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#hpm
Healthcare Hashtag Twitter Transcript
   From:        Wed Apr 06 17:55:00 PDT 2011
   To:          Wed Apr 06 19:05:00 PDT 2011
                Customize transcript dates and layout

Learn more about #hpm at The Healthcare Hashtag Project




rabob                           Disability after acute respiratory failure - a role for palliative care -#hpm
                                http://bit.ly/ihqT1a
                                Wed Apr 6 17:55:28 PDT 2011




KathyKastner                    RT @rabob: Disability after acute respiratory failure - a role for palliative care -#hpm
                                http://bit.ly/ihqT1a #eldercarechat #hpm
                                Wed Apr 6 17:56:23 PDT 2011




KathyKastner                    Just a few minutes to tonite's chat. Range of topics including what happened on the
                                Hill. #hpm
                                Wed Apr 6 17:56:59 PDT 2011




DNRstories                      RT @KathyKastner: Just a few minutes to tonite's chat. Range of topics including
                                what happened on the Hill. #hpm
                                Wed Apr 6 17:58:57 PDT 2011




KathyKastner                    @NatriceR come join #hpm - I'm guest hosting :)
                                Wed Apr 6 17:59:14 PDT 2011




PracticalWisdom                 Let's get ready to rumble with @KathyKastner #HPM as she Hosts our community.
                                http://bit.ly/gVcTuR #HPM
                                Wed Apr 6 18:01:06 PDT 2011




KathyKastner                    Good evening all! Welcome.I am your host and blogger www.ability4life.com
                                exploring app to help make AD decisions. #hpm
                                Wed Apr 6 18:01:31 PDT 2011




PracticalWisdom                 Lots of Tweets coming from our TweetChat with the amazing and humble folks from
                                It's a mighty Fine Bunch. #HPM
                                Wed Apr 6 18:02:18 PDT 2011




MeredithGould                   Getting ready to dive into this week's #HPM chat moderated by @KathyKastner
                                Wed Apr 6 18:02:28 PDT 2011
KathyKastner      Hi @PracticalWisdom and @DNRstories. Gr8 to see you. A couple of announcement
                  from our 'leader' @ctsinclair #hpm
                  Wed Apr 6 18:02:40 PDT 2011




inhousehospice    RT @PracticalWisdom: Lets get ready to rumble with @KathyKastner #HPM as she
                  Hosts our community. http://bit.ly/gVcTuR #hpm
                  Wed Apr 6 18:02:51 PDT 2011




KathyKastner      The @NHPCO_News Management and Leadership conference is this week, follow
                  #MLC11 for updates #hpm
                  Wed Apr 6 18:02:59 PDT 2011




KathyKastner      Palliative Care Grand Rounds is back at @Pallimed Cases ->
                  http://cases.pallimed.org - Monthly best of the blogs #hpm
                  Wed Apr 6 18:03:19 PDT 2011




mdstudent31       @KathyKastner Congrats for guest-hosting! I plan to lurk, but that usually doesn't
                  happen when being around such great people at #hpm
                  Wed Apr 6 18:03:32 PDT 2011




KathyKastner      OK Announcements done: Hey and hi @inhousehospice and @MeredithGould
                  #hpm
                  Wed Apr 6 18:04:18 PDT 2011




EllenRichter      @KathyKastner I'm not usually available Wed nites at 9 pm but how could I miss
                  your hosting debut! #hpm
                  Wed Apr 6 18:04:18 PDT 2011




MeredithGould     @EllenRichter <waving wildly across the Twitterverse> #hpm
                  Wed Apr 6 18:04:39 PDT 2011




KathyKastner      @mdstudent lurk away. @EllenRichter yay hurray. #hpm
                  Wed Apr 6 18:05:13 PDT 2011




PracticalWisdom   Agree! RT @EllenRichter: @KathyKastner Im not usually available Wed nites at 9 pm
                  but how could I miss your hosting debut! #HPM
                  Wed Apr 6 18:05:16 PDT 2011




EllenRichter      @MeredithGould LMAO waving back, gf! Hope you are well! :) #hpm
                  Wed Apr 6 18:05:32 PDT 2011




DNRstories        @KathyKastner This is my first official tweet chat! :) #hpm Fun!
                  Wed Apr 6 18:06:20 PDT 2011




EllenRichter      @PracticalWisdom @mdstudent31 Nice to see you too! #hpm
                  Wed Apr 6 18:06:44 PDT 2011




KathyKastner      @DNRstories - first timer and.. I've just reviewed the book http://tinyurl.com/3g2z4k3
                  #hpm
Wed Apr 6 18:06:53 PDT 2011



mdstudent31       @EllenRichter @PracticalWisdom Great to see you as well!! #hpm
                  Wed Apr 6 18:07:23 PDT 2011




RossJeanette      hello all, HPM doc passionate about teaching @uthscsa multitasking getting child
                  ready for bed but will try to join in #hpm
                  Wed Apr 6 18:07:49 PDT 2011




MeredithGould     <--sociologist, writer, keen on communicating health & building online communities.
                  Gadfly tendencies. Also tweet as @HealthFaith #hpm
                  Wed Apr 6 18:08:13 PDT 2011




DrSnit            Hey all - good to see everyone here. #hpm
                  Wed Apr 6 18:08:14 PDT 2011




EllenRichter      That book looks wonderful! RT @KathyKastner: @DNRstories - first timer and.. I've
                  just reviewed the book http://tinyurl.com/3g2z4k3 #hpm
                  Wed Apr 6 18:08:18 PDT 2011




PracticalWisdom   Best April Fools joke came from this Bunch. You guys got me: http://bit.ly/fCTV4Z
                  #HPM
                  Wed Apr 6 18:08:23 PDT 2011




mdstudent31       @KathyKastner @DNRstories Great book, a must-get! :) #hpm
                  Wed Apr 6 18:08:26 PDT 2011




KathyKastner      @RossJeanette So tickled to have an #Hpm host here
                  Wed Apr 6 18:08:47 PDT 2011




inhousehospice    Hi! I'm Ash, marketing coordinator @inhousehospice & palliative care of MI and OH.
                  #hpm
                  Wed Apr 6 18:08:50 PDT 2011




MeredithGould     Got to tour Kaiser Permanente's Center for Total Health yesterday. Highly
                  recommend a visit. Heck, plan a conference there! #HPM #KPTCH
                  Wed Apr 6 18:09:08 PDT 2011




DrSnit            Melissa Travis, cultural medical research, patient. #hpm
                  Wed Apr 6 18:09:09 PDT 2011




KathyKastner      Sigh. Thanks for just going ahead w intros. Forgot my hosting duties. #hpm
                  Wed Apr 6 18:09:18 PDT 2011




akroundtree       RT @KathyKastner: OK Announcements done: Hey and hi @inhousehospice and
                  @MeredithGould #hpm
                  Wed Apr 6 18:09:27 PDT 2011




EllenRichter      I'm a critical care nurse in a retirement community in S. Florida where many of our
                  patients are at the end of their lives #hpm
patients are at the end of their lives #hpm
                  Wed Apr 6 18:09:30 PDT 2011




MeredithGould     @KathyKastner And the apologies begin! O Canada!! #hpm
                  Wed Apr 6 18:09:37 PDT 2011




PracticalWisdom   Huge wave to the entire #HPM Gang. What a Great Bunch tonight. @KathyKastner
                  What a great crowd you gathered. #HPM
                  Wed Apr 6 18:09:39 PDT 2011




DNRstories        @mdstudent31 @kathykastner Thank you both for the compliments! Very excited to
                  join in the #hpm 'movement'
                  Wed Apr 6 18:09:49 PDT 2011




KathyKastner      #hpm T1 Today=Hilll Day for NHPCO: Done any Legislative Advocacy?
                  Successes/Failures? Best Practices in social media ? (ok. 3 questions)
                  Wed Apr 6 18:10:01 PDT 2011




mdstudent31       Kevin, tomorrow-last day rotating as 4th yr med student, in limbo til graduation,
                  brainstorming new twitter names. Viva #FMRevolution! #hpm
                  Wed Apr 6 18:10:13 PDT 2011




DrSnit            @KathyKastner you are blowing our mind socks already! #hpm
                  Wed Apr 6 18:10:17 PDT 2011




MeredithGould     @DrSnit You should add "specializing in flame and *confetti* throwing" #HPM
                  Wed Apr 6 18:10:18 PDT 2011




KathyKastner      @DrSnit -I think you wanted to know about @DNRstories http://tinyurl.com/3g2z4k3
                  #hpm
                  Wed Apr 6 18:10:22 PDT 2011




akroundtree       On a plane. About to take off. Hoping to get a few #hpm tweets in!
                  Wed Apr 6 18:10:26 PDT 2011




KathyKastner      HA (eh)RT @MeredithGould: @KathyKastner And the apologies begin! O Canada!!
                  #hpm
                  Wed Apr 6 18:10:43 PDT 2011




DrSnit            This too. RT @MeredithGould: @DrSnit You should add "specializing in flame and
                  *confetti* throwing" #HPM
                  Wed Apr 6 18:11:17 PDT 2011




KathyKastner      @akroundtree thanks for joining before flying off.. #hpm
                  Wed Apr 6 18:11:19 PDT 2011




PracticalWisdom   morphs the ho-hum into compelling. Speaker, Trainer, Presentation Designer,
                  Rascal. Tweets R my own and do represent my Employer~Me. #HPM
                  Wed Apr 6 18:11:26 PDT 2011




                  Ohh- yes! Thank you! RT @KathyKastner: @DrSnit -I think you wanted to know about
DrSnit          @DNRstories http://tinyurl.com/3g2z4k3 #hpm
                Wed Apr 6 18:11:47 PDT 2011




MeredithGould   T1 IMO, participating in Legislative Action days requires lots of prep and training.
                #hpm
                Wed Apr 6 18:12:33 PDT 2011




aliciabloom     @DNRstories is compelling and well written. had privilege of reading advance copy
                :) great teaching tool for patients & clinicians #hpm
                Wed Apr 6 18:13:15 PDT 2011




DNRstories      #hpm One of my favorite stories is about 18 yo kid w/ cystic fibrosis who put himself
                on hospice. Mom says she was only able to cope b/c
                Wed Apr 6 18:13:18 PDT 2011




KathyKastner    Tell us more RT @MeredithGould: T1 IMO, participating in Legislative Action days
                requires lots of prep and training. #hpm
                Wed Apr 6 18:13:23 PDT 2011




DNRstories      of closure that hospice gives. #hpm
                Wed Apr 6 18:13:32 PDT 2011




akroundtree     RT @MeredithGould: T1 IMO, participating in Legislative Action days requires lots of
                prep and training. #hpm
                Wed Apr 6 18:13:35 PDT 2011




mdstudent31     T1: Love hitting the hill for @AAFP FMCC, coming up again in May, we advocate for
                the advancement of family medicine #hpm
                Wed Apr 6 18:13:49 PDT 2011




MeredithGould   T1 It's not a field trip! It's a strategic foray into a world with (crazy) rules and roles. Not
                for everyone nor should be! #hpm
                Wed Apr 6 18:14:31 PDT 2011




KathyKastner    T1 What kind of prep? WHere do you get training? #hpm
                Wed Apr 6 18:14:38 PDT 2011




mdstudent31     T1: @AAFP does a good job organizing a 2day conference. Day 1 - learn how to
                lobby, Day 2 - go do it. #hpm
                Wed Apr 6 18:14:50 PDT 2011




MeredithGould   RT @mdstudent31: T1: @AAFP does a good job organizing a 2day conference. Day
                1 - learn how to lobby, Day 2 - go do it. #hpm
                Wed Apr 6 18:15:14 PDT 2011




KathyKastner    RT @mdstudent31: T1: @AAFP does a good job organizing a 2day conference. Day
                1 - learn how to lobby, Day 2 - go do it. #hpm
                Wed Apr 6 18:15:24 PDT 2011




mdstudent31     T1: We roll up w/ physicians, residents, and students from the same state. Go with
                3-4 talking points, keep it simple & stick to them #hpm
                Wed Apr 6 18:15:47 PDT 2011
KathyKastner      T1 Cost of @aafp training? #hpm
                  Wed Apr 6 18:16:01 PDT 2011




MeredithGould     Prep: Learning lingo (not buzz words), how to be succinct, body language
                  management. Issues. #hpm
                  Wed Apr 6 18:16:26 PDT 2011




mdstudent31       @KathyKastner $250 for Physicians/residents $99 for med studentss. Scholarships
                  available for residents/students #hpm
                  Wed Apr 6 18:17:05 PDT 2011




KathyKastner      Oooh. good. RT @MeredithGould: Prep: Learning lingo (not buzz words), how to be
                  succinct, body language management. Issues. #hpm
                  Wed Apr 6 18:17:17 PDT 2011




EllenRichter      Thats good use of time! RT @mdstudent31 T1 @AAFP does good job organizing
                  2day conference. Day 1- learn how to lobby, Day 2- go do it #hpm
                  Wed Apr 6 18:17:18 PDT 2011




MeredithGould     Prep: learning which legislative aide has any power/influence...not to mention time.
                  #hpm
                  Wed Apr 6 18:17:33 PDT 2011




KathyKastner      and affordable !RT @mdstudent31:$250 for Physicians/residents $99 for med
                  studentss. Scholarships available for residents/students #hpm
                  Wed Apr 6 18:17:42 PDT 2011




mdstudent31       More info here: http://bit.ly/eq8aR5 #hpm
                  Wed Apr 6 18:17:56 PDT 2011




DNRstories        T1: #hpm How do you find time to do during med school? what about
                  residents/fellows?
                  Wed Apr 6 18:18:03 PDT 2011




PracticalWisdom   T1: So unless you have official Med. Status you would not be able to participate?
                  #HPM
                  Wed Apr 6 18:18:11 PDT 2011




MeredithGould     Prep: What kinds of materials to leave behind -- if they'll go for paper. #hpm
                  Wed Apr 6 18:18:16 PDT 2011




aliciabloom       advocacy is about the right message, delivered the right way with a strong voice.
                  important, challenging task for our #hpm community!
                  Wed Apr 6 18:18:20 PDT 2011




