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MAPEDIR Interviewer’s Reference Manual
   Verbal Autopsy Questionnaire for
     Women of Reproductive Age


  Maternal and Perinatal Death Inquiry
   and Response (MAPEDIR) Project



         United Nations Children’s Fund (UNICEF)
                       Delhi, India




                   in association with:

     Johns Hopkins Bloomberg School of Public Health
                   Baltimore, MD, USA




                      May 19, 2008
TABLE OF CONTENTS

     3
About this manual................................................................................................................................ 4
1. What is MAPEDIR?.......................................................................................................................... 4
              Background................................................................................................................. 4
2. Project Organization and Procedures............................................................................................ 6
              Block-level team with district oversight..................................................................... 6
              During your training you will review the death notification format that is used to
                        conduct the initial investigation of deaths of women of reproductive age,
                        as well as the register that supervisors keep to track these deaths and
                        assign suspected maternal deaths to the interviewers. You will also
                        discuss the appropriate waiting period after a death before conducting
                        the MAPEDIR interview. .........................................................................7
3. Interviewer and Supervisor Roles and Responsibilities .............................................................. 7
              Overview of the interviewer’s activities and responsibilities..................................... 7
              Supervisory procedures and approach.........................................................................7
4. Ethical Training................................................................................................................................ 7
              Confidentiality.............................................................................................................8
              Falsification of Data....................................................................................................8
5. Approach to the Household and Selecting the Respondent(s)................................................... 8
              Introducing yourself at the household.........................................................................9
              How to select the best respondent............................................................................... 9
              How to handle multiple respondents...........................................................................9
6. Communication and Sensitivity Issues....................................................................................... 10
              How to approach the respondent...............................................................................10
              Selecting an environment for the interview.............................................................. 10
              Sit at the same level as the respondent(s) and maintain eye contact.........................10
              Build rapport with the respondent(s).........................................................................10
              Language problems................................................................................................... 10
              Not wanting to answer certain questions...................................................................11
7. Conducting the Interview ............................................................................................................. 11
              Materials you will need ............................................................................................11
              General Instructions for completing the MAPEDIR format..................................... 11
              Correcting mistakes...................................................................................................13
              Skip patterns..............................................................................................................14
8. Question-by-Question Instructions for the MAPEDIR Suspected Maternal Death Format ......16
              SECTION 2: Information about the interview..........................................................16
              SECTION 3: Background information from respondents.........................................17
              SECTION 5: Pregnancy history................................................................................19
              SECTION 6: Circumstance of the woman’s death (and the baby’s outcome)..........20
              SECTION 7: Illness complications...........................................................................23
              SECTION 8: Injury...................................................................................................26
              SECTION 9: Careseeking for obstetrical complications that led to the death..........26
9.6 If Action 9.2 was not seeking formal health care, then ask: Did she/the family have any
problems that kept her from seeking formal health at that time? ................................................. 27
9.7 Did she seek formal health care at any time during the fatal illness? .................................... 28
If the first action taken for the illness (Q9.2) was not seeking formal health care, then we ask
here if the woman ever sought formal care. Just as in Q9.2, if they were trying to seek formal
health care, even if they had not yet left the house or were on route to a facility, then mark “1.
Yes.” RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know. SKIP INSTRUCTION: If 2 or 8, go
to Open History. The remainder of Sections 9 and 10 are about the details of formal health



MAPEDIR Interviewers Reference Manual                         May 19, 2008                                                                         2
care. If the woman never sought formal care, then we skip this and go to the open history to
ask about the illness in the respondent’s own words. .................................................................. 28
SKIP INSTRUCTION: STOP: If the woman died before reaching the facility, go to (F1: Open
History / F2 or F3: Section 10). ........................................................................................................ 30
The rest of Section 9 asks about the care the woman received at the facilities she visited. If
you are completing matrix column 1 and she died before reaching facility 1, then go to the
open history to ask about the illness in the respondent’s own words. If she died before leaving
home, then Q9.15, Q9.16 and/or Q9.17 may not apply. For example, if the husband went to look
for a taxi and his wife died while he was out searching, then Q9.15 and Q9.16 would not apply
if he was not able to find a taxi; however, Q9.15 and Q9.16 would apply if he pre-paid for the
taxi but Q9.17 still would not apply. Mark the answers to the relevant questions and then go to
the open history. If you are completing matrix column 2 (or 3) and she died before reaching
facility 2 (or 3), then go to Section 10 to ask if a doctor or nurse told the family the cause of
death. Then continue with the open history. .................................................................................. 30
              SECTION 10: Reported cause of death.................................................................... 31
              10.1Did a doctor or nurse at the health facility tell you the cause of ________’s
                         death?.......................................................................................................31
              Open history..............................................................................................................31
              Supervisor’s certification.......................................................................................... 32
The purpose of this section is to help maintain the quality of the maternal death inquiries. This
is best accomplished by the supervisor participating in every interview that the team
conducts. At least, the supervisor should carefully check the completeness and accuracy of
each completed interview form and discuss the findings with the team members who
conducted the death inquiry. The supervisor must decide how to resolve any identified
problems, including a repeat visit to the household if needed. Once the supervisor is satisfied
with the quality of the completed format, s/he should sign and date the form to certify that it is
correct and complete. ....................................................................................................................... 32
APPENDIX A: INTERVIEWER’S CHECKLIST................................................................................... 33
F. ___ Participate in team meeting (date: ______________).......................................................... 34
APPENDIX B: SUPERVISOR’S CHECKLIST.................................................................................... 35
APPENDIX C: CONSENT FORM........................................................................................................ 37
APPENDIX D: INTERVIEWER’S ROLE PLAY GUIDE....................................................................... 38




MAPEDIR Interviewers Reference Manual                       May 19, 2008                                                                      3
About this manual
The purpose of this manual is to provide MAPEDIR interviewers with the information they need to
conduct systematic, reliable and valid verbal autopsy interviews for maternal deaths. The manual
describes the roles and responsibilities of MAPEDIR interviewers, and provides a question-by-
question guide to the verbal autopsy questionnaire for women of reproductive age.

Interviewers are to use this manual as a reference guide during their training and, as needed, in the
course of their work as MAPEDIR interviewers. The manual also serves as a reference for trainers
and supervisors of the interviewers and for persons who are administering the MAPEDIR project.



1. What is MAPEDIR?
Background
“Maternal and Perinatal Death Inquiry and Response” (MAPEDIR) means to thoroughly examine and
respond to the social, biological and medical events that led to a maternal or perinatal death. Inquiries
are conducted of the deaths that occur in a community over several months time, in order to identify
common factors that can be acted upon to prevent further deaths. Ongoing inquiries over several
years allow a community to assess the impact of its preventive actions and the need for additional
interventions. Death inquiries are conducted in the community using a “verbal autopsy” interview with
the families of deceased persons. This is particularly helpful in areas where many deaths occur
outside of health facilities and for highlighting relevant social factors and health careseeking problems.
Health facilities where many deaths occur also should review the care provided to the women and
children in order to identify medical practices that need to be improved to prevent additional deaths.

Maternal and child death inquiries have been conducted in many settings. Some examples include: 1)
the routine practice of maternal death review by medical practitioners in the United Kingdom over the
past 50 plus years, 2) hospital-based perinatal death reviews encouraged by the American College of
Obstetricians and Gynecologists in the United States, 3) the community and hospital inquiry into all
maternal deaths required by the Sri Lanka Ministry of Health since 1985, 4) the community verbal
autopsy and hospital-based confidential inquiry of maternal deaths encouraged by the Philippines
Ministry of Health, and 5) maternal death reviews supported by the World Health Organization (WHO)
in selected hospitals of Nepal, Bangladesh and Myanmar. In India, the Tamil Nadu Reproductive and
Child Health (RCH) Program has reviewed all maternal deaths and a sample of infant deaths since
2003, the government of Kerala has reviewed all maternal deaths since 2005, and WHO supports
maternal death reviews at Safdarjang Hospital in Delhi and Christian Medical College in Vellore.

The MAPEDIR project
UNICEF is supporting the implementation of MAPEDIR in the context of RCH2, which calls for
increasing community participation in bottom-up health planning and the demand for quality health
care. The goals and objectives of the MAPEDIR project are to:

    1. Sensitize communities to maternal and perinatal health issues, including the need for birth
       preparedness, complication readiness and inquiries into maternal and perinatal deaths;
    2. Identify recent maternal deaths and conduct community-based inquiries with close
       acquaintances of the women;
    3. Share the findings of the death inquiries with communities and help them interpret the data to
       develop appropriate local interventions and advocate for improvements in health care; and
    4. UNICEF also will use the findings of the inquiries to advocate with policy makers for needed
       improvements in health care.

While the MAPEDIR project focuses on community-based death inquiries, UNICEF is partnering with
WHO to support facility-based reviews of maternal deaths. The project is initially focusing on inquiries
of maternal deaths. Perinatal death inquiries will be added in the future.




MAPEDIR Interviewers Reference Manual       May 19, 2008                                                4
The causes of maternal mortality and its prevention
A maternal death is the death of a woman during pregnancy or within six weeks of having an abortion
or giving birth. Most maternal deaths are due to complications directly related to pregnancy, including
severe bleeding (hemorrhage), pregnancy-induced hypertension (eclampsia), severe infection starting
in the reproductive organs (puerperal sepsis), and obstructed labor (which leads to hemorrhage or
sepsis). In India many maternal deaths are due to or hastened by severe anemia, which often results
from a combination of factors, including inadequate nutrition, malaria, and blood loss from
menstruation and prior pregnancies. About 20% of maternal deaths may be caused by pre-existing
conditions such as chronic heart disease or acute illnesses such as malaria that are made worse by
the pregnancy. Deaths that occur during pregnancy but that are not related to the pregnancy itself,
such as accidents, generally are not counted as maternal deaths.

While a biological complication is defined as the cause of death, in fact most maternal deaths result
from a chain of events that includes many social, cultural and medical factors. Some of these can be
prevented even before a woman becomes pregnant, such as by ensuring that she is well nourished
and not suffering from anemia. However, since it is usually not possible to predict which women will
suffer a severe pregnancy or delivery complication, the most effective way to prevent maternal deaths
is to be ready to respond to complications when they occur. This often requires taking action at one or
more of the links in the chain, with a focus on the “three delays” in a woman’s receiving care for a
maternal complication. The following diagram shows where the three delays occur.

                Home                           Sub-        Quality
                                               center



                                                                                                    Non-FRU               Quality
                                                                                                    PHC/CHC

             Onset of                                                                    ay
                                                                                              2
             complication
                                                                 Del
                                                                     ay               Del
                                                                          1
                       De ing t e
                        De eek

                         la
                           s
                           cid car

                               y1




                                                                                                                      1
                                                                                                                  lay
                                                                     Delay 2




                                                                                                                De
                                 o




                                                                                                            2
                                                                                                      lay
                                                                                                    De
                                                                                Delay 3
                                              2
                                        Delay ources                            Receiving
                                             res
                                          ging       e                         quality care
                                     Arran aching th y                                            FRU                Quality
                                       and re te facilit
                                             pria
                                       appro




Social and cultural factors that may contribute to delay 1 include: 1) low education, 2) poverty, 3)
women’s lack of participation in decision-making, 4) not recognizing or understanding the importance
of maternal complications, and 5) using traditional home care and informal providers for maternal
complications instead of formal providers who might be able to save the woman’s life. The second
delay can be due to the time needed to organize funds to pay for transportation or health care, a lack
of transport, poor roads, or long distances to a health facility where the woman can receive
appropriate care. The third delay may be due to a lack of needed drugs, blood, medical or surgical
equipment, or skilled health personnel at the facility. If a woman is referred from a FRU, where she
should be able to receive comprehensive emergency obstetric care, then the third delay also includes
the additional travel and waiting time before she receives adequate care at the referral facility.

During pregnancy, women and families should be sensitized to the need to prepare for the birth of
their child and be ready to deal with any complications that might occur. Such “birth preparedness and
complication readiness” includes planning ahead of time where the woman will give birth, who will
assist with the delivery, and where and how she will seek emergency care if necessary. Having a plan
will enable the woman and her family to respond rapidly should the need arise. Community


MAPEDIR Interviewers Reference Manual              May 19, 2008                                                                     5
participation in planning for safe deliveries will help ensure that women and their families recognize
when emergency care is needed and know where and how to seek this care. Part of the community’s
sensitization to maternal health issues will include being informed about MAPEDIR and why the death
inquiries are needed. During your training as a MAPEDIR interviewer, you will be told about the plans
being made to sensitize your community and share the MAPEDIR findings to be used in developing
effective interventions against maternal mortality.



2. Project Organization and Procedures
Block-level team with district oversight
The MAPEDIR project is organized at the block and district levels. In most states, a death notifier
initially investigates community reports of deaths of women of reproductive age and transmits his/her
findings to the block-level MAPEDIR team supervisor. S/he assesses each report and assigns the
suspected maternal deaths for a MAPEDIR interview. Interviewers in most states have chosen to
work in teams of two, with one serving as the interviewer and the other as the data recorder. They
may switch roles for alternate interviews, so each person serves both as an interviewer and recorder.
The two interviewers and their supervisor comprise the block team. Some states include an additional,
alternate, interviewer and so have a four-person block team. A district official oversees project
implementation in all the district’s blocks. Death reports and completed MAPEDIR interviews are
compiled and analyzed at the district level with technical assistance from UNICEF, and the interview
findings are shared with the community via district and block officials and NGO partners. In some
states, NGOs play a prominent role as well in administering the project and conducting the death
inquiries. The following diagram illustrates the process, which varies somewhat from state to state.


               ANM, AWW, others identify all deaths of
               women of childbearing age (14-49 years)



             Block-level death notifier (e.g., GP secretary)
            does initial investigation of all reported deaths



                           Block CEO (PRI)
                                                                Share analyzed MAPEDIR data
                                                                  with the community (Gram
                                                                Panchayats, VHC, SHGs, etc.)
                                                                      with NGO partners
                               Block MO



                   Block MAPEDIR team supervisor
                     (team investigates suspected
                           maternal deaths)

                            District CMHO
                         analyzes and reports
                                  data


                        District collector / CEO
                                  (PRI)


                           State directorate




MAPEDIR Interviewers Reference Manual       May 19, 2008                                             6
During your training you will review the death notification format that is used to conduct the initial
      investigation of deaths of women of reproductive age, as well as the register that supervisors
      keep to track these deaths and assign suspected maternal deaths to the interviewers. You will
      also discuss the appropriate waiting period after a death before conducting the MAPEDIR
      interview.



3. Interviewer and Supervisor Roles and Responsibilities
Overview of the interviewer’s activities and responsibilities
As a MAPEDIR interviewer, you will represent the project to households in your block. You will inform
bereaved families about the purpose of MAPEDIR and conduct the verbal autopsy interview with the
appropriate family members. Your tasks include:

       Meet with your supervisor to receive your interview assignments for maternal deaths
that have occurred in your block;
       Locate households where a maternal death occurred and visit the families to plan
dates for conducting interviews;
        Conduct verbal autopsy interviews with family members on the appointed dates and
correctly complete the MAPEDIR format;
        Return completed interview forms to your supervisor and discuss and solve any
problems you have encountered;
        Strive for continuous self-improvement of your performance; and
        Maintain the ethical standards of the project and good relations with the community.

Interviewer self-assessment and improvement
One of your responsibilities as a MAPEDIR interviewer is to continually strive to improve your
performance. Your supervisor is also there to assist you in overcoming any problems that occur, but
to make the greatest progress you should always seek to do the best job possible. Appendix A
provides an interviewer’s self-assessment checklist to help you in this task. How to use the checklist
will be discussed during your training as a MAPEDIR interviewer.

Supervisory procedures and approach
Your supervisor will assign suspected maternal deaths to you for interview and provide you with blank
MAPEDIR questionnaires. You must return all completed interviews as well as your completed self-
assessment checklist to your supervisor. The supervisor’s checklist in Appendix B lists other
supervisory tasks and will be discussed during the training. Some of these tasks include:

       Keep a register of adult female deaths;
       Assign suspected maternal deaths for interview;
       Provide needed logistical support to locate and reach the assigned households;
       Observe and critique early interviews (and later interviews as possible);
       Check all completed interview forms for completeness and errors; and
       Hold periodic meetings with the interviewers to discuss and solve problems.

Supervisors should support the interviewers in achieving their full potential as MAPEDIR
interviewers. This means assisting the interviewers whenever necessary and helping them to
overcome problems that they face in completing the interviews. Supervisors will have the
opportunity to practice this approach during the MAPEDIR training.



4. Ethical Training
Part of your training as a MAPEDIR interviewer or supervisor will be on ethical aspects of conducting
research interviews, such as informed consent and confidentiality. This is to ensure that you are



MAPEDIR Interviewers Reference Manual      May 19, 2008                                                  7
aware of the importance of these issues and will maintain the highest ethical standards in your work at
all times. Some important concepts to be discussed during the ethical training are described below.

Informed consent
All potential respondents have the right to determine for themselves whether or not they will
participate in the interview. All respondents must be at least 18 years old, to help ensure that they are
capable of making this decision. Part of your job as an interviewer is to administer “informed consent”
to all potential respondents. This means that you must fully inform them about the MAPEDIR project
and death inquiry before asking any questions; and that after learning all the facts they consent to be
interviewed. Respondent(s) must fully understand the purpose and expected duration of the interview,
the risks and benefits of being interviewed, and their right to not answer any or all questions. All these
and other facts are described in a “consent form,” which you must read and explain to the
respondent(s) before conducting the interview. Each respondent must make their mark on the consent
form, which you will then sign to testify that the person consented to be interviewed. Complete a
separate consent form for each respondent. The consent form is in Appendix C of this manual.

