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Participatory Health:
The New Game in
Town
 C. Peter Waegemann
 Executive Director, mHealth Initiative
 “One of 20 Most Influential People in Healthcare”
 (HealthLeaders)
               Copyright 2009 mHealth Initiative Inc. Boston.
Impact of Technologies
•   Electricity
•   Automobile
•   TV
•   Computer/Internet
•   Mobile Phone
I’m a new kind of person – I’m a

     Mobile Computer Person
• Wireless Voice Communication
• Texting
• Email
• PDA Functions: Calendar, Notes, Contacts,
  Clock, Weather, Search Functions
• GPS
• Lifestyle Functions: Yoga, eBooks, Music,
  Transportation, Banking, Identification,
  Networking, etc.
Trends of Our Times
Consumers do the work
– Bank tellers
– Travel agents
– Check-in counters at airports
Making Information Available to Anyone
From Sporadic to Continuous Communication
Social Networking
Technology: from Big to Small
From Forced Legacy Systems to “Easy Use
Systems”
From ‘Authority-centric’ Systems to Wiki
Economics
Participatory Health

 Active Participation of
 – People
 – Healthcare providers
 – Wellness providers
 – Public health
 – Health plans and payers
 – Pharmacies, labs, others
Active Participation of People

                •Are encouraged to become active
Whether         participants in their wellness and health

 healthy
                matters

 or ill
                •Change their life style
                • Keep a personal health record
•   Patients
                •Spend personal resources on living
•   Consumers
                healthier
•   Children
                •Research and learn about relevant health
•   Adults      topics
•   Seniors
                • Be involved in cost issues for their
                healthcare and participate in healthcare-
                related cost decisions.
Healthcare Providers

 Medical Networking
 – All provider types
 – Pharmacies, labs, etc.
 – Public Health
 – Health plans and payers
 – Professional networking within your
   hospital or clinic
Three Generations of HIT
                                                       3
                                         Participatory Health
                           2                      Consumers

        1               eHealth              New Communication

Computer-based      5 eHealth Systems      Participants’ Coordination
Patient Records                                    mHealth
                         RHIOs
Document Imaging                           Ecosystem Interoperability
                         PACs
Practice                                    New Financial Systems
                         CPOE
Management
Systems            Medical Communities
                                          Workflow,   workflow,
EDI Messages             EMRs
CHINs                  1998-2009              workflow
   1970-1997                                      2010-2020
What is e-Health?
                               E-Health
       1                2         3              4                 5
 Electronic      Electronic   Electronic     Electronic     E-Public Health
Administrative   Financial     Clinical      Research          Systems
  Systems        Systems      Systems        Systems


Electronic Electronic    Electronic        Population Environmental             Safety:
 Imaging Pharmacy       Health Record       Health       Health                Terrorism
Systems Systems           Systems                                              Alert and
                                                          Health Promotion     Defense

PACs           Document                                        Caregiver Health Processes
                                Electronic
             Imaging-based       Medical
                System           Record
                                Systems
What is mHealth?
♦ Communication-enabled new ways to communicate with
  patients and people
   – Disease management
   – Effective Care Processes
♦ Allowing people to research health topics
   – Physicians
   – People
♦ People and patients to share experiences
   – From “Summary at Visit to ODLs”
♦ Mobile computing at the point of care
♦ Affecting change in the healthcare system
mHealth

           Change in Workflow

                               People’s
                            Involvement in
    Wireless                    Health
Communication and
Computing Devices
                                             New Financial
                                               System
      New Systems:
   Decision-support and
           SPCs                 Trust and Ease of
                                       Use
Problem #1
Patients often see their clinicians only
periodically and for short periods of
time.
They need to remember all health
symptoms and health related events
(observations of daily living – ODLs)
within a very short visit that may be
emotionally laden.
Types of Communication
1.      Patient to provider (pre-engagement)
     a.   General inquiry
     b.   Appointment
     c.   Insurance coverage or cost
2.      Provider-patient interactively
     a.   Appointment confirmation/reminder
     b.   Reason for visit: Agenda
     c.   Referrals and other care management
          communication, e.g. ‘How r u?’
     d.   Other
3.      Patient education
Text Messaging
• In general, fewer than 5% of adults are
  currently able to communicate with their
  providers electronically
• When asked, 62% of adults stated that
  electronic communication would influence
  their choice
• 75% stated they wanted to schedule
  appointments electronically
     • Harris Interactive: Feb. 8, 2007
• 50% of 12 to 24 year olds send or receive
  text messages
     • Ipsos: 2007