KathyKastner      Thanks @mdstudent31: More info here: http://bit.ly/eq8aR5 #hpm
                  Wed Apr 6 18:18:22 PDT 2011




MeredithGould     RT @mdstudent31: More info here: http://bit.ly/eq8aR5 #hpm
MeredithGould
                  Wed Apr 6 18:18:41 PDT 2011




EllenRichter      @MeredithGould T1 Sounds like you've done this before! #hpm
                  Wed Apr 6 18:19:01 PDT 2011




MeredithGould     RT @aliciabloom: advocacy is about the right message, delivered the right way with
                  a strong voice. #hpm
                  Wed Apr 6 18:19:11 PDT 2011




KathyKastner      Did you go to @aafp? RT @MeredithGould: Prep: What kinds of materials to leave
                  behind -- if theyll go for paper. #hpm
                  Wed Apr 6 18:19:21 PDT 2011




mdstudent31       @DNRstories I tell student affairs far in advance that I am going and will make up
                  the time in whatever they would like me to do #hpm
                  Wed Apr 6 18:19:49 PDT 2011




MeredithGould     Prep: messages have to be coherent and coordinated. Need to manage loose
                  cannons in your own team. #hpm
                  Wed Apr 6 18:19:53 PDT 2011




PracticalWisdom   T1: The Language is always important. Quakers call it plain speak. No death panel
                  talk. #HPM
                  Wed Apr 6 18:19:53 PDT 2011




KathyKastner      RT @aliciabloom: advocacy about right message, delivered right way with a strong
                  voice. important, challenging task for #hpm #hpm
                  Wed Apr 6 18:20:16 PDT 2011




mdstudent31       T1: Stuff to leave behind: a summary of your talking points with lists of references to
                  find more info on each. #hpm
                  Wed Apr 6 18:20:23 PDT 2011




inhousehospice    RT @PracticalWisdom: T1: The Language is always important. Quakers call it plain
                  speak. No death panel talk. #hpm
                  Wed Apr 6 18:20:59 PDT 2011




akroundtree       With any success influencing legislators? “@mdstudent31: T1: Go with 3-4 talking
                  points & stick to them #hpm”
                  Wed Apr 6 18:21:02 PDT 2011




KathyKastner      @MeredithGould @mdstudent31 what a fab wealth of info #hpm
                  Wed Apr 6 18:21:30 PDT 2011




MeredithGould     While there: Do not waste anyone's time, do not sound stupid, wear good shoes.
                  #hpm
                  Wed Apr 6 18:21:30 PDT 2011




mdstudent31       @MeredithGould Having no loose canons is definitely a must - prep what each
                  person will talk about, be brief, be balanced #hpm
                  Wed Apr 6 18:21:53 PDT 2011
KathyKastner      It's always about the shoes innitRT @MeredithGould: While there: Do not waste
                  anyones time, do not sound stupid, wear good shoes. #hpm
                  Wed Apr 6 18:22:11 PDT 2011




MeredithGould     Re: success: develop a reasonable definition of success so you don't get
                  crazy/disappointed. #hpm
                  Wed Apr 6 18:22:15 PDT 2011




mdstudent31       The more you shift person to person, the more attention you will grab. One person
                  stealing the spotlight leads to watch/clock-glancing #hpm
                  Wed Apr 6 18:22:32 PDT 2011




MeredithGould     @KathyKastner Absolutely! Shoes! #hpm
                  Wed Apr 6 18:22:46 PDT 2011




DNRstories        @KathyKastner Haha- you read my mind! #hpm
                  Wed Apr 6 18:23:01 PDT 2011




aliciabloom       definitely no death panel talk! that propaganda is what makes folks afraid to discuss
                  EoL issues or even develop an advance directive. #hpm
                  Wed Apr 6 18:23:04 PDT 2011




mdstudent31       @akroundtree You get a feel from the questions/ body language. You usually don't
                  have to ask straight up if you have influenced them #hpm
                  Wed Apr 6 18:23:21 PDT 2011




KathyKastner      I wondered too RT @akroundtree: With any success influencing legislators?
                  “@mdstudent31: #hpm
                  Wed Apr 6 18:23:24 PDT 2011




PracticalWisdom   T1: Could a link to a Slideshare be used? This would help bring additional
                  educational opportunities. #HPM
                  Wed Apr 6 18:23:24 PDT 2011




MeredithGould     @mdstudent31 Right...which means the group has to become a TEAM before the
                  event. #hpm
                  Wed Apr 6 18:23:25 PDT 2011




mdstudent31       @MeredithGould Exactly! We are already in contact and the conference is over a
                  month away #hpm
                  Wed Apr 6 18:23:53 PDT 2011




MeredithGould     Hot flash: If THEY bring up "death panels," then YOU have to talk about 'em in a
                  reframe YOU create. #hpm
                  Wed Apr 6 18:24:09 PDT 2011




KathyKastner      Shouldn't all md's learn to key into.. @mdstudent31: You get a feel from the
                  questions/ body language. #hpm
                  Wed Apr 6 18:24:39 PDT 2011




                  @mdstudent31 Good point: this stuff needs to be planned, scripted, etc. months
@mdstudent31 Good point: this stuff needs to be planned, scripted, etc. months
MeredithGould     ahead of time, if possible. #hpm
                  Wed Apr 6 18:24:45 PDT 2011




KathyKastner      #hpm T2 Something completely different: successfully Aging in place. What are
                  some (creative) solutions for quality of life.
                  Wed Apr 6 18:25:02 PDT 2011




KathyKastner      Very hot flashRT @MeredithGould: Hot flash: If THEY bring up "death panels," then
                  YOU have to talk about em in a reframe YOU create. #hpm
                  Wed Apr 6 18:25:02 PDT 2011




mdstudent31       The earlier you contact staff/office of legislator you want to visit, the better you
                  organize your visits/easier for them to fit you in #hpm
                  Wed Apr 6 18:25:40 PDT 2011




MeredithGould     T2 I feel like I'm aging in place right now. How creative is that/am I? #hpm
                  Wed Apr 6 18:25:59 PDT 2011




mdstudent31       @KathyKastner In theory yes... in theory. #hpm
                  Wed Apr 6 18:26:10 PDT 2011




nursingpins       RT @MeredithGould: T2 I feel like I'm aging in place right now. How creative is
                  that/am I? #hpm
                  Wed Apr 6 18:26:35 PDT 2011




KathyKastner      I think this tweet-chat may b turning into a cheat sheet #hpm
                  Wed Apr 6 18:26:36 PDT 2011




DNRstories        @KathyKastner #hpm Impt to DEFINE your quality of life. Many patinets dont seem to
                  think about what that term means to THEM.
                  Wed Apr 6 18:26:41 PDT 2011




PracticalWisdom   Suzana Makowski Work Can help us so much. http://slidesha.re/ezipSM #HPM
                  Wed Apr 6 18:26:51 PDT 2011




KathyKastner      As long as you're hot flashing, very RT @MeredithGould: T2 I feel like Im aging in
                  place right now. How creative is that/am I? #hpm
                  Wed Apr 6 18:26:58 PDT 2011




familydocwonk     See you there en vivo! @mdstudent31: T1: Love hitting the hill for @AAFP FMCC,
                  coming up again in May #hpm
                  Wed Apr 6 18:27:03 PDT 2011




DrSnit            @KathyKastner Creative solutions for QoL? Can you define this more what you
                  mean by successful aging? #hpm
                  Wed Apr 6 18:27:07 PDT 2011




DrSnit            @MeredithGould snicker #hpm
                  Wed Apr 6 18:27:23 PDT 2011
inhousehospice    T2: Determine pt. goals/wishes early -- the rest follows that. #hpm
                  Wed Apr 6 18:27:30 PDT 2011




MeredithGould     @KathyKastner Oh I am so way beyond hot flashes & thank God, time & acupuncture
                  for that! TMI #hpm
                  Wed Apr 6 18:27:39 PDT 2011




KathyKastner      @nursingpins @familydocwonk Greetings! #hpm
                  Wed Apr 6 18:28:29 PDT 2011




DrSnit            @MeredithGould WORD to the TMI- TWEETS! #hpm
                  Wed Apr 6 18:28:36 PDT 2011




aliciabloom       @DNRstories agreed! in order to develop a strategy to maintain QoL, we need to
                  understand what it means to the individual. #hpm
                  Wed Apr 6 18:28:39 PDT 2011




MeredithGould     @DrSnit Successful aging = staying put in yr own home w/o breaking a hip or setting
                  it on fire or having adult children move back in. #hpm
                  Wed Apr 6 18:28:44 PDT 2011




DNRstories        @inhousehospice Agree. Define your personal philosophy. What is 'acceptable' vs.
                  not acceptable for QOL. Different for everyone! #hpm
                  Wed Apr 6 18:28:47 PDT 2011




EllenRichter      T2 Much of successful aging has to do with outlook, attitude, love for life. Aging
                  people must be actively involved in making choices. #hpm
                  Wed Apr 6 18:28:50 PDT 2011




KathyKastner      Now that u ask: I think success is dif for everyone RT @DrSnit: Creative solutions for
                  QoL? you mean by successful aging? #hpm
                  Wed Apr 6 18:29:26 PDT 2011




DrSnit            @MeredithGould In this case - some people are very unsuccessful at youth. har.
                  #hpm
                  Wed Apr 6 18:29:36 PDT 2011




PracticalWisdom   @MeredithGould @KathyKastner : Barbie does acupuncture http://bit.ly/fx0znP #HPM
                  Wed Apr 6 18:29:49 PDT 2011




nursingpins       RT @MeredithGould: @DrSnit Successful aging = staying put in yr own home w/o
                  breaking a hip or setting it on fire or having adult children move back in. #hpm
                  Wed Apr 6 18:30:05 PDT 2011




KathyKastner      RT @MeredithGould: @DrSnit Success aging = staying put in yr own home w/o
                  breaking a hip setting n fire having children move back in. #hpm
                  Wed Apr 6 18:30:12 PDT 2011




MeredithGould     RT @EllenRichter: T2 Much of successful aging has to do with outlook, attitude, love
                  for life. Must be actively involved in choices. #hpm
                  Wed Apr 6 18:30:28 PDT 2011
Wed Apr 6 18:30:28 PDT 2011




KathyKastner      Hah! RT @DrSnit: @MeredithGould In this case - some people are very
                  unsuccessful at youth. har. #hpm
                  Wed Apr 6 18:30:31 PDT 2011




GerryWiederRN     @PracticalWisdom @MeredithGould @KathyKastner Oh my! #hpm
                  Wed Apr 6 18:30:32 PDT 2011




PracticalWisdom   T2: I remember when folks would begin to dress and act old when they hit 40! Not
                  anymore! #HPM
                  Wed Apr 6 18:30:35 PDT 2011




KathyKastner      I knew I shouldn't a givenher awayRT @PracticalWisdom: @MeredithGould
                  @KathyKastner : Barbie does acupuncture http://bit.ly/fx0znP #hpm
                  Wed Apr 6 18:30:52 PDT 2011




DrSnit            Finding Quality of Life & Successful ways to age are both cultural perceptions AND
                  certainly need to be discussed with our families! #hpm
                  Wed Apr 6 18:30:58 PDT 2011




aliciabloom       once QoL & goals are defined, advance care planning is key-- we can reduce
                  distress for patients AND families when we help them plan. #hpm
                  Wed Apr 6 18:31:11 PDT 2011




DrBeckerSchutte   Age is entirely an attitude (and a reflection of health). My grandma was not old at 85,
                  but she was at 92. #hpm
                  Wed Apr 6 18:31:30 PDT 2011




KathyKastner      @GerryWeiderRN Hi and welcome. Love yr opening comment :) #hpm
                  Wed Apr 6 18:31:38 PDT 2011




MeredithGould     RT @DrSnit: Finding Quality of Life & Successful ways to age are both cultural
                  perceptions<--absolutely #hpm
                  Wed Apr 6 18:31:42 PDT 2011




mdstudent31       T2: Create realistic bucket list, solidify support at home, connect w/ community
                  resources, maintain strong interpersonal relationships #hpm
                  Wed Apr 6 18:31:46 PDT 2011




inhousehospice    RT @aliciabloom: once QoL & goals are defined, adv care planning is key- can
                  reduce distress for pts AND fams when we help them plan #hpm
                  Wed Apr 6 18:31:58 PDT 2011




DrBeckerSchutte   @aliciabloom--I totally agree that planning is key to reducing family distress. #hpm
                  Wed Apr 6 18:32:13 PDT 2011




DrSnit            Having adult children living with us for some is not only an expectation, but a way of
                  respect, and doesn't diminish us, hence, culture #hpm
                  Wed Apr 6 18:32:14 PDT 2011
DNRstories        T2 My hubbie having a hard time with "aging". He is upset we don't stay up past
                  10pm (we're early 30s). He is not 'aging' graceflly #hpm
                  Wed Apr 6 18:32:19 PDT 2011




KathyKastner      @drbeckerschutte Thanks for joining. Totally agree age is an attitude #hpm
                  Wed Apr 6 18:32:33 PDT 2011




GerryWiederRN     Best laid plans...my 83 year old mom was it by a car. Changed everything.
                  Independent to institutionalized. #hpm
                  Wed Apr 6 18:32:38 PDT 2011




drbeckerschutte   BTW--Hi all! I'm a psychologist from the Kansas City, MO area. #hpm
                  Wed Apr 6 18:32:41 PDT 2011




MeredithGould     @DrSnit You're right about the adult children at home (i.e. extended family) being
                  cultural. Go ahead, stomp on my best lines. #hpm
                  Wed Apr 6 18:32:59 PDT 2011




DNRstories        RT @aliciabloom: once QoL & goals are defined, advance care planning is key-- we
                  can reduce distress for patients AND families when we help them plan. #hpm
                  Wed Apr 6 18:32:59 PDT 2011




GerryWiederRN     Hi all...RN in Seattle working in HIT. #hpm
                  Wed Apr 6 18:33:26 PDT 2011




EllenRichter      @GerryWiederRN So distressing to hear. Yes, life can just grab us by the jugulars at
                  times, cant it? #hpm
                  Wed Apr 6 18:33:31 PDT 2011