Confidentiality
It is critical that all information obtained from the MAPEDIR interviews remains strictly confidential.
You are not permitted to discuss the findings from an interview, gossip about it, or show your records
to anyone other than your supervisor. Make all entries on the questionnaires yourself. Do not leave
your verbal autopsy forms lying around where unauthorized persons may have access to them.

Maintaining confidentiality is an ethical responsibility that we all share. It is necessary to protect the
respondents from any repercussions that might occur as a result of the information they have
provided. It is also necessary to maintain the trust of the community and assure that people will be
willing to talk openly to us about the maternal deaths. The project will share the interview findings with
the community but never in a way that reveals which information came from which person or family.

Falsification of Data
Your job as a MAPEDIR interviewer will not always be easy. There may be times when you have to
visit a household more than once to meet with the best respondent. The interview will often take one
hour or longer to complete. Many of the questions seek sensitive information that may appear to
reflect badly on care provided to women by their families and sometimes by the health system. All
these conditions can lead to temptations to falsify data in order to quickly complete the interview and
not record painful facts. However, you must never falsify your work. The whole purpose of the
MAPEDIR project is to collect and share information with the community that can be used to prevent
maternal deaths. This will be possible only if the information collected is truthful. It is your
responsibility to assure that you maintain this standard. You should work as a MAPEDIR interviewer
only if you are certain you can accomplish this.



5.      Approach to the Household and Selecting the
        Respondent(s)
The MAPEDIR interview is best conducted with the one or a few persons who were with the woman
during her fatal illness and death. However, when approaching a household in a rural village you are
likely to be met by a crowd of interested persons. Once inside the yard or the house several neighbors
and family members who know little about the woman’s illness may want to participate in the interview
or just observe. You must manage this situation effectively and sensitively in order to ensure that you
interview the most knowledgeable person(s) and that the others are not offended. These issues will
be discussed during your training, and you will have the opportunity to role play some situations
(found in Appendix D) that you might face during your work. Following are some suggestions.

Manage the scene and gain the trust and cooperation of households
Consider working with a local respected person (e.g., schoolteacher, village leader) to pre-arrange the
meeting and/or to accompany the interview team to the household.




MAPEDIR Interviewers Reference Manual       May 19, 2008                                                  8
In order to have respondent’s cooperation and obtain complete and accurate data, you must first gain
the trust and confidence of the household. You can do this by making a good impression and
conducting yourself in a professional, but also friendly manner.

Understand the project
If you are knowledgeable about the project and your responsibilities respondents will be more likely to
trust you and participate. You should be able to answer any questions that household members may
ask about the purpose of the project and how the information they share will be used.

Emphasize the confidentiality of the information
You must assure participants that their responses will be held in strictest confidence. No information
will ever be released to anyone outside the project in a way that reveals who provided the information.

If a household member or respondent hesitates to cooperate because of confidentiality concerns, you
should fully explain how confidentiality will be maintained. Explain that no names will ever be revealed
and that the information from all interviews will be combined in a report for district and national use.

Introducing yourself at the household
This is a very sensitive time for the family so it is important that you be polite and sensitive when
introducing yourself. Be sure to state the purpose and confidential nature of the interview—these are
key elements to gaining the family’s cooperation. An example is provided below:

    My name is [say your name]. I am a nurse/_____ in the _____ center, and an interviewer with
    the MAPEDIR Project. I have been informed that a woman in your household died. I am very
    sorry to hear this. Please accept my sympathy. In order to improve health care in our district,
    we are collecting information on recent deaths of women in this area. I would like to talk to
    the person in your house who took care of [say the woman’s name] during her illness before
    death. I assure you that any information you or your family provide will be kept confidential.

How to select the best respondent
The respondent is the main person that will provide information about the deceased. S/he should be
the one who was with the woman during her illness. Usually, the woman’s husband, mother, sister or
mother-in-law is the preferred respondent for a maternal death. In some cases more than one person
will have taken care of the woman or been present during different stages of the illness. For example,
the woman’s mother may have attended the birth at home, while the woman’s husband may have
accompanied her to the hospital after the birth. All respondents must be at least 18 years of age.

What to do if the potential respondent(s) is away or lives elsewhere
If the person(s) who appear(s) to be the best respondent is not available when you first visit the
household, try to make an appointment to return when they will be at home. If no one is at home when
you visit the house try to ask a neighbor when you might be able to find family members at home.
Then leave a message indicating that you plan to return at this time. In either case, make a note of
this return date in your notebook.

Sometimes the best respondent(s) may have moved to another village. In this case, you should
discuss the situation with your supervisor, who will decide if you should travel to the other village or if
help needs to be sought from the MAPEDIR team in another block.

How to handle multiple respondents
As discussed above, there may be instances when you need more than one respondent to get the full
story of the woman’s illness. If you interview these persons together it should be clear as to who is the
respondent for which stage of the illness. More than one person answering the same question can
lead to confusion and greatly lengthen the interview.

Some persons who were not with the woman during her illness may insist on attending the interview
or even on being the respondent. For example the woman’s husband or mother might not let the sister
talk to you alone, even if she took care of the woman during the illness. Or, the respondent may have
children to care for who distract her attention from the interview. Lastly, having a visitor at the
household can attract many other unwanted people to observe the interview. In these cases it is
important to stress to the respondent the importance of confidentiality and privacy. You can try:



MAPEDIR Interviewers Reference Manual        May 19, 2008                                                     9
   Suggest moving to a different location
       Ask some of the bystanders to leave and come back once the interview is finished.
       Reschedule a time to come back and finish the interview



6. Communication and Sensitivity Issues
Effective communication with the respondent is of key importance in obtaining high quality
information. As a MAPEDIR interviewer, you will interact with bereaved relatives of women who have
recently died. In addition to mastering basic communication techniques, you need to be sensitive to
the emotions of these bereaved persons and know how to handle difficult situations that might arise
during the interview. You will role play some of these situations (in Appendix D) during your training.

How to approach the respondent
Always have a positive approach. Do not use phrases such as: “Are you too busy?” or “Can you spare
an hour?” Such questions invite refusal before you start. Instead, begin by restating condolences for
the death and say: “I would like to ask you a few questions.” or “I would like to talk with you for a few
minutes.” Just as when approaching the household, state the purpose of the interview and its
importance for helping the community; and stress the confidential nature of the interview.

However, if a respondent insists that s/he does not wish to talk to you, do not argue. Instead, ask
her/him for another day or time when s/he would be available to participate in the interview. Answer
any questions the respondent asks frankly and to the best of your knowledge.

Selecting an environment for the interview
It is best to conduct the interview in a private location where you and the respondent(s) can be alone.
However, it is to be expected that other family members may be present during the interview. In cases
where complete privacy is not possible, try to limit the number of outsiders present.

Basic communication techniques
Sit at the same level as the respondent(s) and maintain eye contact
Always look at the respondent when administering the interview. Remember, this is a difficult time for
the respondent and they must feel comfortable with you in order to complete the interview.

Build rapport with the respondent(s)
Try to build rapport with the respondent(s) before discussing the case of the deceased. For example,
if culturally appropriate, you may ask the respondent what work s/he does, or ask about her/his family.

Encourage speech, listen actively, no not rush, nod your head
These are ways of showing the respondent that you are interested in what s/he is saying, and will
encourage her/him to continue.

Be non-judgmental
Some of the respondent’s answers may lead you to feel that s/he contributed to the woman’s death,
for example, by not taking her for health care quickly enough. However, you must not transmit this
message in any way because it will discourage the respondent from providing truthful answers. The
success of the MAPEDIR project depends on all of us taking this non-blaming approach. The idea is
for us and the community to learn what we can do together to prevent maternal deaths. This can only
be accomplished by working together without blaming individuals for the deaths.

Language problems
If you encounter any language difficulties, for example, if you anticipate that a respondent speaks a
different dialect than you do, talk to your supervisor beforehand.

Bereaved respondents and sensitivity issues
Persons who are mourning the death of a loved might have several emotional responses that could
interfere with the interview. These might include the following, some of which are discussed below:




MAPEDIR Interviewers Reference Manual       May 19, 2008                                                10
   Becoming sad or upset
       Getting offended or angry
       Being wary or suspicious of the entire interview or certain questions
       Not wanting to answer certain questions for unstated reasons

Sadness, tearfulness
First, be sure to express your sympathy and condolences for the respondent’s loss before starting the
interview. It may also help respondents to know that the health program and community will use the
MAPEDIR data to help improve care for other women. If a respondent begins to cry or have great
difficulty in answering questions because s/he is overcome with emotion, you should pause and offer
a tissue for tears. Acknowledge how difficult it must be to answer the questions, give the respondent
time to regain their composure, and ask if s/he can continue at this time. If the respondent chooses
not to continue, attempt to reschedule the interview.

Anger
A respondent may be angry at the health program if s/he feels that an individual health worker or the
health program in some way contributed to the death. The respondent might direct this anger at you if
s/he sees you as a representative of the health program. Another possibility is that a respondent may
blame a relative or neighbor for the woman’s death if, for example, s/he feels that this person did not
provide help that was needed. This anger could also come out during the interview. If this happens, let
the person express their anger. Then, again express your condolences for their loss and acknowledge
that you understand that they blame the particular person or the health program. (Never state that you
agree with them, just that you understand that this is their feeling.) Last, again explain that the
purpose of the MAPEDIR interviews is to learn more about the problems that lead to maternal deaths
and to help the community work together to overcome these problems.

Not wanting to answer certain questions
There could be several reasons that a respondent does not want to answer certain questions. A
question may rekindle painful memories; it may ask about a topic that is particularly sensitive for the
respondent; the respondent may feel that they personally did not do enough to help the woman and
that the answer to the question would reflect badly on them, etc. Whatever the reason, you must
never demand or even ask a respondent to answer a question that they have told you they do not
want to answer. As stated in the informed consent statement, respondents’ participation is totally
voluntary and they have the right to refuse to answer any or all questions. It should not be a problem
for the interview if a respondent refuses to answer only a few questions. However, many refusals will
compromise the quality of the interview. You should make a note about any reasons you think might
be leading to the respondent’s reluctance and discuss such cases with your supervisor.



7. Conducting the Interview
Materials you will need
Interviewers will be provided the materials listed below to help them perform their duties. Make sure
that you secure them in a safe place in your home when you are not working to prevent loss, damage,
or any unauthorized person seeing information that is recorded on the MAPEDIR forms.

       MAPEDIR interviewer identification card (be sure to wear it where it can be seen)
       This manual, MAPEDIR Interviewer’s Reference Manual
       Interviewer’s self-assessment checklist
       Blank MAPEDIR maternal death verbal autopsy formats
       Pencils or pens for writing, and erasers
       Bag for carrying forms and other materials.

General Instructions for completing the MAPEDIR format

    1. Instructions to the interviewer always appear in italic print. Do not read the instructions to the
        respondent. They are for your use only.



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2. Some symbols and abbreviations are used in the format that you need to understand. The
       symbols and abbreviations and their meanings are: Q (question), DK (don’t know), #
       (number), < (less than), and = (equals).

    3. Many questions include a blank, like this: ________. Wherever this appears, state the name
       of the deceased woman.

    4. Read all questions exactly as they are written so that all respondents are asked questions in
          the same way. Read slowly and clearly so the respondent understands. Allow the respondent
          to think about the question before recording their answer. Note that respondents may tend to
          give answers that they think will please the interviewer. Do not show any surprise, approval or
          disapproval of the respondent’s answer by the tone of your voice or facial expression.

    5. If the respondent doesn’t know the answer to a question or looks uncomfortable with the
       question, you can try “probing” to get an answer. This means asking other questions similar to
       the subject material to try and help the respondent remember certain events. For example, if
       the respondent cannot remember who assisted the woman with the birth in the home, you
       might try “probing” by asking: “Who was in the room at the time of delivery?” Use your
       judgment when probing. Remember, this is a very sensitive time for the respondent and we
       do not want to upset them further.

    6. A few questions include words within parentheses and also before or after a slash mark. For
          example “What did the (facility/provider) do for her problem?” Read the correct word or words
          for the situation. Another use of the slash mark is the expression “she/the family.” Read this
          as “she,” “the family” or “she or the family,” depending on which is correct for the situation.

    7. Most questions allow only one response and include one large box to record the number of
          the response. The below provides an example where the answer to the question is “2. No.”

4.10       Does the house have electricity?              1. Yes
                                                         2. No                                            2
                                                         8. Don’t know


    8. Questions that allow multiple answers provide a small box for each possible response. Follow
          the instructions and tick (√) all of the respondent’s choices. In the first example below, the
          interviewer is instructed only to check all answers that the respondent gives; in the second
          example, the interviewer is told to prompt for additional responses. Do this by asking if there
          was “anything else” after the respondent has given their initial response.

What                                              9.15                     9.28                      9.41
transportation     1. Walk.....................   1.  If only walk, go    1.  If only walk, go     1.  If only walk, go
method was used    2. Rickshaw/cart......         2.        to Q9.17      2.        to Q9.30       2.        to Q9.43
to take her there? 3. Bus......................   3.                      3.                       3. 
                   4. Taxi/auto/trecker. .        4.                      4.                       4. 
Multiple answers   5. Ambulance...........        5.                      5.                       5. 
allowed. Check all 6. Other....................   6.                      6.                       6. 
that apply.        8. Don’t know...........       8.                      8.                       8. 
                   9. Could not arrange           9.                      ------                    ------


 4.12.1   Please tell me the benefits of the card.         1.   Subsidized ration             1. □
                                                           2.   Kerosene oil                  2. □
          Prompt: Is there anything else?                  3.   Housing                       3. □
                                                           4.   Health care                   4. □
          Multiple answers allowed. Check all              5.   Referral transport            5. □
          choices that the respondent mentions.            6.   Other                         6. □


    9. Responses in units of time, distance or cost are recorded in blank spaces. If the answer
          requires fewer spaces than are provided, put a “0” in any unfilled spaces. For example:


MAPEDIR Interviewers Reference Manual                May 19, 2008                                                            12
How far is it from…                         9.14 …home to fac 1?   9.27 …facility 1 to 2? 9.40 ..facility 2 to 3?

                                             _0_ _2_ _3_ km          __ __ __ km            __ __ __ km
                                            (<1=000; DK = 888)     (<1=000; DK = 888)      (<1=000; DK = 888)

        Always record the completed number. For example, the below woman may have been in
        labor for 15 hours and 45 minutes, so she completed 15 hours of labor. Also note that you
        should record “00” for any answer that is less than 1.

7.11     How long was she in labor?                                           _1_ _5_ Hours
                                                                          (<1 hour = 00; DK = 88)

    10. Section 9 (and questions 7.18.1 and 7.19.1) includes time questions that can be answered
        with more than one unit. Again, put a “0” in any unfilled spaces, as in the example:

 How long was she at this facility?         9.22                   9.35                   9.48
                                              _0_ _1_ Days            __ __ Days              __ __ Days
 [Mark Days, Hours and/or Minutes as
                                              (DK = 88)               (DK = 88)               (DK = 88)
 needed.
 Example: 01 day, 05 hours and 30
 minutes;                                     _0_ _5_ Hours          __ __ Hours             __ __ Hours
 Example: 02 days, 03 hours and 00            (DK = 88)               (DK = 88)               (DK = 88)
 minutes]
                                             _3_ _0_ Minutes        __ __ Minutes           __ __ Minutes
                                             (DK = 88)               (DK = 88)              (DK = 88)

    11. Some questions, as in the above examples, require you to enter the digit “8” in all the
        response boxes or spaces if the respondent does not know (DK) the answer, like this:

 7.11    How long was she in labor?                                          _8_ _8_ Hours
                                                                           (<1 hour = 00; DK = 88)

    12. Answers that request more specific information provide a box or space for this purpose. Write
        the respondent’s answer in the box or space. For example:

 7.24.1 If 1. Yes, specify:


    13. Do not make any stray marks on the questionnaire. Always mark answer boxes in one of the
        ways shown above, entering either a number, tick mark (√) or specific response, as
        appropriate for the particular question. Do not mark any answer boxes with an “X” to show
        that this is not the answer. Just leave a box blank if the associated answer does not apply.

Correcting mistakes
If you make a mistake when marking your answers do not erase the information. Instead, cross it out
neatly with one line so the original entry can still be read, and then mark the correct answer. Write
your initials next to the correction, so anyone who later examines the completed format will know who
made any changes in the answers. Corrections can be made only by the designated interviewer.

In the following example, the interviewer wrote “1” for “Yes” by mistake. She crossed out the “1” with
one line, recorded the correct answer and wrote her initials next to response box.

1. Yes
2. No                             2    RS
8. Don’t know
                              1



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Here is an example of how to correct an answer for a question that allows multiple responses.
1. She was not sick enough to need health care
2. No one was available to accompany her                          √      RS
3. She had to attend to household duties                          √
4. Transportation not available                                   √

Skip patterns
Required skips are indicated by an “If…” statement with a possible response choice that points to
where you should go. For example, the following indicates to skip over question 4.5.1 if the answer to
question 4.5 = 1, 3 or 8.



                                                                                                 
 4.5       Was the main breadwinner…                 1.   fully employed?
                                                     2.   seasonally employed?
           [Read the choices to the respondent]      3.   unemployed
                                                     8.   Don’t know                   If 1, 3 or 8, go to Q4.6
 4.5.1     If seasonally employed (2), ask:
           About how many months per year did s/he work?
                                                                                             __ __ Months
                                                                                           (<1 = 00; DK = 88)


                                                                                                 
 4.6       What is the family’s religion?            1.   Hindu
                                                     2.   Muslim
                                                     3.   Christian
                                                     4.   Other
                                                     8.   Don’t know

Also note that the question numbers are designed to help you follow the skip pattern. In the above
example, question numbers 4.5 and 4.5.1 start the same because they are closely related.