                                          Credit: Renee McLeod
Text Messaging
  •   Appointments
  •   Medication reminders
  •   General inquiries
  •   Administrative questions
  •   Non-healthcare related communication
  •   Health promotion
  •   Patient-initiated communication
      – Need to reschedule appointment
      – Need for prescription refill (?)
Problem #2
Physicians and other practitioners
cannot memorize all formularies,
guidelines, protocols, health plan
instructions, or all of new
developments in the scientific body of
medicine.
Easy access at the point of care
 Provide access to web sites through
 smart phone browsers
Accessing Information at the
Point of Care
 Patient health information
 Insurance eligibility information
 Care decision support information
   Formularies
   Guidelines and protocols
   Disease management information
   Access to scientific body of medicine
   Other
Cell Phone as Information Resource
at the Point of Care

  Formularies
  Guidelines and protocols
  Decision support
  Telemedicine guidelines
  Patient’s comments re Web
  Patient directives
Exploding every week
• iPhone has several hundred health and
  medical applications
Problem #3
Physicians and other practitioners
 often provide patient care without
 knowing what has been done
 previously and by whom, resulting
 both in wasteful duplication and in
 clinical decisions that do not take
 into account critical data related to
 patient health.
The Race for
Interoperability
•OSI Level
•Microsoft
•Object Management Group
(CORBAmed)
•DICOM/RSNA: EHI
•HL7
•ASTM E31
•Google
•Others
DIFFICULTIES
                     Interoperability
                       Workflow
                     Documentation

               ity
             bil          ROI
           ra
         peo
        er
     Int
 R
EH
1. Too much
   information
2. No uniform
   arrangement
3. Interoperability                     Composite
                                         Clinical
                                         Dataset
                      Structured Data
                      Elements – Not
              R
            EH




                      Documents
Cell Phone
            Insurance

                                                   Patient Card
                                Provider
                            Interoperability          PHR
1.   Too much information
2.   No uniform
     arrangement
3.   Interoperability                     Clinical Basis
                                             Dataset

                            Structured Data
                            Elements – Not
                   R
                 EM




                            Documents
For over 2,000 years, the                      PHR
     patient was rarely      Concern
                             over
                                           Developments
    informed about the                                                             2010
 medical circumstances.      Internet
 Disease details were left   reliability
to doctors. As recently as                 7 million PHRs
 1965, patients were not                   10 mill. PHR-Lites
 allowed to see medical                    3-4 mill. PPPs
 books in publicly funded                                                      Interoperability
          libraries              Dot.com      20% EMR                     ased     through
                                            Implementation             R-b
                                 bubble                            CC            ecosystems
                                                                Professionally
                                 bursts
                                                                guided
                       13 million                               disease
                       Personal Health           2007-2008      communities
                       Records                                  will support
                                                 Health 2.0:    new
                                    2002-2006
                                                 Disease-       research.
                                    Patient      specific       guidelines
                     1999-2000 support                          and protocols
                                                 Communities
                       Internet     groups
 HIPAA gives the      opens up develop
 patient the right      health
 to a copy of the    information
 medical record
Personal Health Record on the
Phone

•   Interoperability through the patient
•   After the smart card, USB, CD experiences
•   Can use any phone
•   Current projects
Problem #4
How to get physicians, nurses
and other practitioners to
document at the point of care?
Using the CCR as the
base, a clinician can now
dictate or record through
speech recognition – or
with keyboard or stylus




                            This opens up a wide
                            range of workflow
                            options at the point of
                            care
As such recordings will
be integrated over the
next 18 months with
online protocols (new
and existing), a new
process of electronically
enabled care will emerge
EMR on the iPhone




                Credit: Renee McLeod
Problem #5
Is there a way of disease
management that is more effective
and reduces costs?

