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           T HE S TUTTERING F OUNDATION
                  A Nonprofit Organization                    FA L L 2 0 0 6                  Since 19 47. .. Helping Those Who Stutter


 Is language a risk                                   Transatlantic alliance will help
factor in stuttering?                              researchers, clinicians and children
By Ehud Yairi, Ph.D.,

                                                   T       he Stuttering Foundation and          world. However, this will be the
University of Illinois                                     the Michael Palin Centre for          first direct involvement of the Stut-
   A person’s stuttering is not random.                    Stammering Children have              tering Foundation in a treatment
Linguistic factors have been consid-               joined forces in a groundbreaking al-         program.
ered relevant to stuttering especially             liance to help children who stutter              “We are very excited at the
since early research (Brown, 1937,                 through research, treatment                            prospect of working togeth-
1945) demonstrated their strong influ-             and training programs.                                      er with SFA to promote
ence on the occurrence of stuttering                  The Michael Palin                                          and provide a first
events, or “moments of stuttering,” in             Centre, based in Lon-                                           class service for
specific locations of the speech stream            don, England, is                                                  c h i l dr e n   an d
(e.g., the beginning                               widely considered                                                   y o u ng a du l t s
of sentences and                                   one of the premier                                                  who stammer,”
phrases) and in                                    treatment cen-                                                           said Frances
words of certain                                   ters in                                                                          Cook,
grammatical classes                                t h e                                                                            M.Sc.,
(e.g., verbs and ad-                               world                                                                            manag-
jectives). The link                                for child-                                                                er of the
between stuttering                                 hood stuttering;                                                    Michael Palin
and language is es-                                and it is active in                                                Centre. “This
pecially intuitive in                              research and the                                                 partnership be-
young children. Ehud Yairi, Ph.D.                  training of speech-lan-                                        tween our two orga-
Several scholars                                   guage therapists. While                                     nizations will combine
have noted that stuttering onset, typical-         the Centre is based in London,                         our strengths and serve to
ly between ages 2 and 4, coincides                 it provides treatment for children as         benefit our clients and therapists on
with the critical period of accelerated            well as training for therapists from all      both sides of the Atlantic.”
expansion in children’s expressive and             over the United Kingdom.                         “The alliance of the two organi-
receptive language (Levina, 1963; Yairi,              The Memphis-based Stuttering               zations makes perfect sense,” said
1983, Ratner, 1997). Thirty years ago,             Foundation is one of the leading              Jane Fraser, president of the Stut-
Cheverkeva (1977) proposed that stut-              U.S.-based nonprofit organizations            tering Foundation. “The Palin Cen-
tering is basically a disorder of lan-             dedicated to the prevention and               tre’s top-notch treatment facility
guage development, an idea recently                treatment of stuttering. Its publica-         means hope for thousands of chil-
echoed by Bloodstein (2002).                       tions reach people in more than               dren who stutter and for some time
   The possible stuttering-language link           100 countries each year, and it is            now has provided an essential
has become a focus of scientific inter-            also active in training speech lan-           training ground for researchers and
est, reflected in several stuttering mod-          guage pathologists by sponsoring              clinicians.”
els with psycholinguistic viewpoints.              training courses for those who spe-              The Michael Palin Centre for
Among these are the Demands-Capac-                 cialize in stuttering.
ity Model (Starkweather, 1987), the                                                              Stammering Children was official-
                                                      More than 800 therapists have              ly opened in 1993. British comedi-
Covert-Repair Hypothesis (Postma &                 participated in SFA workshops dur-
Kolk, 1993), the Trade-Off Hypothesis                                                            an Michael Palin agreed to the cen-
                                                   ing the past 20 years, including              ter being named after him following
                          Continued on page 8      145 from 32 countries around the                                     Continued on page 3




  Inside...                                        Geneticist Dennis Drayna joins SFA board
    SFA at 5th World Congress . . . . 2               Dennis Drayna,Ph.D.,           nized for his work in ge-
    Speech/language processes . . . . 2            has joined the SFA Board          netics, he currently serves
    Journalists honored . . . . . . . . . . 3      of Directors.                     as Section Chief in the Na-
    Help for back-to-school season . 4                Dr. Drayna received his        tional Institute on Deafness
    Workshops . . . . . . . . . . . . . . . 5, 9   B.A. from the University of       and Other Communication
    Kids use art to express feelings . 6           Wisconsin in 1976, and his        Disorders, NIH, where he
    Teen speaks out . . . . . . . . . . . . . 7    Ph.D. from Harvard Univer-        pursues studies on the genet-
    News from Russia . . . . . . . . . . . 9       sity in 1981.                     ics of human communication
                                                      Internationally recog-         disorders.                 ❑              Drayna
2       www.stutteringhelp.org                                                                                          1-800-992-9392


New windows SFA at 5th World Congress
on the onset Workshop specialists
 of stuttering meet World Congress of the In-
                       again in Dublin
                he 5th
Dublin conference brings                      Tternational Fluency Association
                                              was held at Trinity College in Dublin,
 researchers together                         Ireland, July 25-28, 2006. It brought to-
By Anne Smith, Ph.D.,                         gether more than 300 people, many of
Purdue University                             them experts in the field of stuttering.
   In July of this year, I was honored           Participants came from 34 countries
to be a keynote speaker at the meet-          around the world and more than 15 per-      JoAnne Wilding, Canada; Peter Tonev, Bul-
ing of International Fluency Associ-          cent of all participants had attended       garia; Beatriz de Touzet, Argentina; Lisa Av-
                                                                                          ery, Canada; Merethe Moerk, Norway; Steen
ation in the wonderful city of Dublin,        the Stuttering Foundation/Northwest-        Fibiger, Denmark; Jane Fraser, U.S.A.; Yu-
Ireland. In my talk, “Physiological           ern/Iowa Workshop for Specialists!          lia Filatova, Russia; Anne-Marie Simon,
Indices of Speech                             This group met for several photos in        France; David Shapiro, U.S.A. Florence-
and Language Pro-                             honor of Dr. Hugo Gregory who direct-       Juillerat, Switzerland.
cesses: New Win-                              ed the Northwestern Workshop
dows on the Onset                             for 16 years.                          ❑
of Stuttering in
Young Children,”
I reviewed some
of the accomplish-
ments of the Pur-
due Stuttering Pro-
ject and outlined        Anne Smith, Ph.D.
our ongoing re-
search studies. Here are some of the
highlights from that talk:                                                               Blanca Gonzalez, SFA founder Malcolm
                                              At Dublin Castle opening reception, Joe Spain .             Fraser’s granddaugh-
   First, to let you know our point of        Fulcher, U.S.A.; Beatriz deTouzet, Ar-                      ter Celia Gruss, France,
view about stuttering — Despite the           gentina; Peter Tonev, Bulgaria; Jane Fras-                  and Yulia Filatova, Rus-
diversity of the disorder in different        er, U.S.A.; and Ma Carme Junca, and                         sia, at Dublin Castle.
people who stutter, all individuals           Marina Llobera, Spain.
who stutter exhibit breakdowns in the
motor processes necessary for speak-
ing. The factors that influence these                               Ruth Ezrati,
                                                                    Israel; and                                  Claudia Furquim de
breakdowns in speech are complex.                                                                              Andrade, Brazil; and
We have proposed that a complete                                    Isabella Reichel,
                                                                    U.S.A.                                     Suzana Jelcic Jaksic,
model of stuttering must incorporate                                                                           Croatia.
motor, linguistic, cognitive, psychoso-
cial, and genetic factors, and that the
model must explain how these factors
interact during childhood to produce
the disruptions in speech that makes
one a person who stutters.
   What we know from studies of
adults who stutter — Much of our
earlier work on the Purdue Stutter-            Joseph Nsubuga,
ing Project was focused on adults                 Uganda; Jane
who stutter. These studies were es-            Fraser; and Yuki
sential to establish what the physio-              Hara, Japan.                           Front row: Lisa Avery, Canada; Simona
                                                                                          Bernardini, Italy; Jane Fraser; and Massim-
logical bases of the disorder are in in-                                                  iliano Marchiori, Italy. Back row: Suzana
dividuals with chronic stuttering.                                                        Jelcic Jaksic, Croatia; JoAnne Wilding,
Our findings, in addition to those                                                        Canada; Isis Meira, Brazil; Beatriz de Touzet,
from many other research groups,                                                          Argentina; Peter Tonev, Bulgaria; Merethe
mapped the differences in speech                                                          Moerk, Norway; Steen Fibiger, Denmark;
movement and muscle activity that                                                         Anne-Marie Simon, France; David Shapiro,
occur during disfluent speech in the                                                      U.S.A; Florence Juillerat, Switzerland and
face, voice, and breathing areas. We                                                      Mirjana Lasan, Croatia.
also looked at language processing
in adults who stutter when they are
                        Continued on page 4
                                                                                            Joseph Agius, Malta, at the SFA booth.
FA L L 2 0 0 6                                                                                         1-800-992-9392          3



Quality journalism honored                                                                Childhood
   For the 15th year, the Stuttering                        article gave read-         stuttering part of
Foundation recognizes excellence in                         ers the tools they
news reporting.                                             need to identify
   The 2006 Media Awards go to five                         stuttering in young           U.S. Congressman Frank R. Wolf
distinguished journalists.                                  children and offers        of Virginia read the article about
   Each winning entry successfully                          useful advice on           Tiger Woods
enhanced public understanding of                            how to improve             from the summer
this complex speech disorder during                         fluency.                   newsletter and
the past year.                                  Culp           Mildred L. Culp         submitted re-
   “Journalists in a variety of media                       took first place for       marks to the
have done an outstanding job of            her nationally syndicated column            Congressional
focusing on the causes and treat-          Workwise. In her inspirational col-         Record to draw
ment of stuttering over the past           umn, Dr. Culp explained how peo-            attention to
year,” said Jane Fraser, president of      ple who stutter can                         childhood
the 59-year-old nonprofit founda-          make it in the                              stuttering.
tion. “We were particularly pleased        workplace.                                     On June 20,
                  this year to see in-        Joy ce L a i n                           the congress-
                  creased focus on         Kennedy earned                              man said, “Mr
                  stuttering in the        second place. Her                           Speaker, I rise to-
                  workplace, an area       nationally syndi-                           day to bring the at-         Wolf
                  that’s previously        cated column Ca-                            t en t i o n o f t h e
                  not received much        reers Now helped                            House to an article I recently read
                  attention.”              a reader who stut-          Kennedy
                                                                                       about Tiger Woods in the Stutter-
                     T. Grant Fitch        ters prepare for a job interview.           ing Foundation’s summer newslet-
                  of the Post-Tri-           In t h e t el ev i s i o n cat eg o ry,   ter. I stuttered as a child and I think
      Fitch
                  bune, Merrillville,      Janelle Wolfe of Comcast Tonight,           it’s important for kids to know that
                  Ind., received first     Reading, Pa., re-                           they can overcome this complex
place in the daily newspaper cate-         ceived first place                          disorder. Tiger Woods is an excel-
gory for “Saving stutterers.” The          for a lively seg-                           lent example of the many people
article provided readers with time-        ment feat u ri n g                          who have led successful lives de-
ly information that parents can use        speech-language                             spite struggling with stuttering as
to help their children overcome            pathologist Joseph                          a child.                              ❑
stuttering, includ-                        Donaher of Chil-
ing taking advan-                          dren’s Hospital of
tage of resources                          Philadelphia and             Wolfe
offered by their lo-                       the DVD Stutter-                            Transatlantic     Continued from front page
cal schools.                               ing: For Kids, By Kids. Donaher
   Dorothy        P.                       and Wolfe shared timely resources           his role in A Fish Called Wanda, in
Dougherty,                                 for children who stutter.                   which he portrayed a character
Archives of Pedi-                            The awards were announced dur-            called Ken who stuttered. He based
atrics & Adoles-                           ing Stuttering Awareness Week,              the role on his own father who suf-
cent Medicine            Dougherty         May 8-14. 20/20’s co-anchor John            fered from stuttering all his life.
earned first place                         Stossel led this year’s awareness           Palin is best known for his comic
for magazine articles. Dougherty’s         campaign.                              ❑    roles as part of the Monty Python
                                                                                       comedy group.                     ❑