The major skip patterns in the questionnaire include:

          Question 3.6 determines if the deceased woman was pregnant or within 6 weeks after a
           pregnancy ended. If not, then you skip over most of the rest of the interview to Section 10.



                                                                                                      
 3.6       Was she pregnant at the time of death, or did she     1.               Yes,
           die within 6 weeks after a pregnancy ended?              pregnant or within 6
                                                                    weeks after a
           [If the respondent is uncertain, then discuss that       pregnancy ended              If 2 or 8, go to
           the pregnancy could have been ended by an             2. No                              Section 10
           abortion, stillbirth, delivery of the baby, or the    8. Don’t know
           woman’s death]


          In Section 6, you determine whether this was an abortion, antenatal or labor and delivery
           death. The instructions will guide you to the correct questions. For example, question 6.5
           determines if this was an abortion death. If not, then you would skip the following questions,
           which are about the details of an abortion, and go to question 6.9 to determine whether this
           was an antenatal death.



                                                                                               
 6.5       Did she die while having an          1.               Yes,
           abortion or within 6 weeks after        during an abortion
           having an abortion?
                                                2.               Yes,
                                                                                         If 1, go to Q6.6
                                                   within 6 weeks after an
                                                                                 If 3 or 8, go to Q6.9 (Antenatal)
                                                   abortion
                                                3. No
                                                8. Don’t know

           If this was an abortion death, then you would continue with questions 6.6 to 6.8, where you
           would be told that this was an abortion death and to go to question 7.17.




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
 6.8        If the abortion was spontaneous, ask:      1. No one (completed
            Who completed the abortion?                    spontaneously)
                                                       2. Herself
            If the abortion was induced or don’t       3. Relative/friend         This was an abortion death.
            know, ask:                                 4. Dai
            Who performed the abortion?                5. Quack                      After answering Q6.8,
                                                       6. ANM                              go to Q7.17
            [Record the highest level provider         7. Nurse
            mentioned]                                 8. General doctor
                                                       9. Obstetrician
                                                       10.Other
                                                       88. Don’t know

            Similarly, the instructions for other questions will tell you if this was an antenatal or labor and
            delivery death and where to go to find the relevant questions.
           Section 7 has blocks of questions for abortion, antenatal and labor and delivery deaths. Some
            blocks are for one type of death, and others are for more than one type. For example, the
            following instruction between questions 7.10 and 7.11 tells you to ask the next questions only
            if this was a labor and delivery death.


 Ask Q7.11 – 7.16 for Labor and Delivery deaths.

            If it was not a labor and delivery death, then you would skip to the next block of questions to
            determine if they are relevant for the type of death you are interviewing at that time.
           In Section 9, after question 9.24 you may need to “skip” to question 9.25 on the previous
            page, and after question 9.37, you may need to “skip” to question 9.38 on the previous page.
            These questions are on the previous page due to the matrix format of Section 9. The matrix
            starts like this…

           – MATRIX QUESTIONS –                    FACILITY 1            FACILITY 2              FACILITY 3

 After (deciding to seek care/she was       9.12 …home to fac1?     9.25 …facility1 to 2?   9.38 …facility2 to 3?
 referred), how long did it take to make
 the arrangement to go from…
                                                   __ __ Days           __ __ Days              __ __ Days
                                                 (DK = 88)            (DK = 88)               (DK = 88)
 [Discuss that this includes the time
 needed to arrange for transportation            __ __ Hours           __ __ Hours             __ __ Hours
 and the money to pay for this and the           (DK = 88)            (DK = 88)               (DK = 88)
 woman’s health care.]

 [Mark days, hours and/or minutes as
 needed.
 Example: 01 day, 05 hours and 30                __ __ Minutes        __ __ Minutes           __ __ Minutes
 minutes;                                     (DK = 88)               (DK = 88)              (DK = 88)
 Example: 00 days, 02 hours and 10
 minutes]


            and ends like this…

 If she was taken to another                …go to Q9.25          …go to Q9.38
 facility…                                  (start of Facility 2) (start of Facility 3)

           Also in Section 9, after questions 7, 17, 23, 30, 36 and 43, you must either continue with the
            next question or skip to Section 10 depending on the answer.




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8.      Question-by-Question Instructions for the MAPEDIR
        Suspected Maternal Death Format
SECTION 1:      Available background information (to be filled out before the interview)

Section 1 should be complete when you receive the format from your supervisor. It provides
background information that was gathered by the death notifier, which you should use to help locate
the correct household where a suspected maternal death occurred.

1.1     Name of deceased woman
        Knowing the woman’s name will help you locate the correct household for the interview and to
        communicate about the woman with the people you meet at the household.

1.2     Address of woman’s usual residence
        This is the deceased woman’s residence address.

1.3     Where did she stay during her fatal illness?
        ONE ANSWER WILL BE RECORDED: 1. her own home (other than with her in-laws); 2. her
        in-law’s home; 3. her parents’ home; 4. formal health facility where she (aborted/labored and
        delivered); 5. other (specify); 8. Don’t know. This is where you must go to complete the
        interview since the best respondent(s) are the people who were with her during the illness.

1.4     What is the address of this place (where she stayed during her fatal illness)?
        This is the address of the place in Q1.3 where you must go to complete the interview. If the
        woman stayed at her usual residence during the illness, then the answer will be the same as
        in Q1.2. This is also the basis for the woman’s identification number that you must write at the
        top of each page of the questionnaire. If any of the pages become separated, this number will
        allow the proper pages to be put back together. This will also be the woman’s identification
        number for the computer record of the MAPEDIR interview.

1.5     Name of head of household of this place (where she stayed during her fatal illness)
        Knowing the name of the head of the household will help you locate the correct household.

1.6     Relationship of head of household of this place (where she stayed during her fatal
        illness) to the woman
        Knowing the relationship of the head of the household to the woman will help you locate the
        correct household.

1.7     Date of woman’s death
        The day, month and year should be recorded. This can also help you locate the correct
        household and ensure that you conduct the interview about the correct woman.

1.8     Date of death notification
        This is the date that the death notifier gathered the information on the cover sheet.

1.9     Key informant’s name
        This is the person who reported the woman’s death to the death notifier. S/he may be able to
        help you locate the household where the woman stayed during her illness.

SECTION 2:      Information about the interview

2.1     Interviewer’s name
        RECORD YOUR NAME IN THIS SPACE.

2.2     Interviewer’s designation
        RECORD YOUR REGULAR WORK POSITION, SUCH AS ICDS SUPERVISOR or ANM.

2.3     Recorder’s name
        WRITE THE RECORDER’S NAME FOR THE INTERVIEW IN THIS SPACE.


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2.4     Recorder’s designation
        WRITE THE RECORDER’S REGULAR WORK POSITION, SUCH AS NGO SUPERVISOR.

2.5     Date of first interview
        RECORD THE DATE OF THE FIRST INTERVIEW FOR THIS DEATH.

2.6     Date of last interview
        RECORD THE DATE OF THE LAST INTERVIEW FOR THIS DEATH. The interview might
        take more than one visit if, for example, you need to return to complete the interview with one
        respondent or if you need to interview a second respondent to get the full story.

SECTION 3:      Background information from respondents

INSTRUCTION: Introduce yourself and the purpose of your visit. Say that we are trying to improve the
care of women and children. Ask to speak to the person(s) who knows the most about the
circumstances of the woman’s death. This might be her sister, mother, mother-in-law or other person.
In some cases you may need to speak with more than one person to learn about different stages of
the illness. If someone you need to speak with is not available, arrange a time to return when s/he will
be home. Read the consent form to the respondent(s) and ask for her/his participation. Each
respondent must consent to be interviewed.

This instruction is a brief reminder of how to introduce yourself to the household and respondent(s).
Sections 5 and 6 of this manual provide more information on this topic. This is the time when you
must read the informed consent form to the potential respondent(s), invite them to make their mark,
and sign the form to testify that they consented to be interviewed. Any person who does not consent
should not be included in the interview. If no potential respondent(s) consent to be interviewed, then
you must stop the interview at this point.

3.1-3.3 Relationship of the respondent(s) to the deceased woman, and when they were with
        her during her fatal illness.
        Use one row (3.1-3.3) for each respondent. Record the respondent’s relationship to the
        woman, such as her husband or sister. Then ask each respondent when (during the
        pregnancy, during the (labor and delivery/abortion), when she died) they were with her. It is
        best for a person to be the respondent only for stage(s) of the illness when they were actually
        with the woman. Remember, each respondent must be at least 18 years old. RECORD ONE
        ANSWER: 1. Yes; 2. No for each stage for each respondent.

The rest of Section 3 is where you decide whether or not the woman died a maternal death. This will
determine whether you complete the entire interview or just the cause of death and open history
sections at the end of the format. Begin by reading the following statement, which will help maintain
the flow of the interview.

Read: First I would like to ask you about the circumstances of ________’s death.
Remember to say the woman’s name where the blank appears.

3.4     What was ________’s age at the time of death?
        Young girls and older women are more likely to die from a maternal cause than women in
        their 20’s and 30’s. Even if the respondent does not know the woman’s exact age it can help
        to know her approximate age. INSTRUCTION: Estimate if not known exactly. RECORD THE
        EXACT OR ESTIMATED AGE IN COMPLETED YEARS. Don’t know = 88.

3.5     Where did she die?
        If the woman died at a health facility, you will ask for the name and address of the facility in
        Section 9 of the interview. RECORD ONE ANSWER: 1. Home (her, relative’s, friend’s,
        informal provider’s); 2. Hospita/Other formal health facility; 3. On route to a formal health
        facility; 4. On route to home from a health facility; 5. Other; 8. Don’t know.




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3.6     Was she pregnant at the time of death, or did she die within 6 weeks after a pregnancy
        ended?
        INSTRUCTION: If the respondent is uncertain, then discuss that the pregnancy could have
        been ended by an abortion, stillbirth, delivery of the baby, or the woman’s death. The answer
        should be “Yes” if the woman died at any time during pregnancy or within 6 weeks after a
        pregnancy ended. This includes during pregnancy, during or after labor and delivery (of a live
        infant or a stillbirth), and during or after a spontaneous or induced abortion, including an MTP.
        As instructed, discuss any situation about which the respondent is uncertain, to help ensure
        that the answer is correct. MARK ONE ANSWER: 1. Yes, pregnant or within 6 weeks after a
        pregnancy ended; 2. No; 8. Don’t know. SKIP INSTRUCTION: If 2 or 8, go to Section 10. If
        Section 10 or the open history indicate this was a maternal death, then return to Section 4.

SECTION 4:      Information about the woman and her family

4.1     How many years of school did _________ complete?
        Women with fewer years of schooling generally have poorer health and their babies are less
        healthy than those of more educated women. RECORD THE NUMBER OF YEARS. Less
        than 1 year = 00; Don’t know = 88.

4.2     At the time of her death, was she…
        INSTRUCTION: Read the choices to the respondent. Unmarried girls and women have less
        access to resources and so are more likely to die if they have a pregnancy complication.
        Unmarried girls are also more likely to have an unsafe illegal abortion. RECORD ONE
        ANSWER: 1. married; 2. widowed; 3. divorced or separated; 4. single (never married); 8.
        Don’t know. SKIP INSTRUCTION: If 4 or 8, go to Q4.3. (The next two questions are asked
        only if the woman was ever married.)

4.2.1   What was _________’s age when she (first) married?
        INSTRUCTION: Try to determine before starting the interview if the woman was married one
        time or more. Read “first” if she was married more than once. Some girls may marry when
        they are very young but continue to live with their parents. In such cases, we consider her to
        be first married when the marriage is consummated. Getting married early leads to having the
        first pregnancy when young. This increases the risk of suffering a maternal death. RECORD
        THE ANSWER IN YEARS. Don’t know = 88.

4.2.2   How many years of school did her husband complete?
        Families where the husband had less schooling usually have fewer resources than other
        families. This can make it more difficult to raise the funds needed to deal with an emergency,
        so might increase a woman’s risk for maternal death. RECORD THE ANSWER IN YEARS.
        Less than 1 year = 00; Don’t know = 88.

4.3     Who was the main breadwinner in her family?
        RECORD ONE ANSWER: 1. Husband; 2. Herself; 3. Other.

4.4     What was main breadwinner’s occupation?
        “Occupation” means the breadwinner’s usual type of work, for example, tailor, laborer or
        farmer. Different occupations pay different amounts of money, so this can affect the family’s
        resources available for an emergency. RECORD THE BREADWINNER’S OCCUPATION.

4.5     Was the main breadwinner…
        INSTRUCTION: Read the choices to the respondent. The main breadwinner’s employment
        affects the resources that are available to the family for emergencies. RECORD ONE
        ANSWER: 1. fully employed; 2. seasonally employed; 3. unemployed; 8. Don’t know.
        “Seasonally employed” means the breadwinner worked less than 12 months per year. SKIP
        INSTRUCTION: If 1, 3 or 8, go to Q4.6.

4.5.1   If seasonally employed (2), ask: About how many months per year did s/he work?
        RECORD THE NUMBER OF MONTHS. Less than 1 month = 00; Don’t know = 88.




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4.6    What is the family’s religion?
       Knowing the family’s religion helps us describe the women who died and understand if there
       is a particular group on which we need to focus extra attention to decrease maternal mortality.
       RECORD ONE ANSWER: 1. Hindu; 2. Muslim; 3. Christian; 4. Other; 8. Don’t know.

4.7    What is the family’s caste?
       Knowing the family’s caste helps us describe the women who died and understand if there is
       a particular group on which we need to focus extra attention to decrease maternal mortality.
       RECORD ONE ANSWER: 1. SC; 2. ST; 3. Other; 8. Don’t know.

4.8    What type of house does the family live in?
       The type of house affects the family’s living conditions and shows how well or poor off they
       are. RECORD ONE ANSWER: 1. Kutcha; 2. Kutcha-Pucca; 3. Pucca; 8. Don’t know.

4.9    Does the family have its own toilet?
       This information helps us gain an increased understanding of the family’s living conditions,
       and how well or poor off they are. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know.

4.10   Does the house have electricity?
       This information helps us gain an increased understanding of the family’s living conditions,
       and how well or poor off they are. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know.

4.11   Does the family have a BPL card?
       If many families with a maternal death have a BPL card, then the BPL benefits might be used
       as part of an intervention program. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know.

4.12   Do you know about the benefits of the BPL card?
       Even if a family has a BPL card, they can benefit from this only if they know what it entitles
       them to and how to access these benefits. RECORD ONE ANSWER: 1. Yes; 2. No. SKIP
       INSTRUCTION: If 2, go to Section 5

4.12.1 Please tell me the benefits of the card.
       INSTRUCTION: Prompt: Is there anything else? Multiple answers allowed. Check all choices
       that the respondent mentions. (See general instruction 7 on page 13 for how to follow this
       instruction.) RECORD ALL THE RESPONDENT’S ANSWERS: 1. Subsidized ration; 2.
       Kerosene oil; 3. Housing; 4. Health care; 5. Referral transport; 6. Other.

SECTION 5:     Pregnancy history

Read: Now I would like to ask you about ________’s past pregnancies.

5.1    Not including the current pregnancy how many times was she ever pregnant, whether
       a child was born or not?
       The “current pregnancy” is the one that resulted in the woman’s death. A woman’s risk of
       maternal death is increased in her first pregnancy and if she has had many prior pregnancies.
       If need be, clarify for the respondent that you mean all past pregnancies, even those resulting
       in an abortion or stillbirth. RECORD THE TOTAL NUMBER OF PAST PREGNCIES. Don’t
       know = 88. SKIP INSTRUCTION: If 00, go to Section 6

5.2    How many of her past pregnancies ended in a birth, including stillbirths?
       “Past pregnancies” are all those before the current one. RECORD THE NUMBER OF PAST
       PREGNANICES THAT ENDED IN A BIRTH. Don’t know = 88. SKIP INSTRUCTION: If 00, go
       to Section 6.

5.3    Were any of her past pregnancies delivered by a C-section?
       A past C-section can increase the chance that a woman’s uterus will rupture and bleed during
       the delivery of her current pregnancy. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know.




MAPEDIR Interviewers Reference Manual      May 19, 2008                                                 19
SECTION 6:      Circumstance of the woman’s death (and the baby’s outcome)

Read: Now I would like to ask you about ______’s general health and her current pregnancy.

6.1     Did _________ have any of the following problems before the pregnancy began?
        INSTRUCTION: Read the problems list slowly and check “Yes,” “No” or “Don’t know” for
        each. The woman may have had a chronic condition that was not diagnosed by a doctor or
        nurse, such as TB or epilepsy. These might have caused her to cough blood or have fits
        (convulsions). RECORD “YES,” “NO” OR “DON’T KNOW” FOR EACH CONDITION: 1.
        Coughing blood; 2. Fits; 3. Other. If one of the answers is “3. Other,” write the details in the
        space provided.

6.2     Was she ever told by a doctor or nurse that she had any of the following illnesses
        before her pregnancy began?
        INSTRUCTION: Read the problems list slowly and check “Yes,” “No” or “Don’t know” for
        each. Some maternal deaths are due to the pregnancy causing an existing condition to
        worsen. Only record conditions identified by a doctor or nurse. RECORD “YES,” “NO” OR
        “DON’T KNOW” FOR EACH CONDITION: 1. Anemia; 2. Heart disease; 3. Diabetes; 4.
        Cancer; 5. Hypertension; 6. Tuberculosis; 7. Epilepsy; 8. Other. If one of the answers is “8.
        Other,” specify the details in the space provided.

6.3     How many months did the current pregnancy last?
        This is basic information we need for every maternal death. RECORD THE NUMBER OF
        COMPLETED MONTHS. For example, if the respondent says 7 months and 3 weeks then
        record 07 months; and if the answer is 8 and one-half months then record 08 months. Don’t
        know = 88.