Answer: Communication-based
Disease Management
Disease Management
Applications
Wonders of better communication
Currently focused on
  Diabetes
  Asthma
  Dermatology
  Preventive care in pregnancy
  Smoking cessation
  Hypertension
30 patients random assignment
Intervention (n=15) received cellphone
software with real-time feedback of blood
glucose levels, displayed medication regimens
and requested additional data needed to
evaluate diabetes management.
Average decrease in A1c for intervention
patients was 2.03%, compared to 0.68% (P <
0.02, one-tailed) for control patients.
 Quinn, CC, Clough, SS, Minor, JM, Lender, D, Okafor, MC, Gruber‐Baldini, A. 
 WellDoc Mobile Diabetes Management Randomized Controlled Trial: Change in 
 Clinical and Behavioral Outcomes and Patient and Physician Satisfaction. Diabetes 
 Technology & Therapeutics. June 1, 2008, 10(3): 160‐168. 
 doi:10.1089/dia.2008.0283.
Teaching, Monitoring, and
Coaching Applications
 New applications in nursing and other
 areas
Changing Communications within Hospitals
  Nurses use mobile technology
    67% of nurses carry two or more mobile
    communication devices Spyglass Consulting, 2008
    88% of nurses had three phone numbers Ascendant Systems, 2008
  Nurses are mobile*
    Walk an average of 3 miles (up to 5) per shift
    regardless of racetrack, corridor, or radial design facility

    Spend 31% of shift in the patient room
    Spend 38% of shift at the nurses station
    Spend 24% on the unit and 7% off the unit

    * Hendrich, A, Chow, M, Skierczynski, BA & Zhenqiang. L. A 36-hospital time and motion
     study: How do medical-surgical nurses spend their time? The Permanente Journal,
     12(3):25-34.
                                  Credit: Renee McLeod, Arizona State
                                               University
Nurses
Nurses need access in real time; they
spend 35% of shift in documentation*
  3% in the patient’s room
  81% at nurses station
  15% on the unit
  1% off the unit
Smart phones can be HIPAA compliant
Smart phones access the secure server
  * Hendrich, A, Chow, M, Skierczynski, BA & Zhenqiang. L. A 36-hospital time and motion
   study: How do medical-surgical nurses spend their time? The Permanente Journal,
   12(3):25-34.
                             Credit: Renee McLeod, Arizona State
                                          University
Professional Communication
 Preferred communication channels for
 lab, pharmacy etc.
 Colleagues
   Specialty-specific communities
Administrative Applications
 Wide range of applications
   Provider – Patient applications
   Staff communication
   With others
 Text v. email
 RFiD: Asset management
   Inventory
   Patient Flow
Financial Applications
 Charge capture
 Providers accessing eligibility info
 Providers sending bills
 Payers in active communication with
 patients and providers
 Online real-time adjudication
Emergency Care in Participatory
Health
  Not starting with a “blank sheet”
  Potential need for record locator system
  Substantial cost reductions expected
TapChart increases Productivity
♦By using TapChart and Palm mobile devices
 SDMSE, has returned more ambulances
 back in-service to the community, in excess
 of 16,500 hours
♦Without having to actually add additional
 units to the streets
What It Takes to
 Save a Life
    ♦Mobile communication
    ♦Care software
    ♦Integration into IS
    ♦Change




Example for eHealthcare of the Future
Population Health Communication
in Participatory Health
 Reporting of disease outbreaks
 Instructing patients
 Bioterrorism
 Surveillance
 Population notifications
 Other
Pharma/Clinical Trials
 Clinical trials
 Patient feedback systems
Future solutions
Hospital policies need to reflect the
constant change in technology
  Understand what you can police and monitor
    Cell phones have cameras and recorders
  Policies must apply to everyone and everyone
  needs to help enforce
  Healthcare facilities (hospitals, ambulatory
  care, etc.) must work with healthcare
  educators
                Credit: Renee McLeod, Arizona State
                             University
What is mHealth?
Bringing the power of the Internet to the mobile user
Patient/consumer to control and manage their essential
health data on mDevice
New communication vehicle for care communication
New applications using disease management applications
at the point of care
Methods to create interoperability in healthcare
Enables integration of all healthcare participants
Interoffice wireless connectivity is a commodity
Much different and bigger than telemedicine or “wireless
hospital applications”
mHealth Community
 Participatory health
 mHealth implementation

 More: www.mhealthinitiative.org
Peter’s Vision
Phone identification
Pre-service automated check-in
Pre-service communication
Care applets guide the clinician
Real-time financial bill submission
Real-time adjudication
Additional fee services by provider
Continuous care communication
What does this mean for
          Providers?