DrSnit            @MeredithGould NOT STOMPING. Promise. Just reminding people to open
                  themselves to non-traditional western values. #hpm
                  Wed Apr 6 18:33:43 PDT 2011




MeredithGould     @EllenRichter Or lower... #hpm
                  Wed Apr 6 18:33:46 PDT 2011




KathyKastner      Did it help you being hcp? RT @GerryWiederRN: Best laid plans...my 83 year old
                  mom was it by a car. Independent to institutionalized. #hpm
                  Wed Apr 6 18:33:51 PDT 2011




GerryWiederRN     @MeredithGould @DrSnit Not cultural necessarily...forced by this crummy economy.
                  #hpm
                  Wed Apr 6 18:34:16 PDT 2011




EllenRichter      @MeredithGould LOL yes, even there ;) #hpm
                  Wed Apr 6 18:34:21 PDT 2011




DrBeckerSchutte   @KathyKastner @GerryWiederRN Kathy--you got my ??, I wonder if planning helped
                  ease the pain? #hpm
                  Wed Apr 6 18:34:35 PDT 2011
KathyKastner    (and they laugh when I say lots of silliness on hpm RT @MeredithGould:
                @EllenRichter Or lower... #hpm
                Wed Apr 6 18:34:46 PDT 2011




DrSnit          RT @MeredithGould: @DrSnit Successful aging = staying put in yr own home w/o
                breaking a hip or setting it on fire or having adult children move back in. #hpm
                Wed Apr 6 18:35:02 PDT 2011




GerryWiederRN   @KathyKastner @GerryWiederRN Not sure. I think I'm able to see more flaws in a
                very flawed system. #hpm
                Wed Apr 6 18:35:05 PDT 2011




MeredithGould   @GerryWiederRN True and actually might restore extended family values, which
                wouldn't be such a bad thing! #hpm
                Wed Apr 6 18:35:22 PDT 2011




mdstudent31     Not sure what happened in past 10 years. Something about school? Receding
                hairline and some grey hair - when did that happen? #hpm
                Wed Apr 6 18:35:31 PDT 2011




KathyKastner    AmenRT @MeredithGould: @GerryWiederRN True and actually might restore
                extended family values, which wouldnt be such a bad thing! #hpm
                Wed Apr 6 18:35:49 PDT 2011




DrSnit          @GerryWiederRN Crummy economy too. I'm just discussing the non-western
                cultural ones where families do it anyway! #hpm
                Wed Apr 6 18:36:02 PDT 2011




GerryWiederRN   @MeredithGould @GerryWiederRN True. I think it's actually been a blessing in our
                family. #hpm
                Wed Apr 6 18:36:17 PDT 2011




KathyKastner    Say more plsRT @MeredithGould @GerryWiederRN True. I think its actually been a
                blessing in our family. #hpm
                Wed Apr 6 18:36:52 PDT 2011




DNRstories      @mdstudent31 It's the call schedule. Just wait till residency :) #hpm
                Wed Apr 6 18:36:55 PDT 2011




GerryWiederRN   Perhaps we are discovering what families already know in non-western cultures.
                #hpm
                Wed Apr 6 18:37:05 PDT 2011




RossJeanette    succesful aging=maintaining functional status! #hpm
                Wed Apr 6 18:37:20 PDT 2011




KathyKastner    Lots to learn from othersRT @GerryWiederRN: Perhaps we are discovering what
                families already know in non-western cultures. #hpm
                Wed Apr 6 18:37:40 PDT 2011




MeredithGould   The blessing is that younger generations get to know older generations & vice versa
MeredithGould     The blessing is that younger generations get to know older generations & vice versa
                  #hpm
                  Wed Apr 6 18:37:44 PDT 2011




KathyKastner      To patient's def of functionalRT @RossJeanette: succesful aging=maintaining
                  functional status! #hpm
                  Wed Apr 6 18:38:08 PDT 2011




DrBeckerSchutte   @GerryWiederRN Gerry--Having my grandmother live with us was a real blessing. I
                  know she would have preferred independence... #hpm
                  Wed Apr 6 18:38:09 PDT 2011




mdstudent31       @DNRstories Back when I did residency and there were no work-hours restrictions
                  :) We're not as hardcore anymore #hpm
                  Wed Apr 6 18:38:09 PDT 2011




KathyKastner      Nice. RT @MeredithGould: The blessing is that younger generations get to know
                  older generations & vice versa #hpm
                  Wed Apr 6 18:38:22 PDT 2011




MeredithGould     successful aging = getting senior discounts but still looking fabulous. (Personal
                  definition) #hpm
                  Wed Apr 6 18:38:24 PDT 2011




PracticalWisdom   T2: Cuccesful Aging-Dignity. Better not call me Honey, Sweetie, Etc. when I hit the
                  "Home" #HPM
                  Wed Apr 6 18:38:39 PDT 2011




PracticalWisdom   Wisdom RT @KathyKastner: Nice. RT @MeredithGould: The blessing is that
                  younger generations get to know older generations & vice versa #HPM
                  Wed Apr 6 18:39:02 PDT 2011




drbeckerschutte   @RossJeanette I couldn't agree more. And that's an awfully personal definition.
                  #hpm
                  Wed Apr 6 18:39:06 PDT 2011




EllenRichter      T2 We need more efforts made to help the elderly survivor work through the great &
                  unseemingly hopeless loss of a spouse #hpm
                  Wed Apr 6 18:39:13 PDT 2011




KathyKastner      Have u considered stand up comedy? RT @MeredithGould: successful aging =
                  getting senior discounts but still looking fab. (Pers def) #hpm
                  Wed Apr 6 18:39:14 PDT 2011




DrSnit            Yes. Family takes work. RT @MeredithGould The blessing is that younger
                  generations get to know older generations & vice versa #hpm
                  Wed Apr 6 18:39:33 PDT 2011




GeroAmericano     T2: more like "aging in Community," like the "village" idea - support of neighbors
                  @innovate4impact #hpm
                  Wed Apr 6 18:39:37 PDT 2011




drbeckerschutte   @PracticalWisdom Couldn't agree more. I don't know why we culturally treat older
                  adults as children. #hpm
adults as children. #hpm
                  Wed Apr 6 18:39:39 PDT 2011




pfanderson        RT @KathyKastner: Have u considered stand up comedy? RT @MeredithGould:
                  successful aging = getting senior discounts but still looking fab. (Pers def) #hpm
                  Wed Apr 6 18:39:58 PDT 2011




GerryWiederRN     @MeredithGould LOL. Does that include at Macdonalds? #hpm
                  Wed Apr 6 18:40:00 PDT 2011




MeredithGould     @KathyKastner Yes but I ditched the idea because I hate smoke & don't drink, which
                  limits venues. #hpm
                  Wed Apr 6 18:40:01 PDT 2011




KathyKastner      #hpm T3 How can long distance family/caregivers help with patients/caregivers on
                  the 'front lines'
                  Wed Apr 6 18:40:03 PDT 2011




KathyKastner      Just to warn.. T3's a coming.. and it's related to T2 (I think) #hpm
                  Wed Apr 6 18:40:17 PDT 2011




DNRstories        @PracticalWisdom T2- this is actually a good point for MDs to remember. I upset a
                  pt once by calling her 'dear'. Impt lesson 4 me. #hpm
                  Wed Apr 6 18:40:33 PDT 2011




MeredithGould     T3 Learn how to use social media wisely and well!!! #hpm
                  Wed Apr 6 18:40:48 PDT 2011




DrSnit            I don't want to discount the "family of choice" that many alternative families turn to. It
                  is not readily recognized but it happens #hpm
                  Wed Apr 6 18:40:57 PDT 2011




aliciabloom       @PracticalWisdom agreed! i get insulted when i hear care providers call patients
                  "honey" & "sweetie." it does not maintain dignity. #hpm
                  Wed Apr 6 18:41:02 PDT 2011




GerryWiederRN     @KathyKastner Great topic. I'm the distant family. #hpm
                  Wed Apr 6 18:41:08 PDT 2011




KathyKastner      Hello @GeroAmericano Welcome! #hpm
                  Wed Apr 6 18:41:12 PDT 2011




DrSnit            @MeredithGould hahahaha- there is truth in this standup world. ;) #hpm
                  Wed Apr 6 18:41:21 PDT 2011




drbeckerschutte   T3--I think that non-judgment is huge! Respecting that the on-site caregiver is doing
                  hard work, even if it's different than you. #hpm
                  Wed Apr 6 18:41:23 PDT 2011




KathyKastner      And? what do you doRT @GerryWiederRN: @KathyKastner Great topic. Im the
KathyKastner      And? what do you doRT @GerryWiederRN: @KathyKastner Great topic. Im the
                  distant family. #hpm
                  Wed Apr 6 18:41:32 PDT 2011



GerryWiederRN     T3. I distant family can "lend perspective" to family/caregivers on the front lines.
                  #hpm
                  Wed Apr 6 18:41:54 PDT 2011




EllenRichter      T3 Its quite difficult. Working with EOL patients who are snowbirds means all family
                  is up north. Its always difficult dying like that #hpm
                  Wed Apr 6 18:42:06 PDT 2011




KathyKastner      !!!!!RT @drbeckerschutte: T3--non-judgment huge! Respecting that the on-site
                  caregiver is doing hard work, even if idifferent than u #hpm
                  Wed Apr 6 18:42:24 PDT 2011




PracticalWisdom   @DNRstories: Different Strokes for Different Folks. If I like someone they can give
                  term of endearment. #HPM
                  Wed Apr 6 18:42:25 PDT 2011




KathyKastner      RT @GerryWiederRN: T3. I distant family can "lend perspective" to family/caregivers
                  on the front lines. #hpm
                  Wed Apr 6 18:42:35 PDT 2011




DrBeckerSchutte   T3--Also being willing to provide respite care, and encouraging on-site caregiver to
                  take breaks. #hpm
                  Wed Apr 6 18:42:52 PDT 2011




PracticalWisdom   RT @drbeckerschutte: T3 Non-judgment is huge! Respecting the on-site caregiver is
                  doing hard work, even if its different than you. #HPM
                  Wed Apr 6 18:42:52 PDT 2011




MedicalMarcom     Just tripped across #hpm. What does hpm stand for?
                  Wed Apr 6 18:42:58 PDT 2011




MeredithGould     T3 Set up a portal for shared info, records, convo. #hpm
                  Wed Apr 6 18:43:08 PDT 2011




GerryWiederRN     T3 I've been doing some of the stuff I can do remotely as well. Phoning and talking to
                  local resources. #hpm
                  Wed Apr 6 18:43:15 PDT 2011




MeredithGould     @MedicalMarcom Hospice and Palliative Medicine #hpm
                  Wed Apr 6 18:43:21 PDT 2011




RossJeanette      T3 distant caregiver could make planned visit so on site caregiver can take a break.
                  #hpm
                  Wed Apr 6 18:43:31 PDT 2011




EllenRichter      T3 No matter how much distant family is involved by phone, they always feel guilty &
                  inadequate. Wish there were better ways. #hpm
                  Wed Apr 6 18:43:34 PDT 2011
Wed Apr 6 18:43:34 PDT 2011




DrBeckerSchutte   @MeredithGould I like that! #hpm
                  Wed Apr 6 18:43:38 PDT 2011




PracticalWisdom   T3: Sometimes it might look like family does not care but sometimes it's the PT's
                  wish. Families can be very complex. #HPM
                  Wed Apr 6 18:43:40 PDT 2011




KathyKastner      Hi @MedicalMarcom: Welcome. Means hospice and Palliative Meds (we're a very
                  funny bunch) #hpm
                  Wed Apr 6 18:43:58 PDT 2011




GerryWiederRN     T3. I'm always self-conscious about being the do-nothing so-and-so relative from a
                  far. It can be tough too. #hpm
                  Wed Apr 6 18:44:15 PDT 2011




KathyKastner      RT @GerryWiederRN: T3 Ive been doing some of the stuff I can do remotely as well.
                  Phoning and talking to local resources. #hpm
                  Wed Apr 6 18:44:21 PDT 2011




DrSnit            T3 Long distance family dealing w EOL pts/caregivers can send food, get house
                  cleaners, hire lawn care, THE WORK THAT DOESN'T GET DONE #hpm
                  Wed Apr 6 18:44:23 PDT 2011




RossJeanette      @MedicalMarcom HPM stands for hospice and palliative medicine, welcome #hpm
                  Wed Apr 6 18:44:24 PDT 2011




aliciabloom       i'm a big proponent of speaker phones for goals of care meetings to engage family
                  at a distance. bonus: it reduces conflict. #hpm
                  Wed Apr 6 18:44:33 PDT 2011




GerryWiederRN     RT @PracticalWisdom: Sometimes it might look like family does not care but
                  sometimes its the PTs wish. Families can be very complex. #hpm
                  Wed Apr 6 18:44:40 PDT 2011




PracticalWisdom   T3: Think there is a wonderful role for Prof. Advocates for Older Adults. Ex. Help move
                  to Assisted Living. If motives are true. #HPM
                  Wed Apr 6 18:44:50 PDT 2011




DNRstories        T3- send food package to caregiver. A rest from cooking is welcome break. Massage
                  good too. Caregivers neglect themselves. #hpm
                  Wed Apr 6 18:45:16 PDT 2011




MeredithGould     @GerryWiederRN Hope you're talking with someone (other than the millions on
                  Twitter) about feeling thusly. #hpm
                  Wed Apr 6 18:45:18 PDT 2011




GerryWiederRN     @aliciabloom We've done family phone conferences. It helps a lot. #hpm
                  Wed Apr 6 18:45:33 PDT 2011




                  T3 Hire a specialist to handle all the insurance-related and other paperwork. #hpm
T3 Hire a specialist to handle all the insurance-related and other paperwork. #hpm
                  Wed Apr 6 18:45:50 PDT 2011
MeredithGould

KathyKastner      RT @GerryWiederRN: @aliciabloom Weve done family phone conferences. It helps
                  a lot. #hpm
                  Wed Apr 6 18:45:56 PDT 2011




aliciabloom       @MedicalMarcom we're the hospice & palliative medicine community. the coolest
                  kids on Twitter! #hpm
                  Wed Apr 6 18:46:06 PDT 2011