Speaking wasn’t always easy for Damon
  New York Daily News writer Antho-
ny McCarron inspired people of all ages
with a July article that told of Yankees
outfielder Johnny Damon and stuttering.
  “...speaking didn’t used to be so
easy for Damon. For several years as
a child, he stuttered so badly he was
afraid to introduce himself. Some-
times, there was cruel teasing from
other kids,” McCarron wrote.
  “My mind was going a thousand            and got better,” recalled Damon, who        Diana de Grunwald, Willie Botterill and
miles an hour and my mouth would           started speech therapy in second grade.     Frances Cook of the Michael Palin Cen-
say whatever came to it. I slowed down,       A link to the complete article is at     tre for Stammering Children with Jane
took my time, connected my words           www.stutteringhelp.org.              ❑      Fraser of the Stuttering Foundation.
4       www.stutteringhelp.org                                                                                       1-800-992-9392


Rabinowitz’s podcast                        Help for back-to-school season
   World-renowned wildlife conserva-
tionist Alan Rabinowitz has been lead-         With school back in session, the Stut-       Recently, it was featured in Teach-
ing the fight to                            tering Foundation offers materials that      ing Pre K-8, on several Web sites and
save tigers in                              are helpful for teachers and students.       in a number of other publications.
the remote                                     Stuttering: For Kids, By Kids is a           Complete with handbook, this
Hukaung Val-                                12-minute DVD that features an an-           DVD helps answer common ques-
ley in northern-                            imated basketball speaking with chil-        tions educators may have when teach-
most Mynmar.                                dren of various ages                                       ing a child who stutters.
   Now, you                                 about their stuttering.                                       “By presenting a
can listen to all                              Brooklyn-based                                         range of perspectives,
of the details                              speech pathologist Peter                                  Stuttering: Straight Talk
of Alan’s fascinating journey on a          Reitzes, M.A., lets his                                   for Teachers can build a
podcast at www.audible.com/tiger-           students bring friends to                                 shared dialog and a strong
man. There is also a link directly to his   view the video with. He                                   educational partnership
podcast at www.stutteringhelp.org.          provides doughnuts and                                    that includes the thera-
   Rabinowitz has previously said           milk for the “party.”                                     pist, teachers, parents and
struggling with stuttering helped              During and after the                                   student,” writes reviewer
shape his life.
   A DVD of an inspirational keynote        video, Reitzes keeps an                                   MaryAnn Byrnes, Ed.D.,
address by Rabinowitz is also avail-        open discussion with students of top-        University of Massachusetts, Boston.
able from the Foundation.              ❑    ics discussed on the video such as           She adds she’ll be recommending it to
                                            “what is stuttering?,” “does stuttering      her colleagues in schools.
                                            bother you?,” “is stuttering a big deal         Both videos can be ordered in VHS
                                            for you?,” “teasing,” “talking open-         and DVD. They are also available as
  Translation for                           ly about stuttering,” and “advice for        free streaming video at www.stut-
 Russian teachers                           children who go to speech therapy.”
                                               After watching the video, he asks
                                                                                         teringhelp.org.
                                                                                            Notes to the Teacher brochure is
  Vyatcheslav V. Lep-                       each student to write down two things        another great resource. It answers
tyukhov, author of the                      they liked or learned from the film.         questions educators may have and
Web site www.stut-                          He then collects the responses and           includes 9 Tips for Talking With the
tering.ru, is translat-                     reads them aloud.                            Child Who Stutters.
ing     Stuttering:                            Stuttering: Straight Talk for Teach-         Visit www.stutteringhelp.org to see
Straight Talk for                           ers is another popular DVD that has          these products or call toll-free 800-
Teachers handbook                           received nationwide attention.               992-9392.                              ❑
into Russian.       ❑


Web conference to                           Windows              Continued from page 2   support the later years!).
                                                                                            We know from earlier research
explore stuttering                          not speaking. One surprising finding         that approximately half of the chil-
                                            was that when adults who stutter are         dren who are stuttering at 4-5
   In October individuals interested in     reading, their brains are processing
stuttering, professional therapists as                                                   years, will persist and have a
                                            some aspects of language very differ-        chronic stuttering problem, while
well as clients and their                   ently compared to control partici-
support persons, will                                                                    approximately half of these chil-
                                            pants who do not stutter.                    dren will recover. By using new
discuss this much mis-                         What we are doing now — We
understood speech dis-                                                                   experimental windows on how
                                            all know that stuttering starts in very
order in one of the                         young children. Over the past five           y o u n g b rai n s a re d ev el o pi n g
largest professional con-                   years, we have been developing               speech, we hope to develop meth-
ferences of the year. But                                                                ods by which we can predict which
not face-to-face — this                     ways to gather the same physiolog-
                                            ical measures from young children.           children are likely to have a chron-
conference is freely-                                                                    ic stuttering problem. In addition
available on the Internet.                  By adapting our methods and mak-
                                            ing them kid friendly, we have been          we will attempt to determine the
   The ninth annual International Stut-                                                  factors that play a critical role in
tering Online Conference runs from          able to test children as young as
                                            four. In the current phase of the Pur-       the development of chronic stut-
October 1-22 at the Stuttering Home                                                      tering so that better therapies for
Page, www.stutteringhomepage.com.           due Stuttering Project, we are bring-
   Conference presentations are posted      ing in a group of 50 children who            young children will be available.
                                            stutter ages 4-5 years. We plan to test         Thanks to the National Institute on Deaf-
for reading on the web site. Presenta-                                                   ness and Other Communicative Disorders
tions are designed for a general audi-      these children and a matched group
                                                                                         and to the Malcolm Fraser Foundation for
ence, and feedback and discussion is in-    of non-stuttering children over a            their support of the Purdue Stuttering Pro-
vited through an Internet bulletin board.   five-year period (please note that           ject, which is co-directed by Anne Smith,
   Past conferences have drawn par-         the NIH, because of budget re-               Ph.D., and Christine Weber-Fox, Ph.D. It
ticipation from more than 130 differ-       straints, only gave us 3 years of            has been exploring new frontiers in the
ent countries around the world. ❑           funding , and we hope to get them to         physiology of stuttering since 1989.      ❑
FA L L 2 0 0 6                                                                                             1-800-992-9392         5



Workshop ‘enriching, engrossing, enlightening’
   In June, Children’s Hospital of
Philadelphia (CHOP), Florida State
University, and the Stuttering Foun-
dation co-sponsored the first Mid-
Atlantic Workshop in Philadelphia.
   Twenty-one speech-language
pathologists from California, Illi-
nois, Kentucky, Maryland, Okla-
homa, New Jersey, New York, Penn-
sylvania, South Dakota, Virginia,
Canada, and South Africa met June
21-25 on the CHOP campus to learn
how to assess and treat preschool-
ers, school-age children, and adoles-
cents who stutter.
   The workshop was led by co-instruc-
tors Joe Donaher, Children’s Hospital
of Philadelphia; Kristin Chmela, private
                                           Front row (seated): Lisa Scott, Kristin Chmela, Jane Fraser, Joe Donaher; Second row:
practice, Long Grove, Ill.; and Lisa       Kate Eichstadt, Brett Kluetz, Anne Marie Wagener, Astrid Cordero, Lonnie Harris, Rox-
Scott, Florida State University.           anne Fleck, Joanne Summer, Terri Hessler, Jennifer Kleinow, Jim Mancinelli, Diedre Den-
   The goals of the workshop were          nis, Lori-Ann Acenas Mauricio, Carol Ellis, Kris Kelley, Lori Graca Griffin; Back row:
to increase participants’ skills and       Kris Baines, Stacey Simpson, Dina Lilian, Steffi Schopick, Carolyn Belle, and Maya Brown.
confidence in communicating ef-
fectively with children, diagnose
the extent and severity of the disor-
der, develop appropriate treatment
plans, design meaningful therapy
activities, and learn to model both
fluency shaping and stuttering mod-
ification tools.
   Emphasis was placed on creating
relationships with children, families,
and teachers that would facilitate the     A time to talk about caseloads and network
                                           is part of the conference.                 Participants watch a video of a therapy
greatest success for children who are                                                 session.
working to improve their communi-
cation skills. Learning opportunities                                                                                Dr. Judy
included traditional lectures, guided                                                                                Gravel and
case planning, daily small-group                                                                                     Joe Donaher
practice of the various clinical and re-                                                                             of the
lationship skills, and watching video-                                                                               Children’s
                                                                                                                     Hospital of
tapes of therapy sessions.                                                                                           Philadelphia.
   The participants and instructors all
agreed that the workshop was a great
success. “We were so thrilled to have
so many clinicians from a variety of       Jennifer Kleinow, LaSalle University; Kris
work settings devote a week of their       Baines, California; and Brett Kluetz, Balti-
summer to learning more about stut-        more, share ideas.
tering,” said Kristin Chmela.                                                                                        Maya Brown,
                                           ucation experience of my profes-                                          Nova Scotia,
   Joe Donaher was especially en-                                                                                    Canada, and
thused about hosting so many indi-         sional career. Thank you for making                                       Lonnie Har-
viduals interested in helping children     it possible!”                                                             ris, Kentucky.
who stutter, saying that “The dedica-         James Mancinelli of La Salle Uni-
tion of these SLPs to helping kids is      versity said, “My experience at the
inspirational. Many children will ben-     2006 Mid-Atlantic Workshop was
efit from the talents and interest of      enriching, engrossing, enlightening,           ists held at the University of Iowa.
these individuals.”                        and certainly enticed me to learn                 For applications or more informa-
   Feedback from workshop partic-          more about stuttering and ways to              tion, contact the Stuttering Founda-
ipants was outstanding, and includ-        better serve people who stutter.”              tion at 1-800-992-9392, download
ed comments such as “I really think           Additional five-day workshops are           applications on the web at www.stut-
this week will stand out as perhaps        being planned for Summer 2007, as well         teringhelp.org, or email info@stutter-
the most significant continuing ed-        as the two-week Workshop for Special-          inghelp.org.                         ❑
6       www.stutteringhelp.org                                                                                             1-800-992-9392




                          Dear SFA: Reader Response
                          Send letters to SFA, P.O. Box 11749, Memphis, TN 38111-0749 or email info@stutteringhelp.org.

Poem on stuttering                             Greetings from overseas                       Wonderful Web site
Dear SFA,                                                                                    Dear SFA,
  Hi my name is Alicia and I’m 13                                                               I want to thank you for creating a
years old. I’ve been stuttering since I                                                      wonderful Web site that helps people
was 5 years old. I’m from Virginia                                                           with their stuttering. I have been stut-
Beach, Va. Here is a poem I wrote:                                                           tering ever since kindergarten and
       The Stuttering Ways                                                                   now I am in high school.
                 By Alicia                                                                      I’ve had great speech teachers. I
    Coming home, covered in tears                                                            had hard-talking stuttering from age
         Life swept away by fear                                                             4 to age 10. Now my speech is clear-
        Can’t even say my name                                                               ing up slowly.
   To worried about playing games                                                               It really hurts me that I can’t talk
                                               Friends and Family Day in Mauritius.
                                                                                             like other students.
     You’re always put on the spot             Dear SFA:                                        I just want to say I do not feel bad
Pretending to be someone you’re not              I would like to thank you for all the       about stuttering.
  Avoiding words that you can’t say            materials I have received in good or-         Jonathan, 14
      Is getting worse day by day              der. I have added them to our library so      Greenville, Miss.
   What is happening to my brain?              that every member of Parole d’Espoir
         It causes so much pain                can use them. I am also glad to in-           Mission to Togo
 Trying to give a class presentation           clude a photo of our group which was
       Just ruins your reputation              taken during Friends and Family Day.
      Trying to do something new               Jim Caroopen
  Is hard while kids are teasing you           Mauritius
      Always fluent when singing
          Never while mingling                 Fan of James Earl Jones
            Never press hardly                 Dear SFA,
       Always try to touch lightly               I really like your newsletter and
                                               brochures that you                              I went to Togo on behalf of the ISA
     Speech is like a river flowing            have about stuttering.
   Until a rock falls in and keeps it                                                        to give conferences on stuttering and
                                               The brochure that                             train students of the first generation of
                from going                     tells different facts                         speech therapists in West and Central
      I’ll never be a lawyer or vet            about stuttering is                           Africa. I am happy to announce the
 I’ll deserve more than what I’ll get          great. I did not know                         Togolese Stutterers’ Association was
Why did this have to happen to me?             that so many people                           created in June ‘06 in Lomé.
Can’t you see that it isn’t easy being         stuttered. James Earl James Earl              Anne Marie Simon
                  like me?                     Jones is my favorite.     Jones               Paris
  Take a walk in my shoes for a day            Damarius                                         Editor’s note: Anne Marie attended the SFA/NU
                                                                                             Workshop for Specialists in 1988 and carries the
   Would you want to live my way?              Greenville, Miss.                             torch worldwide.


