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ROJoson PEP Talk: HEALTHCARE DECISIONS DAY AWARENESS

22 de Mar de 2023
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ROJoson PEP Talk: HEALTHCARE DECISIONS DAY AWARENESS

  1. HEALTHCARE DECISIONS DAY AWARENESS April 01, 2023 1400H - 1500H Via Zoom Empowerment objective - for laypeople to have a basic understanding of the HEALTHCARE DECISIONS DAY AWARENESS in their health management.
  2. HEALTHCARE DECISIONS DAY AWARENESS April 01, 2023 1400H - 1500H Via Zoom Empowerment objective - for laypeople to have a basic understanding of the HEALTHCARE DECISIONS DAY AWARENESS in their health management. Welcome all! MUTE yourself but always show your video picture. Sign in your name, FB account, or email address in the Chat Box! Include names of companions attending. Use the Chat Box to ask questions and make comments while the PEP TALK is on. Group pictures at start and end of PEP TALK – show your face in video.
  3. Reminder after the PEP Talk: Take the Online Learning cum Evaluation Test Exercise (OLETE) for mastery of learning and have a perfect score to get a Certificate. Link is in Chat Box.
  4. Reminder: 50 OLETE Certificates = 1 Voucher for ROJoson Telemedical Consultation
  5. HEALTHCARE DECISIONS DAY AWARENESS Empowerment objective - for laypeople to have a basic understanding of the HEALTHCARE DECISIONS DAY AWARENESS in their health management. ROJOSON’S REQUEST: FEEDBACK TO THIS PEP TALK! Pls. type in your feedback in the chat box during the open forum and before we adjourn! Thank you!
  6. HEALTHCARE DECISIONS DAY AWARENESS Empowerment objective - for laypeople to have a basic understanding of the HEALTHCARE DECISIONS DAY AWARENESS in their health management. LET’S NOW HAVE A GROUP PICTURE TAKING BEFORE WE START PEP TALK PROPER IN 2 MINUTES! Pls. turn on your video! Show your face!
  7. HEALTHCARE DECISIONS DAY AWARENESS Empowerment objective - for laypeople to have a basic understanding of the HEALTHCARE DECISIONS DAY AWARENESS in their health management. ROJoson PEP Talk I have a Patient Empowerment Program in which I like to empower the lay people or patients to take control in the management of their health.
  8. I started the PEP Talk on May 15, 2021. There are 3 courses in the PEP Talk. I completed the Core Course on October 9, 2021.
  9. From October 23, 2021 onwards, I have been tackling Health Disorder and Health Issue Courses. This may take 3 years or longer depending on our enthusiasm and perseverance.
  10. HEALTHCARE DECISIONS DAY AWARENESS Empowerment objective - for laypeople to have a basic understanding of the HEALTHCARE DECISIONS DAY AWARENESS in their health management. My PEP TALK today is entitled: HEALTHCARE DECISIONS DAY AWARENESS in consonance with the advocacy of HEALTHCARE DECISIONS DAY in April 16, 2023 (USA)
  11. Contents • What is Healthcare Decisions Day? • What are Advance Healthcare Directives? • What are the benefits of Advance Healthare Directives? • What are 2 initiatives that try to facilitate making of a formal Advance Healthcare Directives? • Samples of ROJoson Advance Healthcare Directives and 5 Wishes HEALTHCARE DECISIONS DAY AWARENESS
  12. Healthcare Decisions Day is a project started in the USA (2008) used to inspire, educate and empower the public and providers (healthcare providers) about the importance of advance health care planning. - an initiative to encourage patients to express their wishes regarding healthcare and for providers and facilities to respect those wishes, whatever they may be. HEALTHCARE DECISIONS DAY AWARENESS
  13. I am glad that America is continually promoting awareness of the importance of the advance directives. In America, April 16 has been declared on National Healthcare Decisions Day, “part of a national campaign to encourage Americans to complete their advance directives or living wills and document their desires regarding medical treatment at the end of life. ” http://www.nhdd.org I support this project. HEALTHCARE DECISIONS DAY AWARENESS There is NO such formal and wide- scale initiative yet in the Philippines.
