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Social	
  Media	
  and	
  Health	
  




                       Jodi	
  Sperber,	
  MSW,	
  MPH	
  
                                  October	
  21,	
  2010	
  
Before	
  you	
  take	
  notes…	
  



www.slideshare.net/jsperber
What	
  is	
  it	
  NOT?	
  
Same	
  thing,	
  only	
  different	
  

 Communication	
  is	
  always	
  evolving	
  
 Social	
  media	
  is	
  the	
  latest,	
  and	
  perhaps	
  
  most	
  significant,	
  shift	
  in	
  communication	
  
 Does	
  not	
  replace	
  other	
  media	
  
What	
  is	
  different?	
  

One	
  	
  	
  	
  	
  	
  Many	
  




                                        Many	
  	
  	
  	
  	
  	
  Many	
  
Why	
  is	
  this	
  important?	
  
  Dramatic	
  shift	
  in	
  how	
  information	
  is	
  shared	
  
  Barriers	
  to	
  participation	
  greatly	
  reduced	
  	
  
  Anyone	
  has	
  the	
  chance	
  to	
  be	
  heard	
  
  With	
  free	
  tools	
  and	
  expanding	
  platforms,	
  
  creativity	
  beats	
  $$	
  
Basic	
  Principles	
  

  Participation	
  
  Openness	
  
  Conversation	
  
  Community	
  
  Connectedness	
  



                          Adapted	
  from	
  http://is.gd/cWWZ9	
  
Access	
  to	
  information	
  online	
  

                                                                            Spring	
  2000	
                                            Spring	
  2009	
  
 Access	
  to	
  
                                                                                        <50%	
                                                         75%	
  
 Internet	
  
 Broadband	
                                                                                 5%	
                                                      57%	
  
 Seek	
  health	
  info	
  
                                                                                           25%	
                                                       61%	
  
 online	
  


Social	
  Life	
  of	
  Health	
  Information,	
  Pew	
  Internet	
  and	
  American	
  Life,	
  June	
  11,	
  2009.	
  By	
  Susannah	
  Fox	
  and	
  Sydney	
  Jones.	
  
Health	
  is	
  social	
  
  57%	
  turn	
  to	
  Internet	
  when	
  they	
  need	
  info	
  and	
  
   assistance	
  in	
  dealing	
  with	
  health	
  or	
  medical	
  
   issues.	
  
  60%	
  say	
  information	
  found	
  online	
  affected	
  a	
  
   decision	
  about	
  how	
  to	
  treat	
  an	
  illness	
  or	
  
   condition.	
  
  56%	
  say	
  it	
  changed	
  their	
  overall	
  approach	
  to	
  
   maintaining	
  their	
  health	
  or	
  the	
  health	
  of	
  
   someone	
  they	
  help	
  take	
  care	
  of.	
  

  Social	
  Life	
  of	
  Health	
  Information,	
  Pew	
  Internet	
  and	
  American	
  Life,	
  June	
  11,	
  2009.	
  By	
  Susannah	
  Fox	
  and	
  Sydney	
  Jones.	
  
Decisions	
  &	
  actions	
  impacted	
  
  53%	
  -­‐	
  led	
  them	
  to	
  ask	
  a	
  doctor	
  new	
  questions,	
  
   or	
  to	
  get	
  a	
  second	
  opinion	
  from	
  another	
  
   doctor.	
  	
  
  49%	
  -­‐	
  changed	
  the	
  way	
  they	
  think	
  about	
  diet,	
  
   exercise,	
  or	
  stress	
  management.	
  
  38%	
  -­‐	
  affected	
  decision	
  about	
  whether	
  to	
  see	
  a	
  
   doctor.	
  
  38%	
  -­‐	
  changed	
  the	
  way	
  they	
  cope	
  with	
  a	
  
   chronic	
  condition	
  or	
  manage	
  pain.	
  

   Social	
  Life	
  of	
  Health	
  Information,	
  Pew	
  Internet	
  and	
  American	
  Life,	
  June	
  11,	
  2009.	
  By	
  Susannah	
  Fox	
  and	
  Sydney	
  Jones.	
  
• Use	
  of	
  mobile	
  
  devices	
  is	
  rising	
  
• Blacks	
  and	
  Latinos	
  
  less	
  likely	
  to	
  have	
  
  broadband	
  access	
  
  at	
  home,	
  more	
  
  likely	
  to	
  use	
  mobile	
  
  phones	
  
Are	
  you	
  thinking	
  
                                                                                             socially?	
  




