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Sparking Change and
Inspiring Patients
Sarah Josefsberg
DesignedbyRobbieBates
Empathy and lived
experience
Sparking Change and Inspiring Patients
Macmillan Patient Experience
and User Involvement Lead
Service Designer 🎩
Sparking Change and Inspiring Patients
System
Importance
How it works
IllustrationbyYanlinFeng
IllustrationbyYanlinFeng
IllustrationbyYanlinFeng
IllustrationbyYanlinFeng
System
Importance
Ideal State
Patient
Patient ‘X’ needs
to fit inside
The Undercover Service Designers
NHS Box
The Undercover Service Designers
...obviously [co-production] is a good
idea and we should certainly, I would
like to do it but I certainly couldn’t do
it right now...“
Insights from staff about user involvement
“
How might we support better
collaboration between staff
and cancer patients?
Sparking Change and Inspiring Patients
How can you create
a revolution from the
inside?
Sparking Change and Inspiring Patients
My secret
Weapon 💣
Sparking Change and Inspiring Patients
Emma
cancer patient + user researcher
= SUPERHERO
Sparking Change and Inspiring Patients
Reflections on
Journey mapping
experience
Sparking Change and Inspiring Patients
I began the workshops feeling overwhelmed and a bit
like an imposter...wondered what I was doing there!
I had no place acting like a co-facilitator of a meeting.
Speaking to Sarah about it and some of the issues I’ve
been having with the volunteering process and from the
other week with the map helped. “
Sparking Change and Inspiring Patients
“
Co-Production
Strategies that
worked 👍
Sparking Change and Inspiring Patients
The Undercover Service Designers
“...Sometimes we feel very separate. Getting our
opinions is great but then they go off somewhere
and we’re not a part of the discussions, we’re just
a point in the discussion“
Patients are
partners/ the boss
Bring patients
into the room!
Discovery
Workshop
Sparking Change and Inspiring Patients
Sparking Change and Inspiring Patients
https://patient-collab
oration-toolkit.square
space.com
#WithUsNotToUS
Patient X, Y, Z can all
fit… but maybe we
don’t need a box?
The Undercover Service Designers
NHS Box
Questions 🎤
Thank you to Emma for helping me with this talk, Ali Blake for
helping design slides, Frenny Fong for illustrating patient
involvement journey and everyone for listening!

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Virtual sdgc20 | oct 22 23, 2020 | sparking change and inspiring patients