  14. In the Philippines, I think we should also have a national campaign similar to that in the USA to encourage more Filipinos to make their advance directives or living wills. Awareness and advocacy campaigns should be conducted by both physicians and health care institutions regardless of specialty. The campaigns should not be delegated to the hospice specialists only. HEALTHCARE DECISIONS DAY AWARENESS
  15. Advance care planning starts with talking with your loved ones, your healthcare providers, and even your friends - all are important steps to making your wishes known. These conversations will relieve loved ones and healthcare providers of the need to guess what you would want if you are ever facing a healthcare or medical crisis. HEALTHCARE DECISIONS DAY AWARENESS
  16. Advance directives are the main targets of the Healthcare Decisions day. “Advance Directives” are legal documents (Living Will and Healthcare Power of Attorney) that allow you to plan and make your own end- of-life wishes known in the event that you are unable to communicate. http://www.caringinfo.org/i4a/pages/index.cfm ?pageid=3537 HEALTHCARE DECISIONS DAY AWARENESS
  17. As early as 2006, I have made a formal declaration of my wishes on how I am going to die. I have made an advance directive or living will, the other term for an advance directive. I have been regularly updating my advance directive almost every year. HEALTHCARE DECISIONS DAY AWARENESS
  18. I have not have my living will notarized since 2006. I felt it is NOT necessary. I personally think, especially, in the context of my family environment, it is enough that my immediate and extended family members know that I have such a documented will and they know my wishes. HEALTHCARE DECISIONS DAY AWARENESS A common practice or expectation though is that advance directives should be notarized making them legal documents to prevent conflicts between patients and relatives; among relatives; and patients, relatives and healthcare providers.
  19. For me and for others ----- Advance directives will be of great help to my family members, physicians, and also to myself in decision-making during my end-of-life stage. Foremost, they will help me die with dignity and with shortest duration of agony. They will also keep my hospitalization and medical expenses to just a “necessary “minimum. HEALTHCARE DECISIONS DAY AWARENESS
  20. In the past and at present, I have seen quite a number of patients and relatives suffering, physically, emotionally, and financially, that could have been minimized if not avoided by the presence of advance directives and end-of-life counseling by physicians. HEALTHCARE DECISIONS DAY AWARENESS
  21. My advance directive ROJoson Advance Health Care Directive and Implementing Guidelines and Instructions can be seen in https://rojoson.wordpress.com/2021/08/28/rojoson- advance-health-care-directive-and-implementing- guidelines-and-instructions/ HEALTHCARE DECISIONS DAY AWARENESS
  22. It is not easy to make an “advance directive.” A lot of people - Do not want to talk and more so, to think about death, the inevitable event for everyone. - Do not know the healthcare problems and challenges during the near-end of life. - Do not know what to place in a healthcare advance directive or living will. HEALTHCARE DECISIONS DAY AWARENESS Advocates of Advance Directive are trying their best to promote the initiative through various “friendly strategies, such as • The Conversation Project • The 5 Wishes
  23. The Conversation Project of the Institute for Healthcare Improvement is dedicated to helping people talk about their wishes for care through the end of life so those wishes can be understood and respected. https://www.facebook.com/TheConversationPro ject/ HEALTHCARE DECISIONS DAY AWARENESS Advocates of Advance Directive are trying their best to promote the initiative through various “friendly strategies, such as • The 5 Wishes • The Conversation Project
  24. 5 things that advocates from the The Conversation Project say you should know about starting this conversation with your loved ones. 1. You can start out by writing a letter—to yourself, a loved one, or a friend — and you might consider having a practice conversation with someone you trust. 2. Try finishing the sentence ‘What matters to me at the end of life is…’ 3. You can broach the topic by saying things like “I was thinking about what happened to , and it made me realize…” or “I need to think about the future. Will you help me?” 4. You don’t have to steer the conversation; just let it happen. 5. Keep in mind there are legal and medical documents you should think about producing for the Advance Directive. HEALTHCARE DECISIONS DAY AWARENESS
  25. Five Wishes is a document that, like other advance directives, makes your wishes known ahead of time. It is unique among other advance directives, however, because it addresses all of a persons needs: medical, personal, emotional, and spiritual. HEALTHCARE DECISIONS DAY AWARENESS
