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What	
  Data	
  is	
  Available?	
  	
  	
  
An	
  Introduc6on	
  to	
  the	
  Data	
  Sources	
  at	
  HHS	
  
                                  	
  
           Monday,	
  January	
  23,	
  2012            	
  
           11:00	
  am	
  -­‐	
  12:30	
  PM	
  EST	
  
 
Arnaub	
  Cha:erjee	
  
Special	
  Assistant	
  
Office	
  of	
  the	
  Chief	
  Technology	
  Officer,	
  HHS	
  
Agenda	
  
	
  	
  
1.         Welcome:	
  Todd	
  Park	
  (CTO,	
  HHS)	
  	
  
2.         Overview	
  of	
  Health	
  Indicators	
  Warehouse:	
  James	
  Craver	
  
3.         CMS	
  Data	
  Update:	
  Niall	
  Brennan	
  
4.         Features	
  of	
  MONAHRQ:	
  Carol	
  Sniegoski	
  
5.         IOM	
  Perspec6ve:	
  Danielle	
  Turnipseed	
  
6.         Q&A	
  (20	
  minutes)	
  

•          If	
  you	
  wish	
  to	
  ask	
  a	
  ques6on,	
  please	
  type	
  in	
  ‘chat’	
  window	
  
           and	
  click	
  on	
  ‘send	
  to	
  organizer’	
  in	
  the	
  drag-­‐down	
  menu	
  
•          Webinar	
  will	
  be	
  archived	
  
 
Todd	
  Park	
  
	
  
Chief	
  Technology	
  Officer	
  
U.S.	
  Department	
  of	
  Health	
  
and	
  Human	
  Services	
  
	
  
	
  
	
  
The Health Data Initiative:
Unleashing the Power of Open Data and
     Innovation to Improve Health
The	
  Health	
  Data	
  Ini6a6ve:	
  	
  turning	
  HHS	
  and	
  our	
  
sister	
  agencies	
  into	
  the	
  “NOAA	
  of	
  health	
  data”	
  	
  	
  




           Weather	
  data	
  
                                                           •  Weather	
  newscasts	
  
                                                           •  Weather	
  websites	
  
                                               FUELS	
     •  Weather	
  mobile	
  apps	
  
                                                           •  Weather	
  insurance	
  
                                                           •  And	
  more	
  
Made	
  available	
  to	
  the	
  public	
  
Health	
  Data	
  Ini6a6ve	
  core	
  ac6vi6es:	
  	
  liberate	
  
 data	
  and	
  catalyze	
  innova6on	
  


1.  Publish	
  brand	
  new	
  HHS	
  data	
  for	
  public	
  access	
  –	
  while	
  rigorously	
  
    protecNng	
  privacy	
  and	
  confidenNality	
  

2.  Make	
  exis6ng	
  HHS	
  data	
  much	
  more	
  accessible	
  -­‐-­‐	
  “machine-­‐
    readable,”	
  accessible	
  via	
  applicaNon	
  programming	
  interfaces	
  
    (APIs),	
  free,	
  much	
  easier	
  to	
  find	
  

3.  Energe6cally	
  publicize	
  our	
  data	
  to	
  innovators	
  -­‐-­‐	
  who	
  can	
  use	
  it	
  
    as	
  raw	
  material	
  to	
  develop	
  applicaNons	
  and	
  services	
  that	
  help	
  
    improve	
  health	
  and	
  health	
  care	
  
What	
  kinds	
  of	
  data	
  are	
  we	
  libera6ng?	
  


                      Community	
  
                        Health	
  
                                                             Community	
  Health	
  
    Govt	
  
                                          Provider	
         Data	
  Example:	
  
                                         Directories	
  
  Spending	
  
                                         &	
  Quality	
                     	
  
                      HHS	
                                  •  Health	
  Indicators	
  
                   Data	
  Being	
                              Warehouse,	
  at	
  
                                                                healthindicators.gov	
  
                   Liberated	
  
                                                             •  1,170	
  metrics	
  of	
  
  Medical/	
  
                                            “Blue	
             community	
  health	
  
  Scien6fic	
  
                                           Bu:on”	
             and	
  health	
  care	
  
 Knowledge	
  
                                                                performance	
  
                       Consumer	
                            •  Launched	
  2/2011	
  
                        Product	
  
                      Informa6on	
  
What	
  kinds	
  of	
  data	
  are	
  we	
  libera6ng?	
  


                      Community	
                            Provider	
  Directories	
  &	
  
                        Health	
                             Quality	
  Data	
  Examples:	
  
                                                                             	
  
                                          Provider	
  
    Govt	
  
  Spending	
  
                                         Directories	
       •  NaNonwide	
  
                                         &	
  Quality	
         directories	
  of	
  care	
  
                      HHS	
                                     providers	
  
                   Data	
  Being	
                           •  Provider	
  quality	
  
                   Liberated	
                                  COMPARE	
  APIs	
  at	
  
                                                                data.medicare.gov,	
  
  Medical/	
  
                                            “Blue	
             launched	
  9/2010	
  
  Scien6fic	
  
                                           Bu:on”	
  
 Knowledge	
                                                 •  Medicare	
  claim	
  files	
  
                                                                for	
  provider	
  quality	
  
                       Consumer	
  
                        Product	
  
                                                                measurement,	
  
                      Informa6on	
                              coming	
  1/2012	
  
What	
  kinds	
  of	
  data	
  are	
  we	
  libera6ng?	
  


