1. The MyStory Journey: Capturing each child’s story to personalize the care we provide
pediatric patients and their families
Evidence strongly supports the importance of capturing the personal story and preferences of a child admitted to an University of Minnesota Amplatz Children's Hospital -­ MyStory Dashboard
Measurement
Pre -­
MyStory Previous Current
Long-­
Term Status vs.
acute care hospital setting. At University of Minnesota Amplatz Children’s Hospital, we have developed an initiative,
Data Source Metric Time Period Data Measurement Measurement Target Target Trend Target
"Hospital workers talk to you?" 1Q 12 96.1% 85.7% 100% 100%
Satisfaction Survey
"Listen when you told them something?" 1Q 12 85.0% 78.6% 93% 100%
"Let you make choices?" 1Q 12 70.0% 67.9% 85% 100%
Children's
"Find ways to make hosp feel like home?" 1Q 12 58.3% 64.8% 79% 100%
called MyStory, that recognizes not just the patient, but the child as an individual.
"When hurting, help you feel better?" 1Q 12 80.0% 83.9% 90% 100%
"Like how they took care of you?" 1Q 12 83.3% 87.5% 92% 100%
*
"Did the Doctors pay enough attention to your experiences and
4Q 11 62.6% 96.9% 86.4% 100%
suggestions in caring for your child?"
NRC Picker Parent Satisfaction
"Did the Nurses pay enough attention to you experiences and suggestion
4Q 11 63.6% 94.9% 88.0% 100%
in caring for your child?"
"Would you have liked more involvement in making the decisions about
4Q 11 67.3% 90.8% 77.3% 100%
your child's hospital care?"
"How much did you participate in your child's care, such as feeding or
4Q 11 93.9% -­ 95.2% 100%
bathing?"
"Was the information about his or her condition discussed with your child
Objectives:
4Q 11 57.6% 96.4% 81.3% 100%
in a way he or she could understand?"
"Did someone explain to your child the tests that were being done in a
4Q 11 64.5% 94.8% 83.3% 100%
**
way he or she could understand?"
Do My Caregivers Know My Favorite Things? Jan 12 -­ Feb 12 41% 53% 60% 75%
Networ
Well
Get
Do My Caregivers Know Things I Don't Like? Jan 12 -­ Feb 12 30% 9% 60% 75%
k
families that will be an Always Event ™
when caring for children — MyStory Evidence-based Key:
Arrow Up = Performance Improving
Arrow Straight = Performance Same
Green = Going Well
Yellow = Monitor
Arrow Down = Performance Declining Red = Requires Mgmt Attention
o MyStory as an Always Event™ is a * Questions taken from Children’s perceptions survey© Lindeke,L., Fulkerson, J., Chesney, M., Johnson, L., Savik, K.
interprofessional effort to capture (2009). Children’s perceptions of healthcare survey. Nursing Administration Quarterly, 33(1), p. 26-31.
** Questions taken from NRC Picker Patient Satisfaction Survey©
each patient’s “story.”
Outcomes:
o Document the “story” in a convenient
tool within the electronic health record.
MyStory The MyStory project outcomes are measured by a number of metrics that
have been put into a dashboard that is formatted to match the clinical
My Story:
(Teen) o Use the patient’s “story” to personalize Personalizing quality and safety dashboard the organization uses.
the care we provide to patients, and Interprofessional Patient & Family
This is to be used as a template only! Give to health care team to enter in EPIC.
Pediatric
My name is: You can call me: Age:
My Story:
My caregiver(s) name(s) are:
to involve them in care planning and
Collaboration Involvement
(School Age) I am from:
decision making. Care
My friends are:
My name is: You can call me: Age:
My favorite hobbies/activities are:
My caregiver(s) name(s) are:
I am from:
I am good at:
My friends are:
patients by learning their story and
In the future, I want to:
This is to be used as a template only! Give to health care team to enter in EPIC.
My favorite toys or things to do are:
My past experience with being sick or coming to the hospital:
My Story:
engaging them in care planning and
I am good at:
When I grow up, I want to be: (Infant and Toddler)
Before a procedure, I need to know:
Draw a picture of what you want to be when you grow up:
decision making.
Transforming the care we provide to children
My name is: You can call me: Age:
My caregiver(s) name(s) are:
I am from:
Special parent requests:
uofmchildrenshospital.org
Tools & Implementation:
My favorite toys are:
I become upset or cry when:
uofmchildrenshospital.org
electronic health record
Things that comfort me are:
You can distract me with:
My past experience being sick or coming to the hospital:
Lessons Learned:
to be used in the outpatient areas:
o Surgery waiting room of this type of initiative is invaluable.
uofmchildrenshospital.org
MyStory is a
navigator/button
on the left
Cheristi Cognetta-Rieke, BSN, DNPc, RN; University of Minnesota Amplatz Children’s Hospital, Minneapolis, MN MyStory is being funded by the Picker Institute as an Always Event ™.