Photo	
  credit:	
  See-­‐ming	
  Lee,	
  via	
  Creative	
  Commons	
  License	
  
Hospitals	
  have	
  started	
  to	
  adopt	
  
  2,259	
  social	
  networking	
  sites	
  as	
  of	
  10/19	
  
   871	
  Hospitals	
  total	
  
      All	
  50	
  states	
  represented	
  
      421	
  YouTube	
  Channels	
  
      679	
  Facebook	
  pages	
  
      648	
  Twitter	
  Accounts	
  
      417	
  LinkedIn	
  Accounts	
  
      94	
  Blogs	
  


         Full	
  list:	
  http://ebennett.org/hsnl/	
  	
  	
  	
  
Mission:	
  Lead	
  the	
  social	
  media	
  revolution	
  
in	
  health	
  care,	
  contributing	
  to	
  health	
  and	
  
       well	
  being	
  for	
  people	
  everywhere.	
  

      Consulting	
         Speaking	
  
          Network	
  Building	
  
      Coaching	
            Training	
  
One	
  story:	
  Twitter	
  leads	
  to	
  diagnosis	
  
and	
  Tx	
  	
  
1.  Mother	
  reads	
  story	
  USA	
  Today	
  re:	
  wrist	
  pain	
  
2.  Tells	
  daughter	
  about	
  news	
  story	
  
3.  Daughter	
  participates	
  in	
  #wristpain	
  tweet	
  
      chat	
  hosted	
  by	
  Mayo	
  
4.     Talks	
  with	
  same	
  doctor	
  from	
  news	
  story	
  and	
  
      reviews	
  Mayo	
  site	
  for	
  information	
  
5.    Makes	
  appointment	
  with	
  doc	
  
6.    Diagnosis	
  made,	
  surgery	
  within	
  24	
  hours	
  
7.    Blog	
  post	
  about	
  experience,	
  which	
  further	
  spreads	
  
      information…	
  	
  
Technology	
  is	
  just	
  a	
  platform;	
  it’s	
  
what	
  people	
  do	
  with	
  the	
  technology	
  
        that	
  makes	
  a	
  difference.	
  




     Are you thinking socially?	
  
                                     Photo	
  credit:	
  The	
  Washington	
  Post	
  Peeps	
  Show	
  IV	
  
How	
  is	
  it	
  used?	
  
To	
  learn	
  
To	
  connect	
  along	
  commonalities	
  
 Patients	
  
 Providers	
  
 Staff	
  
 Constituencies	
  
To	
  share	
  experiences	
  
To	
  share	
  experiences	
  
To	
  make	
  “health	
  thinking”	
  fun	
  and	
  
normative	
  
To	
  host	
  conversations	
  
Full	
  list	
  here:	
  http://bit.ly/dsnQoj	
  	
  
Are	
  you	
  thinking	
  socially?	
  
                            	
  
             (and	
  mobile?)




                                   Photo	
  credit:	
  maistora,	
  via	
  Creative	
  Commons	
  license	
  
“Facebook	
  for	
  doctors”	
  

 • Find	
  office	
  phone	
  or	
  fax	
  for	
  
   virtually	
  any	
  US	
  physician	
  
 • Search	
  for	
  24hr	
  pharmacies,	
  
   hospitals,	
  and	
  labs	
  
 • Locate	
  former	
  classmates	
  
   and	
  residents	
  
 • Exchange	
  private	
  phone	
  
   lists,	
  back	
  lines,	
  and	
  pagers	
  
 • Send	
  HIPAA-­‐compliant	
  text	
  
   messages	
  to	
  colleagues	
  
“[I]ntegrating	
  social	
  media	
  into	
  
health	
  communication	
  campaigns	
  
   and	
  activities	
  allows	
  health	
  
communicators	
  to	
  leverage	
  social	
  
      dynamics	
  and	
  networks	
  to	
  
        encourage	
  participation,	
  
conversation,	
  and	
  community	
  –	
  
 all	
  of	
  which	
  can	
  help	
  spread	
  key	
  
 messages	
  and	
  influence	
  health	
  
               decision	
  making”	
  
What’s	
  next?	
  