    A picture’s worth...                     The artwork at the left is by Bryce, 8,
                                             Amagansett, N.Y., who wrote, “When
                                             I talk, a really mean monster sneaks up
                                             on me and shoves a rock in my throat.
                                             Everything gets tight and I can’t talk.
                                             Tne more rocks begin coming up. I
                                             sometimes get scared and want to run
                                             away. My speech teacher has taught me
                                             ways to help when this happens. I take
                                             a deep breath and stretch out the begin-
                                             nings of my words and sentences and
                                             then I spit up the rocks! Then I feel
                                             much better and I can talk again. I also     Above: Gage, 10, writes, “My stutter
                                             try not to speak too fast when I get         is a car driving on a bumpy road.”
                                             mad or excited. If you try really hard,
                                             you can get the monster and stuttering       Do you have artwork to share? You
                                             to go away too.                              can e-mail it to info@stutteringhelp.org.
FA L L 2 0 0 6                                                                                            1-800-992-9392       7


Singer Withers overcame stuttering
   While Bill Withers has long been         My Love and Who Is He (And Who Is
on the SFA list of “Famous People           He to You). However, it is the classic
Who Stutter,” many people proba-            song Lean On Me, which is most re-
bly didn’t realize he stuttered.            membered, topping the Billboard Hot
   The April/May 2006 issue of the          100 charts for three weeks in July 1972
magazine Waxpoet-                           in addition to topping the R & B charts.
ics sheds some light                           Between 1972 and 1979, Withers
on the brilliant career                     put out five albums. In 1981, he
of the famed singer                         teamed up with saxophonist Grover
and songwriter.                             Washington Jr., both writing and per-         Daniel Altman is interviewed by WAVE 3
   Born in 1938 in                          forming lead vocals on Washington’s           TV News.
Slab Fork, W.V.,                            hit Just the Two of Us, which spent
Withers was the
youngest of six chil-       Withers
                                            three weeks at number two.
                                               Just the Two of Us garnered him            Teen speaks out
dren. When his father
died when Withers was small, he was
                                            four Grammy nominations that year.
                                               In 1987, Withers received his ninth
                                                                                          about stuttering
raised by his mother and grandmother,       Grammy nomination and won his third              Daniel Altman, 13, decided to
both of whom worked as domestics.           Grammy award on account of Club               make stuttering awareness the focus
   Not motivated in school and strug-       Nouveau covering Lean On Me and               of the community service project for
gling with stuttering, Withers              taking it to number one on the Bill-          his upcoming bar mitzvah. His goal
dropped out after ninth grade, later to     board charts. It marked the fifth time        is to tell as many people as possible
join the Navy. It was in the Navy           in the rock era that a song had reached       in the Louisville, Ky., area that stut-
that for the first time he was able re-     number one by two different artists.          tering is nothing to be ashamed of.
ceive adequate speech therapy.                 In this case, it was the first time that      Daniel took his campaign to
   The article in Waxpoetics lists,         both artists who recorded the song            Louisville Mayor Jerry Abramson,
“...his chronic stutter as one of the       were African-American. Withers’               who issued a proclamation declar-
possible reasons he stayed in the ser-      songs have been recorded over the             ing the Week of May 8 as Stuttering
vice for so long, because he used the       last 36 years by hundreds of artists,         Awareness Week in Louisville and
time to become comfortable with             such as Barbra Stresiand, Michael             Southern Indiana.
speech and gain self-confidence.”           Jackson, Aretha Franklin, Sting,                 The teenager also hung this year’s
   After his hitch in the Navy, With-       Temptations, Paul McCartney, Tom              Stuttering Awareness Week poster fea-
ers worked in jobs ranging from air-        Jones, Joe Cocker and Mick Jagger.            turing 20/20’s John Stossel around town.
craft repairman to milkman. Finally            Some articles from past decades               Daniel wants to place stuttering
in 1967, at age 29, he decided to pur-      credit the newfound fluency that With-        resource materials in every public li-
sue his interest in music.                  ers received from his speech therapy          brary in Louisville before his bar
   The famed Booker T. Jones pro-           in the Navy as giving him the confi-          mitzvah, which is on Nov. 4.
duced his first album, Just As I Am,        dence to pursue a career in music.               In order to further his efforts,
which was recorded with the MG’s               Unlike many other artists, Withers         Daniel wrote local TV and radio sta-
as the backing band along with              was able to retain much of his song-          tions asking them to publicize stutter-
Stephen Stills. Ironically, the lead sin-   writing and publishing rights. Lean           ing awareness week.
gle Harlem failed to chart, but its B-      On Me alone is said to have turned               At least one local station, WAVE 3,
side, Ain’t No Sunshine went gold.          into a multi-million dollar goldmine          featured Daniel and his efforts on
The song also catapulted Withers to         over the years with use in movies             their newscast and Web site.
stardom in the music world, as he won       and advertisements, as well as ex-               Daniel knows firsthand how diffi-
his first Grammy as a songwriter.           tensive radio play.                           cult stuttering can be. But he told the
   Withers follow-up album Still Bill          He hopes to soon release his first         NBC station he doesn’t try to hide it
yielded hits such as Use Me, Kissing        album of new material since 1985. ❑           when others try to embarrass him.
                                                                                             “I just kind of lay it out — ‘I stut-
                                                                                          ter and I don’t appreciate it that you
Woolwine takes her message on the road                                                    make fun of me. Please stop’.”
   Eva Woolwine, who ran for Miss           requests and invitations to speak and            Daniel’s efforts are especially for
Kansas this summer, is taking time          perform,” she said.                           other kids who are not yet brave
off from pageants                              “I have been going everywhere:             enough to take a stand.
to focus on college,                        civic groups, senior citizen groups,             “It’s a sad thing, which is why I
and      stuttering                         classrooms, Retired Teachers Asso-            need to further educate people so that
awareness.                                  ciation of Kansas. I have many more           people won’t have to cower inside
   Woolwine, who                            coming up in the fall.”                       corners. People can feel more com-
also performs mag-                             Woolwine has served as junior              fortable about who they are,” he told
ic tricks, says she’s                       spokesperson for the SFA and partic-          the Louisville station.
been very busy.                             ipated in last year’s National Associ-           In addition to the on-air segment,
   “This summer I                           ation of Young People Who Stutter:            reporter Lori Lyle provided links to
have received more    Woolwine              Friends Convention.                 ❑         resources online.                     ❑
8        www.stutteringhelp.org                                                                                                           1-800-992-9392

Ehud                 Continued from front page   ency) and that recovery from stuttering        sistency or recovery.
                                                 would occur as these children reduce              In summary, although we believe that
(Ratner, 1997) and the Cognitive Inter-          their early accelerated rate of language       associations between stuttering and sev-
ference Model (Bosshardt, 2002). Inves-          development. If our findings are valid,        eral linguistic variables do exist, so far no
tigators have focused their studies on           they will have important clinical impli-       clear causal relations have been estab-
five distinct linguistic variables: (a)          cations for parent counseling and thera-       lished, and there is no consensus on their
phonological aspects, (b) loci of stutter-       py programs.                                   precise role or contributions as risk fac-
ing, (c) language complexity, (d) prag-             To be sure, there is no consensus at this   tors for the onset of stuttering and its
matics (child’s use of language), and (e)        juncture concerning advanced language          persistence, or their influence on natural
language skills. For example, research           skills as a risk factor in early childhood     recovery. This and several other aspects
concerned with the first variable listed         stuttering. Recently, a few studies report-    of the stuttering-language connection
above has provided evidence that stut-           ed some results that differ from the Illi-     continue to be the subject of scientific dis-
tering is increased as a function of lan-        nois findings. These studies, however,         cussions and controversies (Nippold,
guage complexity (Logan & Conture,                                                              2004; Wingate, 2001). Fortunately, it has
1995, Zackheim & Conture, 2003).                     “... high language                         attracted very rich and varied research ac-
   Regarding language as risk factor,                                                           tivities, the fruits of which should signif-
perhaps most interesting to clinicians                skills rather than                        icantly enhance our understanding and
and parents has been a relatively long-                low ones might                           treatment of stuttering.
standing view that stuttering children                 be a risk factor                              REFERENCES
are more likely than normally speaking                                                               Anderson, J., & Conture, E. (2000). Language abilities of
peers to have language learning diffi-                  for stuttering,                         children who stutter: A preliminary study. Journal of Fluen-
                                                                                                cy Disorders, 25, 283-304.
culties or impairments (see reviews by                 particularly for                              Andrews, G., Craig, A., Feyer, A., Hoddinott, S., Howie,
                                                                                                P., & Neilson, M. (1983). Stuttering: A review of research
Andrews, et al., 1983, and Ratner, 1997).            persistent, chronic                        findings and theories circa 1982. Journal of Speech and Hear-
                                                                                                ing Disorders, 48, 226-246.
A few current articles continue to prop-
agate this view (Arndt & Healey, 2001;                   stuttering. ”                               Arndt, J., & Healey, C. (2001). Concomitant disorders in
                                                                                                school-age children who stutter. Language, Speech and Hear-
                                                                                                ing Services in Schools, 32, 68-78.
Wingate, 2001). On the other hand, over                                                              Blood, G., Ridenour, V. J., Qualls, C. D., & Hammer, C. S.
the past 15 years, extensive longitudinal        raise questions concerning their methods.      (2003). Co-occurring disorders in children who stutter. Journal
                                                                                                of Communication Disorders, 36, 427-448.
studies at the University of Illinois Stut-      For example, Anderson and Conture                   Bloodstein, O. (2002). Early stuttering as a type of lan-
                                                                                                guage difficulty. Journal of Fluency Disorders, 27, 163-167.
tering Research Program have revealed            (2000) noted that although all their par-           Bosshardt, H. (2002). Effects of concurrent cognitive pro-
no delayed language development in               ticipants had language abilities at or above   cessing on the fluency of word repetition: Comparison between
                                                                                                persons who do and do not stutter. Journal of Fluency Dis-
young children who stutter. To the con-          normal limits, the stuttering children still   orders, 27, 93-114.
trary, we have found that near onset they        demonstrated somewhat lower skills in               Brown, S. (1937). The influence of grammatical function
                                                                                                on the incidence of stuttering. Journal of Speech Disorders,
fall within normal range; in fact, often         certain areas than normally speaking           3, 223-230.
                                                                                                     Brown, S. (1945). The locus of stuttering in the speech se-
well above normal (Watkins, Yairi &              peers. Watkins and Johnson (2004), how-        quence. Journal of Speech Disorders, 10, 181-192.
Ambrose, 1999). Recent research in oth-          ever, pointed out that in many past stud-           Chevekeva, N. (1967). About methods of overcoming
                                                                                                stuttering: A survey of the literature. Spetsial Shkola, 3, 9-15.
er laboratories in the U.S.A. and Eu-            ies reporting lower language skills in              Häge, A. (2001). Können kognitive und linguistische
rope supports this finding (Anderson &           children who stutter, the comparison           Fähigkeiten zur Verlaufsprognose kindlichen Stotterns beitra-
                                                                                                gen? (Cognitive and linguistic abilities in young children: Are
Conture, 2000; Häge, 2001; Miles &               groups of normally speaking subjects           they able to predict the further development of stuttering?).
                                                                                                Sprache Stimme Gehör, 25, 20-24.
Ratner, 2001), which seems to agree              were selected in biased ways, often com-            Levina, R. (1966). Study and treatment of stammering
with many parents’ reports that their            ing from appreciably higher social groups      children. In A. D’yachov (Ed.), Specialized Schools, 120, (4).
                                                                                                Moscow: Education Publishing House. (Translation published
child had a spurt of language develop-           known to have richer language. In con-         in Journal of Learning Disabilities (1968), 1, 26-29.)
                                                                                                     Logan, K. & Conture, E. (1995). Relationships between
ment just prior to the onset of stuttering,      trast, the Illinois studies addressed this     length,grammatical complexity, rate, and fluency of conversation-
speaking in longer sentences and using           problem by comparing the performance           al utterances in children who stutter. Journal of Fluency Disorders,
                                                                                                20, 35-61.
new words. (They often say that “his             of the stuttering children to a much broad-         Miles, S., & Ratner, N. B. (2001). Parental language in-
brain seemed to be working faster than           er base of well-established normative          put to children at stuttering onset. Journal of Speech, Language
                                                                                                and Hearing Research, 44, 1116-1130
his mouth” could manage.) Further-               data. It is possible, however, that further         Nippold, M. (2004). Phonological and language disorders
                                                                                                in children who stutter: Impact              on treatment consid-
more, we have found that children who            research with preschool children using         erations. Clinical Linguistics and Phonetics, 18(2), 145-159.
eventually persist in stuttering tend to per-    more sensitive tools will reveal discrete           Ratner, N. (1997). Stuttering: A psycholinguistic perspec-
                                                                                                tive. In R. F. Curlee and G. M. Siegel (Eds.) Nature and Treat-
form above normative expectations at the         language differences between groups.           ment of Stuttering: New Directions. Boston: Allyn & Bacon.