                      Community	
  
                        Health	
                             “Blue	
  Bu:on”	
  Data	
  
                                                                            	
  
                                          Provider	
  
    Govt	
  
                                         Directories	
  
                                                             •  VA,	
  HHS,	
  DoD	
  joint	
  
  Spending	
                                                    venture	
  
                                         &	
  Quality	
  
                      HHS	
                                  •  Allows	
  veterans,	
  
                   Data	
  Being	
                              Medicare	
  
                                                                beneficiaries,	
  and	
  
                   Liberated	
  
                                                                acNve	
  duty	
  military	
  
  Medical/	
                                                    to	
  download	
  their	
  
                                            “Blue	
  
  Scien6fic	
  
                                           Bu:on”	
             own	
  claims	
  or	
  
 Knowledge	
  
                                                                personal	
  health	
  
                       Consumer	
                               informaNon	
  
                        Product	
                            •  Launched	
  10/2010	
  
                      Informa6on	
  
What	
  kinds	
  of	
  data	
  are	
  we	
  libera6ng?	
  


                      Community	
  
                        Health	
  
                                                             Consumer	
  Product	
  
                                          Provider	
         Informa6on	
  Example:	
  
    Govt	
  
                                         Directories	
  
  Spending	
  
                                         &	
  Quality	
                     	
  
                      HHS	
                                  •  FDA	
  recall	
  (drugs,	
  
                   Data	
  Being	
                              devices,	
  food)	
  data	
  
                   Liberated	
                                  in	
  downloadable	
  
                                                                XML	
  format	
  	
  
  Medical/	
  
                                            “Blue	
          •  Published	
  10/2010	
  
  Scien6fic	
  
                                           Bu:on”	
  
 Knowledge	
  

                       Consumer	
  
                        Product	
  
                      Informa6on	
  
What	
  kinds	
  of	
  data	
  are	
  we	
  libera6ng?	
  


                      Community	
  
                        Health	
  
                                                             Medical/Scien6fic	
  
                                          Provider	
  
    Govt	
                                                   Knowledge	
  Examples:	
  
                                         Directories	
  
  Spending	
  
                                         &	
  Quality	
                     	
  
                      HHS	
                                  •  NaNonal	
  Library	
  of	
  
                   Data	
  Being	
                              Medicine	
  API	
  Portal,	
  
                   Liberated	
                                  deployed	
  9/2010,	
  
                                                                including	
  
  Medical/	
  
  Scien6fic	
  
                                            “Blue	
             ClinicalTrials.gov	
  and    	
  
                                           Bu:on”	
             Pillbox	
  APIs	
  
 Knowledge	
  
                                                             •  Medline	
  Plus	
  
                       Consumer	
                               Connect,	
  launched	
  
                        Product	
  
                      Informa6on	
                              11/2010	
  
What	
  kinds	
  of	
  data	
  are	
  we	
  libera6ng?	
  


                      Community	
  
                        Health	
  
                                                             Govt	
  Spending	
  Data	
  
                                          Provider	
         Example:	
  
    Govt	
  
                                         Directories	
  
  Spending	
  
                                         &	
  Quality	
  
                                                                               	
  
                      HHS	
                                  •  Medicare	
  claims	
  
                                                                “basic	
  standalone	
  
                   Data	
  Being	
  
                                                                files”	
  –	
  first-­‐ever	
  
                   Liberated	
                                  claim-­‐level	
  files	
  
  Medical/	
                                                    (“slimmed”	
  for	
  
                                            “Blue	
  
  Scien6fic	
                                                    privacy	
  protecNon),	
  
                                           Bu:on”	
  
 Knowledge	
  
                                                                available	
  for	
  free	
  
                       Consumer	
  
                                                                public	
  download	
  for	
  
                        Product	
                               all	
  major	
  types	
  of	
  
                      Informa6on	
                              care	
  as	
  of	
  5/2011	
  
Bringing	
  it	
  all	
  together:	
  	
  HealthData.gov,	
  the	
  
one-­‐stop	
  place	
  to	
  get	
  all	
  of	
  our	
  free,	
  publicly	
  
available	
  data,	
  launched	
  2/2011	
  
Publicizing	
  our	
  data	
  to	
  innovators	
  across	
  
America	
  

•  Challenges	
  and	
  “code-­‐a-­‐thons”	
  (health2challenge.org)	
  	
  
•  Many	
  innovator	
  “meetups”	
  and	
  conferences	
  
•  Annual	
  “health	
  datapaloozas”	
  
The	
  goal:	
  	
  a	
  self-­‐propelled,	
  open	
  “ecosystem	
  of	
  
innova6on”	
  using	
  data	
  to	
  improve	
  health	
  (and	
  
create	
  jobs	
  of	
  the	
  future)	
  
                                                    A	
  Rapidly	
  Growing	
  Array	
  of	
  Innova6ve	
  
                                                            Products	
  and	
  Services	
  That:  	
  
                                                      •  Help	
  consumers	
  take	
  control	
  of	
  
 Health-­‐Related	
  Data	
  from	
                      their	
  health	
  and	
  health	
  care	
  
                                                      •  Help	
  employers	
  promote	
  health	
  
                                                         and	
  wellness	
  
                                        FUELS	
       •  Help	
  care	
  providers	
  deliver	
  beeer	
  
                                                         care	
  
                                                      •  Help	
  journalists	
  shed	
  light	
  
                                                      •  Help	
  local	
  leaders	
  make	
  beeer-­‐
                                                         informed	
  decisions	
  
                                                      •  Support	
  all	
  of	
  the	
  above	
  through	
  
                                                         “data	
  intermediary”	
  services	
  
                                                      •  And	
  much	
  more	
  
The	
  Third	
  Annual	
  Health	
  Data	
  Ini6a6ve	
  Forum	
  
                 –	
  The	
  Health	
  Data	
  Palooza!	
  	