DrSnit            Being far away doesn't mean you can't be involved. Just as being NEAR. People are
                  often afraid to INSERT themselves. Loving takes risk. #hpm
                  Wed Apr 6 18:46:17 PDT 2011




DNRstories        I've seen @aliciabloom in action and she's right. It really does help, although it
                  makes everyone shout #hpm :)
                  Wed Apr 6 18:46:23 PDT 2011




GerryWiederRN     @DNRstories And those that are thrown to be martyrs have an opportunity. #hpm
                  Wed Apr 6 18:46:26 PDT 2011




DrBeckerSchutte   @DNRstories I like the focus on the practicalities that get lost if someone is doing
                  care-giving. #hpm
                  Wed Apr 6 18:46:39 PDT 2011




DrSnit            @MeredithGould YES YES YES. The work. The stuff that can't get done. The annoying
                  things. #hpm
                  Wed Apr 6 18:46:40 PDT 2011




MaryAgnesKelley   RT @aliciabloom: @PracticalWisdom agreed! i get insulted when i hear care
                  providers call patients "honey" & "sweetie." it does not maintain dignity. #hpm
                  Wed Apr 6 18:46:46 PDT 2011




PracticalWisdom   T3: Guiding the Elderly in Living Arrangementshttp://bit.ly/geW14O #HPM
                  Wed Apr 6 18:46:48 PDT 2011




EllenRichter      Good suggestion! RT @MeredithGould: T3 Hire a specialist to handle all the
                  insurance-related and other paperwork. #hpm
                  Wed Apr 6 18:46:50 PDT 2011




KathyKastner      In my fam, we had assigned roles: sis=worrier, bro=researcher moi= coordinator
                  #hpm
                  Wed Apr 6 18:47:11 PDT 2011




GerryWiederRN     RT @DrSnit: Loving takes risk. <= amen #hpm
                  Wed Apr 6 18:47:12 PDT 2011




aliciabloom       “@DNRstories: I've seen @aliciabloom in action and she's right. It really does help,
                  although it makes everyone shout #hpm :)” so true!
                  Wed Apr 6 18:47:31 PDT 2011
KathyKastner      Welcome @MaryAgnesKelley #hpm
                  Wed Apr 6 18:47:35 PDT 2011




GerryWiederRN     RT @KathyKastner: In my fam, we had assigned roles: sis=worrier, bro=researcher
                  moi= coordinator LOL. #hpm
                  Wed Apr 6 18:47:43 PDT 2011




MeredithGould     If you can afford it, offload all the crap that gets in the way of providing personal
                  support from afar. #hpm
                  Wed Apr 6 18:47:44 PDT 2011




MeredithGould     RT @KathyKastner: In my fam, we had assigned roles: sis=worrier, bro=researcher
                  moi= coordinator #hpm
                  Wed Apr 6 18:47:55 PDT 2011




KathyKastner      RT @MeredithGould: If you can afford it, offload all the crap that gets in the way of
                  providing personal support from afar. #hpm
                  Wed Apr 6 18:48:03 PDT 2011




GerryWiederRN     I could be the "worrier" :) #hpm
                  Wed Apr 6 18:48:04 PDT 2011




PracticalWisdom   @KathyKastner: Now there are so many smaller families or folks who never had
                  children. #HPM
                  Wed Apr 6 18:48:05 PDT 2011




PracticalWisdom   Who to trust?RT @MeredithGould: If U can afford it, offload all the crap that gets in
                  the way of providing personal support from afar. #HPM
                  Wed Apr 6 18:48:29 PDT 2011




KathyKastner      True. RT @PracticalWisdom: @KathyKastner: Now there are so many smaller
                  families or folks who never had children. #hpm
                  Wed Apr 6 18:48:40 PDT 2011




MeredithGould     @KathyKastner Someone always needs to be designated coordinator & everyone
                  has to honor that. Families get even crazier under stress #hpm
                  Wed Apr 6 18:48:47 PDT 2011




MeredithGould     @PracticalWisdom Get personal referrals. #hpm
                  Wed Apr 6 18:49:03 PDT 2011




MaryAgnesKelley   RT @EllenRichter: T2 We need more efforts made to help the elderly survivor work
                  through the great & unseemingly hopeless loss of a spouse #hpm
                  Wed Apr 6 18:49:05 PDT 2011




GerryWiederRN     @PracticalWisdom @MeredithGould My wife's in senior living business. She says
                  those folks are the hardest--no family support. #hpm
                  Wed Apr 6 18:49:20 PDT 2011




KathyKastner      Oh man, I was so happy to offload that to my sis RT @GerryWiederRN: I could be the
                  "worrier" :) #hpm
"worrier" :) #hpm
                  Wed Apr 6 18:49:31 PDT 2011



DrBeckerSchutte   AMEN!!!RT@KathyKastner Someone always needs to be designated coordinator &
                  everyone honor that. Families get crazier under stress. #hpm
                  Wed Apr 6 18:50:07 PDT 2011




EllenRichter      T3 What about those who have no family & are at the end of their lives? They still
                  need caring care, even with no loved ones or family. #hpm
                  Wed Apr 6 18:50:09 PDT 2011




akroundtree       I think some units @ MDACC are moving to a model like this. “@MeredithGould: T3
                  Set up a portal for shared info, records, convo. #hpm”
                  Wed Apr 6 18:50:32 PDT 2011




KathyKastner      Sometimes I feel w eldercare it's like child-rearing: sounds so good in the books.
                  IRL: yikes #hpm
                  Wed Apr 6 18:50:34 PDT 2011




MeredithGould     @GerryWiederRN Well, those people (I'm in that category) may have loads of other
                  support from non-family networks. #hpm
                  Wed Apr 6 18:50:42 PDT 2011




DrBeckerSchutte   The discussion around T3 points back to the importance of advance planning and
                  clear communication. #hpm
                  Wed Apr 6 18:51:07 PDT 2011




DNRstories        Sadly all, the coffee shop is closing up around me so i have to head out. Thank you
                  for my first 'official' tweet chat. #hpm
                  Wed Apr 6 18:51:11 PDT 2011




DrSnit            @EllenRichter We have a societal duty to create space for no one to truly be alone,
                  even in old age or at the end of life. Never. #hpm
                  Wed Apr 6 18:51:21 PDT 2011




PracticalWisdom   T3: More practical Wisdom from the NY Times http://nyti.ms/gPR0u0 #HPM
                  Wed Apr 6 18:51:24 PDT 2011




DrBeckerSchutte   @KathyKastner LOL--painfully true. #hpm
                  Wed Apr 6 18:51:25 PDT 2011




MeredithGould     And, uh, here's where faith-based communities can really make a difference...or
                  should. #hpm
                  Wed Apr 6 18:51:25 PDT 2011




MeredithGould     @DNRstories Tell them to stay open for you and us. #hpm
                  Wed Apr 6 18:51:37 PDT 2011




DrSnit            @DNRstories So glad to meet you!! #hpm
                  Wed Apr 6 18:51:45 PDT 2011
DNRstories        @DrSnit Thank you! You too #hpm
                  Wed Apr 6 18:51:56 PDT 2011




DrBeckerSchutte   @DrSnit @EllenRichter "Never." Gave me chills! #hpm
                  Wed Apr 6 18:52:09 PDT 2011




KathyKastner      @DNRstories: so great that you came! #hpm
                  Wed Apr 6 18:52:15 PDT 2011




EllenRichter      @DrSnit Oh I agree! But so many slip through the cracks, especially the very elderly
                  whose family members all died. So sad. #hpm
                  Wed Apr 6 18:52:25 PDT 2011




DrBeckerSchutte   @DNRStories--Good to meet you! Come back and chat again. Tonight was my first
                  #hpm event. #hpm
                  Wed Apr 6 18:52:38 PDT 2011




KathyKastner      I'm telling you Meredith: comedy a fall back profession. RT @MeredithGould:
                  @DNRstories Tell them to stay open for you and us. #hpm
                  Wed Apr 6 18:52:38 PDT 2011




aliciabloom       @DNRstories see you in the MICU! #hpm
                  Wed Apr 6 18:53:01 PDT 2011




DrSnit            @EllenRichter yes. it is terribly sad. #hpm
                  Wed Apr 6 18:53:21 PDT 2011




EllenRichter      @DNRstories You picked a great chat to start out with! :) #hpm
                  Wed Apr 6 18:53:47 PDT 2011




KathyKastner      Does anyone talk about educating on the dying process (having just read abt that)
                  http://tinyurl.com/3w6pce6 #hpm
                  Wed Apr 6 18:53:55 PDT 2011




mdstudent31       @DNRstories Good to see you again! #hpm
                  Wed Apr 6 18:54:11 PDT 2011




DNRstories        Today was official launch of my book and i'd love to hear the opinions of #hpm
                  experts on it--pos or neg. It's a labor of love
                  Wed Apr 6 18:54:15 PDT 2011




GerryWiederRN     Thanks all. Nice to meet you all. #hpm
                  Wed Apr 6 18:54:31 PDT 2011




EllenRichter      @DrSnit When I get older (elderly) I'm coming to your place! :) #hpm
                  Wed Apr 6 18:54:32 PDT 2011




DNRstories        @aliciabloom Alicia- I'm on vacation girlfriend! Then, Bronch-a-thon at Crozer for
DNRstories        @aliciabloom Alicia- I'm on vacation girlfriend! Then, Bronch-a-thon at Crozer for

                  April. Back in May! #hpm
                  Wed Apr 6 18:54:43 PDT 2011



MeredithGould     @EllenRichter @DrSnit Why wait? #hpm
                  Wed Apr 6 18:54:56 PDT 2011




aliciabloom       the interdisciplinary hospice team can provide a lot of valuable support to older
                  adults dying alone #hpm
                  Wed Apr 6 18:55:00 PDT 2011




KathyKastner      #hpm Good lord: wrap up, final words, wise words, words of encouragement, words
                  that will make us think (I think I need tequila)
                  Wed Apr 6 18:55:01 PDT 2011




DrSnit            @EllenRichter *fluffs your pillows* *steals your jewels* #hpm
                  Wed Apr 6 18:55:16 PDT 2011




DNRstories        RT @aliciabloom: the interdisciplinary hospice team can provide a lot of valuable
                  support to older adults dying alone #hpm
                  Wed Apr 6 18:55:23 PDT 2011




MeredithGould     @EllenRichter I'm willing to bet that my generation will ditch the word "elderly" when
                  we get there. #hpm
                  Wed Apr 6 18:55:34 PDT 2011




EllenRichter      @MeredithGould Haha....you really are hilarious. @DrSnit Both of you...! #hpm
                  Wed Apr 6 18:55:59 PDT 2011




GerryWiederRN     @DrSnit @EllenRichter So you're the one! lol #hpm
                  Wed Apr 6 18:56:04 PDT 2011




DrSnit            RT @MeredithGould: @EllenRichter I'm willing to bet that my generation will ditch the
                  word "elderly" when we get there. #hpm
                  Wed Apr 6 18:56:08 PDT 2011




MeredithGould     @EllenRichter Like, next week. #hpm
                  Wed Apr 6 18:56:10 PDT 2011




KathyKastner      U have an alternate? RT @MeredithGould: @EllenRichter Im willing to bet that my
                  generation will ditch "elderly" when we get there. #hpm
                  Wed Apr 6 18:56:48 PDT 2011




MeredithGould     Yes, I've found a kindred spirit in @DrSnit. #hpm
                  Wed Apr 6 18:56:53 PDT 2011




DrBeckerSchutte   Thanks for the intro to #hpm chat, all! I may have to give up having a life outside of
                  Tweetchats-yikes. #hpm
                  Wed Apr 6 18:56:55 PDT 2011
Robert_Fried      @BuddhishMD Agree all HCPs need "primary #palliative care" competence. But
                  specialists still needed for complex cases. #hpm
                  Wed Apr 6 18:57:23 PDT 2011




MeredithGould     @KathyKastner Not yet but I'm sure some Boomer wag will come up with
                  something. #hpm
                  Wed Apr 6 18:57:33 PDT 2011




DrSnit            @DrBeckerSchutte SO GLAD you could make it!! This place rocks full of brilliance!
                  #hpm
                  Wed Apr 6 18:57:39 PDT 2011




KathyKastner      Gee thanks to each and every single one of you for making this a total joy for the
                  novice hoster #hpm
                  Wed Apr 6 18:58:00 PDT 2011




PracticalWisdom   Certainly but if you are new to a commuinity~Any good/trusted Referrals.
                  RT@MeredithGould @PracticalWisdom Get personal referrals. #hpm
                  Wed Apr 6 18:58:00 PDT 2011




aliciabloom       @KathyKastner all the time-- educate patients/families re: what to expect. also
                  important to educate clinicians re: dying process. #hpm
                  Wed Apr 6 18:58:19 PDT 2011




DrBeckerSchutte   @DrSnit It is awfully brilliant (and entertaining)--fits with my EOL work experience!
                  #hpm
                  Wed Apr 6 18:58:30 PDT 2011




MeredithGould     @KathyKastner Great moderating! It's a wild right, isn't it? #hpm
                  Wed Apr 6 18:58:41 PDT 2011




EllenRichter      @KathyKastner You did an absolutely terrific job....like you've been doing it forever,
                  Kathy! Way to go! #hpm
                  Wed Apr 6 18:58:42 PDT 2011




mdstudent31       @KathyKastner You're a rock star at hosting! #hpm
                  Wed Apr 6 18:58:43 PDT 2011




KathyKastner      @Robert_Fried @BuddishMD: you snuck in. I didn't properly welcome you and here
                  you are.. leaving #hpm
                  Wed Apr 6 18:58:52 PDT 2011




DrSnit            Fabulous job hosting the #hpm @KathyKastner - You cats are totally fab full of
                  discussion and brilliance and ideas!
                  Wed Apr 6 18:59:03 PDT 2011




DrBeckerSchutte   @KathyKastner You deserve an award for "cat-herding!" Thanks for hosting tonight.
                  #hpm
                  Wed Apr 6 18:59:40 PDT 2011




aliciabloom       "Gone From My Sight" excellent educational piece about dying process for patients &
                  families #hpm
aliciabloom
                  families #hpm
                  Wed Apr 6 18:59:49 PDT 2011