early stage of stuttering and maintain           Other examples of disagreement are seen             Postma, A., & Kolk, H. (1993). The covert repair hypoth-
                                                                                                esis: Prearticulatory repair in normal and stuttered disfluen-
that level over time. Children who even-         in studies with school aged children who       cies. Journal of Speech and Hearing Research, 36, 472-487.
                                                                                                     Starkweather, W. (1987). Fluency and Stuttering. Engle-
tually recover, however, tend to perform         stutter reporting between 9 and 13% of         wood Cliffs, NJ: Prentice-Hall.
above normal at the early stage of the dis-      the children to exhibit concomitant lan-            Watkins, R. , & Johnson, B. (2004). Language abilities in young
                                                                                                children who stutter: Toward improved research and clinical ap-
order but approach the norm as they re-          guage difficulties (Blood, Ridenhour,          plications. Language, Speech and Hearing Services in Schools.
                                                 Qualls, & Hammer, 2003). Keep in mind               Watkins, R., Yairi, E., & Ambrose, N. (1999). Early
cover (Watkins et al., 1999, Yairi & Am-                                                        childhood stuttering III: Initial status of expressive language
brose, 2005). Strangely, then, high lan-         however, that by this age at least 75% of      abilities. Journal of Speech, Language, and Hearing Re-
                                                                                                search, 42, 1125-1135.
guage skills rather than low ones might          the original stuttering population had dis-         Wingate, M. (2001). SLD is not stuttering. Journal of
be a risk factor for stuttering, particular-     appeared due to natural recovery. The          Speech, Language, and Hearing Research, 44, 381-383.
                                                                                                     Yairi, E. (1983). The onset of stuttering in two- and three-
ly for persistent, chronic stuttering. It is     remaining (persistent) minority has been       year-old children: A preliminary report. Journal of Speech and
                                                                                                Hearing Disorders, 48, 171-177.
intriguing to theorize that the emergence        reported to possess some different genet-           Yairi, E. & Ambrose, N. (2005). Early Childhood Stut-
of stuttering involves some type of trade-       ic components. All in all, at the present,     tering. Austin: Pro Ed.
                                                                                                     Zackheim, C. & Conture, E. (2003). Childhood stuttering
off in linguistic resources (e.g., advanced      language alone is insufficient for making      and speech disfluencies in relation to children's mean length

language at the expense of motoric flu-          strong early predictions of eventual per-      of utterance: A preliminary study. Journal of Fluency Disor-
                                                                                                ders, 28, 115-142.                                                ❑
FA L L 2 0 0 6                                                                                          1-800-992-9392    9



School clinician conference gets high marks
  The Marriott Conference Center
in Lisle, Ill., was the setting for the
Stuttering Foundation’s annual con-
ference for school clinicians, Stut-
tering Therapy: Practical Ideas for
the School Clinician.
  Eighty-five people attended this
conference representing 13 states and
a variety of employment settings, in-
cluding schools, university clinics,
and private practice.
  Participants heard presentations        Conference leaders: Mary Mantilla, Ann McKeehan, Bill Murphy, Susan Hamilton, Jen-
from Tricia Zebrowski, Charlie            nifer Watson, Charles Healey, Kristin Chmela, Susan Cochrane, Carolyn Gregory,
Healey, Peter Ramig, Bill Murphy,         Kevin Eldridge, Elise Kaufman, Peter Ramig, and Lisa Scott.
Lisa Scott, and Kristin Chmela on
topics such as current research in
childhood stuttering, practical strate-
gies for therapy, functional methods
for measuring progress, counseling
children and their families about
stuttering, treating children with con-
comitant communication disorders,
and dealing effectively with guilt
and shame.
  New this year, guided practice ses-     Time was set aside during the conference for
sions were held in the main session       attendees to share stories.
room with guided practice leaders
seated at each table. This created an        The unique combination of pre- Several Watson and Carolyn Gregory. Back
                                                                                 Jennifer
                                                                                          2006 conference leaders. Seated:
intimate and personalized learning        sentations balanced with small group row: Ann McKeehan, Susan M. Cochrane,
environment that made discussion          guided practice make this confer- Patricia Zebrowski, Jane Fraser, and Elise
and practice easy. Small group guid-      ence one of the premier continuing S. Kaufman.
ed practice leaders included Susan        education opportunities available to
Cochrane, Kevin Eldridge, Susan           school-based speech pathologists.
Hamilton, Elise Kaufman, Mary             Evaluations by attendees were con-
Mantilla, Ann McKeehan, and Jen-          sistently positive: “This conference
nifer Watson.                             was a huge energizer for me. Proba-
  Presenters profiled children who        bly the best I’ve ever been to,” “This
stutter through the use of video seg-     conference was one of the most infor-
ments and examples of child re-           mational and inspirational ones I’ve
sponses. The audience responded           been to,” “The hands-on discussion
enthusiastically to these strategies      groups were wonderful and were so
which facilitated greater understand-     helpful in being able to share and
ing. Many clinicians were happy to        learn from others.”
have the opportunity to see tech-            Another attendee remarked, “This
niques and ideas being demonstrat-        conference has changed my perspec-
ed as well as to ask questions of         tive of my own abilities to help chil- New format makes it easier to exchange ideas
leading experts in stuttering.            dren and adults who stutter.”       ❑ during guided practice sessions.




 For Combined Federal Campaign            Exciting news out of Russia
 donors, please note that our code          For the first time ever, the SFA is in-      and a more recent
    number for the 2006–2007              cluded in the Russian Journal of Spe-          photo from the Iowa
        CFC campaign is                   cial Education.                                workshop.
                                            The article, by Yulia Filatova, tells           Filatova, who re-
            CFC #2539.                    the history of the Foundation, describes       sides in Moscow,
 We are proud that over 95 cents          the workshops for specialists in stutter-      also wrote a book
 of every dollar goes directly into       ing, and outlines the SFA’s outreaches.        about cluttering that
     helping those who stutter.             The article includes a picture of the        will be published
                                          Foundation’s first conference in 1957          in the fall.
12            www.stutteringhelp.org                                                                                                                          1-800-992-9392

 NEWSBRIEFS    The Stuttering Foundation Five Day Eastern
            Workshop, Diagnosis and Treatment of Chil-
                                                                 Books on Stuttering or Related
                                                                 Topics Available from Bookstores:
                                                                                                                                                  donations
            dren and Adolescents Who Stutter: Practical                                                                        Our thanks to the University of
            Strategies, will be held at Boston University,        Stuttering: An Integrated Approach to Its Nature and      Cincinnati and Nova Southeastern
            June 20-24, 2007. Workshop leaders are Diane       Treatment, Third Edition by Barry Guitar. 2006. Available    University chapters of the National
            Parris, M.A., Sheryl Gottwald, Ph.D., and Adri-    from Lippincott, Williams & Wilkins, 800-638-3030,           Student Speech-Lan-
            ana DiGrande, M.A. with guest speaker Edward
            G. Conture, Ph.D. The Stuttering Foundation
                                                               www.LWW.com                                                  guage-Hearing Asso-
                                                                  Stuttering Recovery Personal and Empirical Perspectives   ciation for their recent
            pays all tuition costs as well as room and board   by Dale F. Williams. 2006. Available from Lawrence Erl-
            for this exceptional in-depth workshop.                                                                         gifts to the SFA.
                                                               baum Associates, Mahwah, NJ, www.erlbaum.com
               The Stuttering Foundation Five Day West-
                                                                  Speech Therapy for the Severe Older Adolescent and
                                                                                                                               The generous gift
            ern Workshop, Diagnosis and Treatment of
                                                               Adult Stutterer: A Program for Change by George Helliesen.
                                                                                                                            from the student
            Children and Adolescents Who Stutter: Prac-
                                                               2006. Available from Apollo Press, Newport News, VA,         chapter at the Univer-
            tical Strategies, will be held at Portland State                                                                sity of Cincinnati will
                                                               800-683-9713, www.apollopress.com.
            University in Portland, Oregon, June 20-24,
                                                                  The Child and Adolescent Stuttering Treatment and Ac-     help children who stutter.
            2007. Workshop leaders are Susan Hamilton,
            M.A., Jennifer Watson, Ph.D., and Ellen
                                                               tivity Resource Guide by Peter Ramig and Darrell Dodge.         A student at Nova contributed $300
            Reuler, M.A. The Stuttering Foundation pays
                                                               2005. Available from Thomson Delmar Learning, Clifton        in honor of her fellow students.
 all tuition costs as well as room and board for this ex-      Park, NY.                                                       “I hope this will encourage others
 ceptional in-depth workshop.                                     Early Childhood Stuttering: For Clinicians by Clini-      to do the same,” she wrote. “The
    The Stuttering Foundation two-week Workshop for            cians by Ehud Yairi and Nicoline Grinager Ambrose.           Stuttering Foundation is certainly a
                                                               2005. Available from ProEd, Austin, TX and amazon.com.
 Specialists will be held at the University of Iowa, Iowa                                                                   cause that NSSLHA students can
 City, Iowa, June 17-29, 2007, directed by Patricia Ze-           Begaiement: Intervention preventive precoce chez le je-
                                                               une enfant by Anne Marie Simon et al. 2005. Available from
                                                                                                                            support and know that their gift is
 browski, Ph.D. and Toni Cilek, M.A. Guest speakers in-
                                                               the Association Parole Begaiement, www.begaiement.org
                                                                                                                            making a difference.”               ❑
 clude Lisa Scott, Ph.D., and others to be announced. This
 unique workshop brings together speech-language pathol-          Teach Me How To Say It Right, Helping Your Child With
 ogists from all over the world for its 18th year. As in the   Articulation Problems by Dorothy P. Dougherty, M.A.
 five-day workshops, the Stuttering Foundation pays all        2005. Published by New Harbinger's Publications, Oakland,
 tuition costs and room and board for the two weeks.           CA. Available at www.newharbinger.com.                       Drug results promising
    The 2006 National British Stammering Associa-                 Troy’s Amazing Universe, by S. Kennedy Tosten. 2002.         Indevus Pharmaceuticals an-
 tion (BSA) Conference will be held at the Telford             Published by Brite Press. Order from www.TroysAmazingU-
 campus of the University of Wolverhampton, England,
                                                                                                                            nounced the results
                                                               niverse.com or amazon.com. A story about a seven year old
 Sept. 15-17, 2006.                                            who stutters.
                                                                                                                            of a Phase II trial
    The Annual Convention of Friends will be held in late         The Strong Silent Type, by C. Kelly Robinson. A grip-
                                                                                                                            for pagoclone in
 June or early July 2007 in St. Louis. For information and     ping novel about a young NFL star coming to grips with       stuttering and the
 registration, visit www.friendswhostutter.org or call         his stuttering. Available from New American Library, New     data were quite promising.
 866-866-8335.                                                 York, and www.amazon.com.                                       Indevus said it was very encour-
    First World Conference on Cluttering: “It’s about             Experiencias para compatir entre padres e hijos by Ka-    aged by the results of the trial on a
 time” will be May 12-14, 2007, in Razlog, Bulgaria.           rina Couselo Rios, Maria Marta Gebara and Mariela            number of levels. Very importantly,
     The International Stuttering Association will
 hold the 8th Congress for People Who Stutter
                                                               Ginhson. Order from equipfono_gcg@yahoo.com.                 the safety profile of pagoclone was
 May 6-10, 2007, in Dubrovnik, Croatia. Visit
                                                                  Stuttering Therapy: Rationale and Procedures by Hugo      excellent, as it has been in previous
                                                               H. Gregory, June H. Campbell, Diane G. Hill, and Carolyn     trials, the drug company reported.
 www.isa.org.
                                                               B. Gregory. Available from Allyn and Bacon, Boston,
    Dave Germeyer offers a repair service for the Ed-                                                                          Indevus will be meeting with FDA
                                                               MA; www.ablongman.com. 2003.
 inburgh Masker. Contact him via e-mail at dgerm-
                                                                  Les begaiements: Histoire, psychologie, evaluation, va-
                                                                                                                            to define the pathway for further devel-
 eye@earthlink.net, write G.D. Germeyer, 306 S.
                                                               rietes, traitements by Anne Van Hout and Francoise Esti-
                                                                                                                            opment of pagoclone for stuttering.
 Baltimore St., Dillsburg, PA 17019-1011, or call                                                                           Stay tuned at www.stutteringhelp.org
 (717) 432-3103.                                               enne. Published by Masson, S.A., 120 boulevard Saint
                                                               Germain, 75280 Paris Cedex 06, France.                       for more information.                 ❑
    LISTSERV for doctoral students specializing in stut-
 tering. The intent of this list is to serve as an open fo-       Forty Years After Therapy: One Man’s Story by George
 rum for doctoral students. Membership is limited to           Helliesen, M.A. Available from Apollo Press, Inc., 1-800-
                                                               683-9713 or www.apollopress.com.                              The Stuttering Foundation of America is a tax-
 doctoral students only. To subscribe, send the follow-
                                                                                                                             exempt organization under section 501(c)(3) of
 ing message to listserv@listserv.temple.edu: “subscribe          Understanding Stuttering by Nathan Lavid. 2003. Uni-
                                                                                                                             the Internal Revenue Code and is classified as
 stutterdoc firstname lastname” or contact Joe Donaher         versity Press of Mississippi, Jackson, MS. Order from
                                                                                                                             a private operating foundation as defined in
 at turtlecraw@aol.com.                                        bookstores or amazon.com.                                     section 4942(j)(3). Charitable contributions and
    For those interested in joining Toastmasters Inter-           Programmed Stuttering Therapy for Children and Adults      bequests to the Foundation are tax-
 national as a way to improve fluency, communication           by Bruce Ryan, Ph.D. Available through publisher Charles      deductible, subject to limitations under the Code.
 or public speaking skills, their address is: Toastmas-        C. Thomas or online at www.amazon.com
 ters International, Inc., Attention: Membership De-              Making a Difference for America’ Children: SLPs in the
                                                                                                                                  THE
 partment, P.O. Box 9052, Mission Viejo, CA 92690,             Public Schools by Barbara Moore-Brown and Judy Mont-
 Telephone: (714) 858-8255; Fax: (714) 858-1207.               gomery. Available from Thinking Publications, Eau Claire,          STUTTERING
                                                               WI. 715-832-2488.
                                                                  Ben Has Something To Say by Laurie Lears, illustrations
                                                                                                                                  FOUNDATION
You can give online                                            by Karen Ritz. A book for children ages 5-9. Albert Whit-
                                                                                                                                  A Nonprofit Organization
                                                                                                                                  Since 1947 — Helping Those Who Stutter
  You can make a one-time donation or                          man & Co., Morton Grove, IL. 800-255-7675.
                                                                                                                             3100 Walnut Grove Road, Suite 603
set up monthly and quarterly recurring                            Sharing the Journey: Lessons from my Students and
                                                                                                                             P.O. Box 11749 ● Memphis, TN 38111-0749
                                                               Clients with Tangled Tongues by Lon Emerick, Ph.D.,
        gifts by clicking on the Dona-
                                                               available from North Country Publishing, 355 Heidtman
        tion tab or Make A Gift at                                                                                          1-800-992-9392 ● 1-800-967-7700
                                                               Road, Skandia, MI 49885, for $13.95 plus $2. postage and
        www.stutteringhelp.org.                                handling, call toll-free 1-866-942-7898; or from the Stut-      www.stutteringhelp.org www.tartamudez.org
  You can donate with a credit card or                         tering Foundation at 800-992-9392.                       ❑                info@stutteringhelp.org
your checking account.               ❑