  	
  	
  	
  

•    This	
  year’s	
  Palooza	
  will	
  take	
  place	
  on	
  June	
  5-­‐6,	
  2012	
  at	
  
     the	
  Walter	
  E.	
  Washington	
  ConvenNon	
  Center	
  in	
  
     Washington,	
  DC.	
  

•    This	
  year’s	
  event	
  will	
  be	
  hosted	
  through	
  the	
  Health	
  
     Data	
  ConsorNum,	
  a	
  public-­‐private	
  partnership	
  
     between	
  the	
  InsNtute	
  of	
  Medicine,	
  Robert	
  Wood	
  
     Johnson	
  FoundaNon,	
  Consumers	
  Union,	
  Academy	
  
     Health,	
  InnocenNve,	
  Health	
  2.0,	
  the	
  Mayo	
  Clinic’s	
  
     Center	
  for	
  InnovaNon	
  and	
  several	
  other	
  organizaNons.	
  

•    Will	
  showcase	
  250	
  of	
  the	
  best	
  innovaNons	
  in	
  three	
  
     tracks:	
  consumer,	
  provider	
  and	
  community	
  apps	
  

•    Please	
  visit	
  www.hdiforum.org	
  for	
  more	
  informaNon	
  
     on	
  registraNon,	
  Nmelines	
  for	
  submission	
  and	
  details	
  
     about	
  each	
  submission	
  category.	
  	
  	
  
Examples:	
  	
  helping	
  consumers	
  take	
  control	
  of	
  
       their	
  health	
  and	
  health	
  care	
  

	
  
•       iTriage	
  

•       Healthline	
  

•       Castlight	
  
	
  
•       Pa6ents	
  Like	
  Me	
  
	
  
•       Asthmapolis	
  
	
  
•       Food	
  Oasis	
  
Examples:	
  	
  helping	
  care	
  providers	
  deliver	
  
 be:er	
  care	
  (and	
  succeed	
  as	
  accountable	
  
 delivery	
  systems)	
  

•      Aetna	
  

•      Essence	
  Group/Lumeris	
  
	
  
•      Doximity	
  

•      Press	
  Ganey	
  

•      Rise	
  Health	
  
	
  
•      ElizaLIVE	
  
Examples:	
  	
  helping	
  communi6es	
  improve	
  
   health	
  

•      Ozioma	
  
	
  
•      ESRI	
  
	
  
•      Network	
  of	
  Care	
  for	
  
       Healthy	
  Communi6es	
  
	
  
•      Palan6r/CDC	
  
Selected	
  announcements	
  at	
  the	
  Forum	
  
•     EPA	
  challenge	
  
•     Walgreens	
  2.0	
  +	
  challenge	
  
•     Aetna	
  Founda6on	
  challenge	
  
•     Sanofi	
  Aven6s	
  diabetes	
  challenge	
  
•     NCIIA	
  Nursing	
  Home	
  of	
  the	
  Future	
  
      “invent-­‐a-­‐thon”	
  
•     University	
  of	
  Michigan:	
  	
  na6on’s	
  first	
  
      consumer	
  health	
  informa6cs	
  masters	
  
      degree	
  program	
  
•     Startup	
  Health:	
  	
  new	
  health	
  startup	
  
      “seed	
  accelerator/entrepreneurship	
  
      academy”	
  
•     New	
  “Health	
  Data	
  Consor6um”	
  
Founding	
  members	
  of	
  the	
  Health	
  Data	
  
     Consor6um	
  
•      Academy	
  Health	
  
•      California	
  HealthCare	
  Founda6on	
  
•      Consumers	
  Union	
  
•      ESRI	
  
•      Gallup-­‐Healthways	
  Well-­‐Being	
  Index	
  
•      Grantmakers	
  in	
  Health	
  
•      Health	
  2.0	
  
•      InnoCen6ve	
  
•      Ins6tute	
  of	
  Medicine	
  
•      Lucile	
  Packard	
  Founda6on	
  for	
  Children’s	
  Health	
  
•      Mayo	
  Clinic	
  Center	
  for	
  Innova6on	
  
•      Na6onal	
  Associa6on	
  of	
  Coun6es	
  
•      O’Reilly	
  Media	
  
•      Robert	
  Wood	
  Johnson	
  Founda6on	
  
•      U.S.	
  Department	
  of	
  Health	
  and	
  Human	
  Services	
  
A	
  historic	
  moment	
  and	
  opportunity	
  


                      New	
  Incen6ves	
  


                                  +	
  
                    Informa6on	
  Libera6on	
  


                                  =	
  
                  Rocket	
  Fuel	
  for	
  Innova6on	
  
 
	
  
James	
  Craver	
  
	
  
Public	
  health	
  analyst	
  	
  
Office	
  of	
  Analysis	
  and	
  Epidemiology	
  
NaNonal	
  Center	
  for	
  Health	
  StaNsNcs	
  
Centers	
  for	
  Disease	
  Control	
  and	
  
PrevenNon.	
  	