            Photo	
  credit:	
  FreeFoto.com,	
  via	
  Creative	
  Commons	
  license	
  
Other	
  resources	
  
  We	
  are	
  Media	
  Presentation	
  for	
  AIDS.gov	
  
   team	
  
  CDC	
  Social	
  Media	
  Kit	
  (pdf)	
  
  Social	
  Media	
  University,	
  Global	
  (SMUG)	
  
   35	
  Social	
  Media	
  Theses	
  
Type	
            Concept	
                             Examples	
  
                  Online	
  journal	
  where	
  
                                                        Talking	
  Points	
  
                  posts	
  are	
  arranged	
  in	
  
                                                        Memo,	
  Disease	
  
                  reverse	
  chronological	
  
Blogs	
           order.	
  	
  Often	
  combines	
  
                                                        Management	
  Care	
  
                                                        Blog,	
  many	
  
                  text,	
  pictures,	
  links,	
  
                                                        newspapers	
  
                  video.	
  
                                                        YouTube,	
  Flickr,	
  
Content	
         Place	
  to	
  organize	
  and	
      del.icio.us,	
  digg,	
  
Communities	
     share	
  content.	
                   SlideShare	
  


                  Online	
  space	
  for	
  open	
      ACOR,	
  
Forums	
          discussion.	
                         PatientsLikeMe	
  
                                                            Adapted	
  from	
  http://is.gd/cWWZ9	
  
Type	
                     Concept	
                                  Examples	
  

Microblogs	
               A	
  very,	
  very	
  short	
  blog.	
     Twitter,	
  Yammer	
  

                           Audio	
  and	
  video	
  
                           recordings,	
  which	
  can	
  be	
   Name	
  your	
  area	
  of	
  
Podcasts	
                 downloaded	
  one	
  by	
  one,	
   interest,	
  and	
  there’s	
  
                           or	
  automatically	
  via	
          likely	
  a	
  podcast…	
  	
  
                           subscription.	
  
                           Online	
  space	
  to	
  build	
  a	
  
Social	
  Networking	
                                                Facebook,	
  
                           personal	
  profile	
  and	
  
Service	
                                                             MySpace,	
  Twitter	
  
                           connect	
  with	
  others.	
  
                           A	
  site	
  that	
  allows	
  users	
  
                                                                      Wikipedia,	
  
Wikis	
                    to	
  enter	
  and	
  edit	
  
                                                                      answers.com	
  
                           content.	
                                    Adapted	
  from	
  http://is.gd/cWWZ9	
  