KathyKastner      Meeow. ThanksRT @drbeckerschutte: @KathyKastner You deserve an award for
                  "cat-herding!" Thanks for hosting tonight. #hpm
                  Wed Apr 6 19:00:03 PDT 2011




MeredithGould     Final thoughts: If you can't make someone throw a lung laughing, at least make
                  someone smile. #hpm
                  Wed Apr 6 19:00:41 PDT 2011




PracticalWisdom   @KathyKastner: Kathy, thank you so much for a wonderful evening. Night. #HPM
                  Wed Apr 6 19:00:49 PDT 2011




EllenRichter      Enjoy your night, everyone! Wonderful hour with many of my friends & quite a few new
                  people I can follow, too! I love that! Ta ta! #hpm
                  Wed Apr 6 19:00:57 PDT 2011




PracticalWisdom   RT @drbeckerschutte: @DrSnit It is awfully brilliant (and entertaining)--fits with my
                  EOL work experience! #HPM
                  Wed Apr 6 19:01:12 PDT 2011




MeredithGould     Ciao for niao! #hpm
                  Wed Apr 6 19:01:52 PDT 2011




KathyKastner      Tequila becons Thanks all xo @DrSnit @drbeckerschutte @mdstudent31
                  @EllenRichter @MeredithGould @PracticalWisdom #hpm
                  Wed Apr 6 19:02:35 PDT 2011




PracticalWisdom   T3: Final Thought: "When in doubt~Give Benefit of the doubt." Lisa Fields Start the
                  discussion. Families can be complex. #HPM
                  Wed Apr 6 19:02:48 PDT 2011




DrBeckerSchutte   Good night all--thanks for the good thoughts and the laughs! #hpm
                  Wed Apr 6 19:02:49 PDT 2011




DrBeckerSchutte   @KathyKastner Enjoy--you earned it! #hpm
                  Wed Apr 6 19:03:07 PDT 2011




PracticalWisdom   @drbeckerschutte: Enjoyed you so much this Evening. You are a great listener.
                  Thanks to everybody Great Group/Great Ideas. #HPM
                  Wed Apr 6 19:03:56 PDT 2011




aliciabloom       @KathyKastner cheers! excellent #hpm chat
                  Wed Apr 6 19:03:58 PDT 2011

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2011 04 06 hpm tweetchat transcript