  
	
  
	
  
 
	
  
Niall	
  Brennan	
  
	
  
Director,	
  Policy	
  and	
  Data	
  Analysis	
  Group	
  
Center	
  for	
  Strategic	
  Planning	
  
Centers	
  for	
  Medicare	
  and	
  Medicaid	
  Services	
  
	
  
	
  
	
  
	
  
 
	
  
Carol	
  Sniegoski	
  
	
  
Center	
  for	
  Delivery,	
  OrganizaNon,	
  and	
  Markets	
  
Agency	
  for	
  Health	
  Research	
  and	
  Quality	
  
	
  
	
  
	
  
	
  
Agency for Healthcare Research and Quality
         Advancing Excellence in Health Care • www.ahrq.gov




        Input Your Data.
      Output Your Website.
             Carol Sniegoski
Agency for Healthcare Research and Quality
            monahrq.ahrq.gov
            monahrq@ahrq.gov
Input Your Data.
                           Output Your Website.
 Advancing
Excellence in
 Health Care


           MONAHRQ: a free, downloadable software tool from AHRQ.
                   Turns healthcare data into a website.
Input Your Data.
                           Output Your Website.
 Advancing
Excellence in
 Health Care


           MONAHRQ: a free, downloadable software tool from AHRQ.
                   Turns healthcare data into a website.
                           Download MONAHRQ from
                              monahrq.ahrq.gov



                               MONAHRQ
Input Your Data.
                             Output Your Website.
 Advancing
Excellence in
 Health Care


           MONAHRQ: a free, downloadable software tool from AHRQ.
                   Turns healthcare data into a website.
                             Download MONAHRQ from
          Input your local      monahrq.ahrq.gov
                  hospital
           discharge data
                                 MONAHRQ
Input Your Data.
                                  Output Your Website.
 Advancing
Excellence in
 Health Care


           MONAHRQ: a free, downloadable software tool from AHRQ.
                   Turns healthcare data into a website.
                                  Download MONAHRQ from
          Input your local           monahrq.ahrq.gov
                  hospital
           discharge data
                                        MONAHRQ
                Input Hospital
                     Compare
                   measures*




                                 * Available from HealthData.gov
Input Your Data.
                                  Output Your Website.
 Advancing
Excellence in
 Health Care


           MONAHRQ: a free, downloadable software tool from AHRQ.
                   Turns healthcare data into a website.
                                  Download MONAHRQ from
          Input your local           monahrq.ahrq.gov
                  hospital
           discharge data
                                        MONAHRQ
                Input Hospital
                     Compare
                   measures*       MONAHRQ runs on your
                                        desktop




                                 * Available from HealthData.gov
Input Your Data.
                                  Output Your Website.
 Advancing
Excellence in
 Health Care


           MONAHRQ: a free, downloadable software tool from AHRQ.
                   Turns healthcare data into a website.
                                  Download MONAHRQ from
          Input your local           monahrq.ahrq.gov
                  hospital
           discharge data                                            Output a local
                                        MONAHRQ                       healthcare
                                                                   reporting website
                Input Hospital
                     Compare
                   measures*       MONAHRQ runs on your
                                        desktop




                                 * Available from HealthData.gov
Input Your Data.
                                  Output Your Website.
 Advancing
Excellence in
 Health Care


           MONAHRQ: a free, downloadable software tool from AHRQ.
                   Turns healthcare data into a website.
                                  Download MONAHRQ from
          Input your local           monahrq.ahrq.gov
                  hospital
           discharge data                                            Output a local
                                        MONAHRQ                       healthcare
                                                                   reporting website
                Input Hospital
                     Compare
                   measures*       MONAHRQ runs on your             You host, public or
                                        desktop                          private




                                 * Available from HealthData.gov
Input Your Data.
                                     Output Your Website.
 Advancing
Excellence in
 Health Care


           MONAHRQ: a free, downloadable software tool from AHRQ.
                   Turns healthcare data into a website.
                                     Download MONAHRQ from
          Input your local              monahrq.ahrq.gov
                  hospital
           discharge data                                              Output a local
                                          MONAHRQ                       healthcare
                                                                     reporting website
                Input Hospital
                     Compare
                   measures*          MONAHRQ runs on your            You host, public or
                                           desktop                         private




                 MONAHRQ was a finalist in round 2 of the HHSinnovates competition.
                                   * Available from HealthData.gov
Who uses MONAHRQ?
 Advancing
Excellence in
 Health Care




                Who uses MONAHRQ to build a website?
                   •  Hospital associations
                   •  Community quality collaboratives
                   •  Local data organizations
                   •  Local public health departments
Who uses MONAHRQ?
 Advancing
Excellence in
 Health Care




                Who uses MONAHRQ to build a website?
                   •  Hospital associations
                   •  Community quality collaboratives
                   •  Local data organizations
                   •  Local public health departments



                                   Who can use MONAHRQ-generated websites?
                                                    •    Consumers
                                                    •    Providers
                                                    •    Analysts
                                                    •    Policy makers
The MONAHRQ-generated
                    reporting website
 Advancing
Excellence in
 Health Care
The MONAHRQ-generated
                        reporting website
 Advancing
Excellence in
 Health Care




        Local data (AHRQ Quality
                                            Local data
        Indicators: hospital level)




        Local data (AHRQ Quality
         Indicators: county level)          Local data
The MONAHRQ-generated
                        reporting website
 Advancing
Excellence in
 Health Care




          Hospital Compare measures*
     (patient safety, imaging use, mortality
       & readmissions, process of care,
      HCAHPS patient experience survey)
        Local data (AHRQ Quality
                                                                    Local data
        Indicators: hospital level)




        Local data (AHRQ Quality
         Indicators: county level)                                  Local data


                                  * Available from HealthData.gov
Hospital quality report
 Advancing
Excellence in
 Health Care



                                                       Search page




      Select hospitals in your                  Select quality measures
               area                                 by health topic
Hospital quality report
 Advancing
Excellence in
 Health Care