6.4     Did ________ seek any antenatal care for the pregnancy from an ANM, nurse or
        qualified doctor?
        Antenatal care is important both for a woman’s health and that of her baby. Note that we are
        asking about antenatal care from a formal provider. If the woman received antenatal care only
        from an informal provider, such as a dai or quack, then the answer is “2. No.” RECORD ONE
        ANSWER: 1. Yes; 2. No; 8. Don’t know. SKIP INSTRUCTION: If 2 or 8, go to Q6.5

6.4.1   If yes, ask: How many times did she receive antenatal care from an ANM, nurse or
        qualified doctor?
        Women should make at least three antenatal care visits during a pregnancy. RECORD THE
        NUMBER OF TIMES. Don’t know = 88.

Read: Now, I’d like to ask you about the circumstances of __________’s death.

6.5     Did she die while having an abortion or within 6 weeks after having an abortion?
        Any pregnancy that ends spontaneously at 5 or fewer completed months or that is induced
        (including MTP) at any time with the intent to kill the fetus is considered an abortion. The
        answer should be “No” if the pregnancy ended spontaneously at 6 or more completed
        months. The answer should be “Yes” if the woman died either during an abortion or within 6
        weeks after an abortion. RECORD ONE ANSWER: 1. Yes, during an abortion; 2. Yes, within
        6 weeks after an abortion; 3. No; 8. Don’t know. SKIP INSTRUCTION: If 1, go to Q6.6. If 3 or
        8, go to Q6.9 (Antenatal). (This means that the Antenatal questions begin with question 6.9.)

Abortion questions follow – Ask these questions only if she died during or after an abortion
This instruction guides you to ask the following questions only for abortion deaths.

6.5.1   If she died after an abortion, ask: How many days after the abortion did she die?
        RECORD THE NUMBER OF COMPLETED DAYS. For example, 1 day and 4 hours = 01 day.
        Less than 1 day = 00; Don’t know = 88.

6.6     Was the abortion spontaneous or induced, including MTP?
        “Spontaneous” means the abortion happened on its own. This is the same as a miscarriage.
        “Induced” means someone purposefully ended the pregnancy. “MTP” (medical termination of



MAPEDIR Interviewers Reference Manual       May 19, 2008                                                   20
pregnancy) means a medical practitioner induced the abortion. RECORD ONE ANSWER: 1.
        Spontaneous; 2. Induced, including MTP; 8. Don’t know. SKIP INSTRUCTION: If 1or 8, go to
        Q6.7

6.6.1   If the abortion was induced, ask: How was it induced?
        This question may bring risky practices to light. Oral medicine is least risky. Anything inserted
        in the vagina can cause bleeding or infection. Instrumentation is most risky. INSTRUCTION:
        Record the highest risk method mentioned. RECORD ONE ANSWER: 1. Oral medicine; 2.
        Traditional vaginal herbal application; 3. Vaginal tablet; 4. Instrumentation; 8. Don’t know.

6.7     If the abortion was spontaneous, ask: Where was the abortion completed?
        If the abortion was induced or don’t know, ask: Where did she have the abortion?
        This question is asked differently depending on whether the abortion was spontaneous or
        induced. Often, a spontaneous abortion will need to be completed medically in order to stop
        the bleeding. RECORD ONE ANSWER: 1. Home (her, relative’s, friend’s, informal provider’s);
        2. Sub-center; 3. PHC/BPHC; 4. Government hospital; 5. Private clinic/center; 6. Private
        hospital; 7. On route to formal health facility; 8. Other; 88. Don’t know

6.8     If the abortion was spontaneous, ask: Who completed the abortion?
        If the abortion was induced or don’t know, ask: Who performed the abortion?
        This question is asked differently depending on whether the abortion was spontaneous or
        induced. INSTRUCTION: Record the highest level provider mentioned. This information may
        help focus a plan to prevent abortion-related deaths. RECORD ONE ANSWER: 1. No one
        (completed spontaneously); 2. Herself (the woman); 3. Relative/friend; 4. Dai; 5. Quack; 6.
        ANM; 7. Nurse; 8. General doctor; 9. Obstetrician; 10. Other; 88. Don’t know. SKIP
        INSTRUCTION: This was an abortion death. After answering Q6.8, go to Q7.17. Knowing this
        was an abortion death will guide you through Sections 6 and 7. The next abortion questions
        start with Q7.17.

Antenatal questions follow – Ask these questions only if she did not die during or after an
abortion
This instruction is to help guide you through the questionnaire. It follows-up the skip instruction from
question 6.5, which was “If 3 or 8, go to Q6.9 (Antenatal).” It is like a stone in a creek. You jump from
Q6.5 to the stone and then from the stone to Q6.9. If the answer to Q6.5 was 1 or 2 (abortion), you
would have asked Q6.6-6.8 and then skipped to Q7.17.

6.9     Did she die while still pregnant, before labor began?
        RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know. SKIP INSTRUCTION: If 2 or 8, go to
        Q6.11 (L&D). (The Labor and Delivery questions begin with question 6.11. You would skip to
        the L&D questions because this would not be an Abortion death or an Antenatal death.)

6.10    How long was the illness that led to her death?
        INSTRUCTION: Convert response to days: use 1 month = 30 days. We will better understand
        the illness if we know how long it lasted. RECORD THE NUMBER OF COMPLETED DAYS:
        For example, if 6 days and 9 hours, record 006 days. Less than 1 day = 000; Don’t know =
        888. SKIP INSTRUCTION: This was an antenatal death. After answering Q6.10, go to Q7.1.
        The next questions for Antenatal deaths begin with Q7.1

Labor and Delivery questions follow – Ask these questions only if she did not die before labor
began
This instruction is just like the above ‘skipping stone’ for Antenatal deaths.

6.11    Did she die while in labor or delivery or within 6 weeks after delivery, including a
        stillbirth?
        RECORD ONE ANSWER: 1. Yes, during labor and delivery; 2. Yes, within 6 weeks after the
        delivery; 3. No; 8. Don’t know. SKIP INSTRUCTION: If 1, go to Q6.12. If 3 or 8, go to Section
        10. You would skip the rest of Section 6, which is only for Labor and Delivery deaths. You
        would also skip Sections 7-9 because you would have just determined that this also was
        neither an abortion nor antenatal death. However, these findings could be mistaken since you
        would have arrived at Section 6 only after learning from question 3.6 that this was a maternal



MAPEDIR Interviewers Reference Manual       May 19, 2008                                               21
death. Section 10 and the open history may help you clarify the situation, after which you can
        return to the correct part of Section 6 and then continue with Section 7.

6.11.1 If she died after the delivery, ask: How many days after the delivery did she die?
       Knowing how long after the delivery she died can help us determine the cause of her death.
       RECORD THE NUMBER OF COMPLETED DAYS. Less than 1 day = 00; Don’t know = 88.

6.12    Did she have a plan where to delivery the baby?
        Having a plan for where to deliver is an important part of “birth readiness.” RECORD ONE
        ANSWER: 1. Yes; 2. No; 8. Don’t know. SKIP INSTRUCTION: If 2 or 8, go to Q6.13

6.12.1 If she had a delivery plan, ask: Where was it planned for the baby to be delivered?
       This is a follow-up question to 6.12. RECORD ONE ANSWER: 1. Home (her, relative’s,
       friend’s, informal provider’s); 2. Sub-center; 3. PHC/BPHC; 4. Government hospital; 5. Private
       clinic/center; 6. Private hospital; 7. Other; 8. Don’t know.

6.13    Where did she (labor/deliver the baby)?
        INSTRUCTION: Read “labor” if she died before delivering. RECORD ONE ANSWER: 1.
        Home (her, relative’s, friend’s, informal provider’s); 2. Sub-center; 3. PHC/BPHC; 4.
        Government hospital; 5. Private clinic/center; 6. Private hospital; 7. On route to formal health
        facility; 8. Other; 88. Don’t know. SKIP INSTRUCTION: If 1, 8 or 88, go to Q6.14.

6.13.1 If at or on route to a health facility, ask: What is the name and address of the health
       facility? RECORD THE NAME AND ADDRESS OF THE FACILITY.

6.13.2 When she started out for the health facility, was she in normal labor or had her illness
       already begun?
       Delivery complications can occur at any time, so it is best for women to go to a health facility
       even if their labor is normal. Response choice 3 is for women who went for any other reason
       and their problem started while at the facility. RECORD ONE ANSWER: 1. Normal labor; 2.
       Her illness had already begun; 3. Went for any other reason (e.g., ANC); 8. Don’t know.

6.14    Who attended the (labor/delivery)?
        INSTRUCTIONS: Read “labor” if she died before delivering. Record the highest level provider
        mentioned. It is best for a skilled birth attendant to deliver the baby. RECORD ONE
        ANSWER: 1. Herself; 2. Relative/friend; 3. Dai; 4. Quack; 5. ANM; 6. Nurse; 7. General
        doctor; 8. Obstetrician; 9. Other; 88. Don’t know.

6.15    How was the (baby delivered/delivery attempted)?
        INSTRUCTION: Read “delivery attempted” if she died before delivering.” RECORD ONE
        ANSWER: 1. Spontaneous vaginal (no drugs); 2. Mechanically induced (forceful external
        pushing); 3. Induced with drugs; 4. Forceps; 5. C-section; 8. Don’t know.

6.16    What part of the baby came out first?
        If the baby’s buttocks, feet or hand came out first, then this could have been a difficult
        delivery. RECORD ONE ANSWER: 1. Head; 2. Buttocks/Feet; 3. Hand; 4. No part delivered.
        8. Don’t know. SKIP INSTRUCTION: If 4, go to Section 7.

6.17    What was the baby’s outcome?
        The baby has a high risk of dying if the mother dies. RECORD ONE ANSWER: 1. Not
        delivered at time of mother’s death; 2. Stillbirth; 3. Born alive and died; 4. Currently alive; 8.
        Don’t know. SKIP INSTRUCTIONS: If 1, 2, 4 or 8, go to Section 7.

6.17.1 If born alive and died (3), ask: How many days old was the baby at death?
       Ask this question only if the answer to question 6.17 is “3. Born alive and died.” RECORD
       THE ANSWER IN DAYS. Less than 1 day = 000; Don’t know = 888.

This was a labor and delivery death. Continue with Section 7.
This is another ‘skipping stone’ that tells you the type of death this was (L&D) and where to continue.




MAPEDIR Interviewers Reference Manual        May 19, 2008                                                    22
SECTION 7:       Illness complications

Read: Now, I’d like to ask you about the problems __________ had during the last part of her
pregnancy and the fatal illness.
This statement helps make the transition from determining the type of maternal death (abortion,
antenatal, labor and delivery) to identifying the woman’s illness symptoms and cause of death.

Section 7 is organized into blocks of questions about the main symptoms that occur with the three
types of maternal death. You have already determined the type of maternal death in Section 6. Use
that information to decide which question blocks to ask.

Ask Q7.1 – 7.10 for Antenatal and Labor and Delivery deaths.
This is a ‘staying stone’ instruction that tells you to ask the following questions if you determined in
Section 6 that this was an Antenatal or Labor and Delivery death. The questions are about illness
symptoms that can occur with these deaths. The causes of maternal death associated with these
symptoms are discussed on page 4 of this manual.

7.1     During the last part of the pregnancy, was she breathless or very weak when doing her
        usual work?
        Being breathless or weak when doing your usual work is sign of anemia. RECORD ONE
        ANSWER: 1. Yes; 2. No; 8. Don’t know

7.2     During the last part of the pregnancy or the fatal illness, were her eyes or hands more
        pale than usual?
        Pallor is also a sign of anemia. We ask about pallor (and symptoms 7.3 – 7. 7) during
        pregnancy or the fatal illness because women who died after delivering could have had these
        symptoms at one or both times. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know

7.3     During the last part of the pregnancy or the fatal illness, did a doctor or nurse tell her
        that she had anemia?
        The answer should be “Yes” only if a doctor or nurse made this diagnosis. RECORD ONE
        ANSWER: 1. Yes; 2. No; 8. Don’t know

7.4     During the last part of the pregnancy or the fatal illness, did she have blurred vision?
        Blurred vision is a sign of severe pre-eclampsia. RECORD ONE ANSWER: 1. Yes; 2. No; 8.
        Don’t know.

7.5     During the last part of the pregnancy or the fatal illness, did she have a severe
        headache?
        Severe headache is a sign of severe pre-eclampsia. RECORD ONE ANSWER: 1. Yes; 2. No;
        8. Don’t know

7.6     During the last part of the pregnancy or the fatal illness, did a doctor or nurse tell her
        that she had high blood pressure?
        This is also sign of pre-eclampsia. The answer should be “Yes” only if a doctor or nurse made
        this diagnosis. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know

7.7     During the last part of the pregnancy or the fatal illness, did she have swelling of the
        hands or face?
        This is a also sign of pre-eclampsia. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know

7.8     During the fatal illness, did she have severe swelling of the legs?
        This could be a sign of heart failure that may be due to severe anemia. RECORD ONE
        ANSWER: 1. Yes; 2. No; 8. Don’t know.

7.9     During the fatal illness, was it very difficult for her to breathe?
        This could also be a sign of heart failure due to severe anemia. RECORD ONE ANSWER: 1.
        Yes; 2. No; 8. Don’t know.




MAPEDIR Interviewers Reference Manual        May 19, 2008                                                  23
7.10    Did she have convulsions during the fatal illness?
        Having convulsions could mean that the woman died from eclampsia. RECORD ONE
        ANSWER: 1. Yes; 2. No; 8. Don’t know. SKIP INSTRUCTION: If this was an antenatal death,
        go to Q7.19. (Questions 7.11 – 7.18 are only for Labor and Delivery and Abortion deaths.)

Ask Q7.11 – 7.16 for Labor and Delivery deaths.
This is a ‘staying stone’ instruction that tells you to ask the following questions if you determined in
Section 6 that this was a Labor and Delivery death. The questions do not start with “During labor and
delivery…” because it is clear from the questions that you are asking about this period.

7.11    How long was she in labor?
        “Labor” begins when the woman has regular contractions no more than 10 minutes apart.
        Labor usually lasts less than 12 hours. RECORD THE COMPLETED NUMBER OF HOURS.
        Less than 1 hour = 00; Don’t know = 88.

7.12    For how long did she have to make an effort?
        “Make an effort” is the pushing a woman does at the end of labor to deliver the baby. This
        effort usually lasts less than 2 hours. RECORD THE COMPLETED NUMBER OF HOURS.
        Less than 1 hour = 00; Don’t know = 88.

7.13    Did she have labor pain that was worse than normal labor pain and that started
        suddenly?
        This is a sign of a ruptured uterus, which can result in severe bleeding. RECORD ONE
        ANSWER: 1. Yes; 2. No; 8. Don’t know

7.14    Did she have labor pain that improved or stopped suddenly?
        This is a sign of a ruptured uterus. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know

7.15    Was her liquor (amniotic fluid) foul smelling?
        Foul smelling liquor is a sign of pelvic infection. You can read “amniotic fluid” if this helps the
        respondent understand the question. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know

7.16    How long after the baby’s birth did the placenta come out?
        The placenta should come out within one hour after the baby is delivered. Retained placenta
        can lead to postpartum hemorrhage. RECORD THE COMPLETED NUMBER OF HOURS. If
        the woman died before the placenta came out, then record that it never came out. Less than
        1 hour = 00; Don’t know = 88; Never = 99.

Ask Q7.17 – 7.18 for Abortion and Labor and Delivery deaths.
This is a ‘staying stone’ instruction that tells you to ask the following questions if you determined in
Section 6 that this was an Abortion or Labor and Delivery death. The questions are about illness
symptoms that can occur with Abortion and Labor and Delivery deaths.

7.17    Did she have abdominal pain that did not go away (after the abortion/between the
        contractions/after the delivery)?
        Continuous abdominal pain is a sign of pelvic infection, which can occur after an abortion,
        during labor or after delivery. Depending on during which of these times the woman died, read
        either “after the abortion,” “between the contraction” or “after the delivery.” RECORD ONE
        ANSWER: 1. Yes; 2. No; 8. Don’t know.

7.18    Did she have foul smelling vaginal discharge (after the abortion/during [or after] the
        delivery)?
        INSTRUCTION: Read “…during or after…” if she died postpartum. Foul smelling discharge is
        a sign of pelvic infection, which can occur after an abortion, or during labor or after delivery.
        Depending on during which of these times the woman died, read either “after the abortion,”
        “during the delivery” or “during or after the delivery.” RECORD ONE ANSWER: 1. Yes; 2. No;
        8. Don’t know. SKIP INSTRUCTION: If 2 or 8, go to Q7.19.




MAPEDIR Interviewers Reference Manual        May 19, 2008                                                  24
7.18.1 For Abortion deaths only:
       How long after the abortion did the discharge start?
       This question is asked only for abortion deaths with discharge. INSTRUCTION: Mark days
       and/or hours as needed. If the discharge started before, during or less than 1 hour after the
       abortion, then record 00 hours. Knowing when the discharge started will help us determine if
       infection was the cause of death. RECORD THE NUMBER OF COMPLETED DAYS AND/OR
       HOURS. Less than 1 hour = 00; Don’t know = 88.

Ask Q7.19 – 7.24 for All deaths.
This is a ‘staying stone’ instruction that tells you to ask the following questions for all deaths. The
questions are about illness symptoms that can occur with all types of maternal deaths.

7.19    Did she have fever during the fatal illness?
        Fever is a sign of infection. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know. SKIP
        INSTRUCTION: If 2 or 8, go to Q7.20

7.19.1 For Abortion deaths only:
       How long after the abortion did the fever start?
       This question is asked only for abortion deaths with fever. INSTRUCTION: Mark days and/or
       hours as needed. If fever started before, during or less than 1 hour after the abortion, then
       record 00 hours. Knowing when the fever started will help us determine if infection was the
       cause of death. RECORD THE NUMBER OF COMPLETED DAYS AND/OR HOURS. Less
       than 1 hour = 00; Don’t know = 88.