Restructuring is unavoidable
  Solutions are not limited to new technologies
Prepare staff for Participatory Health
Create a mHealth strategy
Balance Solutions and Effect
Hurdles

 Interoperability
 Confidentiality
 Standards
 Coordination of Participants
Wishing You a great time at this seminar
 and a happy transition into the era of
   participatory health and mHealth

C. Peter Waegemann
p.waegemann@mhealthinitiative.org

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Participatory Health: The New Game in Town

  • 1. Participatory Health: The New Game in Town C. Peter Waegemann Executive Director, mHealth Initiative “One of 20 Most Influential People in Healthcare” (HealthLeaders) Copyright 2009 mHealth Initiative Inc. Boston.
  • 2. Impact of Technologies • Electricity • Automobile • TV • Computer/Internet • Mobile Phone
  • 3. I’m a new kind of person – I’m a Mobile Computer Person • Wireless Voice Communication • Texting • Email • PDA Functions: Calendar, Notes, Contacts, Clock, Weather, Search Functions • GPS • Lifestyle Functions: Yoga, eBooks, Music, Transportation, Banking, Identification, Networking, etc.
  • 4. Trends of Our Times Consumers do the work – Bank tellers – Travel agents – Check-in counters at airports Making Information Available to Anyone From Sporadic to Continuous Communication Social Networking Technology: from Big to Small From Forced Legacy Systems to “Easy Use Systems” From ‘Authority-centric’ Systems to Wiki Economics
  • 5. Participatory Health Active Participation of – People – Healthcare providers – Wellness providers – Public health – Health plans and payers – Pharmacies, labs, others
  • 6. Active Participation of People •Are encouraged to become active Whether participants in their wellness and health healthy matters or ill •Change their life style • Keep a personal health record • Patients •Spend personal resources on living • Consumers healthier • Children •Research and learn about relevant health • Adults topics • Seniors • Be involved in cost issues for their healthcare and participate in healthcare- related cost decisions.
  • 7. Healthcare Providers Medical Networking – All provider types – Pharmacies, labs, etc. – Public Health – Health plans and payers – Professional networking within your hospital or clinic
  • 8. Three Generations of HIT 3 Participatory Health 2 Consumers 1 eHealth New Communication Computer-based 5 eHealth Systems Participants’ Coordination Patient Records mHealth RHIOs Document Imaging Ecosystem Interoperability PACs Practice New Financial Systems CPOE Management Systems Medical Communities Workflow, workflow, EDI Messages EMRs CHINs 1998-2009 workflow 1970-1997 2010-2020
  • 9. What is e-Health? E-Health 1 2 3 4 5 Electronic Electronic Electronic Electronic E-Public Health Administrative Financial Clinical Research Systems Systems Systems Systems Systems Electronic Electronic Electronic Population Environmental Safety: Imaging Pharmacy Health Record Health Health Terrorism Systems Systems Systems Alert and Health Promotion Defense PACs Document Caregiver Health Processes Electronic Imaging-based Medical System Record Systems
  • 10. What is mHealth? ♦ Communication-enabled new ways to communicate with patients and people – Disease management – Effective Care Processes ♦ Allowing people to research health topics – Physicians – People ♦ People and patients to share experiences – From “Summary at Visit to ODLs” ♦ Mobile computing at the point of care ♦ Affecting change in the healthcare system
  • 11. mHealth Change in Workflow People’s Involvement in Wireless Health Communication and Computing Devices New Financial System New Systems: Decision-support and SPCs Trust and Ease of Use
  • 12. Problem #1 Patients often see their clinicians only periodically and for short periods of time. They need to remember all health symptoms and health related events (observations of daily living – ODLs) within a very short visit that may be emotionally laden.
  • 13. Types of Communication 1. Patient to provider (pre-engagement) a. General inquiry b. Appointment c. Insurance coverage or cost 2. Provider-patient interactively a. Appointment confirmation/reminder b. Reason for visit: Agenda c. Referrals and other care management communication, e.g. ‘How r u?’ d. Other 3. Patient education