                                                       Classification
                                                           table




                         Choice of
                        benchmarks:
                      local or national                Friendly icons

                                                     Sortable columns

                                                        Help popups

                                                     Drilldown to details




                   * Available from HealthData.gov
Hospital quality report
 Advancing
Excellence in
 Health Care


                                                  Bar charts




                                      Ordered from best to worst

                                           Labeled with number
                                              showing rate

                                            Local and national
                                          benchmarks in contrast
                                                  color
County level quality report
 Advancing
Excellence in
 Health Care


                                                      Maps




                                              Rates for counties in
                                                 your data set

                                              Colored by quintile

                                              Drilldown to details

                                               Includes estimated
                                                cost savings from
                                                    reducing
                                                 hospitalizations
Why MONAHRQ?
 Advancing
Excellence in
 Health Care


                MONAHRQ helps make healthcare data useful

                •  Input your data, output your reporting website
                •  Create friendly, usable reports that apply best practices in
                   reporting
                •  Report both local and national data, including benchmarks
                •  Report without reinventing the wheel
Why MONAHRQ?
 Advancing
Excellence in
 Health Care


                      MONAHRQ helps make healthcare data useful

                      •  Input your data, output your reporting website
                      •  Create friendly, usable reports that apply best practices in
                         reporting
                      •  Report both local and national data, including benchmarks
                      •  Report without reinventing the wheel


            First released in June 2010, MONAHRQ is used for statewide reporting in
                                          several states

                          •  Nevada       •  Hawaii      •  Maine
                          •  Kentucky     •  Arkansas    •  Utah
Why MONAHRQ?
 Advancing
Excellence in
 Health Care


                      MONAHRQ helps make healthcare data useful

                      •  Input your data, output your reporting website
                      •  Create friendly, usable reports that apply best practices in
                         reporting
                      •  Report both local and national data, including benchmarks
                      •  Report without reinventing the wheel


            First released in June 2010, MONAHRQ is used for statewide reporting in
                                          several states

                          •  Nevada       •  Hawaii      •  Maine
                          •  Kentucky     •  Arkansas    •  Utah


         Learn more, visit live MONAHRQ reporting sites, or download MONAHRQ:
                                    monahrq.ahrq.gov
                                   monahrq@ahrq.gov
 
	
  
Danielle	
  P.	
  Turnipseed	
  
	
  
Program	
  Officer,	
  ExecuNve	
  Office	
  	
  
InsNtute	
  of	
  Medicine	
  
	
  
	
  
	
  
	
  
The Institute of Medicine
Advising the nation. Improving health
The Institute of Medicine asks and
answers the nation’s most pressing
questions about health and health care.

The IOM is an independent, nonprofit organization that
works outside of government to provide unbiased and
authoritative advice to decision makers and the public.


Established in 1970, the IOM is the health arm of the
National Academy of Sciences, which was chartered
under President Abraham Lincoln in 1863.




                                                          50
The IOM serves as adviser to the nation
to improve health.

§  Unbiased, authoritative advice
§  Evidence-based recommendations
§  Committees composed to avoid conflicts of interest
§  Neutral venue for open dialogue and discussion
§  Honorific organization




                                                         51
Go Viral to Improve Health
IOM-NAE Health Data Collegiate Challenge
                           §  Interdisciplinary
                               teams of 2-5
                               students
                           §  Open to
                               undergraduate and
                               graduate students
                           §  Register by 2/10,
                               submit app by 3/28

                               $18,000 	

                             IN PRIZES	


                                                    52
Agenda	
  
	
  	
  
1.         Welcome:	
  Todd	
  Park	
  (CTO,	
  HHS)	
  	
  
2.         Overview	
  of	
  Health	
  Indicators	
  Warehouse:	
  James	
  Craver	
  
3.         CMS	
  Data	
  Update:	
  Niall	
  Brennan	
  
4.         Features	
  of	
  MONAHRQ:	
  Carol	
  Sniegoski	
  
5.         IOM	
  Perspec6ve:	
  Danielle	
  Turnipseed	
  
6.         Q&A	
  (20	
  minutes)	
  

•          If	
  you	
  wish	
  to	
  ask	
  a	
  ques6on,	
  please	
  type	
  in	
  ‘chat’	
  window	
  
           and	
  click	
  on	
  ‘send	
  to	
  organizer’	
  in	
  the	
  drag-­‐down	
  menu	
  
•          Webinar	
  will	
  be	
  archived	
  

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Health Indicators Warehouse Webinar