7.20    Did she have any vaginal bleeding (during the abortion/during the last part of the
        pregnancy/before the delivery)?
        It is normal to have light bleeding with an abortion or delivery, but not during pregnancy. Read
        the correct words in the parentheses depending on whether she had an abortion, antenatal,
        or labor and delivery death. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know. SKIP
        INSTRUCTION: If 2 or 8, go to Q7.21.

7.20.1 Did she feel cold to touch after this bleeding started?
       “Cold to touch” means that she felt cold to someone else who touched her. This would usually
       be due to heavy bleeding. However, the woman could have internal bleeding that was hidden.
       RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know.

7.21    During the fatal illness, did she have vaginal bleeding that was too heavy?
        Heavy bleeding might indicate that this was the cause of the woman’s death. RECORD ONE
        ANSWER: 1. Yes; 2. No; 8. Don’t know. SKIP INSTRUCTION: If 2 or 8, go to Q7.22.

7.21.1 Did she feel cold to touch after the heavy bleeding started?
       “Cold to touch” means that she felt cold to someone else who touched her. This would be due
       to very heavy bleeding. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know.

7.21.2 For deaths After Delivery only, ask:
       Did the heavy bleeding start…
       This question is asked only for deaths after delivery with heavy bleeding. INSTRUCTION:
       Read the choices slowly and mark one answer. RECORD ONE ANSWER: 1. before the
       delivery; 2. during the delivery; 3. after the delivery; 8. Don’t know.

7.21.3 For deaths After Delivery only, ask:
       How long after the heavy bleeding started did she die?
       This question is asked only for deaths after delivery with heavy bleeding. If she died quickly
       this would indicate that the bleeding was very heavy. RECORD THE NUMBER OF
       COMPLETED HOURS. Less than 1 hour = 00; Don’t know = 88.

7.22    During the fatal illness, did she become semiconsciousness?
        Reduced consciousness is a sign of severe illness that could be due to a pelvic infection or
        malaria. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know.




MAPEDIR Interviewers Reference Manual        May 19, 2008                                                 25
Mapedir interviewers reference manual l 19_may2008
Mapedir interviewers reference manual l 19_may2008
Mapedir interviewers reference manual l 19_may2008
Mapedir interviewers reference manual l 19_may2008
Mapedir interviewers reference manual l 19_may2008
Mapedir interviewers reference manual l 19_may2008
Mapedir interviewers reference manual l 19_may2008
Mapedir interviewers reference manual l 19_may2008
Mapedir interviewers reference manual l 19_may2008
Mapedir interviewers reference manual l 19_may2008
Mapedir interviewers reference manual l 19_may2008
Mapedir interviewers reference manual l 19_may2008
Mapedir interviewers reference manual l 19_may2008
Mapedir interviewers reference manual l 19_may2008

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Mapedir interviewers reference manual l 19_may2008