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  • 1. www.stutteringhelp.org • 1-800-992-9392 • www.tartamudez.org T HE S TUTTERING F OUNDATION A Nonprofit Organization FA L L 2 0 0 6 Since 19 47. .. Helping Those Who Stutter Is language a risk Transatlantic alliance will help factor in stuttering? researchers, clinicians and children By Ehud Yairi, Ph.D., T he Stuttering Foundation and world. However, this will be the University of Illinois the Michael Palin Centre for first direct involvement of the Stut- A person’s stuttering is not random. Stammering Children have tering Foundation in a treatment Linguistic factors have been consid- joined forces in a groundbreaking al- program. ered relevant to stuttering especially liance to help children who stutter “We are very excited at the since early research (Brown, 1937, through research, treatment prospect of working togeth- 1945) demonstrated their strong influ- and training programs. er with SFA to promote ence on the occurrence of stuttering The Michael Palin and provide a first events, or “moments of stuttering,” in Centre, based in Lon- class service for specific locations of the speech stream don, England, is c h i l dr e n an d (e.g., the beginning widely considered y o u ng a du l t s of sentences and one of the premier who stammer,” phrases) and in treatment cen- said Frances words of certain ters in Cook, grammatical classes t h e M.Sc., (e.g., verbs and ad- world manag- jectives). The link for child- er of the between stuttering hood stuttering; Michael Palin and language is es- and it is active in Centre. “This pecially intuitive in research and the partnership be- young children. Ehud Yairi, Ph.D. training of speech-lan- tween our two orga- Several scholars guage therapists. While nizations will combine have noted that stuttering onset, typical- the Centre is based in London, our strengths and serve to ly between ages 2 and 4, coincides it provides treatment for children as benefit our clients and therapists on with the critical period of accelerated well as training for therapists from all both sides of the Atlantic.” expansion in children’s expressive and over the United Kingdom. “The alliance of the two organi- receptive language (Levina, 1963; Yairi, The Memphis-based Stuttering zations makes perfect sense,” said 1983, Ratner, 1997). Thirty years ago, Foundation is one of the leading Jane Fraser, president of the Stut- Cheverkeva (1977) proposed that stut- U.S.-based nonprofit organizations tering Foundation. “The Palin Cen- tering is basically a disorder of lan- dedicated to the prevention and tre’s top-notch treatment facility guage development, an idea recently treatment of stuttering. Its publica- means hope for thousands of chil- echoed by Bloodstein (2002). tions reach people in more than dren who stutter and for some time The possible stuttering-language link 100 countries each year, and it is now has provided an essential has become a focus of scientific inter- also active in training speech lan- training ground for researchers and est, reflected in several stuttering mod- guage pathologists by sponsoring clinicians.” els with psycholinguistic viewpoints. training courses for those who spe- The Michael Palin Centre for Among these are the Demands-Capac- cialize in stuttering. ity Model (Starkweather, 1987), the Stammering Children was official- More than 800 therapists have ly opened in 1993. British comedi- Covert-Repair Hypothesis (Postma & participated in SFA workshops dur- Kolk, 1993), the Trade-Off Hypothesis an Michael Palin agreed to the cen- ing the past 20 years, including ter being named after him following Continued on page 8 145 from 32 countries around the Continued on page 3 Inside... Geneticist Dennis Drayna joins SFA board SFA at 5th World Congress . . . . 2 Dennis Drayna,Ph.D., nized for his work in ge- Speech/language processes . . . . 2 has joined the SFA Board netics, he currently serves Journalists honored . . . . . . . . . . 3 of Directors. as Section Chief in the Na- Help for back-to-school season . 4 Dr. Drayna received his tional Institute on Deafness Workshops . . . . . . . . . . . . . . . 5, 9 B.A. from the University of and Other Communication Kids use art to express feelings . 6 Wisconsin in 1976, and his Disorders, NIH, where he Teen speaks out . . . . . . . . . . . . . 7 Ph.D. from Harvard Univer- pursues studies on the genet- News from Russia . . . . . . . . . . . 9 sity in 1981. ics of human communication Internationally recog- disorders. ❑ Drayna
  • 2. 2 www.stutteringhelp.org 1-800-992-9392 New windows SFA at 5th World Congress on the onset Workshop specialists of stuttering meet World Congress of the In- again in Dublin he 5th Dublin conference brings Tternational Fluency Association was held at Trinity College in Dublin, researchers together Ireland, July 25-28, 2006. It brought to- By Anne Smith, Ph.D., gether more than 300 people, many of Purdue University them experts in the field of stuttering. In July of this year, I was honored Participants came from 34 countries to be a keynote speaker at the meet- around the world and more than 15 per- JoAnne Wilding, Canada; Peter Tonev, Bul- ing of International Fluency Associ- cent of all participants had attended garia; Beatriz de Touzet, Argentina; Lisa Av- ery, Canada; Merethe Moerk, Norway; Steen ation in the wonderful city of Dublin, the Stuttering Foundation/Northwest- Fibiger, Denmark; Jane Fraser, U.S.A.; Yu- Ireland. In my talk, “Physiological ern/Iowa Workshop for Specialists! lia Filatova, Russia; Anne-Marie Simon, Indices of Speech This group met for several photos in France; David Shapiro, U.S.A. Florence- and Language Pro- honor of Dr. Hugo Gregory who direct- Juillerat, Switzerland. cesses: New Win- ed the Northwestern Workshop dows on the Onset for 16 years. ❑ of Stuttering in Young Children,” I reviewed some of the accomplish- ments of the Pur- due Stuttering Pro- ject and outlined Anne Smith, Ph.D. our ongoing re- search studies. Here are some of the highlights from that talk: Blanca Gonzalez, SFA founder Malcolm At Dublin Castle opening reception, Joe Spain . Fraser’s granddaugh- First, to let you know our point of Fulcher, U.S.A.; Beatriz deTouzet, Ar- ter Celia Gruss, France, view about stuttering — Despite the gentina; Peter Tonev, Bulgaria; Jane Fras- and Yulia Filatova, Rus- diversity of the disorder in different er, U.S.A.; and Ma Carme Junca, and sia, at Dublin Castle. people who stutter, all individuals Marina Llobera, Spain. who stutter exhibit breakdowns in the motor processes necessary for speak- ing. The factors that influence these Ruth Ezrati, Israel; and Claudia Furquim de breakdowns in speech are complex. Andrade, Brazil; and We have proposed that a complete Isabella Reichel, U.S.A. Suzana Jelcic Jaksic, model of stuttering must incorporate Croatia. motor, linguistic, cognitive, psychoso- cial, and genetic factors, and that the model must explain how these factors interact during childhood to produce the disruptions in speech that makes one a person who stutters. What we know from studies of adults who stutter — Much of our earlier work on the Purdue Stutter- Joseph Nsubuga, ing Project was focused on adults Uganda; Jane who stutter. These studies were es- Fraser; and Yuki sential to establish what the physio- Hara, Japan. Front row: Lisa Avery, Canada; Simona Bernardini, Italy; Jane Fraser; and Massim- logical bases of the disorder are in in- iliano Marchiori, Italy. Back row: Suzana dividuals with chronic stuttering. Jelcic Jaksic, Croatia; JoAnne Wilding, Our findings, in addition to those Canada; Isis Meira, Brazil; Beatriz de Touzet, from many other research groups, Argentina; Peter Tonev, Bulgaria; Merethe mapped the differences in speech Moerk, Norway; Steen Fibiger, Denmark; movement and muscle activity that Anne-Marie Simon, France; David Shapiro, occur during disfluent speech in the U.S.A; Florence Juillerat, Switzerland and face, voice, and breathing areas. We Mirjana Lasan, Croatia. also looked at language processing in adults who stutter when they are Continued on page 4 Joseph Agius, Malta, at the SFA booth.
  • 3. FA L L 2 0 0 6 1-800-992-9392 3 Quality journalism honored Childhood For the 15th year, the Stuttering article gave read- stuttering part of Foundation recognizes excellence in ers the tools they news reporting. need to identify The 2006 Media Awards go to five stuttering in young U.S. Congressman Frank R. Wolf distinguished journalists. children and offers of Virginia read the article about Each winning entry successfully useful advice on Tiger Woods enhanced public understanding of how to improve from the summer this complex speech disorder during fluency. newsletter and the past year. Culp Mildred L. Culp submitted re- “Journalists in a variety of media took first place for marks to the have done an outstanding job of her nationally syndicated column Congressional focusing on the causes and treat- Workwise. In her inspirational col- Record to draw ment of stuttering over the past umn, Dr. Culp explained how peo- attention to year,” said Jane Fraser, president of ple who stutter can childhood the 59-year-old nonprofit founda- make it in the stuttering. tion. “We were particularly pleased workplace. On June 20, this year to see in- Joy ce L a i n the congress- creased focus on Kennedy earned man said, “Mr stuttering in the second place. Her Speaker, I rise to- workplace, an area nationally syndi- day to bring the at- Wolf that’s previously cated column Ca- t en t i o n o f t h e not received much reers Now helped House to an article I recently read attention.” a reader who stut- Kennedy about Tiger Woods in the Stutter- T. Grant Fitch ters prepare for a job interview. ing Foundation’s summer newslet- of the Post-Tri- In t h e t el ev i s i o n cat eg o ry, ter. I stuttered as a child and I think Fitch bune, Merrillville, Janelle Wolfe of Comcast Tonight, it’s important for kids to know that Ind., received first Reading, Pa., re- they can overcome this complex place in the daily newspaper cate- ceived first place disorder. Tiger Woods is an excel- gory for “Saving stutterers.” The for a lively seg- lent example of the many people article provided readers with time- ment feat u ri n g who have led successful lives de- ly information that parents can use speech-language spite struggling with stuttering as to help their children overcome pathologist Joseph a child. ❑ stuttering, includ- Donaher of Chil- ing taking advan- dren’s Hospital of tage of resources Philadelphia and Wolfe offered by their lo- the DVD Stutter- Transatlantic Continued from front page cal schools. ing: For Kids, By Kids. Donaher Dorothy P. and Wolfe shared timely resources his role in A Fish Called Wanda, in Dougherty, for children who stutter. which he portrayed a character Archives of Pedi- The awards were announced dur- called Ken who stuttered. He based atrics & Adoles- ing Stuttering Awareness Week, the role on his own father who suf- cent Medicine Dougherty May 8-14. 20/20’s co-anchor John fered from stuttering all his life. earned first place Stossel led this year’s awareness Palin is best known for his comic for magazine articles. Dougherty’s campaign. ❑ roles as part of the Monty Python comedy group. ❑ Speaking wasn’t always easy for Damon New York Daily News writer Antho- ny McCarron inspired people of all ages with a July article that told of Yankees outfielder Johnny Damon and stuttering. “...speaking didn’t used to be so easy for Damon. For several years as a child, he stuttered so badly he was afraid to introduce himself. Some- times, there was cruel teasing from other kids,” McCarron wrote. “My mind was going a thousand and got better,” recalled Damon, who Diana de Grunwald, Willie Botterill and miles an hour and my mouth would started speech therapy in second grade. Frances Cook of the Michael Palin Cen- say whatever came to it. I slowed down, A link to the complete article is at tre for Stammering Children with Jane took my time, connected my words www.stutteringhelp.org. ❑ Fraser of the Stuttering Foundation.