  • 1. #hpm Healthcare Hashtag Twitter Transcript From: Wed Apr 06 17:55:00 PDT 2011 To: Wed Apr 06 19:05:00 PDT 2011 Customize transcript dates and layout Learn more about #hpm at The Healthcare Hashtag Project rabob Disability after acute respiratory failure - a role for palliative care -#hpm http://bit.ly/ihqT1a Wed Apr 6 17:55:28 PDT 2011 KathyKastner RT @rabob: Disability after acute respiratory failure - a role for palliative care -#hpm http://bit.ly/ihqT1a #eldercarechat #hpm Wed Apr 6 17:56:23 PDT 2011 KathyKastner Just a few minutes to tonite's chat. Range of topics including what happened on the Hill. #hpm Wed Apr 6 17:56:59 PDT 2011 DNRstories RT @KathyKastner: Just a few minutes to tonite's chat. Range of topics including what happened on the Hill. #hpm Wed Apr 6 17:58:57 PDT 2011 KathyKastner @NatriceR come join #hpm - I'm guest hosting :) Wed Apr 6 17:59:14 PDT 2011 PracticalWisdom Let's get ready to rumble with @KathyKastner #HPM as she Hosts our community. http://bit.ly/gVcTuR #HPM Wed Apr 6 18:01:06 PDT 2011 KathyKastner Good evening all! Welcome.I am your host and blogger www.ability4life.com exploring app to help make AD decisions. #hpm Wed Apr 6 18:01:31 PDT 2011 PracticalWisdom Lots of Tweets coming from our TweetChat with the amazing and humble folks from It's a mighty Fine Bunch. #HPM Wed Apr 6 18:02:18 PDT 2011 MeredithGould Getting ready to dive into this week's #HPM chat moderated by @KathyKastner Wed Apr 6 18:02:28 PDT 2011
  • 2. KathyKastner Hi @PracticalWisdom and @DNRstories. Gr8 to see you. A couple of announcement from our 'leader' @ctsinclair #hpm Wed Apr 6 18:02:40 PDT 2011 inhousehospice RT @PracticalWisdom: Lets get ready to rumble with @KathyKastner #HPM as she Hosts our community. http://bit.ly/gVcTuR #hpm Wed Apr 6 18:02:51 PDT 2011 KathyKastner The @NHPCO_News Management and Leadership conference is this week, follow #MLC11 for updates #hpm Wed Apr 6 18:02:59 PDT 2011 KathyKastner Palliative Care Grand Rounds is back at @Pallimed Cases -> http://cases.pallimed.org - Monthly best of the blogs #hpm Wed Apr 6 18:03:19 PDT 2011 mdstudent31 @KathyKastner Congrats for guest-hosting! I plan to lurk, but that usually doesn't happen when being around such great people at #hpm Wed Apr 6 18:03:32 PDT 2011 KathyKastner OK Announcements done: Hey and hi @inhousehospice and @MeredithGould #hpm Wed Apr 6 18:04:18 PDT 2011 EllenRichter @KathyKastner I'm not usually available Wed nites at 9 pm but how could I miss your hosting debut! #hpm Wed Apr 6 18:04:18 PDT 2011 MeredithGould @EllenRichter <waving wildly across the Twitterverse> #hpm Wed Apr 6 18:04:39 PDT 2011 KathyKastner @mdstudent lurk away. @EllenRichter yay hurray. #hpm Wed Apr 6 18:05:13 PDT 2011 PracticalWisdom Agree! RT @EllenRichter: @KathyKastner Im not usually available Wed nites at 9 pm but how could I miss your hosting debut! #HPM Wed Apr 6 18:05:16 PDT 2011 EllenRichter @MeredithGould LMAO waving back, gf! Hope you are well! :) #hpm Wed Apr 6 18:05:32 PDT 2011 DNRstories @KathyKastner This is my first official tweet chat! :) #hpm Fun! Wed Apr 6 18:06:20 PDT 2011 EllenRichter @PracticalWisdom @mdstudent31 Nice to see you too! #hpm Wed Apr 6 18:06:44 PDT 2011 KathyKastner @DNRstories - first timer and.. I've just reviewed the book http://tinyurl.com/3g2z4k3 #hpm
  • 3. Wed Apr 6 18:06:53 PDT 2011 mdstudent31 @EllenRichter @PracticalWisdom Great to see you as well!! #hpm Wed Apr 6 18:07:23 PDT 2011 RossJeanette hello all, HPM doc passionate about teaching @uthscsa multitasking getting child ready for bed but will try to join in #hpm Wed Apr 6 18:07:49 PDT 2011 MeredithGould <--sociologist, writer, keen on communicating health & building online communities. Gadfly tendencies. Also tweet as @HealthFaith #hpm Wed Apr 6 18:08:13 PDT 2011 DrSnit Hey all - good to see everyone here. #hpm Wed Apr 6 18:08:14 PDT 2011 EllenRichter That book looks wonderful! RT @KathyKastner: @DNRstories - first timer and.. I've just reviewed the book http://tinyurl.com/3g2z4k3 #hpm Wed Apr 6 18:08:18 PDT 2011 PracticalWisdom Best April Fools joke came from this Bunch. You guys got me: http://bit.ly/fCTV4Z #HPM Wed Apr 6 18:08:23 PDT 2011 mdstudent31 @KathyKastner @DNRstories Great book, a must-get! :) #hpm Wed Apr 6 18:08:26 PDT 2011 KathyKastner @RossJeanette So tickled to have an #Hpm host here Wed Apr 6 18:08:47 PDT 2011 inhousehospice Hi! I'm Ash, marketing coordinator @inhousehospice & palliative care of MI and OH. #hpm Wed Apr 6 18:08:50 PDT 2011 MeredithGould Got to tour Kaiser Permanente's Center for Total Health yesterday. Highly recommend a visit. Heck, plan a conference there! #HPM #KPTCH Wed Apr 6 18:09:08 PDT 2011 DrSnit Melissa Travis, cultural medical research, patient. #hpm Wed Apr 6 18:09:09 PDT 2011 KathyKastner Sigh. Thanks for just going ahead w intros. Forgot my hosting duties. #hpm Wed Apr 6 18:09:18 PDT 2011 akroundtree RT @KathyKastner: OK Announcements done: Hey and hi @inhousehospice and @MeredithGould #hpm Wed Apr 6 18:09:27 PDT 2011 EllenRichter I'm a critical care nurse in a retirement community in S. Florida where many of our patients are at the end of their lives #hpm
  • 4. patients are at the end of their lives #hpm Wed Apr 6 18:09:30 PDT 2011 MeredithGould @KathyKastner And the apologies begin! O Canada!! #hpm Wed Apr 6 18:09:37 PDT 2011 PracticalWisdom Huge wave to the entire #HPM Gang. What a Great Bunch tonight. @KathyKastner What a great crowd you gathered. #HPM Wed Apr 6 18:09:39 PDT 2011 DNRstories @mdstudent31 @kathykastner Thank you both for the compliments! Very excited to join in the #hpm 'movement' Wed Apr 6 18:09:49 PDT 2011 KathyKastner #hpm T1 Today=Hilll Day for NHPCO: Done any Legislative Advocacy? Successes/Failures? Best Practices in social media ? (ok. 3 questions) Wed Apr 6 18:10:01 PDT 2011 mdstudent31 Kevin, tomorrow-last day rotating as 4th yr med student, in limbo til graduation, brainstorming new twitter names. Viva #FMRevolution! #hpm Wed Apr 6 18:10:13 PDT 2011 DrSnit @KathyKastner you are blowing our mind socks already! #hpm Wed Apr 6 18:10:17 PDT 2011 MeredithGould @DrSnit You should add "specializing in flame and *confetti* throwing" #HPM Wed Apr 6 18:10:18 PDT 2011 KathyKastner @DrSnit -I think you wanted to know about @DNRstories http://tinyurl.com/3g2z4k3 #hpm Wed Apr 6 18:10:22 PDT 2011 akroundtree On a plane. About to take off. Hoping to get a few #hpm tweets in! Wed Apr 6 18:10:26 PDT 2011 KathyKastner HA (eh)RT @MeredithGould: @KathyKastner And the apologies begin! O Canada!! #hpm Wed Apr 6 18:10:43 PDT 2011 DrSnit This too. RT @MeredithGould: @DrSnit You should add "specializing in flame and *confetti* throwing" #HPM Wed Apr 6 18:11:17 PDT 2011 KathyKastner @akroundtree thanks for joining before flying off.. #hpm Wed Apr 6 18:11:19 PDT 2011 PracticalWisdom morphs the ho-hum into compelling. Speaker, Trainer, Presentation Designer, Rascal. Tweets R my own and do represent my Employer~Me. #HPM Wed Apr 6 18:11:26 PDT 2011 Ohh- yes! Thank you! RT @KathyKastner: @DrSnit -I think you wanted to know about
  • 5. DrSnit @DNRstories http://tinyurl.com/3g2z4k3 #hpm Wed Apr 6 18:11:47 PDT 2011 MeredithGould T1 IMO, participating in Legislative Action days requires lots of prep and training. #hpm Wed Apr 6 18:12:33 PDT 2011 aliciabloom @DNRstories is compelling and well written. had privilege of reading advance copy :) great teaching tool for patients & clinicians #hpm Wed Apr 6 18:13:15 PDT 2011 DNRstories #hpm One of my favorite stories is about 18 yo kid w/ cystic fibrosis who put himself on hospice. Mom says she was only able to cope b/c Wed Apr 6 18:13:18 PDT 2011 KathyKastner Tell us more RT @MeredithGould: T1 IMO, participating in Legislative Action days requires lots of prep and training. #hpm Wed Apr 6 18:13:23 PDT 2011 DNRstories of closure that hospice gives. #hpm Wed Apr 6 18:13:32 PDT 2011 akroundtree RT @MeredithGould: T1 IMO, participating in Legislative Action days requires lots of prep and training. #hpm Wed Apr 6 18:13:35 PDT 2011 mdstudent31 T1: Love hitting the hill for @AAFP FMCC, coming up again in May, we advocate for the advancement of family medicine #hpm Wed Apr 6 18:13:49 PDT 2011 MeredithGould T1 It's not a field trip! It's a strategic foray into a world with (crazy) rules and roles. Not for everyone nor should be! #hpm Wed Apr 6 18:14:31 PDT 2011 KathyKastner T1 What kind of prep? WHere do you get training? #hpm Wed Apr 6 18:14:38 PDT 2011 mdstudent31 T1: @AAFP does a good job organizing a 2day conference. Day 1 - learn how to lobby, Day 2 - go do it. #hpm Wed Apr 6 18:14:50 PDT 2011 MeredithGould RT @mdstudent31: T1: @AAFP does a good job organizing a 2day conference. Day 1 - learn how to lobby, Day 2 - go do it. #hpm Wed Apr 6 18:15:14 PDT 2011 KathyKastner RT @mdstudent31: T1: @AAFP does a good job organizing a 2day conference. Day 1 - learn how to lobby, Day 2 - go do it. #hpm Wed Apr 6 18:15:24 PDT 2011 mdstudent31 T1: We roll up w/ physicians, residents, and students from the same state. Go with 3-4 talking points, keep it simple & stick to them #hpm Wed Apr 6 18:15:47 PDT 2011
  • 6. KathyKastner T1 Cost of @aafp training? #hpm Wed Apr 6 18:16:01 PDT 2011 MeredithGould Prep: Learning lingo (not buzz words), how to be succinct, body language management. Issues. #hpm Wed Apr 6 18:16:26 PDT 2011 mdstudent31 @KathyKastner $250 for Physicians/residents $99 for med studentss. Scholarships available for residents/students #hpm Wed Apr 6 18:17:05 PDT 2011 KathyKastner Oooh. good. RT @MeredithGould: Prep: Learning lingo (not buzz words), how to be succinct, body language management. Issues. #hpm Wed Apr 6 18:17:17 PDT 2011 EllenRichter Thats good use of time! RT @mdstudent31 T1 @AAFP does good job organizing 2day conference. Day 1- learn how to lobby, Day 2- go do it #hpm Wed Apr 6 18:17:18 PDT 2011 MeredithGould Prep: learning which legislative aide has any power/influence...not to mention time. #hpm Wed Apr 6 18:17:33 PDT 2011 KathyKastner and affordable !RT @mdstudent31:$250 for Physicians/residents $99 for med studentss. Scholarships available for residents/students #hpm Wed Apr 6 18:17:42 PDT 2011 mdstudent31 More info here: http://bit.ly/eq8aR5 #hpm Wed Apr 6 18:17:56 PDT 2011 DNRstories T1: #hpm How do you find time to do during med school? what about residents/fellows? Wed Apr 6 18:18:03 PDT 2011 PracticalWisdom T1: So unless you have official Med. Status you would not be able to participate? #HPM Wed Apr 6 18:18:11 PDT 2011 MeredithGould Prep: What kinds of materials to leave behind -- if they'll go for paper. #hpm Wed Apr 6 18:18:16 PDT 2011 aliciabloom advocacy is about the right message, delivered the right way with a strong voice. important, challenging task for our #hpm community! Wed Apr 6 18:18:20 PDT 2011 KathyKastner Thanks @mdstudent31: More info here: http://bit.ly/eq8aR5 #hpm Wed Apr 6 18:18:22 PDT 2011 MeredithGould RT @mdstudent31: More info here: http://bit.ly/eq8aR5 #hpm
  • 7. MeredithGould Wed Apr 6 18:18:41 PDT 2011 EllenRichter @MeredithGould T1 Sounds like you've done this before! #hpm Wed Apr 6 18:19:01 PDT 2011 MeredithGould RT @aliciabloom: advocacy is about the right message, delivered the right way with a strong voice. #hpm Wed Apr 6 18:19:11 PDT 2011 KathyKastner Did you go to @aafp? RT @MeredithGould: Prep: What kinds of materials to leave behind -- if theyll go for paper. #hpm Wed Apr 6 18:19:21 PDT 2011 mdstudent31 @DNRstories I tell student affairs far in advance that I am going and will make up the time in whatever they would like me to do #hpm Wed Apr 6 18:19:49 PDT 2011 MeredithGould Prep: messages have to be coherent and coordinated. Need to manage loose cannons in your own team. #hpm Wed Apr 6 18:19:53 PDT 2011 PracticalWisdom T1: The Language is always important. Quakers call it plain speak. No death panel talk. #HPM Wed Apr 6 18:19:53 PDT 2011 KathyKastner RT @aliciabloom: advocacy about right message, delivered right way with a strong voice. important, challenging task for #hpm #hpm Wed Apr 6 18:20:16 PDT 2011 mdstudent31 T1: Stuff to leave behind: a summary of your talking points with lists of references to find more info on each. #hpm Wed Apr 6 18:20:23 PDT 2011 inhousehospice RT @PracticalWisdom: T1: The Language is always important. Quakers call it plain speak. No death panel talk. #hpm Wed Apr 6 18:20:59 PDT 2011 akroundtree With any success influencing legislators? “@mdstudent31: T1: Go with 3-4 talking points & stick to them #hpm” Wed Apr 6 18:21:02 PDT 2011 KathyKastner @MeredithGould @mdstudent31 what a fab wealth of info #hpm Wed Apr 6 18:21:30 PDT 2011 MeredithGould While there: Do not waste anyone's time, do not sound stupid, wear good shoes. #hpm Wed Apr 6 18:21:30 PDT 2011 mdstudent31 @MeredithGould Having no loose canons is definitely a must - prep what each person will talk about, be brief, be balanced #hpm Wed Apr 6 18:21:53 PDT 2011
  • 8. KathyKastner It's always about the shoes innitRT @MeredithGould: While there: Do not waste anyones time, do not sound stupid, wear good shoes. #hpm Wed Apr 6 18:22:11 PDT 2011 MeredithGould Re: success: develop a reasonable definition of success so you don't get crazy/disappointed. #hpm Wed Apr 6 18:22:15 PDT 2011 mdstudent31 The more you shift person to person, the more attention you will grab. One person stealing the spotlight leads to watch/clock-glancing #hpm Wed Apr 6 18:22:32 PDT 2011 MeredithGould @KathyKastner Absolutely! Shoes! #hpm Wed Apr 6 18:22:46 PDT 2011 DNRstories @KathyKastner Haha- you read my mind! #hpm Wed Apr 6 18:23:01 PDT 2011 aliciabloom definitely no death panel talk! that propaganda is what makes folks afraid to discuss EoL issues or even develop an advance directive. #hpm Wed Apr 6 18:23:04 PDT 2011 mdstudent31 @akroundtree You get a feel from the questions/ body language. You usually don't have to ask straight up if you have influenced them #hpm Wed Apr 6 18:23:21 PDT 2011 KathyKastner I wondered too RT @akroundtree: With any success influencing legislators? “@mdstudent31: #hpm Wed Apr 6 18:23:24 PDT 2011 PracticalWisdom T1: Could a link to a Slideshare be used? This would help bring additional educational opportunities. #HPM Wed Apr 6 18:23:24 PDT 2011 MeredithGould @mdstudent31 Right...which means the group has to become a TEAM before the event. #hpm Wed Apr 6 18:23:25 PDT 2011 mdstudent31 @MeredithGould Exactly! We are already in contact and the conference is over a month away #hpm Wed Apr 6 18:23:53 PDT 2011 MeredithGould Hot flash: If THEY bring up "death panels," then YOU have to talk about 'em in a reframe YOU create. #hpm Wed Apr 6 18:24:09 PDT 2011 KathyKastner Shouldn't all md's learn to key into.. @mdstudent31: You get a feel from the questions/ body language. #hpm Wed Apr 6 18:24:39 PDT 2011 @mdstudent31 Good point: this stuff needs to be planned, scripted, etc. months