  • 1. MAPEDIR Interviewer’s Reference Manual Verbal Autopsy Questionnaire for Women of Reproductive Age Maternal and Perinatal Death Inquiry and Response (MAPEDIR) Project United Nations Children’s Fund (UNICEF) Delhi, India in association with: Johns Hopkins Bloomberg School of Public Health Baltimore, MD, USA May 19, 2008
  • 2. TABLE OF CONTENTS 3 About this manual................................................................................................................................ 4 1. What is MAPEDIR?.......................................................................................................................... 4 Background................................................................................................................. 4 2. Project Organization and Procedures............................................................................................ 6 Block-level team with district oversight..................................................................... 6 During your training you will review the death notification format that is used to conduct the initial investigation of deaths of women of reproductive age, as well as the register that supervisors keep to track these deaths and assign suspected maternal deaths to the interviewers. You will also discuss the appropriate waiting period after a death before conducting the MAPEDIR interview. .........................................................................7 3. Interviewer and Supervisor Roles and Responsibilities .............................................................. 7 Overview of the interviewer’s activities and responsibilities..................................... 7 Supervisory procedures and approach.........................................................................7 4. Ethical Training................................................................................................................................ 7 Confidentiality.............................................................................................................8 Falsification of Data....................................................................................................8 5. Approach to the Household and Selecting the Respondent(s)................................................... 8 Introducing yourself at the household.........................................................................9 How to select the best respondent............................................................................... 9 How to handle multiple respondents...........................................................................9 6. Communication and Sensitivity Issues....................................................................................... 10 How to approach the respondent...............................................................................10 Selecting an environment for the interview.............................................................. 10 Sit at the same level as the respondent(s) and maintain eye contact.........................10 Build rapport with the respondent(s).........................................................................10 Language problems................................................................................................... 10 Not wanting to answer certain questions...................................................................11 7. Conducting the Interview ............................................................................................................. 11 Materials you will need ............................................................................................11 General Instructions for completing the MAPEDIR format..................................... 11 Correcting mistakes...................................................................................................13 Skip patterns..............................................................................................................14 8. Question-by-Question Instructions for the MAPEDIR Suspected Maternal Death Format ......16 SECTION 2: Information about the interview..........................................................16 SECTION 3: Background information from respondents.........................................17 SECTION 5: Pregnancy history................................................................................19 SECTION 6: Circumstance of the woman’s death (and the baby’s outcome)..........20 SECTION 7: Illness complications...........................................................................23 SECTION 8: Injury...................................................................................................26 SECTION 9: Careseeking for obstetrical complications that led to the death..........26 9.6 If Action 9.2 was not seeking formal health care, then ask: Did she/the family have any problems that kept her from seeking formal health at that time? ................................................. 27 9.7 Did she seek formal health care at any time during the fatal illness? .................................... 28 If the first action taken for the illness (Q9.2) was not seeking formal health care, then we ask here if the woman ever sought formal care. Just as in Q9.2, if they were trying to seek formal health care, even if they had not yet left the house or were on route to a facility, then mark “1. Yes.” RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know. SKIP INSTRUCTION: If 2 or 8, go to Open History. The remainder of Sections 9 and 10 are about the details of formal health MAPEDIR Interviewers Reference Manual May 19, 2008 2
  • 3. care. If the woman never sought formal care, then we skip this and go to the open history to ask about the illness in the respondent’s own words. .................................................................. 28 SKIP INSTRUCTION: STOP: If the woman died before reaching the facility, go to (F1: Open History / F2 or F3: Section 10). ........................................................................................................ 30 The rest of Section 9 asks about the care the woman received at the facilities she visited. If you are completing matrix column 1 and she died before reaching facility 1, then go to the open history to ask about the illness in the respondent’s own words. If she died before leaving home, then Q9.15, Q9.16 and/or Q9.17 may not apply. For example, if the husband went to look for a taxi and his wife died while he was out searching, then Q9.15 and Q9.16 would not apply if he was not able to find a taxi; however, Q9.15 and Q9.16 would apply if he pre-paid for the taxi but Q9.17 still would not apply. Mark the answers to the relevant questions and then go to the open history. If you are completing matrix column 2 (or 3) and she died before reaching facility 2 (or 3), then go to Section 10 to ask if a doctor or nurse told the family the cause of death. Then continue with the open history. .................................................................................. 30 SECTION 10: Reported cause of death.................................................................... 31 10.1Did a doctor or nurse at the health facility tell you the cause of ________’s death?.......................................................................................................31 Open history..............................................................................................................31 Supervisor’s certification.......................................................................................... 32 The purpose of this section is to help maintain the quality of the maternal death inquiries. This is best accomplished by the supervisor participating in every interview that the team conducts. At least, the supervisor should carefully check the completeness and accuracy of each completed interview form and discuss the findings with the team members who conducted the death inquiry. The supervisor must decide how to resolve any identified problems, including a repeat visit to the household if needed. Once the supervisor is satisfied with the quality of the completed format, s/he should sign and date the form to certify that it is correct and complete. ....................................................................................................................... 32 APPENDIX A: INTERVIEWER’S CHECKLIST................................................................................... 33 F. ___ Participate in team meeting (date: ______________).......................................................... 34 APPENDIX B: SUPERVISOR’S CHECKLIST.................................................................................... 35 APPENDIX C: CONSENT FORM........................................................................................................ 37 APPENDIX D: INTERVIEWER’S ROLE PLAY GUIDE....................................................................... 38 MAPEDIR Interviewers Reference Manual May 19, 2008 3
  • 4. About this manual The purpose of this manual is to provide MAPEDIR interviewers with the information they need to conduct systematic, reliable and valid verbal autopsy interviews for maternal deaths. The manual describes the roles and responsibilities of MAPEDIR interviewers, and provides a question-by- question guide to the verbal autopsy questionnaire for women of reproductive age. Interviewers are to use this manual as a reference guide during their training and, as needed, in the course of their work as MAPEDIR interviewers. The manual also serves as a reference for trainers and supervisors of the interviewers and for persons who are administering the MAPEDIR project. 1. What is MAPEDIR? Background “Maternal and Perinatal Death Inquiry and Response” (MAPEDIR) means to thoroughly examine and respond to the social, biological and medical events that led to a maternal or perinatal death. Inquiries are conducted of the deaths that occur in a community over several months time, in order to identify common factors that can be acted upon to prevent further deaths. Ongoing inquiries over several years allow a community to assess the impact of its preventive actions and the need for additional interventions. Death inquiries are conducted in the community using a “verbal autopsy” interview with the families of deceased persons. This is particularly helpful in areas where many deaths occur outside of health facilities and for highlighting relevant social factors and health careseeking problems. Health facilities where many deaths occur also should review the care provided to the women and children in order to identify medical practices that need to be improved to prevent additional deaths. Maternal and child death inquiries have been conducted in many settings. Some examples include: 1) the routine practice of maternal death review by medical practitioners in the United Kingdom over the past 50 plus years, 2) hospital-based perinatal death reviews encouraged by the American College of Obstetricians and Gynecologists in the United States, 3) the community and hospital inquiry into all maternal deaths required by the Sri Lanka Ministry of Health since 1985, 4) the community verbal autopsy and hospital-based confidential inquiry of maternal deaths encouraged by the Philippines Ministry of Health, and 5) maternal death reviews supported by the World Health Organization (WHO) in selected hospitals of Nepal, Bangladesh and Myanmar. In India, the Tamil Nadu Reproductive and Child Health (RCH) Program has reviewed all maternal deaths and a sample of infant deaths since 2003, the government of Kerala has reviewed all maternal deaths since 2005, and WHO supports maternal death reviews at Safdarjang Hospital in Delhi and Christian Medical College in Vellore. The MAPEDIR project UNICEF is supporting the implementation of MAPEDIR in the context of RCH2, which calls for increasing community participation in bottom-up health planning and the demand for quality health care. The goals and objectives of the MAPEDIR project are to: 1. Sensitize communities to maternal and perinatal health issues, including the need for birth preparedness, complication readiness and inquiries into maternal and perinatal deaths; 2. Identify recent maternal deaths and conduct community-based inquiries with close acquaintances of the women; 3. Share the findings of the death inquiries with communities and help them interpret the data to develop appropriate local interventions and advocate for improvements in health care; and 4. UNICEF also will use the findings of the inquiries to advocate with policy makers for needed improvements in health care. While the MAPEDIR project focuses on community-based death inquiries, UNICEF is partnering with WHO to support facility-based reviews of maternal deaths. The project is initially focusing on inquiries of maternal deaths. Perinatal death inquiries will be added in the future. MAPEDIR Interviewers Reference Manual May 19, 2008 4
  • 5. The causes of maternal mortality and its prevention A maternal death is the death of a woman during pregnancy or within six weeks of having an abortion or giving birth. Most maternal deaths are due to complications directly related to pregnancy, including severe bleeding (hemorrhage), pregnancy-induced hypertension (eclampsia), severe infection starting in the reproductive organs (puerperal sepsis), and obstructed labor (which leads to hemorrhage or sepsis). In India many maternal deaths are due to or hastened by severe anemia, which often results from a combination of factors, including inadequate nutrition, malaria, and blood loss from menstruation and prior pregnancies. About 20% of maternal deaths may be caused by pre-existing conditions such as chronic heart disease or acute illnesses such as malaria that are made worse by the pregnancy. Deaths that occur during pregnancy but that are not related to the pregnancy itself, such as accidents, generally are not counted as maternal deaths. While a biological complication is defined as the cause of death, in fact most maternal deaths result from a chain of events that includes many social, cultural and medical factors. Some of these can be prevented even before a woman becomes pregnant, such as by ensuring that she is well nourished and not suffering from anemia. However, since it is usually not possible to predict which women will suffer a severe pregnancy or delivery complication, the most effective way to prevent maternal deaths is to be ready to respond to complications when they occur. This often requires taking action at one or more of the links in the chain, with a focus on the “three delays” in a woman’s receiving care for a maternal complication. The following diagram shows where the three delays occur. Home Sub- Quality center Non-FRU Quality PHC/CHC Onset of ay 2 complication Del ay Del 1 De ing t e De eek la s cid car y1 1 lay Delay 2 De o 2 lay De Delay 3 2 Delay ources Receiving res ging e quality care Arran aching th y FRU Quality and re te facilit pria appro Social and cultural factors that may contribute to delay 1 include: 1) low education, 2) poverty, 3) women’s lack of participation in decision-making, 4) not recognizing or understanding the importance of maternal complications, and 5) using traditional home care and informal providers for maternal complications instead of formal providers who might be able to save the woman’s life. The second delay can be due to the time needed to organize funds to pay for transportation or health care, a lack of transport, poor roads, or long distances to a health facility where the woman can receive appropriate care. The third delay may be due to a lack of needed drugs, blood, medical or surgical equipment, or skilled health personnel at the facility. If a woman is referred from a FRU, where she should be able to receive comprehensive emergency obstetric care, then the third delay also includes the additional travel and waiting time before she receives adequate care at the referral facility. During pregnancy, women and families should be sensitized to the need to prepare for the birth of their child and be ready to deal with any complications that might occur. Such “birth preparedness and complication readiness” includes planning ahead of time where the woman will give birth, who will assist with the delivery, and where and how she will seek emergency care if necessary. Having a plan will enable the woman and her family to respond rapidly should the need arise. Community MAPEDIR Interviewers Reference Manual May 19, 2008 5
  • 6. participation in planning for safe deliveries will help ensure that women and their families recognize when emergency care is needed and know where and how to seek this care. Part of the community’s sensitization to maternal health issues will include being informed about MAPEDIR and why the death inquiries are needed. During your training as a MAPEDIR interviewer, you will be told about the plans being made to sensitize your community and share the MAPEDIR findings to be used in developing effective interventions against maternal mortality. 2. Project Organization and Procedures Block-level team with district oversight The MAPEDIR project is organized at the block and district levels. In most states, a death notifier initially investigates community reports of deaths of women of reproductive age and transmits his/her findings to the block-level MAPEDIR team supervisor. S/he assesses each report and assigns the suspected maternal deaths for a MAPEDIR interview. Interviewers in most states have chosen to work in teams of two, with one serving as the interviewer and the other as the data recorder. They may switch roles for alternate interviews, so each person serves both as an interviewer and recorder. The two interviewers and their supervisor comprise the block team. Some states include an additional, alternate, interviewer and so have a four-person block team. A district official oversees project implementation in all the district’s blocks. Death reports and completed MAPEDIR interviews are compiled and analyzed at the district level with technical assistance from UNICEF, and the interview findings are shared with the community via district and block officials and NGO partners. In some states, NGOs play a prominent role as well in administering the project and conducting the death inquiries. The following diagram illustrates the process, which varies somewhat from state to state. ANM, AWW, others identify all deaths of women of childbearing age (14-49 years) Block-level death notifier (e.g., GP secretary) does initial investigation of all reported deaths Block CEO (PRI) Share analyzed MAPEDIR data with the community (Gram Panchayats, VHC, SHGs, etc.) with NGO partners Block MO Block MAPEDIR team supervisor (team investigates suspected maternal deaths) District CMHO analyzes and reports data District collector / CEO (PRI) State directorate MAPEDIR Interviewers Reference Manual May 19, 2008 6
  • 7. During your training you will review the death notification format that is used to conduct the initial investigation of deaths of women of reproductive age, as well as the register that supervisors keep to track these deaths and assign suspected maternal deaths to the interviewers. You will also discuss the appropriate waiting period after a death before conducting the MAPEDIR interview. 3. Interviewer and Supervisor Roles and Responsibilities Overview of the interviewer’s activities and responsibilities As a MAPEDIR interviewer, you will represent the project to households in your block. You will inform bereaved families about the purpose of MAPEDIR and conduct the verbal autopsy interview with the appropriate family members. Your tasks include:  Meet with your supervisor to receive your interview assignments for maternal deaths that have occurred in your block;  Locate households where a maternal death occurred and visit the families to plan dates for conducting interviews;  Conduct verbal autopsy interviews with family members on the appointed dates and correctly complete the MAPEDIR format;  Return completed interview forms to your supervisor and discuss and solve any problems you have encountered;  Strive for continuous self-improvement of your performance; and  Maintain the ethical standards of the project and good relations with the community. Interviewer self-assessment and improvement One of your responsibilities as a MAPEDIR interviewer is to continually strive to improve your performance. Your supervisor is also there to assist you in overcoming any problems that occur, but to make the greatest progress you should always seek to do the best job possible. Appendix A provides an interviewer’s self-assessment checklist to help you in this task. How to use the checklist will be discussed during your training as a MAPEDIR interviewer. Supervisory procedures and approach Your supervisor will assign suspected maternal deaths to you for interview and provide you with blank MAPEDIR questionnaires. You must return all completed interviews as well as your completed self- assessment checklist to your supervisor. The supervisor’s checklist in Appendix B lists other supervisory tasks and will be discussed during the training. Some of these tasks include:  Keep a register of adult female deaths;  Assign suspected maternal deaths for interview;  Provide needed logistical support to locate and reach the assigned households;  Observe and critique early interviews (and later interviews as possible);  Check all completed interview forms for completeness and errors; and  Hold periodic meetings with the interviewers to discuss and solve problems. Supervisors should support the interviewers in achieving their full potential as MAPEDIR interviewers. This means assisting the interviewers whenever necessary and helping them to overcome problems that they face in completing the interviews. Supervisors will have the opportunity to practice this approach during the MAPEDIR training. 4. Ethical Training Part of your training as a MAPEDIR interviewer or supervisor will be on ethical aspects of conducting research interviews, such as informed consent and confidentiality. This is to ensure that you are MAPEDIR Interviewers Reference Manual May 19, 2008 7
  • 8. aware of the importance of these issues and will maintain the highest ethical standards in your work at all times. Some important concepts to be discussed during the ethical training are described below. Informed consent All potential respondents have the right to determine for themselves whether or not they will participate in the interview. All respondents must be at least 18 years old, to help ensure that they are capable of making this decision. Part of your job as an interviewer is to administer “informed consent” to all potential respondents. This means that you must fully inform them about the MAPEDIR project and death inquiry before asking any questions; and that after learning all the facts they consent to be interviewed. Respondent(s) must fully understand the purpose and expected duration of the interview, the risks and benefits of being interviewed, and their right to not answer any or all questions. All these and other facts are described in a “consent form,” which you must read and explain to the respondent(s) before conducting the interview. Each respondent must make their mark on the consent form, which you will then sign to testify that the person consented to be interviewed. Complete a separate consent form for each respondent. The consent form is in Appendix C of this manual. Confidentiality It is critical that all information obtained from the MAPEDIR interviews remains strictly confidential. You are not permitted to discuss the findings from an interview, gossip about it, or show your records to anyone other than your supervisor. Make all entries on the questionnaires yourself. Do not leave your verbal autopsy forms lying around where unauthorized persons may have access to them. Maintaining confidentiality is an ethical responsibility that we all share. It is necessary to protect the respondents from any repercussions that might occur as a result of the information they have provided. It is also necessary to maintain the trust of the community and assure that people will be willing to talk openly to us about the maternal deaths. The project will share the interview findings with the community but never in a way that reveals which information came from which person or family. Falsification of Data Your job as a MAPEDIR interviewer will not always be easy. There may be times when you have to visit a household more than once to meet with the best respondent. The interview will often take one hour or longer to complete. Many of the questions seek sensitive information that may appear to reflect badly on care provided to women by their families and sometimes by the health system. All these conditions can lead to temptations to falsify data in order to quickly complete the interview and not record painful facts. However, you must never falsify your work. The whole purpose of the MAPEDIR project is to collect and share information with the community that can be used to prevent maternal deaths. This will be possible only if the information collected is truthful. It is your responsibility to assure that you maintain this standard. You should work as a MAPEDIR interviewer only if you are certain you can accomplish this. 5. Approach to the Household and Selecting the Respondent(s) The MAPEDIR interview is best conducted with the one or a few persons who were with the woman during her fatal illness and death. However, when approaching a household in a rural village you are likely to be met by a crowd of interested persons. Once inside the yard or the house several neighbors and family members who know little about the woman’s illness may want to participate in the interview or just observe. You must manage this situation effectively and sensitively in order to ensure that you interview the most knowledgeable person(s) and that the others are not offended. These issues will be discussed during your training, and you will have the opportunity to role play some situations (found in Appendix D) that you might face during your work. Following are some suggestions. Manage the scene and gain the trust and cooperation of households Consider working with a local respected person (e.g., schoolteacher, village leader) to pre-arrange the meeting and/or to accompany the interview team to the household. MAPEDIR Interviewers Reference Manual May 19, 2008 8