  • 1. What  Data  is  Available?       An  Introduc6on  to  the  Data  Sources  at  HHS     Monday,  January  23,  2012   11:00  am  -­‐  12:30  PM  EST  
  • 2.   Arnaub  Cha:erjee   Special  Assistant   Office  of  the  Chief  Technology  Officer,  HHS  
  • 3. Agenda       1.  Welcome:  Todd  Park  (CTO,  HHS)     2.  Overview  of  Health  Indicators  Warehouse:  James  Craver   3.  CMS  Data  Update:  Niall  Brennan   4.  Features  of  MONAHRQ:  Carol  Sniegoski   5.  IOM  Perspec6ve:  Danielle  Turnipseed   6.  Q&A  (20  minutes)   •  If  you  wish  to  ask  a  ques6on,  please  type  in  ‘chat’  window   and  click  on  ‘send  to  organizer’  in  the  drag-­‐down  menu   •  Webinar  will  be  archived  
  • 4.   Todd  Park     Chief  Technology  Officer   U.S.  Department  of  Health   and  Human  Services        
  • 5. The Health Data Initiative: Unleashing the Power of Open Data and Innovation to Improve Health
  • 6. The  Health  Data  Ini6a6ve:    turning  HHS  and  our   sister  agencies  into  the  “NOAA  of  health  data”       Weather  data   •  Weather  newscasts   •  Weather  websites   FUELS   •  Weather  mobile  apps   •  Weather  insurance   •  And  more   Made  available  to  the  public  
  • 7. Health  Data  Ini6a6ve  core  ac6vi6es:    liberate   data  and  catalyze  innova6on   1.  Publish  brand  new  HHS  data  for  public  access  –  while  rigorously   protecNng  privacy  and  confidenNality   2.  Make  exis6ng  HHS  data  much  more  accessible  -­‐-­‐  “machine-­‐ readable,”  accessible  via  applicaNon  programming  interfaces   (APIs),  free,  much  easier  to  find   3.  Energe6cally  publicize  our  data  to  innovators  -­‐-­‐  who  can  use  it   as  raw  material  to  develop  applicaNons  and  services  that  help   improve  health  and  health  care  
  • 8. What  kinds  of  data  are  we  libera6ng?   Community   Health   Community  Health   Govt   Provider   Data  Example:   Directories   Spending   &  Quality     HHS   •  Health  Indicators   Data  Being   Warehouse,  at   healthindicators.gov   Liberated   •  1,170  metrics  of   Medical/   “Blue   community  health   Scien6fic   Bu:on”   and  health  care   Knowledge   performance   Consumer   •  Launched  2/2011   Product   Informa6on  
  • 9. What  kinds  of  data  are  we  libera6ng?   Community   Provider  Directories  &   Health   Quality  Data  Examples:     Provider   Govt   Spending   Directories   •  NaNonwide   &  Quality   directories  of  care   HHS   providers   Data  Being   •  Provider  quality   Liberated   COMPARE  APIs  at   data.medicare.gov,   Medical/   “Blue   launched  9/2010   Scien6fic   Bu:on”   Knowledge   •  Medicare  claim  files   for  provider  quality   Consumer   Product   measurement,   Informa6on   coming  1/2012  
  • 10. What  kinds  of  data  are  we  libera6ng?   Community   Health   “Blue  Bu:on”  Data     Provider   Govt   Directories   •  VA,  HHS,  DoD  joint   Spending   venture   &  Quality   HHS   •  Allows  veterans,   Data  Being   Medicare   beneficiaries,  and   Liberated   acNve  duty  military   Medical/   to  download  their   “Blue   Scien6fic   Bu:on”   own  claims  or   Knowledge   personal  health   Consumer   informaNon   Product   •  Launched  10/2010   Informa6on  
  • 11. What  kinds  of  data  are  we  libera6ng?   Community   Health   Consumer  Product   Provider   Informa6on  Example:   Govt   Directories   Spending   &  Quality     HHS   •  FDA  recall  (drugs,   Data  Being   devices,  food)  data   Liberated   in  downloadable   XML  format     Medical/   “Blue   •  Published  10/2010   Scien6fic   Bu:on”   Knowledge   Consumer   Product   Informa6on  
  • 12. What  kinds  of  data  are  we  libera6ng?   Community   Health   Medical/Scien6fic   Provider   Govt   Knowledge  Examples:   Directories   Spending   &  Quality     HHS   •  NaNonal  Library  of   Data  Being   Medicine  API  Portal,   Liberated   deployed  9/2010,   including   Medical/   Scien6fic   “Blue   ClinicalTrials.gov  and   Bu:on”   Pillbox  APIs   Knowledge   •  Medline  Plus   Consumer   Connect,  launched   Product   Informa6on   11/2010  
  • 13. What  kinds  of  data  are  we  libera6ng?   Community   Health   Govt  Spending  Data   Provider   Example:   Govt   Directories   Spending   &  Quality     HHS   •  Medicare  claims   “basic  standalone   Data  Being   files”  –  first-­‐ever   Liberated   claim-­‐level  files   Medical/   (“slimmed”  for   “Blue   Scien6fic   privacy  protecNon),   Bu:on”   Knowledge   available  for  free   Consumer   public  download  for   Product   all  major  types  of   Informa6on   care  as  of  5/2011  
  • 14. Bringing  it  all  together:    HealthData.gov,  the   one-­‐stop  place  to  get  all  of  our  free,  publicly   available  data,  launched  2/2011  
  • 15. Publicizing  our  data  to  innovators  across   America   •  Challenges  and  “code-­‐a-­‐thons”  (health2challenge.org)     •  Many  innovator  “meetups”  and  conferences   •  Annual  “health  datapaloozas”  
  • 16. The  goal:    a  self-­‐propelled,  open  “ecosystem  of   innova6on”  using  data  to  improve  health  (and   create  jobs  of  the  future)   A  Rapidly  Growing  Array  of  Innova6ve   Products  and  Services  That:   •  Help  consumers  take  control  of   Health-­‐Related  Data  from   their  health  and  health  care   •  Help  employers  promote  health   and  wellness   FUELS   •  Help  care  providers  deliver  beeer   care   •  Help  journalists  shed  light   •  Help  local  leaders  make  beeer-­‐ informed  decisions   •  Support  all  of  the  above  through   “data  intermediary”  services   •  And  much  more  