  26. According to Aging with Dignity (http://www.agingwithdignity.org) the organization that created Five Wishes, the document lets your family and health care providers know: 1.Which person you want to make health care decisions for you when you can’t make them. 2.The kind of medical treatment you want or don’t want. 3.How comfortable you want to be. 4.How you want people to treat you. 5.What you want your loved ones to know. HEALTHCARE DECISIONS DAY AWARENESS
  27. Below are my 5 wishes (2023): WISH 1 The Person I Want to Make Health Care Decisions for Me When I Can’t Make Them for Myself. 1. First Choice: My wife 2 Second Choice: Consensus of my son and daughter HEALTHCARE DECISIONS DAY AWARENESS
  28. WISH 2 My Wish for the Kind of Medical Treatment I Want or Don’t Want. I believe that my life is precious and I deserve to be treated with dignity. When the time comes that I am very sick and am not able to speak for myself, I want the following wishes, and any other directions I have given to my Health Care Agent, to be respected and followed. HEALTHCARE DECISIONS DAY AWARENESS
  29. What You Should Keep in Mind as my Caregiver • I do not want to be in pain. I want my doctor to give me enough medicine to relieve my pain, even if that means that I will be drowsy or sleep more than I would otherwise. • I want to be offered food and fluids by mouth. HEALTHCARE DECISIONS DAY AWARENESS
  30. Life-support treatment • Close to death: • In a Coma and Not Expected To Wake Up or Recover: • Permanent and Severe Brain Damage and Not Expected to Recover: I do not want life-support treatment. If it has been started, I want it stopped. HEALTHCARE DECISIONS DAY AWARENESS
  31. Life-support treatment In Another Condition Under Which I Do Not Wish to Be Kept Alive: Advanced cancer, stroke, and other severe disability and terminally-ill diseases HEALTHCARE DECISIONS DAY AWARENESS
  32. WISH 3 My Wish for How Comfortable I Want to Be. • I do not want to be in pain. I want my doctor to give me enough medicine to relieve my pain, even if that means I will be drowsy or sleep more than I would otherwise. • If I show signs of depression, nausea, shortness of breath, or hallucinations, I want my care givers to do whatever they can to help me. • I want my lips and mouth kept moist to stop dryness. HEALTHCARE DECISIONS DAY AWARENESS
  33. WISH 3 My Wish for How Comfortable I Want to Be. • I wish to have warm baths often. I wish to be kept fresh and clean at all times. • I wish to be massaged as often as I can be. • I wish to have my favorite music played when possible until my time of death. • I wish to have personal care like shaving, nail clipping, hair brushing, and teeth brushing, as long as they do not cause me pain or discomfort. • I wish to have religious readings and well-loved poems read aloud when I am near death. HEALTHCARE DECISIONS DAY AWARENESS
  34. WISH 4 My Wish for How I Want People to Treat Me. • I wish to have people (my family members) with me when possible. I want someone to be with me when it seems that death may come at any time. • I wish to have my hand held and to be talked to when possible, even if I don’t seem to respond to the voice or touch of others. • I wish to be cared for with kindness and cheerfulness, and not sadness. HEALTHCARE DECISIONS DAY AWARENESS
  35. WISH 4 My Wish for How I Want People to Treat Me. • I wish to have pictures of my loved ones in my room, near my bed. • If I am not able to control my bowel or bladder functions, I wish for my clothes and bed linens to be kept clean, and for them to be changed as soon as they can be if they have been soiled. • I want to die in my home, if that can be done. HEALTHCARE DECISIONS DAY AWARENESS
  36. WISH 5 My Wish for What I Want My Loved Ones To Know. • I wish to have my family and friends know that I love them. • I wish to be forgiven for the times I have hurt my family, friends, and others. • I wish to have my family, friends and others know that I forgive them for when they may have hurt me in my life. HEALTHCARE DECISIONS DAY AWARENESS
  37. WISH 5 My Wish for What I Want My Loved Ones To Know. • I wish for my family and friends to know that I do not fear death itself. I think it is not the end, but a new beginning for me. • I wish for all of my family members to make peace with each other before my death, if they can. HEALTHCARE DECISIONS DAY AWARENESS
  38. WISH 5 My Wish for What I Want My Loved Ones To Know. • I wish for my family and friends to think about what I was like before I became seriously ill. I want them to remember me in this way after my death. • I wish for my family and friends and caregivers to respect my wishes even if they don’t agree with them. HEALTHCARE DECISIONS DAY AWARENESS
