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Self Organizing Genomes with Real Time Consent - DNA Guide

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Advocates for self organizing genomes with real time consent . Pattern in evolution of digital humanity is aspect of life gets digitized and once it's affordable a platform emerges that allows people to:
1. Upload their data
2. Control who they share it with.

Describes a personal biological domain model that allows for industry integration based on individual ownership of raw genetic data.

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Self Organizing Genomes with Real Time Consent - DNA Guide

  1. 1. Self Organizing Genomes with Real Time Consent Alice Rathjen, President, Founder alice@dnaguide.com DNA Guide, Inc. All rights reserved 2012
  2. 2. GenomeDigital Human Being
  3. 3. The Evolution of Digital Humanity Molecular Electronic Next Generation Social Networks Diagnostics Health Records SequencingPattern: TechnologiesPeople upload/create data andcontrol who they share it with. 1992 2012
  4. 4. Imagine…. The power of Self- Organizing Genomes
  5. 5. The advantages ofReal TimeConsent
  6. 6. 2 Billion Genomes inElectronic 10 Years? Molecular Next Generation Social Networks DiagnosticsHealth Records Sequencing Technologies2012 2022 Research Governments/Passports Electronic Health Records Patient Groups Ancestry Gaming (DNA Avatars) Biometric Access/ E-Commerce Online Identity Services Citizen Science Non-Govt Health Organizations Disaster Response / Epidemics
  7. 7. The Industries Problem... No Path to Market Genetic Data Explosion Huge investment in Personalized Medicine Sequencing Technologies and INSURANCE Molecular Diagnostics Consumers/ Pharma / Health Patients Clinical Services R&D Trials Regulation, Privacy, Ease of UseWill we see a Facebook for DNA or Biological DNS - where peoplechoose an entity to register and host their genome?
  8. 8. Regulation www.DNAguide.com
  9. 9. Problem of Fear and Ignorance ATA T T A C G C G
  10. 10. The Patient Has ChangedDoctor, it hurts Doc, I was bornwhen I do this this way
  11. 11. New Path to Market? C T G Those A ProvidingConsumer/ ValuablePatient Controls InformationAccess To Their and ServicesDNA via Real Get RewardedTime Consent
  12. 12. Genome Browsers &Non-Scientific Users (Mitochondria)
  13. 13. Solution is to Manage Interpretation and Access Down to the Base Pair Level
  14. 14. Technology can Enable Dynamic Regulation & Compliance Information Category RatingQuality of Science (Graded) A,B,C,D,F(by Scientific Community) W = Withdrawn I = IncompleteMedical Utility (Five Star Rating)(by Health Care Providers/ Payers) (Movie Rating)Viewing Risk E=(Genetic Counselors, Ethics) Everyone, PG = Physician Guidance R= Restricted
  15. 15. Building the Scaffolding for Future Personal Biological DataGrand Slam of Electronic Health RecordsPatient as Owner Map of Your Map of Your Security Token Genome BodyDNA sample used to create “Google Maps” for your genome Medical records, images andpatient centered universal with the ability to manage gene expression data to behealth record based on real interpretation and access down to linked to a map of the yourtime consent. (Patient the DNA base pair level. Convert human body and to genomicsubmits DNA sample to prove $1,000 genome into 2 minute location.ownership , receives login to genome at the point of care.setup user accounts).
  16. 16. Navigating Genetic Data Privacy, Regulation and Ease of UseAlice Rathjen, President, Founderalice@dnaguide.comMethod for preparing and using personal and genetic profilesDNA Guide, Inc. All rights reserved 2012
  • 01archivist

    Jan. 18, 2016

Advocates for self organizing genomes with real time consent . Pattern in evolution of digital humanity is aspect of life gets digitized and once it's affordable a platform emerges that allows people to: 1. Upload their data 2. Control who they share it with. Describes a personal biological domain model that allows for industry integration based on individual ownership of raw genetic data.

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