  • 17. The  Third  Annual  Health  Data  Ini6a6ve  Forum   –  The  Health  Data  Palooza!           •  This  year’s  Palooza  will  take  place  on  June  5-­‐6,  2012  at   the  Walter  E.  Washington  ConvenNon  Center  in   Washington,  DC.   •  This  year’s  event  will  be  hosted  through  the  Health   Data  ConsorNum,  a  public-­‐private  partnership   between  the  InsNtute  of  Medicine,  Robert  Wood   Johnson  FoundaNon,  Consumers  Union,  Academy   Health,  InnocenNve,  Health  2.0,  the  Mayo  Clinic’s   Center  for  InnovaNon  and  several  other  organizaNons.   •  Will  showcase  250  of  the  best  innovaNons  in  three   tracks:  consumer,  provider  and  community  apps   •  Please  visit  www.hdiforum.org  for  more  informaNon   on  registraNon,  Nmelines  for  submission  and  details   about  each  submission  category.      
  • 18. Examples:    helping  consumers  take  control  of   their  health  and  health  care     •  iTriage   •  Healthline   •  Castlight     •  Pa6ents  Like  Me     •  Asthmapolis     •  Food  Oasis  
  • 19. Examples:    helping  care  providers  deliver   be:er  care  (and  succeed  as  accountable   delivery  systems)   •  Aetna   •  Essence  Group/Lumeris     •  Doximity   •  Press  Ganey   •  Rise  Health     •  ElizaLIVE  
  • 20. Examples:    helping  communi6es  improve   health   •  Ozioma     •  ESRI     •  Network  of  Care  for   Healthy  Communi6es     •  Palan6r/CDC  
  • 21. Selected  announcements  at  the  Forum   •  EPA  challenge   •  Walgreens  2.0  +  challenge   •  Aetna  Founda6on  challenge   •  Sanofi  Aven6s  diabetes  challenge   •  NCIIA  Nursing  Home  of  the  Future   “invent-­‐a-­‐thon”   •  University  of  Michigan:    na6on’s  first   consumer  health  informa6cs  masters   degree  program   •  Startup  Health:    new  health  startup   “seed  accelerator/entrepreneurship   academy”   •  New  “Health  Data  Consor6um”  
  • 22. Founding  members  of  the  Health  Data   Consor6um   •  Academy  Health   •  California  HealthCare  Founda6on   •  Consumers  Union   •  ESRI   •  Gallup-­‐Healthways  Well-­‐Being  Index   •  Grantmakers  in  Health   •  Health  2.0   •  InnoCen6ve   •  Ins6tute  of  Medicine   •  Lucile  Packard  Founda6on  for  Children’s  Health   •  Mayo  Clinic  Center  for  Innova6on   •  Na6onal  Associa6on  of  Coun6es   •  O’Reilly  Media   •  Robert  Wood  Johnson  Founda6on   •  U.S.  Department  of  Health  and  Human  Services  
  • 23. A  historic  moment  and  opportunity   New  Incen6ves   +   Informa6on  Libera6on   =   Rocket  Fuel  for  Innova6on  
  • 24.     James  Craver     Public  health  analyst     Office  of  Analysis  and  Epidemiology   NaNonal  Center  for  Health  StaNsNcs   Centers  for  Disease  Control  and   PrevenNon.        
  • 25.     Niall  Brennan     Director,  Policy  and  Data  Analysis  Group   Center  for  Strategic  Planning   Centers  for  Medicare  and  Medicaid  Services          
  • 26.     Carol  Sniegoski     Center  for  Delivery,  OrganizaNon,  and  Markets   Agency  for  Health  Research  and  Quality          
  • 27. Agency for Healthcare Research and Quality Advancing Excellence in Health Care • www.ahrq.gov Input Your Data. Output Your Website. Carol Sniegoski Agency for Healthcare Research and Quality monahrq.ahrq.gov monahrq@ahrq.gov
  • 28. Input Your Data. Output Your Website. Advancing Excellence in Health Care MONAHRQ: a free, downloadable software tool from AHRQ. Turns healthcare data into a website.
  • 29. Input Your Data. Output Your Website. Advancing Excellence in Health Care MONAHRQ: a free, downloadable software tool from AHRQ. Turns healthcare data into a website. Download MONAHRQ from monahrq.ahrq.gov MONAHRQ
  • 30. Input Your Data. Output Your Website. Advancing Excellence in Health Care MONAHRQ: a free, downloadable software tool from AHRQ. Turns healthcare data into a website. Download MONAHRQ from Input your local monahrq.ahrq.gov hospital discharge data MONAHRQ
  • 31. Input Your Data. Output Your Website. Advancing Excellence in Health Care MONAHRQ: a free, downloadable software tool from AHRQ. Turns healthcare data into a website. Download MONAHRQ from Input your local monahrq.ahrq.gov hospital discharge data MONAHRQ Input Hospital Compare measures* * Available from HealthData.gov
  • 32. Input Your Data. Output Your Website. Advancing Excellence in Health Care MONAHRQ: a free, downloadable software tool from AHRQ. Turns healthcare data into a website. Download MONAHRQ from Input your local monahrq.ahrq.gov hospital discharge data MONAHRQ Input Hospital Compare measures* MONAHRQ runs on your desktop * Available from HealthData.gov
  • 33. Input Your Data. Output Your Website. Advancing Excellence in Health Care MONAHRQ: a free, downloadable software tool from AHRQ. Turns healthcare data into a website. Download MONAHRQ from Input your local monahrq.ahrq.gov hospital discharge data Output a local MONAHRQ healthcare reporting website Input Hospital Compare measures* MONAHRQ runs on your desktop * Available from HealthData.gov
  • 34. Input Your Data. Output Your Website. Advancing Excellence in Health Care MONAHRQ: a free, downloadable software tool from AHRQ. Turns healthcare data into a website. Download MONAHRQ from Input your local monahrq.ahrq.gov hospital discharge data Output a local MONAHRQ healthcare reporting website Input Hospital Compare measures* MONAHRQ runs on your You host, public or desktop private * Available from HealthData.gov