  • 4. 4 www.stutteringhelp.org 1-800-992-9392 Rabinowitz’s podcast Help for back-to-school season World-renowned wildlife conserva- tionist Alan Rabinowitz has been lead- With school back in session, the Stut- Recently, it was featured in Teach- ing the fight to tering Foundation offers materials that ing Pre K-8, on several Web sites and save tigers in are helpful for teachers and students. in a number of other publications. the remote Stuttering: For Kids, By Kids is a Complete with handbook, this Hukaung Val- 12-minute DVD that features an an- DVD helps answer common ques- ley in northern- imated basketball speaking with chil- tions educators may have when teach- most Mynmar. dren of various ages ing a child who stutters. Now, you about their stuttering. “By presenting a can listen to all Brooklyn-based range of perspectives, of the details speech pathologist Peter Stuttering: Straight Talk of Alan’s fascinating journey on a Reitzes, M.A., lets his for Teachers can build a podcast at www.audible.com/tiger- students bring friends to shared dialog and a strong man. There is also a link directly to his view the video with. He educational partnership podcast at www.stutteringhelp.org. provides doughnuts and that includes the thera- Rabinowitz has previously said milk for the “party.” pist, teachers, parents and struggling with stuttering helped During and after the student,” writes reviewer shape his life. A DVD of an inspirational keynote video, Reitzes keeps an MaryAnn Byrnes, Ed.D., address by Rabinowitz is also avail- open discussion with students of top- University of Massachusetts, Boston. able from the Foundation. ❑ ics discussed on the video such as She adds she’ll be recommending it to “what is stuttering?,” “does stuttering her colleagues in schools. bother you?,” “is stuttering a big deal Both videos can be ordered in VHS for you?,” “teasing,” “talking open- and DVD. They are also available as Translation for ly about stuttering,” and “advice for free streaming video at www.stut- Russian teachers children who go to speech therapy.” After watching the video, he asks teringhelp.org. Notes to the Teacher brochure is Vyatcheslav V. Lep- each student to write down two things another great resource. It answers tyukhov, author of the they liked or learned from the film. questions educators may have and Web site www.stut- He then collects the responses and includes 9 Tips for Talking With the tering.ru, is translat- reads them aloud. Child Who Stutters. ing Stuttering: Stuttering: Straight Talk for Teach- Visit www.stutteringhelp.org to see Straight Talk for ers is another popular DVD that has these products or call toll-free 800- Teachers handbook received nationwide attention. 992-9392. ❑ into Russian. ❑ Web conference to Windows Continued from page 2 support the later years!). We know from earlier research explore stuttering not speaking. One surprising finding that approximately half of the chil- was that when adults who stutter are dren who are stuttering at 4-5 In October individuals interested in reading, their brains are processing stuttering, professional therapists as years, will persist and have a some aspects of language very differ- chronic stuttering problem, while well as clients and their ently compared to control partici- support persons, will approximately half of these chil- pants who do not stutter. dren will recover. By using new discuss this much mis- What we are doing now — We understood speech dis- experimental windows on how all know that stuttering starts in very order in one of the young children. Over the past five y o u n g b rai n s a re d ev el o pi n g largest professional con- years, we have been developing speech, we hope to develop meth- ferences of the year. But ods by which we can predict which not face-to-face — this ways to gather the same physiolog- ical measures from young children. children are likely to have a chron- conference is freely- ic stuttering problem. In addition available on the Internet. By adapting our methods and mak- ing them kid friendly, we have been we will attempt to determine the The ninth annual International Stut- factors that play a critical role in tering Online Conference runs from able to test children as young as four. In the current phase of the Pur- the development of chronic stut- October 1-22 at the Stuttering Home tering so that better therapies for Page, www.stutteringhomepage.com. due Stuttering Project, we are bring- Conference presentations are posted ing in a group of 50 children who young children will be available. stutter ages 4-5 years. We plan to test Thanks to the National Institute on Deaf- for reading on the web site. Presenta- ness and Other Communicative Disorders tions are designed for a general audi- these children and a matched group and to the Malcolm Fraser Foundation for ence, and feedback and discussion is in- of non-stuttering children over a their support of the Purdue Stuttering Pro- vited through an Internet bulletin board. five-year period (please note that ject, which is co-directed by Anne Smith, Past conferences have drawn par- the NIH, because of budget re- Ph.D., and Christine Weber-Fox, Ph.D. It ticipation from more than 130 differ- straints, only gave us 3 years of has been exploring new frontiers in the ent countries around the world. ❑ funding , and we hope to get them to physiology of stuttering since 1989. ❑
  • 5. FA L L 2 0 0 6 1-800-992-9392 5 Workshop ‘enriching, engrossing, enlightening’ In June, Children’s Hospital of Philadelphia (CHOP), Florida State University, and the Stuttering Foun- dation co-sponsored the first Mid- Atlantic Workshop in Philadelphia. Twenty-one speech-language pathologists from California, Illi- nois, Kentucky, Maryland, Okla- homa, New Jersey, New York, Penn- sylvania, South Dakota, Virginia, Canada, and South Africa met June 21-25 on the CHOP campus to learn how to assess and treat preschool- ers, school-age children, and adoles- cents who stutter. The workshop was led by co-instruc- tors Joe Donaher, Children’s Hospital of Philadelphia; Kristin Chmela, private Front row (seated): Lisa Scott, Kristin Chmela, Jane Fraser, Joe Donaher; Second row: practice, Long Grove, Ill.; and Lisa Kate Eichstadt, Brett Kluetz, Anne Marie Wagener, Astrid Cordero, Lonnie Harris, Rox- Scott, Florida State University. anne Fleck, Joanne Summer, Terri Hessler, Jennifer Kleinow, Jim Mancinelli, Diedre Den- The goals of the workshop were nis, Lori-Ann Acenas Mauricio, Carol Ellis, Kris Kelley, Lori Graca Griffin; Back row: to increase participants’ skills and Kris Baines, Stacey Simpson, Dina Lilian, Steffi Schopick, Carolyn Belle, and Maya Brown. confidence in communicating ef- fectively with children, diagnose the extent and severity of the disor- der, develop appropriate treatment plans, design meaningful therapy activities, and learn to model both fluency shaping and stuttering mod- ification tools. Emphasis was placed on creating relationships with children, families, and teachers that would facilitate the A time to talk about caseloads and network is part of the conference. Participants watch a video of a therapy greatest success for children who are session. working to improve their communi- cation skills. Learning opportunities Dr. Judy included traditional lectures, guided Gravel and case planning, daily small-group Joe Donaher practice of the various clinical and re- of the lationship skills, and watching video- Children’s Hospital of tapes of therapy sessions. Philadelphia. The participants and instructors all agreed that the workshop was a great success. “We were so thrilled to have so many clinicians from a variety of Jennifer Kleinow, LaSalle University; Kris work settings devote a week of their Baines, California; and Brett Kluetz, Balti- summer to learning more about stut- more, share ideas. tering,” said Kristin Chmela. Maya Brown, ucation experience of my profes- Nova Scotia, Joe Donaher was especially en- Canada, and thused about hosting so many indi- sional career. Thank you for making Lonnie Har- viduals interested in helping children it possible!” ris, Kentucky. who stutter, saying that “The dedica- James Mancinelli of La Salle Uni- tion of these SLPs to helping kids is versity said, “My experience at the inspirational. Many children will ben- 2006 Mid-Atlantic Workshop was efit from the talents and interest of enriching, engrossing, enlightening, ists held at the University of Iowa. these individuals.” and certainly enticed me to learn For applications or more informa- Feedback from workshop partic- more about stuttering and ways to tion, contact the Stuttering Founda- ipants was outstanding, and includ- better serve people who stutter.” tion at 1-800-992-9392, download ed comments such as “I really think Additional five-day workshops are applications on the web at www.stut- this week will stand out as perhaps being planned for Summer 2007, as well teringhelp.org, or email info@stutter- the most significant continuing ed- as the two-week Workshop for Special- inghelp.org. ❑
  • 6. 6 www.stutteringhelp.org 1-800-992-9392 Dear SFA: Reader Response Send letters to SFA, P.O. Box 11749, Memphis, TN 38111-0749 or email info@stutteringhelp.org. Poem on stuttering Greetings from overseas Wonderful Web site Dear SFA, Dear SFA, Hi my name is Alicia and I’m 13 I want to thank you for creating a years old. I’ve been stuttering since I wonderful Web site that helps people was 5 years old. I’m from Virginia with their stuttering. I have been stut- Beach, Va. Here is a poem I wrote: tering ever since kindergarten and The Stuttering Ways now I am in high school. By Alicia I’ve had great speech teachers. I Coming home, covered in tears had hard-talking stuttering from age Life swept away by fear 4 to age 10. Now my speech is clear- Can’t even say my name ing up slowly. To worried about playing games It really hurts me that I can’t talk Friends and Family Day in Mauritius. like other students. You’re always put on the spot Dear SFA: I just want to say I do not feel bad Pretending to be someone you’re not I would like to thank you for all the about stuttering. Avoiding words that you can’t say materials I have received in good or- Jonathan, 14 Is getting worse day by day der. I have added them to our library so Greenville, Miss. What is happening to my brain? that every member of Parole d’Espoir It causes so much pain can use them. I am also glad to in- Mission to Togo Trying to give a class presentation clude a photo of our group which was Just ruins your reputation taken during Friends and Family Day. Trying to do something new Jim Caroopen Is hard while kids are teasing you Mauritius Always fluent when singing Never while mingling Fan of James Earl Jones Never press hardly Dear SFA, Always try to touch lightly I really like your newsletter and brochures that you I went to Togo on behalf of the ISA Speech is like a river flowing have about stuttering. Until a rock falls in and keeps it to give conferences on stuttering and The brochure that train students of the first generation of from going tells different facts speech therapists in West and Central I’ll never be a lawyer or vet about stuttering is Africa. I am happy to announce the I’ll deserve more than what I’ll get great. I did not know Togolese Stutterers’ Association was Why did this have to happen to me? that so many people created in June ‘06 in Lomé. Can’t you see that it isn’t easy being stuttered. James Earl James Earl Anne Marie Simon like me? Jones is my favorite. Jones Paris Take a walk in my shoes for a day Damarius Editor’s note: Anne Marie attended the SFA/NU Workshop for Specialists in 1988 and carries the Would you want to live my way? Greenville, Miss. torch worldwide. A picture’s worth... The artwork at the left is by Bryce, 8, Amagansett, N.Y., who wrote, “When I talk, a really mean monster sneaks up on me and shoves a rock in my throat. Everything gets tight and I can’t talk. Tne more rocks begin coming up. I sometimes get scared and want to run away. My speech teacher has taught me ways to help when this happens. I take a deep breath and stretch out the begin- nings of my words and sentences and then I spit up the rocks! Then I feel much better and I can talk again. I also Above: Gage, 10, writes, “My stutter try not to speak too fast when I get is a car driving on a bumpy road.” mad or excited. If you try really hard, you can get the monster and stuttering Do you have artwork to share? You to go away too. can e-mail it to info@stutteringhelp.org.