  39. WISH 5 My Wish for What I Want My Loved Ones To Know. • I wish for my family and friends to look at my dying as a time of personal growth for everyone, including me. This will help me live a meaningful life in my final days. • I wish for my family and friends to get counseling if they have trouble with my death. I want memories of my life to give them joy and not sorrow. HEALTHCARE DECISIONS DAY AWARENESS
  40. WISH 5 My Wish for What I Want My Loved Ones To Know. • After my death, I would like my body to be cremated. • My remains should be put in Manila Memorial Park. • The following persons know my funeral wishes: My wife, my son, and my daughter. HEALTHCARE DECISIONS DAY AWARENESS
  41. WISH 5 My Wish for What I Want My Loved Ones To Know. • If anyone asks how I want to be remembered, please say the following about me: To my family – Good husband – •Responsible •Loving •Faithful •Provide material needs •Provide emotional needs •Support wife’s emotional needs •Promote wife as a human being (rights) HEALTHCARE DECISIONS DAY AWARENESS
  42. WISH 5 My Wish for What I Want My Loved Ones To Know. • If anyone asks how I want to be remembered, please say the following about me: To my family – Good father – •Provide companionship •Serve as a role model Good man – •Man for family •Man for others HEALTHCARE DECISIONS DAY AWARENESS
  43. WISH 5 My Wish for What I Want My Loved Ones To Know. • If anyone asks how I want to be remembered, please say the following about me: To my acquaintances – Good man Man for family Responsible father •Provide •Support •Promote children as human beings •Provide companionship •Serve as role model HEALTHCARE DECISIONS DAY AWARENESS
  44. WISH 5 My Wish for What I Want My Loved Ones To Know. • If anyone asks how I want to be remembered, please say the following about me: To my acquaintances – Man for others Vision-mission •For himself •For his family •For his community HEALTHCARE DECISIONS DAY AWARENESS
  45. WISH 5 My Wish for What I Want My Loved Ones To Know. • Epitaph on my tombstone: Good Husband, Father, Man, Physician, and Teacher (with my picture on tombstone) • I don’t like memorial services. • I will donate organs from my body that are “donatable.” Reynaldo O. Joson (Sgd) March 22, 2023 HEALTHCARE DECISIONS DAY AWARENESS
  46. Contents • What is Healthcare Decisions Day? • What are Advance Healthcare Directives? • What are the benefits of Advance Healthare Directives? • What are 2 initiatives that try to facilitate making of a formal Advance Healthcare Directives? • Samples of ROJoson Advance Healthcare Directives and 5 Wishes HEALTHCARE DECISIONS DAY AWARENESS Summary Take Away
  47. For me and for others ----- Advance directives will be of great help to my family members, physicians, and also to myself in decision-making during my end-of-life stage. Foremost, they will help me die with dignity and with shortest duration of agony. They will also keep my hospitalization and medical expenses to just a “necessary “minimum. HEALTHCARE DECISIONS DAY AWARENESS Summary Take Away
  48. In the past and at present, I have seen quite a number of patients and relatives suffering, physically, emotionally, and financially, that could have been minimized if not avoided by the presence of advance directives and end-of-life counseling by physicians. HEALTHCARE DECISIONS DAY AWARENESS Summary Take Away
  49. Be always in touch with reliable medical information on ADVANCE DIRECTIVES. Knowledge is power; it gives power. Use the 4Ks of Patient Empowerment: Kaalaman, Kakayanan, Karapatan and Kapangyarihan to gain greater control over decisions in making ADVANCE DIRECTIVE in one’s health management. Take Away in relation to Patient Empowerment HEALTHCARE DECISIONS DAY AWARENESS
  50. HEALTHCARE DECISIONS DAY AWARENESS Empowerment objective - for laypeople to have a basic understanding of the HEALTHCARE DECISION DAY AWARENESS in their health management.
  51. Reminder after the PEP Talk: Take the Online Learning cum Evaluation Test Exercise (OLETE) for mastery of learning and have a perfect score to get a Certificate. Link is in Chat Box.
  52. Reminder: 50 OLETE Certificates = 1 Voucher for ROJoson Telemedical Consultation
  53. HEALTHCARE DECISIONS DAY AWARENESS Empowerment objective - for laypeople to have a basic understanding of the HEALTHCARE DECISIONS DAY AWARENESS in their health management. ROJOSON’S REQUEST: FEEDBACK TO THIS PEP TALK! Pls. type in your feedback in the chat box during the open forum and before we adjourn! Thank you!
  54. HEALTHCARE DECISIONS DAY AWARENESS Empowerment objective - for laypeople to have a basic understanding of the HEALTHCARE DECISIONS DAY AWARENESS in their health management. LET’S NOW HAVE A GROUP PICTURE TAKING BEFORE WE START Q&A AND INTERACTIONS! Pls. turn on your video! Show your face!
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