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www Wheezing, the Web and Wireless



 Howard Last

 GP at Oakley Medical Practice, Leeds
 Member of Leeds Asthma Focus Group
 Member of Leeds Respiratory Network




                                        active medicine ltd
Asthma
„Lies, damn lies and........‟**

    •Affects 5.4 million people in the UK*

    •Quality of life

    •One person dies every 7 hours*

    •Cost to NHS £1 billion*

    •Emergency admissions cost £61 millions*

    •Huge regional variation

    •Not a government priority


 * Asthma UK                      **Variously attributed to Benjamin Disraeli, Alfred
                                  Marshall, Mark Twain and many other dead people.
You Won‟t Believe.........


The things patients do with their inhalers
You Won‟t Believe.........


The things patients do with their inhalers
You Won‟t Believe.........


The things patients do with their inhalers
You Won‟t Believe.........


The things patients do with their inhalers
You Won‟t Believe.........

What patients accept as „normal‟


„The goal of asthma care is to achieve and maintain
control of the clinical manifestations of the disease for
prolonged periods. When asthma is controlled, patients
can prevent most attacks, avoid troublesome symptoms
day and night, and keep physically active.‟*



*Global Initiative For Asthma (GINA)
You Won‟t Believe.........

What patients accept as „normal‟

Patient Expectations
You Won‟t Believe.........

 What patients accept as „normal‟

 Patient Expectations

 The Living & Breathing Study: a study of patients' views of
 asthma and its treatment.*




*Prim Care Respir J. 2004 Mar;13(1):28-35. Haughney J, Barnes G, Partridge M, Cleland J.
You Won‟t Believe.........

 What patients accept as „normal‟

 Patient Expectations

 The Living & Breathing Study: a study of patients' views of
 asthma and its treatment.*

  RESULTS
  ...Fifty-eight percent (n=301) were very satisfied with their
  asthma care, but this dropped to 33% (n=173) when
  respondents were shown asthma guidelines regarding what
  to expect from treatment...*




*Prim Care Respir J. 2004 Mar;13(1):28-35. Haughney J, Barnes G, Partridge M, Cleland J.
You Won‟t Believe.........

 What patients accept as „normal‟

 Patient Expectations

 The Living & Breathing Study: a study of patients' views of
 asthma and its treatment.*

  CONCLUSIONS
  Most patients have low expectations of what can be
  achieved by asthma management and do not realise
  their condition can be improved. Many are resigned to
  the effects of poor asthma control until made aware that
  guidelines indicate this can be better............*


*Prim Care Respir J. 2004 Mar;13(1):28-35. Haughney J, Barnes G, Partridge M, Cleland J.
You Won‟t Believe.........


What patients don‟t understand about their treatment
You Won‟t Believe.........


What patients don‟t understand about their treatment

GINA Component 1:

„......Understand the difference between “controller” and
“reliever” medications.......‟*




*Global Initiative For Asthma (GINA)
You Won‟t Believe.........


What patients don‟t understand about their treatment

GINA Component 1:

„......Understand the difference between “controller” and
“reliever” medications.......‟*

“Relievers” treat the symptoms




*Global Initiative For Asthma (GINA)
You Won‟t Believe.........


What patients don‟t understand about their treatment

GINA Component 1:

„......Understand the difference between “controller” and
“reliever” medications.......‟*

“Relievers” treat the symptoms

“Controllers” (“Preventers”) treat the underlying cause




*Global Initiative For Asthma (GINA)
You Won‟t Believe.........


What patients don‟t understand about their treatment

GINA Component 1:

„......Understand the difference between “controller” and
“reliever” medications.......‟*

“Relievers” treat the symptoms

“Controllers” (“Preventers”) treat the underlying cause

Long-term consequences


*Global Initiative For Asthma (GINA)
You Won‟t Believe.........


What patients do with their Asthma Care Plans
You Won‟t Believe.........


What patients do with their Asthma Care Plans

(Assuming they have one in the first place)
PATIENT EDUCATION




„Patients with asthma should be
   offered self-management
   education that focuses on
    individual needs and be
     reinforced by a written
  personalised action plan....‟
You Won‟t Believe.........


What patients do with their Asthma Care Plans

(Assuming they have one in the first place)

Patients without a Care Plan have a FOURFOLD increased
risk of an emergency admission*




 * Asthma UK
You Won‟t Believe.........!


What patients do with their Asthma Care Plans

(Assuming they have one in the first place)

Patients without a Care Plan have a FOURFOLD increased
risk of an emergency admission*

Two thirds of asthma patients* do not have a Care Plan




 * Asthma UK
Two thirds of asthma patients* do not have a Care Plan


Why?

    •Paper-based & hand-written

    •End of consultation....time constraints

    •No standard Care Plan...or is it Action Plan......?

    •?QOF




 * Asthma UK
One third of asthma patients do have a Care Plan


What do they do with it?