  • 9. In order to have respondent’s cooperation and obtain complete and accurate data, you must first gain the trust and confidence of the household. You can do this by making a good impression and conducting yourself in a professional, but also friendly manner. Understand the project If you are knowledgeable about the project and your responsibilities respondents will be more likely to trust you and participate. You should be able to answer any questions that household members may ask about the purpose of the project and how the information they share will be used. Emphasize the confidentiality of the information You must assure participants that their responses will be held in strictest confidence. No information will ever be released to anyone outside the project in a way that reveals who provided the information. If a household member or respondent hesitates to cooperate because of confidentiality concerns, you should fully explain how confidentiality will be maintained. Explain that no names will ever be revealed and that the information from all interviews will be combined in a report for district and national use. Introducing yourself at the household This is a very sensitive time for the family so it is important that you be polite and sensitive when introducing yourself. Be sure to state the purpose and confidential nature of the interview—these are key elements to gaining the family’s cooperation. An example is provided below: My name is [say your name]. I am a nurse/_____ in the _____ center, and an interviewer with the MAPEDIR Project. I have been informed that a woman in your household died. I am very sorry to hear this. Please accept my sympathy. In order to improve health care in our district, we are collecting information on recent deaths of women in this area. I would like to talk to the person in your house who took care of [say the woman’s name] during her illness before death. I assure you that any information you or your family provide will be kept confidential. How to select the best respondent The respondent is the main person that will provide information about the deceased. S/he should be the one who was with the woman during her illness. Usually, the woman’s husband, mother, sister or mother-in-law is the preferred respondent for a maternal death. In some cases more than one person will have taken care of the woman or been present during different stages of the illness. For example, the woman’s mother may have attended the birth at home, while the woman’s husband may have accompanied her to the hospital after the birth. All respondents must be at least 18 years of age. What to do if the potential respondent(s) is away or lives elsewhere If the person(s) who appear(s) to be the best respondent is not available when you first visit the household, try to make an appointment to return when they will be at home. If no one is at home when you visit the house try to ask a neighbor when you might be able to find family members at home. Then leave a message indicating that you plan to return at this time. In either case, make a note of this return date in your notebook. Sometimes the best respondent(s) may have moved to another village. In this case, you should discuss the situation with your supervisor, who will decide if you should travel to the other village or if help needs to be sought from the MAPEDIR team in another block. How to handle multiple respondents As discussed above, there may be instances when you need more than one respondent to get the full story of the woman’s illness. If you interview these persons together it should be clear as to who is the respondent for which stage of the illness. More than one person answering the same question can lead to confusion and greatly lengthen the interview. Some persons who were not with the woman during her illness may insist on attending the interview or even on being the respondent. For example the woman’s husband or mother might not let the sister talk to you alone, even if she took care of the woman during the illness. Or, the respondent may have children to care for who distract her attention from the interview. Lastly, having a visitor at the household can attract many other unwanted people to observe the interview. In these cases it is important to stress to the respondent the importance of confidentiality and privacy. You can try: MAPEDIR Interviewers Reference Manual May 19, 2008 9
  • 10. Suggest moving to a different location  Ask some of the bystanders to leave and come back once the interview is finished.  Reschedule a time to come back and finish the interview 6. Communication and Sensitivity Issues Effective communication with the respondent is of key importance in obtaining high quality information. As a MAPEDIR interviewer, you will interact with bereaved relatives of women who have recently died. In addition to mastering basic communication techniques, you need to be sensitive to the emotions of these bereaved persons and know how to handle difficult situations that might arise during the interview. You will role play some of these situations (in Appendix D) during your training. How to approach the respondent Always have a positive approach. Do not use phrases such as: “Are you too busy?” or “Can you spare an hour?” Such questions invite refusal before you start. Instead, begin by restating condolences for the death and say: “I would like to ask you a few questions.” or “I would like to talk with you for a few minutes.” Just as when approaching the household, state the purpose of the interview and its importance for helping the community; and stress the confidential nature of the interview. However, if a respondent insists that s/he does not wish to talk to you, do not argue. Instead, ask her/him for another day or time when s/he would be available to participate in the interview. Answer any questions the respondent asks frankly and to the best of your knowledge. Selecting an environment for the interview It is best to conduct the interview in a private location where you and the respondent(s) can be alone. However, it is to be expected that other family members may be present during the interview. In cases where complete privacy is not possible, try to limit the number of outsiders present. Basic communication techniques Sit at the same level as the respondent(s) and maintain eye contact Always look at the respondent when administering the interview. Remember, this is a difficult time for the respondent and they must feel comfortable with you in order to complete the interview. Build rapport with the respondent(s) Try to build rapport with the respondent(s) before discussing the case of the deceased. For example, if culturally appropriate, you may ask the respondent what work s/he does, or ask about her/his family. Encourage speech, listen actively, no not rush, nod your head These are ways of showing the respondent that you are interested in what s/he is saying, and will encourage her/him to continue. Be non-judgmental Some of the respondent’s answers may lead you to feel that s/he contributed to the woman’s death, for example, by not taking her for health care quickly enough. However, you must not transmit this message in any way because it will discourage the respondent from providing truthful answers. The success of the MAPEDIR project depends on all of us taking this non-blaming approach. The idea is for us and the community to learn what we can do together to prevent maternal deaths. This can only be accomplished by working together without blaming individuals for the deaths. Language problems If you encounter any language difficulties, for example, if you anticipate that a respondent speaks a different dialect than you do, talk to your supervisor beforehand. Bereaved respondents and sensitivity issues Persons who are mourning the death of a loved might have several emotional responses that could interfere with the interview. These might include the following, some of which are discussed below: MAPEDIR Interviewers Reference Manual May 19, 2008 10
  • 11. Becoming sad or upset  Getting offended or angry  Being wary or suspicious of the entire interview or certain questions  Not wanting to answer certain questions for unstated reasons Sadness, tearfulness First, be sure to express your sympathy and condolences for the respondent’s loss before starting the interview. It may also help respondents to know that the health program and community will use the MAPEDIR data to help improve care for other women. If a respondent begins to cry or have great difficulty in answering questions because s/he is overcome with emotion, you should pause and offer a tissue for tears. Acknowledge how difficult it must be to answer the questions, give the respondent time to regain their composure, and ask if s/he can continue at this time. If the respondent chooses not to continue, attempt to reschedule the interview. Anger A respondent may be angry at the health program if s/he feels that an individual health worker or the health program in some way contributed to the death. The respondent might direct this anger at you if s/he sees you as a representative of the health program. Another possibility is that a respondent may blame a relative or neighbor for the woman’s death if, for example, s/he feels that this person did not provide help that was needed. This anger could also come out during the interview. If this happens, let the person express their anger. Then, again express your condolences for their loss and acknowledge that you understand that they blame the particular person or the health program. (Never state that you agree with them, just that you understand that this is their feeling.) Last, again explain that the purpose of the MAPEDIR interviews is to learn more about the problems that lead to maternal deaths and to help the community work together to overcome these problems. Not wanting to answer certain questions There could be several reasons that a respondent does not want to answer certain questions. A question may rekindle painful memories; it may ask about a topic that is particularly sensitive for the respondent; the respondent may feel that they personally did not do enough to help the woman and that the answer to the question would reflect badly on them, etc. Whatever the reason, you must never demand or even ask a respondent to answer a question that they have told you they do not want to answer. As stated in the informed consent statement, respondents’ participation is totally voluntary and they have the right to refuse to answer any or all questions. It should not be a problem for the interview if a respondent refuses to answer only a few questions. However, many refusals will compromise the quality of the interview. You should make a note about any reasons you think might be leading to the respondent’s reluctance and discuss such cases with your supervisor. 7. Conducting the Interview Materials you will need Interviewers will be provided the materials listed below to help them perform their duties. Make sure that you secure them in a safe place in your home when you are not working to prevent loss, damage, or any unauthorized person seeing information that is recorded on the MAPEDIR forms.  MAPEDIR interviewer identification card (be sure to wear it where it can be seen)  This manual, MAPEDIR Interviewer’s Reference Manual  Interviewer’s self-assessment checklist  Blank MAPEDIR maternal death verbal autopsy formats  Pencils or pens for writing, and erasers  Bag for carrying forms and other materials. General Instructions for completing the MAPEDIR format 1. Instructions to the interviewer always appear in italic print. Do not read the instructions to the respondent. They are for your use only. MAPEDIR Interviewers Reference Manual May 19, 2008 11
  • 12. 2. Some symbols and abbreviations are used in the format that you need to understand. The symbols and abbreviations and their meanings are: Q (question), DK (don’t know), # (number), < (less than), and = (equals). 3. Many questions include a blank, like this: ________. Wherever this appears, state the name of the deceased woman. 4. Read all questions exactly as they are written so that all respondents are asked questions in the same way. Read slowly and clearly so the respondent understands. Allow the respondent to think about the question before recording their answer. Note that respondents may tend to give answers that they think will please the interviewer. Do not show any surprise, approval or disapproval of the respondent’s answer by the tone of your voice or facial expression. 5. If the respondent doesn’t know the answer to a question or looks uncomfortable with the question, you can try “probing” to get an answer. This means asking other questions similar to the subject material to try and help the respondent remember certain events. For example, if the respondent cannot remember who assisted the woman with the birth in the home, you might try “probing” by asking: “Who was in the room at the time of delivery?” Use your judgment when probing. Remember, this is a very sensitive time for the respondent and we do not want to upset them further. 6. A few questions include words within parentheses and also before or after a slash mark. For example “What did the (facility/provider) do for her problem?” Read the correct word or words for the situation. Another use of the slash mark is the expression “she/the family.” Read this as “she,” “the family” or “she or the family,” depending on which is correct for the situation. 7. Most questions allow only one response and include one large box to record the number of the response. The below provides an example where the answer to the question is “2. No.” 4.10 Does the house have electricity? 1. Yes 2. No 2 8. Don’t know 8. Questions that allow multiple answers provide a small box for each possible response. Follow the instructions and tick (√) all of the respondent’s choices. In the first example below, the interviewer is instructed only to check all answers that the respondent gives; in the second example, the interviewer is told to prompt for additional responses. Do this by asking if there was “anything else” after the respondent has given their initial response. What 9.15 9.28 9.41 transportation 1. Walk..................... 1.  If only walk, go 1.  If only walk, go 1.  If only walk, go method was used 2. Rickshaw/cart...... 2.  to Q9.17 2.  to Q9.30 2.  to Q9.43 to take her there? 3. Bus...................... 3.  3.  3.  4. Taxi/auto/trecker. . 4.  4.  4.  Multiple answers 5. Ambulance........... 5.  5.  5.  allowed. Check all 6. Other.................... 6.  6.  6.  that apply. 8. Don’t know........... 8.  8.  8.  9. Could not arrange 9.  ------ ------ 4.12.1 Please tell me the benefits of the card. 1. Subsidized ration 1. □ 2. Kerosene oil 2. □ Prompt: Is there anything else? 3. Housing 3. □ 4. Health care 4. □ Multiple answers allowed. Check all 5. Referral transport 5. □ choices that the respondent mentions. 6. Other 6. □ 9. Responses in units of time, distance or cost are recorded in blank spaces. If the answer requires fewer spaces than are provided, put a “0” in any unfilled spaces. For example: MAPEDIR Interviewers Reference Manual May 19, 2008 12
  • 13. How far is it from… 9.14 …home to fac 1? 9.27 …facility 1 to 2? 9.40 ..facility 2 to 3? _0_ _2_ _3_ km __ __ __ km __ __ __ km (<1=000; DK = 888) (<1=000; DK = 888) (<1=000; DK = 888) Always record the completed number. For example, the below woman may have been in labor for 15 hours and 45 minutes, so she completed 15 hours of labor. Also note that you should record “00” for any answer that is less than 1. 7.11 How long was she in labor? _1_ _5_ Hours (<1 hour = 00; DK = 88) 10. Section 9 (and questions 7.18.1 and 7.19.1) includes time questions that can be answered with more than one unit. Again, put a “0” in any unfilled spaces, as in the example: How long was she at this facility? 9.22 9.35 9.48 _0_ _1_ Days __ __ Days __ __ Days [Mark Days, Hours and/or Minutes as (DK = 88) (DK = 88) (DK = 88) needed. Example: 01 day, 05 hours and 30 minutes; _0_ _5_ Hours __ __ Hours __ __ Hours Example: 02 days, 03 hours and 00 (DK = 88) (DK = 88) (DK = 88) minutes] _3_ _0_ Minutes __ __ Minutes __ __ Minutes (DK = 88) (DK = 88) (DK = 88) 11. Some questions, as in the above examples, require you to enter the digit “8” in all the response boxes or spaces if the respondent does not know (DK) the answer, like this: 7.11 How long was she in labor? _8_ _8_ Hours (<1 hour = 00; DK = 88) 12. Answers that request more specific information provide a box or space for this purpose. Write the respondent’s answer in the box or space. For example: 7.24.1 If 1. Yes, specify: 13. Do not make any stray marks on the questionnaire. Always mark answer boxes in one of the ways shown above, entering either a number, tick mark (√) or specific response, as appropriate for the particular question. Do not mark any answer boxes with an “X” to show that this is not the answer. Just leave a box blank if the associated answer does not apply. Correcting mistakes If you make a mistake when marking your answers do not erase the information. Instead, cross it out neatly with one line so the original entry can still be read, and then mark the correct answer. Write your initials next to the correction, so anyone who later examines the completed format will know who made any changes in the answers. Corrections can be made only by the designated interviewer. In the following example, the interviewer wrote “1” for “Yes” by mistake. She crossed out the “1” with one line, recorded the correct answer and wrote her initials next to response box. 1. Yes 2. No 2 RS 8. Don’t know 1 MAPEDIR Interviewers Reference Manual May 19, 2008 13
  • 14. Here is an example of how to correct an answer for a question that allows multiple responses. 1. She was not sick enough to need health care 2. No one was available to accompany her √ RS 3. She had to attend to household duties √ 4. Transportation not available √ Skip patterns Required skips are indicated by an “If…” statement with a possible response choice that points to where you should go. For example, the following indicates to skip over question 4.5.1 if the answer to question 4.5 = 1, 3 or 8.  4.5 Was the main breadwinner… 1. fully employed? 2. seasonally employed? [Read the choices to the respondent] 3. unemployed 8. Don’t know If 1, 3 or 8, go to Q4.6 4.5.1 If seasonally employed (2), ask: About how many months per year did s/he work? __ __ Months (<1 = 00; DK = 88)  4.6 What is the family’s religion? 1. Hindu 2. Muslim 3. Christian 4. Other 8. Don’t know Also note that the question numbers are designed to help you follow the skip pattern. In the above example, question numbers 4.5 and 4.5.1 start the same because they are closely related. The major skip patterns in the questionnaire include:  Question 3.6 determines if the deceased woman was pregnant or within 6 weeks after a pregnancy ended. If not, then you skip over most of the rest of the interview to Section 10.  3.6 Was she pregnant at the time of death, or did she 1. Yes, die within 6 weeks after a pregnancy ended? pregnant or within 6 weeks after a [If the respondent is uncertain, then discuss that pregnancy ended If 2 or 8, go to the pregnancy could have been ended by an 2. No Section 10 abortion, stillbirth, delivery of the baby, or the 8. Don’t know woman’s death]  In Section 6, you determine whether this was an abortion, antenatal or labor and delivery death. The instructions will guide you to the correct questions. For example, question 6.5 determines if this was an abortion death. If not, then you would skip the following questions, which are about the details of an abortion, and go to question 6.9 to determine whether this was an antenatal death.  6.5 Did she die while having an 1. Yes, abortion or within 6 weeks after during an abortion having an abortion? 2. Yes, If 1, go to Q6.6 within 6 weeks after an If 3 or 8, go to Q6.9 (Antenatal) abortion 3. No 8. Don’t know If this was an abortion death, then you would continue with questions 6.6 to 6.8, where you would be told that this was an abortion death and to go to question 7.17. MAPEDIR Interviewers Reference Manual May 19, 2008 14
  • 15.  6.8 If the abortion was spontaneous, ask: 1. No one (completed Who completed the abortion? spontaneously) 2. Herself If the abortion was induced or don’t 3. Relative/friend This was an abortion death. know, ask: 4. Dai Who performed the abortion? 5. Quack After answering Q6.8, 6. ANM go to Q7.17 [Record the highest level provider 7. Nurse mentioned] 8. General doctor 9. Obstetrician 10.Other 88. Don’t know Similarly, the instructions for other questions will tell you if this was an antenatal or labor and delivery death and where to go to find the relevant questions.  Section 7 has blocks of questions for abortion, antenatal and labor and delivery deaths. Some blocks are for one type of death, and others are for more than one type. For example, the following instruction between questions 7.10 and 7.11 tells you to ask the next questions only if this was a labor and delivery death. Ask Q7.11 – 7.16 for Labor and Delivery deaths. If it was not a labor and delivery death, then you would skip to the next block of questions to determine if they are relevant for the type of death you are interviewing at that time.  In Section 9, after question 9.24 you may need to “skip” to question 9.25 on the previous page, and after question 9.37, you may need to “skip” to question 9.38 on the previous page. These questions are on the previous page due to the matrix format of Section 9. The matrix starts like this… – MATRIX QUESTIONS – FACILITY 1 FACILITY 2 FACILITY 3 After (deciding to seek care/she was 9.12 …home to fac1? 9.25 …facility1 to 2? 9.38 …facility2 to 3? referred), how long did it take to make the arrangement to go from… __ __ Days __ __ Days __ __ Days (DK = 88) (DK = 88) (DK = 88) [Discuss that this includes the time needed to arrange for transportation __ __ Hours __ __ Hours __ __ Hours and the money to pay for this and the (DK = 88) (DK = 88) (DK = 88) woman’s health care.] [Mark days, hours and/or minutes as needed. Example: 01 day, 05 hours and 30 __ __ Minutes __ __ Minutes __ __ Minutes minutes; (DK = 88) (DK = 88) (DK = 88) Example: 00 days, 02 hours and 10 minutes] and ends like this… If she was taken to another …go to Q9.25 …go to Q9.38 facility… (start of Facility 2) (start of Facility 3)  Also in Section 9, after questions 7, 17, 23, 30, 36 and 43, you must either continue with the next question or skip to Section 10 depending on the answer. MAPEDIR Interviewers Reference Manual May 19, 2008 15
  • 16. 8. Question-by-Question Instructions for the MAPEDIR Suspected Maternal Death Format SECTION 1: Available background information (to be filled out before the interview) Section 1 should be complete when you receive the format from your supervisor. It provides background information that was gathered by the death notifier, which you should use to help locate the correct household where a suspected maternal death occurred. 1.1 Name of deceased woman Knowing the woman’s name will help you locate the correct household for the interview and to communicate about the woman with the people you meet at the household. 1.2 Address of woman’s usual residence This is the deceased woman’s residence address. 1.3 Where did she stay during her fatal illness? ONE ANSWER WILL BE RECORDED: 1. her own home (other than with her in-laws); 2. her in-law’s home; 3. her parents’ home; 4. formal health facility where she (aborted/labored and delivered); 5. other (specify); 8. Don’t know. This is where you must go to complete the interview since the best respondent(s) are the people who were with her during the illness. 1.4 What is the address of this place (where she stayed during her fatal illness)? This is the address of the place in Q1.3 where you must go to complete the interview. If the woman stayed at her usual residence during the illness, then the answer will be the same as in Q1.2. This is also the basis for the woman’s identification number that you must write at the top of each page of the questionnaire. If any of the pages become separated, this number will allow the proper pages to be put back together. This will also be the woman’s identification number for the computer record of the MAPEDIR interview. 1.5 Name of head of household of this place (where she stayed during her fatal illness) Knowing the name of the head of the household will help you locate the correct household. 1.6 Relationship of head of household of this place (where she stayed during her fatal illness) to the woman Knowing the relationship of the head of the household to the woman will help you locate the correct household. 1.7 Date of woman’s death The day, month and year should be recorded. This can also help you locate the correct household and ensure that you conduct the interview about the correct woman. 1.8 Date of death notification This is the date that the death notifier gathered the information on the cover sheet. 1.9 Key informant’s name This is the person who reported the woman’s death to the death notifier. S/he may be able to help you locate the household where the woman stayed during her illness. SECTION 2: Information about the interview 2.1 Interviewer’s name RECORD YOUR NAME IN THIS SPACE. 2.2 Interviewer’s designation RECORD YOUR REGULAR WORK POSITION, SUCH AS ICDS SUPERVISOR or ANM. 2.3 Recorder’s name WRITE THE RECORDER’S NAME FOR THE INTERVIEW IN THIS SPACE. MAPEDIR Interviewers Reference Manual May 19, 2008 16
  • 17. 2.4 Recorder’s designation WRITE THE RECORDER’S REGULAR WORK POSITION, SUCH AS NGO SUPERVISOR. 2.5 Date of first interview RECORD THE DATE OF THE FIRST INTERVIEW FOR THIS DEATH. 2.6 Date of last interview RECORD THE DATE OF THE LAST INTERVIEW FOR THIS DEATH. The interview might take more than one visit if, for example, you need to return to complete the interview with one respondent or if you need to interview a second respondent to get the full story. SECTION 3: Background information from respondents INSTRUCTION: Introduce yourself and the purpose of your visit. Say that we are trying to improve the care of women and children. Ask to speak to the person(s) who knows the most about the circumstances of the woman’s death. This might be her sister, mother, mother-in-law or other person. In some cases you may need to speak with more than one person to learn about different stages of the illness. If someone you need to speak with is not available, arrange a time to return when s/he will be home. Read the consent form to the respondent(s) and ask for her/his participation. Each respondent must consent to be interviewed. This instruction is a brief reminder of how to introduce yourself to the household and respondent(s). Sections 5 and 6 of this manual provide more information on this topic. This is the time when you must read the informed consent form to the potential respondent(s), invite them to make their mark, and sign the form to testify that they consented to be interviewed. Any person who does not consent should not be included in the interview. If no potential respondent(s) consent to be interviewed, then you must stop the interview at this point. 3.1-3.3 Relationship of the respondent(s) to the deceased woman, and when they were with her during her fatal illness. Use one row (3.1-3.3) for each respondent. Record the respondent’s relationship to the woman, such as her husband or sister. Then ask each respondent when (during the pregnancy, during the (labor and delivery/abortion), when she died) they were with her. It is best for a person to be the respondent only for stage(s) of the illness when they were actually with the woman. Remember, each respondent must be at least 18 years old. RECORD ONE ANSWER: 1. Yes; 2. No for each stage for each respondent. The rest of Section 3 is where you decide whether or not the woman died a maternal death. This will determine whether you complete the entire interview or just the cause of death and open history sections at the end of the format. Begin by reading the following statement, which will help maintain the flow of the interview. Read: First I would like to ask you about the circumstances of ________’s death. Remember to say the woman’s name where the blank appears. 3.4 What was ________’s age at the time of death? Young girls and older women are more likely to die from a maternal cause than women in their 20’s and 30’s. Even if the respondent does not know the woman’s exact age it can help to know her approximate age. INSTRUCTION: Estimate if not known exactly. RECORD THE EXACT OR ESTIMATED AGE IN COMPLETED YEARS. Don’t know = 88. 3.5 Where did she die? If the woman died at a health facility, you will ask for the name and address of the facility in Section 9 of the interview. RECORD ONE ANSWER: 1. Home (her, relative’s, friend’s, informal provider’s); 2. Hospita/Other formal health facility; 3. On route to a formal health facility; 4. On route to home from a health facility; 5. Other; 8. Don’t know. MAPEDIR Interviewers Reference Manual May 19, 2008 17
