Moms. No one can see this site and you must be invited in order to join. It is so great. Moms are really honest about their questions and their answers. Many of the members have children with different issues but so many of us have had similar experiences with our personal or work lives. The key to this site being so successful is that we all feel safe asking and answering questions. I agree that face to face is better but when you are at home, feeling all alone and needng help or support, this type of group can be amazing! SHARE INFORMATION / CONNECT / QUESTIONS• EH youre right SN about having support when you need it. I think the big difference for us here is that we arent as remote and there are services, groups, etc. A group I know tried to do an online support group but it never got off the ground. Not sure why; perhaps because there are so many other ways to connect (they all recd 1:1services)? Facilitators may need to be a different skill set? SUPPORT WHEN YOU NEED IT• FB Talk to Karen De Long. KAREN DE LONG• MT Events, community locations with radical hospitality, connection ideas, friendship/transit/practicum/employment building ideas, research reports, comparing notes (confidentially), supporting parents/caregiver ideas, inspiration, etc. INFORMATION / SUPPORT• SP Call me would love to chat…
  37. 37. Parking Lot Questions?

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