  • 14. Text Messaging • In general, fewer than 5% of adults are currently able to communicate with their providers electronically • When asked, 62% of adults stated that electronic communication would influence their choice • 75% stated they wanted to schedule appointments electronically • Harris Interactive: Feb. 8, 2007 • 50% of 12 to 24 year olds send or receive text messages • Ipsos: 2007 Credit: Renee McLeod
  • 15. Text Messaging • Appointments • Medication reminders • General inquiries • Administrative questions • Non-healthcare related communication • Health promotion • Patient-initiated communication – Need to reschedule appointment – Need for prescription refill (?)
  • 16.
  • 17. Problem #2 Physicians and other practitioners cannot memorize all formularies, guidelines, protocols, health plan instructions, or all of new developments in the scientific body of medicine.
  • 18. Easy access at the point of care Provide access to web sites through smart phone browsers
  • 19. Accessing Information at the Point of Care Patient health information Insurance eligibility information Care decision support information Formularies Guidelines and protocols Disease management information Access to scientific body of medicine Other
  • 20. Cell Phone as Information Resource at the Point of Care Formularies Guidelines and protocols Decision support Telemedicine guidelines Patient’s comments re Web Patient directives
  • 21. Exploding every week • iPhone has several hundred health and medical applications
  • 22. Problem #3 Physicians and other practitioners often provide patient care without knowing what has been done previously and by whom, resulting both in wasteful duplication and in clinical decisions that do not take into account critical data related to patient health.
  • 23. The Race for Interoperability •OSI Level •Microsoft •Object Management Group (CORBAmed) •DICOM/RSNA: EHI •HL7 •ASTM E31 •Google •Others
  • 24. DIFFICULTIES Interoperability Workflow Documentation ity bil ROI ra peo er Int R EH
  • 25. 1. Too much information 2. No uniform arrangement 3. Interoperability Composite Clinical Dataset Structured Data Elements – Not R EH Documents
  • 26. Cell Phone Insurance Patient Card Provider Interoperability PHR 1. Too much information 2. No uniform arrangement 3. Interoperability Clinical Basis Dataset Structured Data Elements – Not R EM Documents
  • 27. For over 2,000 years, the PHR patient was rarely Concern over Developments informed about the 2010 medical circumstances. Internet Disease details were left reliability to doctors. As recently as 7 million PHRs 1965, patients were not 10 mill. PHR-Lites allowed to see medical 3-4 mill. PPPs books in publicly funded Interoperability libraries Dot.com 20% EMR ased through Implementation R-b bubble CC ecosystems Professionally bursts guided 13 million disease Personal Health 2007-2008 communities Records will support Health 2.0: new 2002-2006 Disease- research. Patient specific guidelines 1999-2000 support and protocols Communities Internet groups HIPAA gives the opens up develop patient the right health to a copy of the information medical record
  • 28. Personal Health Record on the Phone • Interoperability through the patient • After the smart card, USB, CD experiences • Can use any phone • Current projects
  • 29. Problem #4 How to get physicians, nurses and other practitioners to document at the point of care?
  • 30. Using the CCR as the base, a clinician can now dictate or record through speech recognition – or with keyboard or stylus This opens up a wide range of workflow options at the point of care
  • 31. As such recordings will be integrated over the next 18 months with online protocols (new and existing), a new process of electronically enabled care will emerge
  • 32. EMR on the iPhone Credit: Renee McLeod
  • 33. Problem #5 Is there a way of disease management that is more effective and reduces costs? Answer: Communication-based Disease Management
  • 34. Disease Management Applications Wonders of better communication Currently focused on Diabetes Asthma Dermatology Preventive care in pregnancy Smoking cessation Hypertension
  • 35. 30 patients random assignment Intervention (n=15) received cellphone software with real-time feedback of blood glucose levels, displayed medication regimens and requested additional data needed to evaluate diabetes management. Average decrease in A1c for intervention patients was 2.03%, compared to 0.68% (P < 0.02, one-tailed) for control patients. Quinn, CC, Clough, SS, Minor, JM, Lender, D, Okafor, MC, Gruber‐Baldini, A.  WellDoc Mobile Diabetes Management Randomized Controlled Trial: Change in  Clinical and Behavioral Outcomes and Patient and Physician Satisfaction. Diabetes  Technology & Therapeutics. June 1, 2008, 10(3): 160‐168.  doi:10.1089/dia.2008.0283.