  • 9. @mdstudent31 Good point: this stuff needs to be planned, scripted, etc. months MeredithGould ahead of time, if possible. #hpm Wed Apr 6 18:24:45 PDT 2011 KathyKastner #hpm T2 Something completely different: successfully Aging in place. What are some (creative) solutions for quality of life. Wed Apr 6 18:25:02 PDT 2011 KathyKastner Very hot flashRT @MeredithGould: Hot flash: If THEY bring up "death panels," then YOU have to talk about em in a reframe YOU create. #hpm Wed Apr 6 18:25:02 PDT 2011 mdstudent31 The earlier you contact staff/office of legislator you want to visit, the better you organize your visits/easier for them to fit you in #hpm Wed Apr 6 18:25:40 PDT 2011 MeredithGould T2 I feel like I'm aging in place right now. How creative is that/am I? #hpm Wed Apr 6 18:25:59 PDT 2011 mdstudent31 @KathyKastner In theory yes... in theory. #hpm Wed Apr 6 18:26:10 PDT 2011 nursingpins RT @MeredithGould: T2 I feel like I'm aging in place right now. How creative is that/am I? #hpm Wed Apr 6 18:26:35 PDT 2011 KathyKastner I think this tweet-chat may b turning into a cheat sheet #hpm Wed Apr 6 18:26:36 PDT 2011 DNRstories @KathyKastner #hpm Impt to DEFINE your quality of life. Many patinets dont seem to think about what that term means to THEM. Wed Apr 6 18:26:41 PDT 2011 PracticalWisdom Suzana Makowski Work Can help us so much. http://slidesha.re/ezipSM #HPM Wed Apr 6 18:26:51 PDT 2011 KathyKastner As long as you're hot flashing, very RT @MeredithGould: T2 I feel like Im aging in place right now. How creative is that/am I? #hpm Wed Apr 6 18:26:58 PDT 2011 familydocwonk See you there en vivo! @mdstudent31: T1: Love hitting the hill for @AAFP FMCC, coming up again in May #hpm Wed Apr 6 18:27:03 PDT 2011 DrSnit @KathyKastner Creative solutions for QoL? Can you define this more what you mean by successful aging? #hpm Wed Apr 6 18:27:07 PDT 2011 DrSnit @MeredithGould snicker #hpm Wed Apr 6 18:27:23 PDT 2011
  • 10. inhousehospice T2: Determine pt. goals/wishes early -- the rest follows that. #hpm Wed Apr 6 18:27:30 PDT 2011 MeredithGould @KathyKastner Oh I am so way beyond hot flashes & thank God, time & acupuncture for that! TMI #hpm Wed Apr 6 18:27:39 PDT 2011 KathyKastner @nursingpins @familydocwonk Greetings! #hpm Wed Apr 6 18:28:29 PDT 2011 DrSnit @MeredithGould WORD to the TMI- TWEETS! #hpm Wed Apr 6 18:28:36 PDT 2011 aliciabloom @DNRstories agreed! in order to develop a strategy to maintain QoL, we need to understand what it means to the individual. #hpm Wed Apr 6 18:28:39 PDT 2011 MeredithGould @DrSnit Successful aging = staying put in yr own home w/o breaking a hip or setting it on fire or having adult children move back in. #hpm Wed Apr 6 18:28:44 PDT 2011 DNRstories @inhousehospice Agree. Define your personal philosophy. What is 'acceptable' vs. not acceptable for QOL. Different for everyone! #hpm Wed Apr 6 18:28:47 PDT 2011 EllenRichter T2 Much of successful aging has to do with outlook, attitude, love for life. Aging people must be actively involved in making choices. #hpm Wed Apr 6 18:28:50 PDT 2011 KathyKastner Now that u ask: I think success is dif for everyone RT @DrSnit: Creative solutions for QoL? you mean by successful aging? #hpm Wed Apr 6 18:29:26 PDT 2011 DrSnit @MeredithGould In this case - some people are very unsuccessful at youth. har. #hpm Wed Apr 6 18:29:36 PDT 2011 PracticalWisdom @MeredithGould @KathyKastner : Barbie does acupuncture http://bit.ly/fx0znP #HPM Wed Apr 6 18:29:49 PDT 2011 nursingpins RT @MeredithGould: @DrSnit Successful aging = staying put in yr own home w/o breaking a hip or setting it on fire or having adult children move back in. #hpm Wed Apr 6 18:30:05 PDT 2011 KathyKastner RT @MeredithGould: @DrSnit Success aging = staying put in yr own home w/o breaking a hip setting n fire having children move back in. #hpm Wed Apr 6 18:30:12 PDT 2011 MeredithGould RT @EllenRichter: T2 Much of successful aging has to do with outlook, attitude, love for life. Must be actively involved in choices. #hpm Wed Apr 6 18:30:28 PDT 2011
  • 11. Wed Apr 6 18:30:28 PDT 2011 KathyKastner Hah! RT @DrSnit: @MeredithGould In this case - some people are very unsuccessful at youth. har. #hpm Wed Apr 6 18:30:31 PDT 2011 GerryWiederRN @PracticalWisdom @MeredithGould @KathyKastner Oh my! #hpm Wed Apr 6 18:30:32 PDT 2011 PracticalWisdom T2: I remember when folks would begin to dress and act old when they hit 40! Not anymore! #HPM Wed Apr 6 18:30:35 PDT 2011 KathyKastner I knew I shouldn't a givenher awayRT @PracticalWisdom: @MeredithGould @KathyKastner : Barbie does acupuncture http://bit.ly/fx0znP #hpm Wed Apr 6 18:30:52 PDT 2011 DrSnit Finding Quality of Life & Successful ways to age are both cultural perceptions AND certainly need to be discussed with our families! #hpm Wed Apr 6 18:30:58 PDT 2011 aliciabloom once QoL & goals are defined, advance care planning is key-- we can reduce distress for patients AND families when we help them plan. #hpm Wed Apr 6 18:31:11 PDT 2011 DrBeckerSchutte Age is entirely an attitude (and a reflection of health). My grandma was not old at 85, but she was at 92. #hpm Wed Apr 6 18:31:30 PDT 2011 KathyKastner @GerryWeiderRN Hi and welcome. Love yr opening comment :) #hpm Wed Apr 6 18:31:38 PDT 2011 MeredithGould RT @DrSnit: Finding Quality of Life & Successful ways to age are both cultural perceptions<--absolutely #hpm Wed Apr 6 18:31:42 PDT 2011 mdstudent31 T2: Create realistic bucket list, solidify support at home, connect w/ community resources, maintain strong interpersonal relationships #hpm Wed Apr 6 18:31:46 PDT 2011 inhousehospice RT @aliciabloom: once QoL & goals are defined, adv care planning is key- can reduce distress for pts AND fams when we help them plan #hpm Wed Apr 6 18:31:58 PDT 2011 DrBeckerSchutte @aliciabloom--I totally agree that planning is key to reducing family distress. #hpm Wed Apr 6 18:32:13 PDT 2011 DrSnit Having adult children living with us for some is not only an expectation, but a way of respect, and doesn't diminish us, hence, culture #hpm Wed Apr 6 18:32:14 PDT 2011
  • 12. DNRstories T2 My hubbie having a hard time with "aging". He is upset we don't stay up past 10pm (we're early 30s). He is not 'aging' graceflly #hpm Wed Apr 6 18:32:19 PDT 2011 KathyKastner @drbeckerschutte Thanks for joining. Totally agree age is an attitude #hpm Wed Apr 6 18:32:33 PDT 2011 GerryWiederRN Best laid plans...my 83 year old mom was it by a car. Changed everything. Independent to institutionalized. #hpm Wed Apr 6 18:32:38 PDT 2011 drbeckerschutte BTW--Hi all! I'm a psychologist from the Kansas City, MO area. #hpm Wed Apr 6 18:32:41 PDT 2011 MeredithGould @DrSnit You're right about the adult children at home (i.e. extended family) being cultural. Go ahead, stomp on my best lines. #hpm Wed Apr 6 18:32:59 PDT 2011 DNRstories RT @aliciabloom: once QoL & goals are defined, advance care planning is key-- we can reduce distress for patients AND families when we help them plan. #hpm Wed Apr 6 18:32:59 PDT 2011 GerryWiederRN Hi all...RN in Seattle working in HIT. #hpm Wed Apr 6 18:33:26 PDT 2011 EllenRichter @GerryWiederRN So distressing to hear. Yes, life can just grab us by the jugulars at times, cant it? #hpm Wed Apr 6 18:33:31 PDT 2011 DrSnit @MeredithGould NOT STOMPING. Promise. Just reminding people to open themselves to non-traditional western values. #hpm Wed Apr 6 18:33:43 PDT 2011 MeredithGould @EllenRichter Or lower... #hpm Wed Apr 6 18:33:46 PDT 2011 KathyKastner Did it help you being hcp? RT @GerryWiederRN: Best laid plans...my 83 year old mom was it by a car. Independent to institutionalized. #hpm Wed Apr 6 18:33:51 PDT 2011 GerryWiederRN @MeredithGould @DrSnit Not cultural necessarily...forced by this crummy economy. #hpm Wed Apr 6 18:34:16 PDT 2011 EllenRichter @MeredithGould LOL yes, even there ;) #hpm Wed Apr 6 18:34:21 PDT 2011 DrBeckerSchutte @KathyKastner @GerryWiederRN Kathy--you got my ??, I wonder if planning helped ease the pain? #hpm Wed Apr 6 18:34:35 PDT 2011
  • 13. KathyKastner (and they laugh when I say lots of silliness on hpm RT @MeredithGould: @EllenRichter Or lower... #hpm Wed Apr 6 18:34:46 PDT 2011 DrSnit RT @MeredithGould: @DrSnit Successful aging = staying put in yr own home w/o breaking a hip or setting it on fire or having adult children move back in. #hpm Wed Apr 6 18:35:02 PDT 2011 GerryWiederRN @KathyKastner @GerryWiederRN Not sure. I think I'm able to see more flaws in a very flawed system. #hpm Wed Apr 6 18:35:05 PDT 2011 MeredithGould @GerryWiederRN True and actually might restore extended family values, which wouldn't be such a bad thing! #hpm Wed Apr 6 18:35:22 PDT 2011 mdstudent31 Not sure what happened in past 10 years. Something about school? Receding hairline and some grey hair - when did that happen? #hpm Wed Apr 6 18:35:31 PDT 2011 KathyKastner AmenRT @MeredithGould: @GerryWiederRN True and actually might restore extended family values, which wouldnt be such a bad thing! #hpm Wed Apr 6 18:35:49 PDT 2011 DrSnit @GerryWiederRN Crummy economy too. I'm just discussing the non-western cultural ones where families do it anyway! #hpm Wed Apr 6 18:36:02 PDT 2011 GerryWiederRN @MeredithGould @GerryWiederRN True. I think it's actually been a blessing in our family. #hpm Wed Apr 6 18:36:17 PDT 2011 KathyKastner Say more plsRT @MeredithGould @GerryWiederRN True. I think its actually been a blessing in our family. #hpm Wed Apr 6 18:36:52 PDT 2011 DNRstories @mdstudent31 It's the call schedule. Just wait till residency :) #hpm Wed Apr 6 18:36:55 PDT 2011 GerryWiederRN Perhaps we are discovering what families already know in non-western cultures. #hpm Wed Apr 6 18:37:05 PDT 2011 RossJeanette succesful aging=maintaining functional status! #hpm Wed Apr 6 18:37:20 PDT 2011 KathyKastner Lots to learn from othersRT @GerryWiederRN: Perhaps we are discovering what families already know in non-western cultures. #hpm Wed Apr 6 18:37:40 PDT 2011 MeredithGould The blessing is that younger generations get to know older generations & vice versa
  • 14. MeredithGould The blessing is that younger generations get to know older generations & vice versa #hpm Wed Apr 6 18:37:44 PDT 2011 KathyKastner To patient's def of functionalRT @RossJeanette: succesful aging=maintaining functional status! #hpm Wed Apr 6 18:38:08 PDT 2011 DrBeckerSchutte @GerryWiederRN Gerry--Having my grandmother live with us was a real blessing. I know she would have preferred independence... #hpm Wed Apr 6 18:38:09 PDT 2011 mdstudent31 @DNRstories Back when I did residency and there were no work-hours restrictions :) We're not as hardcore anymore #hpm Wed Apr 6 18:38:09 PDT 2011 KathyKastner Nice. RT @MeredithGould: The blessing is that younger generations get to know older generations & vice versa #hpm Wed Apr 6 18:38:22 PDT 2011 MeredithGould successful aging = getting senior discounts but still looking fabulous. (Personal definition) #hpm Wed Apr 6 18:38:24 PDT 2011 PracticalWisdom T2: Cuccesful Aging-Dignity. Better not call me Honey, Sweetie, Etc. when I hit the "Home" #HPM Wed Apr 6 18:38:39 PDT 2011 PracticalWisdom Wisdom RT @KathyKastner: Nice. RT @MeredithGould: The blessing is that younger generations get to know older generations & vice versa #HPM Wed Apr 6 18:39:02 PDT 2011 drbeckerschutte @RossJeanette I couldn't agree more. And that's an awfully personal definition. #hpm Wed Apr 6 18:39:06 PDT 2011 EllenRichter T2 We need more efforts made to help the elderly survivor work through the great & unseemingly hopeless loss of a spouse #hpm Wed Apr 6 18:39:13 PDT 2011 KathyKastner Have u considered stand up comedy? RT @MeredithGould: successful aging = getting senior discounts but still looking fab. (Pers def) #hpm Wed Apr 6 18:39:14 PDT 2011 DrSnit Yes. Family takes work. RT @MeredithGould The blessing is that younger generations get to know older generations & vice versa #hpm Wed Apr 6 18:39:33 PDT 2011 GeroAmericano T2: more like "aging in Community," like the "village" idea - support of neighbors @innovate4impact #hpm Wed Apr 6 18:39:37 PDT 2011 drbeckerschutte @PracticalWisdom Couldn't agree more. I don't know why we culturally treat older adults as children. #hpm
  • 15. adults as children. #hpm Wed Apr 6 18:39:39 PDT 2011 pfanderson RT @KathyKastner: Have u considered stand up comedy? RT @MeredithGould: successful aging = getting senior discounts but still looking fab. (Pers def) #hpm Wed Apr 6 18:39:58 PDT 2011 GerryWiederRN @MeredithGould LOL. Does that include at Macdonalds? #hpm Wed Apr 6 18:40:00 PDT 2011 MeredithGould @KathyKastner Yes but I ditched the idea because I hate smoke & don't drink, which limits venues. #hpm Wed Apr 6 18:40:01 PDT 2011 KathyKastner #hpm T3 How can long distance family/caregivers help with patients/caregivers on the 'front lines' Wed Apr 6 18:40:03 PDT 2011 KathyKastner Just to warn.. T3's a coming.. and it's related to T2 (I think) #hpm Wed Apr 6 18:40:17 PDT 2011 DNRstories @PracticalWisdom T2- this is actually a good point for MDs to remember. I upset a pt once by calling her 'dear'. Impt lesson 4 me. #hpm Wed Apr 6 18:40:33 PDT 2011 MeredithGould T3 Learn how to use social media wisely and well!!! #hpm Wed Apr 6 18:40:48 PDT 2011 DrSnit I don't want to discount the "family of choice" that many alternative families turn to. It is not readily recognized but it happens #hpm Wed Apr 6 18:40:57 PDT 2011 aliciabloom @PracticalWisdom agreed! i get insulted when i hear care providers call patients "honey" & "sweetie." it does not maintain dignity. #hpm Wed Apr 6 18:41:02 PDT 2011 GerryWiederRN @KathyKastner Great topic. I'm the distant family. #hpm Wed Apr 6 18:41:08 PDT 2011 KathyKastner Hello @GeroAmericano Welcome! #hpm Wed Apr 6 18:41:12 PDT 2011 DrSnit @MeredithGould hahahaha- there is truth in this standup world. ;) #hpm Wed Apr 6 18:41:21 PDT 2011 drbeckerschutte T3--I think that non-judgment is huge! Respecting that the on-site caregiver is doing hard work, even if it's different than you. #hpm Wed Apr 6 18:41:23 PDT 2011 KathyKastner And? what do you doRT @GerryWiederRN: @KathyKastner Great topic. Im the
  • 16. KathyKastner And? what do you doRT @GerryWiederRN: @KathyKastner Great topic. Im the distant family. #hpm Wed Apr 6 18:41:32 PDT 2011 GerryWiederRN T3. I distant family can "lend perspective" to family/caregivers on the front lines. #hpm Wed Apr 6 18:41:54 PDT 2011 EllenRichter T3 Its quite difficult. Working with EOL patients who are snowbirds means all family is up north. Its always difficult dying like that #hpm Wed Apr 6 18:42:06 PDT 2011 KathyKastner !!!!!RT @drbeckerschutte: T3--non-judgment huge! Respecting that the on-site caregiver is doing hard work, even if idifferent than u #hpm Wed Apr 6 18:42:24 PDT 2011 PracticalWisdom @DNRstories: Different Strokes for Different Folks. If I like someone they can give term of endearment. #HPM Wed Apr 6 18:42:25 PDT 2011 KathyKastner RT @GerryWiederRN: T3. I distant family can "lend perspective" to family/caregivers on the front lines. #hpm Wed Apr 6 18:42:35 PDT 2011 DrBeckerSchutte T3--Also being willing to provide respite care, and encouraging on-site caregiver to take breaks. #hpm Wed Apr 6 18:42:52 PDT 2011 PracticalWisdom RT @drbeckerschutte: T3 Non-judgment is huge! Respecting the on-site caregiver is doing hard work, even if its different than you. #HPM Wed Apr 6 18:42:52 PDT 2011 MedicalMarcom Just tripped across #hpm. What does hpm stand for? Wed Apr 6 18:42:58 PDT 2011 MeredithGould T3 Set up a portal for shared info, records, convo. #hpm Wed Apr 6 18:43:08 PDT 2011 GerryWiederRN T3 I've been doing some of the stuff I can do remotely as well. Phoning and talking to local resources. #hpm Wed Apr 6 18:43:15 PDT 2011 MeredithGould @MedicalMarcom Hospice and Palliative Medicine #hpm Wed Apr 6 18:43:21 PDT 2011 RossJeanette T3 distant caregiver could make planned visit so on site caregiver can take a break. #hpm Wed Apr 6 18:43:31 PDT 2011 EllenRichter T3 No matter how much distant family is involved by phone, they always feel guilty & inadequate. Wish there were better ways. #hpm Wed Apr 6 18:43:34 PDT 2011