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Social media and health

  • 1. Social  Media  and  Health   Jodi  Sperber,  MSW,  MPH   October  21,  2010  
  • 2. Before  you  take  notes…   www.slideshare.net/jsperber
  • 3. What  is  it  NOT?  
  • 4. Same  thing,  only  different    Communication  is  always  evolving    Social  media  is  the  latest,  and  perhaps   most  significant,  shift  in  communication    Does  not  replace  other  media  
  • 5. What  is  different?   One            Many   Many            Many  
  • 6. Why  is  this  important?     Dramatic  shift  in  how  information  is  shared     Barriers  to  participation  greatly  reduced       Anyone  has  the  chance  to  be  heard     With  free  tools  and  expanding  platforms,   creativity  beats  $$  
  • 7. Basic  Principles     Participation     Openness     Conversation     Community     Connectedness   Adapted  from  http://is.gd/cWWZ9  
  • 8. Access  to  information  online   Spring  2000   Spring  2009   Access  to   <50%   75%   Internet   Broadband   5%   57%   Seek  health  info   25%   61%   online   Social  Life  of  Health  Information,  Pew  Internet  and  American  Life,  June  11,  2009.  By  Susannah  Fox  and  Sydney  Jones.  
  • 9. Health  is  social     57%  turn  to  Internet  when  they  need  info  and   assistance  in  dealing  with  health  or  medical   issues.     60%  say  information  found  online  affected  a   decision  about  how  to  treat  an  illness  or   condition.     56%  say  it  changed  their  overall  approach  to   maintaining  their  health  or  the  health  of   someone  they  help  take  care  of.   Social  Life  of  Health  Information,  Pew  Internet  and  American  Life,  June  11,  2009.  By  Susannah  Fox  and  Sydney  Jones.  
  • 10. Decisions  &  actions  impacted     53%  -­‐  led  them  to  ask  a  doctor  new  questions,   or  to  get  a  second  opinion  from  another   doctor.       49%  -­‐  changed  the  way  they  think  about  diet,   exercise,  or  stress  management.     38%  -­‐  affected  decision  about  whether  to  see  a   doctor.     38%  -­‐  changed  the  way  they  cope  with  a   chronic  condition  or  manage  pain.   Social  Life  of  Health  Information,  Pew  Internet  and  American  Life,  June  11,  2009.  By  Susannah  Fox  and  Sydney  Jones.  
  • 11. • Use  of  mobile   devices  is  rising   • Blacks  and  Latinos   less  likely  to  have   broadband  access   at  home,  more   likely  to  use  mobile   phones  
  • 12. Are  you  thinking   socially?   Photo  credit:  See-­‐ming  Lee,  via  Creative  Commons  License  
  • 13. Hospitals  have  started  to  adopt     2,259  social  networking  sites  as  of  10/19    871  Hospitals  total     All  50  states  represented     421  YouTube  Channels     679  Facebook  pages     648  Twitter  Accounts     417  LinkedIn  Accounts     94  Blogs   Full  list:  http://ebennett.org/hsnl/        
  • 14.
  • 15. Mission:  Lead  the  social  media  revolution   in  health  care,  contributing  to  health  and   well  being  for  people  everywhere.   Consulting   Speaking   Network  Building   Coaching   Training  
  • 16. One  story:  Twitter  leads  to  diagnosis   and  Tx     1.  Mother  reads  story  USA  Today  re:  wrist  pain   2.  Tells  daughter  about  news  story   3.  Daughter  participates  in  #wristpain  tweet   chat  hosted  by  Mayo   4.  Talks  with  same  doctor  from  news  story  and   reviews  Mayo  site  for  information   5.  Makes  appointment  with  doc   6.  Diagnosis  made,  surgery  within  24  hours   7.  Blog  post  about  experience,  which  further  spreads   information…    
  • 17. Technology  is  just  a  platform;  it’s   what  people  do  with  the  technology   that  makes  a  difference.   Are you thinking socially?   Photo  credit:  The  Washington  Post  Peeps  Show  IV  
  • 18. How  is  it  used?  
  • 20. To  connect  along  commonalities    Patients    Providers    Staff    Constituencies  
  • 23. To  make  “health  thinking”  fun  and   normative  
  • 24.
  • 25.
  • 27.
  • 28. Full  list  here:  http://bit.ly/dsnQoj    
  • 29. Are  you  thinking  socially?     (and  mobile?) Photo  credit:  maistora,  via  Creative  Commons  license  
  • 30.
  • 31.
  • 32. “Facebook  for  doctors”   • Find  office  phone  or  fax  for   virtually  any  US  physician   • Search  for  24hr  pharmacies,   hospitals,  and  labs   • Locate  former  classmates   and  residents   • Exchange  private  phone   lists,  back  lines,  and  pagers   • Send  HIPAA-­‐compliant  text   messages  to  colleagues  
  • 33. “[I]ntegrating  social  media  into   health  communication  campaigns   and  activities  allows  health   communicators  to  leverage  social   dynamics  and  networks  to   encourage  participation,   conversation,  and  community  –   all  of  which  can  help  spread  key   messages  and  influence  health   decision  making”  
  • 34. What’s  next?   Photo  credit:  FreeFoto.com,  via  Creative  Commons  license  
  • 35. Other  resources     We  are  Media  Presentation  for  AIDS.gov   team     CDC  Social  Media  Kit  (pdf)     Social  Media  University,  Global  (SMUG)    35  Social  Media  Theses  
  • 36. Type   Concept   Examples   Online  journal  where   Talking  Points   posts  are  arranged  in   Memo,  Disease   reverse  chronological   Blogs   order.    Often  combines   Management  Care   Blog,  many   text,  pictures,  links,   newspapers   video.   YouTube,  Flickr,   Content   Place  to  organize  and   del.icio.us,  digg,   Communities   share  content.   SlideShare   Online  space  for  open   ACOR,   Forums   discussion.   PatientsLikeMe   Adapted  from  http://is.gd/cWWZ9  
  • 37. Type   Concept   Examples   Microblogs   A  very,  very  short  blog.   Twitter,  Yammer   Audio  and  video   recordings,  which  can  be   Name  your  area  of   Podcasts   downloaded  one  by  one,   interest,  and  there’s   or  automatically  via   likely  a  podcast…     subscription.   Online  space  to  build  a   Social  Networking   Facebook,   personal  profile  and   Service   MySpace,  Twitter   connect  with  others.   A  site  that  allows  users   Wikipedia,   Wikis   to  enter  and  edit   answers.com   content.   Adapted  from  http://is.gd/cWWZ9