   •Paper-based and only really valid on the day it is
   issued

   •Does it end up in the bottom of a drawer?
Needs

Education

   •Poor Inhaler technique
   •Expectations
   •Understanding treatment

Care Plans

(Compliance)


....Poorly controlled asthma
Asthma WebApp


Using IT to
address
established
needs for
improving
asthma care

„Shared Health
Application‟

Web-based
Asthma WebApp


Using IT to
address
established
needs for
improving
asthma care

„Shared Health
Application‟

Web-based

Videos
Asthma WebApp


Using IT to
address
established
needs for
improving
asthma care

Integrated
Education

Care Plans
Asthma WebApp


Care Plans

Control
Asthma WebApp


Care Plans

Control
Asthma WebApp


Care Plans

Control

Dynamic &
interactive
Asthma WebApp


Care Plans

Control

Dynamic &
interactive

No ‘sell by’
date
Asthma WebApp


Care Plans

Control

Dynamic &
interactive

No „sell by‟
date

Web-based
Asthma WebApp


Care Plans

Control

Dynamic &
interactive

No „sell by‟
date

Web-based

Remote
asthma review
Asthma WebApp


Care Plans

Control

Dynamic &
interactive

No „sell by‟
date

Web-based

Remote
asthma review

Hard to reach
asthmatics
Asthma WebApp


Control

Dynamic &
interactive

No „sell by‟
date

Web-based

Remote
asthma review

Hard to reach
Asthmatics

Integrates with
other
educational
elements
Asthma WebApp


Control

Dynamic &
interactive

No „sell by‟
date

Web-based

Remote
asthma review

Hard to reach
Asthmatics

Integrates with
other
educational
elements

Expectations
Telehealth

 •“...information technology and health education to improve the
 efficiency and quality of healthcare.”*

 •“...remote care delivery or monitoring between a healthcare provider
 and a patient...”**

 Asthma WebApp

 •Collection and transmission of asthma control data via the internet
 (telemonitoring)

 •Remote asthma reviews by phone/email




* Highland NHS Board    ** www.medqic.org
Telehealth

   •Vena-enabled inhaler

   •Data collection

   •Added value

   •Asthma control

   •Treatment compliance

   •Mobile phones
Telehealth

Who has access to the information?

   •Healthcare professionals

   •PCTs

   •Government

   •Insurance
Telehealth

Healthcare Debate

   •Patient „choice‟

   •Personal responsibility

   •Social responsibility

   •Health resources

   •Patient „choice‟?.....‟Responsible choice‟?
www Wheezing, the Web and Wireless



 •Established needs to improve asthma care

 •Shared web-applications can address these needs

 •Wireless technology has huge potential to interface with
 web-applications and deliver an improvement in personal
 health and the health of the nation