  • 35. Input Your Data. Output Your Website. Advancing Excellence in Health Care MONAHRQ: a free, downloadable software tool from AHRQ. Turns healthcare data into a website. Download MONAHRQ from Input your local monahrq.ahrq.gov hospital discharge data Output a local MONAHRQ healthcare reporting website Input Hospital Compare measures* MONAHRQ runs on your You host, public or desktop private MONAHRQ was a finalist in round 2 of the HHSinnovates competition. * Available from HealthData.gov
  • 36. Who uses MONAHRQ? Advancing Excellence in Health Care Who uses MONAHRQ to build a website? •  Hospital associations •  Community quality collaboratives •  Local data organizations •  Local public health departments
  • 37. Who uses MONAHRQ? Advancing Excellence in Health Care Who uses MONAHRQ to build a website? •  Hospital associations •  Community quality collaboratives •  Local data organizations •  Local public health departments Who can use MONAHRQ-generated websites? •  Consumers •  Providers •  Analysts •  Policy makers
  • 38. The MONAHRQ-generated reporting website Advancing Excellence in Health Care
  • 39. The MONAHRQ-generated reporting website Advancing Excellence in Health Care Local data (AHRQ Quality Local data Indicators: hospital level) Local data (AHRQ Quality Indicators: county level) Local data
  • 40. The MONAHRQ-generated reporting website Advancing Excellence in Health Care Hospital Compare measures* (patient safety, imaging use, mortality & readmissions, process of care, HCAHPS patient experience survey) Local data (AHRQ Quality Local data Indicators: hospital level) Local data (AHRQ Quality Indicators: county level) Local data * Available from HealthData.gov
  • 41. Hospital quality report Advancing Excellence in Health Care Search page Select hospitals in your Select quality measures area by health topic
  • 42. Hospital quality report Advancing Excellence in Health Care Classification table Choice of benchmarks: local or national Friendly icons Sortable columns Help popups Drilldown to details * Available from HealthData.gov
  • 43. Hospital quality report Advancing Excellence in Health Care Bar charts Ordered from best to worst Labeled with number showing rate Local and national benchmarks in contrast color
  • 44. County level quality report Advancing Excellence in Health Care Maps Rates for counties in your data set Colored by quintile Drilldown to details Includes estimated cost savings from reducing hospitalizations
  • 45. Why MONAHRQ? Advancing Excellence in Health Care MONAHRQ helps make healthcare data useful •  Input your data, output your reporting website •  Create friendly, usable reports that apply best practices in reporting •  Report both local and national data, including benchmarks •  Report without reinventing the wheel
  • 46. Why MONAHRQ? Advancing Excellence in Health Care MONAHRQ helps make healthcare data useful •  Input your data, output your reporting website •  Create friendly, usable reports that apply best practices in reporting •  Report both local and national data, including benchmarks •  Report without reinventing the wheel First released in June 2010, MONAHRQ is used for statewide reporting in several states •  Nevada •  Hawaii •  Maine •  Kentucky •  Arkansas •  Utah
  • 47. Why MONAHRQ? Advancing Excellence in Health Care MONAHRQ helps make healthcare data useful •  Input your data, output your reporting website •  Create friendly, usable reports that apply best practices in reporting •  Report both local and national data, including benchmarks •  Report without reinventing the wheel First released in June 2010, MONAHRQ is used for statewide reporting in several states •  Nevada •  Hawaii •  Maine •  Kentucky •  Arkansas •  Utah Learn more, visit live MONAHRQ reporting sites, or download MONAHRQ: monahrq.ahrq.gov monahrq@ahrq.gov
  • 48.     Danielle  P.  Turnipseed     Program  Officer,  ExecuNve  Office     InsNtute  of  Medicine          
  • 49. The Institute of Medicine Advising the nation. Improving health
  • 50. The Institute of Medicine asks and answers the nation’s most pressing questions about health and health care. The IOM is an independent, nonprofit organization that works outside of government to provide unbiased and authoritative advice to decision makers and the public. Established in 1970, the IOM is the health arm of the National Academy of Sciences, which was chartered under President Abraham Lincoln in 1863. 50
  • 51. The IOM serves as adviser to the nation to improve health. §  Unbiased, authoritative advice §  Evidence-based recommendations §  Committees composed to avoid conflicts of interest §  Neutral venue for open dialogue and discussion §  Honorific organization 51
  • 52. Go Viral to Improve Health IOM-NAE Health Data Collegiate Challenge §  Interdisciplinary teams of 2-5 students §  Open to undergraduate and graduate students §  Register by 2/10, submit app by 3/28 $18,000 IN PRIZES 52
  • 53. Agenda       1.  Welcome:  Todd  Park  (CTO,  HHS)     2.  Overview  of  Health  Indicators  Warehouse:  James  Craver   3.  CMS  Data  Update:  Niall  Brennan   4.  Features  of  MONAHRQ:  Carol  Sniegoski   5.  IOM  Perspec6ve:  Danielle  Turnipseed   6.  Q&A  (20  minutes)   •  If  you  wish  to  ask  a  ques6on,  please  type  in  ‘chat’  window   and  click  on  ‘send  to  organizer’  in  the  drag-­‐down  menu   •  Webinar  will  be  archived