  • 36. Teaching, Monitoring, and Coaching Applications New applications in nursing and other areas
  • 37. Changing Communications within Hospitals Nurses use mobile technology 67% of nurses carry two or more mobile communication devices Spyglass Consulting, 2008 88% of nurses had three phone numbers Ascendant Systems, 2008 Nurses are mobile* Walk an average of 3 miles (up to 5) per shift regardless of racetrack, corridor, or radial design facility Spend 31% of shift in the patient room Spend 38% of shift at the nurses station Spend 24% on the unit and 7% off the unit * Hendrich, A, Chow, M, Skierczynski, BA & Zhenqiang. L. A 36-hospital time and motion study: How do medical-surgical nurses spend their time? The Permanente Journal, 12(3):25-34. Credit: Renee McLeod, Arizona State University
  • 38. Nurses Nurses need access in real time; they spend 35% of shift in documentation* 3% in the patient’s room 81% at nurses station 15% on the unit 1% off the unit Smart phones can be HIPAA compliant Smart phones access the secure server * Hendrich, A, Chow, M, Skierczynski, BA & Zhenqiang. L. A 36-hospital time and motion study: How do medical-surgical nurses spend their time? The Permanente Journal, 12(3):25-34. Credit: Renee McLeod, Arizona State University
  • 39. Professional Communication Preferred communication channels for lab, pharmacy etc. Colleagues Specialty-specific communities
  • 40. Administrative Applications Wide range of applications Provider – Patient applications Staff communication With others Text v. email RFiD: Asset management Inventory Patient Flow
  • 41. Financial Applications Charge capture Providers accessing eligibility info Providers sending bills Payers in active communication with patients and providers Online real-time adjudication
  • 42. Emergency Care in Participatory Health Not starting with a “blank sheet” Potential need for record locator system Substantial cost reductions expected
  • 43. TapChart increases Productivity ♦By using TapChart and Palm mobile devices SDMSE, has returned more ambulances back in-service to the community, in excess of 16,500 hours ♦Without having to actually add additional units to the streets
  • 44. What It Takes to Save a Life ♦Mobile communication ♦Care software ♦Integration into IS ♦Change Example for eHealthcare of the Future
  • 45.
  • 46. Population Health Communication in Participatory Health Reporting of disease outbreaks Instructing patients Bioterrorism Surveillance Population notifications Other
  • 47. Pharma/Clinical Trials Clinical trials Patient feedback systems
  • 48. Future solutions Hospital policies need to reflect the constant change in technology Understand what you can police and monitor Cell phones have cameras and recorders Policies must apply to everyone and everyone needs to help enforce Healthcare facilities (hospitals, ambulatory care, etc.) must work with healthcare educators Credit: Renee McLeod, Arizona State University
  • 49. What is mHealth? Bringing the power of the Internet to the mobile user Patient/consumer to control and manage their essential health data on mDevice New communication vehicle for care communication New applications using disease management applications at the point of care Methods to create interoperability in healthcare Enables integration of all healthcare participants Interoffice wireless connectivity is a commodity Much different and bigger than telemedicine or “wireless hospital applications”
  • 50. mHealth Community Participatory health mHealth implementation More: www.mhealthinitiative.org
  • 51. Peter’s Vision Phone identification Pre-service automated check-in Pre-service communication Care applets guide the clinician Real-time financial bill submission Real-time adjudication Additional fee services by provider Continuous care communication
  • 52. What does this mean for Providers? Restructuring is unavoidable Solutions are not limited to new technologies Prepare staff for Participatory Health Create a mHealth strategy Balance Solutions and Effect
  • 53. Hurdles Interoperability Confidentiality Standards Coordination of Participants
  • 54. Wishing You a great time at this seminar and a happy transition into the era of participatory health and mHealth C. Peter Waegemann p.waegemann@mhealthinitiative.org