  • 7. FA L L 2 0 0 6 1-800-992-9392 7 Singer Withers overcame stuttering While Bill Withers has long been My Love and Who Is He (And Who Is on the SFA list of “Famous People He to You). However, it is the classic Who Stutter,” many people proba- song Lean On Me, which is most re- bly didn’t realize he stuttered. membered, topping the Billboard Hot The April/May 2006 issue of the 100 charts for three weeks in July 1972 magazine Waxpoet- in addition to topping the R & B charts. ics sheds some light Between 1972 and 1979, Withers on the brilliant career put out five albums. In 1981, he of the famed singer teamed up with saxophonist Grover and songwriter. Washington Jr., both writing and per- Daniel Altman is interviewed by WAVE 3 Born in 1938 in forming lead vocals on Washington’s TV News. Slab Fork, W.V., hit Just the Two of Us, which spent Withers was the youngest of six chil- Withers three weeks at number two. Just the Two of Us garnered him Teen speaks out dren. When his father died when Withers was small, he was four Grammy nominations that year. In 1987, Withers received his ninth about stuttering raised by his mother and grandmother, Grammy nomination and won his third Daniel Altman, 13, decided to both of whom worked as domestics. Grammy award on account of Club make stuttering awareness the focus Not motivated in school and strug- Nouveau covering Lean On Me and of the community service project for gling with stuttering, Withers taking it to number one on the Bill- his upcoming bar mitzvah. His goal dropped out after ninth grade, later to board charts. It marked the fifth time is to tell as many people as possible join the Navy. It was in the Navy in the rock era that a song had reached in the Louisville, Ky., area that stut- that for the first time he was able re- number one by two different artists. tering is nothing to be ashamed of. ceive adequate speech therapy. In this case, it was the first time that Daniel took his campaign to The article in Waxpoetics lists, both artists who recorded the song Louisville Mayor Jerry Abramson, “...his chronic stutter as one of the were African-American. Withers’ who issued a proclamation declar- possible reasons he stayed in the ser- songs have been recorded over the ing the Week of May 8 as Stuttering vice for so long, because he used the last 36 years by hundreds of artists, Awareness Week in Louisville and time to become comfortable with such as Barbra Stresiand, Michael Southern Indiana. speech and gain self-confidence.” Jackson, Aretha Franklin, Sting, The teenager also hung this year’s After his hitch in the Navy, With- Temptations, Paul McCartney, Tom Stuttering Awareness Week poster fea- ers worked in jobs ranging from air- Jones, Joe Cocker and Mick Jagger. turing 20/20’s John Stossel around town. craft repairman to milkman. Finally Some articles from past decades Daniel wants to place stuttering in 1967, at age 29, he decided to pur- credit the newfound fluency that With- resource materials in every public li- sue his interest in music. ers received from his speech therapy brary in Louisville before his bar The famed Booker T. Jones pro- in the Navy as giving him the confi- mitzvah, which is on Nov. 4. duced his first album, Just As I Am, dence to pursue a career in music. In order to further his efforts, which was recorded with the MG’s Unlike many other artists, Withers Daniel wrote local TV and radio sta- as the backing band along with was able to retain much of his song- tions asking them to publicize stutter- Stephen Stills. Ironically, the lead sin- writing and publishing rights. Lean ing awareness week. gle Harlem failed to chart, but its B- On Me alone is said to have turned At least one local station, WAVE 3, side, Ain’t No Sunshine went gold. into a multi-million dollar goldmine featured Daniel and his efforts on The song also catapulted Withers to over the years with use in movies their newscast and Web site. stardom in the music world, as he won and advertisements, as well as ex- Daniel knows firsthand how diffi- his first Grammy as a songwriter. tensive radio play. cult stuttering can be. But he told the Withers follow-up album Still Bill He hopes to soon release his first NBC station he doesn’t try to hide it yielded hits such as Use Me, Kissing album of new material since 1985. ❑ when others try to embarrass him. “I just kind of lay it out — ‘I stut- ter and I don’t appreciate it that you Woolwine takes her message on the road make fun of me. Please stop’.” Eva Woolwine, who ran for Miss requests and invitations to speak and Daniel’s efforts are especially for Kansas this summer, is taking time perform,” she said. other kids who are not yet brave off from pageants “I have been going everywhere: enough to take a stand. to focus on college, civic groups, senior citizen groups, “It’s a sad thing, which is why I and stuttering classrooms, Retired Teachers Asso- need to further educate people so that awareness. ciation of Kansas. I have many more people won’t have to cower inside Woolwine, who coming up in the fall.” corners. People can feel more com- also performs mag- Woolwine has served as junior fortable about who they are,” he told ic tricks, says she’s spokesperson for the SFA and partic- the Louisville station. been very busy. ipated in last year’s National Associ- In addition to the on-air segment, “This summer I ation of Young People Who Stutter: reporter Lori Lyle provided links to have received more Woolwine Friends Convention. ❑ resources online. ❑
  • 8. 8 www.stutteringhelp.org 1-800-992-9392 Ehud Continued from front page ency) and that recovery from stuttering sistency or recovery. would occur as these children reduce In summary, although we believe that (Ratner, 1997) and the Cognitive Inter- their early accelerated rate of language associations between stuttering and sev- ference Model (Bosshardt, 2002). Inves- development. If our findings are valid, eral linguistic variables do exist, so far no tigators have focused their studies on they will have important clinical impli- clear causal relations have been estab- five distinct linguistic variables: (a) cations for parent counseling and thera- lished, and there is no consensus on their phonological aspects, (b) loci of stutter- py programs. precise role or contributions as risk fac- ing, (c) language complexity, (d) prag- To be sure, there is no consensus at this tors for the onset of stuttering and its matics (child’s use of language), and (e) juncture concerning advanced language persistence, or their influence on natural language skills. For example, research skills as a risk factor in early childhood recovery. This and several other aspects concerned with the first variable listed stuttering. Recently, a few studies report- of the stuttering-language connection above has provided evidence that stut- ed some results that differ from the Illi- continue to be the subject of scientific dis- tering is increased as a function of lan- nois findings. These studies, however, cussions and controversies (Nippold, guage complexity (Logan & Conture, 2004; Wingate, 2001). Fortunately, it has 1995, Zackheim & Conture, 2003). “... high language attracted very rich and varied research ac- Regarding language as risk factor, tivities, the fruits of which should signif- perhaps most interesting to clinicians skills rather than icantly enhance our understanding and and parents has been a relatively long- low ones might treatment of stuttering. standing view that stuttering children be a risk factor REFERENCES are more likely than normally speaking Anderson, J., & Conture, E. (2000). Language abilities of peers to have language learning diffi- for stuttering, children who stutter: A preliminary study. Journal of Fluen- cy Disorders, 25, 283-304. culties or impairments (see reviews by particularly for Andrews, G., Craig, A., Feyer, A., Hoddinott, S., Howie, P., & Neilson, M. (1983). Stuttering: A review of research Andrews, et al., 1983, and Ratner, 1997). persistent, chronic findings and theories circa 1982. Journal of Speech and Hear- ing Disorders, 48, 226-246. A few current articles continue to prop- agate this view (Arndt & Healey, 2001; stuttering. ” Arndt, J., & Healey, C. (2001). Concomitant disorders in school-age children who stutter. Language, Speech and Hear- ing Services in Schools, 32, 68-78. Wingate, 2001). On the other hand, over Blood, G., Ridenour, V. J., Qualls, C. D., & Hammer, C. S. the past 15 years, extensive longitudinal raise questions concerning their methods. (2003). Co-occurring disorders in children who stutter. Journal of Communication Disorders, 36, 427-448. studies at the University of Illinois Stut- For example, Anderson and Conture Bloodstein, O. (2002). Early stuttering as a type of lan- guage difficulty. Journal of Fluency Disorders, 27, 163-167. tering Research Program have revealed (2000) noted that although all their par- Bosshardt, H. (2002). Effects of concurrent cognitive pro- no delayed language development in ticipants had language abilities at or above cessing on the fluency of word repetition: Comparison between persons who do and do not stutter. Journal of Fluency Dis- young children who stutter. To the con- normal limits, the stuttering children still orders, 27, 93-114. trary, we have found that near onset they demonstrated somewhat lower skills in Brown, S. (1937). The influence of grammatical function on the incidence of stuttering. Journal of Speech Disorders, fall within normal range; in fact, often certain areas than normally speaking 3, 223-230. Brown, S. (1945). The locus of stuttering in the speech se- well above normal (Watkins, Yairi & peers. Watkins and Johnson (2004), how- quence. Journal of Speech Disorders, 10, 181-192. Ambrose, 1999). Recent research in oth- ever, pointed out that in many past stud- Chevekeva, N. (1967). About methods of overcoming stuttering: A survey of the literature. Spetsial Shkola, 3, 9-15. er laboratories in the U.S.A. and Eu- ies reporting lower language skills in Häge, A. (2001). Können kognitive und linguistische rope supports this finding (Anderson & children who stutter, the comparison Fähigkeiten zur Verlaufsprognose kindlichen Stotterns beitra- gen? (Cognitive and linguistic abilities in young children: Are Conture, 2000; Häge, 2001; Miles & groups of normally speaking subjects they able to predict the further development of stuttering?). Sprache Stimme Gehör, 25, 20-24. Ratner, 2001), which seems to agree were selected in biased ways, often com- Levina, R. (1966). Study and treatment of stammering with many parents’ reports that their ing from appreciably higher social groups children. In A. D’yachov (Ed.), Specialized Schools, 120, (4). Moscow: Education Publishing House. (Translation published child had a spurt of language develop- known to have richer language. In con- in Journal of Learning Disabilities (1968), 1, 26-29.) Logan, K. & Conture, E. (1995). Relationships between ment just prior to the onset of stuttering, trast, the Illinois studies addressed this length,grammatical complexity, rate, and fluency of conversation- speaking in longer sentences and using problem by comparing the performance al utterances in children who stutter. Journal of Fluency Disorders, 20, 35-61. new words. (They often say that “his of the stuttering children to a much broad- Miles, S., & Ratner, N. B. (2001). Parental language in- brain seemed to be working faster than er base of well-established normative put to children at stuttering onset. Journal of Speech, Language and Hearing Research, 44, 1116-1130 his mouth” could manage.) Further- data. It is possible, however, that further Nippold, M. (2004). Phonological and language disorders in children who stutter: Impact on treatment consid- more, we have found that children who research with preschool children using erations. Clinical Linguistics and Phonetics, 18(2), 145-159. eventually persist in stuttering tend to per- more sensitive tools will reveal discrete Ratner, N. (1997). Stuttering: A psycholinguistic perspec- tive. In R. F. Curlee and G. M. Siegel (Eds.) Nature and Treat- form above normative expectations at the language differences between groups. ment of Stuttering: New Directions. Boston: Allyn & Bacon. early stage of stuttering and maintain Other examples of disagreement are seen Postma, A., & Kolk, H. (1993). The covert repair hypoth- esis: Prearticulatory repair in normal and stuttered disfluen- that level over time. Children who even- in studies with school aged children who cies. Journal of Speech and Hearing Research, 36, 472-487. Starkweather, W. (1987). Fluency and Stuttering. Engle- tually recover, however, tend to perform stutter reporting between 9 and 13% of wood Cliffs, NJ: Prentice-Hall. above normal at the early stage of the dis- the children to exhibit concomitant lan- Watkins, R. , & Johnson, B. (2004). Language abilities in young children who stutter: Toward improved research and clinical ap- order but approach the norm as they re- guage difficulties (Blood, Ridenhour, plications. Language, Speech and Hearing Services in Schools. Qualls, & Hammer, 2003). Keep in mind Watkins, R., Yairi, E., & Ambrose, N. (1999). Early cover (Watkins et al., 1999, Yairi & Am- childhood stuttering III: Initial status of expressive language brose, 2005). Strangely, then, high lan- however, that by this age at least 75% of abilities. Journal of Speech, Language, and Hearing Re- search, 42, 1125-1135. guage skills rather than low ones might the original stuttering population had dis- Wingate, M. (2001). SLD is not stuttering. Journal of be a risk factor for stuttering, particular- appeared due to natural recovery. The Speech, Language, and Hearing Research, 44, 381-383. Yairi, E. (1983). The onset of stuttering in two- and three- ly for persistent, chronic stuttering. It is remaining (persistent) minority has been year-old children: A preliminary report. Journal of Speech and Hearing Disorders, 48, 171-177. intriguing to theorize that the emergence reported to possess some different genet- Yairi, E. & Ambrose, N. (2005). Early Childhood Stut- of stuttering involves some type of trade- ic components. All in all, at the present, tering. Austin: Pro Ed. Zackheim, C. & Conture, E. (2003). Childhood stuttering off in linguistic resources (e.g., advanced language alone is insufficient for making and speech disfluencies in relation to children's mean length language at the expense of motoric flu- strong early predictions of eventual per- of utterance: A preliminary study. Journal of Fluency Disor- ders, 28, 115-142. ❑