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Active Medicine Pdf

  • 1. www Wheezing, the Web and Wireless Howard Last GP at Oakley Medical Practice, Leeds Member of Leeds Asthma Focus Group Member of Leeds Respiratory Network active medicine ltd
  • 2. Asthma „Lies, damn lies and........‟** •Affects 5.4 million people in the UK* •Quality of life •One person dies every 7 hours* •Cost to NHS £1 billion* •Emergency admissions cost £61 millions* •Huge regional variation •Not a government priority * Asthma UK **Variously attributed to Benjamin Disraeli, Alfred Marshall, Mark Twain and many other dead people.
  • 3. You Won‟t Believe......... The things patients do with their inhalers
  • 4. You Won‟t Believe......... The things patients do with their inhalers
  • 5. You Won‟t Believe......... The things patients do with their inhalers
  • 6. You Won‟t Believe......... The things patients do with their inhalers
  • 7. You Won‟t Believe......... What patients accept as „normal‟ „The goal of asthma care is to achieve and maintain control of the clinical manifestations of the disease for prolonged periods. When asthma is controlled, patients can prevent most attacks, avoid troublesome symptoms day and night, and keep physically active.‟* *Global Initiative For Asthma (GINA)
  • 8. You Won‟t Believe......... What patients accept as „normal‟ Patient Expectations
  • 9. You Won‟t Believe......... What patients accept as „normal‟ Patient Expectations The Living & Breathing Study: a study of patients' views of asthma and its treatment.* *Prim Care Respir J. 2004 Mar;13(1):28-35. Haughney J, Barnes G, Partridge M, Cleland J.
  • 10. You Won‟t Believe......... What patients accept as „normal‟ Patient Expectations The Living & Breathing Study: a study of patients' views of asthma and its treatment.* RESULTS ...Fifty-eight percent (n=301) were very satisfied with their asthma care, but this dropped to 33% (n=173) when respondents were shown asthma guidelines regarding what to expect from treatment...* *Prim Care Respir J. 2004 Mar;13(1):28-35. Haughney J, Barnes G, Partridge M, Cleland J.
  • 11. You Won‟t Believe......... What patients accept as „normal‟ Patient Expectations The Living & Breathing Study: a study of patients' views of asthma and its treatment.* CONCLUSIONS Most patients have low expectations of what can be achieved by asthma management and do not realise their condition can be improved. Many are resigned to the effects of poor asthma control until made aware that guidelines indicate this can be better............* *Prim Care Respir J. 2004 Mar;13(1):28-35. Haughney J, Barnes G, Partridge M, Cleland J.
  • 12. You Won‟t Believe......... What patients don‟t understand about their treatment
  • 13. You Won‟t Believe......... What patients don‟t understand about their treatment GINA Component 1: „......Understand the difference between “controller” and “reliever” medications.......‟* *Global Initiative For Asthma (GINA)
  • 14. You Won‟t Believe......... What patients don‟t understand about their treatment GINA Component 1: „......Understand the difference between “controller” and “reliever” medications.......‟* “Relievers” treat the symptoms *Global Initiative For Asthma (GINA)
  • 15. You Won‟t Believe......... What patients don‟t understand about their treatment GINA Component 1: „......Understand the difference between “controller” and “reliever” medications.......‟* “Relievers” treat the symptoms “Controllers” (“Preventers”) treat the underlying cause *Global Initiative For Asthma (GINA)
  • 16. You Won‟t Believe......... What patients don‟t understand about their treatment GINA Component 1: „......Understand the difference between “controller” and “reliever” medications.......‟* “Relievers” treat the symptoms “Controllers” (“Preventers”) treat the underlying cause Long-term consequences *Global Initiative For Asthma (GINA)
  • 17. You Won‟t Believe......... What patients do with their Asthma Care Plans
  • 18. You Won‟t Believe......... What patients do with their Asthma Care Plans (Assuming they have one in the first place)
  • 19. PATIENT EDUCATION „Patients with asthma should be offered self-management education that focuses on individual needs and be reinforced by a written personalised action plan....‟
  • 20. You Won‟t Believe......... What patients do with their Asthma Care Plans (Assuming they have one in the first place) Patients without a Care Plan have a FOURFOLD increased risk of an emergency admission* * Asthma UK
  • 21. You Won‟t Believe.........! What patients do with their Asthma Care Plans (Assuming they have one in the first place) Patients without a Care Plan have a FOURFOLD increased risk of an emergency admission* Two thirds of asthma patients* do not have a Care Plan * Asthma UK
  • 22. Two thirds of asthma patients* do not have a Care Plan Why? •Paper-based & hand-written •End of consultation....time constraints •No standard Care Plan...or is it Action Plan......? •?QOF * Asthma UK
  • 23. One third of asthma patients do have a Care Plan What do they do with it? •Paper-based and only really valid on the day it is issued •Does it end up in the bottom of a drawer?
  • 24. Needs Education •Poor Inhaler technique •Expectations •Understanding treatment Care Plans (Compliance) ....Poorly controlled asthma
  • 25. Asthma WebApp Using IT to address established needs for improving asthma care „Shared Health Application‟ Web-based
  • 26.
  • 27. Asthma WebApp Using IT to address established needs for improving asthma care „Shared Health Application‟ Web-based Videos
  • 28. Asthma WebApp Using IT to address established needs for improving asthma care Integrated Education Care Plans
  • 32. Asthma WebApp Care Plans Control Dynamic & interactive No ‘sell by’ date
  • 33. Asthma WebApp Care Plans Control Dynamic & interactive No „sell by‟ date Web-based
  • 34. Asthma WebApp Care Plans Control Dynamic & interactive No „sell by‟ date Web-based Remote asthma review
  • 35. Asthma WebApp Care Plans Control Dynamic & interactive No „sell by‟ date Web-based Remote asthma review Hard to reach asthmatics
  • 36. Asthma WebApp Control Dynamic & interactive No „sell by‟ date Web-based Remote asthma review Hard to reach Asthmatics Integrates with other educational elements
  • 37. Asthma WebApp Control Dynamic & interactive No „sell by‟ date Web-based Remote asthma review Hard to reach Asthmatics Integrates with other educational elements Expectations
  • 38. Telehealth •“...information technology and health education to improve the efficiency and quality of healthcare.”* •“...remote care delivery or monitoring between a healthcare provider and a patient...”** Asthma WebApp •Collection and transmission of asthma control data via the internet (telemonitoring) •Remote asthma reviews by phone/email * Highland NHS Board ** www.medqic.org
  • 39. Telehealth •Vena-enabled inhaler •Data collection •Added value •Asthma control •Treatment compliance •Mobile phones
  • 40. Telehealth Who has access to the information? •Healthcare professionals •PCTs •Government •Insurance
  • 41. Telehealth Healthcare Debate •Patient „choice‟ •Personal responsibility •Social responsibility •Health resources •Patient „choice‟?.....‟Responsible choice‟?
  • 42. www Wheezing, the Web and Wireless •Established needs to improve asthma care •Shared web-applications can address these needs •Wireless technology has huge potential to interface with web-applications and deliver an improvement in personal health and the health of the nation