  • 18. 3.6 Was she pregnant at the time of death, or did she die within 6 weeks after a pregnancy ended? INSTRUCTION: If the respondent is uncertain, then discuss that the pregnancy could have been ended by an abortion, stillbirth, delivery of the baby, or the woman’s death. The answer should be “Yes” if the woman died at any time during pregnancy or within 6 weeks after a pregnancy ended. This includes during pregnancy, during or after labor and delivery (of a live infant or a stillbirth), and during or after a spontaneous or induced abortion, including an MTP. As instructed, discuss any situation about which the respondent is uncertain, to help ensure that the answer is correct. MARK ONE ANSWER: 1. Yes, pregnant or within 6 weeks after a pregnancy ended; 2. No; 8. Don’t know. SKIP INSTRUCTION: If 2 or 8, go to Section 10. If Section 10 or the open history indicate this was a maternal death, then return to Section 4. SECTION 4: Information about the woman and her family 4.1 How many years of school did _________ complete? Women with fewer years of schooling generally have poorer health and their babies are less healthy than those of more educated women. RECORD THE NUMBER OF YEARS. Less than 1 year = 00; Don’t know = 88. 4.2 At the time of her death, was she… INSTRUCTION: Read the choices to the respondent. Unmarried girls and women have less access to resources and so are more likely to die if they have a pregnancy complication. Unmarried girls are also more likely to have an unsafe illegal abortion. RECORD ONE ANSWER: 1. married; 2. widowed; 3. divorced or separated; 4. single (never married); 8. Don’t know. SKIP INSTRUCTION: If 4 or 8, go to Q4.3. (The next two questions are asked only if the woman was ever married.) 4.2.1 What was _________’s age when she (first) married? INSTRUCTION: Try to determine before starting the interview if the woman was married one time or more. Read “first” if she was married more than once. Some girls may marry when they are very young but continue to live with their parents. In such cases, we consider her to be first married when the marriage is consummated. Getting married early leads to having the first pregnancy when young. This increases the risk of suffering a maternal death. RECORD THE ANSWER IN YEARS. Don’t know = 88. 4.2.2 How many years of school did her husband complete? Families where the husband had less schooling usually have fewer resources than other families. This can make it more difficult to raise the funds needed to deal with an emergency, so might increase a woman’s risk for maternal death. RECORD THE ANSWER IN YEARS. Less than 1 year = 00; Don’t know = 88. 4.3 Who was the main breadwinner in her family? RECORD ONE ANSWER: 1. Husband; 2. Herself; 3. Other. 4.4 What was main breadwinner’s occupation? “Occupation” means the breadwinner’s usual type of work, for example, tailor, laborer or farmer. Different occupations pay different amounts of money, so this can affect the family’s resources available for an emergency. RECORD THE BREADWINNER’S OCCUPATION. 4.5 Was the main breadwinner… INSTRUCTION: Read the choices to the respondent. The main breadwinner’s employment affects the resources that are available to the family for emergencies. RECORD ONE ANSWER: 1. fully employed; 2. seasonally employed; 3. unemployed; 8. Don’t know. “Seasonally employed” means the breadwinner worked less than 12 months per year. SKIP INSTRUCTION: If 1, 3 or 8, go to Q4.6. 4.5.1 If seasonally employed (2), ask: About how many months per year did s/he work? RECORD THE NUMBER OF MONTHS. Less than 1 month = 00; Don’t know = 88. MAPEDIR Interviewers Reference Manual May 19, 2008 18
  • 19. 4.6 What is the family’s religion? Knowing the family’s religion helps us describe the women who died and understand if there is a particular group on which we need to focus extra attention to decrease maternal mortality. RECORD ONE ANSWER: 1. Hindu; 2. Muslim; 3. Christian; 4. Other; 8. Don’t know. 4.7 What is the family’s caste? Knowing the family’s caste helps us describe the women who died and understand if there is a particular group on which we need to focus extra attention to decrease maternal mortality. RECORD ONE ANSWER: 1. SC; 2. ST; 3. Other; 8. Don’t know. 4.8 What type of house does the family live in? The type of house affects the family’s living conditions and shows how well or poor off they are. RECORD ONE ANSWER: 1. Kutcha; 2. Kutcha-Pucca; 3. Pucca; 8. Don’t know. 4.9 Does the family have its own toilet? This information helps us gain an increased understanding of the family’s living conditions, and how well or poor off they are. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know. 4.10 Does the house have electricity? This information helps us gain an increased understanding of the family’s living conditions, and how well or poor off they are. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know. 4.11 Does the family have a BPL card? If many families with a maternal death have a BPL card, then the BPL benefits might be used as part of an intervention program. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know. 4.12 Do you know about the benefits of the BPL card? Even if a family has a BPL card, they can benefit from this only if they know what it entitles them to and how to access these benefits. RECORD ONE ANSWER: 1. Yes; 2. No. SKIP INSTRUCTION: If 2, go to Section 5 4.12.1 Please tell me the benefits of the card. INSTRUCTION: Prompt: Is there anything else? Multiple answers allowed. Check all choices that the respondent mentions. (See general instruction 7 on page 13 for how to follow this instruction.) RECORD ALL THE RESPONDENT’S ANSWERS: 1. Subsidized ration; 2. Kerosene oil; 3. Housing; 4. Health care; 5. Referral transport; 6. Other. SECTION 5: Pregnancy history Read: Now I would like to ask you about ________’s past pregnancies. 5.1 Not including the current pregnancy how many times was she ever pregnant, whether a child was born or not? The “current pregnancy” is the one that resulted in the woman’s death. A woman’s risk of maternal death is increased in her first pregnancy and if she has had many prior pregnancies. If need be, clarify for the respondent that you mean all past pregnancies, even those resulting in an abortion or stillbirth. RECORD THE TOTAL NUMBER OF PAST PREGNCIES. Don’t know = 88. SKIP INSTRUCTION: If 00, go to Section 6 5.2 How many of her past pregnancies ended in a birth, including stillbirths? “Past pregnancies” are all those before the current one. RECORD THE NUMBER OF PAST PREGNANICES THAT ENDED IN A BIRTH. Don’t know = 88. SKIP INSTRUCTION: If 00, go to Section 6. 5.3 Were any of her past pregnancies delivered by a C-section? A past C-section can increase the chance that a woman’s uterus will rupture and bleed during the delivery of her current pregnancy. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know. MAPEDIR Interviewers Reference Manual May 19, 2008 19
  • 20. SECTION 6: Circumstance of the woman’s death (and the baby’s outcome) Read: Now I would like to ask you about ______’s general health and her current pregnancy. 6.1 Did _________ have any of the following problems before the pregnancy began? INSTRUCTION: Read the problems list slowly and check “Yes,” “No” or “Don’t know” for each. The woman may have had a chronic condition that was not diagnosed by a doctor or nurse, such as TB or epilepsy. These might have caused her to cough blood or have fits (convulsions). RECORD “YES,” “NO” OR “DON’T KNOW” FOR EACH CONDITION: 1. Coughing blood; 2. Fits; 3. Other. If one of the answers is “3. Other,” write the details in the space provided. 6.2 Was she ever told by a doctor or nurse that she had any of the following illnesses before her pregnancy began? INSTRUCTION: Read the problems list slowly and check “Yes,” “No” or “Don’t know” for each. Some maternal deaths are due to the pregnancy causing an existing condition to worsen. Only record conditions identified by a doctor or nurse. RECORD “YES,” “NO” OR “DON’T KNOW” FOR EACH CONDITION: 1. Anemia; 2. Heart disease; 3. Diabetes; 4. Cancer; 5. Hypertension; 6. Tuberculosis; 7. Epilepsy; 8. Other. If one of the answers is “8. Other,” specify the details in the space provided. 6.3 How many months did the current pregnancy last? This is basic information we need for every maternal death. RECORD THE NUMBER OF COMPLETED MONTHS. For example, if the respondent says 7 months and 3 weeks then record 07 months; and if the answer is 8 and one-half months then record 08 months. Don’t know = 88. 6.4 Did ________ seek any antenatal care for the pregnancy from an ANM, nurse or qualified doctor? Antenatal care is important both for a woman’s health and that of her baby. Note that we are asking about antenatal care from a formal provider. If the woman received antenatal care only from an informal provider, such as a dai or quack, then the answer is “2. No.” RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know. SKIP INSTRUCTION: If 2 or 8, go to Q6.5 6.4.1 If yes, ask: How many times did she receive antenatal care from an ANM, nurse or qualified doctor? Women should make at least three antenatal care visits during a pregnancy. RECORD THE NUMBER OF TIMES. Don’t know = 88. Read: Now, I’d like to ask you about the circumstances of __________’s death. 6.5 Did she die while having an abortion or within 6 weeks after having an abortion? Any pregnancy that ends spontaneously at 5 or fewer completed months or that is induced (including MTP) at any time with the intent to kill the fetus is considered an abortion. The answer should be “No” if the pregnancy ended spontaneously at 6 or more completed months. The answer should be “Yes” if the woman died either during an abortion or within 6 weeks after an abortion. RECORD ONE ANSWER: 1. Yes, during an abortion; 2. Yes, within 6 weeks after an abortion; 3. No; 8. Don’t know. SKIP INSTRUCTION: If 1, go to Q6.6. If 3 or 8, go to Q6.9 (Antenatal). (This means that the Antenatal questions begin with question 6.9.) Abortion questions follow – Ask these questions only if she died during or after an abortion This instruction guides you to ask the following questions only for abortion deaths. 6.5.1 If she died after an abortion, ask: How many days after the abortion did she die? RECORD THE NUMBER OF COMPLETED DAYS. For example, 1 day and 4 hours = 01 day. Less than 1 day = 00; Don’t know = 88. 6.6 Was the abortion spontaneous or induced, including MTP? “Spontaneous” means the abortion happened on its own. This is the same as a miscarriage. “Induced” means someone purposefully ended the pregnancy. “MTP” (medical termination of MAPEDIR Interviewers Reference Manual May 19, 2008 20
  • 21. pregnancy) means a medical practitioner induced the abortion. RECORD ONE ANSWER: 1. Spontaneous; 2. Induced, including MTP; 8. Don’t know. SKIP INSTRUCTION: If 1or 8, go to Q6.7 6.6.1 If the abortion was induced, ask: How was it induced? This question may bring risky practices to light. Oral medicine is least risky. Anything inserted in the vagina can cause bleeding or infection. Instrumentation is most risky. INSTRUCTION: Record the highest risk method mentioned. RECORD ONE ANSWER: 1. Oral medicine; 2. Traditional vaginal herbal application; 3. Vaginal tablet; 4. Instrumentation; 8. Don’t know. 6.7 If the abortion was spontaneous, ask: Where was the abortion completed? If the abortion was induced or don’t know, ask: Where did she have the abortion? This question is asked differently depending on whether the abortion was spontaneous or induced. Often, a spontaneous abortion will need to be completed medically in order to stop the bleeding. RECORD ONE ANSWER: 1. Home (her, relative’s, friend’s, informal provider’s); 2. Sub-center; 3. PHC/BPHC; 4. Government hospital; 5. Private clinic/center; 6. Private hospital; 7. On route to formal health facility; 8. Other; 88. Don’t know 6.8 If the abortion was spontaneous, ask: Who completed the abortion? If the abortion was induced or don’t know, ask: Who performed the abortion? This question is asked differently depending on whether the abortion was spontaneous or induced. INSTRUCTION: Record the highest level provider mentioned. This information may help focus a plan to prevent abortion-related deaths. RECORD ONE ANSWER: 1. No one (completed spontaneously); 2. Herself (the woman); 3. Relative/friend; 4. Dai; 5. Quack; 6. ANM; 7. Nurse; 8. General doctor; 9. Obstetrician; 10. Other; 88. Don’t know. SKIP INSTRUCTION: This was an abortion death. After answering Q6.8, go to Q7.17. Knowing this was an abortion death will guide you through Sections 6 and 7. The next abortion questions start with Q7.17. Antenatal questions follow – Ask these questions only if she did not die during or after an abortion This instruction is to help guide you through the questionnaire. It follows-up the skip instruction from question 6.5, which was “If 3 or 8, go to Q6.9 (Antenatal).” It is like a stone in a creek. You jump from Q6.5 to the stone and then from the stone to Q6.9. If the answer to Q6.5 was 1 or 2 (abortion), you would have asked Q6.6-6.8 and then skipped to Q7.17. 6.9 Did she die while still pregnant, before labor began? RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know. SKIP INSTRUCTION: If 2 or 8, go to Q6.11 (L&D). (The Labor and Delivery questions begin with question 6.11. You would skip to the L&D questions because this would not be an Abortion death or an Antenatal death.) 6.10 How long was the illness that led to her death? INSTRUCTION: Convert response to days: use 1 month = 30 days. We will better understand the illness if we know how long it lasted. RECORD THE NUMBER OF COMPLETED DAYS: For example, if 6 days and 9 hours, record 006 days. Less than 1 day = 000; Don’t know = 888. SKIP INSTRUCTION: This was an antenatal death. After answering Q6.10, go to Q7.1. The next questions for Antenatal deaths begin with Q7.1 Labor and Delivery questions follow – Ask these questions only if she did not die before labor began This instruction is just like the above ‘skipping stone’ for Antenatal deaths. 6.11 Did she die while in labor or delivery or within 6 weeks after delivery, including a stillbirth? RECORD ONE ANSWER: 1. Yes, during labor and delivery; 2. Yes, within 6 weeks after the delivery; 3. No; 8. Don’t know. SKIP INSTRUCTION: If 1, go to Q6.12. If 3 or 8, go to Section 10. You would skip the rest of Section 6, which is only for Labor and Delivery deaths. You would also skip Sections 7-9 because you would have just determined that this also was neither an abortion nor antenatal death. However, these findings could be mistaken since you would have arrived at Section 6 only after learning from question 3.6 that this was a maternal MAPEDIR Interviewers Reference Manual May 19, 2008 21
  • 22. death. Section 10 and the open history may help you clarify the situation, after which you can return to the correct part of Section 6 and then continue with Section 7. 6.11.1 If she died after the delivery, ask: How many days after the delivery did she die? Knowing how long after the delivery she died can help us determine the cause of her death. RECORD THE NUMBER OF COMPLETED DAYS. Less than 1 day = 00; Don’t know = 88. 6.12 Did she have a plan where to delivery the baby? Having a plan for where to deliver is an important part of “birth readiness.” RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know. SKIP INSTRUCTION: If 2 or 8, go to Q6.13 6.12.1 If she had a delivery plan, ask: Where was it planned for the baby to be delivered? This is a follow-up question to 6.12. RECORD ONE ANSWER: 1. Home (her, relative’s, friend’s, informal provider’s); 2. Sub-center; 3. PHC/BPHC; 4. Government hospital; 5. Private clinic/center; 6. Private hospital; 7. Other; 8. Don’t know. 6.13 Where did she (labor/deliver the baby)? INSTRUCTION: Read “labor” if she died before delivering. RECORD ONE ANSWER: 1. Home (her, relative’s, friend’s, informal provider’s); 2. Sub-center; 3. PHC/BPHC; 4. Government hospital; 5. Private clinic/center; 6. Private hospital; 7. On route to formal health facility; 8. Other; 88. Don’t know. SKIP INSTRUCTION: If 1, 8 or 88, go to Q6.14. 6.13.1 If at or on route to a health facility, ask: What is the name and address of the health facility? RECORD THE NAME AND ADDRESS OF THE FACILITY. 6.13.2 When she started out for the health facility, was she in normal labor or had her illness already begun? Delivery complications can occur at any time, so it is best for women to go to a health facility even if their labor is normal. Response choice 3 is for women who went for any other reason and their problem started while at the facility. RECORD ONE ANSWER: 1. Normal labor; 2. Her illness had already begun; 3. Went for any other reason (e.g., ANC); 8. Don’t know. 6.14 Who attended the (labor/delivery)? INSTRUCTIONS: Read “labor” if she died before delivering. Record the highest level provider mentioned. It is best for a skilled birth attendant to deliver the baby. RECORD ONE ANSWER: 1. Herself; 2. Relative/friend; 3. Dai; 4. Quack; 5. ANM; 6. Nurse; 7. General doctor; 8. Obstetrician; 9. Other; 88. Don’t know. 6.15 How was the (baby delivered/delivery attempted)? INSTRUCTION: Read “delivery attempted” if she died before delivering.” RECORD ONE ANSWER: 1. Spontaneous vaginal (no drugs); 2. Mechanically induced (forceful external pushing); 3. Induced with drugs; 4. Forceps; 5. C-section; 8. Don’t know. 6.16 What part of the baby came out first? If the baby’s buttocks, feet or hand came out first, then this could have been a difficult delivery. RECORD ONE ANSWER: 1. Head; 2. Buttocks/Feet; 3. Hand; 4. No part delivered. 8. Don’t know. SKIP INSTRUCTION: If 4, go to Section 7. 6.17 What was the baby’s outcome? The baby has a high risk of dying if the mother dies. RECORD ONE ANSWER: 1. Not delivered at time of mother’s death; 2. Stillbirth; 3. Born alive and died; 4. Currently alive; 8. Don’t know. SKIP INSTRUCTIONS: If 1, 2, 4 or 8, go to Section 7. 6.17.1 If born alive and died (3), ask: How many days old was the baby at death? Ask this question only if the answer to question 6.17 is “3. Born alive and died.” RECORD THE ANSWER IN DAYS. Less than 1 day = 000; Don’t know = 888. This was a labor and delivery death. Continue with Section 7. This is another ‘skipping stone’ that tells you the type of death this was (L&D) and where to continue. MAPEDIR Interviewers Reference Manual May 19, 2008 22
  • 23. SECTION 7: Illness complications Read: Now, I’d like to ask you about the problems __________ had during the last part of her pregnancy and the fatal illness. This statement helps make the transition from determining the type of maternal death (abortion, antenatal, labor and delivery) to identifying the woman’s illness symptoms and cause of death. Section 7 is organized into blocks of questions about the main symptoms that occur with the three types of maternal death. You have already determined the type of maternal death in Section 6. Use that information to decide which question blocks to ask. Ask Q7.1 – 7.10 for Antenatal and Labor and Delivery deaths. This is a ‘staying stone’ instruction that tells you to ask the following questions if you determined in Section 6 that this was an Antenatal or Labor and Delivery death. The questions are about illness symptoms that can occur with these deaths. The causes of maternal death associated with these symptoms are discussed on page 4 of this manual. 7.1 During the last part of the pregnancy, was she breathless or very weak when doing her usual work? Being breathless or weak when doing your usual work is sign of anemia. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know 7.2 During the last part of the pregnancy or the fatal illness, were her eyes or hands more pale than usual? Pallor is also a sign of anemia. We ask about pallor (and symptoms 7.3 – 7. 7) during pregnancy or the fatal illness because women who died after delivering could have had these symptoms at one or both times. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know 7.3 During the last part of the pregnancy or the fatal illness, did a doctor or nurse tell her that she had anemia? The answer should be “Yes” only if a doctor or nurse made this diagnosis. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know 7.4 During the last part of the pregnancy or the fatal illness, did she have blurred vision? Blurred vision is a sign of severe pre-eclampsia. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know. 7.5 During the last part of the pregnancy or the fatal illness, did she have a severe headache? Severe headache is a sign of severe pre-eclampsia. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know 7.6 During the last part of the pregnancy or the fatal illness, did a doctor or nurse tell her that she had high blood pressure? This is also sign of pre-eclampsia. The answer should be “Yes” only if a doctor or nurse made this diagnosis. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know 7.7 During the last part of the pregnancy or the fatal illness, did she have swelling of the hands or face? This is a also sign of pre-eclampsia. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know 7.8 During the fatal illness, did she have severe swelling of the legs? This could be a sign of heart failure that may be due to severe anemia. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know. 7.9 During the fatal illness, was it very difficult for her to breathe? This could also be a sign of heart failure due to severe anemia. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know. MAPEDIR Interviewers Reference Manual May 19, 2008 23
  • 24. 7.10 Did she have convulsions during the fatal illness? Having convulsions could mean that the woman died from eclampsia. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know. SKIP INSTRUCTION: If this was an antenatal death, go to Q7.19. (Questions 7.11 – 7.18 are only for Labor and Delivery and Abortion deaths.) Ask Q7.11 – 7.16 for Labor and Delivery deaths. This is a ‘staying stone’ instruction that tells you to ask the following questions if you determined in Section 6 that this was a Labor and Delivery death. The questions do not start with “During labor and delivery…” because it is clear from the questions that you are asking about this period. 7.11 How long was she in labor? “Labor” begins when the woman has regular contractions no more than 10 minutes apart. Labor usually lasts less than 12 hours. RECORD THE COMPLETED NUMBER OF HOURS. Less than 1 hour = 00; Don’t know = 88. 7.12 For how long did she have to make an effort? “Make an effort” is the pushing a woman does at the end of labor to deliver the baby. This effort usually lasts less than 2 hours. RECORD THE COMPLETED NUMBER OF HOURS. Less than 1 hour = 00; Don’t know = 88. 7.13 Did she have labor pain that was worse than normal labor pain and that started suddenly? This is a sign of a ruptured uterus, which can result in severe bleeding. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know 7.14 Did she have labor pain that improved or stopped suddenly? This is a sign of a ruptured uterus. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know 7.15 Was her liquor (amniotic fluid) foul smelling? Foul smelling liquor is a sign of pelvic infection. You can read “amniotic fluid” if this helps the respondent understand the question. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know 7.16 How long after the baby’s birth did the placenta come out? The placenta should come out within one hour after the baby is delivered. Retained placenta can lead to postpartum hemorrhage. RECORD THE COMPLETED NUMBER OF HOURS. If the woman died before the placenta came out, then record that it never came out. Less than 1 hour = 00; Don’t know = 88; Never = 99. Ask Q7.17 – 7.18 for Abortion and Labor and Delivery deaths. This is a ‘staying stone’ instruction that tells you to ask the following questions if you determined in Section 6 that this was an Abortion or Labor and Delivery death. The questions are about illness symptoms that can occur with Abortion and Labor and Delivery deaths. 7.17 Did she have abdominal pain that did not go away (after the abortion/between the contractions/after the delivery)? Continuous abdominal pain is a sign of pelvic infection, which can occur after an abortion, during labor or after delivery. Depending on during which of these times the woman died, read either “after the abortion,” “between the contraction” or “after the delivery.” RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know. 7.18 Did she have foul smelling vaginal discharge (after the abortion/during [or after] the delivery)? INSTRUCTION: Read “…during or after…” if she died postpartum. Foul smelling discharge is a sign of pelvic infection, which can occur after an abortion, or during labor or after delivery. Depending on during which of these times the woman died, read either “after the abortion,” “during the delivery” or “during or after the delivery.” RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know. SKIP INSTRUCTION: If 2 or 8, go to Q7.19. MAPEDIR Interviewers Reference Manual May 19, 2008 24
  • 25. 7.18.1 For Abortion deaths only: How long after the abortion did the discharge start? This question is asked only for abortion deaths with discharge. INSTRUCTION: Mark days and/or hours as needed. If the discharge started before, during or less than 1 hour after the abortion, then record 00 hours. Knowing when the discharge started will help us determine if infection was the cause of death. RECORD THE NUMBER OF COMPLETED DAYS AND/OR HOURS. Less than 1 hour = 00; Don’t know = 88. Ask Q7.19 – 7.24 for All deaths. This is a ‘staying stone’ instruction that tells you to ask the following questions for all deaths. The questions are about illness symptoms that can occur with all types of maternal deaths. 7.19 Did she have fever during the fatal illness? Fever is a sign of infection. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know. SKIP INSTRUCTION: If 2 or 8, go to Q7.20 7.19.1 For Abortion deaths only: How long after the abortion did the fever start? This question is asked only for abortion deaths with fever. INSTRUCTION: Mark days and/or hours as needed. If fever started before, during or less than 1 hour after the abortion, then record 00 hours. Knowing when the fever started will help us determine if infection was the cause of death. RECORD THE NUMBER OF COMPLETED DAYS AND/OR HOURS. Less than 1 hour = 00; Don’t know = 88. 7.20 Did she have any vaginal bleeding (during the abortion/during the last part of the pregnancy/before the delivery)? It is normal to have light bleeding with an abortion or delivery, but not during pregnancy. Read the correct words in the parentheses depending on whether she had an abortion, antenatal, or labor and delivery death. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know. SKIP INSTRUCTION: If 2 or 8, go to Q7.21. 7.20.1 Did she feel cold to touch after this bleeding started? “Cold to touch” means that she felt cold to someone else who touched her. This would usually be due to heavy bleeding. However, the woman could have internal bleeding that was hidden. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know. 7.21 During the fatal illness, did she have vaginal bleeding that was too heavy? Heavy bleeding might indicate that this was the cause of the woman’s death. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know. SKIP INSTRUCTION: If 2 or 8, go to Q7.22. 7.21.1 Did she feel cold to touch after the heavy bleeding started? “Cold to touch” means that she felt cold to someone else who touched her. This would be due to very heavy bleeding. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know. 7.21.2 For deaths After Delivery only, ask: Did the heavy bleeding start… This question is asked only for deaths after delivery with heavy bleeding. INSTRUCTION: Read the choices slowly and mark one answer. RECORD ONE ANSWER: 1. before the delivery; 2. during the delivery; 3. after the delivery; 8. Don’t know. 7.21.3 For deaths After Delivery only, ask: How long after the heavy bleeding started did she die? This question is asked only for deaths after delivery with heavy bleeding. If she died quickly this would indicate that the bleeding was very heavy. RECORD THE NUMBER OF COMPLETED HOURS. Less than 1 hour = 00; Don’t know = 88. 7.22 During the fatal illness, did she become semiconsciousness? Reduced consciousness is a sign of severe illness that could be due to a pelvic infection or malaria. RECORD ONE ANSWER: 1. Yes; 2. No; 8. Don’t know. MAPEDIR Interviewers Reference Manual May 19, 2008 25