  • 17. Wed Apr 6 18:43:34 PDT 2011 DrBeckerSchutte @MeredithGould I like that! #hpm Wed Apr 6 18:43:38 PDT 2011 PracticalWisdom T3: Sometimes it might look like family does not care but sometimes it's the PT's wish. Families can be very complex. #HPM Wed Apr 6 18:43:40 PDT 2011 KathyKastner Hi @MedicalMarcom: Welcome. Means hospice and Palliative Meds (we're a very funny bunch) #hpm Wed Apr 6 18:43:58 PDT 2011 GerryWiederRN T3. I'm always self-conscious about being the do-nothing so-and-so relative from a far. It can be tough too. #hpm Wed Apr 6 18:44:15 PDT 2011 KathyKastner RT @GerryWiederRN: T3 Ive been doing some of the stuff I can do remotely as well. Phoning and talking to local resources. #hpm Wed Apr 6 18:44:21 PDT 2011 DrSnit T3 Long distance family dealing w EOL pts/caregivers can send food, get house cleaners, hire lawn care, THE WORK THAT DOESN'T GET DONE #hpm Wed Apr 6 18:44:23 PDT 2011 RossJeanette @MedicalMarcom HPM stands for hospice and palliative medicine, welcome #hpm Wed Apr 6 18:44:24 PDT 2011 aliciabloom i'm a big proponent of speaker phones for goals of care meetings to engage family at a distance. bonus: it reduces conflict. #hpm Wed Apr 6 18:44:33 PDT 2011 GerryWiederRN RT @PracticalWisdom: Sometimes it might look like family does not care but sometimes its the PTs wish. Families can be very complex. #hpm Wed Apr 6 18:44:40 PDT 2011 PracticalWisdom T3: Think there is a wonderful role for Prof. Advocates for Older Adults. Ex. Help move to Assisted Living. If motives are true. #HPM Wed Apr 6 18:44:50 PDT 2011 DNRstories T3- send food package to caregiver. A rest from cooking is welcome break. Massage good too. Caregivers neglect themselves. #hpm Wed Apr 6 18:45:16 PDT 2011 MeredithGould @GerryWiederRN Hope you're talking with someone (other than the millions on Twitter) about feeling thusly. #hpm Wed Apr 6 18:45:18 PDT 2011 GerryWiederRN @aliciabloom We've done family phone conferences. It helps a lot. #hpm Wed Apr 6 18:45:33 PDT 2011 T3 Hire a specialist to handle all the insurance-related and other paperwork. #hpm
  • 18. T3 Hire a specialist to handle all the insurance-related and other paperwork. #hpm Wed Apr 6 18:45:50 PDT 2011 MeredithGould KathyKastner RT @GerryWiederRN: @aliciabloom Weve done family phone conferences. It helps a lot. #hpm Wed Apr 6 18:45:56 PDT 2011 aliciabloom @MedicalMarcom we're the hospice & palliative medicine community. the coolest kids on Twitter! #hpm Wed Apr 6 18:46:06 PDT 2011 DrSnit Being far away doesn't mean you can't be involved. Just as being NEAR. People are often afraid to INSERT themselves. Loving takes risk. #hpm Wed Apr 6 18:46:17 PDT 2011 DNRstories I've seen @aliciabloom in action and she's right. It really does help, although it makes everyone shout #hpm :) Wed Apr 6 18:46:23 PDT 2011 GerryWiederRN @DNRstories And those that are thrown to be martyrs have an opportunity. #hpm Wed Apr 6 18:46:26 PDT 2011 DrBeckerSchutte @DNRstories I like the focus on the practicalities that get lost if someone is doing care-giving. #hpm Wed Apr 6 18:46:39 PDT 2011 DrSnit @MeredithGould YES YES YES. The work. The stuff that can't get done. The annoying things. #hpm Wed Apr 6 18:46:40 PDT 2011 MaryAgnesKelley RT @aliciabloom: @PracticalWisdom agreed! i get insulted when i hear care providers call patients "honey" & "sweetie." it does not maintain dignity. #hpm Wed Apr 6 18:46:46 PDT 2011 PracticalWisdom T3: Guiding the Elderly in Living Arrangementshttp://bit.ly/geW14O #HPM Wed Apr 6 18:46:48 PDT 2011 EllenRichter Good suggestion! RT @MeredithGould: T3 Hire a specialist to handle all the insurance-related and other paperwork. #hpm Wed Apr 6 18:46:50 PDT 2011 KathyKastner In my fam, we had assigned roles: sis=worrier, bro=researcher moi= coordinator #hpm Wed Apr 6 18:47:11 PDT 2011 GerryWiederRN RT @DrSnit: Loving takes risk. <= amen #hpm Wed Apr 6 18:47:12 PDT 2011 aliciabloom “@DNRstories: I've seen @aliciabloom in action and she's right. It really does help, although it makes everyone shout #hpm :)” so true! Wed Apr 6 18:47:31 PDT 2011
  • 19. KathyKastner Welcome @MaryAgnesKelley #hpm Wed Apr 6 18:47:35 PDT 2011 GerryWiederRN RT @KathyKastner: In my fam, we had assigned roles: sis=worrier, bro=researcher moi= coordinator LOL. #hpm Wed Apr 6 18:47:43 PDT 2011 MeredithGould If you can afford it, offload all the crap that gets in the way of providing personal support from afar. #hpm Wed Apr 6 18:47:44 PDT 2011 MeredithGould RT @KathyKastner: In my fam, we had assigned roles: sis=worrier, bro=researcher moi= coordinator #hpm Wed Apr 6 18:47:55 PDT 2011 KathyKastner RT @MeredithGould: If you can afford it, offload all the crap that gets in the way of providing personal support from afar. #hpm Wed Apr 6 18:48:03 PDT 2011 GerryWiederRN I could be the "worrier" :) #hpm Wed Apr 6 18:48:04 PDT 2011 PracticalWisdom @KathyKastner: Now there are so many smaller families or folks who never had children. #HPM Wed Apr 6 18:48:05 PDT 2011 PracticalWisdom Who to trust?RT @MeredithGould: If U can afford it, offload all the crap that gets in the way of providing personal support from afar. #HPM Wed Apr 6 18:48:29 PDT 2011 KathyKastner True. RT @PracticalWisdom: @KathyKastner: Now there are so many smaller families or folks who never had children. #hpm Wed Apr 6 18:48:40 PDT 2011 MeredithGould @KathyKastner Someone always needs to be designated coordinator & everyone has to honor that. Families get even crazier under stress #hpm Wed Apr 6 18:48:47 PDT 2011 MeredithGould @PracticalWisdom Get personal referrals. #hpm Wed Apr 6 18:49:03 PDT 2011 MaryAgnesKelley RT @EllenRichter: T2 We need more efforts made to help the elderly survivor work through the great & unseemingly hopeless loss of a spouse #hpm Wed Apr 6 18:49:05 PDT 2011 GerryWiederRN @PracticalWisdom @MeredithGould My wife's in senior living business. She says those folks are the hardest--no family support. #hpm Wed Apr 6 18:49:20 PDT 2011 KathyKastner Oh man, I was so happy to offload that to my sis RT @GerryWiederRN: I could be the "worrier" :) #hpm
  • 20. "worrier" :) #hpm Wed Apr 6 18:49:31 PDT 2011 DrBeckerSchutte AMEN!!!RT@KathyKastner Someone always needs to be designated coordinator & everyone honor that. Families get crazier under stress. #hpm Wed Apr 6 18:50:07 PDT 2011 EllenRichter T3 What about those who have no family & are at the end of their lives? They still need caring care, even with no loved ones or family. #hpm Wed Apr 6 18:50:09 PDT 2011 akroundtree I think some units @ MDACC are moving to a model like this. “@MeredithGould: T3 Set up a portal for shared info, records, convo. #hpm” Wed Apr 6 18:50:32 PDT 2011 KathyKastner Sometimes I feel w eldercare it's like child-rearing: sounds so good in the books. IRL: yikes #hpm Wed Apr 6 18:50:34 PDT 2011 MeredithGould @GerryWiederRN Well, those people (I'm in that category) may have loads of other support from non-family networks. #hpm Wed Apr 6 18:50:42 PDT 2011 DrBeckerSchutte The discussion around T3 points back to the importance of advance planning and clear communication. #hpm Wed Apr 6 18:51:07 PDT 2011 DNRstories Sadly all, the coffee shop is closing up around me so i have to head out. Thank you for my first 'official' tweet chat. #hpm Wed Apr 6 18:51:11 PDT 2011 DrSnit @EllenRichter We have a societal duty to create space for no one to truly be alone, even in old age or at the end of life. Never. #hpm Wed Apr 6 18:51:21 PDT 2011 PracticalWisdom T3: More practical Wisdom from the NY Times http://nyti.ms/gPR0u0 #HPM Wed Apr 6 18:51:24 PDT 2011 DrBeckerSchutte @KathyKastner LOL--painfully true. #hpm Wed Apr 6 18:51:25 PDT 2011 MeredithGould And, uh, here's where faith-based communities can really make a difference...or should. #hpm Wed Apr 6 18:51:25 PDT 2011 MeredithGould @DNRstories Tell them to stay open for you and us. #hpm Wed Apr 6 18:51:37 PDT 2011 DrSnit @DNRstories So glad to meet you!! #hpm Wed Apr 6 18:51:45 PDT 2011
  • 21. DNRstories @DrSnit Thank you! You too #hpm Wed Apr 6 18:51:56 PDT 2011 DrBeckerSchutte @DrSnit @EllenRichter "Never." Gave me chills! #hpm Wed Apr 6 18:52:09 PDT 2011 KathyKastner @DNRstories: so great that you came! #hpm Wed Apr 6 18:52:15 PDT 2011 EllenRichter @DrSnit Oh I agree! But so many slip through the cracks, especially the very elderly whose family members all died. So sad. #hpm Wed Apr 6 18:52:25 PDT 2011 DrBeckerSchutte @DNRStories--Good to meet you! Come back and chat again. Tonight was my first #hpm event. #hpm Wed Apr 6 18:52:38 PDT 2011 KathyKastner I'm telling you Meredith: comedy a fall back profession. RT @MeredithGould: @DNRstories Tell them to stay open for you and us. #hpm Wed Apr 6 18:52:38 PDT 2011 aliciabloom @DNRstories see you in the MICU! #hpm Wed Apr 6 18:53:01 PDT 2011 DrSnit @EllenRichter yes. it is terribly sad. #hpm Wed Apr 6 18:53:21 PDT 2011 EllenRichter @DNRstories You picked a great chat to start out with! :) #hpm Wed Apr 6 18:53:47 PDT 2011 KathyKastner Does anyone talk about educating on the dying process (having just read abt that) http://tinyurl.com/3w6pce6 #hpm Wed Apr 6 18:53:55 PDT 2011 mdstudent31 @DNRstories Good to see you again! #hpm Wed Apr 6 18:54:11 PDT 2011 DNRstories Today was official launch of my book and i'd love to hear the opinions of #hpm experts on it--pos or neg. It's a labor of love Wed Apr 6 18:54:15 PDT 2011 GerryWiederRN Thanks all. Nice to meet you all. #hpm Wed Apr 6 18:54:31 PDT 2011 EllenRichter @DrSnit When I get older (elderly) I'm coming to your place! :) #hpm Wed Apr 6 18:54:32 PDT 2011 DNRstories @aliciabloom Alicia- I'm on vacation girlfriend! Then, Bronch-a-thon at Crozer for
  • 22. DNRstories @aliciabloom Alicia- I'm on vacation girlfriend! Then, Bronch-a-thon at Crozer for April. Back in May! #hpm Wed Apr 6 18:54:43 PDT 2011 MeredithGould @EllenRichter @DrSnit Why wait? #hpm Wed Apr 6 18:54:56 PDT 2011 aliciabloom the interdisciplinary hospice team can provide a lot of valuable support to older adults dying alone #hpm Wed Apr 6 18:55:00 PDT 2011 KathyKastner #hpm Good lord: wrap up, final words, wise words, words of encouragement, words that will make us think (I think I need tequila) Wed Apr 6 18:55:01 PDT 2011 DrSnit @EllenRichter *fluffs your pillows* *steals your jewels* #hpm Wed Apr 6 18:55:16 PDT 2011 DNRstories RT @aliciabloom: the interdisciplinary hospice team can provide a lot of valuable support to older adults dying alone #hpm Wed Apr 6 18:55:23 PDT 2011 MeredithGould @EllenRichter I'm willing to bet that my generation will ditch the word "elderly" when we get there. #hpm Wed Apr 6 18:55:34 PDT 2011 EllenRichter @MeredithGould Haha....you really are hilarious. @DrSnit Both of you...! #hpm Wed Apr 6 18:55:59 PDT 2011 GerryWiederRN @DrSnit @EllenRichter So you're the one! lol #hpm Wed Apr 6 18:56:04 PDT 2011 DrSnit RT @MeredithGould: @EllenRichter I'm willing to bet that my generation will ditch the word "elderly" when we get there. #hpm Wed Apr 6 18:56:08 PDT 2011 MeredithGould @EllenRichter Like, next week. #hpm Wed Apr 6 18:56:10 PDT 2011 KathyKastner U have an alternate? RT @MeredithGould: @EllenRichter Im willing to bet that my generation will ditch "elderly" when we get there. #hpm Wed Apr 6 18:56:48 PDT 2011 MeredithGould Yes, I've found a kindred spirit in @DrSnit. #hpm Wed Apr 6 18:56:53 PDT 2011 DrBeckerSchutte Thanks for the intro to #hpm chat, all! I may have to give up having a life outside of Tweetchats-yikes. #hpm Wed Apr 6 18:56:55 PDT 2011
  • 23. Robert_Fried @BuddhishMD Agree all HCPs need "primary #palliative care" competence. But specialists still needed for complex cases. #hpm Wed Apr 6 18:57:23 PDT 2011 MeredithGould @KathyKastner Not yet but I'm sure some Boomer wag will come up with something. #hpm Wed Apr 6 18:57:33 PDT 2011 DrSnit @DrBeckerSchutte SO GLAD you could make it!! This place rocks full of brilliance! #hpm Wed Apr 6 18:57:39 PDT 2011 KathyKastner Gee thanks to each and every single one of you for making this a total joy for the novice hoster #hpm Wed Apr 6 18:58:00 PDT 2011 PracticalWisdom Certainly but if you are new to a commuinity~Any good/trusted Referrals. RT@MeredithGould @PracticalWisdom Get personal referrals. #hpm Wed Apr 6 18:58:00 PDT 2011 aliciabloom @KathyKastner all the time-- educate patients/families re: what to expect. also important to educate clinicians re: dying process. #hpm Wed Apr 6 18:58:19 PDT 2011 DrBeckerSchutte @DrSnit It is awfully brilliant (and entertaining)--fits with my EOL work experience! #hpm Wed Apr 6 18:58:30 PDT 2011 MeredithGould @KathyKastner Great moderating! It's a wild right, isn't it? #hpm Wed Apr 6 18:58:41 PDT 2011 EllenRichter @KathyKastner You did an absolutely terrific job....like you've been doing it forever, Kathy! Way to go! #hpm Wed Apr 6 18:58:42 PDT 2011 mdstudent31 @KathyKastner You're a rock star at hosting! #hpm Wed Apr 6 18:58:43 PDT 2011 KathyKastner @Robert_Fried @BuddishMD: you snuck in. I didn't properly welcome you and here you are.. leaving #hpm Wed Apr 6 18:58:52 PDT 2011 DrSnit Fabulous job hosting the #hpm @KathyKastner - You cats are totally fab full of discussion and brilliance and ideas! Wed Apr 6 18:59:03 PDT 2011 DrBeckerSchutte @KathyKastner You deserve an award for "cat-herding!" Thanks for hosting tonight. #hpm Wed Apr 6 18:59:40 PDT 2011 aliciabloom "Gone From My Sight" excellent educational piece about dying process for patients & families #hpm
  • 24. aliciabloom families #hpm Wed Apr 6 18:59:49 PDT 2011 KathyKastner Meeow. ThanksRT @drbeckerschutte: @KathyKastner You deserve an award for "cat-herding!" Thanks for hosting tonight. #hpm Wed Apr 6 19:00:03 PDT 2011 MeredithGould Final thoughts: If you can't make someone throw a lung laughing, at least make someone smile. #hpm Wed Apr 6 19:00:41 PDT 2011 PracticalWisdom @KathyKastner: Kathy, thank you so much for a wonderful evening. Night. #HPM Wed Apr 6 19:00:49 PDT 2011 EllenRichter Enjoy your night, everyone! Wonderful hour with many of my friends & quite a few new people I can follow, too! I love that! Ta ta! #hpm Wed Apr 6 19:00:57 PDT 2011 PracticalWisdom RT @drbeckerschutte: @DrSnit It is awfully brilliant (and entertaining)--fits with my EOL work experience! #HPM Wed Apr 6 19:01:12 PDT 2011 MeredithGould Ciao for niao! #hpm Wed Apr 6 19:01:52 PDT 2011 KathyKastner Tequila becons Thanks all xo @DrSnit @drbeckerschutte @mdstudent31 @EllenRichter @MeredithGould @PracticalWisdom #hpm Wed Apr 6 19:02:35 PDT 2011 PracticalWisdom T3: Final Thought: "When in doubt~Give Benefit of the doubt." Lisa Fields Start the discussion. Families can be complex. #HPM Wed Apr 6 19:02:48 PDT 2011 DrBeckerSchutte Good night all--thanks for the good thoughts and the laughs! #hpm Wed Apr 6 19:02:49 PDT 2011 DrBeckerSchutte @KathyKastner Enjoy--you earned it! #hpm Wed Apr 6 19:03:07 PDT 2011 PracticalWisdom @drbeckerschutte: Enjoyed you so much this Evening. You are a great listener. Thanks to everybody Great Group/Great Ideas. #HPM Wed Apr 6 19:03:56 PDT 2011 aliciabloom @KathyKastner cheers! excellent #hpm chat Wed Apr 6 19:03:58 PDT 2011