  • 9. FA L L 2 0 0 6 1-800-992-9392 9 School clinician conference gets high marks The Marriott Conference Center in Lisle, Ill., was the setting for the Stuttering Foundation’s annual con- ference for school clinicians, Stut- tering Therapy: Practical Ideas for the School Clinician. Eighty-five people attended this conference representing 13 states and a variety of employment settings, in- cluding schools, university clinics, and private practice. Participants heard presentations Conference leaders: Mary Mantilla, Ann McKeehan, Bill Murphy, Susan Hamilton, Jen- from Tricia Zebrowski, Charlie nifer Watson, Charles Healey, Kristin Chmela, Susan Cochrane, Carolyn Gregory, Healey, Peter Ramig, Bill Murphy, Kevin Eldridge, Elise Kaufman, Peter Ramig, and Lisa Scott. Lisa Scott, and Kristin Chmela on topics such as current research in childhood stuttering, practical strate- gies for therapy, functional methods for measuring progress, counseling children and their families about stuttering, treating children with con- comitant communication disorders, and dealing effectively with guilt and shame. New this year, guided practice ses- Time was set aside during the conference for sions were held in the main session attendees to share stories. room with guided practice leaders seated at each table. This created an The unique combination of pre- Several Watson and Carolyn Gregory. Back Jennifer 2006 conference leaders. Seated: intimate and personalized learning sentations balanced with small group row: Ann McKeehan, Susan M. Cochrane, environment that made discussion guided practice make this confer- Patricia Zebrowski, Jane Fraser, and Elise and practice easy. Small group guid- ence one of the premier continuing S. Kaufman. ed practice leaders included Susan education opportunities available to Cochrane, Kevin Eldridge, Susan school-based speech pathologists. Hamilton, Elise Kaufman, Mary Evaluations by attendees were con- Mantilla, Ann McKeehan, and Jen- sistently positive: “This conference nifer Watson. was a huge energizer for me. Proba- Presenters profiled children who bly the best I’ve ever been to,” “This stutter through the use of video seg- conference was one of the most infor- ments and examples of child re- mational and inspirational ones I’ve sponses. The audience responded been to,” “The hands-on discussion enthusiastically to these strategies groups were wonderful and were so which facilitated greater understand- helpful in being able to share and ing. Many clinicians were happy to learn from others.” have the opportunity to see tech- Another attendee remarked, “This niques and ideas being demonstrat- conference has changed my perspec- ed as well as to ask questions of tive of my own abilities to help chil- New format makes it easier to exchange ideas leading experts in stuttering. dren and adults who stutter.” ❑ during guided practice sessions. For Combined Federal Campaign Exciting news out of Russia donors, please note that our code For the first time ever, the SFA is in- and a more recent number for the 2006–2007 cluded in the Russian Journal of Spe- photo from the Iowa CFC campaign is cial Education. workshop. The article, by Yulia Filatova, tells Filatova, who re- CFC #2539. the history of the Foundation, describes sides in Moscow, We are proud that over 95 cents the workshops for specialists in stutter- also wrote a book of every dollar goes directly into ing, and outlines the SFA’s outreaches. about cluttering that helping those who stutter. The article includes a picture of the will be published Foundation’s first conference in 1957 in the fall.
  • 10. 12 www.stutteringhelp.org 1-800-992-9392 NEWSBRIEFS The Stuttering Foundation Five Day Eastern Workshop, Diagnosis and Treatment of Chil- Books on Stuttering or Related Topics Available from Bookstores: donations dren and Adolescents Who Stutter: Practical Our thanks to the University of Strategies, will be held at Boston University, Stuttering: An Integrated Approach to Its Nature and Cincinnati and Nova Southeastern June 20-24, 2007. Workshop leaders are Diane Treatment, Third Edition by Barry Guitar. 2006. Available University chapters of the National Parris, M.A., Sheryl Gottwald, Ph.D., and Adri- from Lippincott, Williams & Wilkins, 800-638-3030, Student Speech-Lan- ana DiGrande, M.A. with guest speaker Edward G. Conture, Ph.D. The Stuttering Foundation www.LWW.com guage-Hearing Asso- Stuttering Recovery Personal and Empirical Perspectives ciation for their recent pays all tuition costs as well as room and board by Dale F. Williams. 2006. Available from Lawrence Erl- for this exceptional in-depth workshop. gifts to the SFA. baum Associates, Mahwah, NJ, www.erlbaum.com The Stuttering Foundation Five Day West- Speech Therapy for the Severe Older Adolescent and The generous gift ern Workshop, Diagnosis and Treatment of Adult Stutterer: A Program for Change by George Helliesen. from the student Children and Adolescents Who Stutter: Prac- 2006. Available from Apollo Press, Newport News, VA, chapter at the Univer- tical Strategies, will be held at Portland State sity of Cincinnati will 800-683-9713, www.apollopress.com. University in Portland, Oregon, June 20-24, The Child and Adolescent Stuttering Treatment and Ac- help children who stutter. 2007. Workshop leaders are Susan Hamilton, M.A., Jennifer Watson, Ph.D., and Ellen tivity Resource Guide by Peter Ramig and Darrell Dodge. A student at Nova contributed $300 Reuler, M.A. The Stuttering Foundation pays 2005. Available from Thomson Delmar Learning, Clifton in honor of her fellow students. all tuition costs as well as room and board for this ex- Park, NY. “I hope this will encourage others ceptional in-depth workshop. Early Childhood Stuttering: For Clinicians by Clini- to do the same,” she wrote. “The The Stuttering Foundation two-week Workshop for cians by Ehud Yairi and Nicoline Grinager Ambrose. Stuttering Foundation is certainly a 2005. Available from ProEd, Austin, TX and amazon.com. Specialists will be held at the University of Iowa, Iowa cause that NSSLHA students can City, Iowa, June 17-29, 2007, directed by Patricia Ze- Begaiement: Intervention preventive precoce chez le je- une enfant by Anne Marie Simon et al. 2005. Available from support and know that their gift is browski, Ph.D. and Toni Cilek, M.A. Guest speakers in- the Association Parole Begaiement, www.begaiement.org making a difference.” ❑ clude Lisa Scott, Ph.D., and others to be announced. This unique workshop brings together speech-language pathol- Teach Me How To Say It Right, Helping Your Child With ogists from all over the world for its 18th year. As in the Articulation Problems by Dorothy P. Dougherty, M.A. five-day workshops, the Stuttering Foundation pays all 2005. Published by New Harbinger's Publications, Oakland, tuition costs and room and board for the two weeks. CA. Available at www.newharbinger.com. Drug results promising The 2006 National British Stammering Associa- Troy’s Amazing Universe, by S. Kennedy Tosten. 2002. Indevus Pharmaceuticals an- tion (BSA) Conference will be held at the Telford Published by Brite Press. Order from www.TroysAmazingU- campus of the University of Wolverhampton, England, nounced the results niverse.com or amazon.com. A story about a seven year old Sept. 15-17, 2006. who stutters. of a Phase II trial The Annual Convention of Friends will be held in late The Strong Silent Type, by C. Kelly Robinson. A grip- for pagoclone in June or early July 2007 in St. Louis. For information and ping novel about a young NFL star coming to grips with stuttering and the registration, visit www.friendswhostutter.org or call his stuttering. Available from New American Library, New data were quite promising. 866-866-8335. York, and www.amazon.com. Indevus said it was very encour- First World Conference on Cluttering: “It’s about Experiencias para compatir entre padres e hijos by Ka- aged by the results of the trial on a time” will be May 12-14, 2007, in Razlog, Bulgaria. rina Couselo Rios, Maria Marta Gebara and Mariela number of levels. Very importantly, The International Stuttering Association will hold the 8th Congress for People Who Stutter Ginhson. Order from equipfono_gcg@yahoo.com. the safety profile of pagoclone was May 6-10, 2007, in Dubrovnik, Croatia. Visit Stuttering Therapy: Rationale and Procedures by Hugo excellent, as it has been in previous H. Gregory, June H. Campbell, Diane G. Hill, and Carolyn trials, the drug company reported. www.isa.org. B. Gregory. Available from Allyn and Bacon, Boston, Dave Germeyer offers a repair service for the Ed- Indevus will be meeting with FDA MA; www.ablongman.com. 2003. inburgh Masker. Contact him via e-mail at dgerm- Les begaiements: Histoire, psychologie, evaluation, va- to define the pathway for further devel- eye@earthlink.net, write G.D. Germeyer, 306 S. rietes, traitements by Anne Van Hout and Francoise Esti- opment of pagoclone for stuttering. Baltimore St., Dillsburg, PA 17019-1011, or call Stay tuned at www.stutteringhelp.org (717) 432-3103. enne. Published by Masson, S.A., 120 boulevard Saint Germain, 75280 Paris Cedex 06, France. for more information. ❑ LISTSERV for doctoral students specializing in stut- tering. The intent of this list is to serve as an open fo- Forty Years After Therapy: One Man’s Story by George rum for doctoral students. Membership is limited to Helliesen, M.A. Available from Apollo Press, Inc., 1-800- 683-9713 or www.apollopress.com. The Stuttering Foundation of America is a tax- doctoral students only. To subscribe, send the follow- exempt organization under section 501(c)(3) of ing message to listserv@listserv.temple.edu: “subscribe Understanding Stuttering by Nathan Lavid. 2003. Uni- the Internal Revenue Code and is classified as stutterdoc firstname lastname” or contact Joe Donaher versity Press of Mississippi, Jackson, MS. Order from a private operating foundation as defined in at turtlecraw@aol.com. bookstores or amazon.com. section 4942(j)(3). Charitable contributions and For those interested in joining Toastmasters Inter- Programmed Stuttering Therapy for Children and Adults bequests to the Foundation are tax- national as a way to improve fluency, communication by Bruce Ryan, Ph.D. Available through publisher Charles deductible, subject to limitations under the Code. or public speaking skills, their address is: Toastmas- C. Thomas or online at www.amazon.com ters International, Inc., Attention: Membership De- Making a Difference for America’ Children: SLPs in the THE partment, P.O. Box 9052, Mission Viejo, CA 92690, Public Schools by Barbara Moore-Brown and Judy Mont- Telephone: (714) 858-8255; Fax: (714) 858-1207. gomery. Available from Thinking Publications, Eau Claire, STUTTERING WI. 715-832-2488. Ben Has Something To Say by Laurie Lears, illustrations FOUNDATION You can give online by Karen Ritz. A book for children ages 5-9. Albert Whit- A Nonprofit Organization Since 1947 — Helping Those Who Stutter You can make a one-time donation or man & Co., Morton Grove, IL. 800-255-7675. 3100 Walnut Grove Road, Suite 603 set up monthly and quarterly recurring Sharing the Journey: Lessons from my Students and P.O. Box 11749 ● Memphis, TN 38111-0749 Clients with Tangled Tongues by Lon Emerick, Ph.D., gifts by clicking on the Dona- available from North Country Publishing, 355 Heidtman tion tab or Make A Gift at 1-800-992-9392 ● 1-800-967-7700 Road, Skandia, MI 49885, for $13.95 plus $2. postage and www.stutteringhelp.org. handling, call toll-free 1-866-942-7898; or from the Stut- www.stutteringhelp.org www.tartamudez.org You can donate with a credit card or tering Foundation at 800-992-9392. ❑ info@stutteringhelp.org your checking account. ❑